New here

[Guest guest]

Hi Corinne and welcome! I think you are doing the right thing by planning to

discuss your concerns with your pediatrician. Keep in mind that many peds are

not very informed about plagio and many take the " it will round out on its

own " theory. Be prepared to speak up for what you believe and really express

your serious concerns. Even if your ped does not think it is a big deal you

could press for a referral to a specialist if you wish to get the advice of

someone very experienced in plagio. You might also ask your ped about

torticollis. Does lack full range of motion in his neck or does his head

tilt to one side? These could be signs of tort and will require stretching or

physical therapy to correct.

Good luck and let us know what your ped says!!

Marci (Mom to )

Oklahoma

[Guest guest]

Hi Corinne

Yes you are quite right don't be brushed offby your doctors as i am sure you

won't. i have 2 boys and my youngest was diagnosed with severe plagio and he

is blonde and his hair is very fine. So it was very noticable. Dylan is in

his second DOCband which for me and Dylan has worked wonders. Dylans head

has rounded nicely and his facial assymetry has gone. His ears are still

misaligned but nothing compared to what they was. Dylan started the DOCband

at 8 months old and he is now 14 months so obviously Dylan had a good growth

spurt which helped with the correction. I wish you lots of luck and keep us

all posted.

Kind regards

Kerry - marcus (3) Dylan (1)

Calgary,AB

>From: " Cor_Marie " <Cormarie99@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: New Here

>Date: Tue, 23 Apr 2002 20:14:28 -0000

>

> I'm Corinne, wife to and mom to Alyssa(3/20/90), Kira

>(7/16/99) and (1/4/02). I'm from the Disney World area and work

>there part-time on weekends and am a full-time mom the rest of the

>time.

> I was happy when I came across this group. Kira had plagio, but

>it was mild-moderate. Her pediatrician didn't feel it was necessary

>to do anything about it, she said her hair will cover it. Well after

>kira was out of her swing and up and about more, her head eventually

>fixed itself and she has a normal shaped head now. I wasn't too

>concerned since most little girls have long enough hair. Now with my

>little , I am going through it all over again. No matter how many

>times I reposition him, he favors his right side and it's driving me

>crazy. He gets upset sometimes if I lean him on the opposite side. It

>doesn't help the fact that he sleeps in his swing. From the time he

>came home from the hospital it's been this way, partly because he

>used to spit up alot, he still somewhat does, partly because he gets

>colicy in the evening, and partly because he just refuses to sleep

>for a long period of time on his back or side. Plus I baby him an

>awful lot because when he was born he had a couple of murmurs and a

>thickened ceptum in his heart was in NICU for 1 1/2 days. The murmurs

>are gone and we go for a follow up on his ceptum on thursay, he had

>an U/S a couple of weeks ago. He goes to the pediatrician in 2 weeks

>and I was going to speak to her about the plagio, I just don't want

>her to brush it off like she did with Kira, 's a boy and boys

>wear their hair short, very short sometimes. She is a great dr, but

>just seems to try and avoid anything un-neccesary. But it looks like

>his right ear is not aligned with the left, so I hope that she see's

>the same concerns as me. I'll keep everyone updated.

>

>~Corinne

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

,

was on Zantac too for awhile- what a savior!!! He cried

uncontrollably for 2 days- but the Zantac worked instantly!

[Guest guest]

Yep, that was .....he didn't spit up much at all. Sometimes they

will spit up just enough for it to be in their throat, burning! It is

hereditary from what I have read (actually, the internet gave me all the

symptoms and I presented it to my Doc, who then gave us Zantac). My mom and

sister have reflux, so I thought it fit. It really did help us- we stopped

giving it to him probably 4 months later (?).

' Mom

[Guest guest]

, marcisch@a... wrote:

" You might also ask your ped about

torticollis. Does lack full range of motion in his neck or does

his head tilt to one side? These could be signs of tort and will

require stretching or physical therapy to correct. "

>

> has full range of his neck, he is always turning and looking

all around. I think he just favors the one side since the flat spot

is probably more comfortable to him.

