Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Hello everyone: I am the mom of a five year old beautiful little girl with Achondroplasia. During the first few years when doctors appointments were more than I could count or keep up with, I created a medical journal notebook for her, which helped me keep track of just about everything. During her foramen magnum decompression surgery, the doctors appeared (ha) to be very impressed with this. I am asking any parents out there, if there would be an interest in having something like this for your child, or for that fact adult LP's too. I have a format done, and would just like to have some input. You may email me priv ately, or on the list - thank you all. Hope you are having a great summer!!' Regards, , mom to Quote Link to comment Share on other sites More sharing options...
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