Re: (unknown)

[Guest guest]

Hello Jan, I'm here and getting all posts from everyone.

All the lists I am on have gone to . No problems so far.

Shop online without a credit card

http://www.rocketcash.com

RocketCash, a NetZero subsidiary

[Guest guest]

Oh that's you Cheryl ID, I though we had another Cheryl in the group. My

bad, Genny

[Guest guest]

Welcome to our group...

YOU WILL find plently of support and some new friends here....

I am the mom of an 18 yr old son who has AIH..PSC another liver disease,Crohns and Rhuematoid Arthritis....He just got out of the hosp after being sick since before Christmas..

You will learn alot about the lab tests and their results that sometimes can be very confusing...about some of the tests and what meds(pain) to ask for to make the whole thing a little easier..

I hope to hear from you in the group again...

Luanne Ty's mom

[Guest guest]

Leah,

thank you for sending on that nice story. It reminds me of the stuggles to

keep my son, Gene, included. I see how much he has to offer his school...but

so many other see his disability as a problem....like a $10 painting. I could

go on and on, but suffice it to say, because our country so values physical

beauty, high achievement and competition, finding those who value my son's

individuality and differences are often hard to find.

Lauri

[Guest guest]

lauri,

i agree...i cried like there was no tomorrow when i read that..... it has so

much meaning but also brings peace amongst you when your done...almost like

a soul cleansing...which i really need these days..my life is good on the

most, but my friends are faltering. i have one friend with a 10 yr old with

ds who has decided to put her up for adoption. mom also has 4 yr old with

asd... i have to question this decision and i have no right too....two

disabled children, yet give one up... and another friend with 15 yr old

autism wants to put her son away and another mom says her son is absurd and

belongs in ahome too...not that i have ANY ROOM to talk or judge, lord knows

i am no perfect mom and i am sure ashton could have been given a better mom

than me, but i do exhaust all efforts in making her life the best it can be

and assisting her to utilize all her potential..... if that means sleepless

nights and endless stress, i will do it...but when i see parents who dont it

just bugs and eats away at my heart...how can someone not give their all and

mighty for the child that is truly part of them. i see ashton as a

reflection of me...she is my artwork........ okay i will stop

bitching....sorry just slightly unnerved.....dont mean to take my nastiness

out on yall have a great day.leah

>From: timothytlstein@...

>Reply-

>

>Subject: Re: (unknown)

>Date: Wed, 7 Feb 2001 09:07:03 EST

>

>Leah,

>

>thank you for sending on that nice story. It reminds me of the stuggles to

>keep my son, Gene, included. I see how much he has to offer his

>school...but

>so many other see his disability as a problem....like a $10 painting. I

>could

>go on and on, but suffice it to say, because our country so values physical

>beauty, high achievement and competition, finding those who value my son's

>individuality and differences are often hard to find.

>

>Lauri

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Leah,

I know how you feel. I have been raising for

almost 9 years and the fact that his biological mother

has nothing to do with him makes me so angry and

disgusted that I can barely stand it. I actually don't

want her to because she is not a good person for him

to be around but then it bothers me all the same that

she treats him like he has no value whatsoever. I

think it is because he is the most valuable thing in

my life and I have given up so much and worked so hard

for him to have a decent life. And to have her

" acting " like she cares or whatever she thinks she's

doing makes me sick. Do you know why she has only seen

him about 6 days out of the last 6 years? Because she

will only see if WE drive him the 400 miles to

her house. She says she's not going to come down to

where we live and visit in a hotel room. So if

she doesn't get it her way she just won't see him.

This about sends me over the EDGE!

But you know what? She's the one who is missing out.

is the most satisfying thing in my life.

Probably because I put so much into his life and to

see him progressing is extremely satisfying. So she's

the loser. This is a little different from what you

were talking about but if you can vent, so can I. Just

keep on keeping on Leah. You are a good mommy. Your

daughter is lucky to have you.

