Intro

[Guest guest]

Hi Aliza, I am the last person to explain what those letters mean, I have a

brain like a sieve !

No memory what so ever. Lottie can tell you much better than I can.

Yes, I am doing well, I travel a lot, do a lot of things with my kids and

truly never give cml much thought. Perhaps I have had it so long, I've grown

accustomed to it? Anyway, I never let it get me down, but then because I feel

well, that's easy to say. In the beginning, before Gleevec, and on Interferon

the world was quite miserable. Today we are all so furtunate to have these new

drugs, chances of remission are so much better, and we no longer have a

prognosis of 5 years. I have out lived that by 8, thanks to Gleevec and

Sprycel. Have a great day, Bobby

taina2044@... wrote:

hi bobby; it's encorougeing to see how long you've lived with cml when

one

is diognosed all one thinks about is death, how are you doing now? u sound like

you've been through a lot whitch also helps me understand

that even at bad times don't give up.I pray you do great for a long, long

time. can you translate pcru ,bms,pe, ccr and amn

thankx aliza rochester n.y.

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

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[Guest guest]

go back a few posts and read what can happen from surgery--

I just did a flush last night and I feel great--no flank pain the

itching is going away--

yea---

I have to stay away from cheese---and meat does this to me--

Try digestive enzymes for acid reflux--I get this from time to time

goes away with proton pump inhibitors but you can't be on them forever--

have to change your diet---NO fried foods---very bad big time

you are young so you really have to do the flushes--

if you have surgery it only goes into the ducts and liver---

so it never goes away ---

I think of it this way---at least it's not in my veins---but in my GB

doing it's job---

difficult to always do the flush figure at least one a year or two---

and fruit, veggies---and some fat but have to cut it down---

good luck

>

> I just joined this group. I'm a 34 yo white woman. My story starts

in 2000 during my first

> pregnancy when I starting have pain under my right shoulder blade

when I ate fried

> chicken. The pain continued for days before I figured it out there

was timing to the pain

> and I didn't just need a back massage. So I got through the last few

weeks of the

> pregnancy eating a low fat diet and had no pain after the birth so I

basically forgot about

> it.

> Fast forward to 2004 when I was pregnant again. The gallbladder pain

was constant by the

> time I was 32 weeks pregnant. My midwife friend guided me through

this gallbladder flush

> at that time: 3 days have nothing but organic unfiltered apple

juice. On the evening of the

> 3rd day have a cup of laxative tea and then drink 1/2 cup EV olive

oil with 1/2 c fresh

> lemon juice. Then immediately go to bed on your right side. The next

morning I passed all

> sorts of stones-I think around 100. Afterward I felt great.

> When that baby was about 8 months I began to feel the familiar pinch

in my back

> whenever I ate. I did another GB flush without any results. At that

time I did some pretty

> far out energy medicine that really took care of the pain for a

couple years. During that

> time I worked really hard to lose 30 lbs.

> Only to regain most of that weight when life got stressful and busy.

> Now over the past year I've been having bloating, belching, sharp

abdominal pain,

> depression, fatigue, the back pain and the new thing is burning

burning burning in the

> abdominal area. I have to take prilosec or pepcid all the time or

it's constant. A couple

> weeks ago I had one White Russian and had to sleep sitting up. The

reflux pain actually

> woke me up. I didn't realize that the GERD symptoms could be related

to GB problems

> until my family doctor said so. Talk about a lightbulb! I've been

feeling so crappy for

> months and months that I've been living on coffee, diet and rich

food. DUH!

> My doctor suggested a gallbladder ultrasound and possibly

gallbladder removal. Now

> understand that I had homebirths and have never had surgery it's

just not " what I do. " On

> the other hand I don't want to feel as bad as I have been!

> For the last five days I haven't had coffee or diet coke (no

headaches but I need to sleep a

> lot). I'm also eating lots or fruits and veggies and eating only

low-fat foods. I feel so much

> better! But every time I eat I still feel the pinch in my back and

if I don't take the pepcid I

> still have the burning. Basically I'm committed to changing my diet

and exercise habits but

> want to care for my liver/gallbladder.

> Should I do another flush?

> Multiple times?

> What do you all thing of the flush I did in 2004? Good?

> I don't know why I'm reluctant-I guess it sounds like it will give

me serious GERD-I frankly

> cannot imagine laying down after drinking olive oil and lemon juice!

