brace question

[Guest guest]

Hi, its here. I put Lily's diaper outside of her cast. I have

found that with girls you can shove a poise pad up there and it soaks

up so much that I usually only change her actual diaper when she goes

number 2. I buy the walmart brand extra long poise pad (I think they

are called Options)and I shove part of the pad up the back of her cast

and reach it around to the front and shove it up there. I then put on

her diaper outside the cast and she has never leaked once. The pads

actually work way better than diapers if you ask me. They can soak up

so much. That has been what has worked best for me. Just FYI.

Mom to Lily

>

> ok, well with lexi in her cast.......diapering is definitely a

bigger

> issue to me now than it was in the cast. any others here that braced

> have any suggestions for diapering withiut having to remove the brace

> each time?

>

> i can say for certain, i cannot tuck it under like i did in the

cast.

> have any of you just diapered over the brace like some do for the

> cast? any suggestions are welcome as i don't think i want to remove

> this thing with every diaper change!!!!! grrrrrrrrrr

>

> tracey

>

[Guest guest]

thanks heather! that is basically what i was doing with lexi's cast as well, however i can't get anything shoved under this brace. i am just going to try the pads and put the diaper on the outside. thanks for the help!!

hope lily is doing well!!

tracey

Re: brace question

Hi, its here. I put Lily's diaper outside of her cast. I have found that with girls you can shove a poise pad up there and it soaks up so much that I usually only change her actual diaper when she goes number 2. I buy the walmart brand extra long poise pad (I think they are called Options)and I shove part of the pad up the back of her cast and reach it around to the front and shove it up there. I then put on her diaper outside the cast and she has never leaked once. The pads actually work way better than diapers if you ask me. They can soak up so much. That has been what has worked best for me. Just FYI. Mom to Lily >> ok, well with lexi in her cast.......diapering is definitely a bigger > issue to me now than it was in the cast. any others here that braced > have any suggestions for diapering withiut having to remove the brace > each time? > > i can say for certain, i cannot tuck it under like i did in the cast. > have any of you just diapered over the brace like some do for the > cast? any suggestions are welcome as i don't think i want to remove > this thing with every diaper change!!!!! grrrrrrrrrr> > tracey>

[Guest guest]

gail.............

lexi turned two in november...i am attempting potty training, but she is a stubborn one!! i will try the pullups and loosen a strap at the bottom and see if i can't get something under there. there is just sooo much padding, it is tough.

tracey

brace question

ok, well with lexi in her cast.......diapering is definitely a bigger issue to me now than it was in the cast. any others here that braced have any suggestions for diapering withiut having to remove the brace each time? i can say for certain, i cannot tuck it under like i did in the cast. have any of you just diapered over the brace like some do for the cast? any suggestions are welcome as i don't think i want to remove this thing with every diaper change!!!!! grrrrrrrrrrtracey

[Guest guest]

At the time of 's brace, we weren't potty training, but they were easier to use. Maybe talk to your brace guy aobut shaving down some of the padding would help.

Gail

brace question

ok, well with lexi in her cast.......diapering is definitely a bigger issue to me now than it was in the cast. any others here that braced have any suggestions for diapering withiut having to remove the brace each time? i can say for certain, i cannot tuck it under like i did in the cast. have any of you just diapered over the brace like some do for the cast? any suggestions are welcome as i don't think i want to remove this thing with every diaper change!!!!! grrrrrrrrrrtracey

[Guest guest]

Tracey, What works best for Madison and me is to just diaper over the brace with a pull up instead of regular diapers. When it wasn't a choice, when she was in her first brace at 7 months, we did have to remove the brace for each diaper change. I just couldn't figure out another way to do it. I think Lexi is old enough for pull ups though, if memory serves me correctly. Hope you're able to figure something out that will work out for y'all. Jenth77381 <pthahn@...> wrote: ok, well with lexi in her cast.......diapering is definitely a bigger issue to me now than it was in the cast. any others here that braced have any suggestions for diapering withiut having to remove the brace each time? i can say for

certain, i cannot tuck it under like i did in the cast. have any of you just diapered over the brace like some do for the cast? any suggestions are welcome as i don't think i want to remove this thing with every diaper change!!!!! grrrrrrrrrrtracey

Bring words and photos together (easily) with PhotoMail - it's free and works with .

[Guest guest]

Hello everyone...adison's date is nearing and i am getting nervous:) i

had a question about food. Should i pack him his usual food. Will he be

willing to eat after he wakes from the anestisia? How have everyone else

children been with this? I dont want to take a bunch of unnecassary

thing to erie with me but i want to make shure i have enough! Thanks for

your help (again! anna-mom to adison 11 months

Hi, its here. I put Lily's diaper outside of her cast. I have

found that with girls you can shove a poise pad up there and it soaks

up so much that I usually only change her actual diaper when she goes

number 2. I buy the walmart brand extra long poise pad (I think they

are called Options)and I shove part of the pad up the back of her cast

and reach it around to the front and shove it up there. I then put on

her diaper outside the cast and she has never leaked once. The pads

actually work way better than diapers if you ask me. They can soak up

so much. That has been what has worked best for me. Just FYI.

Mom to Lily

>

> ok, well with lexi in her cast.......diapering is definitely a

bigger

> issue to me now than it was in the cast. any others here that braced

> have any suggestions for diapering withiut having to remove the brace

> each time?

>

> i can say for certain, i cannot tuck it under like i did in the

cast.

> have any of you just diapered over the brace like some do for the

> cast? any suggestions are welcome as i don't think i want to remove

> this thing with every diaper change!!!!! grrrrrrrrrr

>

> tracey

>

[Guest guest]

Bridget outgrew her last one in 5 months and she was 4 so I would imagine a 1 yr

old would outgrow hers before this. What advice did they give you at the

hospital?

Bert

dalerocks08 <dalerocks08@...> wrote:

I was wondering how long typically, a brace lasts before they outgrow

it. Evanlee is 1 and has only been in her brace for a couple of

months, but of course, I think it's getting too tight and she coughs

alot when she is in it.

__________________________________________________

[Guest guest]

Madison outgrew her first brace (8 mths) in just 6 weeks, the two taht followed

she was 18 moths-5 mths and 28 mths-31/2 mths....I think it just all depends on

the current growth of your child. I think it's always best to refer any

concerns to your ortho or orthotist.

Jen

bert lehane <bert_lehane@...> wrote:

Bridget outgrew her last one in 5 months and she was 4 so I would

imagine a 1 yr old would outgrow hers before this. What advice did they give you

at the hospital?

Bert

dalerocks08 <dalerocks08@...> wrote:

I was wondering how long typically, a brace lasts before they outgrow

it. Evanlee is 1 and has only been in her brace for a couple of

months, but of course, I think it's getting too tight and she coughs

alot when she is in it.

__________________________________________________

[Guest guest]

Hi Joy

Evan is scheduled for his 4th cast on the 22nd, so if they work you in maybe

well see you then.