Mom to 11

--- leah leah <okieleah@...> wrote:

> lauri,

> i agree...i cried like there was no tomorrow when i

> read that..... it has so

> much meaning but also brings peace amongst you when

> your done...almost like

> a soul cleansing...which i really need these

> days..my life is good on the

> most, but my friends are faltering. i have one

> friend with a 10 yr old with

> ds who has decided to put her up for adoption. mom

> also has 4 yr old with

> asd... i have to question this decision and i have

> no right too....two

> disabled children, yet give one up... and another

> friend with 15 yr old

> autism wants to put her son away and another mom

> says her son is absurd and

> belongs in ahome too...not that i have ANY ROOM to

> talk or judge, lord knows

> i am no perfect mom and i am sure ashton could have

> been given a better mom

> than me, but i do exhaust all efforts in making her

> life the best it can be

> and assisting her to utilize all her potential.....

> if that means sleepless

> nights and endless stress, i will do it...but when i

> see parents who dont it

> just bugs and eats away at my heart...how can

> someone not give their all and

> mighty for the child that is truly part of them. i

> see ashton as a

> reflection of me...she is my artwork........ okay i

> will stop

> bitching....sorry just slightly unnerved.....dont

> mean to take my nastiness

> out on yall have a great day.leah

>

>

> >From: timothytlstein@...

> >Reply-

> >

> >Subject: Re: (unknown)

> >Date: Wed, 7 Feb 2001 09:07:03 EST

> >

> >Leah,

> >

> >thank you for sending on that nice story. It

> reminds me of the stuggles to

> >keep my son, Gene, included. I see how much he has

> to offer his

> >school...but

> >so many other see his disability as a

> problem....like a $10 painting. I

> >could

> >go on and on, but suffice it to say, because our

> country so values physical

> >beauty, high achievement and competition, finding

> those who value my son's

> >individuality and differences are often hard to

> find.

> >

> >Lauri

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

>

__________________________________________________

[Guest guest]

--

Leah, Thank you so much for posting the art

writing.That was truly beautiful and really made me

stop and think.I also wanted to comment on a friend s

son who is severly autistic. He was having a meltdown

at schooland the teacher and aide and he were all on

the floor when the fight just went out of him,they

were glad but surprised.What they did not know was

that had seen his mom outside and ready to come

in the room. She

also is very strictand said he looked like he was

thinking " oh **** there goes my tv!!!!The teacher

said it took weeks before he stopped checking the

doorway!!One thing is for sure our kids are good for

some laughs. Carole

- lea

h

leah <okieleah@...> wrote:

> hey dear friends,

> i thought you might like this!!! i found it very

> inspiring and just calming

> to read......leah

>

> REAL ART

>

> A wealthy man and his son loved to collect rare

> works of art. They had

> everything in their collection, from Picasso to

> Raphael.

>

> They would often sit together and admire the great

> works of art.

>

> When the Viet Nam conflict broke out, the son went

> to war. He was very

> courageous and died in battle while rescuing another

> soldier.

>

> The father was notified and grieved deeply for his

> only son.

>

> About a month later, just before Christmas, there

> was a knock at the door.

> A

> young man stood at the door with a large package in

> his hands.

>

> He said, " Sir, you don't know me, but I am the

> soldier for whom your son

> gave

> his life. He saved many lives that day, and he was

> carrying me to safety

> when

> a bullet struck him in the heart and he died

> instantly. He often talked

> about

> you, and your love for art.

>

> The young man held out his package. " I know this

> isn't much. I'm not really

> a

> great artist, but I think your son would have wanted

> you to have this. "

>

> The father opened the package. It was a portrait of

> his son, painted by the

> young man. He stared in awe at the way the soldier

> had captured the

> personality of his son in the painting. The father

> was so drawn to the eyes

> that his own eyes welled up with tears.

>

> He thanked the young man and offered to pay him for

> the picture. " Oh, no

> sir,

> I could never repay what your son did for me. It's a

> gift. "

>

> The father hung the portrait over his mantle. Every

> time visitors came to

> his home he took them to see the portrait of his

> son before he showed them

> any of the other great works he had collected.

