hello

[Guest guest]

Hi Teri....Im Deb and I thank you for your words of

confidence. I hope one day soon I will be able to

sound the same haha. I am a very positive person but

this has really gotten me down a bit. Can I ask you a

question....could my husband get this from me. Yes I

would like to write you personally. My email is

delynn2211@.... Deb

__________________________________________________

[Guest guest]

,

Thanks. Maya has benefitted from hearing aids in her right ear and does have

some

speech as a result. Do you sign as well? We have been teaching Maya to sign

for the last

year (she was diagnosed in April 05). It was only when she hit her head and her

hearing

really began to flucuate that we decided to consider a CI. If we were to

proceed, we would

implant her bad (left) ear since she does still have some hearing in her right

ear.

>

> Hi ,

>

>

>

> Welcome to the group. I'm an adult who has been deaf since birth. I did

> well on hearing aids but then lost my residual hearing in my better ear last

> year. I'm waiting (as patiently as I can!) for my implant. I can't wait to

> hear again.

>

>

>

> Good luck with your daughter's CI process. I am a mum to a three year old

> and can appreciate the worry that goes into trying to make the right

> decisions for your child. I am so grateful to my mother who took active

> control of my early years as a deaf child.

>

>

>

> in Australia

>

> Approved for CI 2/06

>

> Implant - who knows???

>

>

>

> _____

>

> From: [mailto: ] On Behalf Of

> dithompson75

> Sent: Wednesday, 15 February 2006 9:50 AM

>

> Subject: hello

>

>

>

> Hi!! My name is . My daughter Maya is 2 1/2 years old and she is

> profound in her left ear and severe in her right. We were evaulated

> and found out that she is a candiate for cochlear. I was given this

> site to find other parents of children who are going through this or

> have been through this. I hope to hear from everyone soon!!!

>

>

>

>

>

>

>

>

[Guest guest]

A-

I checked last year when we found out that Maya may be a candidate and found out

that

my insurance company does cover the surgery. Funny, since I cant get them to

pay for her

hearing aides. I completely agree about the mapping. From everything I have

been told

and have read, you are only successful if proper mapping is done. Thanks for

the insight.

>

>

> Hi !

>

> Have you found out if your insurance company will pay for your child's

> cochlear implant?

>

> I would suggest that you do your homework and research the cochlear implant.

>

> Although everyone's experiences are different, there is one common thread.

> It is very, very, very, very important to go back to the CI center for

> mappings (software programming) often the first year. I think for children,

the

> mappings are more frequent than for adults. Some adults have frequent

> mappings. I had two mappings the first week, one mapping one month later,

another

> mapping three months after surgery, another mapping six months after surgery

> then another one before the one year anniversary of my activation. I think I

> should have had more mappings.

>

> Having a cochlear implant is a great responsibility. With a CI, the child

> will need auditory verbal therapy or some kind of auditory therapy to assist

> in learning how to hear with the CI.

>

> I love my CI and the frequent mappings really helps me! I still go back for

> mappings whenever I feel I need a new map. I continue AVT and I think I

> will continue for five more years but it is worth it!

>

> Good luck!

> A.

>

> In a message dated 2/14/2006 3:36:30 P.M. Pacific Standard Time,

> dithompson75@... writes:

>

> Hi!! My name is . My daughter Maya is 2 1/2 years old and she is

> profound in her left ear and severe in her right. We were evaulated

> and found out that she is a candiate for cochlear. I was given this

> site to find other parents of children who are going through this or

> have been through this. I hope to hear from everyone soon!!!

>

>

>

>

>

>

>

[Guest guest]

>

It was only when she hit her head and her hearing

> really began to flucuate that we decided to consider a CI.

Hi ,

I've been lurking here since my 7-year-old's hearing loss

progressed to the point where she is a candidate. We meet with

a surgeon next week. You said your daughter hit her head and

lost hearing. Does she has Large Vestibular Aqueduct

Syndrome? That's what we've been battling with my daughter -

fluctuating sensorineural loss. There are a couple other

groups you may want to join, the LVAS group and CI Circle,

which is like this group but primarily for other parents. You can

find more information about LVAS at

http://www.hearinglosshelp.com/articles.htm.

Janet

[Guest guest]

Hi My name is Latifa im 26 years old and i have been told that i got hep c 3 years ago i know it's scarry at the bigining but if you have nice and understanding family and friends i think u will get over it easier. hope hearing fro you bay delynn2211 <delynn2211@...> wrote: Hi, I am new to this sight and have just been diagnosed with Hep C. I am in the process of finding out thru blood tests what treatment I must have. I am a 51 yr. old female and have been in excellent health. I rarely get a cold and now I am told I have this. Needless to say I am devastated. I need to talk with others who are going thru the same thing cause I am a little scared. Thanks for any help.