> Should I spend the $ to get a GB ultrasound just so I'll know what's

going on in there?

> What about daily supplements?

> I've been learning that just avoiding fats is not really a good

thing but I'm scared to try

> any.

>

[Guest guest]

best bet eat a fruit/ veggie diet for a week---little to no meat or fat--

drink apple juice, cranberry---lots of water

do this even 5 days is good enough--

get ready for the flush do it on friday night

fri. morning eat oatmeal or just fruit--

no lunch--only water/juice

and get read at 5 start the epsom salts---I drink with juice

get it down

and then at 9 to 10 drink half a cup of extra virgin olive oil---with

ruby red graperfruit or lemon juice mixed in---

drink it very slowly---sit up

take your time---

allow it to digest

sit up and watch tv--until you get it all down and then lay on your

right side and go to sleep

you will feel it working

get up in the AM---do another epsom salt drink with juice

and out they will come

I've done maybe 7 in the last 4 years---maybe less---

not a big deal---

if you do it correctly---

take your time with the oil

sip it if you need too---

think happy thoughts as you will feel great once it's done---

>

> Hi, I am new to the group this morning. I am 47 and live in Canada. I

> have read many of the files and found them to be very informative.

> Thank you for that. I still have a few questions of my own I hope

> someone can answer. I have had two GB attacks, one almost 3 years ago

> that I ended up in emergency with from the pain. No Dr. then related

> it to my GB but instead my heart. My last attack was managed at home

> and it wasn't until that attack I realized it was my GB and I got

> through it on my own. I went to my Dr. after that who sent me for an

> ultrasound and sure enough I have stones. I did see one large on

> myself.

> I think I am ready to do the flush as I want to avoid surgery so just

> hjave a few questions. I saw a holistic Dr who recommended this. I do

> a two week live/colon cleanse and on the second week start drinking

> the apple juice, at least a liter per day. At the end of the cleanse

> do the GB flush with the epson salts and cold pressed olive oil as

> described on curezone site. My question in, if the stone/stones are

> calcified will they still soften in that amount of time?

> I am really watching what I eat now, limiting my fats but I do feel

> the pinch in my shoulderblade area most of the time.

> I guess I am a little nervous with this being my first time though

> after seeing that some people have done this over 20 times it makes

> me feel a whole lot better. <g>

> Thanks for any insight you can give me.

>

>

[Guest guest]

I feel better already, thanks <g> So no need to do the $100. Liver cleanser

the Dr. was asking me to do?

From: gallstones [mailto:gallstones ] On

Behalf Of tina83862

Sent: Monday, November 24, 2008 4:05 PM

gallstones

Subject: Re: Intro

best bet eat a fruit/ veggie diet for a week---little to no meat or fat--

drink apple juice, cranberry---lots of water

do this even 5 days is good enough--

get ready for the flush do it on friday night

fri. morning eat oatmeal or just fruit--

no lunch--only water/juice

and get read at 5 start the epsom salts---I drink with juice

get it down

and then at 9 to 10 drink half a cup of extra virgin olive oil---with

ruby red graperfruit or lemon juice mixed in---

drink it very slowly---sit up

take your time---

allow it to digest

sit up and watch tv--until you get it all down and then lay on your

right side and go to sleep

you will feel it working

get up in the AM---do another epsom salt drink with juice

and out they will come

I've done maybe 7 in the last 4 years---maybe less---

not a big deal---

if you do it correctly---

take your time with the oil

sip it if you need too---

think happy thoughts as you will feel great once it's done---

>

> Hi, I am new to the group this morning. I am 47 and live in Canada. I

> have read many of the files and found them to be very informative.

> Thank you for that. I still have a few questions of my own I hope

> someone can answer. I have had two GB attacks, one almost 3 years ago

> that I ended up in emergency with from the pain. No Dr. then related

> it to my GB but instead my heart. My last attack was managed at home

> and it wasn't until that attack I realized it was my GB and I got

> through it on my own. I went to my Dr. after that who sent me for an

> ultrasound and sure enough I have stones. I did see one large on

> myself.

> I think I am ready to do the flush as I want to avoid surgery so just

> hjave a few questions. I saw a holistic Dr who recommended this. I do

> a two week live/colon cleanse and on the second week start drinking

> the apple juice, at least a liter per day. At the end of the cleanse

> do the GB flush with the epson salts and cold pressed olive oil as

> described on curezone site. My question in, if the stone/stones are

> calcified will they still soften in that amount of time?

