Re: [Actmad] What's wrong with NAMI?

[Guest guest]

Thanks Alison.

personwho@... wrote: In no particular order:

1. NAMI tells parents that their children are permanently damaged and that

their lives will be tragic. (have heard this one directly.)

2. NAMI is successfully pushing PACT, an expensive and coercive and

disempowering program that leads to permanent dependence rather than any

kind of independent life, and which does not improve the quality of life of

participants, all over the country. It is using up huge amounts of

extremely limited resources and essentially stealing from alternative

consumer run programs and even from traditional talk therapy for people in

the public mental health system.

3. NAMI lies and claims to be a patient group, speaking for

consumers/survivors/ex-patients, when it is only speaking for family members

and only for a certain subset of controlling, usually middle class to above,

white, family members. The media has fallen for this and asks NAMI's

opinion instead of asking real patient or csx groups.

4. NAMI takes a huge amount of money from big Pharma, tainting every

decision and policy they make. NAMI even, like AARP, supported the

notoriously awful Medicare bill that is going to cost me and countless

others a lot of money over the next several years in lost private benefits

and lost opportunity for imported drugs and negotiated prices. (transplant

drugs are hugely expensive as are most cardiac and other drugs the elderly

use.)

5. NAMI supports coercion and forced treatment. It never comes out against

it. NAMI supports the keeping open of state hospitals.

6. NAMI lies. (See all previous numbers.)

Alison

_______________________________________________

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Actmad@...

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F. Prior Calendar: http://calendar./j_prior

T: 773/774-6696

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E: jprior@... W: www.lgln.com

: 22:36-40, Deut 6:5, and Leviticus 19:18

[Guest guest]

Thanks Alison.

personwho@... wrote: In no particular order:

1. NAMI tells parents that their children are permanently damaged and that

their lives will be tragic. (have heard this one directly.)

2. NAMI is successfully pushing PACT, an expensive and coercive and

disempowering program that leads to permanent dependence rather than any

kind of independent life, and which does not improve the quality of life of

participants, all over the country. It is using up huge amounts of

extremely limited resources and essentially stealing from alternative

consumer run programs and even from traditional talk therapy for people in

the public mental health system.

3. NAMI lies and claims to be a patient group, speaking for

consumers/survivors/ex-patients, when it is only speaking for family members

and only for a certain subset of controlling, usually middle class to above,

white, family members. The media has fallen for this and asks NAMI's

opinion instead of asking real patient or csx groups.

4. NAMI takes a huge amount of money from big Pharma, tainting every

decision and policy they make. NAMI even, like AARP, supported the

notoriously awful Medicare bill that is going to cost me and countless

others a lot of money over the next several years in lost private benefits

and lost opportunity for imported drugs and negotiated prices. (transplant

drugs are hugely expensive as are most cardiac and other drugs the elderly

use.)

5. NAMI supports coercion and forced treatment. It never comes out against

it. NAMI supports the keeping open of state hospitals.

6. NAMI lies. (See all previous numbers.)

Alison

_______________________________________________

Actmad mailing list

Actmad@...

http://mail.elopp.net/mailman/listinfo/actmad_elopp.net

F. Prior Calendar: http://calendar./j_prior

T: 773/774-6696

M: 773/230-5825 F: 801/848-3451

E: jprior@... W: www.lgln.com

: 22:36-40, Deut 6:5, and Leviticus 19:18

[Guest guest]

Thanks Alison.

personwho@... wrote: In no particular order:

1. NAMI tells parents that their children are permanently damaged and that

their lives will be tragic. (have heard this one directly.)

2. NAMI is successfully pushing PACT, an expensive and coercive and

disempowering program that leads to permanent dependence rather than any

kind of independent life, and which does not improve the quality of life of

participants, all over the country. It is using up huge amounts of

extremely limited resources and essentially stealing from alternative

consumer run programs and even from traditional talk therapy for people in

the public mental health system.

3. NAMI lies and claims to be a patient group, speaking for

consumers/survivors/ex-patients, when it is only speaking for family members

and only for a certain subset of controlling, usually middle class to above,

white, family members. The media has fallen for this and asks NAMI's

opinion instead of asking real patient or csx groups.

4. NAMI takes a huge amount of money from big Pharma, tainting every

decision and policy they make. NAMI even, like AARP, supported the

notoriously awful Medicare bill that is going to cost me and countless

others a lot of money over the next several years in lost private benefits

and lost opportunity for imported drugs and negotiated prices. (transplant

drugs are hugely expensive as are most cardiac and other drugs the elderly

use.)

5. NAMI supports coercion and forced treatment. It never comes out against

it. NAMI supports the keeping open of state hospitals.

6. NAMI lies. (See all previous numbers.)

Alison

_______________________________________________

Actmad mailing list

Actmad@...

http://mail.elopp.net/mailman/listinfo/actmad_elopp.net

F. Prior Calendar: http://calendar./j_prior

T: 773/774-6696

M: 773/230-5825 F: 801/848-3451

E: jprior@... W: www.lgln.com

: 22:36-40, Deut 6:5, and Leviticus 19:18

[Guest guest]

Thanks Alison.

personwho@... wrote: In no particular order:

1. NAMI tells parents that their children are permanently damaged and that

their lives will be tragic. (have heard this one directly.)

2. NAMI is successfully pushing PACT, an expensive and coercive and

disempowering program that leads to permanent dependence rather than any

kind of independent life, and which does not improve the quality of life of

participants, all over the country. It is using up huge amounts of

extremely limited resources and essentially stealing from alternative

consumer run programs and even from traditional talk therapy for people in

the public mental health system.

3. NAMI lies and claims to be a patient group, speaking for

consumers/survivors/ex-patients, when it is only speaking for family members

and only for a certain subset of controlling, usually middle class to above,

white, family members. The media has fallen for this and asks NAMI's

opinion instead of asking real patient or csx groups.

4. NAMI takes a huge amount of money from big Pharma, tainting every

decision and policy they make. NAMI even, like AARP, supported the

notoriously awful Medicare bill that is going to cost me and countless

others a lot of money over the next several years in lost private benefits

and lost opportunity for imported drugs and negotiated prices. (transplant

drugs are hugely expensive as are most cardiac and other drugs the elderly

use.)

5. NAMI supports coercion and forced treatment. It never comes out against

it. NAMI supports the keeping open of state hospitals.

6. NAMI lies. (See all previous numbers.)

Alison

_______________________________________________

Actmad mailing list

Actmad@...

http://mail.elopp.net/mailman/listinfo/actmad_elopp.net

F. Prior Calendar: http://calendar./j_prior

T: 773/774-6696

M: 773/230-5825 F: 801/848-3451

E: jprior@... W: www.lgln.com

: 22:36-40, Deut 6:5, and Leviticus 19:18