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

I thought the same thing, but I gave it to my husband, and we don't share anything, so it had to be through unprotected sex.curlyhair134 <ka227@...> wrote: It's not impossible, but it's very unlikely you could give this to your husband. He shouldn't use your toothbrush and you shouldn't shave using his razor. The only way this thing gets transmitted is through blood to blood contact. There is no virus present in tears, nor can it be easily transmitted through sex.>> Hi Teri....Im Deb and I thank you for your words of> confidence. I hope one day soon I will be able to> sound the same haha. I am a very positive person but> this has really gotten me down a bit. Can I ask you a> question....could my husband

get this from me. Yes I> would like to write you personally. My email is > delynn2211@... Deb> > > __________________________________________________>

[Guest guest]

Thanks, i have really been worried about him getting

it. I had a blood transfusion in 1977 and i had a son

in 1979, could i have given it to him. I have not felt

a bit sick til now. the hepc was discovered thru a

routine blood testing thru my insurance company.

I am wondering if I feel like crap now because of

nerves or is it getting worse or do i really have a

flu thats going around. this is crazy...help. Deb

__________________________________________________

[Guest guest]

I have read that it is a low risk of getting HepC from birth, but both of my children got it that way. I have been very careful, since diagnosed, not to let them use the same nail clippers, razors, or toothbrushes. I told them both that if I am bleeding, not to touch me, or come in contact with my blood, to call 911, and yet they still tested positive. This was what devastated me more than my having it. It is possible. I wish that I could tell you it's not. As far as feeling bad, it's really hard to say if it would be the flu, or not. The symptoms are too similar. I haven't felt sick for a while, but I get the pains in the side where my liver is, and my biopsy showed that there was no damage to it at that point. I know how you feel, believe me. I am depressed most of the time over this issue. If I learn anything new, I'll definitely share. Sheiladebbie lynn

<delynn2211@...> wrote: Thanks, i have really been worried about him gettingit. I had a blood transfusion in 1977 and i had a sonin 1979, could i have given it to him. I have not felta bit sick til now. the hepc was discovered thru aroutine blood testing thru my insurance company.I am wondering if I feel like crap now because ofnerves or is it getting worse or do i really have aflu thats going around. this is crazy...help. Deb__________________________________________________

[Guest guest]

holy cow...that's weird.. I didn't know there was name for it either until I watched the same csi show probably. lol. I have one brown eye and one blue eye. the blue one changes to my mood. but yea, I knew it wasn't normal... but I didn’t know the name for it. until csi. lol. I don't have much info to give ya... but if you find any....let me know.

Hello

Hi there,My name is and I am a 22 year old from Ontario Canada...I joined this group to learn about heterochromia...as long as I can remember I have had one blue eye and one green eye...but didnt know there was a name for it until I was watching CSI the other night...lol...any info you can give me will be much appreciated..thank you.

[Guest guest]

I was worried that I was harsh with you about the mappings but I felt really

strongly about this.

Very happy to hear your insurance company will cover the surgery. And will

they pay for the mappings?

Sounds like this is one of the good insurance guys :-)

A.

In a message dated 2/15/2006 7:37:22 P.M. Pacific Standard Time,

dithompson75@... writes:

A-

I checked last year when we found out that Maya may be a candidate and found

out that

my insurance company does cover the surgery. Funny, since I cant get them

to pay for her

hearing aides. I completely agree about the mapping. From everything I

have been told

and have read, you are only successful if proper mapping is done. Thanks

for the insight.

[Guest guest]

Janet,

yes, that is what Maya has. Thanks for the information! It's amazing what

groups are on

line. I had no idea!!!

-

> >

> It was only when she hit her head and her hearing

> > really began to flucuate that we decided to consider a CI.

>

> Hi ,

>

> I've been lurking here since my 7-year-old's hearing loss

> progressed to the point where she is a candidate. We meet with

> a surgeon next week. You said your daughter hit her head and

> lost hearing. Does she has Large Vestibular Aqueduct

> Syndrome? That's what we've been battling with my daughter -

> fluctuating sensorineural loss. There are a couple other

> groups you may want to join, the LVAS group and CI Circle,

> which is like this group but primarily for other parents. You can

> find more information about LVAS at

> http://www.hearinglosshelp.com/articles.htm.

