Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 Thank you for your support. I wish we had more like you in here. We really need a lot of votes to make our voices heard.  I'm so sorry about your reaction to the treatment. I got very few side effects as I was taking care of my 85 yr old father and he needed me to be strong for him. But the treatment took my platelet count so low, the Dr. discontinued it and said I was a non-responder. That simple. I felt  I was dismissed to die. No alternative meds at present but next yr the treatment will change and is much more effective, but I can no longer hope for treatment. Crackers and frozen 7-up helped me. We all loose our appitites I think, when on treatment. As the years passed I celabrated every lb I gained as it gave me one more day at the end or so I thought. Since cancer developed last yr, I've dropped from 145 to 124 and eating 5 or 6 small portions a day, lots of fruits and veggies and sometimes half a gallon of ice cream. Warning. Sugar feeds cancer so don't do as I do. Now I feel what the heck, I'm going to enjoy everything right now. Poor Abdu and and those who have to hide their illness. It's so much better to talk. Its a crappy day for me today also, so know I am with u in spirit and heart. One can get it by sharing dollar bills rolled up if both have a blood vessel break in thier nose. That's in my talks. Not saying that's how you got it. You know it doesn't matter how we got it, we're all victims and in the same boat. Just information for all. I'm very proud that you are open and honest about our plight. You may keep someone else  from getting it. You are a brave woman. Keep on truckin girlfriend.  The more we talk, the more we will get others, both with it and without it, on our side and help those down the road. I feel I got it for a reason, perhaps to do what I do. Talk about it freely, educate others and pray we make the scientists discover a treatment for us like they did AIDS. You were treated horribly at the pharmacy. How dare they not have the meds readily for us but it's just another indication of the ignorance surrounding Hep C, B and all they way to E now. The scarey part of Hep is once a med attacks it, it mutates so by all means keep up the treatment and I'm so happy it has worked for u.  Your sister  Patti  On Tue, 7/20/10, Sheri Sheeder <sherisheeder@...> wrote: From: Sheri Sheeder <sherisheeder@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 11:16 PM  Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 Thank you for your support. I wish we had more like you in here. We really need a lot of votes to make our voices heard.  I'm so sorry about your reaction to the treatment. I got very few side effects as I was taking care of my 85 yr old father and he needed me to be strong for him. But the treatment took my platelet count so low, the Dr. discontinued it and said I was a non-responder. That simple. I felt  I was dismissed to die. No alternative meds at present but next yr the treatment will change and is much more effective, but I can no longer hope for treatment. Crackers and frozen 7-up helped me. We all loose our appitites I think, when on treatment. As the years passed I celabrated every lb I gained as it gave me one more day at the end or so I thought. Since cancer developed last yr, I've dropped from 145 to 124 and eating 5 or 6 small portions a day, lots of fruits and veggies and sometimes half a gallon of ice cream. Warning. Sugar feeds cancer so don't do as I do. Now I feel what the heck, I'm going to enjoy everything right now. Poor Abdu and and those who have to hide their illness. It's so much better to talk. Its a crappy day for me today also, so know I am with u in spirit and heart. One can get it by sharing dollar bills rolled up if both have a blood vessel break in thier nose. That's in my talks. Not saying that's how you got it. You know it doesn't matter how we got it, we're all victims and in the same boat. Just information for all. I'm very proud that you are open and honest about our plight. You may keep someone else  from getting it. You are a brave woman. Keep on truckin girlfriend.  The more we talk, the more we will get others, both with it and without it, on our side and help those down the road. I feel I got it for a reason, perhaps to do what I do. Talk about it freely, educate others and pray we make the scientists discover a treatment for us like they did AIDS. You were treated horribly at the pharmacy. How dare they not have the meds readily for us but it's just another indication of the ignorance surrounding Hep C, B and all they way to E now. The scarey part of Hep is once a med attacks it, it mutates so by all means keep up the treatment and I'm so happy it has worked for u.  Your sister  Patti  On Tue, 7/20/10, Sheri Sheeder <sherisheeder@...> wrote: From: Sheri Sheeder <sherisheeder@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 11:16 PM  Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 Thank you for your support. I wish we had more like you in here. We really need a lot of votes to make our voices heard.  I'm so sorry about your reaction to the treatment. I got very few side effects as I was taking care of my 85 yr old father and he needed me to be strong for him. But the treatment took my platelet count so low, the Dr. discontinued it and said I was a non-responder. That simple. I felt  I was dismissed to die. No alternative meds at present but next yr the treatment will change and is much more effective, but I can no longer hope for treatment. Crackers and frozen 7-up helped me. We all loose our appitites I think, when on treatment. As the years passed I celabrated every lb I gained as it gave me one more day at the end or so I thought. Since cancer developed last yr, I've dropped from 145 to 124 and eating 5 or 6 small portions a day, lots of fruits and veggies and sometimes half a gallon of ice cream. Warning. Sugar feeds cancer so don't do as I do. Now I feel what the heck, I'm going to enjoy everything right now. Poor Abdu and and those who have to hide their illness. It's so much better to talk. Its a crappy day for me today also, so know I am with u in spirit and heart. One can get it by sharing dollar bills rolled up if both have a blood vessel break in thier nose. That's in my talks. Not saying that's how you got it. You know it doesn't matter how we got it, we're all victims and in the same boat. Just information for all. I'm very proud that you are open and honest about our plight. You may keep someone else  from getting it. You are a brave woman. Keep on truckin girlfriend.  