hello

[Guest guest]

Hello tjdtj4,

I have been getting Remicade infusions for about a year, and I am still

extremely

happy with the results. Will you please keep me, or us, updated on the results

for

yourself? I would really appreciate it. Thanks! Harv

Hello

1. Which disease have you been diagnosed with? My son has been diagnosed with

Juvenile Spondylarthropathy.

2. How long have you had this disease or did it take you to get a

diagnosis? Recently diagnosed - August 2010

3. Your age (not required!)? Son's age - 17 but may have had symptoms since 16

4. Region you are living? (You may have a Spondy friend right next door)

Northeast

5. What has been your experience living with the disease? Whirlwind - Since

August 4 medications, now headed to Remicade treatments

6. Your current line of medications and what medication you found most

useful. Currently - Sulfasalazine, Methotrexate inj., Motrin, Prednisone

7. Family history? Have you been tested for HLA-B27? My husband has complained

of back pain since his early 20's. Recently, tested positive for HLA-B27 after

son's diagnosis.

8. Your experience with physicians? Pediatrician was skeptical about arthritis

diagnosis with neg. RA factor - followed up with rheumatologist and found HLA to

be positive

9. What may have triggered your disease (If known)? Strep infection compounded

by foot injury.

[Guest guest]

Thats great news, Jillian. Congratulations.

Ted F.

>

> Hi all, My name is Jillian. I am from Oklahoma. I just got my second cochlear

implant turned on in my left ear on January 17,2011. It has been wonderful ever

since i got it. I have N5 in both ears. On my right ear, I had my implant for

ten years. I had freedom processor but then i got upgrade to N5 as well. I have

been noticing some difference from having one cochlear implant to two implant. I

used to be against having two implant because i thought i was doing so well with

just one then i decided to give it a try. Ever since I got it turned on I been

listening to a lot of music and it like i am a teenager again. I didnt listen to

music growing up because i didnt like not understanding what they were saying. I

am glad I had the surgery. I was afraid i would not like it.

>

[Guest guest]

Hello n,

If you read the New Member doc. that was sent to you when you joined.(or go to FILES , then New Member doc. ,Commonly asked Questions, # 13, page 4,) you will see that the answer is yes. Read what is posted there and that will give you more info on that subject. It's important to read the whole document as a lot of time has been put into it to help new members learn about iodine and it's benefits. Kathleen

Hello

I wanted to know if you can take iodine if you have hashimotos's? Right now I am hyperthyroid. I really don't have that much iodine. I live in Wyoming which is a goiter belt. I stopped taking any vitamins that have iodine because my endo told me to because of the hashi's.

[Guest guest]

(Trish asked me to pass this along to the group re: the upcoming

Cochlear N5 upgrade.)

> Hi Trish, I posed that question to my Cochlear awareness manager

> recently. Her nmse is Parri Tantillo.

> This is her response.

>

> Hi Phil,

>

> Your best bet is to wait until after April 1st since the N5 isn't

> available

> for N24 recipients yet. You will receive an information pack in the mail

> with everything you'll need to contact your insurance company. There is

> one item you may need from your audiologist, a letter of medical necessity

> but that can't be written/submitted until after April 1. If your insurance

> is covering the cost of your upgrade you won't trade in your old BWP or

> 3G.

[Guest guest]

Wow, that must have been difficult to have that many surgeries as a young

person. What do you mean by bionic ear? Do you wear a hearing aid or something

else?

Gerry

>

> i was diagnosed with cholesteatoma when i was six which was 12 years ago. i

have had seven surgery's,and have a total bionic ear, at least thats what my

friends call it. I was born with it, and found out in first grade. I look

forward to hearing other peoples story's.

>

[Guest guest]

Hi, I'm in the process of getting a CI, I have gone to the CI center at stanford

this passed week and I am a good canidate. The Doctor recommended Med-el CI for

my right ear. Does anyone have any info on this type of CI? I hear everybody

getting N5. So just curious on this since I have to make a decision.

Peggy

[Guest guest]

I have Med el..I am bi lateral and I have been extremely pleased with the

result. There is another person on this board who has Med el and had it done at

Stanford.. She is bi lateral too. If you want you can contact me off line at

rmarulli@... and I can give addtional detail about Med el.

________________________________

From: peggy alexander <jimcoljr@...>

Sent: Fri, May 6, 2011 1:22:32 PM

Subject: Re: Hello

Hi, I'm in the process of getting a CI, I have gone to the CI center at stanford

this passed week and I am a good canidate. The Doctor recommended Med-el CI for

my right ear. Does anyone have any info on this type of CI? I hear everybody

getting N5. So just curious on this since I have to make a decision.

