Joint Pain

February 24, 1999

because trhe test are innaccurate george,,,,,,,,plus it is my feeling thru

personal experiance that once u have lyme u never get rid of it.......it may

go into remission.....but the spiros are still in ur body and symptoms.....can

and will return at any time

Reid

February 24, 1999

, were you taking abx when you got the wb test? From what I understand

all lyme tests will come back negitive if you are on abx or were on them up to

2 weeks before. to be positive if you have lyme I suggest the LUAT test from

IGENEX it will tell you even if you are on abx. Terri

July 7, 1999

Janelle:

I am taking Celebrex - it works well but it makes me VERY sleepy and I know a

lot of people who have experienced stomach upset from it. I only take it at

night so that I can sleep. During the day I tolerate the pain or take advil.

Sometimes the pain gets so bad I miss work - then I do take the celebrex during

the day.

Hope this helps.

Kaye AIH OH

Janelle Asplund wrote:

> From: Janelle Asplund <jasplund@...>

>

> Kaye and : are you both taking something for your joint pain (Kaye you

> mentioned arthrtitis med. in earlier post) If so what are you taking and

> does it work? My knees are getting so bad I can barely walk, and I don't

> relish the idea of resorting to a wheelchair at the ripe ol' age of 26...

>

> Dixie, you mentioned convincing your doctor to give you Vicoden. How'd you

> do that? I'm worried my doctor is going to give me trouble when I ask him

> for pain medication, so I want to be as prepared as possible.

>

> Thanks for your help.

>

> Janelle AIH

> Seattle

>

> ---------------------------

July 8, 1999

Kaye & Janelle:

Tonight the pain in my right side is very bad and I took two pain pills and

it has not done nothing yet.

Go for blood Friday, will leave a message for my doctor.

Sue AIH

Wisconsin

July 8, 1999

Well Janelle .. I keep clubbing my feet on things... I have broken my little

toe 3 times in the last 6 months... So, all of that additional pain, I ask him

for some kind of pain pills. The first kind he gave me caused me to have

horrible head aches. I did not take them.

The next time I saw him I told him I needed something stronger. He said NO. I

ask why. He said he would be affaid that I would get hooked on them... I

laughed in his face and told him that he was being rediculous. Cause I have a

termanial disease and I am in misery... I need some kind of relief from this

pain... He told me that this Vicoden would cause constipation and is hard on

the liver to process. I told him that I did not care cause the pain at this

time is far to overwhelming. My quality of life was horrible. He wrote the

prescription....

Hope this helps

Dixie AIH

Janelle Asplund wrote:

> From: Janelle Asplund <jasplund@...>

>

> Kaye and : are you both taking something for your joint pain (Kaye you

> mentioned arthrtitis med. in earlier post) If so what are you taking and

> does it work? My knees are getting so bad I can barely walk, and I don't

> relish the idea of resorting to a wheelchair at the ripe ol' age of 26...

>

> Dixie, you mentioned convincing your doctor to give you Vicoden. How'd you

> do that? I'm worried my doctor is going to give me trouble when I ask him

> for pain medication, so I want to be as prepared as possible.

>

> Thanks for your help.

>

> Janelle AIH

> Seattle

>

> ---------------------------

July 8, 1999

Hi Dixie. Ouch! Good for you for insisting that your dr. give you

something. The quality/quantity of life issue is one all of us seem to have

to decide on a daily basis. Any guesses why you kept bonking your feet?

Mine have gone partially numb thanks to the pred. and I'm definitely

clumsier these days.

Janelle AIH

Seattle

______________________________ Forward Header __________________________________

Subject: Re: [ ] joint pain

Author: meles@... at Internet-USA

Date: 7/7/99 9:32 PM

From: meles@...

Well Janelle .. I keep clubbing my feet on things... I have broken my little

toe 3 times in the last 6 months... So, all of that additional pain, I ask him

for some kind of pain pills. The first kind he gave me caused me to have

horrible head aches. I did not take them.