The more we talk, the more we will get others, both with it and without it, on our side and help those down the road. I feel I got it for a reason, perhaps to do what I do. Talk about it freely, educate others and pray we make the scientists discover a treatment for us like they did AIDS. You were treated horribly at the pharmacy. How dare they not have the meds readily for us but it's just another indication of the ignorance surrounding Hep C, B and all they way to E now. The scarey part of Hep is once a med attacks it, it mutates so by all means keep up the treatment and I'm so happy it has worked for u.  Your sister  Patti  On Tue, 7/20/10, Sheri Sheeder <sherisheeder@...> wrote: From: Sheri Sheeder <sherisheeder@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 11:16 PM  Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 Thank you for your support. I wish we had more like you in here. We really need a lot of votes to make our voices heard.  I'm so sorry about your reaction to the treatment. I got very few side effects as I was taking care of my 85 yr old father and he needed me to be strong for him. But the treatment took my platelet count so low, the Dr. discontinued it and said I was a non-responder. That simple. I felt  I was dismissed to die. No alternative meds at present but next yr the treatment will change and is much more effective, but I can no longer hope for treatment. Crackers and frozen 7-up helped me. We all loose our appitites I think, when on treatment. As the years passed I celabrated every lb I gained as it gave me one more day at the end or so I thought. Since cancer developed last yr, I've dropped from 145 to 124 and eating 5 or 6 small portions a day, lots of fruits and veggies and sometimes half a gallon of ice cream. Warning. Sugar feeds cancer so don't do as I do. Now I feel what the heck, I'm going to enjoy everything right now. Poor Abdu and and those who have to hide their illness. It's so much better to talk. Its a crappy day for me today also, so know I am with u in spirit and heart. One can get it by sharing dollar bills rolled up if both have a blood vessel break in thier nose. That's in my talks. Not saying that's how you got it. You know it doesn't matter how we got it, we're all victims and in the same boat. Just information for all. I'm very proud that you are open and honest about our plight. You may keep someone else  from getting it. You are a brave woman. Keep on truckin girlfriend.  The more we talk, the more we will get others, both with it and without it, on our side and help those down the road. I feel I got it for a reason, perhaps to do what I do. Talk about it freely, educate others and pray we make the scientists discover a treatment for us like they did AIDS. You were treated horribly at the pharmacy. How dare they not have the meds readily for us but it's just another indication of the ignorance surrounding Hep C, B and all they way to E now. The scarey part of Hep is once a med attacks it, it mutates so by all means keep up the treatment and I'm so happy it has worked for u.  Your sister  Patti  On Tue, 7/20/10, Sheri Sheeder <sherisheeder@...> wrote: From: Sheri Sheeder <sherisheeder@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 11:16 PM  Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 patty, i " personally " do not hide my disease,i just dont talk about it. if i were to get V.D. or crabs from having sex  im not going to go out and tell my neighbors so they can be educated about s.t.d's. i feel like we who choose to keep this to ourselves DOESNOT MAKE US BAD! again,i told my sister about this and she went and threw it up in my face later because i wasnt complying to her needs and she told the rest of my family,she also told them i got it from my husband,my husband is negitive and i told her that and she called me a effin lier, MY SISTER!!! i dont live in the public,i live a very calm/private life,i dont see where i should start going to meetings and public places to tell total strangers about hepc.ive never been a public person for any other issues either.not everyone is designed in that way,to go out and push info for a cause.just like im not designed to be a teacher/beautician/doctor i was not designed to carry out those types of careers. i undestand what you are saying totally but a " handful " of people find it in their best interest to keep it to themselves and choose not to put theirselves out there like that and i totally understand that,because im one of them.i also choose not to do treatment.i dont put anything toxic in my body.God is thee only one that i will allow to take care of my body NOT a cocktail of drugs,thats just my choice. i just dont get wat you mean when you say scream from the rooftops...that sounds like a horriffying idea to me.  