New here

[Guest guest]

Hi

I had my saline implants for eleven years before I noticed that they

were definitely making me sick. I had fibromyalgia in my twenties and

didn't get the implants until I was in my thirties so I think that

while I was getting worse I kept thinking it was all from

fibromyalgia. That was until suddenly many new and scary symptoms

developed all at once and I thought I was dying. I found this group,

got explanted, and am doing much better now. What symptoms are you

experiencing? Welcome to our group.

Hugs, kathy

> i was wondering when everyone started showing symptoms that

something

> was wrong? i have had my saline implants for over a yr now

[Guest guest]

Renea

HI. You haven't been explanted very long. Can you tell us what

detoxes you are doing? Perhaps we can help with some suggestions

there. What kind of diet do you have? that can make a big

difference. Do you have swelling of your joints along with pain?

And disfigured joints? I just posted an article on antibiotic

therapy. was on antibiotic therapy for ayear and it really

helped her joint pain. I have been on it for three years and it

cleared alot of my symptoms. Others on this site have been on it

also. I would suggest you look at the following

websites:www.rheumatic.org and www.roadback.org. and

www.rheumaticsupport.net. Look at the stories and go on the

bulletin board and read the posts. The people on those boards

are very helpful and supportive also. Many people with arthritis,

lupus, scleroderma, fms, and undiagnosed autoimmune symptoms are

helped with this therapy. Many people doing these therapies are

also detoxing, making nutritional changes, etc. If you are

persistent, I think you will hit on the things your body needs in

order to get better.

Hugs, kathy

> > i was wondering when everyone started showing symptoms that

> something

> > was wrong? i have had my saline implants for over a yr now

[Guest guest]

well it all started with my left hand, my finger tips on my thumb,

index and middle finger started feeling tingly and numb, then it

went up my whole arm. so i went to the doctors and they did some

tests and they concluded that i have carpal tunnel, but since then

my left leg feels like my arm does, just not as bad and a little on

my right toes (numbness and tingly feeling) i am also having

shortness of breath and i can't talk loud i get out of breath. so

now they are going to send me to a neuologist? took more blood

tests...etc... i just don't know what to do or think? i feel so

drained and tired

> > i was wondering when everyone started showing symptoms that

> something

> > was wrong? i have had my saline implants for over a yr now

[Guest guest]

what do you mean by sickest? omg i know this is what is happening to me...sucks !!! now i have to save money to get them out, did your insurance pay for explantation?ktitko <ktitko@...> wrote:

I had an immediate change after implanting, but most of my severe symptoms developed over a longer period of time. I was at my sickest about 2 years after implanting.> i was wondering when everyone started showing symptoms that something > was wrong? i have had my saline implants for over a yr nowOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing,

two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

-

Hi, thanks for the more info. Have they done any ANA blood test?

If so did it show anything positive? Don't buy the carpal tunnel

thing. It is more than that. Many of the women here have had ms

like symptoms and had them resolve after explant. I have had

tingling/numbness for years in my fingers/toes and in both lower

legs and finally in my neck and mouth area. That is all gone now.

The numbness was not a true numbness for me--instead it is called

parathesia---a sensation of numbness. What i mean is that if

someone tested to see if I had feeling in that body part, I did.

This type of sensation of common in fibromyalgia also. I definitely

would get an explant ---these symptoms would only worsen as time

goes on with the implants left in.

Hugs, kathy

-- In , " mrzjam " <mrzjam@y...> wrote:

> well it all started with my left hand, my finger tips on my thumb,

> index and middle finger started feeling tingly and numb, then it

> went up my whole arm. so i went to the doctors and they did some

> tests and they concluded that i have carpal tunnel, but since then

> my left leg feels like my arm does, just not as bad and a little

on

> my right toes (numbness and tingly feeling) i am also having

> shortness of breath and i can't talk loud i get out of breath. so

> now they are going to send me to a neuologist? took more blood

> tests...etc... i just don't know what to do or think? i feel so

> drained and tired

>

>

>

>

> >

> >

> > Hi

> > I had my saline implants for eleven years before I noticed that

> they

> > were definitely making me sick. I had fibromyalgia in my

twenties

> and

> > didn't get the implants until I was in my thirties so I think

that

> > while I was getting worse I kept thinking it was all from

> > fibromyalgia. That was until suddenly many new and scary

symptoms

> > developed all at once and I thought I was dying. I found this

> group,

> > got explanted, and am doing much better now. What symptoms are

> you

> > experiencing? Welcome to our group.

