Re: Digest Number 607

[Guest guest]

In a message dated 1/23/00 1:32:06 PM Eastern Standard Time,

onelist writes:

> < hypercoagulation is a symptom of CFS and

> not a cause of CFS or ANY symptoms? >>

> Mike, that is exactly the theory of Berg of Hemex. It will also be

a

> symptom of other diseases and already is a symptom of both FMS and CFS

which

>

> he does not consider the same entity.

Gail, you are missing my point. The point is that I THINK that hypercoag is

present in CFS, but I don't think it causes symptoms or creates a 'hiding

place'

for mycoplasma or virii. I never said that hypercoag causes CFS, nor did I

imply

that anyone else did. My concern is what benefit those who have hypercoag

will get when they reverse it. For example, we still haven't seen results

showing

a lower Karnofsky score before Hypercoag treatment and a much higher one

after heparin AND tests showing much lower coagulation.

Such a simple trial would do a lot for the theory and show that blood thinning

helps as opposed to NO being reduced by the heparin or aspirin.

Mike (I know I am part of the problem, but it seems like it's hypercoag,

hypercoag

hypercoag. Remember Cheney, Cheney, etc.....)

[Guest guest]

My name is Lori Reaves and I have a 5 year old son, Colton who has DS

and autism. Has anyone found a good GI doctor who understands the

connection that sometimes exists between digestive problems and autism?

Colton craves bread and will eat as much as we allow him to. There is

very little else he will eat. I wonder if this is connected to his

autism but don't know who to go to to explore this. My pediatrician is

willing to order any labs that would be helpful but she needs more

knowledge in this area.

Thank you,

Lori (ericsezl@...)

[Guest guest]

Welcome,

Has your son ever had the blood test for Celiac? Funny how we sometimes

crave the things that are the worst for us. Where are you from--perhaps

some of us have a GI dr.

& Garry, parents of (10 ds), (9 ds/g-tube), JJ (7

ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (3 ds). All adopted.

----------

>From: ericsezl@...

>egroups

>Subject: Re: Digest Number 607

>Date: Sat, Jan 13, 2001, 2:59 PM

>

>My name is Lori Reaves and I have a 5 year old son, Colton who has DS

>and autism. Has anyone found a good GI doctor who understands the

>connection that sometimes exists between digestive problems and autism?

>Colton craves bread and will eat as much as we allow him to. There is

>very little else he will eat. I wonder if this is connected to his

>autism but don't know who to go to to explore this. My pediatrician is

>willing to order any labs that would be helpful but she needs more

>knowledge in this area.

>

>Thank you,

>Lori (ericsezl@...)

>

>

>

[Guest guest]

hi lori, my son is nathan is 9yrs w/ds pdd(autism) and he has loved bread

and bread products since he was about 2yrs. anyways, we dont think it

invoves anything really wrong, he is a carbo nut, we just keep the bread

locked up when not using it. shanwa.

>From: ericsezl@...

>Reply-egroups

>egroups

>Subject: Re: Digest Number 607

>Date: Sat, 13 Jan 2001 17:59:39 -0500

>

>My name is Lori Reaves and I have a 5 year old son, Colton who has DS

>and autism. Has anyone found a good GI doctor who understands the

>connection that sometimes exists between digestive problems and autism?

>Colton craves bread and will eat as much as we allow him to. There is

>very little else he will eat. I wonder if this is connected to his

>autism but don't know who to go to to explore this. My pediatrician is

>willing to order any labs that would be helpful but she needs more

>knowledge in this area.

>

>Thank you,

>Lori (ericsezl@...)

>

>

>

_________________________________________________________________

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[Guest guest]

Welcome to the group Lori ..... I'm , I only joined in November but

already I feel like I've been here for years - all these women are

wearing me down just reading their mails every day !!! :-)

Now, you don't actually say in your mail what digestive problems Colton

has, if any, the main one that seems to be associated with DS & ASD is

celiac disease, this as you may already know is an intolerance to the

gluten found in cereals, bread ectect. The disease manifests itself

by a lack of growth in children and by diarrea and distinctive stools.

