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> Hi, my name is maritza perez,

> i just went into this web site becouse for the past month i've

been very ill, i had my surgery about 1year ago and i have been

notecing my left implant has been deflating alot, i read the web site

about the complacations of leaking implants, to my surpriced i now

know that it was not my imagination as to why i have been so, so ill

my back has been hurting me a great deal specialy the middle uppper

back it goes all the way up to the back of my neck, been having a flu

like symptoms having a dry cough that does not go away, head aches,

muscle ache and last but not least my right leg has been hurting me

all the way to my ankle and the buttom of my foot. been going to my

physician which tells my it's just a muscle spasm to the er thinking

it was my hurt because my left arm gets numb am also i have been

itchy every where, now my head has been itchy like crazy and no one

knows what is wrong with me, please help am going crazy.

> __________________________________________________

>

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Maritza, just know you're being sent many healing angels to minister

to you and lots of warm fuzzies!! I like to use humor to stay on the

positive side, so don't mind me if I sound silly sometimes!! lol

Love ya lota,

Sunny :) I live in Red Deer, Alberta, Canada. (above Montana and

Idaho) And , no, it doesn't snow here all year round!! Tee Hee!

> > Hi, my name is maritza perez,

> > i just went into this web site becouse for the past month i've

> been very ill, i had my surgery about 1year ago and i have been

> notecing my left implant has been deflating alot, i read the web

site

> about the complacations of leaking implants, to my surpriced i now

> know that it was not my imagination as to why i have been so, so

ill

> my back has been hurting me a great deal specialy the middle uppper

> back it goes all the way up to the back of my neck, been having a

flu

> like symptoms having a dry cough that does not go away, head aches,

> muscle ache and last but not least my right leg has been hurting me

> all the way to my ankle and the buttom of my foot. been going to my

> physician which tells my it's just a muscle spasm to the er

thinking

> it was my hurt because my left arm gets numb am also i have been

> itchy every where, now my head has been itchy like crazy and no one

> knows what is wrong with me, please help am going crazy.

> > __________________________________________________

> >

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Maritza,

I'm so sorry you are feeling poorly. As the other ladies here have said, I believe you will get better by having your implants removed as soon as you are able.Your symptoms are not unusual-- I had them, as did many of the ladies here. Let us know how we can best help you in this journey back to your health. All of us here have been though the same troubles you are now experiencing, and we can help you through it. Don't worry.You won't be alone with this.

Bindi

(unknown)

Hi, my name is maritza perez,

i just went into this web site becouse for the past month i've been very ill, i had my surgery about 1year ago and i have been notecing my left implant has been deflating alot, i read the web site about the complacations of leaking implants, to my surpriced i now know that it was not my imagination as to why i have been so, so ill my back has been hurting me a great deal specialy the middle uppper back it goes all the way up to the back of my neck, been having a flu like symptoms having a dry cough that does not go away, head aches, muscle ache and last but not least my right leg has been hurting me all the way to my ankle and the buttom of my foot. been going to my physician which tells my it's just a muscle spasm to the er thinking it was my hurt because my left arm gets numb am also i have been itchy every where, now my head has been itchy like crazy and no one knows what is wrong with me, please help am going crazy.

__________________________________________________

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,

I would be worthwhile to find out. The achy feeling some people have is

EBV. You can't cure it but you can reduce your viral load.

Kenda

> Kenda,

>

> I don't know if I have been checked or not. I have had so many blood tests

> and I can't remember the names of any of them, I just know the results all say

> " normal or negative. " I guess I will ask my GP when I see him next.

>

> Thanks,

>

>

>

> Kenda Skaggs <skaggs@...> wrote:

> Hi ,

>

> Your letter just made me think of something. Have you been checked for

> Epstein Barr Virus? If not, you might want to have a blood test for it. If

> you are positive, anti-viral supplements can help you beat your chronic

> fatigue and fibro symptoms. My son and I are both EBV positive.

>

> Kenda

>

>> No, you are not going crazy, the symptoms you are suffering from are

>> identicle to alot of other women who have come here looking for answeres.

