Re: (unknown)

[Guest guest]

Hi Betsy,

is there a Family Resource where you live? What state are you in? Can you

get respite? Maybe I just jumped in this (e-mail) in the middle and this was

discussed. While the kids are in school can you get to a gym (for you mom).

sending you a hug.

betsy justme <strung_out_hair_goo@...> wrote:

OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR SAYS I SHOULD GET OUT AND

MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I AM SINGLE MOM OF 5, THE

OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU GUYS GET THROUGH EACH DAY? I

AM A WRECK. MY SON IS A DANGER TO HIS BROTHER AND SISTER, LIES CONSTANTLY, TALKS

BACK CONSTANTLY, AND I HAVE NO TIME TO GO ANYWHERE FOR HELP. I AM FRUSTRATED TO

THE POINT OF TEARS. I HAVE READ THE BOOKS, BUT IT SEEMS NOT TO HELP. ANY IDEAS

HOW I CAN SURVIVE UNTIL TOMORROW?

BETSY

---------------------------------

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[Guest guest]

Betsy,

How old is your oldest son? If you can get respite care through a local

community agency, then go for it. We didn't have any luck with that.

(We live in California, and were told that our son needed to have a

primary diagnosis of autism, not Asperger's Syndrome to get services

from the Regional Center.) What we did do was find our son a mentor

when he was about 11 or 12. This was a man in his early thirties who

had two children of his own, and had a wonderful way with kids. He used

to be a psych tech in the navy and had worked with our son's former

psychiatrist when they both were in the navy. He came over twice a week

and did floor time with . Sometimes he brought his two boys and

the three of them went swimming in our pool.

You need to get help. That needs to go to the top of your list, even if

it means dragging all five kids to the therapist with you. That's how

you're gonna survive this. S/he is going to give you tricks to survive

this mess. In the meantime, write to us and vent, and pick up tips and

information. That's what we're here for.

Liz

On May 4, 2006, at 2:50 PM, betsy justme wrote:

> OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR SAYS I SHOULD GET

> OUT AND MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I AM SINGLE

> MOM OF 5, THE OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU GUYS

> GET THROUGH EACH DAY? I AM A WRECK. MY SON IS A DANGER TO HIS BROTHER

> AND SISTER, LIES CONSTANTLY, TALKS BACK CONSTANTLY, AND I HAVE NO TIME

> TO GO ANYWHERE FOR HELP. I AM FRUSTRATED TO THE POINT OF TEARS. I HAVE

> READ THE BOOKS, BUT IT SEEMS NOT TO HELP. ANY IDEAS HOW I CAN SURVIVE

> UNTIL TOMORROW?

>

>

> BETSY

[Guest guest]

Betsy,

I always hate when someone says “you need to take time for yourself”… No

kidding, but there were never enough hours in the day to do that. I am a

single mother of 2, 17 and 12 yr old boys. My 12 yr old is Aspie… and

currently in an RTF, because I could no longer deal.

Trust me when I say…. Find the time where ever, however you can… I ended up

being so sick that I lost my job and I was no good to my boys or myself.

Even if you lock the bathroom door and sit for 20 minutes and read a book…

you need to re-charge yourself.

This site has been a blessing for me… there is wonderful ideas, and help…

and everyone lets you vent! I spend time just reading… and to know that

there are others out there dealing with the same issues that I have … makes

me feel better! You are not alone out there!

Hang in there… Hugs

_____

From:

[mailto: ] On Behalf Of betsy justme

Sent: Thursday, May 04, 2006 5:50 PM

Subject: ( ) (unknown)

OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR SAYS I SHOULD GET OUT AND

MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I AM SINGLE MOM OF 5, THE

OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU GUYS GET THROUGH EACH DAY?

I AM A WRECK. MY SON IS A DANGER TO HIS BROTHER AND SISTER, LIES CONSTANTLY,

TALKS BACK CONSTANTLY, AND I HAVE NO TIME TO GO ANYWHERE FOR HELP. I AM

FRUSTRATED TO THE POINT OF TEARS. I HAVE READ THE BOOKS, BUT IT SEEMS NOT TO

HELP. ANY IDEAS HOW I CAN SURVIVE UNTIL TOMORROW?