If left untreated can cause gastrointestinal cancer. Much more detail

than this can be obtained in the www.celiac.com page.

It is detected by firstly doing a blood or urine test to see if

certain antibodies are present in the blood, later a biopsy or

endoscope probe to see if any physical damage to the small intestine is

occurring. The only known cure at present is TOTAL removal of gluten

from the diet.

However, a craving for bread is not a symptom of celiac. Now, the

things that they look for in the blood test can in some children produce

a morphine-like substance that can get to and effect the brain and it's

functioning & possibly giving rise to the autistic condition. As the

effected person is receiving a form of morphine he is in fact *drug

addicted* to gluten and as all drug addicts will want his regular *shot*

and more if possible !! This could be the reason why Colton craves

bread, as did our son Ignacio. This fact gives rise to what is

known as the gluten free caesin free (GFCF) diet as a possible paliative

to autism.

This is where I break for the commercial

(I always do but nobody seems to take any notice !!!)

Please, Please calling all members CONSIDER the GFCF Diet - its

FREE -doesn't

use any NASTY drugs - but try it for 6 months and do the ATEC test FIRST

!!

If you haven't YET been to www.gfcfdiet.com GO NOW, click on Success

Stories

but have the tissues ready !! Please !! End of break.

Just looked in on this site and have found that it contains a list of

defeat autism now (DAN) dotors - there may be one near you.

The caesin (all milk products ) forms part of the diet as a similar

proccess occurs, however in the case of Colton gluten seems to main

problem so you could start with just with GF to see what effects it has

- the ATEC on -line test is recommended because this method is a slow

process as it takes some time for the body to rid itself of the

morphines and you will probably forget what he was really like after

some time.

Ignacio has been on the diet for some 6months now and I can confirm

are that his eye contact and attencion have improved measurably and he

does not self stim with nails or hair although he does still nash his

teeth !! Socialbility has also improved and he will now give kisses

to all on demand and to some without asking !! Speech is still

lacking and he still has no meaningful play.

He only eats gluten-free bread and has no real *craving* as before,

bread without gluten is pretty unappetising anyway !!!

I hope this gives you some *leads* to follow up on your trip into this

subject !!

[Guest guest]

At 03:44 AM 2/6/01 +0000, you wrote:

>HI All I have been a Lurking Lucy for a while but am now ready to get in on

>all of this now. Can any one tell me where I could get some samples of EO's

>or FO's as I don't know what any of them smell like and would like to place

>an order soon, and don't know what or where to order from. Any help would be

>greatly welcomed.

ANY reputable supplier of eo's should allow you to request samples... now,

not all suppliers can afford to offer free samples, many of us charge a

small s & h fee to 'new visitors'... but I'd not buy any essential oil

without sampling and evaluating it...why should you?

Your source for superb Essential Oils, Aromatherapy

Accessories, Information, Books and more!

Visit us at: <http://www.naturesgift.com>

[Guest guest]

In a message dated 4/6/01 12:19:14 AM Pacific Daylight Time,

LifeLift writes:

<<

>>

Well, everyone, I have not been posting nor doing my thing. Have been so

tired. Well, after reading Rashelle's posting on water, maybe I know why. I

have not been drinking much and my weight loss has stopped so I think the

solution is drink, drink, drink. wow, 1 quart 3 times per day. Now that is a

challenge.

I am doing Somercizing and I lost around 8 pounds. But I figure 2 of it is

fluid from not drinking lots and eating sandwich meat so this weekend my

challenge is to drink more and get those breaths in.

Thanks Rashelle for the posting.

Ellen

[Guest guest]

Hi Ellen,

You've been on my mind lately. I was about ready to file a missing

persons report on you. LOL

It's great that you've lost 8 lbs. I'm sorry that you've been so tired

though. Try drinking your water and breathe, breathe, breathe!!!!!!