Good luck with the skin and cast issue-hope it does work out that she gets the

brace next go around. Go Sol!!

and Evan

mosunshinebaby <mosunshinebaby@...> wrote:

Hi Everyone, we've definitely been pretty incognito online this past

month has been crazy busy w/summer & such. I'm just checking in to

see how everyone is doing, I've perused through some of the recent

posts. How's Ian's skin doing , I didn't catch what you

ended up deciding to do? Well Sol's is doing the same thing again,

we've loved the water proof cast it's just that she's growing out if

it already so I think it's too tight to dry properly (hence the skin

rawing underneath..) the padding is sticking to it again too so she

hasn't been too comofrtable at night mostly. So I definitely want to

get it off ASAP, her skin is not looking good under there. The

problem is we're not scheduled back until 9/18, that's going to be

too late so I don't know what I'm going to do. I put a call in w/Dr.

Sander's sec. but I haven't heard back yet & Jane is out till

Mon. & I'd like to have this taken off here like today or Mon. at

the latest. I wanted to ask for some of your input on the bracing,

Dr. said we could probably go with her brace measuring next

visit, hopefully that's still the case, her back still looks good to

me. Does anyone know if he uses the table to do the brace molds as

well? Or is bracing something we can do through our local

children's hospital? Well in any case I'm wondering too if maybe we

can just have her fitted for a brace here until we go back there mid

Sept. to have her last cast & brace measurements done, does anyone

know how long that would take? And if the table aids the Dr.'s at

Shriner's in bracing as well? I'm afraid to stop going there

because I love Dr. & have faith in his treating her, my

husband was wondering if we'd get the same bracing done here as

there. Well I'll be talking to Shriner's & Children's here about it

too.. just wanted to get some other MOMMY input if anyone is around

who's been/going through it!! Thank you!

~Joy & Sol

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

Well I've spoke with both Shriner's & Children's now & we're having

it removed today locally & x-rayed. I'll be speaking w/Shriner's

Mon. to see about hopefully getting her apt. pushed up a little,

they said it probably wouldn't be a problem so that's good. Also

hear that Dr. is very particular about his bracing so we'll

defintely not be having anyone else do that here, we'll just be

waiting to do it in Erie next month.. Dr. Sander's has worked

miracles on her & so I'm keeping my faith in him! Anyway, things

have calmed down for us a little bit lately so we'll be able to kit

better.. hope you & your kiddos are all good! ~Joy & Sol.

>

> Hi Everyone, we've definitely been pretty incognito online this

past

> month has been crazy busy w/summer & such. I'm just checking in to

> see how everyone is doing, I've perused through some of the recent

> posts. How's Ian's skin doing , I didn't catch what you

> ended up deciding to do? Well Sol's is doing the same thing

again,

> we've loved the water proof cast it's just that she's growing out

if

> it already so I think it's too tight to dry properly (hence the

skin

> rawing underneath..) the padding is sticking to it again too so

she

> hasn't been too comofrtable at night mostly. So I definitely want

to

> get it off ASAP, her skin is not looking good under there. The

> problem is we're not scheduled back until 9/18, that's going to be

> too late so I don't know what I'm going to do. I put a call in

w/Dr.

> Sander's sec. but I haven't heard back yet & Jane is out till

> Mon. & I'd like to have this taken off here like today or Mon. at

> the latest. I wanted to ask for some of your input on the

bracing,

> Dr. said we could probably go with her brace measuring

next

> visit, hopefully that's still the case, her back still looks good

to

> me. Does anyone know if he uses the table to do the brace molds as

> well? Or is bracing something we can do through our local

> children's hospital? Well in any case I'm wondering too if maybe

we

> can just have her fitted for a brace here until we go back there

mid

> Sept. to have her last cast & brace measurements done, does anyone

> know how long that would take? And if the table aids the Dr.'s at

> Shriner's in bracing as well? I'm afraid to stop going there

> because I love Dr. & have faith in his treating her, my

> husband was wondering if we'd get the same bracing done here as

> there. Well I'll be talking to Shriner's & Children's here about

it

> too.. just wanted to get some other MOMMY input if anyone is

around

> who's been/going through it!! Thank you!

>

> ~Joy & Sol

>

[Guest guest]

Joy,

They had me actually stick something down in the cast (they NEVER normally

recommend this) to peel the lining from his skin. I used a rubber spatula to

get down in there and I think I got it all separated, thank goodness! His skin

was so dry and in some areas starting to break down. He looks a lot better now,

but I can definitely say this has soured me on the waterproof casts. I am going

to ask for plaster this next time around. It's just not worth the hassle.

I have no idea what to tell you about the brace as we have not hit that hurdle

yet. My plan is to stick with Shriners because I trust Dr. K and I don't trust

anyone here in VA..

Noelle (12-2-01)

Ian (8-15-04)

Brace Question

Hi Everyone, we've definitely been pretty incognito online this past

month has been crazy busy w/summer & such. I'm just checking in to

see how everyone is doing, I've perused through some of the recent

posts. How's Ian's skin doing , I didn't catch what you

ended up deciding to do? Well Sol's is doing the same thing again,

we've loved the water proof cast it's just that she's growing out if

it already so I think it's too tight to dry properly (hence the skin

rawing underneath..) the padding is sticking to it again too so she

hasn't been too comofrtable at night mostly. So I definitely want to

get it off ASAP, her skin is not looking good under there. The

problem is we're not scheduled back until 9/18, that's going to be

too late so I don't know what I'm going to do. I put a call in w/Dr.

Sander's sec. but I haven't heard back yet & Jane is out till

Mon. & I'd like to have this taken off here like today or Mon. at

the latest. I wanted to ask for some of your input on the bracing,

Dr. said we could probably go with her brace measuring next

visit, hopefully that's still the case, her back still looks good to

me. Does anyone know if he uses the table to do the brace molds as

well? Or is bracing something we can do through our local

children's hospital? Well in any case I'm wondering too if maybe we

can just have her fitted for a brace here until we go back there mid

Sept. to have her last cast & brace measurements done, does anyone

know how long that would take? And if the table aids the Dr.'s at

Shriner's in bracing as well? I'm afraid to stop going there

because I love Dr. & have faith in his treating her, my

husband was wondering if we'd get the same bracing done here as

there. Well I'll be talking to Shriner's & Children's here about it

too.. just wanted to get some other MOMMY input if anyone is around

who's been/going through it!! Thank you!

~Joy & Sol

[Guest guest]

Hi Joy

I'm not sure about Erie, but SLC does use the table to

make Owen's braces. It is pretty much the same

procedure as the casting, sedation and intubation-

traction. I had the same thoughts as you about

getting the brace made locally, but before we found

SLC we had four different braces made from 2 different

orthotists (including our local Shriners) and none

were as good as what we got from SLC. And I too just

trust those doctors so much more than any others we

have seen (and we've seen a lot!)

As far as time goes, the team at SLC was amazing for

us! Owen was molded thursday morning and by that

afternoon they had the brace made and then had a

second one made by the next morning as they wanted to

try something different for him! I really couldn't

believe it because every other time it has taken weeks

to get a brace made. I think one of the orthotists

worked through the night for us. We also live in

California, so it's not like we could come back in a

week for the fitting- but they were amazingly

accomodating for Owen.