> > Hugs, kathy

> >

> >

> >

> >

> >

> >

> >

> > --- In , " mrzjam " <mrzjam@y...>

wrote:

> > > i was wondering when everyone started showing symptoms that

> > something

> > > was wrong? i have had my saline implants for over a yr now

[Guest guest]

do you have messenger? i would love to chat with you directly about this

what is an ana blood test?mikat828 <mikat828@...> wrote:

-Hi, thanks for the more info. Have they done any ANA blood test? If so did it show anything positive? Don't buy the carpal tunnel thing. It is more than that. Many of the women here have had ms like symptoms and had them resolve after explant. I have had tingling/numbness for years in my fingers/toes and in both lower legs and finally in my neck and mouth area. That is all gone now. The numbness was not a true numbness for me--instead it is called parathesia---a sensation of numbness. What i mean is that if someone tested to see if I had feeling in that body part, I did. This type of sensation of common in fibromyalgia also. I definitely would get an explant ---these symptoms would only worsen as time goes on with the implants left in. Hugs, kathy

-- In , "mrzjam" <mrzjam@y...> wrote:> well it all started with my left hand, my finger tips on my thumb, > index and middle finger started feeling tingly and numb, then it > went up my whole arm. so i went to the doctors and they did some > tests and they concluded that i have carpal tunnel, but since then > my left leg feels like my arm does, just not as bad and a little on > my right toes (numbness and tingly feeling) i am also having > shortness of breath and i can't talk loud i get out of breath. so > now they are going to send me to a neuologist? took more blood > tests...etc... i just don't know what to do or think? i feel so > drained and tired > > > > > > > i was wondering when everyone started showing symptoms that > > something

> > > was wrong? i have had my saline implants for over a yr nowOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

What Kathy is talking about is a mycoplasma infection.

.. . You will learn more than I can tell you by doing a

search for the term.

However, basically, a mycoplasma bacteria is an

extremely small organism. It has no cell walls. It

lives by invading cells where it multiplies, then

spreading to other cells. It can result in numerous

symptoms, including death.

This bacteria was initially cultured for biological

warfare. However, it's gotten loose in the public.

People with suppresed immune systems are particularly

subject to being infected.

Mycoplasma bacterial infections are treated with small

dose of antibiotics taken long term. The idea is to

catch the organism between cells when it is vunerable.

I suspect the reason that Kathy has has such an

extremely difficult time detoxing, with horrible

herxes, has to do with the fact that she must continue

taking antibiotics until she is clear of the

mycoplasma organism.

There are some very specific blood tests that detect

mycoplasma. They are not routinely given by doctors.

One microbiological scientist, Garth Nicolson,

believes that a very large number of those suffering

from arthritis actually have a mycoplasma infection.

Rubin, author of Patient Heal Thyself and The Maker's

Diet, believes that mycoplasma can treated through the

right supplements and diet. Dr. Mercola, 's

doctor, believes that the only proper use of

antibiotics is the treatment of mycoplasma.

Hope this helps!

Hugs to all,

Rogene

[Guest guest]

You can run around in circles and get one diagnosis

after another . . . yet, once you get your implants

out, most of those problems will fade away.

Unless you aren't concerned about future insurability,

I would be careful about racking up a list of

diagnoses that could prevent you from getting private

insurance in the future.

I thought I posted a list of conditions that an

insurance company uses to qualify women for explant.

However, I can't find it. . . If anyone has a copy,

please repost it! . . . Basically, they don't care if

you are misshappened, or have a saline rupture, if you

aren't sick. They often remove them if you have

significant contracture. The plastic surgeons we

recommend are familiar with the requirements of the

insurance companies. Some pay, some don't . . .

It would make more sense for insurance companies to

pay for explant, since keeping implants in means your

medical bills will continue to climb!

Hugs,

Rogene

--- mrzjam <mrzjam@...> wrote:

> well it all started with my left hand, my finger

> tips on my thumb,

> index and middle finger started feeling tingly and

> numb, then it

> went up my whole arm. so i went to the doctors and

> they did some

> tests and they concluded that i have carpal tunnel,

> but since then

> my left leg feels like my arm does, just not as bad

> and a little on

> my right toes (numbness and tingly feeling) i am

> also having

> shortness of breath and i can't talk loud i get out

> of breath. so

> now they are going to send me to a neuologist? took

> more blood

> tests...etc... i just don't know what to do or

> think? i feel so

> drained and tired

>

>

>

>

> > > i was wondering when everyone started showing

> symptoms that

> > something

> > > was wrong? i have had my saline implants for

> over a yr now

>

>

>

[Guest guest]

Renea,

I'm sorry to hear you aren't improving yet . . .

However it's early.