The next time I saw him I told him I needed something stronger. He said NO. I

ask why. He said he would be affaid that I would get hooked on them... I

laughed in his face and told him that he was being rediculous. Cause I have a

termanial disease and I am in misery... I need some kind of relief from this

pain... He told me that this Vicoden would cause constipation and is hard on

the liver to process. I told him that I did not care cause the pain at this

time is far to overwhelming. My quality of life was horrible. He wrote the

prescription....

Hope this helps

Dixie AIH

July 8, 1999

Hi,

I hate to get on my doctors case but I pay him well for his services. I have

educated him on many facets of this disease. So, as long as I am in misery he

had

better give me what I need to make daily living bearable... Don't get me wrong.

But, hey, We are in misery. We never know when we are going to experience hell

day... So I want something I can take when that happens.. This is such

a

rare disease that we have to keep our doctors informed and, yes, even educate

them

to the whole condition of living with an Autoimmune Disease. We have to stand

up

for our selves. Well, That is, when we are not in too much pain and not too

sick

and tired. lol

I do not know about all the group members but.... but hey my quality of life

sucks

comparied to what it used to be.... THIS DISEASE IS NOT FOR SISSY'S

We have to be tough.... and pray every day for another one.

Love and Light

Dixie AIH I hope I didn't sound like I was complaining ?

Janelle Asplund wrote:

> Hi Dixie. Ouch! Good for you for insisting that your dr. give you

> something. The quality/quantity of life issue is one all of us seem to have

> to decide on a daily basis. Any guesses why you kept bonking your feet?

> Mine have gone partially numb thanks to the pred. and I'm definitely

> clumsier these days.

>

> Janelle AIH

> Seattle

>

> ______________________________ Forward Header

__________________________________

> Subject: Re: [ ] joint pain

> Author: meles@... at Internet-USA

> Date: 7/7/99 9:32 PM

>

> From: meles@...

>

> Well Janelle .. I keep clubbing my feet on things... I have broken my little

> toe 3 times in the last 6 months... So, all of that additional pain, I ask

him

> for some kind of pain pills. The first kind he gave me caused me to have

> horrible head aches. I did not take them.

> The next time I saw him I told him I needed something stronger. He said NO.

I

> ask why. He said he would be affaid that I would get hooked on them... I

> laughed in his face and told him that he was being rediculous. Cause I have a

> termanial disease and I am in misery... I need some kind of relief from this

> pain... He told me that this Vicoden would cause constipation and is hard on

> the liver to process. I told him that I did not care cause the pain at this

> time is far to overwhelming. My quality of life was horrible. He wrote the

> prescription....

> Hope this helps

> Dixie AIH

>

> ------------------------------------------------------------------------

>

> Name: RFC-822.TXT

> RFC-822.TXT Type: Plain Text (text/plain)

> Encoding: Base64

> Description: RFC-822.TXT

July 8, 1999

Dear Friends, It broke my heart when I read about . I hadn't read my

mail for a few days and was really shocked to hear about her death. One of

my best friends lost her 17 year old daughter in May in an auto accident and

I am still grieving for her. All of the images are still fresh in my mind

from her funeral and it is easy to imagine how it was with . What a

tragedy for these families. I do know that this kind of stress is hard on

people like us who have medical problems. My asthma started acting up along

with the colitis. I sometimes wonder if we don't deal with stress like other

people do. I know that I tend to keep things inside. Well, thanks for

listening, you are a great bunch of compassionate people. I would look

forward to the chance of meeting you all, so count me in for a convention.

My daughter, , had her 16th birthday this week and will be driving

soon. I guess there is always something for us to worry about! HA Love to

you all, Jane Totten AIH

July 9, 1999

There are very few physicians who know how to deal

with chronic pain. It's one of the many skills

missing in our medical professionals. You have to get

tough with them and explain to them like you did..but

we shouldnt have to..