I wish you guys the best of luck and hopefully you

will be able to give Sol some relief soon!

Take care

and Owen

--- Claflin <noellesmommy@...> wrote:

> Brace Question

>

>

> Hi Everyone, we've definitely been pretty

> incognito online this past

> month has been crazy busy w/summer & such. I'm

> just checking in to

> see how everyone is doing, I've perused through

> some of the recent

> posts. How's Ian's skin doing , I didn't

> catch what you

> ended up deciding to do? Well Sol's is doing the

> same thing again,

> we've loved the water proof cast it's just that

> she's growing out if

> it already so I think it's too tight to dry

> properly (hence the skin

> rawing underneath..) the padding is sticking to it

> again too so she

> hasn't been too comofrtable at night mostly. So I

> definitely want to

> get it off ASAP, her skin is not looking good

> under there. The

> problem is we're not scheduled back until 9/18,

> that's going to be

> too late so I don't know what I'm going to do. I

> put a call in w/Dr.

> Sander's sec. but I haven't heard back yet &

> Jane is out till

> Mon. & I'd like to have this taken off here like

> today or Mon. at

> the latest. I wanted to ask for some of your input

> on the bracing,

> Dr. said we could probably go with her

> brace measuring next

> visit, hopefully that's still the case, her back

> still looks good to

> me. Does anyone know if he uses the table to do

> the brace molds as

> well? Or is bracing something we can do through

> our local

> children's hospital? Well in any case I'm

> wondering too if maybe we

> can just have her fitted for a brace here until we

> go back there mid

> Sept. to have her last cast & brace measurements

> done, does anyone

> know how long that would take? And if the table

> aids the Dr.'s at

> Shriner's in bracing as well? I'm afraid to stop

> going there

> because I love Dr. & have faith in his

> treating her, my

> husband was wondering if we'd get the same bracing

> done here as

> there. Well I'll be talking to Shriner's &

> Children's here about it

> too.. just wanted to get some other MOMMY input if

> anyone is around

> who's been/going through it!! Thank you!

>

> ~Joy & Sol

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Joy,

I have not been posting alot but do read most of them daily. My

daughter, , goes to Dr. Khoury at Shriners in Erie. She just

got her 6th cast put on August 10, 2006. Dr. K. believes we are

pretty close to a brace. started at 42 degrees with alot of

rotation . She now is at 8 degrees in this last cast with hardly no

rotation at all. We would already be in a brace if we did not do a

waterproof cast on May 4th that pushed us backwards alittle. We

were pretty upset but Dr. k. said 3 more casts and then the brace.!!

He told us that it would be done at the samt time her finally

casting is done on the table and then a gentleman named

would actually measure and mold the brace while in the OR right

before Dr. K. puts on her last cast. Then wears the cast

until the brace is complete. I guess the brace takes a few weeks to

be made. I hope this helps.

Sue Cappelli

(02-23-04)

>

> Joy,

>

> They had me actually stick something down in the cast (they NEVER

normally recommend this) to peel the lining from his skin. I used a

rubber spatula to get down in there and I think I got it all

separated, thank goodness! His skin was so dry and in some areas

starting to break down. He looks a lot better now, but I can

definitely say this has soured me on the waterproof casts. I am

going to ask for plaster this next time around. It's just not worth

the hassle.

>

> I have no idea what to tell you about the brace as we have not hit

that hurdle yet. My plan is to stick with Shriners because I trust

Dr. K and I don't trust anyone here in VA..

>

>

> Noelle (12-2-01)

> Ian (8-15-04)

> Brace Question

>

>

> Hi Everyone, we've definitely been pretty incognito online this

past

> month has been crazy busy w/summer & such. I'm just checking in

to

> see how everyone is doing, I've perused through some of the

recent

> posts. How's Ian's skin doing , I didn't catch what you

> ended up deciding to do? Well Sol's is doing the same thing

again,

> we've loved the water proof cast it's just that she's growing

out if

> it already so I think it's too tight to dry properly (hence the

skin

> rawing underneath..) the padding is sticking to it again too so

she

> hasn't been too comofrtable at night mostly. So I definitely

want to

> get it off ASAP, her skin is not looking good under there. The

> problem is we're not scheduled back until 9/18, that's going to

be

> too late so I don't know what I'm going to do. I put a call in

w/Dr.

> Sander's sec. but I haven't heard back yet & Jane is out

till

> Mon. & I'd like to have this taken off here like today or Mon.

at

> the latest. I wanted to ask for some of your input on the

bracing,

> Dr. said we could probably go with her brace measuring

next

> visit, hopefully that's still the case, her back still looks

good to

> me. Does anyone know if he uses the table to do the brace molds

as

> well? Or is bracing something we can do through our local

> children's hospital? Well in any case I'm wondering too if maybe

we

> can just have her fitted for a brace here until we go back there

mid

> Sept. to have her last cast & brace measurements done, does

anyone

> know how long that would take? And if the table aids the Dr.'s

at

> Shriner's in bracing as well? I'm afraid to stop going there

> because I love Dr. & have faith in his treating her, my

> husband was wondering if we'd get the same bracing done here as

> there. Well I'll be talking to Shriner's & Children's here about

it

> too.. just wanted to get some other MOMMY input if anyone is

around

> who's been/going through it!! Thank you!

>

> ~Joy & Sol

>

>

>

>

>

>

[Guest guest]

Hi Jeniffer!

Thanks for the response.. That's odd they had you stick something

down to seperate the lining?? B/C that sticking is an indicator that

there is raw skin under the cast, it's what happened both times with

Solana (the first cast & this one) and there was indeed nothing but

raw skin all underneath. I'm sure you would be able to tell

otherwise if it seemed like there were more of a problem under there

so if he seems fine & there's nothing visible then I'm sure it's

okay. But I knew this time (from going through it the last time)

that it needed to come off ASAP, & when I described in to them one

of the other Dr's in Erie agreed (I think it was Koury or Kisham b/c

is out until tomorrow) they agreed to get it off immediately

& not wait until the weekend which I was glad to hear. So we had it

removed & x-rayed @ our local ER here & it was the exact same

situation/problem as with her first cast, was HORRIBLE & raw &

stinky & rashy. It's much better now after 24 hrs + a bit more of

cleaning & healing, but it was the same 1st degree burn type of skin

breakdown, very gross. I personally think it's happened just

recently b/c the cast has gotten so much tighter & leaved less room

to dry out properly. So yeah, I won't be taking advantage of

the " waterproof " aspect anymore either.. however I do like the

fiberglass b/c of the size & weight of it biding her x-rays show to

have held the improvment she's made, I really hope so!! It looks

good, but not as good as after the removal of her last (plaster)

cast to me so we'll see.. maybe we'll get plaster too while we're

waiting for the brace (biding we're still able to go ahead & measure

with the brace!). But I'm glad we made the call to have it removed,

I couldn't imagine her having to live another day in it the way her

skin was, I'm not exagerating either.. I have pictures of this time

too of the immediate removal & it's aweful. Thanks for your input

though on the cast & the bracing, we'll be sticking w/Shriner's for

that part as well, I just hope it's still the next step for us :\..

time will tell I guess!

