Guest guest Posted March 1, 2000 Report Share Posted March 1, 2000 To Jeanie! Good luck to you. I think there is a lot to learn about managing pain and depression in your message. Can you describe more exactly what the Therap.Massage Spec. do to help you with the pain? Many regards from Rose in Sweden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2000 Report Share Posted March 1, 2000 To Jeanie! Good luck to you. I think there is a lot to learn about managing pain and depression in your message. Can you describe more exactly what the Therap.Massage Spec. do to help you with the pain? Many regards from Rose in Sweden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2000 Report Share Posted March 1, 2000 HI AND HAVE A GOOD MONTH WHAT IS THE<<Therap.Massage Spec.>>? DIMITRIOS rose-marie.isakson@... wrote: > From: rose-marie.isakson@... > > To Jeanie! > > Good luck to you. I think there is a lot to learn about managing pain and > depression in your message. > Can you describe more exactly what the Therap.Massage Spec. do to help you > with the pain? > > Many regards from Rose in Sweden > > ------------------------------------------------------------------------ > MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2067/5/_/616793/_/951946759/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2000 Report Share Posted June 26, 2000 In a message dated 6/26/00 1:23:28 PM Pacific Daylight Time, shwalsh@... writes: << Sometimes I feel like a broken record explaining it over and over. >> I know exactly how you feel!!!! This seems to be our problem with my mother-in-law. She has the notion that we are not telling her the whole story. When she is around Vince, she is sooooo careful with his head. She acts as though his head was made out of eggshell. She just doesn't get it!!!! Belinda (Indiana) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2000 Report Share Posted June 26, 2000 Hi Amy - Thanks for sharing your story with us. I also live in NJ (central) - do you know which other hospitals in the state have cranial facial units? My son is 71/2 months and has an appointment with a neurosurgeon in July so we can confirm that his problem is plagiocephaly and not a prematurely fused suture. I'm just wondering what resources are available in the state. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Amy: You should be able to log in on your sister's computer (***"I think!!***). If not, make her a member, then unsubscribe her. Go to the files section at the community page. Up in the right hand corner you will see 2 buttons. If you have 1 picture, pick "create file", if you have more, pick " create folder", name it, then create files in your folder. It will give you a place to "browse" thru the hard drive to find the photos you want to upload. Hope this helps! Kendra TA-AJ wrote: Thanks for the welcome. I would love to share pix of (and Alyssa too). I am trying to get a scanner. BTW, how do you post pix in the files section? Could my sister do it from her computer/scanner even though she is not a member of our group? Thanks, Amy :-) ----- Original Message ----- From: <bgles2@...> <Plagiocephalyegroups> Sent: Monday, June 26, 2000 2:51 PM Subject: Re: Intro > Amy.....Welcome to the group! Sorry you have had to go thru so much with your > little ones. Hang in there. That is great about the pix. How neat. So, she > is like our poster child for plagio. You better post some pictures for us so > we can see her too. If you have any questions do not be afraid to ask. There > is bound to be someone that can answer it for you. Again, we are glad to have > you. > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/5/_/689409/_/962056299/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Thanks for the welcome. I would love to share pix of (and Alyssa too). I am trying to get a scanner. BTW, how do you post pix in the files section? Could my sister do it from her computer/scanner even though she is not a member of our group? Thanks, Amy :-) ----- Original Message ----- From: <bgles2@...> <Plagiocephalyegroups> Sent: Monday, June 26, 2000 2:51 PM Subject: Re: Intro > Amy.....Welcome to the group! Sorry you have had to go thru so much with your > little ones. Hang in there. That is great about the pix. How neat. So, she > is like our poster child for plagio. You better post some pictures for us so > we can see her too. If you have any questions do not be afraid to ask. There > is bound to be someone that can answer it for you. Again, we are glad to have > you. > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/5/_/689409/_/962056299/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Thanks Kendra, Hopefully we can try this soon! Amy :-) ----- Original Message ----- From: & Kendra Plagiocephalyegroups Sent: Monday, June 26, 2000 5:49 PM Subject: Re: Intro Amy: You should be able to log in on your sister's computer (***"I think!!***). If not, make her a member, then unsubscribe her. Go to the files section at the community page. Up in the right hand corner you will see 2 buttons. If you have 1 picture, pick "create file", if you have more, pick " create folder", name it, then create files in your folder. It will give you a place to "browse" thru the hard drive to find the photos you want to upload. Hope this helps! Kendra TA-AJ wrote: Thanks for the welcome. I would love to share pix of (and Alyssa too). I am trying to get a scanner. BTW, how do you post pix in the files section? Could my sister do it from her computer/scanner even though she is not a member of our group? Thanks, Amy :-) ----- Original Message ----- From: <bgles2@...