Thanks for the info.

~Corinne

Disney Area, FL

[Guest guest]

Corinne -

Does have reflux (GER)? When a baby is only comfortable

sleeping elevated, it can point to reflux. My daughter screamed for

4 months before she was dx with GER. As soon as she started on

Zantac, everything calmed down considerably and soon she was

sleeping in the crib. My son has it too, but he was dx at 3 days,

so we haven't had those same issues because he is on meds. When he

is sick, he needs to sleep upright because the reflux gets

aggravated, but the meds keep it in check the rest of the time.

Just a thought!

Dane's mom (DOC Band 2/14)

> I'm Corinne, wife to and mom to Alyssa(3/20/90), Kira

> (7/16/99) and (1/4/02). I'm from the Disney World area and

work

> there part-time on weekends and am a full-time mom the rest of the

> time.

> I was happy when I came across this group. Kira had plagio,

but

> it was mild-moderate. Her pediatrician didn't feel it was

necessary

> to do anything about it, she said her hair will cover it. Well

after

> kira was out of her swing and up and about more, her head

eventually

> fixed itself and she has a normal shaped head now. I wasn't too

> concerned since most little girls have long enough hair. Now with

my

> little , I am going through it all over again. No matter how

many

> times I reposition him, he favors his right side and it's driving

me

> crazy. He gets upset sometimes if I lean him on the opposite side.

It

> doesn't help the fact that he sleeps in his swing. From the time

he

> came home from the hospital it's been this way, partly because he

> used to spit up alot, he still somewhat does, partly because he

gets

> colicy in the evening, and partly because he just refuses to sleep

> for a long period of time on his back or side. Plus I baby him an

> awful lot because when he was born he had a couple of murmurs and

a

> thickened ceptum in his heart was in NICU for 1 1/2 days. The

murmurs

> are gone and we go for a follow up on his ceptum on thursay, he

had

> an U/S a couple of weeks ago. He goes to the pediatrician in 2

weeks

> and I was going to speak to her about the plagio, I just don't

want

> her to brush it off like she did with Kira, 's a boy and boys

> wear their hair short, very short sometimes. She is a great dr,

but

> just seems to try and avoid anything un-neccesary. But it looks

like

> his right ear is not aligned with the left, so I hope that she

see's

> the same concerns as me. I'll keep everyone updated.

>

> ~Corinne

[Guest guest]

> Corinne -

> Does have reflux (GER)? When a baby is only comfortable

> sleeping elevated, it can point to reflux. >

> Dane's mom (DOC Band 2/14)

I had thought that,and he used to spit up alot up until he was about

2 months. Now I think it's because he likes the motion of the swing.

We've put him in his bassinet and he's slept there for awhile, and

i've started trying to get him used to being in his crib..he slept

for 45 min there in the afternoon. I really just need to soothe him

to sleep at night and put him in his crib and he'll probably sleep ok

in there since it will be dark in the room. At first he had to have

the swing on all time at night, now when I go to sleep I shut it off

and he sleeps all night.

~Corinne

Disney Area, FL

[Guest guest]

You *might* want to check with your dr. Some babies with reflux

don't spit up much. My daughter didn't. The acid was burning her

esophagus, so he had to continually be in her bouncy chair or swing

(even if it wasn't moving) to be comfortable. I had reflux and

hyperemesis during both pregnancies and couldn't lay flat at all.

It burned so badly to lay like that. If it is reflux, Zantac or

Pepcid can help tremendously then maybe repositioning could work for

him. I think my daughter outgrew GER at 7 or 8 months.

Dane has plagio - and tort- because the wonderful staff at the

Cleveland Clinic told us since he has reflux to lay and hold him

only on his right side. Nobody said anything about the effects.

Dane's mom (DOC Band)

> > Corinne -

> > Does have reflux (GER)? When a baby is only comfortable

> > sleeping elevated, it can point to reflux. >

> > Dane's mom (DOC Band 2/14)

>

>

> I had thought that,and he used to spit up alot up until he was

about

> 2 months. Now I think it's because he likes the motion of the

swing.

