Guest guest Posted January 1, 2008 Report Posted January 1, 2008 HI All, I just joined this group,and I am going to be getting my first xolair shot o friday. I am a nurse with a relatively new job,and have been miserable with asthma symptoms since I've started, I, on prednisone 60mg albuterol inhaler q 4 hours advair inhaler 2x a day, and nebulizer treatments every 4 hours, and nothing is helping, xolair is my last best hope, keepingmy fingers crossed that it is the miracle drug I hear it is, so I can have my life back, my husband can have his wife back, and my kids their mom, I feel like a disabled person, and basically I am Quote
Guest guest Posted January 1, 2008 Report Posted January 1, 2008 Good luck to you! Please let us know how you're doing. Addy Group co-owner --- In , " garykathy33 " <Kathy33@...> wrote: > > HI All, I just joined this group,and I am going to be getting my first > xolair shot o friday. I am a nurse with a relatively new job,and have > been miserable with asthma symptoms since I've started, I, on > prednisone 60mg albuterol inhaler q 4 hours advair inhaler 2x a day, > and nebulizer treatments every 4 hours, and nothing is helping, xolair > is my last best hope, keepingmy fingers crossed that it is the miracle > drug I hear it is, so I can have my life back, my husband can have his > wife back, and my kids their mom, I feel like a disabled person, and > basically I am > Quote
Guest guest Posted January 2, 2008 Report Posted January 2, 2008 --- GOOD LUCK! I have been prednisone free for over a year and am enjoying what it feels like to breathe well again. Sharon In , " garykathy33 " <Kathy33@...> wrote: > > HI All, I just joined this group,and I am going to be getting my first > xolair shot o friday. I am a nurse with a relatively new job,and have > been miserable with asthma symptoms since I've started, I, on > prednisone 60mg albuterol inhaler q 4 hours advair inhaler 2x a day, > and nebulizer treatments every 4 hours, and nothing is helping, xolair > is my last best hope, keepingmy fingers crossed that it is the miracle > drug I hear it is, so I can have my life back, my husband can have his > wife back, and my kids their mom, I feel like a disabled person, and > basically I am > Quote
Guest guest Posted January 2, 2008 Report Posted January 2, 2008 Good job in getting to this stage - approval and setting it all up! Please don't be disappointed if you don't have an immediate " miraculous " improvement. Mine came very slowly over a period of many months but nonetheless, when I really think about it, I can tell I am LESS AFFECTED by many things than I was pre-Xolair. Finally, too, my sinuses are better and that was a big plus. I've greatly decreased the Sudafed, am still on Advair 500/50 & Spiriva, but am functioning better in the lung " department " . No oral steroids since late last spring. Share your experiences if you'd like - it's good to hear how others are doing. Just out of curiosity, would you care to mention your IgE? Mine was 409 pre-Xolair so I'm at the highest dose - 375 mgs every 2 weeks. I've sort've wondered if people w/higher IgEs take longer to respond. Happy New Year! --- In , " garykathy33 " <Kathy33@...> wrote: > > HI All, I just joined this group,and I am going to be getting my first > xolair shot o friday. I am a nurse with a relatively new job,and have > been miserable with asthma symptoms since I've started, I, on > prednisone 60mg albuterol inhaler q 4 hours advair inhaler 2x a day, > and nebulizer treatments every 4 hours, and nothing is helping, xolair > is my last best hope, keepingmy fingers crossed that it is the miracle > drug I hear it is, so I can have my life back, my husband can have his > wife back, and my kids their mom, I feel like a disabled person, and > basically I am > Quote
Guest guest Posted January 2, 2008 Report Posted January 2, 2008 > > > > HI All, I just joined this group,and I am going to be getting my first > > xolair shot o friday. I am a nurse with a relatively new job,and have > > been miserable with asthma symptoms since I've started, I, on > > prednisone 60mg albuterol inhaler q 4 hours advair inhaler 2x a day, > > and nebulizer treatments every 4 hours, and nothing is helping, xolair > > is my last best hope, keepingmy fingers crossed that it is the miracle > > drug I hear it is, so I can have my life back, my husband can have his > > wife back, and my kids their mom, I feel like a disabled person, and > > basically I am > > > Welcome to the group You are definitely among friends who know exactly what you are going through. Yes, instdesgn1 is correct. Do not expect instant results. Xolair never was intended to be a fast acting medication like an inhaler or neb treatment. There are a only a few in this group who started getting relief after only a few shots. Personally, I believe this is rare. It does take time to get things going. It too me over a year before I saw any results. Once again, welcome Doug Group founder On Xolair since September 2003 Quote
Guest guest Posted January 2, 2008 Report Posted January 2, 2008 ________________________________ > > From: psychoratzilla@... > Date: Wed, 2 Jan 2008 06:01:05 +0000 > Subject: [ ] Re: first shot > > > --- > GOOD LUCK! I have been prednisone free for over a year and am enjoying > what it feels like to breathe well again. Sharon > > In , " garykathy33 " wrote: >> >> HI All, I just joined this group,and I am going to be getting my first >> xolair shot o friday. I am a nurse with a relatively new job,and have >> been miserable with asthma symptoms since I've started, I, on >> prednisone 60mg albuterol inhaler q 4 hours advair inhaler 2x a day, >> and nebulizer treatments every 4 hours, and nothing is helping, xolair >> is my last best hope, keepingmy fingers crossed that it is the miracle >> drug I hear it is, so I can have my life back, my husband can have his >> wife back, and my kids their mom, I feel like a disabled person, and >> basically I am >> > > > Hi everyone, So nice to talk to people that know exactly what i'm going through, and once again thanks for the support, it means alot, I havent gotten a report on my IEG level yet but when I do I will share it with the group, cant hardly wait til Friday even though I know that I wont get immediate relief, there is a light at the end of this very long and gasping tunnel, have a great night everyone _________________________________________________________________ Share life as it happens with the new Windows Live. http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_122007 Quote