> I am really watching what I eat now, limiting my fats but I do feel

> the pinch in my shoulderblade area most of the time.

> I guess I am a little nervous with this being my first time though

> after seeing that some people have done this over 20 times it makes

> me feel a whole lot better. <g>

> Thanks for any insight you can give me.

>

>

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[Guest guest]

First thing I recommend is that u invest in AF Beta Food tablets

from Standard PROCESS- THAT may take away the pain- if u have no

problem with fasting and the Beta tablets relieve the pain u may

consider doing a couple of fasts before flushing

good luck

FB

On Nov 24, 2008, at 8:21 AM, Warnock wrote:

> Dr. after that who sent me for an

> ultrasound and sure enough I have s

J.R. Battaglia

Prime Cut Media Productions

tel 818 897 8500

cel 818 268 5395

frank_la@...

www.primecutproductions.com

[Guest guest]

Hi all,

I posted earlier today, but probably should have introduced myself

as well. I am 50 and live in Kenai, Alaska. I originally come from

El Paso, and have lived in Denver and near Greenville (SC) as well.

According to National Jewish, I've probably had asthma all my life.

As a kid, I can think of only 2 times it bothered me. so it was not

really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol)

when another person de-icing an aircraft accidentally shot me in the

face. At that point my asthma began to escalate. For the past 3

years I've been symptomatic nearly 7 days per week. I moved from AK

to SC in the hopes of finding relief but it only increased my

problems. I've moved back to AK, but to no avail. My physician

here referred me to a pulmonologist in Anchorage who is to start me

on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

NOT want to go onto disability. I am much to young to have to quit

work because I cannot walk from one end of the treatment unit to the

other without getting winded.

Anyway, I appreciate the information I've been reading. As

a 'newbie' to Xolair, I will probably sit back and read.

Best wishes to all,

Mike

[Guest guest]

Welcome aboard Mike!

Doug

Group founder

on Xolair since September 2003

[Guest guest]

Wow. That's quite a story. What triggers your asthma NOW? I have

heard that folks can have a precipating event like you did that

results in lungs becoming much more sensitive than they were prior to

the event.

Let us know how you do with Xolair.

Addy

Group Co-owner

>

> Hi all,

>

> I posted earlier today, but probably should have introduced myself

> as well. I am 50 and live in Kenai, Alaska. I originally come

from

> El Paso, and have lived in Denver and near Greenville (SC) as

well.

> According to National Jewish, I've probably had asthma all my

life.

> As a kid, I can think of only 2 times it bothered me. so it was

not

> really an issue. In 1992 I inhaled de-icing fluid (ethylene

glycol)

> when another person de-icing an aircraft accidentally shot me in

the

> face. At that point my asthma began to escalate. For the past 3

> years I've been symptomatic nearly 7 days per week. I moved from

AK

> to SC in the hopes of finding relief but it only increased my

> problems. I've moved back to AK, but to no avail. My physician

> here referred me to a pulmonologist in Anchorage who is to start me

> on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

> NOT want to go onto disability. I am much to young to have to quit

> work because I cannot walk from one end of the treatment unit to

the

> other without getting winded.

>

> Anyway, I appreciate the information I've been reading. As

> a 'newbie' to Xolair, I will probably sit back and read.

>

> Best wishes to all,

>

> Mike

>

[Guest guest]

Here is an interesting question. Perhaps someone can shed some light on

this. I have had asthma since forever and my pulmonologist recntly

suggested xolair. he took a blood test and my IGE was normal! I'm amazed

at this because I am allergic to just about everything and my allergies

trigger my asthma. I spoke with my allergist and he said that because I'd

recently been on oral prednisone, this could affect the IGE test results.

He suggested retesting in a month or so.

Has anyone encountered this? I am kinda bummed because I was hping xolair

might be the " magic bullet " for me.

Thanks.

On Wed, Dec 17, 2008 at 6:43 AM, pyle456 <jamcculloch2@...> wrote:

> Wow. That's quite a story. What triggers your asthma NOW? I have

> heard that folks can have a precipating event like you did that

> results in lungs becoming much more sensitive than they were prior to

> the event.

>

> Let us know how you do with Xolair.

>

> Addy

> Group Co-owner

>

>

>

> >

> > Hi all,

> >

> > I posted earlier today, but probably should have introduced myself

> > as well. I am 50 and live in Kenai, Alaska. I originally come

> from

> > El Paso, and have lived in Denver and near Greenville (SC) as

> well.