Hopefully you'll be feeling better in no time.

Love, Liz

---------

Well, everyone, I have not been posting nor doing my thing. Have been so

tired. Well, after reading Rashelle's posting on water, maybe I know why.

I

have not been drinking much and my weight loss has stopped so I think the

solution is drink, drink, drink. wow, 1 quart 3 times per day. Now that

is a

challenge.

I am doing Somercizing and I lost around 8 pounds. But I figure 2 of it

is

fluid from not drinking lots and eating sandwich meat so this weekend my

challenge is to drink more and get those breaths in.

Thanks Rashelle for the posting.

Ellen

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

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[Guest guest]

Hi Ellen, it's good to have you posting again. The post on water helped me

too, I got really lax in my drinking and now am having to start all over

building up.

luv,

Re: Digest Number 607

>In a message dated 4/6/01 12:19:14 AM Pacific Daylight Time,

>LifeLift writes:

>

><<

> >>

>Well, everyone, I have not been posting nor doing my thing. Have been so

>tired. Well, after reading Rashelle's posting on water, maybe I know why. I

>have not been drinking much and my weight loss has stopped so I think the

>solution is drink, drink, drink. wow, 1 quart 3 times per day. Now that is

a

>challenge.

>

>I am doing Somercizing and I lost around 8 pounds. But I figure 2 of it is

>fluid from not drinking lots and eating sandwich meat so this weekend my

>challenge is to drink more and get those breaths in.

>

>Thanks Rashelle for the posting.

>

>Ellen

>

>

>

[Guest guest]

thanks for the good ideas. I love sweet potatoes raw. If they are cooked they make my mouth feel like I have things crawling in it. Not too pleasant a feeling. I've eaten them raw for years, but I never thought about making hummus with other beans. Good luck with your pickle recipe. Sheila

In a message dated 4/26/01 3:25:21 AM Central Daylight Time, writes:

Hi well thanks, and I have found that a lot of veg's are fine the way they

are, without anything but salt added. I do miss pickles, I am a o, so if

anyone finds zuccini with no vinegar recipe for pickles, with lemon I

guess, let me know. It is a tough one. I have found butternut squash to be

a new veg. that is quite nice on its own. And, also raw turnip and yam,

make a good dipper for hummus, and hummus can be made from black eyed

peas/beans, or black beans. Well, that is all for now, oh zuccini make a

great dip in hummus as well. Oh, am also looking for a good zuccinni muffin

recipe,

All for now.

[Guest guest]

, didn't know yams and turnips can be eaten raw!! thanks!

[Guest guest]

Thanks, and here is a great recipe I think I got from the web site we are on. 1 c soya flour, 1/4 cup of water, and 1/2 tsp salt, and I use 1/2 cup of barley grits. mix all and put in flat pan in fridge or feezer, and cut into sq's. THis is a nice fudge. enjoy

And if you get a pickle recipe or relish withzuccini and no vinegar, let me know.

>From: ShyGra@... >Reply- > >Subject: Re: Digest Number 607 >Date: Thu, 26 Apr 2001 10:39:30 EDT > > thanks for the good ideas. I love sweet potatoes raw. If they are >cooked they make my mouth feel like I have things crawling in it. Not too >pleasant a feeling. I've eaten them raw for years, but I never thought about >making hummus with other beans. Good luck with your pickle recipe. Sheila > >In a message dated 4/26/01 3:25:21 AM Central Daylight Time, > writes: > > > > Hi well thanks, and I have found that a lot of veg's are fine the way they > > are, without anything but salt added. I do miss pickles, I am a o, so if > > anyone finds zuccini with no vinegar recipe for pickles, with lemon I > > guess, let me know. It is a tough one. I have found butternut squash to be > > a new veg. that is quite nice on its own. And, also raw turnip and yam, > > make a good dipper for hummus, and hummus can be made from black eyed > > peas/beans, or black beans. Well, that is all for now, oh zuccini make a > > great dip in hummus as well. Oh, am also looking for a good zuccinni muffin > > recipe, > > > > All for now. > > > > > > > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

Hey everyone!!!