Hi Sue-- Thanks for your response too! Sorry to hear you lost ground

on casting, I hope that's not the case for us but I wouldn't be

surprise now I guess. We're defintely going to be sticking

w/Shriner's for the bracing too.. again, thanks for the response!

~Joy & Solana

> >

> > Joy,

> >

> > They had me actually stick something down in the cast (they

NEVER

> normally recommend this) to peel the lining from his skin. I used

a

> rubber spatula to get down in there and I think I got it all

> separated, thank goodness! His skin was so dry and in some areas

> starting to break down. He looks a lot better now, but I can

> definitely say this has soured me on the waterproof casts. I am

> going to ask for plaster this next time around. It's just not

worth

> the hassle.

> >

> > I have no idea what to tell you about the brace as we have not

hit

> that hurdle yet. My plan is to stick with Shriners because I

trust

> Dr. K and I don't trust anyone here in VA..

> >

> >

> > Noelle (12-2-01)

> > Ian (8-15-04)

> > Brace Question

> >

> >

> > Hi Everyone, we've definitely been pretty incognito online

this

> past

> > month has been crazy busy w/summer & such. I'm just checking

in

> to

> > see how everyone is doing, I've perused through some of the

> recent

> > posts. How's Ian's skin doing , I didn't catch what

you

> > ended up deciding to do? Well Sol's is doing the same thing

> again,

> > we've loved the water proof cast it's just that she's growing

> out if

> > it already so I think it's too tight to dry properly (hence

the

> skin

> > rawing underneath..) the padding is sticking to it again too

so

> she

> > hasn't been too comofrtable at night mostly. So I definitely

> want to

> > get it off ASAP, her skin is not looking good under there. The

> > problem is we're not scheduled back until 9/18, that's going

to

> be

> > too late so I don't know what I'm going to do. I put a call in

> w/Dr.

> > Sander's sec. but I haven't heard back yet & Jane is out

> till

> > Mon. & I'd like to have this taken off here like today or Mon.

> at

> > the latest. I wanted to ask for some of your input on the

> bracing,

> > Dr. said we could probably go with her brace measuring

> next

> > visit, hopefully that's still the case, her back still looks

> good to

> > me. Does anyone know if he uses the table to do the brace

molds

> as

> > well? Or is bracing something we can do through our local

> > children's hospital? Well in any case I'm wondering too if

maybe

> we

> > can just have her fitted for a brace here until we go back

there

> mid

> > Sept. to have her last cast & brace measurements done, does

> anyone

> > know how long that would take? And if the table aids the Dr.'s

> at

> > Shriner's in bracing as well? I'm afraid to stop going there

> > because I love Dr. & have faith in his treating her,

my

> > husband was wondering if we'd get the same bracing done here

as

> > there. Well I'll be talking to Shriner's & Children's here

about

> it

> > too.. just wanted to get some other MOMMY input if anyone is

> around

> > who's been/going through it!! Thank you!

> >

> > ~Joy & Sol

> >

> >

> >

> >

> >

> >

[Guest guest]

Awe, that's so great they were so accomodating for you guys ,

that's all great to hear. Thanks so much for the input, I appreciate

it & yeah for those kinds of reasons we're definitely going to stick

w/Shriner's for bracing too.. I hope they can be as accomodating

when the time comes! All great information though.. thanks again!!

~Joy & Sol

PS- Is Owen still in a brace??

>

> > Brace Question

> >

> >

> > Hi Everyone, we've definitely been pretty

> > incognito online this past

> > month has been crazy busy w/summer & such. I'm

> > just checking in to

> > see how everyone is doing, I've perused through

> > some of the recent

> > posts. How's Ian's skin doing , I didn't

> > catch what you

> > ended up deciding to do? Well Sol's is doing the

> > same thing again,

> > we've loved the water proof cast it's just that

> > she's growing out if

> > it already so I think it's too tight to dry

> > properly (hence the skin

> > rawing underneath..) the padding is sticking to it

> > again too so she

> > hasn't been too comofrtable at night mostly. So I

> > definitely want to

> > get it off ASAP, her skin is not looking good

> > under there. The

> > problem is we're not scheduled back until 9/18,

> > that's going to be

> > too late so I don't know what I'm going to do. I

> > put a call in w/Dr.

> > Sander's sec. but I haven't heard back yet &

> > Jane is out till

> > Mon. & I'd like to have this taken off here like

> > today or Mon. at

> > the latest. I wanted to ask for some of your input

> > on the bracing,

> > Dr. said we could probably go with her

> > brace measuring next

> > visit, hopefully that's still the case, her back

> > still looks good to

> > me. Does anyone know if he uses the table to do

> > the brace molds as

> > well? Or is bracing something we can do through

> > our local

> > children's hospital? Well in any case I'm

> > wondering too if maybe we

> > can just have her fitted for a brace here until we

> > go back there mid

> > Sept. to have her last cast & brace measurements

> > done, does anyone

> > know how long that would take? And if the table

> > aids the Dr.'s at

> > Shriner's in bracing as well? I'm afraid to stop

> > going there

> > because I love Dr. & have faith in his

> > treating her, my

> > husband was wondering if we'd get the same bracing

> > done here as

> > there. Well I'll be talking to Shriner's &

> > Children's here about it

> > too.. just wanted to get some other MOMMY input if

> > anyone is around

> > who's been/going through it!! Thank you!

> >

> > ~Joy & Sol

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi ! Thanks so much for the encouraging words! I hope so too

too but am afraid & anxious to find out. We're scheduled for the

18th of next month, if they work us in earlier it will probably only

be a week or two ahead she said but I'll defintiely let you know for

sure!! Take care

~Joy & Sol

> Hi Everyone, we've definitely been pretty incognito

online this past

> month has been crazy busy w/summer & such. I'm just checking in to

> see how everyone is doing, I've perused through some of the recent

> posts. How's Ian's skin doing , I didn't catch what you

> ended up deciding to do? Well Sol's is doing the same thing again,

> we've loved the water proof cast it's just that she's growing out

if

> it already so I think it's too tight to dry properly (hence the

skin

> rawing underneath..) the padding is sticking to it again too so

she

> hasn't been too comofrtable at night mostly. So I definitely want

to

> get it off ASAP, her skin is not looking good under there. The

> problem is we're not scheduled back until 9/18, that's going to be

> too late so I don't know what I'm going to do. I put a call in

w/Dr.

> Sander's sec. but I haven't heard back yet & Jane is out till

> Mon. & I'd like to have this taken off here like today or Mon. at

> the latest. I wanted to ask for some of your input on the bracing,

> Dr. said we could probably go with her brace measuring

next

> visit, hopefully that's still the case, her back still looks good

to

> me. Does anyone know if he uses the table to do the brace molds as

> well? Or is bracing something we can do through our local

> children's hospital? Well in any case I'm wondering too if maybe

we

> can just have her fitted for a brace here until we go back there

mid

> Sept. to have her last cast & brace measurements done, does anyone

> know how long that would take? And if the table aids the Dr.'s at

> Shriner's in bracing as well? I'm afraid to stop going there

> because I love Dr. & have faith in his treating her, my

> husband was wondering if we'd get the same bracing done here as

> there. Well I'll be talking to Shriner's & Children's here about

it

> too.. just wanted to get some other MOMMY input if anyone is

around

> who's been/going through it!! Thank you!

