Re: (unknown)

[Guest guest]

In a message dated 1/26/01 7:46:12 AM Eastern Standard Time,

okieleah@... writes:

<< http://www.news-4-you.com >>

Leah,

Any idea how much this costs?

Gail

[Guest guest]

In a message dated 1/28/01 7:05:52 PM Eastern Standard Time,

cdautah1@... writes:

<< http://eas.com/q-a/answers.asp?QuestionID=9144 >>

THANKS for the information. I have almost finished my 1st challenge and

will be doing a 2nd challenge. I have been wondering what I should be doing

after I get to my final weight and size.

Carolyn

[Guest guest]

jaime,

this Q & A might help you feel more comfortable about whether or not BFL will help you reach your goals.

http://eas.com/q-a/answers.asp?QuestionID=9144

Cheryl C.

[Guest guest]

Bob-

Sounds interesting. I'd never heard of antiobiotic therapy until it was

brought up (by you?) a few weeks ago. I'm interested in reading more about

it. Will check out the site you recommended. I'm sure everybody would

appreciate any additional information you discover about it. I'm not sure I

understand the mechanism by which it is supposed to work. Also, don't people

build up tolerances to antibiotics so that they become less effective?

Diane

[Guest guest]

Hi Bob

Sorry you're not getting much response. I don't know much about it myself,

but will check out the things you mentioned. Our daughter is 6, with

systemic (Still's) also. I would be glad of anything that might help reduce

her need for prednisone and all the other stuff. Thanks for the info. I just

didn't know anything to say. My awareness of this type of therapy is

extremely minimal, I'll try to remedy that!

Lynn

(unknown)

Hey guys, I've posted a couple of times re:antibiotic therapy and

haven't gotten one response. I don't know if it is because nobody

knows about it, or if you consider it an ineffective therapy. I

visit other RA sites and people rave about the results they get, how

they dropped or eliminated dmards and steroids from their regimen.

I've heard about significant improvement and remission while

decreasing exposure to steroidal side effects. The body doesn't

build up resistance to the antibiotic unlike pred etc. There are

virtually no side effects and can be rx'd inconjunction with

traditional meds....As the antibiotic takes hold, the levels of

traditional meds drop and may very well not be needed at all.

If this sounds interesting to you,,,why not check out

www.roadback.org and you may also want to pick up the book " the new

arthritis breakthrough " by Henry Scammell. I'm not promoting this

therapy, though i am having a consultation for my daughter (8yrs.

old/stills). Check out the site, read the book. Lets talk about it!

Traditional meds have saved my daughters joints and prevented damage

to organs and very likely saved her life, but we are on a progression

to stronger and stronger medicine, just to maintain her current

status. Where will it stop? Will it stop? and at what expense to her

overall health? I would like to hear what you guys think of this

therapy!

Hope to hear from you!

Bob

For links to websites with JRA info please visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

To manage your subscription settings, visit:

subscribe/

[Guest guest]

Bob,

I had replied to your original post, but I guess it didn't show up. I know

an elderly lady (in her early 80's) that had antibiotic therapy for

Rheumatoid Arthritis years ago (when it was really radical), and she swears

by it.

Also, interestingly enough, our 4 year old has only been fever free once in

her life when she was on IV antibiotics for 2 weeks solid followed by 2

months of oral antibiotics. It put her fever free for 4 months. Then they

came back with a vengence. ?????

Oh well. Let us know what you find out. I know it has been tried and I

also know it has been very controversial. The elderly lady that I know has

been in remission for years.

Angie

(unknown)

>Hey guys, I've posted a couple of times re:antibiotic therapy and

>haven't gotten one response. I don't know if it is because nobody

>knows about it, or if you consider it an ineffective therapy. I

>visit other RA sites and people rave about the results they get, how

>they dropped or eliminated dmards and steroids from their regimen.

>

>I've heard about significant improvement and remission while

>decreasing exposure to steroidal side effects. The body doesn't

>build up resistance to the antibiotic unlike pred etc. There are

>virtually no side effects and can be rx'd inconjunction with

>traditional meds....As the antibiotic takes hold, the levels of

>traditional meds drop and may very well not be needed at all.

>

>If this sounds interesting to you,,,why not check out

>www.roadback.org and you may also want to pick up the book " the new

>arthritis breakthrough " by Henry Scammell. I'm not promoting this

>therapy, though i am having a consultation for my daughter (8yrs.

>old/stills). Check out the site, read the book. Lets talk about it!

>

>Traditional meds have saved my daughters joints and prevented damage

>to organs and very likely saved her life, but we are on a progression

>to stronger and stronger medicine, just to maintain her current

>status. Where will it stop? Will it stop? and at what expense to her

>overall health? I would like to hear what you guys think of this

>therapy!