BETSY

---------------------------------

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[Guest guest]

Betsy, where are you located? Pam

[Guest guest]

Subject: ( ) (unknown)

OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR SAYS I SHOULD GET OUT AND

MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I AM SINGLE MOM OF 5, THE

OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU GUYS GET THROUGH EACH DAY?

I AM A WRECK. MY SON IS A DANGER TO HIS BROTHER AND SISTER, LIES CONSTANTLY,

TALKS BACK CONSTANTLY, AND I HAVE NO TIME TO GO ANYWHERE FOR HELP. I AM

FRUSTRATED TO THE POINT OF TEARS. I HAVE READ THE BOOKS, BUT IT SEEMS NOT TO

HELP. ANY IDEAS HOW I CAN SURVIVE UNTIL TOMORROW?

BETSY

I'm surprised the counselor doesn't find community resources for you. It's

so lame to say " take some time for yourself. " Oh yeah, that's gonna happen

when? Is he coming to babysit so you can?

I would try to find resources in your community. Call the local health

department and ask about services for kids with developmental disabilities.

Network - ask everyone - search.

Roxanna

[Guest guest]

Respite too... Do you have access to it?? What area do you live in.. Maybe I

can do some searches for you..

I was a single parent to two.. And exhausted.. 5... Well.. That rubber room

must look inviting Hon...

One thing I must say.. Is.. Laundry can be done later...

And.. Remember to play with your kids.. ( I know that sounds trite.. But

laundry will always be there.. And play with your kids is important.. ) and

like said.. Even 5 minutes is better than nothing..

That and EAT WELL .. ( hard again financially.. Many times I was at a food

bank.. But my rent was paid.. Working my butt off..)

HUGGS HON you aren't alone.

-- ( ) (unknown)

OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR SAYS I SHOULD GET OUT AND

MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I AM SINGLE MOM OF 5, THE

OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU GUYS GET THROUGH EACH DAY?

I AM A WRECK. MY SON IS A DANGER TO HIS BROTHER AND SISTER, LIES CONSTANTLY,

TALKS BACK CONSTANTLY, AND I HAVE NO TIME TO GO ANYWHERE FOR HELP. I AM

FRUSTRATED TO THE POINT OF TEARS. I HAVE READ THE BOOKS, BUT IT SEEMS NOT TO

HELP. ANY IDEAS HOW I CAN SURVIVE UNTIL TOMORROW?

BETSY

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Messenger with Voice.

[Guest guest]

I agree with some of the others. It is hard enough to get through the day at

times when you are not on your own! I would look into some form of respite. I

am not familiar with U.S services but here in Australia there are companies that

help organise respite for carers of children with special needs. Is there

something familiar in the U.S?

Beck

( ) (unknown)

OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR SAYS I SHOULD GET OUT AND

MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I AM SINGLE MOM OF 5, THE

OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU GUYS GET THROUGH EACH DAY?

I AM A WRECK. MY SON IS A DANGER TO HIS BROTHER AND SISTER, LIES CONSTANTLY,

TALKS BACK CONSTANTLY, AND I HAVE NO TIME TO GO ANYWHERE FOR HELP. I AM

FRUSTRATED TO THE POINT OF TEARS. I HAVE READ THE BOOKS, BUT IT SEEMS NOT TO

HELP. ANY IDEAS HOW I CAN SURVIVE UNTIL TOMORROW?

BETSY

I'm surprised the counselor doesn't find community resources for you. It's

so lame to say " take some time for yourself. " Oh yeah, that's gonna happen

when? Is he coming to babysit so you can?

I would try to find resources in your community. Call the local health

department and ask about services for kids with developmental disabilities.

Network - ask everyone - search.

Roxanna

[Guest guest]

Hi!

I feel for your situation - it sounds hard! A church

near me has " sitting nights " where they'll watch your

kid with an ASD for free, once every two months or so.

Also, my church has been very good about helping me

with Max (PDD). Anything I ask for. Can a local church

help you? If you call around, you might find one that

has resources to help you.

Hope it helps. Hang in there!