>> This includes myself. I came here last December looking for reasons for all

>> my physical symptoms. I was so sick, and was told by a couple of doctors that

>> it was all in my head. I was explanted in February. I have seen some

>> improvement in my health, however, I still struggle with Chronic Fatigue and

>> Fibromayalgia. We have many knowledgable women here who can help you

>> understand what is going on inside your body. Keep coming and posting, we are

>> here to care for you.

>>

>> Have a good night,

>>

>>

>>

>> maritza perez <maritza_perez9@...> wrote:

>> Hi, my name is maritza perez,

>> i just went into this web site becouse for the past month i've been very

>> ill, i had my surgery about 1year ago and i have been notecing my left

>> implant has been deflating alot, i read the web site about the complacations

>> of leaking implants, to my surpriced i now know that it was not my

>> imagination

>> as to why i have been so, so ill my back has been hurting me a great deal

>> specialy the middle uppper back it goes all the way up to the back of my

>> neck,

>> been having a flu like symptoms having a dry cough that does not go away,

>> head

>> aches, muscle ache and last but not least my right leg has been hurting me

>> all

>> the way to my ankle and the buttom of my foot. been going to my physician

>> which tells my it's just a muscle spasm to the er thinking it was my hurt

>> because my left arm gets numb am also i have been itchy every where, now my

>> head has been itchy like crazy and no one knows what is wrong with me, please

>> help am going crazy.

>> __________________________________________________

>>

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> Hi, my name is maritza perez,

> i just went into this web site becouse for the past month i've

been very ill, i had my surgery about 1year ago and i have been

notecing my left implant has been deflating alot, i read the web site

about the complacations of leaking implants, to my surpriced i now

know that it was not my imagination as to why i have been so, so ill

my back has been hurting me a great deal specialy the middle uppper

back it goes all the way up to the back of my neck, been having a flu

like symptoms having a dry cough that does not go away, head aches,

muscle ache and last but not least my right leg has been hurting me

all the way to my ankle and the buttom of my foot. been going to my

physician which tells my it's just a muscle spasm to the er thinking

it was my hurt because my left arm gets numb am also i have been

itchy every where, now my head has been itchy like crazy and no one

knows what is wrong with me, please help am going crazy.

> __________________________________________________

>

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Thank you Bindi, for just a great support.freebindi <bindi@...> wrote: Maritza, I'm so sorry you are feeling poorly. As the other ladies here have said, I believe you will get better by having your implants removed as soon as you are able.Your symptoms are not unusual-- I had them, as did many of the ladies here. Let us know how we can best help you in this journey back to your health. All of us here have been though the same troubles you are now

experiencing, and we can help you through it. Don't worry.You won't be alone with this. Bindi (unknown) Hi, my name is maritza perez, i just went into this web site becouse for the past month i've been very ill, i had my surgery about 1year ago and i

have been notecing my left implant has been deflating alot, i read the web site about the complacations of leaking implants, to my surpriced i now know that it was not my imagination as to why i have been so, so ill my back has been hurting me a great deal specialy the middle uppper back it goes all the way up to the back of my neck, been having a flu like symptoms having a dry cough that does not go away, head aches, muscle ache and last but not least my right leg has been hurting me all the way to my ankle and the buttom of my foot. been going to my physician which tells my it's just a muscle spasm to the er thinking it was my hurt because my left arm gets numb am also i have been itchy every where, now my head has been itchy like crazy and no one knows what is wrong with me, please help am going crazy. __________________________________________________

