Question

[Guest guest]

>

> Last night I wakened with a stomach ache, no more than 4-5 level of pain, but

enough

to

> keep me awake. I realized that I did not know whether it is all right to take

Tylenol for

pain

> that might be caused by a lymph node pressing on something or even by mucosal

> problems in my intestinal tract. I finally got up and walked around and looked

for

answers

> on our CLL site, found none, but the walking around seemed to help; the pain

vanished.

> Anyway for next time, what analgesics are CLL people allowed to take? Carolyn

R. Swift

I found the answer to my own question yesterday at Dana Farber, when they gave

me two

Tylenol before giving me intravenous imunoglobulin. Evidently we are allowed to

take

Tylenol. Thus far, one day, the imunoglobulin has done nothing to cure my

cough, and I

feel worse, although the treatment itself was easy to handle. Carolyn R. Swift

[Guest guest]

Heh Carolyn and other readers - Speaking specifically in reference to

CLL, I know that I was also given tylenol when I got my rituxin

treatments, so tylenol is obviously ok.

In general, I've come to the conclusion that, at least for me, tylenol,

when used as prescribed, is the only " safe " pain reliever. I am

currently waiting for blood test results and ultrasound results to

determine why protein is showing up in my urine. The nephrologist said

it could be from the CLL, but was more convinced that minimal damage has

been done to my kidneys from using ibuprophen on a regular basis for

many years. I've also developed Barrett's esophagus, a precancerous

condition of the esophagus, from ibuprophen use. Something for all of

us to think about.

Just wanted to share this with all of you. Of course, each one of us is

different, but it remains that we need cautious about the drugs we take

on a regular basis and the effects they may have on our organs.- at

least as much as we possibly can given our situation.

Hope all have a great day (with no aches and pains).

Bonnie

Re: Question

>

> Last night I wakened with a stomach ache, no more than 4-5 level of

pain, but enough

to

> keep me awake. I realized that I did not know whether it is all right

to take Tylenol for

pain

> that might be caused by a lymph node pressing on something or even by

mucosal

> problems in my intestinal tract. I finally got up and walked around

and looked for

answers

> on our CLL site, found none, but the walking around seemed to help;

the pain vanished.

> Anyway for next time, what analgesics are CLL people allowed to take?

Carolyn R. Swift

I found the answer to my own question yesterday at Dana Farber, when

they gave me two

Tylenol before giving me intravenous imunoglobulin. Evidently we are

allowed to take

Tylenol. Thus far, one day, the imunoglobulin has done nothing to cure

my cough, and I

feel worse, although the treatment itself was easy to handle. Carolyn R.

Swift

[Guest guest]

Good Morning all...

I have watched the threads here for a while now. but was driven to

answer or make comment about tylenol....

My Hemo/Onc told me to take anything over the counter but make sure it

does not have ibpro in it.. that people with cll need to stay away from

that.

I just had a bone marrow biopsy done Monday because my levels are not

holding up for the past 3 months I get platelets and red blood cell

transfusions..

They use to hold for a little over a week now they are not holding 5

days.. so going to see if the chemo burned all my bone marrow, or if my

body is just that full of CLL.

Yesterday, I had a nose bleed that would not stop.. but I received my

platelets and this morning I am doing fine, no nose bleed.. they did

tell me to use Ocean Spray every 30 min and put a ice pack on my head

or neck area...

Tomorrow Thursday I get my results of my BMB. Hoping it says I just

need to give it time to heal.... wish me luck....

Thank you for giving me chance to put my two cents worth in lol...

Good Luck Bonnie and everyone here as well... I wish everyone the very

best...

Patty

--- BonnieGoodhart <goody.dogs@...> wrote:

LOVE RULES AND WINS THE WORLD OVER..

__________________________________

Celebrate 's 10th Birthday!

Netrospective: 100 Moments of the Web

http://birthday./netrospective/

[Guest guest]

I belive that is it exactly!