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---meles@... wrote:

>

> From: meles@...

>

> Well Janelle .. I keep clubbing my feet on

things... I have broken my little

> toe 3 times in the last 6 months... So, all of

that additional pain, I ask him

> for some kind of pain pills. The first kind he

gave me caused me to have

> horrible head aches. I did not take them.

> The next time I saw him I told him I needed

something stronger. He said NO. I

> ask why. He said he would be affaid that I would

get hooked on them... I

> laughed in his face and told him that he was being

rediculous. Cause I have a

> termanial disease and I am in misery... I need

some kind of relief from this

> pain... He told me that this Vicoden would cause

constipation and is hard on

> the liver to process. I told him that I did not

care cause the pain at this

> time is far to overwhelming. My quality of life was

horrible. He wrote the

> prescription....

> Hope this helps

> Dixie AIH

>

> Janelle Asplund wrote:

>

> > From: Janelle Asplund <jasplund@...>

> >

> > Kaye and : are you both taking something for

your joint pain (Kaye you

> > mentioned arthrtitis med. in earlier post) If so

what are you taking and

> > does it work? My knees are getting so bad I can

barely walk, and I don't

> > relish the idea of resorting to a wheelchair at

the ripe ol' age of 26...

> >

> > Dixie, you mentioned convincing your doctor to

give you Vicoden. How'd you

> > do that? I'm worried my doctor is going to give

me trouble when I ask him

> > for pain medication, so I want to be as prepared

as possible.

> >

> > Thanks for your help.

> >

> > Janelle AIH

> > Seattle

> >

> > ---------------------------

July 9, 1999

There are very few physicians who know how to deal

with chronic pain. It's one of the many skills

missing in our medical professionals. You have to get

tough with them and explain to them like you did..but

we shouldnt have to..

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---meles@... wrote:

>

> From: meles@...

>

> Well Janelle .. I keep clubbing my feet on

things... I have broken my little

> toe 3 times in the last 6 months... So, all of

that additional pain, I ask him

> for some kind of pain pills. The first kind he

gave me caused me to have

> horrible head aches. I did not take them.

> The next time I saw him I told him I needed

something stronger. He said NO. I

> ask why. He said he would be affaid that I would

get hooked on them... I

> laughed in his face and told him that he was being

rediculous. Cause I have a

> termanial disease and I am in misery... I need

some kind of relief from this

> pain... He told me that this Vicoden would cause

constipation and is hard on

> the liver to process. I told him that I did not

care cause the pain at this

> time is far to overwhelming. My quality of life was

horrible. He wrote the

> prescription....

> Hope this helps

> Dixie AIH

>

> Janelle Asplund wrote:

>

> > From: Janelle Asplund <jasplund@...>

> >

> > Kaye and : are you both taking something for

your joint pain (Kaye you

> > mentioned arthrtitis med. in earlier post) If so

what are you taking and

> > does it work? My knees are getting so bad I can

barely walk, and I don't

> > relish the idea of resorting to a wheelchair at

the ripe ol' age of 26...

> >

> > Dixie, you mentioned convincing your doctor to

give you Vicoden. How'd you

> > do that? I'm worried my doctor is going to give

me trouble when I ask him

> > for pain medication, so I want to be as prepared

as possible.

> >

> > Thanks for your help.

> >

> > Janelle AIH

> > Seattle

> >

> > ---------------------------

July 9, 1999

Jane:

My daughter is just finishing Drivers Ed and will be 16 on December

30th. She wants to practice driving so I think I will take her out to her

Grandmothers and let her drive in the dirt road. Yes I do worry about

and driving. I worry about walking one block away from home so I do

take her almost everwhere unless she has a friend or two to go with her when

she is walking.