> <Plagiocephalyegroups> Sent: Monday, June 26, 2000 2:51 PM Subject: Re: Intro > Amy.....Welcome to the group! Sorry you have had to go thru so much with your > little ones. Hang in there. That is great about the pix. How neat. So, she > is like our poster child for plagio. You better post some pictures for us so > we can see her too. If you have any questions do not be afraid to ask. There > is bound to be someone that can answer it for you. Again, we are glad to have > you. > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/5/_/689409/_/962056299/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Hi , I think the hospitals are Univesity Hospital in Newark and a hospital in Trenton. I will find out when I go to St. ph's on Wed for PT. St. Joe's is in Paterson and it has a wonderful children's hospital. Is this convenient for you? St Joe's is the largest cranio-facial unit in NJ. If you need any info. I'd be glad to help. You can even e-mail me off list. Amy :-) ----- Original Message ----- From: <chriseames@...> <Plagiocephalyegroups> Sent: Monday, June 26, 2000 6:02 PM Subject: Re: Intro > Hi Amy - > Thanks for sharing your story with us. I also live in NJ (central) - do you > know which other hospitals in the state have cranial facial units? My son is > 71/2 months and has an appointment with a neurosurgeon in July so we can > confirm that his problem is plagiocephaly and not a prematurely fused suture. > I'm just wondering what resources are available in the state. Thanks! > > > ------------------------------------------------------------------------ > Win $5000! Click Here: > 1/5943/5/_/689409/_/962067793/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Hi Amy, We live down near Freehold, so while we could do St. Joe's I was just curious what else might be closer. It sounds like St. Joe's is the best though - I remember someone else in the group being very pleased with her child's treatment there. Did it take you a while to get an appointment? Did you just call the hospital or did your ped need to refer you? I've heard that the neurosurgeon we are seeing next month rarely prescribes helmets, so I'm thinking it might help to set up an appointment for a 2nd opinion now in case we decide we need one - that way we might not lose another month (Jack is nearly 8 mos. now). And it's especially generous of you to help me, considering we're GIANTS fans!! Thanks! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Amy - Thanks for the info - I think I'll call and see when I can get an appointment. I would be curious to know about the other hospitals, just in case. I'm sorry your girls have been through so much - it must be so stressful for all of you. You seem to have such a positive attitude! I hope they can treat the pneumonia quickly and that your little Jets fan is back in action soon. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2000 Report Share Posted June 29, 2000 Hi Yes, I do think it is quite nice of me to help a Giants fan!!! (only kidding, of course I'd help!) I luckily got an appointment pretty quickly, but we are VERY connected to St. Joe's. Both Alyssa and have been there for various things, surgeries, apnea clinic, gastro exams, etc. I am there at least once per week with . I could write a book (we had FOUR appointments today alone - Alyssa my 3.5 year old is being treated for PNEUMONIA!). Age has something to do with it also. I think the older a baby is the more likely they are to get them in quicker for obvious reasons. Jack would probably get in quicker because he is older. was casted at 9 months. Yes, my ped referred me to the clinic (along with a referral from the PT who is treating 's torticollis). I definitely think you should set up an appointment with them. If you need ANY further help, please don't hesitate to contact me. Amy :-) GO JETS!!!!!!!!!!!!!!!!!! ----- Original Message ----- From: <chriseames@...> <Plagiocephalyegroups> Sent: Wednesday, June 28, 2000 10:11 AM Subject: Re: Intro > Hi Amy, > We live down near Freehold, so while we could do St. Joe's I was just curious > what else might be closer. It sounds like St. Joe's is the best though - I > remember someone else in the group being very pleased with her child's > treatment there. Did it take you a while to get an appointment? Did you > just call the hospital or did your ped need to refer you? I've heard that > the neurosurgeon we are seeing next month rarely prescribes helmets, so I'm > thinking it might help to set up an appointment for a 2nd opinion now in case > we decide we need one - that way we might not lose another month (Jack is > nearly 8 mos. now). > > And it's especially generous of you to help me, considering we're GIANTS > fans!! > > Thanks! > Chris > > ------------------------------------------------------------------------ > Air purifiers, bedding, household cleaning & more! gazoontite.com! > 1/5492/5/_/689409/_/962212299/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2000 Report Share Posted June 29, 2000 Thanks Chris. Please keep me informed. I would be glad to help you further. Amy :-) ----- Original Message ----- From: <chriseames@...