nystatin

[Guest guest]

We use unflavored, unadulterated nystatin powder. It is yellow...

[ ] Nystatin

Our doctor ordered Nystatin in a stevia base from Coastal

Compounding. The colour is a horrible looking red. Is Nystatin always

red in colour or does each pharmacy compound it with its own colour?

Those of you using it, dont your children react to the artificial

colour in it? (I thought most of the autistic children reacted badly

to artificial colours/flavours ?)

If so, would taking some No Fenol with it help?

Also, the bottle says that it can be used only till March 2003. Does

it mean that I have to throw it away after that? (they've charged

quite a lot for this!)

Thanks a lot

[Guest guest]

wow! that is a big bottle to use in such a short time.

[ ] Fw: Nystatin

I get mine from The Compounding Pharmacist in Wayne, PA 610-688-6883. It is

white, coloring-free, sugar-free and I think it is preservative free that's why

it doesn't last much. It is about $100 inc postage. It says 100,000U/ML SF and

it is a 480ml size.

Joyce M. Dávila

Mamá de Verónica Marie

Puerto Rico

[Guest guest]

I get mine from The Compounding Pharmacist in Wayne, PA 610-688-6883. It is

white, coloring-free, sugar-free and I think it is preservative free that's why

it doesn't last much. It is about $100 inc postage. It says 100,000U/ML SF and

it is a 480ml size.

Joyce M. Dávila

Mamá de Verónica Marie

Puerto Rico

[Guest guest]

i have never seen it red mine was always white.

AUTISM

Ten years ago one in 10,000

Five years ago one in 500

Today one in 150

SCARED YET?

www.momsonamissionforautism.org

[Guest guest]

- We are using oral Nystatin powder, too. Ours is from the local

pharmacy, and has no color (white). It is VERY bitter, but we mix it with some

banana " pudding " (mashed baby bananas) 1/8 tsp to 2 oz bananas. It was not

particularly expensive...

-Liz P

Nystatin

Our doctor ordered Nystatin in a stevia base from Coastal

Compounding. The colour is a horrible looking red. Is Nystatin always

red in colour or does each pharmacy compound it with its own colour?

Those of you using it, dont your children react to the artificial

colour in it? (I thought most of the autistic children reacted badly

to artificial colours/flavours ?)

If so, would taking some No fenol with it help?

Also, the bottle says that it can be used only till March 2003. Does

it mean that I have to throw it away after that? (they've charged

quite a lot for this!)

Thanks a lot

[Guest guest]

> Our doctor ordered Nystatin in a stevia base from Coastal

> Compounding. The colour is a horrible looking red. Is Nystatin

always

> red in colour or does each pharmacy compound it with its own colour?

Sounds like a choice of the pharmacy, or your doctor wrote it that

way.

>

> Those of you using it, dont your children react to the artificial

> colour in it? (I thought most of the autistic children reacted badly

> to artificial colours/flavours ?)

Many do. Some kids are helped with artificials by No-Fenol, altho not

my family.

> Also, the bottle says that it can be used only till March 2003. Does

> it mean that I have to throw it away after that? (they've charged

> quite a lot for this!)

Might be for several reasons, the two main reasons that I can think of

are 1) old stock, 2) the special compound is only good for a month,

even if it was new stock. Ask your pharmacist. But you should not

use it after March 2003.

Dana

[Guest guest]

In a message dated 01/10/2003 06:59:29 GMT Daylight Time, amattson@...

writes:

> I'm sending out an SOS. This isn't about enzymes, although I'm thankful

> everyday for them. The problem is I've finally gotten my pediatrician on

board,

> and neither of us is competent to lead. We've decided for multiple reasons to

> stop the Nizoral, and we're switching to Nystatin. The problem is, neither

> she nor I know the appropriate dose. How does a parent or pediatrician

> determine dosage? Thanks for any information you can send my way.

>

I would check Shaw's Biological Treatment book, Mr McCandless probably lists

it in hers or Bruce Semon (?sp) into yeast, or try searching for website for

Sidney Baker. Or you could try here <A

HREF= " http://www.cbcutah.com/ " >http://www.cbcutah.com/</A> and look in the

understanding Autism paper.