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Hi Lynda, thanks so much for the info you are providing me, let me ask you a question, I will be seeing my surgent on monday, to have them removed, but he does not know what is going on with me,or that i have been this ill, so how will he know what to do and what to remove?Lynda <coss@...> wrote: Mammograms can rupture implants. Possibly there was something growing inside your implant that leaked into your body and is making you ill. You need to have the implants and the scar tissue that formed around

them removed, we call it en bloc removal.The doctors you are seeing will not help you with the implant problem.LyndaAt 05:40 PM 9/18/2006, you wrote:>> >> > >Hi, my name is maritza perez,> > >i just went into this web site becouse for the> > >past month i've been very ill, i had my> > >surgery about 1year ago and i have been> > >notecing my left implant has been deflating> > >alot, i read the web site about the> > >complacations of leaking implants, to my> > >surpriced i now know that it was not my> > >imagination as to why i have been so, so ill my> > >back has been hurting me a great deal specialy> > >the middle uppper back it goes all the way up to> > >the back of my neck, been having a flu like> > >symptoms having a dry

cough that does not go> > >away, head aches, muscle ache and last but not> > >least my right leg has been hurting me all the> > >way to my ankle and the buttom of my foot. been> > >going to my physician which tells my it's just a> > >muscle spasm to the er thinking it was my hurt> > >because my left arm gets numb am also i have> > >been itchy every where, now my head has been> > >itchy like crazy and no one knows what is wrong> > >with me, please help am going crazy.> > >> > >__________________________________________________> > >

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Most plastic surgeons do not remove implants properly, so be aware of this.

Ask him if he will take out the implants and the

entire scar tissue that formed around them. If

he says he can't or won't or that it could

puncture your lung, go to someone who will do it

properly. We have a list of doctors on this

site. As I said, I think probably 98% of doctors do not remove these properly.

Lynda

At 08:45 PM 9/18/2006, you wrote:

>Hi Lynda, thanks so much for the info you are

>providing me, let me ask you a question, I will

>be seeing my surgent on monday, to have them

>removed, but he does not know what is going on

>with me,or that i have been this ill, so how

>will he know what to do and what to remove?

>

>Lynda <coss@...> wrote:

>Mammograms can rupture implants. Possibly there

>was something growing inside your implant that

>leaked into your body and is making you ill. You

>need to have the implants and the scar tissue

>that formed around them removed, we call it en bloc removal.

>

>The doctors you are seeing will not help you with the implant problem.

>

>Lynda

>

>At 05:40 PM 9/18/2006, you wrote:

>

> >

> > >

> > > >Hi, my name is maritza perez,

> > > >i just went into this web site becouse for the

> > > >past month i've been very ill, i had my

> > > >surgery about 1year ago and i have been

> > > >notecing my left implant has been deflating

> > > >alot, i read the web site about the

> > > >complacations of leaking implants, to my

> > > >surpriced i now know that it was not my

> > > >imagination as to why i have been so, so ill my

> > > >back has been hurting me a great deal specialy

> > > >the middle uppper back it goes all the way up to

> > > >the back of my neck, been having a flu like

> > > >symptoms having a dry cough that does not go

> > > >away, head aches, muscle ache and last but not

> > > >least my right leg has been hurting me all the

> > > >way to my ankle and the buttom of my foot. been

> > > >going to my physician which tells my it's just a

> > > >muscle spasm to the er thinking it was my hurt

> > > >because my left arm gets numb am also i have

> > > >been itchy every where, now my head has been

> > > >itchy like crazy and no one knows what is wrong

> > > >with me, please help am going crazy.

> > > >

> > > >__________________________________________________

> > > >

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-Maritza,

Welcome, I am sorry it is under these circumstances, I had saline

implants for 20 years, I got sick after the first ten yers, I went to

50 different doctors and hospitals nobody ever asked about the

implants, even though I had put it on all of records as a surgery, I

figured it out myself after hearing a news story on saline, I was

told not to worry it was only silicone, well after explant last year

the pathologist report was psoitive for silicone on the breast tissue

and capsule, I was poisioned as far as I am concerned, no warnign

about them expiring and even out and out lies about what they were.

The outer shell is silicone on all implants, also make sure that they

don't try to tell you you don't have scar tissue because you haven't

had them that long, sometimes the PS will say that, you will not be

deformed, that was a nother I was told, you will looke the same as

you did before your implants, stay strong girl we are all here for

you.

Terri P

Hawaii

-- In , Lynda <coss@...> wrote:

>

> Most plastic surgeons do not remove implants properly, so be aware

of this.