> We've put him in his bassinet and he's slept there for awhile,

and

> i've started trying to get him used to being in his crib..he slept

> for 45 min there in the afternoon. I really just need to soothe

him

> to sleep at night and put him in his crib and he'll probably sleep

ok

> in there since it will be dark in the room. At first he had to

have

> the swing on all time at night, now when I go to sleep I shut it

off

> and he sleeps all night.

>

> ~Corinne

> Disney Area, FL

[Guest guest]

Hi Corinne:

Welcome to the group!

I am glad to hear is a healthy little boy, it sounds like you

have had some scares with him. That's also terrific that your

daughter's head did in fact round out on it's own in time! We like

to hear that!

I saw your reply that said does have full range of motion, so no

tort. That's good news! I had the same problem with my daugher not

staying off her flat spot. No matter how much I tried to reposition

her head would automatically roll back to the flat side. I compared

her head to a deflated ball, the ball will always roll back to it's

flatter side.

Don't let your ped. brush off your concerns. Demand to be referred

to a specialist such as a pediatric neurosurgeon. is at a great

young age - you're doing the right thing by repositioning him, as

frustrating as it is. Have you checked out

www.plagiocephaly.org/support for good repositioning tips?

Welcome again....please be sure you keep us updated on 's

progress & his Dr. appt in 2 wks. Good luck.

Debbie Abby's mom DOCgrad

MI

> I'm Corinne, wife to and mom to Alyssa(3/20/90), Kira

> (7/16/99) and (1/4/02). I'm from the Disney World area and

work

> there part-time on weekends and am a full-time mom the rest of the

> time.

> I was happy when I came across this group. Kira had plagio,

but

> it was mild-moderate. Her pediatrician didn't feel it was necessary

> to do anything about it, she said her hair will cover it. Well

after

> kira was out of her swing and up and about more, her head

eventually

> fixed itself and she has a normal shaped head now. I wasn't too

> concerned since most little girls have long enough hair. Now with

my

> little , I am going through it all over again. No matter how

many

> times I reposition him, he favors his right side and it's driving

me

> crazy. He gets upset sometimes if I lean him on the opposite side.

It

> doesn't help the fact that he sleeps in his swing. From the time he

> came home from the hospital it's been this way, partly because he

> used to spit up alot, he still somewhat does, partly because he

gets

> colicy in the evening, and partly because he just refuses to sleep

> for a long period of time on his back or side. Plus I baby him an

> awful lot because when he was born he had a couple of murmurs and a

> thickened ceptum in his heart was in NICU for 1 1/2 days. The

murmurs

> are gone and we go for a follow up on his ceptum on thursay, he had

> an U/S a couple of weeks ago. He goes to the pediatrician in 2

weeks

> and I was going to speak to her about the plagio, I just don't want

> her to brush it off like she did with Kira, 's a boy and boys

> wear their hair short, very short sometimes. She is a great dr, but

> just seems to try and avoid anything un-neccesary. But it looks

like

> his right ear is not aligned with the left, so I hope that she

see's

> the same concerns as me. I'll keep everyone updated.

>

> ~Corinne

[Guest guest]

-

Congratulations to Olivia. It's such a good feeling to have such

great success. You are lucky to have a plagio friendly doctor.

I also have an Olivia (2 yo). In typical 2 yo fashion, she is

calling herself " Melivia " these days.

Dane's mom DOC Grad - Melivia's mom too!

> Hi all. I am new to this board and hope my daughter will be out

of

> her helmet Monday, June 10!!! The quick version of her story is

> this. Olivia is 6 1/2 months old and has been wearing the helmet

for

> almost 13 weeks now. I found the problem very early at about 10

> weeks. My pediatrician did send me on to see the specialist and

have

> her CT evaluation. She was diagnosed with Plagiocephaly.

Insuance

> did cover the helmet and CT scans.