>

> Janet

>

[Guest guest]

Welcome andra,

You've found a home. Here we understand. We live your life. It is not too

late to have your curving spine stopped. You will learn a lot here. There

are some great books...Scoilosis Ascending the Curve by Booke Lyons is a great

start.

Self-esteem is damaged with scoliosis. Remember your spine doesn't define

you. You are much more than bones and muscles. You'll develop a resilient,

problem solving personality filled with empathy compared to your peers. And that

can't be all bad. Jolene (59, having my 2nd surgery in a

week) (first one was in 1960 and it was too short)

[Guest guest]

Hello Kimberlie,

Welcome to the LP List ... My nmae is , I am 4'3 " and a half, (CUTE), LoL

I am in sho-Biz ... and a lot more... You can see me here:

www.michaelleegogin.com

Sincerely,

MLGogin

" A Lifetime Member of LPA "

hello

>

>Hi Everyone,

> My name is Kimberley I have been looking for a site like

>this for sometime now and was just able to find one now. It would be

>nice to talk to someone my own size. I live in Canada I am 4 foot 5 and

>a 1/2 (can't forget that 1/2 lol)

>

>

>

>

>

>

>

>

>===

>

[Guest guest]

Hi ,

I just joined this group also. I'm 4' 6 " but i don't have any form of dwarfism

i have something called RTS which is why i'm so short. But i would still love to

talk. I live in the US

kimberleyjoy37 <kimberleyjoy37@...> wrote:

Hi Everyone,

My name is Kimberley I have been looking for a site like

this for sometime now and was just able to find one now. It would be

nice to talk to someone my own size. I live in Canada I am 4 foot 5 and

a 1/2 (can't forget that 1/2 lol)

===

[Guest guest]

hi how are you doing, my name is sexton if you wanna chat sometime you can im me

my im is hazzard1983, bye

kimberleyjoy37 <kimberleyjoy37@...> wrote: Hi Everyone,

My name is Kimberley I have been looking for a site like

this for sometime now and was just able to find one now. It would be

nice to talk to someone my own size. I live in Canada I am 4 foot 5 and

a 1/2 (can't forget that 1/2 lol)

[Guest guest]

Thank-you Micheael for the welcome.So your in show biz good for you.

Me I'm a rental agent. I've been married for 17 years to a Bp and

have one child who is a Bp also.

[Guest guest]

I'm sorry for asking, but what is Bp? Oh and glad you're here

Kimberley.

Kim

In dwarfism , " kimberleyjoy37 " <kimberleyjoy37@...>

wrote:

>

> Thank-you Micheael for the welcome.So your in show biz good for you.

> Me I'm a rental agent. I've been married for 17 years to a Bp and

> have one child who is a Bp also.

>

[Guest guest]

lol no problem bp = big person

kimjoerger <triforce1966@...> wrote: I'm sorry for asking, but what is

Bp?

[Guest guest]

Hi ...

this is reaching 'you'?...just scrolling thru

the messages, caught yours....what part of the

country do you live? And what is RTS ? Something

i've never heard of. Learned many things of myself

thru LP..ect. I'm from Wisconsin..(southern) have

been to very little of LP events.

mark M

--- Kimmel <ruffyk2@...> wrote:

> Hi ,

>

> I just joined this group also. I'm 4' 6 " but i

> don't have any form of dwarfism i have something

> called RTS which is why i'm so short. But i would

> still love to talk. I live in the US

>

>

>

>

> kimberleyjoy37 <kimberleyjoy37@...> wrote:

> Hi Everyone,

> My name is Kimberley I have been looking

> for a site like

> this for sometime now and was just able to find one

> now. It would be

> nice to talk to someone my own size. I live in

> Canada I am 4 foot 5 and

> a 1/2 (can't forget that 1/2 lol)

>

>

>

>

>

>

>

>

> ===

>

[Guest guest]

I found the financing offered is pretty steep! I went to my credit union and got a line of credit. It's about $165. per month. So be sure to shop around. The pre-op diet depends on your BMI. I was lucky and didn't have to go through that part. So where in California are you? I am in Royal Oaks, which is in the foothills above the Monterey Bay, ville is the nearest bigger city, although I am closer to Prunedale or Aromas. Virginia DOB 3/13/06 198/188/135Michele <sleepytay2@...> wrote: I have been reading all the messages and I have to say I am so impressed. I have decided that Dr A. is the one I am going with now to figure out payment. Has anyone financed their surgery and how bad are the payments? I live about 3 hours away

from El Centro so how much further is the hospital from that? I have seen you all talk about a diet before surgery??? I want to tell you all thank you! Future BandsterMichele Virginia