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 patty, i " personally " do not hide my disease,i just dont talk about it. if i were to get V.D. or crabs from having sex  im not going to go out and tell my neighbors so they can be educated about s.t.d's. i feel like we who choose to keep this to ourselves DOESNOT MAKE US BAD! again,i told my sister about this and she went and threw it up in my face later because i wasnt complying to her needs and she told the rest of my family,she also told them i got it from my husband,my husband is negitive and i told her that and she called me a effin lier, MY SISTER!!! i dont live in the public,i live a very calm/private life,i dont see where i should start going to meetings and public places to tell total strangers about hepc.ive never been a public person for any other issues either.not everyone is designed in that way,to go out and push info for a cause.just like im not designed to be a teacher/beautician/doctor i was not designed to carry out those types of careers. i undestand what you are saying totally but a " handful " of people find it in their best interest to keep it to themselves and choose not to put theirselves out there like that and i totally understand that,because im one of them.i also choose not to do treatment.i dont put anything toxic in my body.God is thee only one that i will allow to take care of my body NOT a cocktail of drugs,thats just my choice. i just dont get wat you mean when you say scream from the rooftops...that sounds like a horriffying idea to me.  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 patty, i " personally " do not hide my disease,i just dont talk about it. if i were to get V.D. or crabs from having sex  im not going to go out and tell my neighbors so they can be educated about s.t.d's. i feel like we who choose to keep this to ourselves DOESNOT MAKE US BAD! again,i told my sister about this and she went and threw it up in my face later because i wasnt complying to her needs and she told the rest of my family,she also told them i got it from my husband,my husband is negitive and i told her that and she called me a effin lier, MY SISTER!!! i dont live in the public,i live a very calm/private life,i dont see where i should start going to meetings and public places to tell total strangers about hepc.ive never been a public person for any other issues either.not everyone is designed in that way,to go out and push info for a cause.just like im not designed to be a teacher/beautician/doctor i was not designed to carry out those types of careers. i undestand what you are saying totally but a " handful " of people find it in their best interest to keep it to themselves and choose not to put theirselves out there like that and i totally understand that,because im one of them.i also choose not to do treatment.i dont put anything toxic in my body.God is thee only one that i will allow to take care of my body NOT a cocktail of drugs,thats just my choice. i just dont get wat you mean when you say scream from the rooftops...that sounds like a horriffying idea to me.  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 patty, i " personally " do not hide my disease,i just dont talk about it. if i were to get V.D. or crabs from having sex  im not going to go out and tell my neighbors so they can be educated about s.t.d's. i feel like we who choose to keep this to ourselves DOESNOT MAKE US BAD! again,i told my sister about this and she went and threw it up in my face later because i wasnt complying to her needs and she told the rest of my family,she also told them i got it from my husband,my husband is negitive and i told her that and she called me a effin lier, MY SISTER!!! i dont live in the public,i live a very calm/private life,i dont see where i should start going to meetings and public places to tell total strangers about hepc.ive never been a public person for any other issues either.not everyone is designed in that way,to go out and push info for a cause.just like im not designed to be a teacher/beautician/doctor i was not designed to carry out those types of careers. i undestand what you are saying totally but a " handful " of people find it in their best interest to keep it to themselves and choose not to put theirselves out there like that and i totally understand that,because im one of them.i also choose not to do treatment.i dont put anything toxic in my body.God is thee only one that i will allow to take care of my body NOT a cocktail of drugs,thats just my choice. i just dont get wat you mean when you say scream from the rooftops...that sounds like a horriffying idea to me.  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 i do not live in a land of saints,people are evil and im not going to subject myself to even 1 of them.oh wait,i did>my sister,my bad!!! i believe that a cure will be and is being worked on now,we are just not hearing about it.do you know how rich they are going to be when they do bring it out,so yeah i totally believe a cure IS in the works as i speak.they want it $$$ as bad as we do. From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 i do not live in a land of saints,people are evil and im not going to subject myself to even 1 of them.oh wait,i did>my sister,my bad!!! i believe that a cure will be and is being worked on now,we are just not hearing about it.do you know how rich they are going to be when they do bring it out,so yeah i totally believe a cure IS in the works as i speak.they want it $$$ as bad as we do. From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 i do not live in a land of saints,people are evil and im not going to subject myself to even 1 of them.oh wait,i did>my sister,my bad!!! i believe that a cure will be and is being worked on now,we are just not hearing about it.do you know how rich they are going to be when they do bring it out,so yeah i totally believe a cure IS in the works as i speak.they want it $$$ as bad as we do. From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 i do not live in a land of saints,people are evil and im not going to subject myself to even 1 of them.oh wait,i did>my sister,my bad!!! i believe that a cure will be and is being worked on now,we are just not hearing about it.do you know how rich they are going to be when they do bring it out,so yeah i totally believe a cure IS in the works as i speak.they want it $$$ as bad as we do. From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
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