Sue AIH

Wisconsin

July 9, 1999

I think " THIS DISEASE IS NOT FOR SISSIES " should be the theme of the

convention! Dixie, you complain all you like. You're absolutely right that

our quality of life suffers, and we have every right not only to force our

doctors to take account of that, but also to throw as many tantrums, cry as

many tears, and bitch as much as we want.

Janelle AIH

Seattle

______________________________ Forward Header __________________________________

Subject: Re: [ ] joint pain

Author: meles@... at Internet-USA

Date: 7/8/99 3:06 PM

From: meles@...

Hi,

I hate to get on my doctors case but I pay him well for his services. I have

educated him on many facets of this disease. So, as long as I am in misery he

had

better give me what I need to make daily living bearable... Don't get me wrong.

But, hey, We are in misery. We never know when we are going to experience hell

day... So I want something I can take when that happens.. This is such

a

rare disease that we have to keep our doctors informed and, yes, even educate

them

to the whole condition of living with an Autoimmune Disease. We have to stand

up

for our selves. Well, That is, when we are not in too much pain and not too

sick

and tired. lol

I do not know about all the group members but.... but hey my quality of life

sucks

comparied to what it used to be.... THIS DISEASE IS NOT FOR SISSY'S

We have to be tough.... and pray every day for another one.

Love and Light

Dixie AIH I hope I didn't sound like I was complaining ?

Janelle Asplund wrote:

> Hi Dixie. Ouch! Good for you for insisting that your dr. give you

> something. The quality/quantity of life issue is one all of us seem to have

> to decide on a daily basis. Any guesses why you kept bonking your feet?

> Mine have gone partially numb thanks to the pred. and I'm definitely

> clumsier these days.

>

> Janelle AIH

> Seattle

>

> ______________________________ Forward Header

__________________________________

> Subject: Re: [ ] joint pain

> Author: meles@... at Internet-USA

> Date: 7/7/99 9:32 PM

>

> From: meles@...

>

> Well Janelle .. I keep clubbing my feet on things... I have broken my little

> toe 3 times in the last 6 months... So, all of that additional pain, I ask

him

> for some kind of pain pills. The first kind he gave me caused me to have

> horrible head aches. I did not take them.

> The next time I saw him I told him I needed something stronger. He said NO.

I

> ask why. He said he would be affaid that I would get hooked on them... I

> laughed in his face and told him that he was being rediculous. Cause I have a

> termanial disease and I am in misery... I need some kind of relief from this

> pain... He told me that this Vicoden would cause constipation and is hard on

> the liver to process. I told him that I did not care cause the pain at this

> time is far to overwhelming. My quality of life was horrible. He wrote the

> prescription....

> Hope this helps

> Dixie AIH

>

> ------------------------------------------------------------------------

>

> Name: RFC-822.TXT

> RFC-822.TXT Type: Plain Text (text/plain)

> Encoding: Base64

> Description: RFC-822.TXT

---------------------------

July 9, 1999

Dear Jane,

I also was deeply touched by the loss of . I was surprised to

realize how much she'd become a part of my life. I only hope that her

family knows how much she was loved and cared about by so many of us.

Take care,

Geri

July 9, 1999

Dixie,

I've been taking 1 to 2 Vicoden daily for several months. I couldn't

function without them. My Hepatologist told me that he " never " prescribes

Vicoden for anyone, but when I later saw a Rheumatologist who went to med

school with him and who knows him personally, she said, " nonesense. " She

said that research has shown that people in chronic pain rarely become

addicted to pain medications and they would have become addicted to

something anyhow (like alcohol or whatever). She also said that she does

not believe that a patient should suffer. She wrote me a prescription for

60 per month. I then told my Hepatologist that I am taink Vicoden and I

told him who wrote the prescription. He didn't object or argue at all.

How could he? He did tell me that up to two a day would NOT increase the

liver damage I already have. And, I have yet to have a problem with

constipation from taking Vicoden.

