Guest guest Posted June 26, 2008 Report Posted June 26, 2008 Every winter I usually have 4-5 rounds of prednisone due to illness. Last winter I had so much of it that when I tried to taper off, I suffered withdrawal and my doctor had to extend that round and bring me off it a lot slower. I have been on inhaled steriods since a very young age. I have lost track of all the different kinds of drug therapies I have tried in my lifetime. I do know that when I am not taking inhaled steriods, I lose weight. I don't think I can ever change my body structure or grow hair in places it should be, but I know that I would feel better if I could lose weight. I have my first shot tomorrow and I am apprehensive and a little scared. I am not sure if this is the right way to go. All I want is to get away from steriods. I asked the group when I first join about this because I am only willing to take the risk with this new medicine if the possibility is there and wondered if anyone has acheived this goal. On Thu, Jun 26, 2008 at 9:37 AM, billybaroo1958 <cajjz109@...> wrote: > > I might start a poll with this question, but figured I would go this > way first. Before I started Xolair, I was on a low dose of inhaled > corticosteroids for about 20 years. Prior to that time, I was only put > on prednisone when I had complications with my asthma from a cold or > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > no ridiculous reactions to allergens, and yet I was atopic. > > The question is before people in this group went on Xolair, how many > were on daily Prednisone (or some other oral corticosteroid) and/or an > inhaled corticosteroid? > > I have been on Xolair for about 5 months, and while I am still mildly > atopic, I don't use any inhaled corticosteroids and I have used my > rescue inhaler about 2-3 times. > > > -- From the abundance of the heart the mouth speaks. - Prince Quote
Guest guest Posted June 26, 2008 Report Posted June 26, 2008 Welcome to the group! I've gone from an average of 9 rounds of steroids every year to three, and I am much healthier thanks to Xolair! Addy Group Co-owner Xolair users nearly 5 years. > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > > Quote
Guest guest Posted June 26, 2008 Report Posted June 26, 2008 I can't say if Xolair will or will not get you off of steroids, but if your asthma is allergically driven, it offers you the best chance for what is not available. > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > > Quote
Guest guest Posted June 27, 2008 Report Posted June 27, 2008 Hi , Everyone responds differently and at different time frames. But I wanted to offer you some words of encouragement. The 2 years before I started Xolair I was off and on Prenisone and they would have to put me on high doses like 80 or 50 mg's when I was really sick. I was on Advair then. I have been on Xolair for a year and 3 months and during that time I only went on Prednisone once in at New years because I was allergic to all the mold spors that had grown on my Christmas tree and I had gotten sick from the exposure. Prior to Xolair I was using a nebulizer all the time and had to take it with me to work when I was sick. Now I rarley use my rescue inhaler. Not everyone has the same level of results as this but its worth a try to stay off the dreaded prednisone and have happier breathing. I wish you the best. I too was nervous when I first started but I am over that now because I started feeling so much better. I have changed to Symbiocort last fall and the last time I had my PFT my doctor said my results were normal. I confessed that I had been without my Symbiocort for a week and she said we could look at lowering my dose (inhaled steroids) next time if my results stayed the same. I will be thinking good thoughts and prayers for you tomorrow. Laurie From: Stesia <annastesia926@...> Subject: Re: [ ] Prednisone Use Date: Thursday, June 26, 2008, 12:28 PM Every winter I usually have 4-5 rounds of prednisone due to illness. Last winter I had so much of it that when I tried to taper off, I suffered withdrawal and my doctor had to extend that round and bring me off it a lot slower. I have been on inhaled steriods since a very young age. I have lost track of all the different kinds of drug therapies I have tried in my lifetime. I do know that when I am not taking inhaled steriods, I lose weight. I don't think I can ever change my body structure or grow hair in places it should be, but I know that I would feel better if I could lose weight. I have my first shot tomorrow and I am apprehensive and a little