- Adrienne from Boston

--- betsy justme <strung_out_hair_goo@...>

wrote:

> OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR

> SAYS I SHOULD GET OUT AND MEET OTHER PARENTS HWO

> HAVE THE SAME ISSUES, BUT I AM SINGLE MOM OF 5, THE

> OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU

> GUYS GET THROUGH EACH DAY? I AM A WRECK. MY SON IS A

> DANGER TO HIS BROTHER AND SISTER, LIES CONSTANTLY,

> TALKS BACK CONSTANTLY, AND I HAVE NO TIME TO GO

> ANYWHERE FOR HELP. I AM FRUSTRATED TO THE POINT OF

> TEARS. I HAVE READ THE BOOKS, BUT IT SEEMS NOT TO

> HELP. ANY IDEAS HOW I CAN SURVIVE UNTIL TOMORROW?

>

>

> BETSY

>

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone

> Calls using Messenger with Voice.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi!

Me, again! Just a few comments...

" I would try to find resources in your community...

call the local health department... "

I agree. I think local resources include churches/

temples. Even if you're not " religious " . I originally

said " churches " and not temples only because in my

personal experience, people in churches have been

easier to talk to and help out with kids on the

spectrum.

- A

>

__________________________________________________

[Guest guest]

Hi!

Me, yet again! I just saw this website from another

member's email, and thought it'd help, if you didn't

see it:

http://www.talkautism.com/sponsors/autismspeaks/ExpertFind.aspx?Page=Main

Hope it helps!

- A

--- Mark son <thejacobsons@...> wrote:

> I agree with some of the others. It is hard enough

> to get through the day at times when you are not on

> your own! I would look into some form of respite.

> I am not familiar with U.S services but here in

> Australia there are companies that help organise

> respite for carers of children with special needs.

> Is there something familiar in the U.S?

> Beck

> ( ) (unknown)

>

> OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR

> SAYS I SHOULD GET OUT AND

> MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I

> AM SINGLE MOM OF 5, THE

> OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU

> GUYS GET THROUGH EACH DAY?

> I AM A WRECK. MY SON IS A DANGER TO HIS BROTHER

> AND SISTER, LIES CONSTANTLY,

> TALKS BACK CONSTANTLY, AND I HAVE NO TIME TO GO

> ANYWHERE FOR HELP. I AM

> FRUSTRATED TO THE POINT OF TEARS. I HAVE READ THE

> BOOKS, BUT IT SEEMS NOT TO

> HELP. ANY IDEAS HOW I CAN SURVIVE UNTIL TOMORROW?

>

>

> BETSY

>

>

> I'm surprised the counselor doesn't find community

> resources for you. It's

> so lame to say " take some time for yourself. " Oh

> yeah, that's gonna happen

> when? Is he coming to babysit so you can?

>

> I would try to find resources in your community.

> Call the local health

> department and ask about services for kids with

> developmental disabilities.

> Network - ask everyone - search.

>

> Roxanna

>

>

>

>

[Guest guest]

Adrienne Lehmann <adriennerob@...> wrote: Hi!

Me, yet again! I just saw this website from another

member's email, and thought it'd help, if you didn't

see it:

http://www.talkautism.com/sponsors/autismspeaks/ExpertFind.aspx?Page=Main

Hope it helps!

- A

--- Mark son <thejacobsons@...> wrote:

> I agree with some of the others. It is hard enough

> to get through the day at times when you are not on

> your own! I would look into some form of respite.

> I am not familiar with U.S services but here in

> Australia there are companies that help organise

> respite for carers of children with special needs.

> Is there something familiar in the U.S?

> Beck

> ( ) (unknown)

>

> OK, I SERIOUSLY NEED SOME HELP. MY SONS COUNCELOR

> SAYS I SHOULD GET OUT AND

> MEET OTHER PARENTS HWO HAVE THE SAME ISSUES, BUT I

> AM SINGLE MOM OF 5, THE

> OLDEST BEING DIAGNOSED WITH ASPERGERS. HOW DO YOU

> GUYS GET THROUGH EACH DAY?

> I AM A WRECK. MY SON IS A DANGER TO HIS BROTHER

> AND SISTER, LIES CONSTANTLY,

> TALKS BACK CONSTANTLY, AND I HAVE NO TIME TO GO

> ANYWHERE FOR HELP. I AM

> FRUSTRATED TO THE POINT OF TEARS. I HAVE READ THE

> BOOKS, BUT IT SEEMS NOT TO

> HELP. ANY IDEAS HOW I CAN SURVIVE UNTIL TOMORROW?