>

>Hope to hear from you!

>

>Bob

>

>

>

>For links to websites with JRA info please visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

>To manage your subscription settings, visit:

>subscribe/

>

>

[Guest guest]

hi bob, i have nevr tried this therapy. i am allergic to one class of

antibiotic (bactrum, biaxin, etc). also, and please dont be offended, but

every time and i mean EVERY time i take any kind of antibiotic for any

reason, a yeast infection follows requiring more antibiotics. women know

that some of them cause yeast infections anyway, but in my case, its every

time. i dont if its because of immune system functions or what, but i know

there are several other young ladies on this list that would worry about the

same thing. sorry to be disgusting, but it happens to me and could very

well happen to these toher young ladies.

my apologies, brandy

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[Guest guest]

> hi bob, i have nevr tried this therapy. i am allergic to one class

of

> antibiotic (bactrum, biaxin, etc). also, and please dont be

offended, but

> every time and i mean EVERY time i take any kind of antibiotic for

any

> reason, a yeast infection follows requiring more antibiotics.

women know

> that some of them cause yeast infections anyway, but in my case,

its every

> time. i dont if its because of immune system functions or what,

but i know

> there are several other young ladies on this list that would worry

about the

> same thing. sorry to be disgusting, but it happens to me and could

very

> well happen to these toher young ladies.

It is not just women, men can also have the same overgrowth of yeast.

The issues with anitbiotis are that most of them are broad spectrum

in that they " kill " the good and the bad. They do not differentiate.

So, they kill the bacteria that would otherwise keep the yeast under

control. Some people are more suseptible, like you. The issues with

long term antibiotic use is that any person should also have a

probiotic regimen added to their daily diet.

I think that you have the same negative issues regarding long term

pred use or long term anitbiotic use or long term nsaid's. Out of all

of them MO (at least for my dd) would be to skip the ABX.

[Guest guest]

In a message dated 1/30/01 2:47:06 PM Pacific Standard Time, Chan_lace_@... writes:

my 21 yo has me babysitting everyday which is very tiring.

Debra, remember that your big job is to take care of yourself. You can't help your family if you become incapacitated from becoming too tired.

Harper

[Guest guest]

In a message dated 1/30/01 3:34:52 PM Pacific Standard Time, ccmcphe@... writes:

The second best thing I

did was have her go to some doctor appointments with me, so that she had

the opportunity to ask questions to the doctor, this really helped her

understand the disease, and what to expect from it. So basically, I

guess I'm saying is get your husband and kids involved, and this way

hopefully they will understand what you are going through.

-Clyde

I haven't seen my liverdoc since I was diagnosed in May (AIH). At that appointment, I said that my husband was in the waiting room and got a scowl in response. I thought perhaps (remember, I was quite ill and not thinking clearly) that it was bad form to have a second person in the examining room and didn't pursue my wish to have him with me. I've much regretted my wimping out. For one thing, I had a hard time remembering everything the doctor said. I have another appointment Monday, and my husband will definitely be with me, even though it meant his changing plane reservations.

Our health circumstances greatly affect all our families, and we need whatever they can offer, just as we hope to offer them support in other ways and at other times.

(Nice news is that I saw my gp this week. She said that back in May she wasn't optimistic about my chances -- said "I thought you were a goner" -- but that she thinks I'm clearly doing well now.)

Harper (AIH 5/00)

[Guest guest]

,

Have you tried eating yogurt while taking antibiotics? I usually eat

yogurt when on it. I take acidophlis (no sure if I spelled it right) to help

with keeping the yeast away. These two works for me and Zhondrese too. Just

about all antibiotics causes yeast infections. There are some other things

that can be use while on antibiotics, but you just gotta find out what works

for you. I'll be the first to say I hate antibiotics too for that same

reason, but when I need them I buy all the yogurt I can to help me out. I

never thought I would eat yogurt, because I'm a very picky eater. Yes it's

yucky, but it works.

Ywellen

[Guest guest]

On Tue, 30 Jan 2001 13:52:07 -0500, wrote:

> Hi:

>

> This is the first time I have ever belonged to a support group. I have

read some of

> your letters and find them very helpful.

>

> Hi. I was dx with AIH last March and overlap PBC in December. I am 43

also with 4 kids 24,21,13,11,and a 1 month old grandson. I am not married

but my family does atleast try to understand. I have the same problem with

the youngest ones worring but my 21 yo has me babysitting everyday which is

very tiring. We are all here to help in anyway we can. Stay well.