scared. I am not sure if this is the right way to go. All I want is to get away from steriods. I asked the group when I first join about this because I am only willing to take the risk with this new medicine if the possibility is there and wondered if anyone has acheived this goal. On Thu, Jun 26, 2008 at 9:37 AM, billybaroo1958 <cajjz109sbcglobal (DOT) net> wrote: > > I might start a poll with this question, but figured I would go this > way first. Before I started Xolair, I was on a low dose of inhaled > corticosteroids for about 20 years. Prior to that time, I was only put > on prednisone when I had complications with my asthma from a cold or > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > no ridiculous reactions to allergens, and yet I was atopic. > > The question is before people in this group went on Xolair, how many > were on daily Prednisone (or some other oral corticosteroid) and/or an > inhaled corticosteroid? > > I have been on Xolair for about 5 months, and while I am still mildly > atopic, I don't use any inhaled corticosteroids and I have used my > rescue inhaler about 2-3 times. > > > -- From the abundance of the heart the mouth speaks. - Prince Quote
Guest guest Posted June 27, 2008 Report Posted June 27, 2008 I also takes Prednisone every 2 months since 6 years with full dose i.e 5 tablest for 3 days,4 tablets for 3 days and so on. Last year i took the Xolair it helped me but this i have stoped Xolair lazy going to doctors place , its 1 hr drive. so again i have to back to Prednisone. my question: Is there any side effect if we are taking prednisone every 2 months with full dose? thx From: billybaroo1958 <cajjz109@...> Subject: [ ] Re: Prednisone Use Date: Thursday, June 26, 2008, 4:45 PM I can't say if Xolair will or will not get you off of steroids, but if your asthma is allergically driven, it offers you the best chance for what is not available. > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > > Quote
Guest guest Posted June 27, 2008 Report Posted June 27, 2008 Thank you for your words of encouragement. It is greatly appreciated. I have seen ads for Symbiocort on TV. It sounds similar to Advair. Are they different? -Kim ( Stesia is my name - It is one of my favorite Prince songs) On Thu, Jun 26, 2008 at 5:18 PM, <laurie@...> wrote: > Hi , > > Everyone responds differently and at different time frames. But I wanted to > offer you some words of encouragement. The 2 years before I started Xolair I > was off and on Prenisone and they would have to put me on high doses like 80 > or 50 mg's when I was really sick. I was on Advair then. I have been on > Xolair for a year and 3 months and during that time I only went on > Prednisone once in at New years because I was allergic to all the mold spors > that had grown on my Christmas tree and I had gotten sick from the exposure. > > Prior to Xolair I was using a nebulizer all the time and had to take it > with me to work when > I was sick. Now I rarley use my rescue inhaler. Not everyone has the same > level of results as this but its worth a try to stay off the dreaded > prednisone and have happier breathing. > > I wish you the best. I too was nervous when I first started but I am over > that now because I started feeling so much better. > > I have changed to Symbiocort last fall and the last time I had my PFT my > doctor said my results were normal. I confessed that I had been without my > Symbiocort for a week and she said we could look at lowering my dose > (inhaled steroids) next time if my results stayed the same. > > I will be thinking good thoughts and prayers for you tomorrow. > > Laurie > > > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > Quote
Guest guest Posted June 27, 2008 Report Posted June 27, 2008 Hi, Welcome! Just FYI - 'full dose' of Prednisone for you isn't necessarily 'full dose' for everyone, some people (like me) take Prednisone everyday or every other day for years, I think you meant 'taper' dose. To answer your question, yes there are definite side-effects (I think almost everyone in this group who has taken Prednisone long-term has had side-effects), for some people being on Xolair constantly, we still can't come totally off Prednisone. Arguably though, the greatest 'side-effect' of Xolair is at least lowering the amount of Prednisone you're on if not eliminating the need for it all together. Maybe through the Xolair website, you can find a Dr. closer to you that administers Xolair, so you can get back on it. Good luck! Meagan > > > > > > > > I might start a poll with this question, but figured I would