Question

[Guest guest]

I don't agree. I know I have input once in awhile and I am one of the few

patients from my doctor on this board.

If this board were only announcements then I don't think i would subscript. I

like ALL the information this board has provided since I have joined.

Granted I do fall into the catergory you say of 8-9 months (I'm actually at

almost 6 months), but I'm not sure I've only seen testimonials. I have seen

some of the members who have been banded longer giving information too. When I

joined that was my impression was that I would receive support from people

closer to my area of the world.

Audrey

band 08/02/05

Dr. Oh

295/225/150

<awayfrmitall@...> wrote:

Is this still a board for mainly meetings etc?

Like most of us I lead a busy life taking care of work and family. I

always looked at the PNW board as being the one place I could come and

quickly find needed bandster related information.

Lately seems it seems this is becoming a marketing board with people

who have been banded 8 or 9 months giving their testimonials. I could

understand if it was just newbies.

It also appears to be a majority of patients from one practice and in

all fairness this board should be the one free zone from the " my doc

is better than your doc argument. "

There are plenty of other groups for all the chit chat etc. My vote is

for announcements only on this board.

[Guest guest]

Sometimes, but it depends on the person. People who mumble or have soft

voices are a problem. Usually I just hear regardless of what side they are on,

only they sound like they are on my implanted side.

Nan

In a message dated 2/7/2006 2:05:57 PM Mountain Standard Time,

lisak70@... writes:

For those of you who have no residual hearing in your nonimplanted ear, do

you have difficulty hearing people on your nonimplanted side? While being

guided by someone who was walking on my right (formerly HA side), I could

not understand anything they said. They voices sounded hollow and blurred --

similar to Charlie Brown's teacher. I couldn't understand what was said

unless I turned my CI ear in the direction of their voice. Is this

experience *generally* typical for those who have a CI and no residual

hearing in their nonimplanted ear?

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

[Guest guest]

Thinking more about this one... I see out of my left eye and hear on my

right. I always try to put people where I can see them on the left. The CI

works very well that way.

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

[Guest guest]

I am sure that will change when your new implant is turned on. You will

probably spend time having both CI remapped.

Nan

In a message dated 2/7/2006 4:00:22 PM Mountain Standard Time,

lisak70@... writes:

Nan,

Then I'm wondering if it might be due to my map. My CI was mapped to work

with my hearing aid, so perhaps I'm not getting enough sound to account for

both sides.

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

[Guest guest]

I am five months post activation with the Freedom, and

I do find it easier to hear on the CI side. It's not

so much like Charlie Brown's teacher, it's just not as

clear and of course everything sounds like it's on

that side of me, even if it's on the other side, or

across the room!

Deb

--- Kozlik <lisak70@...> wrote:

> For those of you who have no residual hearing in

> your nonimplanted ear, do

> you have difficulty hearing people on your

> nonimplanted side? While being

> guided by someone who was walking on my right

> (formerly HA side), I could

> not understand anything they said. They voices

> sounded hollow and blurred --

> similar to Charlie Brown's teacher. I couldn't

> understand what was said

> unless I turned my CI ear in the direction of their

> voice. Is this

> experience *generally* typical for those who have a

> CI and no residual

> hearing in their nonimplanted ear?

>

>

>

> Left ear - Nucleus 24 Contour Advance with 3G

> Implanted: 12/22/04 Activated: 1/18/05

>

> Right ear - Nucleus Freedom

> Implanted: 2/1/06 Activation date: 3/1/06

>

> Deafblind/Postlingual

> Severe-profound hearing loss since 1995

>

>

>

>

__________________________________________________

[Guest guest]

Yes, , this is my experience as well. If I am standing next to a running

lawnmower and turn my head away the sound of the motor is suddenly as if it were

a block away.

I have the CI on the left side and no residual hearing on the right side.

Pam (in Alaska)

[Guest guest]

Deb,

Thanks for your reply!