>

> Ask him if he will take out the implants and the

> entire scar tissue that formed around them. If

> he says he can't or won't or that it could

> puncture your lung, go to someone who will do it

> properly. We have a list of doctors on this

> site. As I said, I think probably 98% of doctors do not remove

these properly.

>

> Lynda

>

>

> At 08:45 PM 9/18/2006, you wrote:

>

> >Hi Lynda, thanks so much for the info you are

> >providing me, let me ask you a question, I will

> >be seeing my surgent on monday, to have them

> >removed, but he does not know what is going on

> >with me,or that i have been this ill, so how

> >will he know what to do and what to remove?

> >

> >Lynda <coss@...> wrote:

> >Mammograms can rupture implants. Possibly there

> >was something growing inside your implant that

> >leaked into your body and is making you ill. You

> >need to have the implants and the scar tissue

> >that formed around them removed, we call it en bloc removal.

> >

> >The doctors you are seeing will not help you with the implant

problem.

> >

> >Lynda

> >

> >At 05:40 PM 9/18/2006, you wrote:

> >

> > >

> > > >

> > > > >Hi, my name is maritza perez,

> > > > >i just went into this web site becouse for the

> > > > >past month i've been very ill, i had my

> > > > >surgery about 1year ago and i have been

> > > > >notecing my left implant has been deflating

> > > > >alot, i read the web site about the

> > > > >complacations of leaking implants, to my

> > > > >surpriced i now know that it was not my

> > > > >imagination as to why i have been so, so ill my

> > > > >back has been hurting me a great deal specialy

> > > > >the middle uppper back it goes all the way up to

> > > > >the back of my neck, been having a flu like

> > > > >symptoms having a dry cough that does not go

> > > > >away, head aches, muscle ache and last but not

> > > > >least my right leg has been hurting me all the

> > > > >way to my ankle and the buttom of my foot. been

> > > > >going to my physician which tells my it's just a

> > > > >muscle spasm to the er thinking it was my hurt

> > > > >because my left arm gets numb am also i have

> > > > >been itchy every where, now my head has been

> > > > >itchy like crazy and no one knows what is wrong

> > > > >with me, please help am going crazy.

> > > > >

> > > > >__________________________________________________

> > > > >

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Mar....the back of my lower head hurt so bad I thought I was going to die.My knees,feet and hand and fingers hurt. My neck kills me...now after explant 1 week ago today YEAH !!! I am feeling a lot better...I have a ways to go but I feel a lot better.....it took me over a year to believe it was my implants cause ALL doctors tell you its not...but come on...read all this imformation..we all have about the same symptoms...I was also told I would look deformed...I don't... I'm smaller yes...but very very normal. Take Care Go see a Ps that someone suggest if you can you'll feel better cause they will believe you and also they will know how to remove them properly . EN BLOC and DRAINS.....Take Care 9/12/06 explant DR Schnarrs Norfolk Va

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, On our database there is a Dr Teng in Las Vegas, I do believe he is very expensive, our patients from las Vegas are coming back here. Call and check. NinaMichel <mchlanna@...> wrote: Does anyone know the name of the fill Dr's in Las Vegas? I remember someone had posted information, and now I can't find the e-mail. If anyone knows can you please posted again. Thank you,

299,244,175 d.o.b- 6-30-06 Michel Get your email and more, right on the new .com

Nina Eguia Patient Coordinator, Dr Aceves888 344 3916 , 619-962-8142nina_eguia@...

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

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Thanks Nina.nina eguia <nina_eguia@...> wrote: , On our database there is a Dr Teng in Las Vegas, I do believe he is very expensive, our patients from las Vegas are coming back here. Call and check. NinaMichel <mchlanna > wrote: Does

anyone know the name of the fill Dr's in Las Vegas? I remember someone had posted information, and now I can't find the e-mail. If anyone knows can you please posted again. Thank you, 299,244,175 d.o.b- 6-30-06 Michel Get your email and more, right on the new .com Nina Eguia Patient Coordinator, Dr Aceves888 344 3916 , 619-962-8142nina_eguia How low will we go? Check out Messenger’s low PC-to-Phone call rates. Michel

All-new - Fire up a more powerful email and get things done faster.