go > this > > > way first. Before I started Xolair, I was on a low dose of > inhaled > > > corticosteroids for about 20 years. Prior to that time, I was > only put > > > on prednisone when I had complications with my asthma from a > cold or > > > flu virus. That occurred maybe 5-6 times from the ages of 14- 28. > I had > > > no ridiculous reactions to allergens, and yet I was atopic. > > > > > > The question is before people in this group went on Xolair, how > many > > > were on daily Prednisone (or some other oral corticosteroid) > and/or an > > > inhaled corticosteroid? > > > > > > I have been on Xolair for about 5 months, and while I am still > mildly > > > atopic, I don't use any inhaled corticosteroids and I have used > my > > > rescue inhaler about 2-3 times. > > > > > > > > > > > > > > > > > -- > > From the abundance of the heart the mouth speaks. - Prince > > > > > > Quote
Guest guest Posted June 27, 2008 Report Posted June 27, 2008 Hi Kim, Just to fill you in, my name is Meagan, I'm 21 years-old, I live in NY, I'm a college student majoring in pre-med, I have severe allergies/asthma, I see an allergist/pulmo on Staten Island (I see him b/c the theory among my Dr.'s years ago was that I'm too complicated for any specialists near me), my pre-Xolair IgE was 1,100, I've been on Xolair 375mg every 2 wks for over 3 years, and although I'm still on Prednisone, I have been able to taper to every other day and to just 7mg (!), and I LOVE Xolair. I react oddly to beta-agonists like albuterol, xopenex, and foradil. I was on Advair for probably 2 years about 3 years ago, until we figured out that the reason my asthma was `worse' was because of the beta-agonist in advair. So I am no longer on ANY beta agonists. I am however on Pulmicort, which is the steroid part of Symbicort. The main reason why some people believe Symbicort is `better- than' Advair is because Symbicort is a lot cheaper, and is covered more easily by many insurance companies. Also, Symbicort contains formoterol (Foradil) as it's long-acting beta-agonist and formoterol has been shown to `kick-in' faster than salmeterol (Advair's long- acting beta-agonist) so some asthma patients feel that Symbicort works `better' than Advair. It's worth discussing possibly switching from Advair to Symbicort with your pulmo, and by going on mysymbicort.com, and clicking on `send me information about Symbicort,' you can get more drug info mailed to you, which you or your doctor might be interested in (my pulmo/allergist is one of the physician-speakers for Symbicort, that's why I know about it.) Please let me know if you have any more questions. Meagan > > > > > > > > I might start a poll with this question, but figured I would go this > > > way first. Before I started Xolair, I was on a low dose of inhaled > > > corticosteroids for about 20 years. Prior to that time, I was only put > > > on prednisone when I had complications with my asthma from a cold or > > > flu virus. That occurred maybe 5-6 times from the ages of 14- 28. I had > > > no ridiculous reactions to allergens, and yet I was atopic. > > > > > > The question is before people in this group went on Xolair, how many > > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > > inhaled corticosteroid? > > > > > > I have been on Xolair for about 5 months, and while I am still mildly > > > atopic, I don't use any inhaled corticosteroids and I have used my > > > rescue inhaler about 2-3 times. > > > > > > > > > > > > > -- > > From the abundance of the heart the mouth speaks. - Prince > > > > Quote
Guest guest Posted June 29, 2008 Report Posted June 29, 2008 I was on Advair twice daily, along with steroid nasal spray twice a day and oral prednisone short term for allergy flare-ups that exacerbated my asthma. > > > I might start a poll with this question, but figured I would go this > way first. Before I started Xolair, I was on a low dose of inhaled > corticosteroids for about 20 years. Prior to that time, I was only put > on prednisone when I had complications with my asthma from a cold or > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > no ridiculous reactions to allergens, and yet I was atopic. > > The question is before people in this group went on Xolair, how many > were on daily Prednisone (or some other oral corticosteroid) and/or an > inhaled corticosteroid? > > > I have been on Xolair for about 5 months, and while I am still mildly > atopic, I don't use any inhaled corticosteroids and I have used my > rescue inhaler about 2-3 times. > Quote
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