Do you know if your doctor removed your implants en

bloc, total capsulectomy? . .. did he/she use drains?

Are you doing anything to detox? . .. Especially

drinking a lot of water right now? Diet is very

important. NO sugar! . . .

Please let me know how you're doing!

Hugs and prayers,

Rogene

[Guest guest]

I mean exactly thhat. I was so sick after my son was born, 2 years

after implant, that I couldn't get out of bed and I couldn't eat

anything. Everything I ate was immensly painful and I would double

over for hours afterward. I was taking prescriptions like prevacid,

and that only made me worse. I only ate the BRATT diet (bananas, rice,

apples, tea, toast)for many months until I was slowly able to

introduce other foods. I think the only reason I got any better at

that point was because I changed my diet so drastically and forced

myself to live for my infant sons sake. I had done pretty well until

the c-section birth of my third child, from which I never recovered.

I was explanted nearly 3 weeks ago and I feel terrific! Feel free to

ask me any questions you have.

[Guest guest]

,

I may have asked before . . . but how are your kids

doing?

No rashes, allergies, digestive problems?

It seems that the chances of a child having problems

increases with the age of the implant, starting at

about three years.

Love,

Rogene

[Guest guest]

well its been a while since i posted and i have recently had all my

blood work taken and the one you referred to (ANA) did not show

anything positive. since the last time i posted i would say i

haven't gotten worse but my symptoms are much different now...i have

the sensation of numbness in my left arm still but no longer in my

left leg but has moved to my right leg, i have terrible fatigue,

and my eye sight has become blurry, but i noticed only when i look

to the left. on the 16th they are performing an MRI, don't know

what that will accomplish but what the hell.

i talked to my PS and they said that i need to rule everything out

and then come in to see him, if the doctors determine that it is my

implants then my insurance will probably cover it. i am at my wits

end..so depressed which i have read that this is a sign.

i just don't know what to do with myself, somedays i feel ok and

others i just want to not be bothered.

so i am rambling...i guess i just need to vent...anyone ???

> > > > i was wondering when everyone started showing symptoms that

> > > something

> > > > was wrong? i have had my saline implants for over a yr now

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own

decisions about how to live a happy life and how to work for a

better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)

>

>

[Guest guest]

Hi there

Do not worry - we have all been there one way or another. I have the same issues - good days and bad. Hopefully this means that our bodies are doing their job and detoxing these horrible chemicals from our bodies.... I kind of look at a bad day as a good thing - it must mean my body is detoxing which is why I feel so badly. The more it detoxing the faster I get better! Sounds crazy, I know. Keep your chin up and feel free to vent anytime - we are all here to listen.

shari

[Guest guest]

This up and down, good day---bad day cycling is just the way

autoimmune sickness is. it seems totally unpredictable, too. Some

days you can wake up feeling okay and able to accomplish things, but

other days you just don't want to be around anyone or do anything. I

never felt more like a social paraiah as when I was first sick and

for the next 18 months afterward. I think it took that long for me

to begin feeling good enough to do more things. But as I've said so

many times before, it took me a good 4 years before I could say I

felt really good again. I saw minor improvements over time, but it

is so gradual as to be sometimes not even noticeable. It's very

frustrating.

I am glad your bloodwork came out okay. Let us know how the MRI

went.

If you are not explanted yet, then what you are suffering from, even

though your bloodwork is normal, is still common to implants and

will only likely get worse. One of our former members had all of

these symptoms and fought the idea of explant until she finally

cropped up with an elevated ANA. You may not have abnormal blood

work now, but that doesn't mean that it can't become abnormal in the

future. My Hashimoto's autoimmune disease didn't show up on blood

work until 2002--fully 4 years after explant! But the process was

in place.

Stay with us --we are concerned for you!

Patty

> > > > > i was wondering when everyone started showing symptoms

that

> > > > something

> > > > > was wrong? i have had my saline implants for over a yr now

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice

given

> by licensed health care professionals. Consult your physician or

> licensed health care professional before commencing any medical

> treatment.

> >

> > " Do not let either the medical authorities or the politicians

> mislead you. Find out what the facts are, and make your own

> decisions about how to live a happy life and how to work for a

> better world. " - Linus ing, two-time Nobel Prize Winner (1954,

> Chemistry; 1963, Peace)

> >

> >

[Guest guest]

Unfortunately I am having the same symptoms that you are and then some.... It is very frustrating especially when our bloodwork comes back normal, but yet our body does not feel normal. Just hang in there and take one day at a time. :-) I am still waiting to hear the results of my bloodwork. The last time when I had the silicone implants the ANA was very elevated, but then came down after they were removed. It will be interesting to see what it is now with the saline, because the same symptoms have come back again.