>

> The man died a few months later. There was to be a

> great auction of his

> paintings. Many influential people gathered, excited

> over seeing the great

> paintings and having an opportunity to purchase one

> for their collection. On

> the platform sat the painting of the son. The

> auctioneer pounded his gavel.

> " We will start the bidding with this picture of the

> son. Who will bid for

> this picture? "

>

> There was silence. Then a voice in the back of the

> room shouted, " We want to

> see the famous paintings. Skip this one. "

>

> But the auctioneer persisted, " Will someone bid for

> this painting? Who will

> start the bidding? $100, $200? "

>

> Another voice shouted angrily, " We didn't come to

> see this painting. We came

> to see the Van Goghs, the Rembrandts. Get on with

> the real bids! " But

> still

> the auctioneer continued, " The son! The son! Who'll

> take the son? " Finally,

> a

> voice came from the very back of the room. It was

> the longtime gardener of

> the man and his son. " I'll give $10 for the

> painting. "

>

> Being a poor man, it was all he could afford. " We

> have $10, who will bid

> $20? " " Give it to him for $10. Let's see the

> masters. " " $10 is the bid,

> won't someone bid $20? " The crowd was becoming

> angry. They didn't want the

> picture of the son. They wanted the more worthy

> investments for their

> collections. The auctioneer pounded the gavel.

> " Going once, twice, SOLD for

> $10! "

>

> A man sitting on the second row shouted, " Now let's

> get on with the

> collection! " The auctioneer laid down his gavel,

> " I'm sorry, the auction is

> over. " " What about the paintings? " " I am sorry. When

> I was called to conduct

> this auction, I was told of a secret stipulation in

> the will. I was not

> allowed to reveal that stipulation until this time.

> Only the painting of the

> son would be auctioned. Whoever bought that painting

> would inherit the

> entire

> estate, including the paintings. The man who took

> the son gets everything! "

>

> God gave his Son 2,000 years ago to die on a cruel

> cross. Much like the

> auctioneer, His message today is, " The Son, the Son

> , who'll take the Son? "

> Because you see, whoever takes the Son gets

> everything.

> --author unknown

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

>

=====

Carole, wife of Rich, mom to and , m-i-l to and ,

grandmom to ,8 ,with d.s.and a.s.d. and 6 with adhd and possible

a.s.d.and Logan 2 year old chatterbox and Seth,8 month old getting over surgery

but still crawling and pulling up to stand.

Psalm16Preserve me ,O GOD;for in thee do i put my trust.

__________________________________________________

[Guest guest]

Leah,

I really liked this e-mail that you sent (below). It reminded me of when my

5th grade art teacher died of cancer. She did so much art work- and she was

a good teacher. She was the first teacher in my life that have died.

>From: " leah leah " <okieleah@...>

>Reply-

>

>Subject: (unknown)

>Date: Wed, 07 Feb 2001 08:45:02 -0500

>

>hey dear friends,

>i thought you might like this!!! i found it very inspiring and just calming

>to read......leah

>

>REAL ART

>

>A wealthy man and his son loved to collect rare works of art. They had

>everything in their collection, from Picasso to Raphael.

>

>They would often sit together and admire the great works of art.

>

>When the Viet Nam conflict broke out, the son went to war. He was very

>courageous and died in battle while rescuing another soldier.

>

>The father was notified and grieved deeply for his only son.

>

>About a month later, just before Christmas, there was a knock at the door.

>A

>young man stood at the door with a large package in his hands.

>

>He said, " Sir, you don't know me, but I am the soldier for whom your son

>gave

>his life. He saved many lives that day, and he was carrying me to safety

>when

>a bullet struck him in the heart and he died instantly. He often talked

>about

>you, and your love for art.

>

>The young man held out his package. " I know this isn't much. I'm not really

>a

>great artist, but I think your son would have wanted you to have this. "

>

>The father opened the package. It was a portrait of his son, painted by the

>young man. He stared in awe at the way the soldier had captured the

>personality of his son in the painting. The father was so drawn to the eyes

>that his own eyes welled up with tears.