HTH

Mandi in UK

[Guest guest]

That was so excellent. Thank you for this.

Re: Nystatin

In a message dated 01/10/2003 06:59:29 GMT Daylight Time, amattson@...

writes:

> I'm sending out an SOS. This isn't about enzymes, although I'm thankful

> everyday for them. The problem is I've finally gotten my pediatrician on

board,

> and neither of us is competent to lead. We've decided for multiple reasons

to

> stop the Nizoral, and we're switching to Nystatin. The problem is, neither

> she nor I know the appropriate dose. How does a parent or pediatrician

> determine dosage? Thanks for any information you can send my way.

>

I would check Shaw's Biological Treatment book, Mr McCandless probably lists

it in hers or Bruce Semon (?sp) into yeast, or try searching for website for

Sidney Baker. Or you could try here <A

HREF= " http://www.cbcutah.com/ " >http://www.cbcutah.com/</A> and look in the

understanding Autism paper.

HTH

Mandi in UK

[Guest guest]

THE SITE WWW.cbcutah.com is WONDERFUL.. easy to read and understand!!

Thanks for sending this article by DR JEPSON!! I am printing and copying it

to all those who need to know.. doctors, schoolteachers and administrators!! It

is by fat the best paper on AUTISM that I have ever read!!

Thanks so much............Sincerely,

[Guest guest]

Don't get the syrup!

Oral Powdered Nystatin is better for gut overgrowth. It will also help

thrush if you swish it around in your mouth. You can add it to juice or

use just plain water. Tastes a little bitter. Keep it refridgerated.

I don't know if it has a phenol connection or not. I am not sure if it

is manufactured under different brand names or not. If your doctor

isn't sure about dosage then he can call a pharmacist regarding it

and how to write the required amount for the prescription. That is

what my doctor did that didn't know how to write it up.

As an adult I was to take 1/8 tsp. and then later 1/4 tsp of the powder.

Always start out small. The dosage is increased when the smaller

dose doesn't present die-off symptoms.

Liz D.

nystatin

I am thinking about tryig nystatin for a short period of time for my daughters

yeast. Looking at it, it appears there are many different ways to get it. I

was wondering if someone has a brand or type that is probably most suitable for

a child with a leaky gut and sensitive to phenols? So sad, but I have heard

that many actually come in a sugary base. Also would be interested in hearing

of the dosages that was given or reccomended. I'm pretty sure our doctor will

perscribe it but he has no clue as to the doses to be taken for an intestinal

yeast overgrowth.

Thanks,

Kari

[Guest guest]

My son has been on liquid nystatin for years. He loves the taste, we get the

pharmacy to mix it up and they must add a flavor to it. He takes it right down

with a spoon.

Bonnie

proudoftyler <proudoftyler@...> wrote:

My 28mo old son just started Nystatin treatment for excessive yeast.

He is taking 300,000 units 3 X's daily. Does anyone have any

suggestions on how they masked the bitter flavor of the powder? What

did you use to mix it in to get your child to take it? The powder is

very bitter and he can smell it. I can't but he seems to know it.

I " hide " sups in unsweetend applesauce and he doesn't mind that, but

I can't get him to take the Nystatin even using Xylitol with it. He

is on a GFCF diet.

Thanks for any help.

Tyler's Mom

=======================================================

[Guest guest]

Give my brother (compounding pharmacist) a call at Dermasave Labs, Pleasant

Valley, NY. 845 635-4087. He flavors the medications and ships with Rx

[ ] Nystatin

My 28mo old son just started Nystatin treatment for excessive yeast.

He is taking 300,000 units 3 X's daily. Does anyone have any

suggestions on how they masked the bitter flavor of the powder? What

did you use to mix it in to get your child to take it? The powder is

very bitter and he can smell it. I can't but he seems to know it.

I " hide " sups in unsweetend applesauce and he doesn't mind that, but

I can't get him to take the Nystatin even using Xylitol with it. He

is on a GFCF diet.

Thanks for any help.

Tyler's Mom

=======================================================

[Guest guest]

> My 28mo old son just started Nystatin treatment for excessive

yeast.