> > According to National Jewish, I've probably had asthma all my

> life.

> > As a kid, I can think of only 2 times it bothered me. so it was

> not

> > really an issue. In 1992 I inhaled de-icing fluid (ethylene

> glycol)

> > when another person de-icing an aircraft accidentally shot me in

> the

> > face. At that point my asthma began to escalate. For the past 3

> > years I've been symptomatic nearly 7 days per week. I moved from

> AK

> > to SC in the hopes of finding relief but it only increased my

> > problems. I've moved back to AK, but to no avail. My physician

> > here referred me to a pulmonologist in Anchorage who is to start me

> > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

> > NOT want to go onto disability. I am much to young to have to quit

> > work because I cannot walk from one end of the treatment unit to

> the

> > other without getting winded.

> >

> > Anyway, I appreciate the information I've been reading. As

> > a 'newbie' to Xolair, I will probably sit back and read.

> >

> > Best wishes to all,

> >

> > Mike

> >

>

>

>

[Guest guest]

Thanks , will do.  I apreciate the information from the others who have

posted as well.

Mike

________________________________

From: Harold Pineo <haroldbrenda@...>

Sent: Tuesday, December 16, 2008 7:57:12 PM

Subject: Re: [ ] Intro

Welcome Mike,

I have heard of people who have been exposed to chemicals like that before, and

then they became chemically sensitive. It is possible to have both asthma and

chemical sensitivities.

I hope things get better with the xolair. Just a thought, you might want to

check out information on chemical sensitivity reactions.

From: Mike <mike.dmcbride>

Subject: [ ] Intro

Date: Tuesday, December 16, 2008, 7:07 PM

Hi all,

I posted earlier today, but probably should have introduced myself

as well. I am 50 and live in Kenai, Alaska. I originally come from

El Paso, and have lived in Denver and near Greenville (SC) as well.

According to National Jewish, I've probably had asthma all my life.

As a kid, I can think of only 2 times it bothered me. so it was not

really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol)

when another person de-icing an aircraft accidentally shot me in the

face. At that point my asthma began to escalate. For the past 3

years I've been symptomatic nearly 7 days per week. I moved from AK

to SC in the hopes of finding relief but it only increased my

problems. I've moved back to AK, but to no avail. My physician

here referred me to a pulmonologist in Anchorage who is to start me

on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

NOT want to go onto disability. I am much to young to have to quit

work because I cannot walk from one end of the treatment unit to the

other without getting winded.

Anyway, I appreciate the information I've been reading. As

a 'newbie' to Xolair, I will probably sit back and read.

Best wishes to all,

Mike

[Guest guest]

Hi Addy,

We have yet to figure out what the triggers are.  I've had problems year round

for the past 3 years.  The cold seems to be problem, but not always.  I can go

out at 10 below without anything happening.  The next day I go out at 20 above

and get hit hard.  Oh well, as long as I keep monitoring, I hope to see if it's

air, food, temp, all of the above .. . . . .

Will keep all informed about the Xolair.  I am a bit apprehensive about it.  I

will get the shot at 11:30am, stay in the office for a couple of hours and then

have a 3 hour drive home.  The drive is quite scenic, but has very limited cell

coverage and almost no place to seek help if needed.  I've heard some folks on

another list say that they carry an epi pen in case they go into anaphalactic

shock.  Is this a common thing to do?  I've also heard that some wear a

med-alert bracelet.  Needed? 

Lots of questions yet, but moving ahead like I know what I'm doing.  ;-)

Mike

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Wednesday, December 17, 2008 2:43:39 AM

Subject: [ ] Re: Intro

Wow. That's quite a story. What triggers your asthma NOW? I have

heard that folks can have a precipating event like you did that

results in lungs becoming much more sensitive than they were prior to

the event.

Let us know how you do with Xolair.

Addy

Group Co-owner

>

> Hi all,

>

> I posted earlier today, but probably should have introduced myself

> as well. I am 50 and live in Kenai, Alaska. I originally come

from

> El Paso, and have lived in Denver and near Greenville (SC) as

well.

> According to National Jewish, I've probably had asthma all my

life.