>

>He thanked the young man and offered to pay him for the picture. " Oh, no

>sir,

>I could never repay what your son did for me. It's a gift. "

>

>The father hung the portrait over his mantle. Every time visitors came to

>his home he took them to see the portrait of his son before he showed

>them

>any of the other great works he had collected.

>

>The man died a few months later. There was to be a great auction of his

>paintings. Many influential people gathered, excited over seeing the great

>paintings and having an opportunity to purchase one for their collection.

>On

>the platform sat the painting of the son. The auctioneer pounded his gavel.

> " We will start the bidding with this picture of the son. Who will bid for

>this picture? "

>

>There was silence. Then a voice in the back of the room shouted, " We want

>to

>see the famous paintings. Skip this one. "

>

>But the auctioneer persisted, " Will someone bid for this painting? Who will

>start the bidding? $100, $200? "

>

>Another voice shouted angrily, " We didn't come to see this painting. We

>came

>to see the Van Goghs, the Rembrandts. Get on with the real bids! " But

>still

>the auctioneer continued, " The son! The son! Who'll take the son? " Finally,

>a

>voice came from the very back of the room. It was the longtime gardener of

>the man and his son. " I'll give $10 for the painting. "

>

>Being a poor man, it was all he could afford. " We have $10, who will bid

>$20? " " Give it to him for $10. Let's see the masters. " " $10 is the bid,

>won't someone bid $20? " The crowd was becoming angry. They didn't want the

>picture of the son. They wanted the more worthy investments for their

>collections. The auctioneer pounded the gavel. " Going once, twice, SOLD for

>$10! "

>

>A man sitting on the second row shouted, " Now let's get on with the

>collection! " The auctioneer laid down his gavel, " I'm sorry, the auction is

>over. " " What about the paintings? " " I am sorry. When I was called to

>conduct

>this auction, I was told of a secret stipulation in the will. I was not

>allowed to reveal that stipulation until this time. Only the painting of

>the

>son would be auctioned. Whoever bought that painting would inherit the

>entire

>estate, including the paintings. The man who took the son gets everything! "

>

>God gave his Son 2,000 years ago to die on a cruel cross. Much like the

>auctioneer, His message today is, " The Son, the Son , who'll take the Son? "

>Because you see, whoever takes the Son gets everything.

>--author unknown

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Dear rlwatson -- if you will give us a name to call you by, responses will be easier. I hope life gets a little more comfortable for you soon. Remember, if you don't take care of yourself now, and insist that others help you take care of yourself now, you won't be able to take care of your family and your job properly later. Naturally, your family wants to think that you're invincible; perhaps you have to help them see reality, uncomfortable though it may be at first. Best wishes.

Harper

[Guest guest]

This is my first post also. Hope it shows up OK.

I was diagnosed in August, 2000 with AIH. Initial LFTs were around

AST(1500) and ALT(1700), or the other way around. I knew something

was wrong (tired, heartburn, etc), but after previous experience with

doctors (getting my fibromyalgia and my mother's lupus diagnosed), I

didn't even bother to go. I knew that they would say: you are 40,

have two kids, work, etc. - just get more rest and relieve stress.

The funny thing was, things were going better than they had in a long

time, and not really under a lot of stress. Anyway, after my son

told me that my eyes were yellow, went to the doctor. All tests

initially came back negative for hepatitis, ANA, 's, etc.

After three weeks started on prednisone and went to another

specialist. At that point ANA was 1:640.

Currently taking 12.5 mg prednisone and 100 imuran. Biopsy in

December still showed inflammation, but no cirrhosis. LFTs are

almost normal. However, still feeling the side effects of the

medicine. High blood sugar, dizziness, stomach pains, fatigue.

Same situation with me - I was always the " do everything for

everybody " person. My children (16 and 11) have been helpful, and it

seems that my husband is supportive. However, I find that no-one,

including my husband wants to talk about it. When I was off work for

two months, everyone was real concerned. Now that I am no longer

yellow and flat on my back in bed, everyone acts like the other stuff

is insignificant. They act like because the medicine seems to have

it under control, I shouldn't worry about it. The problem is that

due to lots of autoimmune illnesses in my family, I am pretty

familiar with chronic situations and the side effects of the

medicines. Sometimes I wish that I didn't know so much.

