Pegasys and doctors

[Guest guest]

But first, I had my media training last night and am the official Chicago

Pegasys/Hep C Awareness spokesperson.

Two weeks ago my platelets dropped from the 112,000 - 124,000 they have held at

all through treatment to 69,000. I did extensive research on what possibilities

there were for me to try. Platelet production is dependent on Calcium and

Vitamin K. Sure Interferon destroys platelets, but if you can keep them

producing (I thought) maybe I could pull the count up by adding Vitamin K (which

comes from the sun and in Chicago winters, it's a rare day when you have sun).

So I added Vitamin K to my regime and increased my calcium with low doses that I

took with the K a couple times a day.

My platelets were up to 86,000. I had carefully read Roche's guidlines and even

spoke with a nurse at Pegassist. Their guidelines state if platelets drop to

50,000 you go to half dose interferon...if they drop to 25,000 you get pulled

from treatment. I stuck the guidelines in my purse before going to County today.

The intern looks at my counts and tells me he has to put me on half dose because

the pharma's guidelines stated under 90,000 for two weeks you go to half dose.

Excuse me, but what pharma's guidelines are these because I have Roche's

guidelines right here and that's not what they say. He said those were

Schering's guidelines. In utter shock I stated that I wasn't on PegIntron and

here are Roche's guidelines. He had the audacity to tell me that he had never

read Roche's guidelines and could he keep the copy of their guidelines.

Can you imagine that he had never read Roche's guidelines? I'd also like to know

if anyone is on PegIntron, what the inserts in each package state as to

treatment changes with the various levels of platelets.

It is so sad that we can't trust our health to those medical professionals who

are supposed to know about treating health issues.

Blessings

Tatezi

[Guest guest]

But first, I had my media training last night and am the official Chicago

Pegasys/Hep C Awareness spokesperson.

Two weeks ago my platelets dropped from the 112,000 - 124,000 they have held at

all through treatment to 69,000. I did extensive research on what possibilities

there were for me to try. Platelet production is dependent on Calcium and

Vitamin K. Sure Interferon destroys platelets, but if you can keep them

producing (I thought) maybe I could pull the count up by adding Vitamin K (which

comes from the sun and in Chicago winters, it's a rare day when you have sun).

So I added Vitamin K to my regime and increased my calcium with low doses that I

took with the K a couple times a day.

My platelets were up to 86,000. I had carefully read Roche's guidlines and even

spoke with a nurse at Pegassist. Their guidelines state if platelets drop to

50,000 you go to half dose interferon...if they drop to 25,000 you get pulled

from treatment. I stuck the guidelines in my purse before going to County today.

The intern looks at my counts and tells me he has to put me on half dose because

the pharma's guidelines stated under 90,000 for two weeks you go to half dose.

Excuse me, but what pharma's guidelines are these because I have Roche's

guidelines right here and that's not what they say. He said those were

Schering's guidelines. In utter shock I stated that I wasn't on PegIntron and

here are Roche's guidelines. He had the audacity to tell me that he had never

read Roche's guidelines and could he keep the copy of their guidelines.

Can you imagine that he had never read Roche's guidelines? I'd also like to know

if anyone is on PegIntron, what the inserts in each package state as to

treatment changes with the various levels of platelets.

It is so sad that we can't trust our health to those medical professionals who

are supposed to know about treating health issues.

Blessings

Tatezi

[Guest guest]

But first, I had my media training last night and am the official Chicago

Pegasys/Hep C Awareness spokesperson.

Two weeks ago my platelets dropped from the 112,000 - 124,000 they have held at

all through treatment to 69,000. I did extensive research on what possibilities

there were for me to try. Platelet production is dependent on Calcium and

Vitamin K. Sure Interferon destroys platelets, but if you can keep them

producing (I thought) maybe I could pull the count up by adding Vitamin K (which

comes from the sun and in Chicago winters, it's a rare day when you have sun).

So I added Vitamin K to my regime and increased my calcium with low doses that I

took with the K a couple times a day.

My platelets were up to 86,000. I had carefully read Roche's guidlines and even

spoke with a nurse at Pegassist. Their guidelines state if platelets drop to

50,000 you go to half dose interferon...if they drop to 25,000 you get pulled

from treatment. I stuck the guidelines in my purse before going to County today.

The intern looks at my counts and tells me he has to put me on half dose because

the pharma's guidelines stated under 90,000 for two weeks you go to half dose.

Excuse me, but what pharma's guidelines are these because I have Roche's

guidelines right here and that's not what they say. He said those were

Schering's guidelines. In utter shock I stated that I wasn't on PegIntron and

here are Roche's guidelines. He had the audacity to tell me that he had never

read Roche's guidelines and could he keep the copy of their guidelines.

Can you imagine that he had never read Roche's guidelines? I'd also like to know

if anyone is on PegIntron, what the inserts in each package state as to

treatment changes with the various levels of platelets.

It is so sad that we can't trust our health to those medical professionals who

are supposed to know about treating health issues.

Blessings

Tatezi

[Guest guest]

But first, I had my media training last night and am the official Chicago

Pegasys/Hep C Awareness spokesperson.

Two weeks ago my platelets dropped from the 112,000 - 124,000 they have held at

all through treatment to 69,000. I did extensive research on what possibilities

there were for me to try. Platelet production is dependent on Calcium and

Vitamin K. Sure Interferon destroys platelets, but if you can keep them

producing (I thought) maybe I could pull the count up by adding Vitamin K (which

comes from the sun and in Chicago winters, it's a rare day when you have sun).

So I added Vitamin K to my regime and increased my calcium with low doses that I

took with the K a couple times a day.

My platelets were up to 86,000. I had carefully read Roche's guidlines and even

spoke with a nurse at Pegassist. Their guidelines state if platelets drop to

50,000 you go to half dose interferon...if they drop to 25,000 you get pulled

from treatment. I stuck the guidelines in my purse before going to County today.

The intern looks at my counts and tells me he has to put me on half dose because

the pharma's guidelines stated under 90,000 for two weeks you go to half dose.

Excuse me, but what pharma's guidelines are these because I have Roche's

guidelines right here and that's not what they say. He said those were

Schering's guidelines. In utter shock I stated that I wasn't on PegIntron and

here are Roche's guidelines. He had the audacity to tell me that he had never

read Roche's guidelines and could he keep the copy of their guidelines.

Can you imagine that he had never read Roche's guidelines? I'd also like to know

if anyone is on PegIntron, what the inserts in each package state as to

treatment changes with the various levels of platelets.

It is so sad that we can't trust our health to those medical professionals who

are supposed to know about treating health issues.

Blessings

Tatezi