insurance and dwarfism

[Guest guest]

I am AH and I have 3 boys, the second, 3 1/2 years old has

Achondroplasia. I've been watching LP/BW since it began. This past

Saturday night was the episode when Zachary's shunt had to be replaced

and he spent almost a week in ICU. Matt stated that they will have to

pay out-of-pocket because they cannot get medicalinsurance since

Dwarfism is viewed as a " pre-existing " condition. Is that accurate??

All of our children are insured, but now I am fearful of his future in

acquiring medical insurance when he is an adult. Any input??