> <Plagiocephalyegroups> Sent: Wednesday, June 28, 2000 6:07 PM Subject: Re: Intro > Amy - > Thanks for the info - I think I'll call and see when I can get an > appointment. I would be curious to know about the other hospitals, just in > case. I'm sorry your girls have been through so much - it must be so > stressful for all of you. You seem to have such a positive attitude! I hope > they can treat the pneumonia quickly and that your little Jets fan is back in > action soon. > Chris > > ------------------------------------------------------------------------ > Free, Unlimited Calls Anywhere! > Visit Firetalk.com - click below. > 1/5479/5/_/689409/_/962240869/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2000 Report Share Posted June 29, 2000 Blinda; That can be so frusturating. I was tired of sounding like a broken record too. I decided to write a very detailed letter along with a packet of info on the band, it's treatment and the cause of Plagio and the success stories. I mailed out copies of all of this to all of our friends and family so that when they see Skylar I don't have to go into my 30 minute spiel about his condition and all. It was very informative for everyone, and they all thanked me for updating them. .....it might help. Sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2000 Report Share Posted June 29, 2000 Amy: You're right! I wouldn't trade my blue eyed beauties for anything either, they are my life. You're in-laws sound funny! You sound frusturated with them. I think it can get very hard, especially when they don't understand. You're right about them not being able to tell about her head shape, that's funny. Thanks for the info about getting used to the band, we'll see how it goes, our appt. is Friday at noon. I'm getting anxious about the unknown. I'll let you know how it goes. Thanks again. Sherri & Skylar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 In a message dated 8/15/2000 7:00:39 PM Pacific Daylight Time, Duff412@... writes: << Hey everyone, My name is Amy. Cool to be able to talk about CMT. I had the tight heel cord surgery when I was 4. I am now 26. I experience pain and popping in my hips, cold feet, and legs and arms that fall asleep. My 6 year old also has the disease. He is having the tight heel cord surgery this thurs. 8-17-00. Any one out there that has had this operation or any other symptoms please write!!!!! AMY >> I had heel cord lengthening at 7. I am 32 now. I hear these days they have another procedure for lengthening. The one I had makes the feet weak. The other procedure I think is casting to pull the heel cords down. I had a Dr. at Children's want to perform the old surgery on my son. I said no now 3 years later his heel cords have stretched out. How tite are your sons heel cords? I know sometimes the surgery is necessary. I will be thinking of you and your son on Thursday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Christy, Welcome. Just for your info, there is an e-groups list called biliary dyskinesia. (Did I spell that right?) I was on it for a while when I thought that might be my problem. You can actually have it when you still have your gallbladder. My gastroenterologist wanted to rule that out before recommending surgery. He said I could have my gallbladder out, and still have the pain, because it might not be the problem in the first place. Unfortunately, many doctors don't look at this as a possibility first. You may well have been able to be treated for dyskinesia, and kept your gallbladder. Best of luck to you. Debra ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Hey christy, I have done the flushes while breastfeeding. Doesn't hurt a thing! laura ----- Original Message ----- From: " Christy " <marchn2@...> <gallstonesegroups> Sent: Thursday, December 07, 2000 2:21 PM Subject: intro > Hi, I am new to the list and joined in hopes of getting support/info > for where I'm at. I had my gallbladder removed about 5 years ago > (wish I knew better), and things got worse, not better afterwards. > My main problems are upper intestinal spasms and headaches. After no > help from doctors and researching myself, I have found that my > symptoms match those of postcholecystectomy bilary dyskinesia. I am > interested in the " cleanse stuff " I've read about, but am hesitant > since I am breastfeeding. Any advice or help would be appreciated. > Christy > > > > > Collected testimonials: > http:///messages/gallstones-testimonials > You are receiving this email because you elected to subscribe to the gallstonesegroups. To unsubscribe: Mailto:gallstones-unsubscribeegroups > To subscribe again: Mailto:gallstones-subscribeegroups > To change status to digest: Mailto:gallstones-digestegroups > To change status to normal: Mailto;gallstones-normalegroups > By joining the list you agree to hold yourself FULLY responsible FOR yourself! > List Archives: http:///messages/gallstones > Web Sites: http://home.online.no/~dusan/gallstones/ > Have a nice day ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 Welcome ! I am here because of you! and . Still don't have " the book " - had to buy cloth diapers. Next pay period I guess. Anyway, there are some people here that REALLY know their stuff & i'm learning tons. *choose the road less travelled* amanda cop wife & mimmy2angels jack 01/20/98 obhosp daphne 12/02/00 uc homeRebirth ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Hello Helge and welcome! I was in Norway in 1983 - it's a beautiful country! Glad you've joined the list and I hope that you find some suggestions and help for your digestive problems. There is also a bowel cleanse group that might be of interest to you as well - it's sort of a " sister group " to this one (to use a very sexist term!!). Thanks for the information you've