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hi ladymaritza_perez9 <maritza_perez9@...> wrote: > > >Hi, my name is maritza perez,> >i just went into this web site becouse for the > >past month i've been very ill, i had my > >surgery about 1year ago and i have been > >notecing my left implant has been deflating > >alot, i read the web site about the > >complacations of leaking implants, to my > >surpriced i now know that it was not my > >imagination as to why i have been so, so ill my > >back has been hurting me a great deal specialy > >the middle uppper back

it goes all the way up to > >the back of my neck, been having a flu like > >symptoms having a dry cough that does not go > >away, head aches, muscle ache and last but not > >least my right leg has been hurting me all the > >way to my ankle and the buttom of my foot. been > >going to my physician which tells my it's just a > >muscle spasm to the er thinking it was my hurt > >because my left arm gets numb am also i have > >been itchy every where, now my head has been > >itchy like crazy and no one knows what is wrong > >with me, please help am going crazy.> >> >__________________________________________________> >

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You can go through nevada fill center but the doctor they have here in vegas

has never done a fill so I made the decision to go back to Mexico. But his

name is dr. yee and you can go to the website at www.fillcenterusa.com

>From: Michel <mchlanna@...>

>Reply-

>Aceves < >

>Subject: (unknown)

>Date: Wed, 20 Sep 2006 10:08:16 -0700 (PDT)

>

>Does anyone know the name of the fill Dr's in Las Vegas? I remember

>someone had posted information, and now I can't find the e-mail. If anyone

>knows can you please posted again. Thank you,

> 299,244,175

> d.o.b- 6-30-06

>

>

> Michel

>

>

>---------------------------------

>Get your email and more, right on the new .com

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I'm assuming that the nursing home doesn't offer insurance. If not, have you

seen if you are eligible for Medicaid or something. Those tests cost sooo much

money.

I think that 12 hr. shifts are very hard but found nights to be the easier

shift. You don't have all the visitors, admissions, & discharges. And you get

more days off but, you're right, sleeping is a challenge.

Keep us posted & hang in there.....

princessjordynsmommy <princessjordynsmommy@...> wrote:

Hello all. I went to my doctor app't Wednesday. I am very

discouraged. My doctor didn't really want to do any more testing on

me, but I told her I am paying for it (I have no insurance) so I will

get the tests done that I want. The Zyrtec helped my itching, and

after I told the doctor that she acted like it was all better and

nothing needed to be done. She mentioned that when someone has the

itching sensation it only gets worse because it is thought about...

it is only in our head. That is what my aunt heard for years before

someone finally listend to her. I still need to know what started it

and why my liver enzyme was high. Anyway, I told her I want the AMA

test and for her to also redo the CMP. They drew my blood for the

CMP, but they had no price on the AMA readily available since they do

not do that often. The doctor said it is around $100 for it but for

me to call back next week for the exact amount and then schedule for

it to be done. I will definately have that test, but when I do not

know yet.

, I am a nurse as well... but I am an LPN, also working night

shift and do 12 hour shifts every other weekend. I work every

weekend, every Wednesday, and every other Monday night. I've been

getting so worn out and very moody lately, especially after working

my three nights in a row. You worked night shift so I am sure you

know that it is very different than working days, and is more wearing

on the body and mind. Sleep is always interrupted and no one in the

family realizes that day time is our night time. Hope you are

feeling better!

~AMY~

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I work in an Assisted Living Home and they do offer insurance, but I

do not get it because I do not work 35 or more hours a week. They

don't offer insurance for anything less than that. I do not qualify

for Medicaid, so that leaves me on my own. Even if I did work 35

hours or more a week I could not use the insurance on this because it

would be considered pre-existing... I looked it up in our employee

handbook, and talked to my boss about it. I'm pretty much screwed

when it comes to that.

Yes, night shift is the 'easier shift' as far as the work load,

although working in a small building as I do our work load is not the

same as working in a nursing home. Night shift has all the

paperwork, filing, cleaning, laundry, and all that fun stuff to do..

along with resident care. It is quite different than working in a

nursing home or hospital. I don't do all 12 hour shifts, although

I'd like to.