> He is taking 300,000 units 3 X's daily. Does anyone have any

> suggestions on how they masked the bitter flavor of the powder?

What

> did you use to mix it in to get your child to take it? The powder

is

> very bitter and he can smell it. I can't but he seems to know

it.

> I " hide " sups in unsweetend applesauce and he doesn't mind that,

but

> I can't get him to take the Nystatin even using Xylitol with it.

He

> is on a GFCF diet.

you can find a collection of a couple dozen ideas on how to

hide supplements, here:

http://home.earthlink.net/~moriam/HOW_TO_buy_DMSA.html

It is near the end-- the part about ideas for getting kids

to take stuff.

good wishes,

Moria

[Guest guest]

Left you a message already. Give my brother a call, Dermasave Labs. He is a

componding pharmacist and knows how to mask bad tastes of medications. 845

635-4087.

[ ] Re: Nystatin

> My 28mo old son just started Nystatin treatment for excessive

yeast.

> He is taking 300,000 units 3 X's daily. Does anyone have any

> suggestions on how they masked the bitter flavor of the powder?

What

> did you use to mix it in to get your child to take it? The powder

is

> very bitter and he can smell it. I can't but he seems to know

it.

> I " hide " sups in unsweetend applesauce and he doesn't mind that,

but

> I can't get him to take the Nystatin even using Xylitol with it.

He

> is on a GFCF diet.

you can find a collection of a couple dozen ideas on how to

hide supplements, here:

http://home.earthlink.net/~moriam/HOW_TO_buy_DMSA.html

It is near the end-- the part about ideas for getting kids

to take stuff.

good wishes,

Moria

=======================================================

[Guest guest]

> Left you a message already. Give my brother a call, Dermasave

Labs. He is a componding pharmacist and knows how to mask bad tastes

of medications. 845 635-4087.

> I did get in touch with him....he was very helpful and extremely

knowledgable. He was surprised to hear that I got his number from

you and happy to help others...What a nice man. He even said that

you are an expert that has taught him many things in the children's

autism area and broadened his work.

Thanks again!!

Annette in IL

>

>

>

> =======================================================

>

[Guest guest]

Yes, my son was on Nystatin for a long time with no problems.

Nystatin is not one of the yeast medications that affects the liver

as far as I know. Diflucan, Flucanazole, etc. are the yeast drugs

which can affect liver function. That's why with those drugs

doctors usually have the patient on it for 2 weeks, then off 2

weeks, then on 2 weeks etc. and only for a few rounds since they are

pretty effective at killing the yeast.

But Nystatin is pretty safe I think.

Good luck.

Theresa

> Hi?

> My 3yrs. old daughter developed yeast ingection with methyl b12

shots. Dr. Neubrander

> precribed Nystatin for that and he said that it is safe to use

Nystatin for a prolonged period.

> My daughter's infection is under control with Nystatin but I am

worried about its ill effects on

> her lever. Has any body else used Nystatin for a long time

without any side effects?

>

>

> Thanks

> Manju

[Guest guest]

My son has been on Nystatin for six months. He takes 1/2 the adult

tablet (with the food coloring washed off) - when his yeast is

really bad, he takes 1 adult tablet per day for a few days. Every

time I skip a day or 2, he gets yeast problems, so I have not missed

too many days, and he is ok.

Amy

> Hi?

> My 3yrs. old daughter developed yeast ingection with methyl b12

shots. Dr. Neubrander

> precribed Nystatin for that and he said that it is safe to use

Nystatin for a prolonged period.

> My daughter's infection is under control with Nystatin but I am

worried about its ill effects on

> her lever. Has any body else used Nystatin for a long time

without any side effects?

>

>

> Thanks

> Manju

[Guest guest]

-Thanks a lot for your prompt reply. It was a great help.

Manju

In , " noahsmom7898 " <noahsmom7898@y...>

wrote:

> My son has been on Nystatin for six months. He takes 1/2 the adult

> tablet (with the food coloring washed off) - when his yeast is

> really bad, he takes 1 adult tablet per day for a few days. Every

> time I skip a day or 2, he gets yeast problems, so I have not missed

> too many days, and he is ok.

> Amy

>

>

> > Hi?