>

> ~Joy & Sol

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

>

[Guest guest]

Yes, Owen is still in his brace (and rapidly

outgrowing each and every one!) We are scheduled to

go back to SLC the first week of September for a new

molding. Fingers crossed all goes well.

I'm also curious how kids get off the brace? Not that

I think we are there yet, but do they just start

weaning time in it? And any experience of how long

the brace is needed once the casting process is done?

I know each kid responds different, it is just so hard

to not know if he is going to in a brace for one or

four more years.

Thanks

--- mosunshinebaby <mosunshinebaby@...> wrote:

> Awe, that's so great they were so accomodating for

> you guys ,

> that's all great to hear. Thanks so much for the

> input, I appreciate

> it & yeah for those kinds of reasons we're

> definitely going to stick

> w/Shriner's for bracing too.. I hope they can be as

> accomodating

> when the time comes! All great information though..

> thanks again!!

>

> ~Joy & Sol

>

> PS- Is Owen still in a brace??

>

>

> >

> > > Brace Question

> > >

> > >

> > > Hi Everyone, we've definitely been pretty

> > > incognito online this past

> > > month has been crazy busy w/summer & such. I'm

> > > just checking in to

> > > see how everyone is doing, I've perused

> through

> > > some of the recent

> > > posts. How's Ian's skin doing , I

> didn't

> > > catch what you

> > > ended up deciding to do? Well Sol's is doing

> the

> > > same thing again,

> > > we've loved the water proof cast it's just

> that

> > > she's growing out if

> > > it already so I think it's too tight to dry

> > > properly (hence the skin

> > > rawing underneath..) the padding is sticking

> to it

> > > again too so she

> > > hasn't been too comofrtable at night mostly.

> So I

> > > definitely want to

> > > get it off ASAP, her skin is not looking good

> > > under there. The

> > > problem is we're not scheduled back until

> 9/18,

> > > that's going to be

> > > too late so I don't know what I'm going to do.

> I

> > > put a call in w/Dr.

> > > Sander's sec. but I haven't heard back yet &

>

> > > Jane is out till

> > > Mon. & I'd like to have this taken off here

> like

> > > today or Mon. at

> > > the latest. I wanted to ask for some of your

> input

> > > on the bracing,

> > > Dr. said we could probably go with her

> > > brace measuring next

> > > visit, hopefully that's still the case, her

> back

> > > still looks good to

> > > me. Does anyone know if he uses the table to

> do

> > > the brace molds as

> > > well? Or is bracing something we can do

> through

> > > our local

> > > children's hospital? Well in any case I'm

> > > wondering too if maybe we

> > > can just have her fitted for a brace here

> until we

> > > go back there mid

> > > Sept. to have her last cast & brace

> measurements

> > > done, does anyone

> > > know how long that would take? And if the

> table

> > > aids the Dr.'s at

> > > Shriner's in bracing as well? I'm afraid to

> stop

> > > going there

> > > because I love Dr. & have faith in his

> > > treating her, my

> > > husband was wondering if we'd get the same

> bracing

> > > done here as

> > > there. Well I'll be talking to Shriner's &

> > > Children's here about it

> > > too.. just wanted to get some other MOMMY

> input if

> > > anyone is around

> > > who's been/going through it!! Thank you!

> > >

> > > ~Joy & Sol

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Joy

I'm so sorry to read how bad Sol's skin was under the

cast. Thank god for mother's intuition that you had

it removed right away!!

I hope the next one is a lot easier in her skin

--- mosunshinebaby <mosunshinebaby@...> wrote:

> Hi Jeniffer!

>

> Thanks for the response.. That's odd they had you

> stick something

> down to seperate the lining?? B/C that sticking is

> an indicator that

> there is raw skin under the cast, it's what happened

> both times with

> Solana (the first cast & this one) and there was

> indeed nothing but

> raw skin all underneath. I'm sure you would be able

> to tell

> otherwise if it seemed like there were more of a

> problem under there

> so if he seems fine & there's nothing visible then

> I'm sure it's

> okay. But I knew this time (from going through it

> the last time)

> that it needed to come off ASAP, & when I described

> in to them one

> of the other Dr's in Erie agreed (I think it was

> Koury or Kisham b/c

> is out until tomorrow) they agreed to get it

> off immediately

> & not wait until the weekend which I was glad to

> hear. So we had it

> removed & x-rayed @ our local ER here & it was the

> exact same

> situation/problem as with her first cast, was

> HORRIBLE & raw &

> stinky & rashy. It's much better now after 24 hrs +

> a bit more of

> cleaning & healing, but it was the same 1st degree

> burn type of skin

> breakdown, very gross. I personally think it's

> happened just

> recently b/c the cast has gotten so much tighter &

> leaved less room

> to dry out properly. So yeah, I won't be taking

> advantage of

> the " waterproof " aspect anymore either.. however I

> do like the

> fiberglass b/c of the size & weight of it biding her

> x-rays show to

> have held the improvment she's made, I really hope

> so!! It looks

> good, but not as good as after the removal of her

> last (plaster)

> cast to me so we'll see.. maybe we'll get plaster

> too while we're

> waiting for the brace (biding we're still able to go

> ahead & measure

> with the brace!). But I'm glad we made the call to

> have it removed,

> I couldn't imagine her having to live another day in

> it the way her

> skin was, I'm not exagerating either.. I have

> pictures of this time

> too of the immediate removal & it's aweful. Thanks

> for your input

> though on the cast & the bracing, we'll be sticking

> w/Shriner's for

> that part as well, I just hope it's still the next

> step for us :\..

> time will tell I guess!

>

> Hi Sue-- Thanks for your response too! Sorry to hear

> you lost ground

> on casting, I hope that's not the case for us but I

> wouldn't be

> surprise now I guess. We're defintely going to be

> sticking

> w/Shriner's for the bracing too.. again, thanks for

> the response!

>

> ~Joy & Solana

>

>

> > >

> > > Joy,

> > >

> > > They had me actually stick something down in the

> cast (they

> NEVER

> > normally recommend this) to peel the lining from

> his skin. I used

> a

> > rubber spatula to get down in there and I think I

> got it all

> > separated, thank goodness! His skin was so dry

> and in some areas

> > starting to break down. He looks a lot better

> now, but I can

> > definitely say this has soured me on the

> waterproof casts. I am

> > going to ask for plaster this next time around.

> It's just not

> worth

> > the hassle.

> > >

> > > I have no idea what to tell you about the brace

> as we have not

> hit

> > that hurdle yet. My plan is to stick with

> Shriners because I

> trust

> > Dr. K and I don't trust anyone here in VA..