>

> I am very happy that I made the decision to push forward to be

where

> we are today. Her head looks beautiful and has rounded out very

> nicely. At 10 weeks she had a flat spot on the left side of her

> head, minor forehead bossing and left ear looked out of line with

the

> right ear. Today all of the problems seem to be corrected.

>

> I just want to tell other parents that are confused about whether

to

> wait and " let it round out " or wear the helmet. Wear the

helmet!!!!

>

> I am from the Nashville, TN / Vanderbilt area and the type of

helmet

> Olivia wore is different from what I have seen on the internet.

That

> scared me at first but, the results show success!

>

> We have a successful ending to our story. I hope that we can

> raise awareness to other new parents about what can happen from

too

> much time on the back. I must admit that 3 months later I am much

> calmer about the subject than I was when we first found out. The

> more I learned about the subject the better I felt.

>

> Thanks for listening and keep us in your prayers when we go to

> Vanderbilt on Monday!!

>

> Thanks,

>

[Guest guest]

,

Thanks! I do feel lucky that my pediatrician allowed me to move forward.

He could have made me wait it out. I knew there was a problem (mother's

intuition...there is something to that!) I just hope we can get the word

out. Since I am new to this group not sure if any of you have signed the

plagio petition. If not let me know and I will forward the link. Someone

from this group probably started it. If so, that is great!

Re: New here

-

Congratulations to Olivia. It's such a good feeling to have such

great success. You are lucky to have a plagio friendly doctor.

I also have an Olivia (2 yo). In typical 2 yo fashion, she is

calling herself " Melivia " these days.

Dane's mom DOC Grad - Melivia's mom too!

> Hi all. I am new to this board and hope my daughter will be out

of

> her helmet Monday, June 10!!! The quick version of her story is

> this. Olivia is 6 1/2 months old and has been wearing the helmet

for

> almost 13 weeks now. I found the problem very early at about 10

> weeks. My pediatrician did send me on to see the specialist and

have

> her CT evaluation. She was diagnosed with Plagiocephaly.

Insuance

> did cover the helmet and CT scans.

>

> I am very happy that I made the decision to push forward to be

where

> we are today. Her head looks beautiful and has rounded out very

> nicely. At 10 weeks she had a flat spot on the left side of her

> head, minor forehead bossing and left ear looked out of line with

the

> right ear. Today all of the problems seem to be corrected.

>

> I just want to tell other parents that are confused about whether

to

> wait and " let it round out " or wear the helmet. Wear the

helmet!!!!

>

> I am from the Nashville, TN / Vanderbilt area and the type of

helmet

> Olivia wore is different from what I have seen on the internet.

That

> scared me at first but, the results show success!

>

> We have a successful ending to our story. I hope that we can

> raise awareness to other new parents about what can happen from

too

> much time on the back. I must admit that 3 months later I am much

> calmer about the subject than I was when we first found out. The

> more I learned about the subject the better I felt.

>

> Thanks for listening and keep us in your prayers when we go to

> Vanderbilt on Monday!!

>

> Thanks,

>

For more plagio info

[Guest guest]

Thanks for sharing your story and congratulations on a rounder head. Thats

great news.

Take care

Kerry - Marcus (3) Dylan in second DOCband (16months)

Calgary,AB

>From: " olivia11182001 " <rkwilson@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: New here

>Date: Thu, 06 Jun 2002 16:16:12 -0000

>

>Hi all. I am new to this board and hope my daughter will be out of

>her helmet Monday, June 10!!! The quick version of her story is

>this. Olivia is 6 1/2 months old and has been wearing the helmet for

>almost 13 weeks now. I found the problem very early at about 10

>weeks. My pediatrician did send me on to see the specialist and have

>her CT evaluation. She was diagnosed with Plagiocephaly. Insuance

>did cover the helmet and CT scans.

>

>I am very happy that I made the decision to push forward to be where

>we are today. Her head looks beautiful and has rounded out very

>nicely. At 10 weeks she had a flat spot on the left side of her

>head, minor forehead bossing and left ear looked out of line with the

>right ear. Today all of the problems seem to be corrected.

>

>I just want to tell other parents that are confused about whether to

>wait and " let it round out " or wear the helmet. Wear the helmet!!!!