> > My 3yrs. old daughter developed yeast ingection with methyl b12

> shots. Dr. Neubrander

> > precribed Nystatin for that and he said that it is safe to use

> Nystatin for a prolonged period.

> > My daughter's infection is under control with Nystatin but I am

> worried about its ill effects on

> > her lever. Has any body else used Nystatin for a long time

> without any side effects?

> >

> >

> > Thanks

> > Manju

[Guest guest]

We have been using Nystatin with our 15.5 month old twins since June

and have had no problems. Nystatin is all natural and the pharms

harvessed it to sell. It does not go into the bloodstream like the

other rx antifungals. Powder form is best and we have put it into our

twins pear sauce with no problem. It is bitter and we were told that

we could use Agave to sweeten it. So far so good.

> Hi?

> My 3yrs. old daughter developed yeast ingection with methyl b12

shots. Dr. Neubrander

> precribed Nystatin for that and he said that it is safe to use

Nystatin for a prolonged period.

> My daughter's infection is under control with Nystatin but I am

worried about its ill effects on

> her lever. Has any body else used Nystatin for a long time without

any side effects?

>

>

> Thanks

> Manju

[Guest guest]

Has any body else used Nystatin for a long time without any side effects?

>

>

> Thanks

> Manju

Although Nystatin is usually very safe, please be aware that it is possible to

be allergic to it. I

was. It wasn't just die-off, it lasted too long for that. Gave me severe joint

pains, lupus flare.

Peace,

Kathy E.

[Guest guest]

Too many things at once!

Could be die-off from the Nystatin

Could be a reaction to whatever the Nystatin is compounded with (colors dies

etc)

Could easily be the Super Nu Thera

Could be too much magnesium

Could be a reaction to the CLO

In general it is best to start only one thing at a time, wait at least a

week, watch for results, and then add something else. If I were you I would

back off of everything except one of the things and start over

Been there done that,

Josie

Nystatin

We met with a DAN Dr. for the first time on Wed. We started Nystatin

yesterday afternoon (1/2 tsp). Within a few hours she had a large

soft stool. Which is unusual for her, they usually are well formed.

Her eye-contact and comprehension has also decreased. Today she had

several potty accidents. Today I decieded to break up the 1/2tsp into

three different doses during the day. Maybe I should just give 1/4 a

day or stop altogether or something else.

We also started her on the following supplements yesterday:

Super Nu Thera 1/4 tsp

Calcium/Magnesium liquid 1 tsp

Cod liver oil 1/2 tsp

Liquid Zinc 1 1/2 tsp

On November 16th we started her on the SCD diet and have continued

the GFCF diet. We started GFCF in August and HN enzymes and

probiotics in June. Since adding the SCD we have had almost perfect

eye-contact until last night.

I am confident that yeast is an issue but what do you do with

regression? Stop the medication or go slower or keep plugging away.

Is it likely it could be one of the supplements we added?

Maybe I should stop the Nystatin and just give the new supplements a

try to watch for reactions and than retry the Nystatin.

I was told the supplements she didn't need her body would throw-out.

The Enzymes for Autism book pg. 130-131 talks about over

supplementation. I don't think the supplements would have made a

reaction that quickly. I want to learn more about how much to give

them and what to look for with over supplementation. I expect my

daugher will greatly benefit from these supplements.

I am also going to take out honey, grapes and apples which is SCD

legal but maybe helping the yeast.

Any thoughts would be greatly appreciated. Regression if sooo hard.

Thanks Melinda

[Guest guest]

Too many things all at once! Its best to start slow

and with 1 supplement to see if there are any

reactions. Many of those can cause mushy poop

including the Mag, CLO, and NuThera.

I would STOP everything and go slow...

Lori

--- melindafaith2005 <melindafaith2005@...>

wrote:

> We met with a DAN Dr. for the first time on Wed. We

> started Nystatin

> yesterday afternoon (1/2 tsp). Within a few hours

> she had a large

> soft stool. Which is unusual for her, they usually

> are well formed.

> Her eye-contact and comprehension has also

> decreased. Today she had

> several potty accidents. Today I decieded to break

> up the 1/2tsp into

> three different doses during the day. Maybe I should

> just give 1/4 a

> day or stop altogether or something else.