> > >

> > >

> > > Noelle (12-2-01)

> > > Ian (8-15-04)

> > > Brace Question

> > >

> > >

> > > Hi Everyone, we've definitely been pretty

> incognito online

> this

> > past

> > > month has been crazy busy w/summer & such. I'm

> just checking

> in

> > to

> > > see how everyone is doing, I've perused

> through some of the

> > recent

> > > posts. How's Ian's skin doing , I

> didn't catch what

> you

> > > ended up deciding to do? Well Sol's is doing

> the same thing

> > again,

> > > we've loved the water proof cast it's just

> that she's growing

> > out if

> > > it already so I think it's too tight to dry

> properly (hence

> the

> > skin

> > > rawing underneath..) the padding is sticking

> to it again too

> so

>

=== message truncated ===

__________________________________________________

[Guest guest]

Hi Joy,

So sorry to hear about Solana's problems with her waterproof cast. We will be

thinking of you guys and praying that she is still on the the right track for

her correction. Addy is due back in Erie on the Sept.4-5. If you get scheduled

for an earlier casting -perhaps we will see you. I would love to catch up with

you again. Take Care!.... Amy & Addy

mosunshinebaby <mosunshinebaby@...> wrote:

Hi ! Thanks so much for the encouraging words! I hope so too

too but am afraid & anxious to find out. We're scheduled for the

18th of next month, if they work us in earlier it will probably only

be a week or two ahead she said but I'll defintiely let you know for

sure!! Take care

~Joy & Sol

> Hi Everyone, we've definitely been pretty incognito

online this past

> month has been crazy busy w/summer & such. I'm just checking in to

> see how everyone is doing, I've perused through some of the recent

> posts. How's Ian's skin doing , I didn't catch what you

> ended up deciding to do? Well Sol's is doing the same thing again,

> we've loved the water proof cast it's just that she's growing out

if

> it already so I think it's too tight to dry properly (hence the

skin

> rawing underneath..) the padding is sticking to it again too so

she

> hasn't been too comofrtable at night mostly. So I definitely want

to

> get it off ASAP, her skin is not looking good under there. The

> problem is we're not scheduled back until 9/18, that's going to be

> too late so I don't know what I'm going to do. I put a call in

w/Dr.

> Sander's sec. but I haven't heard back yet & Jane is out till

> Mon. & I'd like to have this taken off here like today or Mon. at

> the latest. I wanted to ask for some of your input on the bracing,

> Dr. said we could probably go with her brace measuring

next

> visit, hopefully that's still the case, her back still looks good

to

> me. Does anyone know if he uses the table to do the brace molds as

> well? Or is bracing something we can do through our local

> children's hospital? Well in any case I'm wondering too if maybe

we

> can just have her fitted for a brace here until we go back there

mid

> Sept. to have her last cast & brace measurements done, does anyone

> know how long that would take? And if the table aids the Dr.'s at

> Shriner's in bracing as well? I'm afraid to stop going there

> because I love Dr. & have faith in his treating her, my

> husband was wondering if we'd get the same bracing done here as

> there. Well I'll be talking to Shriner's & Children's here about

it

> too.. just wanted to get some other MOMMY input if anyone is

around

> who's been/going through it!! Thank you!

>

> ~Joy & Sol

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

>

[Guest guest]

Joy,

I was wondering if you could update me on your daughter's

improvements. Are they going to do a brace the next time you go to

Erie?? How many casts has she had?? What were the degrees and

improvements with her casts?? Does she have rotation that has been

corrected?? Sorry so many questions but not up to date with the

postings and trying to see if is still on track for her

brace...a light at the end of the tunnel!!. Thanks for the info.

Sue Cappelli

(02-23-04)

> > >

> > > > Brace Question

> > > >

> > > >

> > > > Hi Everyone, we've definitely been pretty

> > > > incognito online this past

> > > > month has been crazy busy w/summer & such. I'm

> > > > just checking in to

> > > > see how everyone is doing, I've perused

> > through

> > > > some of the recent

> > > > posts. How's Ian's skin doing , I

> > didn't

> > > > catch what you

> > > > ended up deciding to do? Well Sol's is doing

> > the

> > > > same thing again,

> > > > we've loved the water proof cast it's just

> > that

> > > > she's growing out if

> > > > it already so I think it's too tight to dry

> > > > properly (hence the skin

> > > > rawing underneath..) the padding is sticking

> > to it

> > > > again too so she

> > > > hasn't been too comofrtable at night mostly.

> > So I

> > > > definitely want to

> > > > get it off ASAP, her skin is not looking good

> > > > under there. The

> > > > problem is we're not scheduled back until

> > 9/18,

> > > > that's going to be

> > > > too late so I don't know what I'm going to do.

> > I

> > > > put a call in w/Dr.

> > > > Sander's sec. but I haven't heard back yet &

> >

> > > > Jane is out till

> > > > Mon. & I'd like to have this taken off here

> > like

> > > > today or Mon. at

> > > > the latest. I wanted to ask for some of your

> > input

> > > > on the bracing,

> > > > Dr. said we could probably go with her

> > > > brace measuring next

> > > > visit, hopefully that's still the case, her

> > back

> > > > still looks good to

> > > > me. Does anyone know if he uses the table to

> > do

> > > > the brace molds as

> > > > well? Or is bracing something we can do

> > through

> > > > our local

> > > > children's hospital? Well in any case I'm

> > > > wondering too if maybe we

> > > > can just have her fitted for a brace here

> > until we

> > > > go back there mid

> > > > Sept. to have her last cast & brace

> > measurements

> > > > done, does anyone

> > > > know how long that would take? And if the

> > table

> > > > aids the Dr.'s at

> > > > Shriner's in bracing as well? I'm afraid to

> > stop

> > > > going there

> > > > because I love Dr. & have faith in his

> > > > treating her, my

> > > > husband was wondering if we'd get the same

> > bracing

> > > > done here as

> > > > there. Well I'll be talking to Shriner's &

> > > > Children's here about it

> > > > too.. just wanted to get some other MOMMY

> > input if

> > > > anyone is around

> > > > who's been/going through it!! Thank you!

> > > >

> > > > ~Joy & Sol

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Madison was weaned out of her brace after wearing it for 8 months following her

7 casts. It was reduced by two hours a day each week until she only wore it at

night. She then wore it all night for a month and then discontinued it all

together. She has been completely out of her brace now for 3.5 months. So far,

all x-rays show correction is being maintained. She has an appt in Dallas this

Friday for new x-rays and pulm f/u. I'll post Monday when we get back home.

Jen

http://www.infantilescoliosis.org/madisons_story.htm

jimsuec <cappelli5@...> wrote:

Joy,

I was wondering if you could update me on your daughter's

improvements. Are they going to do a brace the next time you go to

Erie?? How many casts has she had?? What were the degrees and

improvements with her casts?? Does she have rotation that has been

corrected?? Sorry so many questions but not up to date with the

postings and trying to see if is still on track for her

brace...a light at the end of the tunnel!!. Thanks for the info.