That's interesting because any sound I hear from my right side definitely

sounds blurred and distorted. Sounds I hear from my left (CI) side sound

much louder and clearer. I'm glad you shared your experience Deb because

this is a perfect example of how experiences can differ from one person to

another. <smile> I wonder if a new map could help balance out what I'm

hearing so that sounds are more balanced even if they are on my right side?

Since I'm only a few weeks away from activation, I may leave my map as it is

since I don't want to start from square one all over again. LOL!

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activation date: 3/1/06

Deafblind/Postlingual

Severe-profound hearing loss since 1995

[Guest guest]

Hi Pam,

I'm glad I'm not alone! I know experiences differ from person to person, but

it's nice to know you also hear sounds the same way I do. Interestingly

enough, I've also noticed how the sound of the TV or radio changes when the

TV/radio is on my left as opposed to the right. I had some residual hearing

in my nonimplanted ear (90+ dB at 250-700 Hz and no measurable hearing aided

or unaided at 1000 Hz and above) before my second CI surgery, so getting

used to having none at all has been an experience in itself!

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activation date: 3/1/06

Deafblind/Postlingual

Severe-profound hearing loss since 1995

[Guest guest]

I have no prooblem. Here I am in my room .. someone spoke on my deaf side.

Your current map might have been balanced for the hearing aid so needs

adjusting?

[Guest guest]

Hi Pam,

I should correct a statement I wrote in my last post. I should have written

" I'm glad you hear sounds similarly to the way I do. " I don't want to give

new CI candidates the mistaken impression that all CI users hear and

experience sound in the same way.

Thanks again for your reply!

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activation date: 3/1/06

Deafblind/Postlingual

Severe-profound hearing loss since 1995

[Guest guest]

, I have no hearing whatsoever in my left (non CI ear). I find little

difference between left side / right side reception - force of habit makes

me turn my CI toward sources of sound but I don't think it makes any

difference. I wonder if persisting with the HA has in some way inhibited

your take up of the CI. I recall initially I had little bass perception and

many things sounded very shrill, but one year on I have no difficulty with

the low notes (bass, drums, low voices) and higher notes come across pretty

much as I remember them from the HA days.

Anyway this is pretty much academic for you now, with bilateral Cis

NZ

> Question

>

>

> For those of you who have no residual hearing in your

> nonimplanted ear, do you have difficulty hearing people on

> your nonimplanted side? While being guided by someone who was

> walking on my right (formerly HA side), I could not

> understand anything they said. They voices sounded hollow and

> blurred --

> similar to Charlie Brown's teacher. I couldn't understand

> what was said unless I turned my CI ear in the direction of

> their voice. Is this experience *generally* typical for those

> who have a CI and no residual hearing in their nonimplanted ear?

>

>

>

> Left ear - Nucleus 24 Contour Advance with 3G

> Implanted: 12/22/04 Activated: 1/18/05

>

> Right ear - Nucleus Freedom

> Implanted: 2/1/06 Activation date: 3/1/06

>

> Deafblind/Postlingual

> Severe-profound hearing loss since 1995

[Guest guest]

This is interesting to me as well. I have never heard from my right ear so I

*always* walked with the person on my left side. I mean to the point that it

feels wrong and weird if a person is on my right side. I always make sure I sat

at the table with most of the others to my left, meaning I would sit at the far

right of the table. It became a habit. When the surgeon mentioned that it might

be best to implant my right ear, I immediately thought " oh gosh, I'll have to

get used to people walking on my right instead of my left. "

in SC, hopeful CI candidate

[Guest guest]

Hello ,

Yes I have that problem also. And I feel the same when I am being

guided by someone in the dark. I like to have people on my left side

so that I can still use my cane in my right hand and struggle with

hearing what they are saying. I find that if I put my processor on my

left ear (with a longer cord into the headpeice) that it is much

easier for me to understand what they are saying becuase that is

where the microphone is sitting.