Mike in WImc wagner__________________________________________________

[Guest guest]

Tamara

I think that's right. I had a partial fundoplycation and was told that

it was a procedure that would help the acid from coming back up into

my E. I think, but need to get it cleared up, that a " wrap " and a

fundoplycation are the same thing.

>

> I had the heller myotomy but what is this dor funduplication thing

> is it the stomach rap they do to keep the acid from rising?

[Guest guest]

Thanks for the reply guys that's what I thought just wasn't sure

even after all these years the the medical terms throw me of

sometimes then that is what they did to me when I had my heller

myotomy I think for me the surgion wrapped it to tight guess I

should have told him I wasn't a x-mas present nobody was going to

try to open me LOL:) thanks again

>

> Tamara

> I think that's right. I had a partial fundoplycation and was told

that

> it was a procedure that would help the acid from coming back up

into

> my E. I think, but need to get it cleared up, that a " wrap " and a

> fundoplycation are the same thing.

>

>

>

>

>

> >

> > I had the heller myotomy but what is this dor funduplication

thing

> > is it the stomach rap they do to keep the acid from rising?

[Guest guest]

Hi Tamara,

There are several different kinds of fundoplications. A Touplet (Spelling?),

Nissan and a Dor. A Touplet is a full wrap and the Nissan is ( I think) an

anterior ( half way round the front of the LES) wrap and a Dor is a

posterior wrap (also halfway round the back of the LES.). They take some of

the stomach wall and wrap it round the LES to form a valve to prevent acid

from entering the oesophagus. A Dor ( half wrap) is the most common as it

seems to give the least problems. Problems occur if they do the wrap too

tight or if scar tissue makes it contract and squeeze the opening shut. When

I have a moment I will go and look up the different kinds to make sure I

have it right - right now I am a bit spaced out and exhausted.

Joan

question

>

>

> I had the heller myotomy but what is this dor funduplication thing

> is it the stomach rap they do to keep the acid from rising?

>

>

>

>

>

>

>

>

[Guest guest]

Thanks joan you don't need to look them up I get the picture that's

what I thought it was but wasn't positive about it Thanks so much

fr your help Tamara > Hi Tamara,

> There are several different kinds of fundoplications. A Touplet

(Spelling?),

> Nissan and a Dor. A Touplet is a full wrap and the Nissan is ( I

think) an

> anterior ( half way round the front of the LES) wrap and a Dor is

a

> posterior wrap (also halfway round the back of the LES.). They

take some of

> the stomach wall and wrap it round the LES to form a valve to

prevent acid

> from entering the oesophagus. A Dor ( half wrap) is the most

common as it

> seems to give the least problems. Problems occur if they do the

wrap too

> tight or if scar tissue makes it contract and squeeze the opening

shut. When

> I have a moment I will go and look up the different kinds to make

sure I

> have it right - right now I am a bit spaced out and exhausted.

> Joan

> question

>

>

> >

> >

> > I had the heller myotomy but what is this dor funduplication

thing

> > is it the stomach rap they do to keep the acid from rising?

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I believe that Nissen is a full wrap, Toupet is a three-quarters wrap,

and Dor is a half wrap. To remember them, think of a toupe, which is a

partial covering :-), and Dor as in dorsal as a posterior-only wrap

(though Dor is someone's name and doesn't come from dorsal).

Jeff

>

> Thanks joan you don't need to look them up I get the picture that's

> what I thought it was but wasn't positive about it Thanks so much

> fr your help Tamara > Hi Tamara,

> > There are several different kinds of fundoplications. A Touplet

> (Spelling?),

> > Nissan and a Dor. A Touplet is a full wrap and the Nissan is ( I

> think) an

> > anterior ( half way round the front of the LES) wrap and a Dor is

> a

> > posterior wrap (also halfway round the back of the LES.). They

> take some of

> > the stomach wall and wrap it round the LES to form a valve to

> prevent acid

> > from entering the oesophagus. A Dor ( half wrap) is the most

> common as it

> > seems to give the least problems. Problems occur if they do the

> wrap too

> > tight or if scar tissue makes it contract and squeeze the opening

> shut. When

> > I have a moment I will go and look up the different kinds to make

> sure I

> > have it right - right now I am a bit spaced out and exhausted.