Sue Cappelli

(02-23-04)

> > >

> > > > Brace Question

> > > >

> > > >

> > > > Hi Everyone, we've definitely been pretty

> > > > incognito online this past

> > > > month has been crazy busy w/summer & such. I'm

> > > > just checking in to

> > > > see how everyone is doing, I've perused

> > through

> > > > some of the recent

> > > > posts. How's Ian's skin doing , I

> > didn't

> > > > catch what you

> > > > ended up deciding to do? Well Sol's is doing

> > the

> > > > same thing again,

> > > > we've loved the water proof cast it's just

> > that

> > > > she's growing out if

> > > > it already so I think it's too tight to dry

> > > > properly (hence the skin

> > > > rawing underneath..) the padding is sticking

> > to it

> > > > again too so she

> > > > hasn't been too comofrtable at night mostly.

> > So I

> > > > definitely want to

> > > > get it off ASAP, her skin is not looking good

> > > > under there. The

> > > > problem is we're not scheduled back until

> > 9/18,

> > > > that's going to be

> > > > too late so I don't know what I'm going to do.

> > I

> > > > put a call in w/Dr.

> > > > Sander's sec. but I haven't heard back yet &

> >

> > > > Jane is out till

> > > > Mon. & I'd like to have this taken off here

> > like

> > > > today or Mon. at

> > > > the latest. I wanted to ask for some of your

> > input

> > > > on the bracing,

> > > > Dr. said we could probably go with her

> > > > brace measuring next

> > > > visit, hopefully that's still the case, her

> > back

> > > > still looks good to

> > > > me. Does anyone know if he uses the table to

> > do

> > > > the brace molds as

> > > > well? Or is bracing something we can do

> > through

> > > > our local

> > > > children's hospital? Well in any case I'm

> > > > wondering too if maybe we

> > > > can just have her fitted for a brace here

> > until we

> > > > go back there mid

> > > > Sept. to have her last cast & brace

> > measurements

> > > > done, does anyone

> > > > know how long that would take? And if the

> > table

> > > > aids the Dr.'s at

> > > > Shriner's in bracing as well? I'm afraid to

> > stop

> > > > going there

> > > > because I love Dr. & have faith in his

> > > > treating her, my

> > > > husband was wondering if we'd get the same

> > bracing

> > > > done here as

> > > > there. Well I'll be talking to Shriner's &

> > > > Children's here about it

> > > > too.. just wanted to get some other MOMMY

> > input if

> > > > anyone is around

> > > > who's been/going through it!! Thank you!

> > > >

> > > > ~Joy & Sol

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Thanks Me too! Again I don't think we'll be taking

advatage of the waterproof part anymore since that's what causes it

w/her once it gets real snug!

> > > >

> > > > Joy,

> > > >

> > > > They had me actually stick something down in the

> > cast (they

> > NEVER

> > > normally recommend this) to peel the lining from

> > his skin. I used

> > a

> > > rubber spatula to get down in there and I think I

> > got it all

> > > separated, thank goodness! His skin was so dry

> > and in some areas

> > > starting to break down. He looks a lot better

> > now, but I can

> > > definitely say this has soured me on the

> > waterproof casts. I am

> > > going to ask for plaster this next time around.

> > It's just not

> > worth

> > > the hassle.

> > > >

> > > > I have no idea what to tell you about the brace

> > as we have not

> > hit

> > > that hurdle yet. My plan is to stick with

> > Shriners because I

> > trust

> > > Dr. K and I don't trust anyone here in VA..

> > > >

> > > >

> > > > Noelle (12-2-01)

> > > > Ian (8-15-04)

> > > > Brace Question

> > > >

> > > >

> > > > Hi Everyone, we've definitely been pretty

> > incognito online

> > this

> > > past

> > > > month has been crazy busy w/summer & such. I'm

> > just checking

> > in

> > > to

> > > > see how everyone is doing, I've perused

> > through some of the

> > > recent

> > > > posts. How's Ian's skin doing , I

> > didn't catch what

> > you

> > > > ended up deciding to do? Well Sol's is doing

> > the same thing

> > > again,

> > > > we've loved the water proof cast it's just

> > that she's growing

> > > out if

> > > > it already so I think it's too tight to dry

> > properly (hence

> > the

> > > skin

> > > > rawing underneath..) the padding is sticking

> > to it again too

> > so

> >

> === message truncated ===

>

>

> __________________________________________________

>

[Guest guest]

Well good luck next month! Hopefully they'll be able to start

weaning him soon! Ask when you're there in a few weeks & let me

know! Take care ~Joy

> > >

> > > > Brace Question

> > > >

> > > >

> > > > Hi Everyone, we've definitely been pretty

> > > > incognito online this past

> > > > month has been crazy busy w/summer & such. I'm

> > > > just checking in to

> > > > see how everyone is doing, I've perused

> > through

> > > > some of the recent

> > > > posts. How's Ian's skin doing , I

> > didn't

> > > > catch what you

> > > > ended up deciding to do? Well Sol's is doing

> > the

> > > > same thing again,

> > > > we've loved the water proof cast it's just

> > that

> > > > she's growing out if

> > > > it already so I think it's too tight to dry

> > > > properly (hence the skin

> > > > rawing underneath..) the padding is sticking

> > to it

> > > > again too so she

> > > > hasn't been too comofrtable at night mostly.

> > So I

> > > > definitely want to

> > > > get it off ASAP, her skin is not looking good

> > > > under there. The

> > > > problem is we're not scheduled back until

> > 9/18,

> > > > that's going to be

> > > > too late so I don't know what I'm going to do.

> > I

> > > > put a call in w/Dr.

> > > > Sander's sec. but I haven't heard back yet &

> >

> > > > Jane is out till

> > > > Mon. & I'd like to have this taken off here

> > like

> > > > today or Mon. at

> > > > the latest. I wanted to ask for some of your

> > input

> > > > on the bracing,

> > > > Dr. said we could probably go with her

> > > > brace measuring next

> > > > visit, hopefully that's still the case, her

> > back

> > > > still looks good to

> > > > me. Does anyone know if he uses the table to

> > do

> > > > the brace molds as

> > > > well? Or is bracing something we can do

> > through

> > > > our local

> > > > children's hospital? Well in any case I'm

> > > > wondering too if maybe we

> > > > can just have her fitted for a brace here

> > until we

> > > > go back there mid

> > > > Sept. to have her last cast & brace

> > measurements

> > > > done, does anyone

> > > > know how long that would take? And if the

> > table

> > > > aids the Dr.'s at

> > > > Shriner's in bracing as well? I'm afraid to

> > stop

> > > > going there

> > > > because I love Dr. & have faith in his

> > > > treating her, my

> > > > husband was wondering if we'd get the same

> > bracing

> > > > done here as

> > > > there. Well I'll be talking to Shriner's &

> > > > Children's here about it

> > > > too.. just wanted to get some other MOMMY

> > input if

> > > > anyone is around

> > > > who's been/going through it!! Thank you!