Guest guest Posted January 8, 2008 Report Posted January 8, 2008 Congrats and please let us know how you continue to do. We all continue to hope for your safety and good health. Addy Group co-owner --- In , " dineen2323 " <dineen2323@...> wrote: > > I finally got my first shot after waiting for 2 months to get it. I > read other posting and I to feel a little tried, slightly dizzy, and > heavy headed. Hopefully it is gone tommorow. > > > Soldier, > Dineen > Quote
Guest guest Posted January 8, 2008 Report Posted January 8, 2008 ________________________________ > > From: dineen2323@... > Date: Mon, 7 Jan 2008 23:26:15 +0000 > Subject: [ ] first shot > > > I finally got my first shot after waiting for 2 months to get it. I > read other posting and I to feel a little tried, slightly dizzy, and > heavy headed. Hopefully it is gone tommorow. > > Soldier, > Dineen > > > Good luck to you, I sincerely hope the shot works for you, I will keep my fingers crossed _________________________________________________________________ Share life as it happens with the new Windows Live. http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008 Quote
Guest guest Posted January 11, 2008 Report Posted January 11, 2008 After I wrote my last message, I thought I might pass out and I realized I need to take my evening dose of meds before I went to bed. After I took my meds I felt better and improved. My sinuses aren't as congested, my nose isn't runny, and I can breath easier. I woke up in the middle of the night because my body wasn't use to being able to breath a little easier. My daily peak flow hasn't change but I have had an overall improvement. Usally when I run it is about 25 dregree at 6:30 am. My lungs burn as I run and when I stop running I am coughing (and spitting) so bad that I have to just wait for 15-20 minutes before I can make it to my car. I feel light head and dizzy but I don't pass out. I continue to cough til about lunch no better how much combivent I take. Since X, I have ran twice in the same conditions. I still cough (and spit) but not to the extented it use to be and for about five minutes then I am fine. This has been great. Also, I forgot to take my flonase for two days and then I decide to take it. I felt overmedicated and dehydrated. That is good because now I don't need my flonase but I still need my afrin (periodically). I still feel a little dizzy but overall better. Your Soldier, Dineen --- In , " dineen2323 " <dineen2323@...> wrote: > > I finally got my first shot after waiting for 2 months to get it. I > read other posting and I to feel a little tried, slightly dizzy, and > heavy headed. Hopefully it is gone tommorow. > > > Soldier, > Dineen > Quote
Guest guest Posted January 11, 2008 Report Posted January 11, 2008 > > After I wrote my last message, I thought I might pass out and I > realized I need to take my evening dose of meds before I went to bed. > After I took my meds I felt better and improved. My sinuses aren't as > congested, my nose isn't runny, and I can breath easier. I woke up in > the middle of the night because my body wasn't use to being able to > breath a little easier. My daily peak flow hasn't change but I have > had an overall improvement. > > Usally when I run it is about 25 dregree at 6:30 am. My lungs burn as > I run and when I stop running I am coughing (and spitting) so bad that > I have to just wait for 15-20 minutes before I can make it to my car. > I feel light head and dizzy but I don't pass out. I continue to cough > til about lunch no better how much combivent I take. Since X, I have > ran twice in the same conditions. I still cough (and spit) but not to > the extented it use to be and for about five minutes then I am fine. > This has been great. > > Also, I forgot to take my flonase for two days and then I decide to > take it. I felt overmedicated and dehydrated. That is good because now > I don't need my flonase but I still need my afrin (periodically). > > I still feel a little dizzy but overall better. > > Your Soldier, > Dineen Dineen, First of all, God bless you and our troops! It takes a special person to serve his/her country in the armed forces. Secondly, congratulations getting through the red tape and FINALLY getting your first Xolair Shots. Thirdly, remember, it takes some of us up to a year or more to see any results whatsoever. I wanted quick results but alas, I didn't get any. After 6 months I told my doctor that I was quitting. He persuaded me to " stay the course " and it took a me year to see any results. Now, I am glad I listened to him! Can't wait till the X kicks in for you too Doug Group founder Quote
Guest guest Posted January 11, 2008 Report Posted January 11, 2008 Hurray! I know you'll continue to see improvements. Hang in there, let us know how you are. We are so proud of our Xolair soldier! Addy Group co-owner > > > > I finally got my first shot after waiting for 2 months to get it. I > > read other posting and I to feel a little tried, slightly dizzy, and > > heavy headed. Hopefully it is gone tommorow. > > > > > > Soldier, > > Dineen > > > Quote
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