>

>

> BETSY

>

>

> I'm surprised the counselor doesn't find community

> resources for you. It's

> so lame to say " take some time for yourself. " Oh

> yeah, that's gonna happen

> when? Is he coming to babysit so you can?

>

> I would try to find resources in your community.

> Call the local health

> department and ask about services for kids with

> developmental disabilities.

> Network - ask everyone - search.

>

> Roxanna

>

>

>

>

[Guest guest]

Hi. The figures you give look like they come from a hearing chart measured in decibels. If so, 20db would equal normal to slight loss and 70db would be severe. So I take it that you have one reasonably good ear and one duff one. Evenso if the prosthesis manages to give you good stereo hearing then you will notice a big difference. You may suddenly start to hear different sounds going at the same time and all sorts of little clicks and bangs and tinkles that you never suspected were there. Everything seems to make a noise and you wonder how people cope with it but it's only because we become so comfortable with deafness that everyhting is a little startling to begin with. I went from profound/severe loss to moderate and I found the new level noise both exhilarating and bit nerve-wracking, but you soon get used to it. Reconstruction is well worth it because you then start to appreciate how much of the world of sound you've been missing.

Phil

My Ctoma was "discovered" about 2 months ago and I am scheduled for surgery on June 21st. I have always had trouble with my ears... it's the story of my life and I guess I am just used to it. I had tubes twice as a young child and have always had poor hearing and occasionally over the years had the "smelly" gunk in my ear. Well, here is my question.... I now know after a hearing test that I am running about 20% hearing loss in my right ear and 70% loss in my left ear (the one with the Ctoma).... my surgeon is going to remove the tumor and put in the titanium prosthesis. I am wondering... for those of you who have had the prosthesis put in, did you notice a big improvement in hearing? I am wondering if the "loudness" is going to be bothersome b/c my hearing does not seem "bad" to me.... its been this way for so long that I don't know anything different? and I am only running about 50% between the two.

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[Guest guest]

O.K. This is just from personal experience and isn't right in every situation.And I'm totally against medicating children unless it actually is needed. It sounds like she would benefit from homeschooling ,but, if thats not an option like it's not for me,you may want to talk to the doc about an anti-anxiety med and something like concerta for adhd.I kept my son off meds until last year when he had to go on them for his and others safety.He was banging his head and punching himself in the face to the point of leaving bruises and was swinging his chair over his head in the classroom.He has not hurt himself or done anything like that since his doc medicated him.She put him on 10mg Paxil ,which is the lowest dose,and 27mg of Concerta.He's been fine since.I'm not saying this is what you should do but just sharing.Hope this helps.Jen <diegowench@...> wrote: Ok, I* want to throw some things around so I know whether or not to worry. My daughter Hope is 5 years old. She has a tentative dx of Aspergers and SID along with adhd. Today at school, she was making a picture and working really hard at it. She was told that she could NOT take it home to her Daddy to show him and about lost her mind. She has bruises and bloody scratch marks all over her face and her mouth was bleeding from biting a special pillow they have for her in "her quiet spot" that the teacher set up for me. Before i had two autistic kids I would have said that kid needs his butt whooped for being so spoiled and selfish.. Here is the catch - I don't know how much of this is willfullness and how much is the DX. Can any of you let me know? I also have a 14 yo who is almost classic HFA. VERY bright but zero social skills - rarely hurts

anyone else (but actually tried to smother her baby sister when she was 9) so I guess yes, she can be violent, but she is "sneaky about it." HELP! http://myspace.com/diegowench Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

That is so wonderful Connie hugs dconnie mcclain <crochetlady1001@...> wrote: Hey my peeps!! As of 8:30 am on this Happy National Hep C Awareness Day, and Kenny are no longer parents of Serena. Connie The light at the end of the tunnel may be you

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Congrats connie....What a wonderful thing to happen on Our Day!!!...Hugs, Pat

(unknown)

Hey my peeps!! As of 8:30 am on this Happy National Hep C Awareness Day, and Kenny are no longer parents of Serena. Connie

The light at the end of the tunnel may be you

[Guest guest]