> As a kid, I can think of only 2 times it bothered me. so it was

not

> really an issue. In 1992 I inhaled de-icing fluid (ethylene

glycol)

> when another person de-icing an aircraft accidentally shot me in

the

> face. At that point my asthma began to escalate. For the past 3

> years I've been symptomatic nearly 7 days per week. I moved from

AK

> to SC in the hopes of finding relief but it only increased my

> problems. I've moved back to AK, but to no avail. My physician

> here referred me to a pulmonologist in Anchorage who is to start me

> on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

> NOT want to go onto disability. I am much to young to have to quit

> work because I cannot walk from one end of the treatment unit to

the

> other without getting winded.

>

> Anyway, I appreciate the information I've been reading. As

> a 'newbie' to Xolair, I will probably sit back and read.

>

> Best wishes to all,

>

> Mike

>

[Guest guest]

I always carry an epi-pen. I think most doctors automatically give an epi-pen

for people with xolair. Where you have to travel 3 hours , Mike, without barely

any cell coverage, I would ask your doctor for a prescription for one. It's

always better to be safe. Hope your first shot goes well.

From: McBride <mike.dmcbride@...>

Subject: Re: [ ] Re: Intro

Date: Wednesday, December 17, 2008, 11:49 AM

Hi Addy,

We have yet to figure out what the triggers are.  I've had problems year round

for the past 3 years.  The cold seems to be problem, but not always.  I can go

out at 10 below without anything happening.  The next day I go out at 20 above

and get hit hard.  Oh well, as long as I keep monitoring, I hope to see if it's

air, food, temp, all of the above .. . . . .

Will keep all informed about the Xolair.  I am a bit apprehensive about it.  I

will get the shot at 11:30am, stay in the office for a couple of hours and then

have a 3 hour drive home.  The drive is quite scenic, but has very limited cell

coverage and almost no place to seek help if needed.  I've heard some folks on

another list say that they carry an epi pen in case they go into anaphalactic

shock.  Is this a common thing to do?  I've also heard that some wear a

med-alert bracelet.  Needed? 

Lots of questions yet, but moving ahead like I know what I'm doing.  ;-)

Mike

____________ _________ _________ __

From: pyle456 <jamcculloch2@ ec.rr.com>

Sent: Wednesday, December 17, 2008 2:43:39 AM

Subject: [ ] Re: Intro

Wow. That's quite a story. What triggers your asthma NOW? I have

heard that folks can have a precipating event like you did that

results in lungs becoming much more sensitive than they were prior to

the event.

Let us know how you do with Xolair.

Addy

Group Co-owner

>

> Hi all,

>

> I posted earlier today, but probably should have introduced myself

> as well. I am 50 and live in Kenai, Alaska. I originally come

from

> El Paso, and have lived in Denver and near Greenville (SC) as

well.

> According to National Jewish, I've probably had asthma all my

life.

> As a kid, I can think of only 2 times it bothered me. so it was

not

> really an issue. In 1992 I inhaled de-icing fluid (ethylene

glycol)

> when another person de-icing an aircraft accidentally shot me in

the

> face. At that point my asthma began to escalate. For the past 3

> years I've been symptomatic nearly 7 days per week. I moved from

AK

> to SC in the hopes of finding relief but it only increased my

> problems. I've moved back to AK, but to no avail. My physician

> here referred me to a pulmonologist in Anchorage who is to start me

> on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

> NOT want to go onto disability. I am much to young to have to quit

> work because I cannot walk from one end of the treatment unit to

the

> other without getting winded.

>

> Anyway, I appreciate the information I've been reading. As

> a 'newbie' to Xolair, I will probably sit back and read.

>

> Best wishes to all,

>

> Mike

>

[Guest guest]

>

> Hi Addy,

>

> We have yet to figure out what the triggers are.  I've had problems

year round for the past 3 years.  The cold seems to be problem, but

not always.  I can go out at 10 below without anything happening. 

The next day I go out at 20 above and get hit hard.  Oh well, as long

as I keep monitoring, I hope to see if it's air, food, temp, all of

the above .. . . . .

>

> Will keep all informed about the Xolair.  I am a bit apprehensive

about it.  I will get the shot at 11:30am, stay in the office for a

couple of hours and then have a 3 hour drive home.  The drive is

quite scenic, but has very limited cell coverage and almost no place

to seek help if needed.  I've heard some folks on another list say

that they carry an epi pen in case they go into anaphalactic shock. 

Is this a common thing to do?  I've also heard that some wear a med-

alert bracelet.  Needed? 