Anyway, just venting. I seem to have just shut down around here.

Not really depressed, just trying not to think about it. The few

times I have been on a crying jag, got such a bad headache that I

decided it wasn't worth it.

I'll be checking back.

>

> > Hi:

> >

> > This is the first time I have ever belonged to a support group.

I have read some of

> > your letters and find them very helpful. I was diagnosed with

AIH about 3 years ago

> > I know I have had it much longer though. I find it very hard to

talk to my family about

> > it and especially how I feel and how scared I get at times. I am

43 and have 3

> > children 19, 12 and ll. They always worry about me especially if

they find out I have

> > been at the doctors. The problem is they are so used to me being

able to do everything

> > that they find it hard when I have to slow down. As for my

husband I don't think he

> > realizes the severity of this disease and is not understanding at

all. I think if I had

> > more support from him I could deal with this easier. I am hoping

that by joining

> > this support group that it will give me the support I lack.

Thanks for everything.

> >

> > Configure this line on the

> > Email Preferences screen

> > ______________________________________________

> >

> > Get your FREE SkyBiz.com email at www.skybizworld.com !

> >

> >

> >

[Guest guest]

Welcome! What is your name? I know what you mean about doctors not wanting

to believe you are sick when you are. I spent many years not feeling well

and being told it was in my head even though my ANA counts were always

high. Most of the time though they never bothered with blood tests, just

told me to reduce stress and seek counseling. Again, like you, I only go to

the doctor when I can't take it anymore.

My name is Debbie. My son was just diagnosed with AIH. He just turned 12. I

also have a 13 year old daughter and a 10 year old. son. I am 37, married

to a wonderful man (Jim) and currently live in NC.

Debbie (Tommy's Mom)

> [Original Message]

> From: <rlwatson2@...>

> < >

> Date: 2/11/01 9:32:42 PM

> Subject: [ ] Re: (unknown)

>

> This is my first post also. Hope it shows up OK.

> I was diagnosed in August, 2000 with AIH. Initial LFTs were around

> AST(1500) and ALT(1700), or the other way around. I knew something

> was wrong (tired, heartburn, etc), but after previous experience

> with

> doctors (getting my fibromyalgia and my mother's lupus diagnosed), I

>

> didn't even bother to go. I knew that they would say: you are 40,

> have two kids, work, etc. - just get more rest and relieve stress.

> The funny thing was, things were going better than they had in a

> long

> time, and not really under a lot of stress. Anyway, after my son

> told me that my eyes were yellow, went to the doctor. All tests

> initially came back negative for hepatitis, ANA, 's, etc.

> After three weeks started on prednisone and went to another

> specialist. At that point ANA was 1:640.

> Currently taking 12.5 mg prednisone and 100 imuran. Biopsy in

> December still showed inflammation, but no cirrhosis. LFTs are

> almost normal. However, still feeling the side effects of the

> medicine. High blood sugar, dizziness, stomach pains, fatigue.

> Same situation with me - I was always the " do everything for

> everybody " person. My children (16 and 11) have been helpful, and

> it

> seems that my husband is supportive. However, I find that no-one,

> including my husband wants to talk about it. When I was off work

> for

> two months, everyone was real concerned. Now that I am no longer

> yellow and flat on my back in bed, everyone acts like the other

> stuff

> is insignificant. They act like because the medicine seems to have

> it under control, I shouldn't worry about it. The problem is that

> due to lots of autoimmune illnesses in my family, I am pretty

> familiar with chronic situations and the side effects of the

> medicines. Sometimes I wish that I didn't know so much.

> Anyway, just venting. I seem to have just shut down around here.

> Not really depressed, just trying not to think about it. The few

> times I have been on a crying jag, got such a bad headache that I

> decided it wasn't worth it.

> I'll be checking back.

>

>

> >

> > > Hi:

> > >

> > > This is the first time I have ever belonged to a support group.