Long time no email huh? I knew the picnic was next weekend and I have been

planning to attend, however I haven't had a computer to use in a long time

and I just got back online Thursday!!!! I just read a post that talked about

Glo sending tickets. Do I have to have a ticket for me and my guest Bob to

attend????

[Guest guest]

Hi,

You never know how dehydrated you really are. My

husband had to be taken to the ER with kidney stones

and they formed coz not much water was getting in! His

lips would always be dry. Now after the surgery, hes

so happy hes able to poop soo easily as opposed to

being constipated. There are so many little things

that go with A. In my experience, Id suggest to

straight, find the best surgeon and get the myotomy,

before other complications start to happen!!!

Anusha

--- achalasia wrote:

>

[Guest guest]

OK I'm new to the list, and I have but one question.......did Neandrathal man or any of these 'debunked' evolutionary humanoids ever have a THR or a TNR????

Just wondering.

-Glenna/Seattle-THR set for Sept 28 '04

Digest Number 607

[Guest guest]

Yes, they both had surgeries, but decided to abuse the rest of us

on this list with their bantering back and forth.

Good luck on your surgery 9-28. You will be glad you did it when

it is all over!!!

Valeri

[Guest guest]

Hi everyone,

I have not posted in a while, but I do read the messages daily. I had my band placed on October 27th, 2005. It was a little discouraging at the beginning. You want the weight to fall off, but accepting that it takes time is half the battle. I had my first fill the first week of December, 5cc in a 10cc band. I was 207 pounds at surgery, and had only gotten to 197 before the first fill. With the first fill I only lost 3 pounds. I waited it out until after Christmas and then went the first week of January and got 1cc added. I am now down to 165 pounds and I am eating good. No pb'ing lately. I do think I am ready for another fill, just .5cc though. Although it may be costly to fill at such small increments, your body surely does adjust better and the swelling is less. So hooray for me. I am now comfortably in a size 12, and I finally donated all the size 18 and 20's to Goodwill. Hope everyone is doing well.

Stacey

Colorado Springs, CO

[Guest guest]

Hi !

I have been thinking of you a lot lately and wondering

how you are doing! I kind of had the same experience

with fills that you did. I got my second one the end

of January ( and Carla, my daughter, got a slight

unfill). I lost about 10 more lbs and have been stuck

again so maybe I do need another small fill. You are

doing great and it sounds like you really dropped a

lot of weight after that second fill! I am down to a

size 11/12 in stretch jeans and that feels great!

So glad to hear from you!

Penny

Penny Manville

Walden, Colorado

DOB 9/26/05

230/185/135

1st fill 12/9/05 1cc

2nd fill 1/27/06 0.5 cc 1.5 cc total

5'4 "

__________________________________________________

[Guest guest]

Hi Stacey, My name is Tammy Irish and I havent been banded yet but as I am reading your post it seems like that when you had your surgery you werent i guess the word is "filled" enough. Is it like one size fits all and everyone gets the same amount of fill at their surgery date? Or is this determined a different way. Just curious to know and congratulations on getting rid of the large clothes!!! I cant wait to join you!! Tammy I. STACEY WALKER <staceywalker77@...> wrote: Hi everyone, I have not posted in a while, but I do read the messages daily. I had my

band placed on October 27th, 2005. It was a little discouraging at the beginning. You want the weight to fall off, but accepting that it takes time is half the battle. I had my first fill the first week of December, 5cc in a 10cc band. I was 207 pounds at surgery, and had only gotten to 197 before the first fill. With the first fill I only lost 3 pounds. I waited it out until after Christmas and then went the first week of January and got 1cc added. I am now down to 165 pounds and I am eating good. No pb'ing lately. I do think I am ready for another fill, just .5cc though. Although it may be costly to fill at such small increments, your body surely does adjust better and the swelling is less. So hooray for me. I am now comfortably in a size 12, and I finally donated all the size 18 and 20's to Goodwill. Hope everyone is doing well. Stacey Colorado Springs, CO

