Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Suzy, You asked how old I am....62 tomorrow ( I am having an endoscopy...gag Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 Hi Sherry, I was reading this I'm the other Susie Just wanted to wish you A Happy Birthday and you have a nice day :-) Susie &nbs p; &n bsp; "S.A.M." <blueopal@...> wrote: Suzy, You asked how old I am....62 tomorrow ( I am having an endoscopy...gag Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2010 Report Share Posted December 5, 2010 Hi, Back when i had time to read, I read about the blue in the whites of the eyes in the Jodi Piccoult book, Handle with Care, which is about a girl with Osteogenesis Imperfecta. I think this is called blue schlera. I found this when I looked up about blue schlera: Mitral valve prolapse syndrome Marfan syndrome Ehlers-Danlos syndrome Osteogenesis imperfecta Idiopathic scoliosis Stickler syndrome A lot - including some interesting biochemical anomalies known to be heavily influenced by nutrition Here is a partial list of overlapping features found in most of the disorders listed above: Mitral valve prolapse Low bone densities Osteopenia Osteoporosis Pectus excavatum Pectus carinatum Fractures Osteoarthritis Nosebleeds Easy Bruising Hypermobility Scoliosis Poor wound healing Blue sclera TMJ Hypermobility Bowed limbs Joint instability Heavy menstrual periods Keratoconus Migraine Headaches Fibromyalgia Anxiety and Depression In case it would be helpful at all. > > > > Hi Sue, > > Does Abby have a connective tissue disorder? > > hRH > > > > > Can anyone tell me how Miss Mehta dealt or deals with double curves that > > > oppose in opposite directions as my daughters has? We have been working > > > on derotating the bottom curve but am now working on the top but each > > > seems to be at the cost of the other curve. Now the surgeon is ready to > > > stop casting and wants to brace which we will fight as hard as we can. > > > > > > thanks > > > Sue > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2010 Report Share Posted December 5, 2010 Hi thanks for the list. It is only the Geneticist who has picked up the blue sclera so I am hoping it is mild or a one off in terms of underlying causes. This is def one we need to pick up on with the next visit to the Paediatrician. Sue > > > > > > Hi Sue, > > > Does Abby have a connective tissue disorder? > > > hRH > > > > > > > Can anyone tell me how Miss Mehta dealt or deals with double curves that > > > > oppose in opposite directions as my daughters has? We have been working > > > > on derotating the bottom curve but am now working on the top but each > > > > seems to be at the cost of the other curve. Now the surgeon is ready to > > > > stop casting and wants to brace which we will fight as hard as we can. > > > > > > > > thanks > > > > Sue > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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