>

> I have read some of

> > > your letters and find them very helpful. I was diagnosed with

> AIH about 3 years ago

> > > I know I have had it much longer though. I find it very hard to

>

> talk to my family about

> > > it and especially how I feel and how scared I get at times. I

> am

> 43 and have 3

> > > children 19, 12 and ll. They always worry about me especially

> if

> they find out I have

> > > been at the doctors. The problem is they are so used to me

> being

> able to do everything

> > > that they find it hard when I have to slow down. As for my

> husband I don't think he

> > > realizes the severity of this disease and is not understanding

> at

> all. I think if I had

> > > more support from him I could deal with this easier. I am

> hoping

> that by joining

> > > this support group that it will give me the support I lack.

> Thanks for everything.

> > >

> > > Configure this line on the

> > > Email Preferences screen

> > > ______________________________________________

> > >

> > > Get your FREE SkyBiz.com email at www.skybizworld.com !

> > >

> > >

> > >

[Guest guest]

I'm new at posting to these things. My name is W. I live in

Alabama and am going to the Liver Center at the Kirlin Clinic in

Birmingham. Thanks for answering.

> Dear rlwatson -- if you will give us a name to call you by,

responses will be

> easier. I hope life gets a little more comfortable for you soon.

Remember,

> if you don't take care of yourself now, and insist that others help

you take

> care of yourself now, you won't be able to take care of your family

and your

> job properly later. Naturally, your family wants to think that

you're

> invincible; perhaps you have to help them see reality,

uncomfortable though

> it may be at first. Best wishes.

> Harper

[Guest guest]

Thanks for replying, Debbie. I am new to posting to message boards.

My name is W. - I live in Huntsville, Alabama, but am going to

the Liver Center at the Kirlin Clinic in Birmingham. I actually

really like my doctor there. He takes the time to answer questions

and seems very knowledgeable.

According to him, I probably had this for a while, and then something

kicked it into the acute phase.

I have not been able to find a lot of information about this

illness. Most of the sites I search seem to say the same thing. I

am hoping that I can get some further information from this board.

[Guest guest]

On Mon, 12 Feb 2001 04:12:38 -0000, wrote:

> I'm new at posting to these things. My name is W. I live in

> Alabama and am going to the Liver Center at the Kirlin Clinic in

> Birmingham. Thanks for answering.

>

>

>

> , My name is Debra and I also live in Alabama, Tuscaloosa and see

Dr. Vanleuween at the Kirkland clinic. I am 43 have 4 kids son 24 with ITP,

a daughter 21 with graves disease, and daughters 13 and 11. I also have a

6week old grandson that I keep every day. I was diagnoised with AIH in 3-00

and overlap PBC in 11-00. Keep posting things do get better. You have found

a great group of people to share with.

Debra

your gentle friend

God Bless

_______________________________________________________

Send a cool gift with your E-Card

http://www.bluemountain.com/giftcenter/

[Guest guest]

Hi ,

Harper gave me the names of some useful books. I just ordered them from

Amazon myself. Maybe they can help you too.

" Here are the books I spoke of. Others in the group also have recommended

the

first book, by Palmer. Both are under $20, available through Amazon.com if

you can't find them locally. My child, now grown, has been ill for ten

years, so I have some small idea of your pain.

Palmer, M.D: " Guide to Hepatitis Liver Disease - What You Need to

Know " ISBN 0-89529-922-4. Written with the needs of the non-medical user

in

mind, but loaded with information.

J. Worman, M.D: " Liver Disorders Sourcebook " ISBN 0-7373-0090-6.

This book has a more academic tone but is quite readable by

non-professionals. "

Hope you had a great weekend.

Debbie

> [Original Message]

> From: <rlwatson2@...>

> < >

> Date: 2/11/01 11:18:27 PM

> Subject: [ ] Re: (unknown)

>

> Thanks for replying, Debbie. I am new to posting to message

> boards.

> My name is W. - I live in Huntsville, Alabama, but am going

> to

> the Liver Center at the Kirlin Clinic in Birmingham. I actually

> really like my doctor there. He takes the time to answer questions

> and seems very knowledgeable.

