how do you all cope?

[Guest guest]

Hi my name is Aurora, I have not written anything in a long time but

I have been reading everyone's postings. I have a question for all

mothers of LP's out there.

My 8 mo grandson is an LP he is only 25 inches tall and weighs 12

lbs. With no other people with dwarfism in the family we are taking

it one day a time. Other people with dwarfism we have contacted have

been wonderful to us...it is the APs that we want to strangle

sometimes!!!

For instance, every time we have had to go into the er for whatever,

it never fails that the doctor on call has to inform us " are you

aware of his condition?? " my daughter rolls her eyes, " yes, he has

dwarfism and it is not a condition " " and do you know that he will be

short? " another roll of the eyes, impatient tone of voice " yes we

know " " and do you know that you have to be extra careful with him? "

by this time I am almost having to hold my daughter back to keep her

from murdering someone!! " Look I am here because he is running a

fever can you check his ears?!!! "

Then the other day we took him to have his six mo old pictures

taken, the photographer attendant brings out this cute huge basket

with a huge blue bow...my daughter raises her voice " he is not a

newborn, I told you he is six mos old! " but the photographer takes

pictures anyway which we DID NOT buy.

Then we get the well-intetioned comments from other mothers " well my

children were huge at that age! he must be a shortie! "

How do you cope? what do you tell people? We don't know whether to

go about explaining to everyone, but then when we do tell people he

has dwarfism we get this awkward silence in response...and if my

daughter says " I hope all my children are dwarfs just like him! "

then she gets dirty looks and more awkward silence.

How can you tell people how much you love someone no matter what

they look like on the outside??