Hi d..tell us how things are going there for you, pataRoo needs an update of our Special welcome girl..Hugs, Me

Re: (unknown)

That is so wonderful Connie

hugs

dconnie mcclain <crochetlady1001@...> wrote:

Hey my peeps!! As of 8:30 am on this Happy National Hep C Awareness Day, and Kenny are no longer parents of Serena. Connie

The light at the end of the tunnel may be you

[Guest guest]

Hey Patty Things are ok. Nice and Mellow. I feel like we are in the calm before the storm. But one day at a time it is going ok. My sister is home off the truck right now. I love her but I love when she gets back on the truck. lol. Patty how are you? love and hugs dPat McBride <pmcbride1@...> wrote: Hi d..tell us how things are going there for you, pataRoo needs an update of our Special welcome girl..Hugs, Me

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

YES!!!!! Thank you!! ConnieThe light at the end of the tunnel may be you

[Guest guest]

AAAAAMEN, my sista, amen!! ConnieThe light at the end of the tunnel may be you

[Guest guest]

Judy-

Have you done a hair analysis to assess her toxic metals and mineral transport? I'd be curious to see what her silver as well as her mercury levels are and if her mineral transport pattern is normal. I couldn't find any info on silver affecting AI dz in my resources but silver toxicity can appear with a lot of emotional symptoms, which could be contributing to her picture. High levels of silver (ie, acute toxicity) can affect kidney function, so I'm wondering if a lower but longer exposure could over time also affect the kidneys. Mercury is a big cause of AI conditions, and may be something you'll need to focus on- it would at least be worth knowing what her levels are since she's had fillings. Dr. Hall Cutler has 2 books out that are chock full of info and really good resources- one on hair test interpretation and one specifically on mercury and amalgams. I go back to both of them often and have called Dr. Cutler with some questions and he's been really helpful.

Hindman, ND, LAc

Portland, OR

family practice

On 4/18/06, Judith Fulop <jafulopnd@...> wrote:

Hi everyone, I have a 38 year old femaile who has had SLE (lupus) since Septof 1995. She is doing tremendous work with emotional aspects of not only the

disease but past anger, grudges etc. Yes, she had significant trauma from analcoholic dad who beat up her mom during the 0-7 year time period. She haskidney involvement and has been on 6 months of cytoxan when she was first dx

with kidney involvement. She then went into " remission " for the past threeyears until now.She is having her mercury fillings carefully removed. 1) She is doing COP---could she also do these over her kidneys? Are there any

contra-indications for the full 50 minutes - i.e. could the absorptionaffect kidney function? 2) She was doing colloidal silver because whe thinksshe has candida - would you expect the colloidal silver (this was before I

came on the scene) to affect her AI? Thanks. Her IgG testing showedbakers and brewer's yeast 3 and 4+ among other nuts etc. -so will dofurther testing.Thanks.Judy Fulop, ND

[Guest guest]

Thank you dear. ConnieThe light at the end of the tunnel may be you

[Guest guest]

You keep the faith and he will keep it with you hon.You won the battle to help that little girl.Congratulations girl.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of connie mcclainSent: May 10, 2006 9:59 AMHepatitis Cfordummies ; Hepatitis CLEARINGAndClear Subject: (unknown)Hey my peeps!! As of 8:30 am on this Happy National Hep C Awareness Day, and Kenny are no longer parents of Serena. Connie

The light at the end of the tunnel may be you

[Guest guest]

PRAISE

GOD!!!!!

De

(unknown)

Hey my peeps!! As of 8:30 am on this Happy

National Hep C Awareness Day, and Kenny are no longer parents of

Serena. Connie

[Guest guest]

I AM!!! ConnieThe light at the end of the tunnel may be you

[Guest guest]

Hi

I have tried many things with my son and all of it was a step in the right

direction but what has brought him to the end is doing the parasite cleanse.

grainne phillips <woi555@...> wrote:

Hey folks,

Just new so hi. Was crusing over the internet about getting cured from

epilepsy. Does any1 have any 1st hand experience of this or can give any

advice??? Would apreciate it look forward to advice

<HTML><BODY bgcolor= " #FFFFFF " ><a Target= " _top " Grainne

---------------------------------

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