shared. in health, helge.gundersen@... writes: > Hello, this is my first post here. I'm a male ( " Helge " is male, > " Helga " is female), 37, in Norway. I do not have gallstone attacks or > pain, but I have sme digestive problems, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 >My biggest confusion now is the proper role grains should play in our diet, Personally, I tend to think that the sicker someone is, the further away they should get from grains. Grains definitely weren't part of the diet we evolved to handle, so even though we can detoxify them by soaking and whatnot, I still tend to think they're less optimal than other foods we're better adapted to eat, and in the case of illness, the margin of what you can tolerate tends to shrink and even vanish. >what I should do about going to the dentist (I need to have 5 >fillings...I'll cost $70 for mercury or $3000 for the composite), Ouch! That's a huge price differential! Nonetheless, avoid mercury like the plague. There's practically no end to the list of problems it can cause, many of them extremely serious. In fact, consider whether you *really* need fillings at all. Are your teeth very painful and in immediate danger, or are the cavities small enough that you can safely tolerate them while switching to a very raw diet to re-mineralize your teeth, repairing the cavities naturally? Many, many, many people have reported tooth and bone re-mineralization on a highly raw diet. This is another reason to avoid grains entirely, at least until you've regained your health -- past a certain point, the more grains traditional cultures consumed, even when preparing them properly, the more cavities and other problems they had. Now, someone who's grown up eating right, born to parents who ate right, etc., can doubtless thrive on a certain amount of properly-prepared grains, but again, the sicker you are, the more you have to go back to a natural diet of raw meats and fats. (Certain vegetables are good raw, but others have anti-nutrients which require cooking to deactivate, so you'll always have to cook at least some of your food if you eat them.) Hope this helps -- good luck! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 > whether or not I should pay those high prices for Celtic sea salt, I keep a small amount of Celtic sea salt around, but for both convenience and cost, most of my daily use salt is RealSalt (that's the brand name). One reason I like it is that it specifically lists the iodine content (naturally occurring, it's not iodized) and it seems higher than most of the sea salt I've seen. It's 10% RDA per quarter teaspoon if I remember correctly. Oh and it's also much tastier than ordinary salt...not quite as tasty as the coarse celtic salt though. > what I should do about going to the dentist (I need to have 5 > fillings...I'll cost $70 for mercury or $3000 for the composite), I assume that you added one too many zeros on the price for the composite filling. If you did, and the price is only $300, definitely go with the composite...although you can probably find it cheaper with another dentist. If you didn't use one too many zeros, and they really tried to charge you $3,000 for a filling, get a different dentist immediately. Then check with your attorney general, dental board etc to see if you can get the crook's license to practice revoked. I just had a mercury filling removed because it had a hole in it, and I had it replaced with a composite filling. The entire visit cost less than $300. Seriously! Minneapolis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 On Fri, 22 Feb 2002 18:35:25 -0500 Idol <Idol@...> writes: >what I should do about going to the dentist (I need to have 5 >fillings...I'll cost $70 for mercury or $3000 for the composite), Ouch! That's a huge price differential! Nonetheless, avoid mercury like the plague. There's practically no end to the list of problems it can cause, many of them extremely serious. In fact, consider whether you *really* need fillings at all. Are your teeth very painful and in immediate danger, or are the cavities small enough that you can safely tolerate them while switching to a very raw diet to re-mineralize your teeth, repairing the cavities naturally? Many, many, many people have reported tooth and bone re-mineralization on a highly raw diet. Me: In my opinion, this is very good advice. I've seen this happen many many times. Also from my own personal experience two of my teeth sealed off without having a filling. I'm actually considering having a composite removed and allowing my body to seal and remineralize the area. But is right, it requires a mostly raw diet to pull it off. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 I also think that she added an extra zero as my composite fillings cost me about $100 each. Roman --- skroyer <skroyer@...> wrote: > > > > what I should do about going to the dentist (I > need to have 5 > > fillings...I'll cost $70 for mercury or $3000 for > the composite), > > I assume that you added one too many zeros on the > price for the > composite filling. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Roman- >I also think that she added an extra zero as my >composite fillings cost me about $100 each. That seems much more reasonable! I haven't been to a dentist in about 15 years, so I just figured prices had gone even further out of control than I'd thought. <g> - Quote Link to comment Share on other sites More sharing options...
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