>

> We also started her on the following supplements

> yesterday:

> Super Nu Thera 1/4 tsp

> Calcium/Magnesium liquid 1 tsp

> Cod liver oil 1/2 tsp

> Liquid Zinc 1 1/2 tsp

>

> On November 16th we started her on the SCD diet and

> have continued

> the GFCF diet. We started GFCF in August and HN

> enzymes and

> probiotics in June. Since adding the SCD we have had

> almost perfect

> eye-contact until last night.

>

> I am confident that yeast is an issue but what do

> you do with

> regression? Stop the medication or go slower or keep

> plugging away.

> Is it likely it could be one of the supplements we

> added?

>

> Maybe I should stop the Nystatin and just give the

> new supplements a

> try to watch for reactions and than retry the

> Nystatin.

>

> I was told the supplements she didn't need her body

> would throw-out.

> The Enzymes for Autism book pg. 130-131 talks about

> over

> supplementation. I don't think the supplements would

> have made a

> reaction that quickly. I want to learn more about

> how much to give

> them and what to look for with over supplementation.

> I expect my

> daugher will greatly benefit from these supplements.

>

> I am also going to take out honey, grapes and apples

> which is SCD

> legal but maybe helping the yeast.

>

> Any thoughts would be greatly appreciated.

> Regression if sooo hard.

> Thanks Melinda

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hi Melinda,

I understand your frustration with regressions--so frustrating!

I wonder if she is having die off from the nystatin. You can try

giving her some activated charcoal (I think you can do 1/4 cap to

start) and see if things improve. That's how we knew it was yeast

die off.

Hang in there!

Also--we have always found it very confusing to start too many things

at once.

>

> We met with a DAN Dr. for the first time on Wed. We started

Nystatin

> yesterday afternoon (1/2 tsp). Within a few hours she had a large

> soft stool. Which is unusual for her, they usually are well

formed.

> Her eye-contact and comprehension has also decreased. Today she had

> several potty accidents. Today I decieded to break up the 1/2tsp

into

> three different doses during the day. Maybe I should just give 1/4

a

> day or stop altogether or something else.

>

> We also started her on the following supplements yesterday:

> Super Nu Thera 1/4 tsp

> Calcium/Magnesium liquid 1 tsp

> Cod liver oil 1/2 tsp

> Liquid Zinc 1 1/2 tsp

>

> On November 16th we started her on the SCD diet and have continued

> the GFCF diet. We started GFCF in August and HN enzymes and

> probiotics in June. Since adding the SCD we have had almost perfect

> eye-contact until last night.

>

> I am confident that yeast is an issue but what do you do with

> regression? Stop the medication or go slower or keep plugging away.

> Is it likely it could be one of the supplements we added?

>

> Maybe I should stop the Nystatin and just give the new supplements

a

> try to watch for reactions and than retry the Nystatin.

>

> I was told the supplements she didn't need her body would throw-

out.

> The Enzymes for Autism book pg. 130-131 talks about over

> supplementation. I don't think the supplements would have made a

> reaction that quickly. I want to learn more about how much to give

> them and what to look for with over supplementation. I expect my

> daugher will greatly benefit from these supplements.

>

> I am also going to take out honey, grapes and apples which is SCD

> legal but maybe helping the yeast.

>

> Any thoughts would be greatly appreciated. Regression if sooo hard.

> Thanks Melinda

>

[Guest guest]

Zinc makes my son have potty accidents.

Chelsea

[Guest guest]

> I've never heard of that. I just started my son on zinc, he still

wears

> diapers, so I don't know if it makes him have accidents or not.

Why would

> it do that? Do you know?

Hi Chelsea,

Cody get's his zinc in his morning breakfast drink and doesn't seem

to make a difference if it's before or after eating, but I can tell

you when I take my zinc, if I do it on an empty stomach or before

eating I get a really bad stomach ache and end up with really loose

stools. But if I take it after I've had my morning breakfast (bagel

with peanut butter and glass of water), then there's no problems.

Maybe his stomach is sensitive to the zinc as well.

Peace,

Bobbie