Thanks for listening!

AMY

> Hello all. I went to my doctor app't Wednesday. I am very

> discouraged. My doctor didn't really want to do any more testing on

> me, but I told her I am paying for it (I have no insurance) so I

will

> get the tests done that I want. The Zyrtec helped my itching, and

> after I told the doctor that she acted like it was all better and

> nothing needed to be done. She mentioned that when someone has the

> itching sensation it only gets worse because it is thought about...

> it is only in our head. That is what my aunt heard for years before

> someone finally listend to her. I still need to know what started

it

> and why my liver enzyme was high. Anyway, I told her I want the AMA

> test and for her to also redo the CMP. They drew my blood for the

> CMP, but they had no price on the AMA readily available since they

do

> not do that often. The doctor said it is around $100 for it but for

> me to call back next week for the exact amount and then schedule

for

> it to be done. I will definately have that test, but when I do not

> know yet.

>

> , I am a nurse as well... but I am an LPN, also working night

> shift and do 12 hour shifts every other weekend. I work every

> weekend, every Wednesday, and every other Monday night. I've been

> getting so worn out and very moody lately, especially after working

> my three nights in a row. You worked night shift so I am sure you

> know that it is very different than working days, and is more

wearing

> on the body and mind. Sleep is always interrupted and no one in the

> family realizes that day time is our night time. Hope you are

> feeling better!

>

> ~AMY~

>

>

>

>

>

>

>

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OT can also be (in young kids)  Eating,

communicating, social skills, playing with other kids etc.  Daily life skills

according to age.

Borkowski Mom to Phoebe 2 w/cf & Ds, Nolan 4

click here to join Phoebe's Phight:

www.active.com/donate/buddywalk2006/phight4phoebe

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Priscilla

Sent: Sunday, September 24, 2006

1:41 PM

Down Syndrome Treatment

Subject:

(unknown)

I understand OT - occupational therapy is more life skills -

dressing, writing, skills needed to work or do a job, etc. whereas PT

or physical therapy is more working on walking and running and

getting around and playing, ----when Evan could walk good we were

graduated out of PT --OT and PT do overlap some.

Priscilla K

>>>>>gwyn.theodoregmail

writes:

We started ST & OT immediately. I guess it depends on the state???

I´m not

sure what the difference b/w OT and PT is - can someone explain?

wot is ot pt so on so on ??>>>>>>

Priscilla Kendrick, married 29 years to Darrel and parents of 9 kids including

Evan, 10, born with Down Syndrome and Spina Bifida

" My strength is made perfect in weakness. "

" My grace is sufficient. " II Corinthians 12:9 KJV

__________________________________________________

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stay as an odp

>From: " andrew domelow " <a_domelow69@...>

>Reply-

>

>Subject: (unknown)

>Date: Mon, 25 Sep 2006 09:36:14 +0000

>

>hi

>I Andy Domelow currently im a ODP but im looking at becoming an offshore

>medic. Any help or advice you can give will be of great help. Also any

>pointers to companys that employoffshore medics or agencies would would be

>of help to.

>thanks

>Andy

>

>_________________________________________________________________

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Check your spam folder for starters. I noticed a lot of my missing mail ends up there. is known for missing mail. You can read mail off the web site too. That will let you compare what you did receive and what you didn't. I haven't figured out to how fix missing mail myself. "ktripp99@..." <ktripp99@...> wrote: looks like i am having trouble with receiving all of e mails with this support group. what can i do about that, please? thanks. kathleen Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, chronic constipation ( cured now ) and DS. My problem is not how I look. It's how you see me.

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

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Thanks, carol---beverly

On 9/25/06 5:49 PM, " Carol in IL " <ps1272000@...> wrote:

Check your spam folder for starters. I noticed a lot of my missing mail ends up there.

is known for missing mail. You can read mail off the web site too. That will let you compare what you did receive and what you didn't.

I haven't figured out to how fix missing mail myself.