> > > >

> > > > ~Joy & Sol

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Hi Amy! Thanks, yes it's unfortunate.. hopefully the correction was

attained though. And yes! We're scheduled to have her new one done

on the 5th! So great, we'll get to see you guys again! We'll be

there 7AM. My husband & I are debating though which one of us will

go, he wants to go b/c (if you remember??) I'm pregnant (6 mos.

now!) and he doesn't want me traveling the distance w/her by myself,

but I think I can handle it I'm in great shape & feel great & can't

stand the idea of not being there with her & not being there to

discuss everything over w/the Dr.. so we're still in the midst of

deciding, he's pretty adamant about me staying here but we'll see,

I'm going to speak with my OB tommorow about it Will keep you

posted! Thanks for the prayers, hope Addy is doing good I'd love to

catch up w/you too, will let you know for sure soon.. take care. ~Joy

> > Hi Everyone, we've definitely been pretty incognito

> online this past

> > month has been crazy busy w/summer & such. I'm just checking in

to

> > see how everyone is doing, I've perused through some of the

recent

> > posts. How's Ian's skin doing , I didn't catch what you

> > ended up deciding to do? Well Sol's is doing the same thing

again,

> > we've loved the water proof cast it's just that she's growing

out

> if

> > it already so I think it's too tight to dry properly (hence the

> skin

> > rawing underneath..) the padding is sticking to it again too so

> she

> > hasn't been too comofrtable at night mostly. So I definitely

want

> to

> > get it off ASAP, her skin is not looking good under there. The

> > problem is we're not scheduled back until 9/18, that's going to

be

> > too late so I don't know what I'm going to do. I put a call in

> w/Dr.

> > Sander's sec. but I haven't heard back yet & Jane is out

till

> > Mon. & I'd like to have this taken off here like today or Mon.

at

> > the latest. I wanted to ask for some of your input on the

bracing,

> > Dr. said we could probably go with her brace measuring

> next

> > visit, hopefully that's still the case, her back still looks

good

> to

> > me. Does anyone know if he uses the table to do the brace molds

as

> > well? Or is bracing something we can do through our local

> > children's hospital? Well in any case I'm wondering too if maybe

> we

> > can just have her fitted for a brace here until we go back there

> mid

> > Sept. to have her last cast & brace measurements done, does

anyone

> > know how long that would take? And if the table aids the Dr.'s

at

> > Shriner's in bracing as well? I'm afraid to stop going there

> > because I love Dr. & have faith in his treating her, my

> > husband was wondering if we'd get the same bracing done here as

> > there. Well I'll be talking to Shriner's & Children's here about

> it

> > too.. just wanted to get some other MOMMY input if anyone is

> around

> > who's been/going through it!! Thank you!

> >

> > ~Joy & Sol

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Get your email and more, right on the new .com

> >

> >

[Guest guest]

Hi Sue,

After her last cast application Dr. was very pleased with

her progress & did say he thinks we'll be able to look forward to

going ahead & fitting her for the brace next visit. Since then we've

mailed her out of cast x-ray to him (after her removal we had done

here @ home) & are waiting to hear back as to whether her

improvement has held & if we are in fact getting her brace done this

next appt. or not... cross your fingers for us & good news! The only

concern I have is the fact that other people have lost ground after

the fiberglass cast. We should know by the end of this week & when I

find out I will post on it!

This cast she's in is only her 3rd cast. Before her first one she

was in the 50's on both Cobb & RVAD. After her first removal she was

in the high 20's for Cobb & 30's for RVAD. After her 2nd removal she

was in the teens with both Cobb & RVAD & with her 3rd cast ON she

measured 8o Cobb & 2o RVAD with great rotation improvement being

made through all of them. I'm anxious now to find out what the x-ray

that we mailed him reads (her out of 3rd cast x-ray) when I find out

I will post & let you know!

I think as long as you are seeing some little bit of correction with

every cast that has been in then you guys are probably still

on track you know, but of course every child is different, curves

are different, response is different, etc. Solana has a Lumbar curve

& they've termed her curve as pretty flexible (not rigid) so they're

always able to get the measurements much lower in the cast &

the " growing " she's doing in them is seeming to work great as a

corrective process like these casts are supposed to do, I think as

long as that's happening 's bound to still be on track for

her brace.. check w/Dr. & let us know! Also, Solana had her first

one off for 3.5 weeks before her 2nd application & the correction

that was attained in the first cast held too so that was a good sign

to me I thought, that the correction is holding, & once we make it

to a brace & start weaning hopefully the result will be the same :\

Good luck in getting into hers, let us know what Dr. says. Cross

your fingers for us that we didn't loose ground.. maybe we'll have

to wait out another 2-3 casts too :\

Take care!

~Joy & Solana

> > > >

> > > > > Brace Question

> > > > >

> > > > >

> > > > > Hi Everyone, we've definitely been pretty

> > > > > incognito online this past

> > > > > month has been crazy busy w/summer & such. I'm

> > > > > just checking in to

> > > > > see how everyone is doing, I've perused

> > > through

> > > > > some of the recent

> > > > > posts. How's Ian's skin doing , I

> > > didn't

> > > > > catch what you

> > > > > ended up deciding to do? Well Sol's is doing

> > > the

> > > > > same thing again,

> > > > > we've loved the water proof cast it's just

> > > that

> > > > > she's growing out if

> > > > > it already so I think it's too tight to dry

> > > > > properly (hence the skin

> > > > > rawing underneath..) the padding is sticking

> > > to it

> > > > > again too so she

> > > > > hasn't been too comofrtable at night mostly.

> > > So I

> > > > > definitely want to

> > > > > get it off ASAP, her skin is not looking good

> > > > > under there. The

> > > > > problem is we're not scheduled back until

> > > 9/18,

> > > > > that's going to be

> > > > > too late so I don't know what I'm going to do.

> > > I

> > > > > put a call in w/Dr.

> > > > > Sander's sec. but I haven't heard back yet &

> > >

> > > > > Jane is out till

> > > > > Mon. & I'd like to have this taken off here

> > > like

> > > > > today or Mon. at

> > > > > the latest. I wanted to ask for some of your

> > > input

> > > > > on the bracing,

> > > > > Dr. said we could probably go with her

> > > > > brace measuring next

> > > > > visit, hopefully that's still the case, her

> > > back

> > > > > still looks good to

> > > > > me. Does anyone know if he uses the table to

> > > do

> > > > > the brace molds as

> > > > > well? Or is bracing something we can do

> > > through

> > > > > our local

> > > > > children's hospital? Well in any case I'm

> > > > > wondering too if maybe we

> > > > > can just have her fitted for a brace here

> > > until we

> > > > > go back there mid

> > > > > Sept. to have her last cast & brace

> > > measurements

> > > > > done, does anyone

> > > > > know how long that would take? And if the

> > > table

> > > > > aids the Dr.'s at

> > > > > Shriner's in bracing as well? I'm afraid to

> > > stop

> > > > > going there

> > > > > because I love Dr. & have faith in his

> > > > > treating her, my

> > > > > husband was wondering if we'd get the same

> > > bracing

> > > > > done here as

> > > > > there. Well I'll be talking to Shriner's &

> > > > > Children's here about it

> > > > > too.. just wanted to get some other MOMMY

> > > input if

> > > > > anyone is around

> > > > > who's been/going through it!! Thank you!

> > > > >

> > > > > ~Joy & Sol

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > [Non-text portions of this message have been

> > > > > removed]

> > > > >

> > > > >

> > > >

> > > >

> > > > __________________________________________________

> > > >