>

>I am from the Nashville, TN / Vanderbilt area and the type of helmet

>Olivia wore is different from what I have seen on the internet. That

>scared me at first but, the results show success!

>

>We have a successful ending to our story. I hope that we can

>raise awareness to other new parents about what can happen from too

>much time on the back. I must admit that 3 months later I am much

>calmer about the subject than I was when we first found out. The

>more I learned about the subject the better I felt.

>

>Thanks for listening and keep us in your prayers when we go to

>Vanderbilt on Monday!!

>

>Thanks,

>

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Hi & welcome to the group!

What a great, happy success story Olivia has! That's terrific .

You began her helmet therapy at the best younger age & have seen

terrific & fast rounding! I'd like to offer Olivia an early

congradulations!!

Let us know how next week's appt goes! We love to hear happy stories

like Olivia's.

We also love hearing that your ins. company paid w/o any hassles .

That is pretty rare around here. What ins. do you have?

Again, welcome to our group. Thanks for sharing Olivia's plagio story

with us all.

Debbie Abby's mom DOCgrad

MI

> Hi all. I am new to this board and hope my daughter will be out of

> her helmet Monday, June 10!!! The quick version of her story is

> this. Olivia is 6 1/2 months old and has been wearing the helmet

for

> almost 13 weeks now. I found the problem very early at about 10

> weeks. My pediatrician did send me on to see the specialist and

have

> her CT evaluation. She was diagnosed with Plagiocephaly. Insuance

> did cover the helmet and CT scans.

>

> I am very happy that I made the decision to push forward to be

where

> we are today. Her head looks beautiful and has rounded out very

> nicely. At 10 weeks she had a flat spot on the left side of her

> head, minor forehead bossing and left ear looked out of line with

the

> right ear. Today all of the problems seem to be corrected.

>

> I just want to tell other parents that are confused about whether

to

> wait and " let it round out " or wear the helmet. Wear the

helmet!!!!

>

> I am from the Nashville, TN / Vanderbilt area and the type of

helmet

> Olivia wore is different from what I have seen on the internet.

That

> scared me at first but, the results show success!

>

> We have a successful ending to our story. I hope that we can

> raise awareness to other new parents about what can happen from too

> much time on the back. I must admit that 3 months later I am much

> calmer about the subject than I was when we first found out. The

> more I learned about the subject the better I felt.

>

> Thanks for listening and keep us in your prayers when we go to

> Vanderbilt on Monday!!

>

> Thanks,

>

[Guest guest]

,

Hello and welcome! Sounds like you have had a good experience with the helmet

- that's awesome. Glad to hear that graduation is coming up so quickly. I'll

be thinking of you and Olivia on Monday. Let us know how it goes!

Marci (Mom to )

Oklahoma

[Guest guest]

Hi , and welcome to the group! It sounds like you have had a

wonderful experience with the helmet, and tons of success. That is

terrific! I will keep my fingers crossed that Olivia becomes an

official graduate on Monday! Be sure to let us know!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi all. I am new to this board and hope my daughter will be out of

> her helmet Monday, June 10!!! The quick version of her story is

> this. Olivia is 6 1/2 months old and has been wearing the helmet

for

> almost 13 weeks now. I found the problem very early at about 10

> weeks. My pediatrician did send me on to see the specialist and

have

> her CT evaluation. She was diagnosed with Plagiocephaly. Insuance

> did cover the helmet and CT scans.

>

> I am very happy that I made the decision to push forward to be

where

> we are today. Her head looks beautiful and has rounded out very

> nicely. At 10 weeks she had a flat spot on the left side of her

> head, minor forehead bossing and left ear looked out of line with

the

> right ear. Today all of the problems seem to be corrected.

>

> I just want to tell other parents that are confused about whether

to

> wait and " let it round out " or wear the helmet. Wear the

helmet!!!!

>

> I am from the Nashville, TN / Vanderbilt area and the type of

helmet

> Olivia wore is different from what I have seen on the internet.