[Guest guest]

Congrats Stacey what a success story, I wonder what makes Dr. Aceves decide which size band we need, at 207 I would of thought you would have gotten the band that only holds 4cc.'s just curious. Nina do you know? Tracie Bartek STACEY WALKER <staceywalker77@...> wrote: Hi everyone, I have not posted in a while, but I do read the messages daily. I had my band placed on October 27th, 2005. It was a little discouraging at the beginning. You want the weight to fall off, but accepting that it takes time is half the battle. I had my first fill the first week of

December, 5cc in a 10cc band. I was 207 pounds at surgery, and had only gotten to 197 before the first fill. With the first fill I only lost 3 pounds. I waited it out until after Christmas and then went the first week of January and got 1cc added. I am now down to 165 pounds and I am eating good. No pb'ing lately. I do think I am ready for another fill, just .5cc though. Although it may be costly to fill at such small increments, your body surely does adjust better and the swelling is less. So hooray for me. I am now comfortably in a size 12, and I finally donated all the size 18 and 20's to Goodwill. Hope everyone is doing well. Stacey Colorado Springs, CO Tracie K. Bartek (Dr. Aceves Lap-Band Dolls)DOB 6/24/05248/200/150__________________________________________________

[Guest guest]

Stacey is an honorary member she was banded with another doctor but

she is a member of our group because they do not have one with her

doctor.

Dr. Aceves and other doctors decide what size band to place while

they are in the surgery room, some patients need bigger bands

because of the way their stomach is, not necesarilly higher BMI

patients need bigger bands. We have had low BMI patients that need

the larger bands. It depends.

Nina

> Hi everyone,

>

> I have not posted in a while, but I do read the messages

daily. I had my band placed on October 27th, 2005. It was a little

discouraging at the beginning. You want the weight to fall off, but

accepting that it takes time is half the battle. I had my first

fill the first week of December, 5cc in a 10cc band. I was 207

pounds at surgery, and had only gotten to 197 before the first

fill. With the first fill I only lost 3 pounds. I waited it out

until after Christmas and then went the first week of January and

got 1cc added. I am now down to 165 pounds and I am eating good.

No pb'ing lately. I do think I am ready for another fill, just .5cc

though. Although it may be costly to fill at such small increments,

your body surely does adjust better and the swelling is less. So

hooray for me. I am now comfortably in a size 12, and I finally

donated all the size 18 and 20's to Goodwill. Hope everyone is

doing well.

>

>

> Stacey

> Colorado Springs, CO

>

>

>

>

>

[Guest guest]

Thanks Nina, Nina <nina_eguia@...> wrote: Stacey is an honorary member she was banded with another doctor but she is a member of our group because they do not have one with her doctor.Dr. Aceves and other doctors decide what size band to place while they are in the surgery room, some patients need bigger bands because of the way their stomach is, not necesarilly higher BMI patients need bigger bands. We have had low BMI patients that need the larger bands. It depends. Nina> Hi everyone,> > I have not posted in a while, but I do read the messages daily. I had my band placed on October 27th, 2005. It was a little discouraging at the beginning. You want the weight to fall off, but accepting that it takes time is half the battle. I had my first fill the first week of December, 5cc in a 10cc band. I was 207 pounds at surgery, and had only gotten to 197 before the first fill. With the first fill I only lost 3 pounds. I waited it out until after Christmas and then went the first week of January and got 1cc added. I am now down to 165 pounds and I am eating good. No pb'ing lately. I do

think I am ready for another fill, just .5cc though. Although it may be costly to fill at such small increments, your body surely does adjust better and the swelling is less. So hooray for me. I am now comfortably in a size 12, and I finally donated all the size 18 and 20's to Goodwill. Hope everyone is doing well.> > > Stacey > Colorado Springs, CO> > > > >

[Guest guest]

Stacey, If you happen to know Lani Hinkel...............she is my cousin and I haven't told her or anyone else in the family. Not sure if CS is really that small. Virginia DOB 3-13-06STACEY WALKER <staceywalker77@...> wrote: Hi everyone, I have not posted in a while, but I do read the messages daily. I had my band placed on October 27th, 2005. It was a little discouraging at the beginning. You want the weight to fall off, but accepting that it takes time is half the battle. I had my first fill the first week of December, 5cc in a 10cc band.