One thing I've noticed is that I can actually feel a wave of pain relief

when the Vicoden takes effect. It's like a miracle drug for me. In the

past, I've rarely taken pain meds, even after dental work or following

surgery since I'm not usually troubled by pain and don't like the feeling

of being " high " . I wonder if it's more effective because of the condition

of our livers, just like alcoholics feel the effect of booze more extremely

than people who haven't abused the stuff?

Geri

July 9, 1999

Hi,

I am glad to hear that I am not the only one that takes Vicoden for pain..

Thanks Geri...

Dixie

Geri Spang wrote:

> From: Geri Spang <spangs@...>

>

> Dixie,

> I've been taking 1 to 2 Vicoden daily for several months. I couldn't

> function without them. My Hepatologist told me that he " never " prescribes

> Vicoden for anyone, but when I later saw a Rheumatologist who went to med

> school with him and who knows him personally, she said, " nonesense. " She

> said that research has shown that people in chronic pain rarely become

> addicted to pain medications and they would have become addicted to

> something anyhow (like alcohol or whatever). She also said that she does

> not believe that a patient should suffer. She wrote me a prescription for

> 60 per month. I then told my Hepatologist that I am taink Vicoden and I

> told him who wrote the prescription. He didn't object or argue at all.

> How could he? He did tell me that up to two a day would NOT increase the

> liver damage I already have. And, I have yet to have a problem with

> constipation from taking Vicoden.

>

> One thing I've noticed is that I can actually feel a wave of pain relief

> when the Vicoden takes effect. It's like a miracle drug for me. In the

> past, I've rarely taken pain meds, even after dental work or following

> surgery since I'm not usually troubled by pain and don't like the feeling

> of being " high " . I wonder if it's more effective because of the condition

> of our livers, just like alcoholics feel the effect of booze more extremely

> than people who haven't abused the stuff?

> Geri

>

> ---------------------------

July 9, 1999

Dixie,

In our society, we have a thing about equating pain relief with " vice " as

though if something makes you feel better, it must be somehow evil.

Incredibly, doctors are among the worst about having that prejudice.

It's 3:00 AM and I just took my 2nd. Vicoden today after several hours of

increasing pain. I don't feel even slightly guilty about it. My husband's

neurosurgeon who is also involved with a major pain control clinic that

does studies, has given him Vicoden, up to 6 per day, since last September

and his emphasis is pain prevention. Once the pain cycle starts, it's hard

to break. Medication that keeps it from taking over will actually result

in less medication over the long haul. Incidentally, Bob is far from

" hooked " on the stuff. Some days he only takes one Vicoden, yet he has

serious and totally disabling back pain.

Take care,

Geri

July 10, 1999

Janelle,

I am one of the unlucky ones that has continual pain. My doctor came to the

conclusion long before me that I need constant pain relief just so I could

have some quality of life. You need to tell YOUR doctor that. You want

quality of life. It is hard enough to cope with this disease let alone the

pain that some of us suffer. Be strong about it and you can get through the

day a lot easier.

Good luck

SueB.

----------

> From: Janelle Asplund <jasplund@...>

> onelist

> Subject: [ ] joint pain

> Date: Wednesday, 7 July 1999 18:53

>

> From: Janelle Asplund <jasplund@...>

>

> Kaye and : are you both taking something for your joint pain (Kaye

you

> mentioned arthrtitis med. in earlier post) If so what are you taking and

> does it work? My knees are getting so bad I can barely walk, and I don't

> relish the idea of resorting to a wheelchair at the ripe ol' age of 26...

>

> Dixie, you mentioned convincing your doctor to give you Vicoden. How'd

you

> do that? I'm worried my doctor is going to give me trouble when I ask him

> for pain medication, so I want to be as prepared as possible.

>

> Thanks for your help.

>

> Janelle AIH

> Seattle

>

> ---------------------------

July 10, 1999

Janelle,

I second that!!! " This disease is not for Sissies " sounds like a place to

start.