> > Joan

> > question

> >

> >

> > >

> > >

> > > I had the heller myotomy but what is this dor funduplication

> thing

> > > is it the stomach rap they do to keep the acid from rising?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Cilantro = Coriander.

From: Smolenski

Sent: Saturday, March 26, 2005 10:07 PM

Subject: Question

Dear all I would like to like to know what is Cilanto as you know I live in

Australia and do not know what it is maybe there is another name for it?Also

Adzuki beans . Thanks

Love LIght and Healing

---------------------------------

Find local movie times and trailers on Movies.

[Guest guest]

Cilantro is like parsley. Coriander, a spice, is the seed of cilantro.

Aduki beans are like mung beans but a burnt red color. They can be sprouted and

eaten or cooked to eat. You may only find them in health food stores or

oriental markets.

Smolenski <benjie2001au@...> wrote:

Dear all I would like to like to know what is Cilanto as you know I live in

Australia and do not know what it is maybe there is another name for it?Also

Adzuki beans . Thanks

Love LIght and Healing

---------------------------------

Find local movie times and trailers on Movies.

[Guest guest]

Hi ,

I would definitely get them further checked out...

While the tsh's are in the normal range and a lot of doc's would say they are just fine...but a good doc will notice the disparites in the ft4 ft3 tests...my own doc doesn't pay much attention to the tsh, luckily and I am finally on the road to wellness...

I have read many times over the years about moods, depression, bipoalr, adhad and a lot of other supposedly mental or emotional problems, a lot of times are nothing more than un-treated or under-medicated thyroid disease...

Did they test for antibodies for Hashi's or Graves disease? They should...these are both autoimmune thyroid diseases and should be checked out because if this is the case, and they tell you that the kids are normal without checking, they will continue to get worse, most likely...I am including a link for doctors who have been reccommended by thyroid patients...too many doctors have their heads up their butts when it comes to all of this...on your son the ft3 is too high and the daughter's ft4 is way too low...insist on further testing... do your homework and find the name of a good doc in your area and ask for the referral to them...

http://thyroid.about.com/cs/doctors/a/topdocs.htm you can check for reccommended doctors in your area...this is also a great site to research thyroid and related items...

Published Research on T3/T4 as a Treatment for Mood Problems(Updated Jan 2004; slight revisions July 2004)http://www.psycheducation.org/thyroid/studies.htm

Best wishes, Hugs, Bee

As you slide down the banister of life, may the splinters never point in the wrong direction! ~Irish Blessing -:¦:- ThyroidFitness/ ¸.·´ .·´¨¨)) FW_Thyroid_Support/((¸¸.·´ ..·´ Charisse -:¦:- http://groups.msn.com/ThyroidHealthFitness/-:¦:- ((¸¸.·´* thyroidsupportgroups/

<brandy118@...> wrote:

Hi everyone,

I have Hashi's and just had labs drawn on my 14 year old son and 12 year old daughter. My mom is a lab tech, so she can do routine checks on family members.

I'm not sure what to make of the results, there is obviously a problem with both of them.... Any input would be much appreciated... I will have to convince their pediatrition to refer them to an endo (insurance purposes).

Results for my son (Chris)

TSH 0.875 ( 0.465 - 4.68 )

FT4 0.85 ( 0.78 - 2.19 )

FT3 5.82 ( 2.77 - 5.27 ) Flagged HI

TT4 4.41 ( 5.53 - 11.0 ) Flagged LO

T3U 34.4 ( 23.5 - 40.6 )

FT4I 1.52 ( 1.65 - 4.07 ) Flagged LO

He has been complaining of dizzy spells and seems fatigued, sluggish and sleeps often. He is very thin, underweight actually.