That

> scared me at first but, the results show success!

>

> We have a successful ending to our story. I hope that we can

> raise awareness to other new parents about what can happen from too

> much time on the back. I must admit that 3 months later I am much

> calmer about the subject than I was when we first found out. The

> more I learned about the subject the better I felt.

>

> Thanks for listening and keep us in your prayers when we go to

> Vanderbilt on Monday!!

>

> Thanks,

>

[Guest guest]

Hi , and welcome to the group! We have quite a few members here

from Australia, what area are you from? I'm glad to hear that you

have see some improvemnet already with the repostioning. You are

doing a great job by doing all this research on your own! Good luck

at your appointment, and let us know how it goes!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi,

> My names linda. I am a SAHM of two girls, living in Australia. My

> Youngest daughter, Rhianna is now 4 months old and I have been

worried

> about her head for some time now. I got our Doc to look at it when

she

> was 2 months old and he said that it'll 'pop' out but 2 months later

> there is no change. I have been lying her on different sides and on

> her tum regularly after having researched it a little online in the

> hope of some improvemnt. While there is some slight improvement I am

> gathering info to go and put pressure on my doc again. the

appointment

> is tomorrow.

> Wish me luck!

>

> I look forward to hearing about all your experiences ( I checked out

> some of the files)

>

>

[Guest guest]

Hi and welcome. We have had a number of members from Australia in our

group so I know there is help there should you decide that you wish to try a

band or helmet. However, repositioning can be very effective for some people.

The repositioning is very important, but must be coupled with as much

supervised tummy time as your baby will tolerate.

My daugther wore a locally made helmet from 9 months to 15 1/2 months and she

got very good correction. We mentioned the flatness to her ped at 4 months,

but he said it would correct itself and we foolishly believed him. He did not

even mention repositioning or tummy time and being first time parents we

really didn't know better. I still remember the words I said to the ped when

he said it would correct itself - I said, " Okay, I trust you - if you say it

will round out then I'm sure it will. " Those were almost my exact words. I

will never blindly trust a doctor again!

Good luck with your appointment tomorrow. Check out

www.plagiocephaly.org/support for some great info about plagio and

repositioning.

Marci (Mom to )

Oklahoma

[Guest guest]

,

Hi and welcome to the group. We have had several members from Australia,

Simon and nna to name a couple, and I know they had info to share about

treatment options in Australia, but I did a search and couldn't find

anything. Perhaps you should type a post that reads " Australia Members

Please Help " in the subject header and see what responses you can find, or I

hope that one of the other moderators can help there too and maybe I'm just

not searching correctly. Marci posted a great response to you, and I would

add too that tummy time and repositioning can be effective tools- so continue

to do your best there as much as possible. Good luck at your appt.- keep us

posted!

' mom

[Guest guest]

Hi welcome I am going to post a series of cut and paste emails about Sydney

resources please let me know if you have difficulty retrieving them!

beck

[Guest guest]

how about putting up cans of some sort with a story on it..where are you and your friend from..

brenda

New here

Hi my name is Bree and I am writing for my friend who's 4 months old has plagiocephaly. The cranialfacial specialist said it was severe and she needed a helmet but said that her insurance does not cover it and it was going to cost $1000. She does not have that kind of money. She doesn;t know what to do. She doesn't want her daughter to have a flat head for the rest of her life. Does anyone know anything she could try to do to help her get the money or tips on the insurance. Any help would greatly appreciated. Thank you BreeFor more plagio info

[Guest guest]

Bree,

Hi and welcome- your a great friend to help out with finding info on this, I

know past members have had auctions to raise money, golf tournaments, and you

could probably think of just about anything like it, bowling tourney, etc.

You can also have her check into the Shriners Club, they are usually

everywhere, and I know they help out with children and their medical needs.

Or check with a church group, or Women's Club, perhaps they would be

interested in taking up this cause. Good luck to your friend and kudos to

you for helping her baby in anyway that you can!

' Mom

[Guest guest]

Hi Bree & welcome to our group!