>

> According to him, I probably had this for a while, and then

> something

> kicked it into the acute phase.

>

> I have not been able to find a lot of information about this

> illness. Most of the sites I search seem to say the same thing. I

> am hoping that I can get some further information from this board.

>

>

>

>

>

[Guest guest]

*thowing snowball at Hope* sure lady... rub it in lol

On your mold question...have that hubby of your build you a pusher for the soap. A round piece of wood slightly smaller than the inside of the PVC pipe and connect it to a piece of broom handle, then you can push the soap out. hehehehe my hubby is now the offical Thistle Meadow Soaps Soap Pusher-Outer! I have a heck of a time pushing that soap out...I have to stand on a chair to get enough leverage.

Terri

(unknown)

Hey everybody !!! It's me Hope again, back from the dead !! Been reading all ya'll's e mails about the winds and ice and I have decided that ya'll REALLY need to come to my house for the soap weekend. It has been a sweet high 60 or low 70 here !!! I have had to turn on the AC once and been keeping the windows open ALL the time !! Yea yea yea, I know what you're all thinking, SHUT UP !!! It's nice right now, but pretty soon when it's 80 with a heat index of 95 and 100% humidity, ya'll can remind me of that too !!! Anyway, just wanted ya'll to know that I made an order the other day with a company called Holly Hobby ( www.hollyhobby.com ), and got my stuff with no problem . So, if any of you are interested, they seem to be legit. Also, I got some FO's. I am used to using EO's. I didn't realize that the FO's weren't as strong as the EO's, so how do I make sure that I get enough to have a strong enough scent ?? Also, I need somebody to give me the particulars on a PVC pipe mold. I know about putting a cap on the end, but how in the world am I gonna get that stuff out of there ? Lord have mercy, I can't imagine how to do it. And Terri, I need you to give me the scoop on how to do the loofah things. Can I stick it down in a PVC pipe ? Or how is it you wrap it ? Got to get some done, got some folks wanting them. Well, got to go, Hollar at you later !!!!

[Guest guest]

rlwatson2@... wrote:

> I'm new at posting to these things. My name is W. I live in

> Alabama and am going to the Liver Center at the Kirlin Clinic in

> Birmingham. Thanks for answering.

>

>

>

>

> > Dear rlwatson -- if you will give us a name to call you by,

> responses will be

> > easier. I hope life gets a little more comfortable for you soon.

> Remember,

> > if you don't take care of yourself now, and insist that others help

> you take

> > care of yourself now, you won't be able to take care of your family

> and your

> > job properly later. Naturally, your family wants to think that

> you're

> > invincible; perhaps you have to help them see reality,

> uncomfortable though

> > it may be at first. Best wishes.

> > Harper

>

>

>

[Guest guest]

I have coeliac disease (wheat intolerance) and have had for 26yrs. I alsp have

PA , GP and Rhuemy know this but have never mentioned a connection

Sheryn

Australia

kevin janega wrote:

> hello everyone i am new here i was curious to know if anyone has ever heard

> mention that P and PA could be the result of food allergies and/or diet

> related in general. i went to a homeopath who suggested there might be a

> corelation between diet and PA. my rheumatologist emphatically denies any

> such possibility, but i swear my PA acts up if i eat ribs. the homeopath

> suggested refraining from dairy and wheat for a month or two. any input

> here?

> kevin janega

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

>

>

[Guest guest]

Hi ,

I strongly agree with you that food effects us. Whenever I have dairy, my

fingers which have the PA swell up. I also have eliminated red meat and have

added lots of fresh fruits and vegetables to my diet. I think you are

definetly on the right track with finding outwhich foods affect you. If you

read articles about arthritis it will tell you to stay away from red meat,

dairy products and rich foods. I look at it this way, its worth a try, and if

it helps, the better off we are. Good luck

[Guest guest]

Sure thing. I try to do extra cardio myself as I have about 3 tons of fat to

get rid of. heheheh. Just remember, its very important to do your HIIT cardio

or weight training before you do the extra stuff so that the really vital

exercises don't suffer.