[Guest guest]

Kerry, lots of people will be at the Barty Club. This will be the second

time that conferences have featured the BArty Club, named after our

founder Barty. It's original intention is a place of us 40

somethings to hang out , share stories of remember when... talk and

hang out. It's not necessarily an intense dance scene. Judging from

what the Milwaukee committee has laid out with Jimmy Buffet Night etc....

it will continue to be a easy going place to relax.

marge

On Fri, 24 Mar 2006 21:07:32 -0000 " Kerry " <sweetpea27022003@...>

writes:

> I'm going to the National Conference in Milwaukee, WI. Is anyone

> going

> to the barty club at the conference? I'm looking for anyone to hang

>

> out with at the national conference. It's my 2nd time going. I don't

>

> know anyone. I'm still trying to decide what im gonna do at the

> conference.

>

>

>

>

>

>

>

> ===

>

[Guest guest]

Won't this be the third time for Barty Club? Wasn't S.F. this first? It is

a great place to hang out, I agree (in addition to OWLS bingo ;-)

-Bill

On 3/24/06, Marge E Carlisle <MargeClpa@...> wrote:

>

> Kerry, lots of people will be at the Barty Club. This will be the second

> time that conferences have featured the BArty Club, named after our

> founder Barty. It's original intention is a place of us 40

> somethings to hang out , share stories of remember when... talk and

> hang out. It's not necessarily an intense dance scene. Judging from

> what the Milwaukee committee has laid out with Jimmy Buffet Night etc....

> it will continue to be a easy going place to relax.

> marge

> On Fri, 24 Mar 2006 21:07:32 -0000 " Kerry " <sweetpea27022003@...>

> writes:

> > I'm going to the National Conference in Milwaukee, WI. Is anyone

> > going

> > to the barty club at the conference? I'm looking for anyone to hang

> >

> > out with at the national conference. It's my 2nd time going. I don't

> >

> > know anyone. I'm still trying to decide what im gonna do at the

> > conference.

> >

> >

> >

> >

> >

> >

> >

> > ===

> >

[Guest guest]

Didn't do it in Orlando Bill... too much going on...sorry .... Yes SF was

the first..

marge

On Fri, 24 Mar 2006 17:24:45 -0800 " Bill Bradford " <tslug1@...>

writes:

> Won't this be the third time for Barty Club? Wasn't S.F. this first?

> It is

> a great place to hang out, I agree (in addition to OWLS bingo ;-)

>

> -Bill

>

> On 3/24/06, Marge E Carlisle <MargeClpa@...> wrote:

> >

> > Kerry, lots of people will be at the Barty Club. This will be the

> second

> > time that conferences have featured the BArty Club, named after

> our

> > founder Barty. It's original intention is a place of us 40

> > somethings to hang out , share stories of remember when... talk

> and

> > hang out. It's not necessarily an intense dance scene. Judging

> from

> > what the Milwaukee committee has laid out with Jimmy Buffet Night

> etc....

> > it will continue to be a easy going place to relax.

> > marge

> > On Fri, 24 Mar 2006 21:07:32 -0000 " Kerry "

> <sweetpea27022003@...>

> > writes:

> > > I'm going to the National Conference in Milwaukee, WI. Is

> anyone

> > > going

> > > to the barty club at the conference? I'm looking for anyone to

> hang

> > >

> > > out with at the national conference. It's my 2nd time going. I

> don't

> > >

> > > know anyone. I'm still trying to decide what im gonna do at the

> > > conference.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ===

> > >

[Guest guest]

Barty Club was missing on the Orlando agenda. We 40-somethings had to

hang out in the usual places. And dang if I didn't forget Bingo was

going on!

Come hang out with us Bill!!!

This will be the second time that conferences have featured the BArty

Club, named after our founder Barty.

[Guest guest]

" does anyone know if they make gauchos for little

people or shorter gauchos to were if we would wear

them and they look like actuall gauchos if

anyone knows please let me know and another thing i

have a question about is! when i went to the lady

doctor he said it would be impossible for me to have a

child natural cause of my dwarfism has anyone had a

child natural and was it hard? Me and my husband wanna

have a baby in the near future and i was just getting

some info "

*****

-

Gauchos - heavens, they make tall willoy women look

short and wide - I'm not in the market for gauchos as

I'm already short and wide enough Perhaps someone

else can give you advice there...

For advice on childbirth... As far as the term

" natural " , do you mean vaginal birth as opposed to

C-Section? The women with dwarfism I've known have

all delivered via C-section (myself included).

__________________________________________________