I was 207 pounds at surgery, and had only gotten to 197 before the first fill. With the first fill I only lost 3 pounds. I waited it out until after Christmas and then went the first week of January and got 1cc added. I am now down to 165 pounds and I am eating good. No pb'ing lately. I do think I am ready for another fill, just .5cc though. Although it may be costly to fill at such small increments, your body surely does adjust better and the swelling is less. So hooray for me. I am now comfortably in a size 12, and I finally donated all the size 18 and 20's to Goodwill. Hope everyone is doing well. Stacey Colorado Springs, CO Virginia

[Guest guest]

Hi Tammy, I just got banded 3/14 and I wanted to let you know that there is no

fill at all

during surgery. Dr A wont do a fill untill at least 8wks post op, some people

don't even

need one then. There are different sized bands however, I know mine is a large,

apparently even my stomach lining is fat, that's how they detemine the band

size.

Laurel

> Hi everyone,

>

> I have not posted in a while, but I do read the messages daily. I had

my band placed

on October 27th, 2005. It was a little discouraging at the beginning. You want

the weight

to fall off, but accepting that it takes time is half the battle. I had my

first fill the first

week of December, 5cc in a 10cc band. I was 207 pounds at surgery, and had only

gotten

to 197 before the first fill. With the first fill I only lost 3 pounds. I

waited it out until after

Christmas and then went the first week of January and got 1cc added. I am now

down to

165 pounds and I am eating good. No pb'ing lately. I do think I am ready for

another fill,

just .5cc though. Although it may be costly to fill at such small increments,

your body

surely does adjust better and the swelling is less. So hooray for me. I am now

comfortably in a size 12, and I finally donated all the size 18 and 20's to

Goodwill. Hope

everyone is doing well.

>

>

> Stacey

> Colorado Springs, CO

>

>

>

>

>

[Guest guest]

Hi Laurel, First, Congratulations on being a bandster!!! Thank You for letting me know. Yea, I guess the first several weeks is basically for healing huh? I was laughing when I read you comment on your band size! I wonder if Dr. A has a 2X size for my stomach lining?? I hope your recovering well from surgery and wish you much success with the beginning of the rest of your life!! Thanks, Tammy I.laurel_m77 <lamaestas@...> wrote: Hi Tammy, I just got banded 3/14 and I wanted to let you know that there is no fill at all during surgery. Dr A wont do a fill untill at least 8wks post op, some people don't even need one then. There are different sized bands however, I know mine is a large, apparently even my stomach lining is fat, that's how they detemine the

band size. Laurel> Hi everyone,> > I have not posted in a while, but I do read the messages daily. I had my band placed on October

27th, 2005. It was a little discouraging at the beginning. You want the weight to fall off, but accepting that it takes time is half the battle. I had my first fill the first week of December, 5cc in a 10cc band. I was 207 pounds at surgery, and had only gotten to 197 before the first fill. With the first fill I only lost 3 pounds. I waited it out until after Christmas and then went the first week of January and got 1cc added. I am now down to 165 pounds and I am eating good. No pb'ing lately. I do think I am ready for another fill, just .5cc though. Although it may be costly to fill at such small increments, your body surely does adjust better and the swelling is less. So hooray for me. I am now comfortably in a size 12, and I finally donated all the size 18 and 20's to Goodwill. Hope everyone is doing well.> >

> Stacey > Colorado Springs, CO> > > > >