Dianemrzjam <mrzjam@...> wrote:

well its been a while since i posted and i have recently had all my blood work taken and the one you referred to (ANA) did not show anything positive. since the last time i posted i would say i haven't gotten worse but my symptoms are much different now...i have the sensation of numbness in my left arm still but no longer in my left leg but has moved to my right leg, i have terrible fatigue, and my eye sight has become blurry, but i noticed only when i look to the left. on the 16th they are performing an MRI, don't know what that will accomplish but what the hell.i talked to my PS and they said that i need to rule everything out and then come in to see him, if the doctors determine that it is my implants then my insurance will probably cover it. i am at my wits end..so depressed which i have read that this is a

sign.i just don't know what to do with myself, somedays i feel ok and others i just want to not be bothered.so i am rambling...i guess i just need to vent...anyone ???> > > > i was wondering when everyone started showing symptoms that > > > something > > > > was wrong? i have had my saline implants for over a yr now> > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your

physician or licensed health care professional before commencing any medical treatment. > > "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)> >

[Guest guest]

and my eye sight has become blurry, but i noticed only when i look

> to the left. on the 16th they are performing an MRI, don't know

> what that will accomplish but what the hell.

I have this and it went from blurry to double vision and bulging eyes

and the MRI said it was indicative of Graves ophthamopathy. There are

two causes for this. One is thyroid...mine is fine. and the ther is

toxins in the body.

[Guest guest]

hi there

I just wanted to post on the eye issue.... I had a very "extreme" eye test done when I was 17 due to headaches ... it took hours where they determined that my eyesight was 20/15 - better than 20/20. I got my implants at 25 and after that I became horrible nearsighted.... Within a few months had my eyes tested again and I needed contacts.... My sight was -3.75 in one eye -3.50 in the other. It happened over the period of about five years to get that bad but every time I went to get checked they went up a notch. I thought I was gonna go blind at the rate I was going. wearing contacts, of course I had to get exams yearly to renew my rx which always falls in August. I was explanted on 4/03 and at my exam in August that year I stayed the same which was the first time in 5 years. Last year '04 at my exam my RX actually went down almost a complete point - I am at -2.75 in both. I am due again and am curoius to see if it changed again. My doc was stunned.... Very ironic I would say....

love

shari

[Guest guest]

HI

I am sorry that you are feeling so low. I don't know if you will be

able to get your doctors to say that the implants are causing your

illness. But even if they don't you need to get them out. Many

many of us did not get our insurance to pay for our explant. I

didn't. But it was still the best money I ever spent. It is so

worth it to have my life back. Please don't wait too long to get

them out. The common experience is to just keep getting more and

more symptoms the longer you have them.

Hugs, kathy

> > > > > i was wondering when everyone started showing symptoms

that

> > > > something

> > > > > was wrong? i have had my saline implants for over a yr now

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice

given

> by licensed health care professionals. Consult your physician or

> licensed health care professional before commencing any medical

> treatment.

> >

> > " Do not let either the medical authorities or the politicians

> mislead you. Find out what the facts are, and make your own

> decisions about how to live a happy life and how to work for a

> better world. " - Linus ing, two-time Nobel Prize Winner (1954,

> Chemistry; 1963, Peace)

> >

> >

[Guest guest]

hi sarah

i'm new too 34 years and not officially diagnosed as yet - so no med's (have to

have 1 more round of blood tests but 80% sure)

welcome, these are a great bunch of people

cheers

mel (from australia)

[ ] New here

I just wanted to introduce myself. My name is . I am 30 years

old and have been dx'd with RA for 2 1/2 years. I have been married 7

years come Monday with no kids. I am in the process of moving to

London, England. I am on MTX, enbrel, pred. and folic acid. I look

forward to getting to know everyone here.

[Guest guest]

:

Welcome to the group. There's plenty of wonderful people here and tons

of great information. I'm sure that if you have questions, if you post - you

will usually find an answer.

All the best,

> I just wanted to introduce myself. My name is . I am 30 years

> old and have been dx'd with RA for 2 1/2 years. I have been married 7

> years come Monday with no kids. I am in the process of moving to

> London, England. I am on MTX, enbrel, pred. and folic acid. I look

> forward to getting to know everyone here.

[Guest guest]

Hi ,

Welcome to the group! I am so glad your here, it is a great place to

be. May I ask where you live now? That would be cool to move to

London, I have been there many years ago. I look forward to getting

to know you,

Take care, Tawny

> I just wanted to introduce myself. My name is . I am 30 years

> old and have been dx'd with RA for 2 1/2 years. I have been married

7

> years come Monday with no kids. I am in the process of moving to

> London, England. I am on MTX, enbrel, pred. and folic acid. I look

> forward to getting to know everyone here.