I am very interested in going bilateral however I am not sure about

it yet (my current doctor does not want to go bilateral with me

however due to my vision loss I feel I would benefit greatly from

it). I would love talking more to you.

--- Kozlik <lisak70@...> wrote:

> For those of you who have no residual hearing in your nonimplanted

> ear, do

> you have difficulty hearing people on your nonimplanted side? While

> being

> guided by someone who was walking on my right (formerly HA side), I

> could

> not understand anything they said. They voices sounded hollow and

> blurred --

> similar to Charlie Brown's teacher. I couldn't understand what was

> said

> unless I turned my CI ear in the direction of their voice. Is this

> experience *generally* typical for those who have a CI and no

> residual

> hearing in their nonimplanted ear?

>

>

>

> Left ear - Nucleus 24 Contour Advance with 3G

> Implanted: 12/22/04 Activated: 1/18/05

>

> Right ear - Nucleus Freedom

> Implanted: 2/1/06 Activation date: 3/1/06

>

> Deafblind/Postlingual

> Severe-profound hearing loss since 1995

>

>

>

>

" God cannot be found in noise and restlessness. God is the friend of silence.

See how nature- trees, flowers, grass- grows in silence; see the stars the moon

and the sun, how they move in silence... We need silence to be able to touch

souls " ~ Mother

" The problem is not that the students do not hear... but the problem is the

hearing world that does not listen !! " ~ Rev.

__________________________________________________

[Guest guest]

,

That's what I'm wondering. The hearing provided me with low frequency

consonant sounds and now that I don't have the hearing aid anymore, I'm

beginning to notice how little I'm hearing low frequency sounds with my CI.

\

Although I will be bilateral within the next few weeks, being unable to hear

and understand speech on my right side does have implications for me as a

blind person.

To be honest, I'm finding it very difficult and frustrating to be without

the hearing in my other ear.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activation date: 3/1/06

Deafblind/Postlingual

Severe-profound hearing loss since 1995

[Guest guest]

,

Sheesh. I meant to say my HA provided me with low frequency vowel sounds,

but you probably already knew that.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activation date: 3/1/06

Deafblind/Postlingual

Severe-profound hearing loss since 1995

[Guest guest]

Yeah I suppose I did.

In my early post-activation days, I told the audi that I found some maps

gave sounds that were " unpleasant " compared to what I had been used to with

the analog HA, and could she reduce or otherwise alter the map. Her response

was that my brain had to adjust to the CI and not the other way round, and

that making sounds " nice " then would only extend the time it took for me to

learn to hear again. Seemed a bit harsh at the time but I appreciate now

what she was doing. I'm finding that the gains (or CI moments) I experience

now do not involve hearing very quiet sounds in an otherwise quiet

environment, as much as being able to pick out normal sounds in a noisy

environment - such as the printer noise at your post-op appointment (and

yes, dot matrix printers make a very intense noise)

Also a question for you - does me leaving your original post after my post

make it confusing for your screen reader?

> Re: Question

>

>

> ,

>

> Sheesh. I meant to say my HA provided me with low frequency

> vowel sounds, but you probably already knew that.

[Guest guest]

Nan,

Then I'm wondering if it might be due to my map. My CI was mapped to work

with my hearing aid, so perhaps I'm not getting enough sound to account for

both sides.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activation date: 3/1/06

Deafblind/Postlingual

Severe-profound hearing loss since 1995

[Guest guest]

,

That was my thought as well. I e-mailed my audi again to find out if she

also agrees. If it is indeed my map, I may try to stick with what I have

because I don't want to make things worse. Besides, as Nan pointed out,

further adjustments will be necessary for both CIs as time goes on.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activation date: 3/1/06

Deafblind/Postlingual

Severe-profound hearing loss since 1995

[Guest guest]

Mellisa,

Go to www.dadamo.com. They have it simplified now. Click on Typebase4 Food

vallues. It will give a list of foods and when you click on each on, it will

give you the lastest recorded values. There is a recipe section also, but I'd

check the ingredients out on each recipe, as many of the food values have

changed since Dr. D has been able to update his research equipment, as changes

and improvements are made in available equipment.