Peggy

[Guest guest]

Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

I have never taken any of these medications but lost a son due to the horrific side effects they cause in some people. My concern for you is that most people, and many doctors, have no clue how to properly withdraw from these medications, which causes another set of potentially life-threatening reactions. I have a terrible time remembering the name of Creel's group but hope that she or another member chimes in and provides you with contact information for her recovery group.You can do this but rarely can anyone do it on their own. Is your doctor leading your efforts to withdraw? TerrySent via BlackBerry by AT&TFrom: " W." <kellykebby@...>Sender: SSRI medications Date: Thu, 12 May 2011 09:34:35 -0700 (PDT)<SSRI medications >Reply SSRI medications Subject: hello Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

I have never taken any of these medications but lost a son due to the horrific side effects they cause in some people. My concern for you is that most people, and many doctors, have no clue how to properly withdraw from these medications, which causes another set of potentially life-threatening reactions. I have a terrible time remembering the name of Creel's group but hope that she or another member chimes in and provides you with contact information for her recovery group.You can do this but rarely can anyone do it on their own. Is your doctor leading your efforts to withdraw? TerrySent via BlackBerry by AT&TFrom: " W." <kellykebby@...>Sender: SSRI medications Date: Thu, 12 May 2011 09:34:35 -0700 (PDT)<SSRI medications >Reply SSRI medications Subject: hello Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

I have never taken any of these medications but lost a son due to the horrific side effects they cause in some people. My concern for you is that most people, and many doctors, have no clue how to properly withdraw from these medications, which causes another set of potentially life-threatening reactions. I have a terrible time remembering the name of Creel's group but hope that she or another member chimes in and provides you with contact information for her recovery group.You can do this but rarely can anyone do it on their own. Is your doctor leading your efforts to withdraw? TerrySent via BlackBerry by AT&TFrom: " W." <kellykebby@...>Sender: SSRI medications Date: Thu, 12 May 2011 09:34:35 -0700 (PDT)<SSRI medications >Reply SSRI medications Subject: hello Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

I have never taken any of these medications but lost a son due to the horrific side effects they cause in some people. My concern for you is that most people, and many doctors, have no clue how to properly withdraw from these medications, which causes another set of potentially life-threatening reactions. I have a terrible time remembering the name of Creel's group but hope that she or another member chimes in and provides you with contact information for her recovery group.You can do this but rarely can anyone do it on their own. Is your doctor leading your efforts to withdraw? TerrySent via BlackBerry by AT&TFrom: " W." <kellykebby@...>Sender: SSRI medications Date: Thu, 12 May 2011 09:34:35 -0700 (PDT)<SSRI medications >Reply SSRI medications Subject: hello Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

[Guest guest]

Hi ,

Be aware that the FDA has given strong warnings about the

potential for suicidal thoughts and acts during any dosage change

for any antidepressant for a minority of the population. For

children 1 in 50 can become suicidal, I believe its 1 in 50 in

adults too.

Jim

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?

[Guest guest]

Hi ,

Be aware that the FDA has given strong warnings about the

potential for suicidal thoughts and acts during any dosage change

for any antidepressant for a minority of the population. For

children 1 in 50 can become suicidal, I believe its 1 in 50 in

adults too.

Jim

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?

[Guest guest]

Hi ,

Be aware that the FDA has given strong warnings about the

potential for suicidal thoughts and acts during any dosage change

for any antidepressant for a minority of the population. For

children 1 in 50 can become suicidal, I believe its 1 in 50 in

adults too.

Jim

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?

[Guest guest]

Hi ,

Be aware that the FDA has given strong warnings about the

potential for suicidal thoughts and acts during any dosage change

for any antidepressant for a minority of the population. For

children 1 in 50 can become suicidal, I believe its 1 in 50 in

adults too.

Jim

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?

[Guest guest]

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?  

  ** Hi , 

    I have a Group  that deals with this very problem.  You can see more about it here:

   Withdrawal_and_Recovery/

-- Regards,

[Guest guest]

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?  

  ** Hi , 

    I have a Group  that deals with this very problem.  You can see more about it here:

   Withdrawal_and_Recovery/

-- Regards,

[Guest guest]

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?  

  ** Hi , 

    I have a Group  that deals with this very problem.  You can see more about it here:

   Withdrawal_and_Recovery/

-- Regards,

[Guest guest]

On 5/12/2011 11:34 AM, W. wrote:

Hello, I'm trying to get off of zoloft. Is there

anyone here who got off this ssri after ten+ years? I'm

afraid I will never be as happy as when I was on it, but

I think it is wreaking havoc on my body. Anyone out

there?  

  ** Hi , 

    I have a Group  that deals with this very problem.  You can see more about it here:

   Withdrawal_and_Recovery/

-- Regards,

[Guest guest]

HI , it turns out I am already a member. I am posting as we speak.

Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

** Hi ,

I have a Group that deals with this very problem. You can see more about it here:

Withdrawal_and_Recovery/

-- Regards,

[Guest guest]

no answers-----paulFrom: W. <kellykebby@...>SSRI medications Sent: Thursday, May 12, 2011 6:46 PMSubject: Re: hello

HI , it turns out I am already a member. I am posting as we speak.

Hello, I'm trying to get off of zoloft. Is there anyone here who got off this ssri after ten+ years? I'm afraid I will never be as happy as when I was on it, but I think it is wreaking havoc on my body. Anyone out there?

** Hi ,

I have a Group that deals with this very problem. You can see more about it here:

Withdrawal_and_Recovery/

-- Regards,