Debra

your gentle friend

God Bless

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[Guest guest]

Hi:

I know this is from a man's point of view, but I have had my wife

involved throughout my diagnosis, and she continuities to be involved

throughout my treatment. The best thing that happened to me was

basically this group and her reading the posts from the other people

that belong to this group that have the same disease. Reading about all

the bad times (and good times) that others are going through, (the

tests, the biopsy's, the doctor's visits, the hospital visits, the

hurting, the laughing) and relating them to me. The second best thing I

did was have her go to some doctor appointments with me, so that she had

the opportunity to ask questions to the doctor, this really helped her

understand the disease, and what to expect from it. So basically, I

guess I'm saying is get your husband and kids involved, and this way

hopefully they will understand what you are going through.

-Clyde

--

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Help save a life, become an organ and tissue donor today.|

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[Guest guest]

Hi ...It might help to remember the reasons you origionally chose not to vaccinate in the first place. School vaccinations can be avoided (with or without some hassle), and it would seem a shame (in my opinion) to subject your daughter to the toxins and ill health that could follow the vax's when you have come so far already in trying to assure her continued health...

Sharon, Quakertown PA

(unknown)

Hi Everyone,

I just want to introduce myself. My name is and I have four children 17, 14, almost 5 and ready for school in the fall and 3. My first two were fully vaccinated but I have chosen not to vaccinate my youngest two. With my almost five yr old ready to start school in the fall I have found myself waivering back and forth in my decision whether or not to vaccinate. I hope by joining this list I will get the info and support I need to stand firm in the decision I have made not to vaccinate.

Work At Home on-line! Duplicatable system!

http://teamideals.com/show.cgi?id=lisasheldon & page=main3.ht

[Guest guest]

dan lemay wrote:

> Hi:

>

> This is the first time I have ever belonged to a support group. I have read

some of

> your letters and find them very helpful. I was diagnosed with AIH about 3

years ago

> I know I have had it much longer though. I find it very hard to talk to my

family about

> it and especially how I feel and how scared I get at times. I am 43 and have

3

> children 19, 12 and ll. They always worry about me especially if they find

out I have

> been at the doctors. The problem is they are so used to me being able to do

everything

> that they find it hard when I have to slow down. As for my husband I don't

think he

> realizes the severity of this disease and is not understanding at all. I

think if I had

> more support from him I could deal with this easier. I am hoping that by

joining

> this support group that it will give me the support I lack. Thanks for

everything.

>

> Configure this line on the

> Email Preferences screen

> ______________________________________________

>

> Get your FREE SkyBiz.com email at www.skybizworld.com !

>

>

>

[Guest guest]

At 05:17 PM 01/30/2001 -0800, you wrote:

> Hi Everyone,

> the info and support I need to stand firm in the decision I have made

>not to vaccinate.

>

>

Welcome ! Where do you live?

You'll find lots of support here!

Sheri

co-moderator

--------------------------------------------------------

Sheri Nakken, R.N., MA

Vaccination Information & Choice Network, Nevada City CA & UK

530-478-1242 Voicemail

http://www.nccn.net/~wwithin/vaccine.htm

" All that is necessary for the triumph of evil is that good men ( &

women) do nothing " ...Edmund Burke

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

CEU's for nurses, Books & Multi-Pure Water Filters

[Guest guest]

Harper:

I was wondering something. I have to see my heptologist once a month,

plus once a month blood work, is this abnormal, or good?

-Clyde

--

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Help save a life, become an organ and tissue donor today.|

=========================================================+

[Guest guest]

CLYDE,

I just read your post and i have my labs done

weekly so feel lucky my veins are really starting

to get sclorosed.. They do that tp keep an eye on

liver functions and to watch for what the

reaction is as he lowers my pred. Hope that

helps.

heidi

--- C C McPherson <ccmcphe@...> wrote:

> Harper:

> I was wondering something. I have to see my

> heptologist once a month,

> plus once a month blood work, is this abnormal,

> or good?

>

> -Clyde

> --

>

=========================================================+

> Help save a life, become an organ and tissue

> donor today.|

>

=========================================================+

>

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[Guest guest]

Heidi...what do you mean by " my veins are really starting to get

sclorosed " ?

Jerry

CLYDE,

I just read your post and i have my labs done

weekly so feel lucky my veins are really starting

to get sclorosed.. They do that tp keep an eye on

liver functions and to watch for what the

reaction is as he lowers my pred. Hope that

helps.

heidi

--- C C McPherson <ccmcphe@...> wrote:

> Harper:

> I was wondering something. I have to see my

> heptologist once a month,

> plus once a month blood work, is this abnormal,

> or good?