>

> Lots of questions yet, but moving ahead like I know what I'm

doing.  ;-)

>

> Mike

>

>

>

>

> ________________________________

> From: pyle456 <jamcculloch2@...>

>

> Sent: Wednesday, December 17, 2008 2:43:39 AM

> Subject: [ ] Re: Intro

>

>

> Wow. That's quite a story. What triggers your asthma NOW? I have

> heard that folks can have a precipating event like you did that

> results in lungs becoming much more sensitive than they were prior

to

> the event.

>

> Let us know how you do with Xolair.

>

> Addy

> Group Co-owner

>

> --- In , " Mike " <mike.dmcbride@ ...>

wrote:

> >

> > Hi all,

> >

> > I posted earlier today, but probably should have introduced

myself

> > as well. I am 50 and live in Kenai, Alaska. I originally come

> from

> > El Paso, and have lived in Denver and near Greenville (SC) as

> well.

> > According to National Jewish, I've probably had asthma all my

> life.

> > As a kid, I can think of only 2 times it bothered me. so it was

> not

> > really an issue. In 1992 I inhaled de-icing fluid (ethylene

> glycol)

> > when another person de-icing an aircraft accidentally shot me in

> the

> > face. At that point my asthma began to escalate. For the past 3

> > years I've been symptomatic nearly 7 days per week. I moved from

> AK

> > to SC in the hopes of finding relief but it only increased my

> > problems. I've moved back to AK, but to no avail. My physician

> > here referred me to a pulmonologist in Anchorage who is to start

me

> > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

> > NOT want to go onto disability. I am much to young to have to

quit

> > work because I cannot walk from one end of the treatment unit to

> the

> > other without getting winded.

> >

> > Anyway, I appreciate the information I've been reading. As

> > a 'newbie' to Xolair, I will probably sit back and read.

> >

> > Best wishes to all,

> >

> > Mike

> >

>

>

>

>

>

>

>

[Guest guest]

The allergist who oversees my xolair shots requires me to have an epi-pen.  In

fact this reminds me that I haven't refilled the newest prescription.  I carried

one until it expired--never used either one of them, but felt a little safer

having one in my purse at all times.  My family all know how to use it if I

can't and are instructed as to what to do if they have to use it--i.e. get me to

a hospital as soon as possible.  Mike, I agree that since you travel three hours

and are out of cell phone range at times, that you talk with your doctor about

this for sure!  I have never had any kind of anaphylactic reaction to anything,

but I am not so foolish as to think there isn't a first time for every thing.

 

Adah

From: McBride <mike.dmcbride>

Subject: Re: [ ] Re: Intro

Date: Wednesday, December 17, 2008, 11:49 AM

Hi Addy,

We have yet to figure out what the triggers are.  I've had problems year round

for the past 3 years.  The cold seems to be problem, but not always.  I can go

out at 10 below without anything happening.  The next day I go out at 20 above

and get hit hard.  Oh well, as long as I keep monitoring, I hope to see if it's

air, food, temp, all of the above .. . . . .

Will keep all informed about the Xolair.  I am a bit apprehensive about it.  I

will get the shot at 11:30am, stay in the office for a couple of hours and then

have a 3 hour drive home.  The drive is quite scenic, but has very limited cell

coverage and almost no place to seek help if needed.  I've heard some folks on

another list say that they carry an epi pen in case they go into anaphalactic

shock.  Is this a common thing to do?  I've also heard that some wear a

med-alert bracelet.  Needed? 

Lots of questions yet, but moving ahead like I know what I'm doing.  ;-)

Mike

____________ _________ _________ __

From: pyle456 <jamcculloch2@ ec.rr.com>

Sent: Wednesday, December 17, 2008 2:43:39 AM

Subject: [ ] Re: Intro

Wow. That's quite a story. What triggers your asthma NOW? I have

heard that folks can have a precipating event like you did that

results in lungs becoming much more sensitive than they were prior to

the event.

Let us know how you do with Xolair.

Addy

Group Co-owner

>

> Hi all,

>

> I posted earlier today, but probably should have introduced myself

> as well. I am 50 and live in Kenai, Alaska. I originally come

from

> El Paso, and have lived in Denver and near Greenville (SC) as

well.

> According to National Jewish, I've probably had asthma all my

life.