Results for my daughter (Brittany)

TSH 1.32 ( 0.465 - 4.68 )

FT4 0.67 ( 0.78 - 2.19 ) Flagged LO

FT3 4.14 ( 2.77 - 5.27 )

TT4 5.30 ( 5.53 - 11.0 ) Flagged LO

T3U 26.6 ( 23.5 - 40.6 )

FT4I 1.41 ( 1.65 - 4.07 ) Flagged LO

She sometimes appears sluggish. She is very athletic, which keeps her from getting too heavy, but as soon as she slacks off of the physical activity she gains noticable weight instantly. She also has behavioral problems. She was diagnosed with ODD and has an evaluation scheduled for Bipolar Disorder. My mom (who has Graves) thought some of my daughters mood swings may be due to her thyroid being out of whack. That's what originally prompted us to go ahead and run tests on both of them.

Ft Wayne Thyroid Support~ FW_Thyroid_Support/ ThyroidFitness~IN ThyroidFitness/

BeeFuddled's Journey http://www.xanga.com/beefuddled__________________________________________________

[Guest guest]

Hi Bee,

Thanks so much for your advice!

We did not test for antibodies, the lab where my mom works doesn't have the capability to do so in-house. That will definitately be the first thing I request when I take them to see a doc! Thank you for the link, that will help me out a lot! Is there anything thing else I should ask the doc for?

The doc I was seeing locally wasn't very impressive, I wasn't looking forward to sending my children to see her! I had asked her to check my adrenals, because I have been having a lot of related symptoms, she told me that the adrenals either work or they don't and since I'm not underweight with constant diareha there couldn't be a problem. She then told me that the thyroid was an "easy fix", she would adjust my dosage and give me a prescription for Wellbutrin to "take the edge off of life". Thanks for nothing doc! ....and I owe you how much?

As for my daughter with the mental/emotional disorders... I would feel much more relaxed treating the problem by route of thyroid meds etc. v/s shoving a mood stabilizer like lithium down her throat!

Thanks again! I will begin my new doc search Mon morning

Re: question

Hi ,

I would definitely get them further checked out...

While the tsh's are in the normal range and a lot of doc's would say they are just fine...but a good doc will notice the disparites in the ft4 ft3 tests...my own doc doesn't pay much attention to the tsh, luckily and I am finally on the road to wellness...

I have read many times over the years about moods, depression, bipoalr, adhad and a lot of other supposedly mental or emotional problems, a lot of times are nothing more than un-treated or under-medicated thyroid disease...

Did they test for antibodies for Hashi's or Graves disease? They should...these are both autoimmune thyroid diseases and should be checked out because if this is the case, and they tell you that the kids are normal without checking, they will continue to get worse, most likely...I am including a link for doctors who have been reccommended by thyroid patients...too many doctors have their heads up their butts when it comes to all of this...on your son the ft3 is too high and the daughter's ft4 is way too low...insist on further testing... do your homework and find the name of a good doc in your area and ask for the referral to them...

http://thyroid.about.com/cs/doctors/a/topdocs.htm you can check for reccommended doctors in your area...this is also a great site to research thyroid and related items...

Published Research on T3/T4 as a Treatment for Mood Problems(Updated Jan 2004; slight revisions July 2004)http://www.psycheducation.org/thyroid/studies.htm

Best wishes, Hugs, Bee

As you slide down the banister of life, may the splinters never point in the wrong direction! ~Irish Blessing -:¦:- ThyroidFitness/ ¸.·´ .·´¨¨)) FW_Thyroid_Support/((¸¸.·´ ..·´ Charisse -:¦:- http://groups.msn.com/ThyroidHealthFitness/-:¦:- ((¸¸.·´* thyroidsupportgroups/

[Guest guest]

> that comes from it. It has gotten so bad that she can actually see

her port

> through the hole in her stomach.

!!!!! This, is a very serious thing indeed. It is (obviously) not

related DIRECTLY to the band (but rather, indirectly to the surgery).

Can she get another (not her band doctor) surgeon and/or doctor to

look at it? The only other thing I can think of is some reaction to

the port material, but that shouldn't happen because of the material

used in it. Have you researched on other, non-band surgical sites for

info about incisions that won't heal?