[Guest guest]

Hi Tawny, thank you for your welcome it seems like a wonderful

place. I am currently living in Ohio. Yes, it is very exciting to

get this oppurtunity to move there esp as it means I get to see more

of my family who still live there.

> > I just wanted to introduce myself. My name is . I am 30

years

> > old and have been dx'd with RA for 2 1/2 years. I have been

married

> 7

> > years come Monday with no kids. I am in the process of moving

to

> > London, England. I am on MTX, enbrel, pred. and folic acid. I

look

> > forward to getting to know everyone here.

[Guest guest]

Welcome . I can't imagine moving out of the country. I had a

hard enough time moving out of state!

I hope the move goes smoothly. I've always wanted to go to England

since that is where my mom is from.

I'm also on enbrel and mtx and have had RA for 30 years. Nice to meet

you.

a

On Sep 20, 2005, at 9:22 PM, wrote:

> I just wanted to introduce myself. My name is . I am 30 years

> old and have been dx'd with RA for 2 1/2 years. I have been married 7

> years come Monday with no kids. I am in the process of moving to

> London, England. I am on MTX, enbrel, pred. and folic acid. I look

> forward to getting to know everyone here.

>

>

>

>

>

>

>

>

[Guest guest]

Welcome .

Sorry about your diagnosis, but glad you found us. This article is

full of info on the diagnosing of RA:

http://www.aafp.org/afp/20050915/1037.html

How was your RA diagnosed?

a

On Oct 4, 2005, at 9:56 AM, cindy_4798 wrote:

> Hello everyone, Im cindy, 44, single mother of an awsome 7 yr old girl

> and 3 cats. I have fm, and I think ra, have been dx with add and

> as of

> now the only med i am on is ritalin. I recently became aware of a

> close relative that was dx with ra, and I'm trying to find out what

> the

> protocol is for being dx with it. I was dx with fm over 10 years ago,

> but the last 2 I have seen a dramatic increase in pain and

> fatigue. It

> used to be primarily muscle type pain, but my ankle and knee joints

> have practically crippled me in the last 6 months. I also have bone

> pain in my shins which I am going to address at my next appt which is

> Friday.

> I have also suffered from depression most of my adult life, and now I

> am entering perimenopause to add fuel to the fire. (sigh) : (

> I had thyroid surgery in april, which turned out to be non-malignant

> lesion, thank goodness. I am un-employed, and have not been able so

> far to qualify for disability, but am going to keep trying.

> The last couple weeks, I have been in so much pain, to the point of

> tears. I must tell you I have a very high pain thresh hold after 10

> years of illness, but I am desperate to find something that will help.

> Any advice/info you can share would be helpful. Moral support is also

> needed. T

>

>

>

>

>

>

>

[Guest guest]

Hi , My name is also and I am 36 with RA diagnosed when I was 14, so

I know what your going through. But it sounds to me like your rummy is not doing

his/her job if you are in that much pain. I'm not saying that I don't have pain

but it is miner compared to what I here out there. I have been seeing the same

rummy for about 18 years and he is awsome. My visits are once every 2 months and

thats just to have blood work pretty much and so far no probs.If by any chance

your in the LA, Ca. area you might want to look him up. Well hope to hear from

you again and welcome. Dots (Dr. Gelfand (562) 861-0954)

cindy_4798 <cindy_4798@...> wrote:Hello everyone, Im cindy, 44, single

mother of an awsome 7 yr old girl

and 3 cats. I have fm, and I think ra, have been dx with add and as of

now the only med i am on is ritalin. I recently became aware of a

close relative that was dx with ra, and I'm trying to find out what the

protocol is for being dx with it. I was dx with fm over 10 years ago,

but the last 2 I have seen a dramatic increase in pain and fatigue. It

used to be primarily muscle type pain, but my ankle and knee joints

have practically crippled me in the last 6 months. I also have bone

pain in my shins which I am going to address at my next appt which is

Friday.

I have also suffered from depression most of my adult life, and now I

am entering perimenopause to add fuel to the fire. (sigh) : (

I had thyroid surgery in april, which turned out to be non-malignant

lesion, thank goodness. I am un-employed, and have not been able so

far to qualify for disability, but am going to keep trying.

The last couple weeks, I have been in so much pain, to the point of

tears. I must tell you I have a very high pain thresh hold after 10

years of illness, but I am desperate to find something that will help.

Any advice/info you can share would be helpful. Moral support is also

needed. T