" ktripp99@... " <ktripp99@...> wrote:

looks like i am having trouble with receiving all of e mails with this support group. what can i do about that, please?

thanks. kathleen

<http://www.incredimail.com/index.asp?id=996917>

Carol in IL

Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, chronic constipation ( cured now ) and DS.

My problem is not how I look. It's how you see me.

Get your own web address for just $1.99/1st yr < http://us.rd./evt=43290/*http://smallbusiness./domains> . We'll help. Small Business <http://us.rd./evt=41244/*http://smallbusiness./> .

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So far I like this method BEST but it is much moer time consuming and it is

space taking! And it is going backwards in time. I am waiting for the electronid

'day' of this version! Pt has a kiosk to type in the code ro name what everthat

only she he has. Inthe 'other side at the register it will not isue change,

recept ro take money unless the person has entered the PHI or code.

Bernard <leslieiowan@...> wrote:

Jeanetta

We put our signature on a 3 by 5 card for each customer and keep it in a file

box

then when they want to buy we get the card out and have them sign for the OTC.

This seems to work well for us and no one else sees who has bought anything

wrote:

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

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My son will have an operation for cholesteatoma about one month for

now. I have two questions.

1. I live in Japan and hospital stays are always much longer than in

America. There are reasons for this, but it'd be off topic to

explain. I wanted to ask, how much care does a child require after an

operation? Is it hard to do? I'm considering asking the doctor to let

my son come home early, but wondering if this is a good idea or not.

The hospital seems germy to me, and I think my son would heal better

at home.

2. My son is nearly 5. The doctor is *guessing* that my son was born

with the c-toma, but said he can't be sure till he does the operation

and sees behind the ear drum. He thinks my son has a very good chance

of getting rid of the c-toma completely after one operation. (Though,

of course, he said we should monitor his ear for the long term.) Are

chances for non-occurrence good when the c-toma is caught early on?

Say in young children?

Thanks in advance for any replies.

Best,

Matt Dioguardi

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My daughter had her cholesteatoma removed

at 5 years old.  Our doctor also believes it was congenital.  It was about 2-2½

cm in size, but had many “fingers” so it was complicated to

remove.  The ear drum and all 3 ear bones were destroyed.  The surgeon rebuilt

the ear drum using a skin graft.  Surgery was at 7am on a Thursday, it lasted

about 3 hours, and we were home by 2pm.  She was back at school on Monday.  (She

was ready to play with friends 2 days after the surgery.)  She and I would have

both gone crazy if we had to stay over at the hospital!

A  “pearl” about 3-4 mm in size

was visually discovered 2 years later on her ear drum, so they removed it

through the ear canal (the first surgery was done by making an incision behind

the ear.)   The surgery started at 7am, lasted 4 hours, and we left for home by

2 or 3pm.  After a weekend of rest, she was good to go. 

A recent CT scan revealed one other small remnant

of cholesteatoma that was still left behind.  Surgery #3 just occurred last

Thursday…my daughter is now 9 years old.  The surgeon made an incision

behind her ear, removed the cholesteatoma (about 5mm) and looked for any other

remnants that might be hiding.  None were found.  He then proceeded to rebuild

her ear canal, repair her fixed stapes footplate, and then insert a prosthetic

ossicular chain.  We are very hopeful that she will gain most of her hearing

back.  (She only had about 30%.)

We drove about 8 hours to Los Angeles.  The House Ear Institute attracts

many of the top ear doctors and I am determined to make this the last surgery. 

We had an excellent surgeon named Derald Brackmann.  Surgery was Thursday at 1pm

and we were back in our room at the “guest house” next to the

hospital at 10pm.  We drove home the next day and she was ready to play with

her friends that afternoon.  She mainly rested for the weekend and went back to

school on Monday.

Even with the incision and stitches behind

the ear, the surgery overall seems very non-invasive…at least for

children.  My daughter has bounced back in no time.  The ear heals quickly,

there is little to no dizziness, and very little pain.  The doctor has

prescribed Tylenol with codeine for pain, but she has never taken it.  She

takes Motrin for a few days and that is it.  The only unpleasantness for my

daughter is being nauseous from the anesthetic and spitting up several times for

a few hours after surgery.  After that passes, she is in good spirits.