> As a kid, I can think of only 2 times it bothered me. so it was

not

> really an issue. In 1992 I inhaled de-icing fluid (ethylene

glycol)

> when another person de-icing an aircraft accidentally shot me in

the

> face. At that point my asthma began to escalate. For the past 3

> years I've been symptomatic nearly 7 days per week. I moved from

AK

> to SC in the hopes of finding relief but it only increased my

> problems. I've moved back to AK, but to no avail. My physician

> here referred me to a pulmonologist in Anchorage who is to start me

> on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

> NOT want to go onto disability. I am much to young to have to quit

> work because I cannot walk from one end of the treatment unit to

the

> other without getting winded.

>

> Anyway, I appreciate the information I've been reading. As

> a 'newbie' to Xolair, I will probably sit back and read.

>

> Best wishes to all,

>

> Mike

>

[Guest guest]

? My allergy doctor told me the same thing, oral steroids can mess up IGE tests.

When I took my IGE

test I only registered around a 20!

-----Original Message-----

From: V S <tzarina2002@...>

Sent: Wed, 17 Dec 2008 9:23 am

Subject: Re: [ ] Re: Intro

Here is an interesting question. Perhaps someone can shed some light on

this. I have had asthma since forever and my pulmonologist recntly

suggested xolair. he took a blood test and my IGE was normal! I'm amazed

at this because I am allergic to just about everything and my allergies

trigger my asthma. I spoke with my allergist and he said that because I'd

recently been on oral prednisone, this could affect the IGE test results.

He suggested retesting in a month or so.

Has anyone encountered this? I am kinda bummed because I was hping xolair

might be the " magic bullet " for me.

Thanks.

On Wed, Dec 17, 2008 at 6:43 AM, pyle456 <jamcculloch2@...> wrote:

> Wow. That's quite a story. What triggers your asthma NOW? I have

> heard that folks can have a precipating event like you did that

> results in lungs becoming much more sensitive than they were prior to

> the event.

>

> Let us know how you do with Xolair.

>

> Addy

> Group Co-owner

>

>

>

> >

> > Hi all,

> >

> > I posted earlier today, but probably should have introduced myself

> > as well. I am 50 and live in Kenai, Alaska. I originally come

> from

> > El Paso, and have lived in Denver and near Greenville (SC) as

> well.

> > According to National Jewish, I've probably had asthma all my

> life.

> > As a kid, I can think of only 2 times it bothered me. so it was

> not

> > really an issue. In 1992 I inhaled de-icing fluid (ethylene

> glycol)

> > when another person de-icing an aircraft accidentally shot me in

> the

> > face. At that point my asthma began to escalate. For the past 3

> > years I've been symptomatic nearly 7 days per week. I moved from

> AK

> > to SC in the hopes of finding relief but it only increased my

> > problems. I've moved back to AK, but to no avail. My physician

> > here referred me to a pulmonologist in Anchorage who is to start me

> > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

> > NOT want to go onto disability. I am much to young to have to quit

> > work because I cannot walk from one end of the treatment unit to

> the

> > other without getting winded.

> >

> > Anyway, I appreciate the information I've been reading. As

> > a 'newbie' to Xolair, I will probably sit back and read.

> >

> > Best wishes to all,

> >

> > Mike

> >

>

>

>

[Guest guest]

You should get a twin package of Epi-Pen. If the first shot misfires or

does not do the trick there is a back-up. My doc says you can administer 2

doses if need be.

On Wed, Dec 17, 2008 at 1:51 PM, Harold Pineo <haroldbrenda@...>wrote:

> I always carry an epi-pen. I think most doctors automatically give an

> epi-pen for people with xolair. Where you have to travel 3 hours , Mike,

> without barely any cell coverage, I would ask your doctor for a prescription

> for one. It's always better to be safe. Hope your first shot goes well.

>

>

> From: McBride <mike.dmcbride@... <mike.dmcbride%40>

> >

> Subject: Re: [ ] Re: Intro

> < %40>

> Date: Wednesday, December 17, 2008, 11:49 AM

>

>

> Hi Addy,

>

> We have yet to figure out what the triggers are. I've had problems year

> round for the past 3 years. The cold seems to be problem, but not always.

> I can go out at 10 below without anything happening. The next day I go out

> at 20 above and get hit hard. Oh well, as long as I keep monitoring, I hope

> to see if it's air, food, temp, all of the above .. . . . .