--

[Guest guest]

>Hi Maggie! Long time haven't heard from you. I hope your friend is

ok and this is taken care of. Not sure I would be waiting that long

to go see a doctor though! How have you been???? How is the weight

loss going?

Hey...I have a friend that is having problems with her surgery.

Nina, can

> you check with Dr Aceves about this and tell me what he thinks? It

started out

> that her port flipped and the doctor fixed it and stitched it back

in place

> and stitched her back up but since that time, the wound from her

having to be

> cut back open will not heal. It constantly is releasing fluid and

she basically

> has a hole in her stomach. She has been on an antibiotic for a

couple months

> and it doesn't help. She has to constantly change the gauze from

the fluid

> that comes from it. It has gotten so bad that she can actually see

her port

> through the hole in her stomach. She is heading back to the doctor

for the 5th

> time but I thought I would just post here and see if Dr Aceves or

anyone else

> in this group has heard or seen anything like this. I have

searched the

> internet and groups and haven't seen or read about anyone with this

particular

> issue.

> What do you think?

>

> Maggie

[Guest guest]

Patty,

You remove the stitches at home. We give you instructions on how to do

this, it is not hard at all.

Nina

> After lap band surgery .....are the stitches ones that disolve by

> themselves, or do we take them out? I have my surgery on mAy 18 with

> Dr. Aceves and my husband was asking this question.. Thank you. patty

[Guest guest]

Hi Patty,

You get the lovely task of taking them out. It isn't as bad as I thought it would be. They came out pretty easy and only pinched a little.

Question

After lap band surgery .....are the stitches ones that disolve by themselves, or do we take them out? I have my surgery on mAy 18 with Dr. Aceves and my husband was asking this question.. Thank you. patty

[Guest guest]

Thank you for answering my question. I really appreciate it. patty Mills <tmills@...> wrote:

Hi Patty,

You get the lovely task of taking them out. It isn't as bad as I thought it would be. They came out pretty easy and only pinched a little.

Question

After lap band surgery .....are the stitches ones that disolve by themselves, or do we take them out? I have my surgery on mAy 18 with Dr. Aceves and my husband was asking this question.. Thank you. patty__________________________________________________

[Guest guest]

---

If yours are done as mine were, the way Dr. A does it, it is one

stitch that goes long ways under the skin.. its not zig zag like

doctors do here. Really its kind cool... all you do is clean the

area, take pair twisters and pull and one end and it comes right

out Very simple and painless!

In , " Mills " <tmills@c...>

wrote:

> Hi Patty,

> You get the lovely task of taking them out. It isn't as bad as I

thought it would be. They came out pretty easy and only pinched a

little.

>

>

> Question

>

>

> After lap band surgery .....are the stitches ones that disolve

by

> themselves, or do we take them out? I have my surgery on mAy 18

with

> Dr. Aceves and my husband was asking this question.. Thank you.

patty

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

There are several places within the program to help with stress analysis here. 1. Activate Frequency Modulation Program will take you to the Brain wave pattern therapy.

2. Timed Therapies, Music & Superlearning will take you to Quick Check of Phase which will try and balance the right and left hemispheres.

3. Timed Therapies, Music & Superlearning to Timed Treatments//Enable//Start Auto Neurological Repair

4. Timed Therapies, Music & Superlearning to top ruler bar to PHASERx//C-Scan Access although this is another entry to the cancer scan it also brings up a button "Scan Brain Foci"

5. Spinal//Timed Therapies//You will find all the main areas of the brain here.

6. Test Matrix//Programs drop down//Short Sarcode Rx//Facial & Eye & Gums Diagnosis tab//Brain (2 spots there) also under Ear & etc there are 6 buttons for "extra" the top 2 of them are for brain.

7. Test matrix, search box

8. Biofeedback//Organ System//Brain

Well this gives you the places to start, if you need help with what to do with any of them, let me know off line at kathyqx@...