Tina

*********** REPLY SEPARATOR ***********

On 2/13/01 at 9:59 PM Heidi Calcaterra wrote:

>Tina,

>thank you so much for your advice!!!!! I look forward to doing the extra,

>even if it's just moderate. Thanks again!!!!!

>Heidi

[Guest guest]

it seems to be a recurring theme with the dairy. i have heard from three or

four people out of the 7 who replied who have issues with dairy. it amazes

me nobody is doing research in this regard. the rheumatologists refuse to

see a connection. i can't remember how much detail i went into on my posted

message but i attended a seminar by a homeopathic chiropractor who discussed

the possibility that a long time allergy to dairy suppressed by years of

forced consumption can cause a sort of internal bowel infection that causes

your immune system to over react. i am simplifying this but it makes sense.

other issues include ear infections and other things like susceptibility to

colds and flu. it is interesting to see how other people react to this info

who have PA. i appreciate your input this week is the first time i have used

the internet to contact other people who are afflicted. it is nice to know

i am not alone.

kevin janega

ottawa, canada

>From: ediemosback@...

>Reply-

>

>Subject: Re: [ ] (unknown)

>Date: Tue, 13 Feb 2001 19:17:52 EST

>

>Hi ,

>

>I strongly agree with you that food effects us. Whenever I have dairy, my

>fingers which have the PA swell up. I also have eliminated red meat and

>have

>added lots of fresh fruits and vegetables to my diet. I think you are

>definetly on the right track with finding outwhich foods affect you. If

>you

>read articles about arthritis it will tell you to stay away from red meat,

>dairy products and rich foods. I look at it this way, its worth a try, and

>if

>it helps, the better off we are. Good luck

>

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

In a message dated 02/14/2001 2:19:47 PM Eastern Standard Time,

kjanega@... writes:

<< a long time allergy to dairy suppressed by years of

forced consumption can cause a sort of internal bowel infection that causes

your immune system to over react >>

Hi - I don't know if it is specifically related to dairy, but there has

been quite a bit of discussion on here regarding linking irritable bowel

disease to PA as well. Some seem to feel that IBS is also a type of

autoimmune disorder.

I always chalked my nasty colon up to the drugs, but who knows??

Take care,

[Guest guest]

Hi Nicky,

I am new to this too. My son 2.5 was just diagnosed with verbal dyspraxia. He

also did no babbling until maybe 20 months. He also could say mom mom and da

and would never call us by that name. Once he was in speech therapy he began

to call us by those names when he was about 2 years. I have heard, Oh he's

fine, they all talk at different ages etc......DO NOT listen to anyone. I

have had him evaluated a ton of times. his receptive is always advanced and

he expressive is severly delayed. Has your childs hearing been checked ????

That was my 1st step, he was fine.

My advice is to get him evaluated by a speech pathologist who is familiar

with this disorder. I have also been told to have him seen by a

neurodevelopmental pediatrician for an evaluation too. I don't know if any of

this is helpful, as I said I am new to this and i know what you are going

through. These dr's associated with apraxia and dyspraxia are hard to find. I

am finding a few in NY but i don't know where you are located. It is better

to get an evaluation now cause if it is a disorder it can be helped and if it

is not, atleast you know.Good luck

[Guest guest]

Hi Nicky

welcome to the group. I have only been here a week or so also and

already I have learned so much and feel supported. I can't diagnose for

you but your daughter has many of the signs. My tip for you to help cut

down on the frustration is signing (sign language) We went to the

library and got a dictionary right away that shows a picture of each

word. We learned and taught the family some starter words like " more " ,

" come " , " cracker " , " all done " Amazing how simple words can go so far.

It is wonderful you have her in so many activities. All that is a great

help. Do you have an Early Intervention program there? (Birth through

three years?) Check it out. They are wonderful at assessing and

hooking your child up to the apprpriate needs. Good luck to you. Hugs

and check back often

Gloria

WI

[Guest guest]

thanks for your input. her hearing is fine. I am in Michigan.

Nicky