>

> Will keep all informed about the Xolair. I am a bit apprehensive about

> it. I will get the shot at 11:30am, stay in the office for a couple of

> hours and then have a 3 hour drive home. The drive is quite scenic, but has

> very limited cell coverage and almost no place to seek help if needed. I've

> heard some folks on another list say that they carry an epi pen in case they

> go into anaphalactic shock. Is this a common thing to do? I've also heard

> that some wear a med-alert bracelet. Needed?

>

> Lots of questions yet, but moving ahead like I know what I'm doing. ;-)

>

> Mike

>

> ____________ _________ _________ __

>

> From: pyle456 <jamcculloch2@ ec.rr.com>

>

>

>

> Sent: Wednesday, December 17, 2008 2:43:39 AM

>

> Subject: [ ] Re: Intro

>

> Wow. That's quite a story. What triggers your asthma NOW? I have

>

> heard that folks can have a precipating event like you did that

>

> results in lungs becoming much more sensitive than they were prior to

>

> the event.

>

> Let us know how you do with Xolair.

>

> Addy

>

> Group Co-owner

>

>

>

> >

>

> > Hi all,

>

> >

>

> > I posted earlier today, but probably should have introduced myself

>

> > as well. I am 50 and live in Kenai, Alaska. I originally come

>

> from

>

> > El Paso, and have lived in Denver and near Greenville (SC) as

>

> well.

>

> > According to National Jewish, I've probably had asthma all my

>

> life.

>

> > As a kid, I can think of only 2 times it bothered me. so it was

>

> not

>

> > really an issue. In 1992 I inhaled de-icing fluid (ethylene

>

> glycol)

>

> > when another person de-icing an aircraft accidentally shot me in

>

> the

>

> > face. At that point my asthma began to escalate. For the past 3

>

> > years I've been symptomatic nearly 7 days per week. I moved from

>

> AK

>

> > to SC in the hopes of finding relief but it only increased my

>

> > problems. I've moved back to AK, but to no avail. My physician

>

> > here referred me to a pulmonologist in Anchorage who is to start me

>

> > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO

>

> > NOT want to go onto disability. I am much to young to have to quit

>

> > work because I cannot walk from one end of the treatment unit to

>

> the

>

> > other without getting winded.

>

> >

>

> > Anyway, I appreciate the information I've been reading. As

>

> > a 'newbie' to Xolair, I will probably sit back and read.

>

> >

>

> > Best wishes to all,

>

> >

>

> > Mike

>

> >

>

>

[Guest guest]

Prednisone can effect IgE levels, but doesn't have to effect IgE

levels. So, yes, it is best to get tested again after some suitable

time or when you feel atopic. The issue is how often do you suffer

from allergies to the point of it being literall enough where they

constantly throw you into an asthmatic state. I have high IgE (about

335 before Xolair) but it didn't really trigger my asthma. Yet, the

end result of one year on Xolair for me is no more EIA or virus

induced asthma. Those two were not dependent on my allergic system,

and yet the halted on Xolair. The nuances of asthma stimulation are

indeed not clear cut.

> > >

> > > Hi all,

> > >

> > > I posted earlier today, but probably should have introduced

myself

> > > as well. I am 50 and live in Kenai, Alaska. I originally come

> > from

> > > El Paso, and have lived in Denver and near Greenville (SC) as

> > well.

> > > According to National Jewish, I've probably had asthma all my

> > life.

> > > As a kid, I can think of only 2 times it bothered me. so it was

> > not

> > > really an issue. In 1992 I inhaled de-icing fluid (ethylene

> > glycol)

> > > when another person de-icing an aircraft accidentally shot me

in

> > the

> > > face. At that point my asthma began to escalate. For the past 3

> > > years I've been symptomatic nearly 7 days per week. I moved

from

> > AK

> > > to SC in the hopes of finding relief but it only increased my

> > > problems. I've moved back to AK, but to no avail. My physician

> > > here referred me to a pulmonologist in Anchorage who is to

start me

> > > on Xolair 1/5/09. I am hoping this will work, even a bit, as I

DO

> > > NOT want to go onto disability. I am much to young to have to

quit

> > > work because I cannot walk from one end of the treatment unit

to

> > the

> > > other without getting winded.

> > >

> > > Anyway, I appreciate the information I've been reading. As

> > > a 'newbie' to Xolair, I will probably sit back and read.

> > >

> > > Best wishes to all,

> > >

> > > Mike

> > >

> >

> >

> >

>

>

>