Yours in Health,

Kathy

question

To the Group:

How do you balance limbic function?

Thanks.

Jeanie Pasquale

.............................................

[Guest guest]

Kristy,

Your post isn't very specific. How long have you had your band?

Have you had a fill? How much? Do you have proper restriction? What

exactly are you eating and how much of it are you eating? Have you

tried tracking your daily food/alcohol intake on Fitday.com? (its

free) What type of exercise are you doing? how much? How often?

Have you talked to your Dr? Are you seeing a therapist?

If you can answer those questions and any other information you can

think of that I didn't, there are a lot of us on this board that

could give you suggestions.

Alice Maring

Dr Watkins

1/13/05

250/201/195 mini goal

> I WAS WONDERING IF ANYONE HAS HAD THE SAME EXPERIENCE WITH THE

LAPBAND

> AS ME. I HAVE HAS 2 LAPBANDS AND NEITHER ONE OF THEM HAVE WORKED.

I

> HAVE GAINED ALL OF MY WEIGHT BACK AND CAN NOT LOOSE NONE. I

> EXERCISE,EAT VERY LITTLE. NOTHING HAS HELPED ME. IF ANYONE HAS ANY

> SUGGESTIONS PLEASE WRITE BACK.

[Guest guest]

Ditto! There is lots more we need to know before we can iffer

suggestions. Are you active in a support group? This is also

something very important. Please tell us more! Sandy R

>

>

> Kristy,

> Your post isn't very specific. How long have you had your band?

> Have you had a fill? How much? Do you have proper restriction?

What

> exactly are you eating and how much of it are you eating? Have you

> tried tracking your daily food/alcohol intake on Fitday.com? (its

> free) What type of exercise are you doing? how much? How often?

> Have you talked to your Dr? Are you seeing a therapist?

>

> If you can answer those questions and any other information you can

> think of that I didn't, there are a lot of us on this board that

> could give you suggestions.

> Alice Maring

> Dr Watkins

> 1/13/05

> 250/201/195 mini goal

>

> > I WAS WONDERING IF ANYONE HAS HAD THE SAME EXPERIENCE WITH THE

> LAPBAND

> > AS ME. I HAVE HAS 2 LAPBANDS AND NEITHER ONE OF THEM HAVE WORKED.

> I

> > HAVE GAINED ALL OF MY WEIGHT BACK AND CAN NOT LOOSE NONE. I

> > EXERCISE,EAT VERY LITTLE. NOTHING HAS HELPED ME. IF ANYONE HAS

ANY

> > SUGGESTIONS PLEASE WRITE BACK.

[Guest guest]

Hello group-this has happened to me a number of times. When I go to therapy page to do

therapies there will be listed-Autotrivector therapy and trivector and DNA

therapy as the 2 choices. There is only one trivector button -or is trivector

and DNA therapy located somewhere else? If so where? Thanks for the info. O’Lone

[Guest guest]

dna is accessed via trivector

the same thereapy mentioned twice as for anything mentioned twice is intended to give it extra weight

Kelsey PhDQXCI User Manual Author, Advanced TrainerVisit www.qxcisynergy.co.uk for tech infos

RE: question

Hello group-this has happened to me a number of times. When I go to therapy page to do therapies there will be listed-Autotrivector therapy and trivector and DNA therapy as the 2 choices. There is only one trivector button -or is trivector and DNA therapy located somewhere else? If so where? Thanks for the info. O’Lone............................................

[Guest guest]

There is only one button but remember that the more repetitive the more important. The normal will come up saying Trivector DNA but it will also come up as you listed, the third way it can come up is Hololinguistics which means to piggyback the Hololinguistics section to the Trivector DNA work you should do.

Yours in Health,

Kathy

RE: question

Hello group-this has happened to me a number of times. When I go to therapy page to do therapies there will be listed-Autotrivector therapy and trivector and DNA therapy as the 2 choices. There is only one trivector button -or is trivector and DNA therapy located somewhere else? If so where? Thanks for the info. O’Lone............................................