>

> -Clyde

> --

>

=========================================================+

> Help save a life, become an organ and tissue

> donor today.|

>

=========================================================+

>

__________________________________________________

Get personalized email addresses from - only $35

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[Guest guest]

JERRY,

When they put the needle in my veins are getting

hard from scars. i have switched to my hand veins

for awhile to give my arms a break

Heidi

--- gefox@... wrote:

> Heidi...what do you mean by " my veins are

> really starting to get

> sclorosed " ?

> Jerry

>

>

> ATTACHMENT part 2 message/rfc822

>

> From: HEIDI SCOTT <koolme16602@...>

> Date: Wed, 31 Jan 2001 13:04:59 -0800 (PST)

> Reply-to:

> Subject: Re: [ ] (unknown)

>

> CLYDE,

> I just read your post and i have my labs done

> weekly so feel lucky my veins are really

> starting

> to get sclorosed.. They do that tp keep an eye

> on

> liver functions and to watch for what the

> reaction is as he lowers my pred. Hope that

> helps.

> heidi

> --- C C McPherson <ccmcphe@...> wrote:

> > Harper:

> > I was wondering something. I have to see my

> > heptologist once a month,

> > plus once a month blood work, is this

> abnormal,

> > or good?

> >

> > -Clyde

> > --

> >

>

=========================================================+

> > Help save a life, become an organ and tissue

> > donor today.|

> >

>

=========================================================+

> >

>

>

>

__________________________________________________

> Get personalized email addresses from

> Mail - only $35

> a year! http://personal.mail./

>

>

>

[Guest guest]

Heidi...... Oh... Might you mean sclErosing? ..... I had that trouble

myself , too much scar tissue to get a needle in some of my veins.

They do a procedure called sclerotherapy for esophageal varices where

they inject a chemical agent during endoscopy that hardens the ends of

the veins to stop thier bleeding...sometimes they " sclerose " around the

veins to keep pressure on them. I had maybe a dozen or so done.

It is also a treatment for varicose veins.

Jerry.

JERRY,

When they put the needle in my veins are getting

hard from scars. i have switched to my hand veins

for awhile to give my arms a break

Heidi

--- gefox@... wrote:

> Heidi...what do you mean by " my veins are

> really starting to get

> sclorosed " ?

> Jerry

>

>

> ATTACHMENT part 2 message/rfc822

>

> From: HEIDI SCOTT <koolme16602@...>

> Date: Wed, 31 Jan 2001 13:04:59 -0800 (PST)

> Reply-to:

> Subject: Re: [ ] (unknown)

>

> CLYDE,

> I just read your post and i have my labs done

> weekly so feel lucky my veins are really

> starting

> to get sclorosed.. They do that tp keep an eye

> on

> liver functions and to watch for what the

> reaction is as he lowers my pred. Hope that

> helps.

> heidi

> --- C C McPherson <ccmcphe@...> wrote:

> > Harper:

> > I was wondering something. I have to see my

> > heptologist once a month,

> > plus once a month blood work, is this

> abnormal,

> > or good?

> >

> > -Clyde

> > --

> >

>

=========================================================+

> > Help save a life, become an organ and tissue

> > donor today.|

> >

>

=========================================================+

> >

>

>

>

__________________________________________________

> Get personalized email addresses from

> Mail - only $35

> a year! http://personal.mail./

>

>

>

[Guest guest]

JERRY, Hedi was one of those blood suckers before she got ill, as im sure she wrotte back in another post. and now the viens are scared. i have it too from ivs

christi

[Guest guest]

dan lemay wrote:

> Hi:

>

> This is the first time I have ever belonged to a support group. I have read

some of

> your letters and find them very helpful. I was diagnosed with AIH about 3

years ago

> I know I have had it much longer though. I find it very hard to talk to my

family about

> it and especially how I feel and how scared I get at times. I am 43 and have

3

> children 19, 12 and ll. They always worry about me especially if they find

out I have

> been at the doctors. The problem is they are so used to me being able to do

everything

> that they find it hard when I have to slow down. As for my husband I don't

think he

> realizes the severity of this disease and is not understanding at all. I

think if I had

> more support from him I could deal with this easier. I am hoping that by

joining

> this support group that it will give me the support I lack. Thanks for

everything.

>

> Configure this line on the

> Email Preferences screen

> ______________________________________________

>

> Get your FREE SkyBiz.com email at www.skybizworld.com !

>

>

>

[Guest guest]

Jan, I have not received anything from that group either and am having

nothing but problems with all the others.

Messages do not get to me and my posts don't get posted.

A lot of others complained about the same thing. Some of us wrote to

and vented. I doubt that it will help but give it a try.

Christel

[Guest guest]

Hello? Is anyone there? (This is from Jan Bolen)

I haven't received much from the Dr. group

lately, and when finely, I received a post, this is

all it said...

--- ATypist4God@... wrote:

>

>

>

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