Question

I purchased a little book last night w/ basic info and guidelines. They

didn't have the " Eat Right 4 Your Type " book, so I couldn't get that,

but I didn't want to have no info, you know? So, some of the things in

this guide book surprised me, some of it dismayed me, and some

highlighted more questions. For example - cooking methods - Beef is

beneficial - are there the same guidelines for cooking methods? What

about packaging? Should I avoid all canned products and stick to all

natural, fresh, organic, etc? I'm assuming that foods that are in their

purest form are better. Adding only other beneficial or neutral products

for taste, variety, etc.

Red wine is neutral - what about red wine vinegar?

How important is the secretor/non-secretor thing? What's the best way

around that if you don't know your status?

I can't wait to get started. Considering how much of my intake is on my

avoid lists, it's going to be a process to change over. I'm also hoping

to find out the blood types for my DH, DD, and DS very soon. Especially

since DS is just starting solids.

--

F. in Atlanta, GA

330/262/145

" Uneducated people do what they are told... Educated people question

what they are told. "

[Guest guest]

Murray wrote:

> Mellisa,

> Go to www.dadamo.com.

I've visited several times. It's a great site. I'm wondering how

important the secretor/non-secretor thing is? Should I err on the side

of caution and avoid those foods that show a difference between S and NS

until such time as I can afford to get the testing done?

[Guest guest]

You can, or you can try the Secretor ones (foods listed only Avoid, Nuetral, or

Beneficial) in Typebase 4. If you feel no major change after say 2 to 4 weeks of

fully being on the diet, try the Non-secretor list of foods. I'd take the list

you have and compare it to Typebase 4 since it is set up for general use.

Re: Question

Murray wrote:

> Mellisa,

> Go to www.dadamo.com.

I've visited several times. It's a great site. I'm wondering how

important the secretor/non-secretor thing is? Should I err on the side

of caution and avoid those foods that show a difference between S and NS

until such time as I can afford to get the testing done?

[Guest guest]

In a message dated 3/8/2006 5:47:21 PM Eastern Standard Time,

CarbJunky@... writes:

Should I avoid all canned products and stick to all

natural, fresh, organic, etc? I'm assuming that foods that are in their

purest form are better.

If you can. Try to eat foods that have been processed the least.

[Guest guest]

In a message dated 3/8/2006 5:47:21 PM Eastern Standard Time,

CarbJunky@... writes:

How important is the secretor/non-secretor thing? What's the best way

around that if you don't know your status?

It was important to me. A way that may help if you don't want to take the

test is to eat only non-secreter food for two weeks and then introduce secreter

foods one at a time. See what they do to you. I suspected I was a

non-secreter because I got sick eating some grain neutrals. Once I adjusted to

the

non-secreter diet I was fine.

Max in Savannah

[Guest guest]

>

> Should I avoid all canned products and stick to all

> natural, fresh, organic, etc?

Dr. D stresses natural, fresh, organic, yes. Canned products are

okay. Foods frozen by flash freezing are also not good.

> Red wine is neutral - what about red wine vinegar?

Vinegars, in general, are avoids for type O. The exception is cider

vinegar, which is neutral for type O secretors.

> How important is the secretor/non-secretor thing? What's the best

way

> around that if you don't know your status?

It does change some food values. 80 percent of people are secretors,

so the guideline is to follow secretor values unless you test

otherwise. You might want to keep an eye on the differences in the

foodlist to see whether it makes sense for you.

Judy in Connecticut

[Guest guest]

auntjudyg wrote:

> Dr. D stresses natural, fresh, organic, yes. Canned products are okay.

> Foods frozen by flash freezing are also not good.

No frozen, huh? That sucks. LOL. Guess that brings up another question -

if I buy a ton of fresh and can it myself, would that be ok?

F.