What a terrific friend you are! That's so nice of you to come online

& help your friend out.

Do you know what insurance provider your friend has? And why won't

they cover a helmet?

We have many members who have fought their insurance companies to get

coverage, a lot have won their ins. appeals, a lot have not.

Check out www.plagiocephaly.org/support then " insurance issues " for

some helpful tips. There's also a help folder in our " files " section

of our group.

Best of luck to your friend. In the meantime, she can attempt

repositioning her daughter, this will possibly help her daughter's

head round on it's own, there are great " repositioning tips " in the

plagio.org webpage I included above.

Welcome again, thanks for joining on behalf of your friend.

Debbie Abby's mom DOCGrad

MI

> Hi my name is Bree and I am writing for my friend who's 4 months

old has plagiocephaly. The cranialfacial specialist said it was

severe and she needed a helmet but said that her insurance does not

cover it and it was going to cost $1000. She does not have that kind

of money. She doesn;t know what to do. She doesn't want her daughter

to have a flat head for the rest of her life. Does anyone know

anything she could try to do to help her get the money or tips on the

insurance. Any help would greatly appreciated. Thank you

> Bree

[Guest guest]

Bree,

First let me say that you are a good friend for pursuing this. Welcome to the

group!

The cranialfacial specialist may THINK that her insurance company won't pay, but

that doesn't mean that she can't try and should! Your friend has a right to

appeal an insurance denial and with all the information and studies out there on

plagio now she would have a good chance of overturning a denial through appeals.

We were told that our insurance co never paid, but after a lengthy fight they

DID pay! If the band only costs $1,000 then that is a REAL deal. The DOCband

costs $3,000 and the STARband costs between $1,000 and $2,000 depending on where

you go. I would bet that the orthotist who makes the helmet would be willing to

arrange a payment system. My daughter's helmet cost $700 and we made $50

payments every 2 weeks while we were battling with the insurance company. We

ended up paying the entire cost and then after the treatment was all over we won

the appeal and the insurance co reimbursed us.

This being said, your friend's baby is very young and could benefit greatly from

aggressive repositioning and increased tummy time. Check out

www.plagiocephaly.org/support for some repositioning tips that you can print out

and share with your friend. You could also check out this site's bookmark

section for some links to great products that can assist with repositioning. Do

you know if your friend's baby has torticollis? Does the baby have trouble

turning her head to one side? When you look at the baby does her head tilt to

one side? If so, then the baby might have torticollis and stretching and/or

physical therapy will be required. If the baby has tort that might also help in

an insurance appeal (not that I wish tort on her baby!!!).

I hope this has helped. Tell your friend NOT to give up! She can try some

aggressive repositioning while she fights it out with the insurance company or

she can try to work out a payment plan and get started while she fights it out.

If she decides to get started tell her to wait until she has an official denial

of her claim. She could also see if there is a local Shriners group nearby -

they are very good about helping children in medical need. Best wishes and check

back in with us and let us know how your friend and her baby are doing. We would

love to learn some more about them and their situation.

Marci (Mom to )

Oklahoma

[Guest guest]

Hi we have lots of moms with the star band I hope they chime in for

you-if not I will do an archive search and get you in contact with some that

have used it. We are so glad you have found us welcome tot he site-we would

love to hear more about you and your little one. You will find great support

and friendship here-once again welcome!

Beck

[Guest guest]

,

We also have a STAR band, but only got it last week. I am also

curious about how soon we can expect to see results. Every day we

stare at his head for our alotted hour and debate whether there is

change or not. I think the degree change we percieve is inversely

proportional to how depressed we are feeling.

Ori (Gus' 5.5 Months)

> Hi I am new here! We just got my son the StarBand. Was interested

> in finding out if there is anyone here who has experience with this

> type of helmet. I keep reading about the DocBand but nothing on

the

> StarBand. He has had it about a month now and we are starting to

see

> some improvement. How soon and what type of improvement to the

head

> do you see with the DocBand also. I am in the dark here. Haven't

> had any other Moms to talk to about this yet. Thanks!

>

> erink8373@a...