SueB.

----------

> From: Janelle Asplund <jasplund@...>

> onelist

> Subject: Re: [ ] joint pain

> Date: Friday, 9 July 1999 15:14

>

> I think " THIS DISEASE IS NOT FOR SISSIES " should be the theme of the

> convention! Dixie, you complain all you like. You're absolutely right

that

> our quality of life suffers, and we have every right not only to force

our

> doctors to take account of that, but also to throw as many tantrums, cry

as

> many tears, and bitch as much as we want.

>

> Janelle AIH

> Seattle

>

> ______________________________ Forward Header

__________________________________

> Subject: Re: [ ] joint pain

> Author: meles@... at Internet-USA

> Date: 7/8/99 3:06 PM

>

> From: meles@...

>

> Hi,

> I hate to get on my doctors case but I pay him well for his services. I

have

> educated him on many facets of this disease. So, as long as I am in

misery he

> had

> better give me what I need to make daily living bearable... Don't get me

wrong.

> But, hey, We are in misery. We never know when we are going to experience

hell

> day... So I want something I can take when that happens.. This

is such

> a

> rare disease that we have to keep our doctors informed and, yes, even

educate

> them

> to the whole condition of living with an Autoimmune Disease. We have to

stand

> up

> for our selves. Well, That is, when we are not in too much pain and

not too

> sick

> and tired. lol

> I do not know about all the group members but.... but hey my quality of

life

> sucks

> comparied to what it used to be.... THIS DISEASE IS NOT FOR

SISSY'S

> We have to be tough.... and pray every day for another one.

> Love and Light

> Dixie AIH I hope I didn't sound like I was complaining ?

>

> Janelle Asplund wrote:

>

> > Hi Dixie. Ouch! Good for you for insisting that your dr. give you

> > something. The quality/quantity of life issue is one all of us seem to

have

> > to decide on a daily basis. Any guesses why you kept bonking your feet?

> > Mine have gone partially numb thanks to the pred. and I'm definitely

> > clumsier these days.

> >

> > Janelle AIH

> > Seattle

> >

> > ______________________________ Forward Header

> __________________________________

> > Subject: Re: [ ] joint pain

> > Author: meles@... at Internet-USA

> > Date: 7/7/99 9:32 PM

> >

> > From: meles@...

> >

> > Well Janelle .. I keep clubbing my feet on things... I have broken my

little

> > toe 3 times in the last 6 months... So, all of that additional pain, I

ask

> him

> > for some kind of pain pills. The first kind he gave me caused me to

have

> > horrible head aches. I did not take them.

> > The next time I saw him I told him I needed something stronger. He said

NO.

> I

> > ask why. He said he would be affaid that I would get hooked on them...

I

> > laughed in his face and told him that he was being rediculous. Cause I

have a

> > termanial disease and I am in misery... I need some kind of relief

from this

> > pain... He told me that this Vicoden would cause constipation and is

hard on

> > the liver to process. I told him that I did not care cause the pain

at this

> > time is far to overwhelming. My quality of life was horrible. He

wrote the

> > prescription....

> > Hope this helps

> > Dixie AIH

> >

------------------------------------------------------------------------

> >

> > Name: RFC-822.TXT

> > RFC-822.TXT Type: Plain Text (text/plain)

> > Encoding: Base64

> > Description: RFC-822.TXT

>

> ---------------------------

July 10, 1999

Me three! I found out today I have to wait 3 weeks to see the

rheumatologist, and there's no way I can wait that long to get pain meds.

So I called my dr., and despite some reluctance on his part, he agreed to

give me the big V. I still have to pick it up, but I'm looking forward to

some relief (I was almost in tears when I thought I had missed him for the

weekend).

Janelle AIH

Seattle

______________________________ Forward Header __________________________________

Subject: Re: [ ] joint pain

Author: meles@... at Internet-USA

Date: 7/9/99 4:49 AM