The key is having regular check ups and a

knowledgeable specialist.  Our local doctors did a fine job, but once we got

referrals to more specialized doctors and surgeons, it made a huge difference. 

The technology and knowledge is top notch.  Do lots of research and ask lots of

questions.  Also, request copies of all medical reports so you can have the

information for future reference.  Good luck to you and your son.

From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of Dioguardi

Sent: Tuesday, September 26, 2006

3:04 PM

cholesteatoma

Subject: Re:

(unknown)

My son will have an operation for cholesteatoma about

one month for

now. I have two questions.

1. I live in Japan and

hospital stays are always much longer than in

America.

There are reasons for this, but it'd be off topic to

explain. I wanted to ask, how much care does a child require after an

operation? Is it hard to do? I'm considering asking the doctor to let

my son come home early, but wondering if this is a good idea or not.

The hospital seems germy to me, and I think my son would heal better

at home.

2. My son is nearly 5. The doctor is *guessing* that my son was born

with the c-toma, but said he can't be sure till he does the operation

and sees behind the ear drum. He thinks my son has a very good chance

of getting rid of the c-toma completely after one operation. (Though,

of course, he said we should monitor his ear for the long term.) Are

chances for non-occurrence good when the c-toma is caught early on?

Say in young children?

Thanks in advance for any replies.

Best,

Matt Dioguardi

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The chances of another c-toma are always going to be there if your child has an ongoing chronic middle ear problem. It does not matter as to WHEN the c-toma developed, just get it out. Make him explain the surgery in detail to you. Behind the external ear is the mastoid bone. Why the doc would want to look there for the c-toma is weird. It is in the middle ear surrounding the auditory bones or auditory ossicles. Going home would help your child heal. Hospitals suck when you are an adult. Poor kid will be miserable having to stay there, but if your son has any pain associated with the surgery, staying there to have his pain managed would be a good thing.

Edmondson

(678)622-6085

Re: (unknown)

My son will have an operation for cholesteatoma about one month for

now. I have two questions.

1. I live in Japan and hospital stays are always much longer than in

America. There are reasons for this, but it'd be off topic to

explain. I wanted to ask, how much care does a child require after an

operation? Is it hard to do? I'm considering asking the doctor to let

my son come home early, but wondering if this is a good idea or not.

The hospital seems germy to me, and I think my son would heal better

at home.

2. My son is nearly 5. The doctor is *guessing* that my son was born

with the c-toma, but said he can't be sure till he does the operation

and sees behind the ear drum. He thinks my son has a very good chance

of getting rid of the c-toma completely after one operation. (Though,

of course, he said we should monitor his ear for the long term.) Are

chances for non-occurrence good when the c-toma is caught early on?

Say in young children?

Thanks in advance for any replies.

Best,

Matt Dioguardi

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

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There is no reason that the c-toma shouldn't be able to be gotten totally in one surgery. IN THEORY, a c-toma is a benign tumor, but each c-toma is a one time surgery. He may have to have surgery again, but that would be a different c-toma.

Edmondson

(678)622-6085

Re: (unknown)

My son will have an operation for cholesteatoma about one month for

now. I have two questions.

1. I live in Japan and hospital stays are always much longer than in

America. There are reasons for this, but it'd be off topic to

explain. I wanted to ask, how much care does a child require after an

operation? Is it hard to do? I'm considering asking the doctor to let

my son come home early, but wondering if this is a good idea or not.

The hospital seems germy to me, and I think my son would heal better

at home.

2. My son is nearly 5. The doctor is *guessing* that my son was born

with the c-toma, but said he can't be sure till he does the operation

and sees behind the ear drum. He thinks my son has a very good chance

of getting rid of the c-toma completely after one operation. (Though,

of course, he said we should monitor his ear for the long term.) Are

chances for non-occurrence good when the c-toma is caught early on?

Say in young children?

Thanks in advance for any replies.

Best,

Matt Dioguardi

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

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