Re: (unknown)

February 9, 2006

All the doctors who wrote books were attacked. As well as the

doctors who came and presented at our conferences. Dr. Blais always

flew stand-by because of the threats made against some of the doctors.

Thanks, Lea. Washington was fast, but interesting. Hope it does some

good. I was exhausted when I got home.

Lynda

At 07:50 AM 2/9/2006, you wrote:

>Good Morning Ladies:

>

>Dr. Vasey wrote a little book on the dangers of breast implants. I have it

>here in my home, but I'm not sure where. He too was attached for his

>opinions on breast implants just like so many other doctors.

>

>Welcome back Lynda, and thank you for making the trip to Washington. I wrote

>to and he did not respond, I doubt that he would get involved.

>My son in Vancouver told me that M. has been bought!

>

>Sending love always....Lea

>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

> Re: Re: (unknown)

>

> > Dr. Vasey is a Rheumatologist in FL, I went to him in '92, did not

> > help me at all. Of course, I won't put those toxic drugs most

> > doctors prescribe into my body. Dr. Shanklin is on TN, and does research.

> >

> > Lynda

> >

> > At 07:59 PM 2/8/2006, you wrote:

> >>I haven't heard of Dr. Vasey or Shanklin, where are they from? I've

> >>got an appointment on the 15th with a naturopath, Dr. Leu,

> >>recommended by someone on this

> >>site. <<http://www.drleu.com/>http://www.drleu.com/>http://www.drleu.com/

> >>

> >>I also found another website, which I noticed Dr. Kolb is affiliated

> >>with, and there are some MD's who are recommended on that site. If

> >>they're associated with Dr. Kolb, I'm wondering if they also

> >>recommend the protocol that she advises her patients to use. Check

> >>out this website and look for the list of doctors, perhaps there's

> >>one in your area. I've never used any of them, just making an

> >>assumption that since they're listed on this site, that they've got

> >>experience with people who have gotten sick from implants.

> >><<http://www.freewebs.com/implants/index.htm>http://www.freewebs.c

> om/implants/index.htm>http://www.freewebs.com/implants/index.htm

> >>

> >>Sis

> >>

> >> > >hi- i am new to the group, i appreciate all that i have been

> >>able to

> >> > >read. 8 months after getting my implants i started experiencing

> >>sleep

> >> > >disturbances, and pain in my knees, over time the pain went to

> >>just

> >> > >about every joint and muscle i had. this pain was debilitating.

> >>many

> >> > >other strange symptoms came about, but pain and fatique were my

> >>number

> >> > >one complaint. after a long journey of soul searching and

> >>research i

> >> > >decided to have the implants removed. i sent them to Dr. Blais in

> >> > >Canada for testing. he found a defective valve, significant

> >>saline

> >> > >contamination which was feeding a large hematoma due to poor

> >>surgery.

> >> > >i am now 5 months post surgery and am still not seeing any change

> >>in

> >> > >pain level. in fact it has gotten worse around month 5. I am on

> >> > >Plaquenil which has been sooooo helpful up to this point. Dr.

> >> > >Shanklin has said that sometimes you will have an immune flair up

> >>once

> >> > >you go in and stir things up, up to 6 months down the road. i

> >> > >understand Dr. Vasey is the best Dr. to see to try and regain your

> >> > >health. he is booked 6 months out? any recommendations?

> >> > >

> >> > >Opinions expressed are NOT meant to take the place of advice

> >>given

> >> > >by licensed health care professionals. Consult your physician or

> >> > >licensed health care professional before commencing any medical

> >>treatment.

> >> > >

> >> > > " Do not let either the medical authorities or the politicians

> >> > >mislead you. Find out what the facts are, and make your own

> >> > >decisions about how to live a happy life and how to work for a

> >> > >better world. " - Linus ing, two-time Nobel Prize Winner

> >>(1954,

> >> > >Chemistry; 1963, Peace)

> >> > >

> >> > >See our photos website! Enter " implants " for access at this link:

> >> >

> >> ><<<http://.shutterfly.com/action/>http://salinesupp

> ort.shutterfly.com/action/>http://.

> >> shutterfly.com/action/><http://.sh>http://.sh

> >>utterfly.com/action/

> >> > >

February 9, 2006

I just want to say again, that though Dr. Vasey may support that

women get ill from implants, as far as I am aware he doesn't have

much to offer in a way of a cure. Most traditionally trained

rheumatologists have one bag of tricks...immune suppressing drugs.

That's it. And painkillers of various kinds. HOwever, there are

some rheumatologists that consider some alternative methods of

healing and who also use the antibiotic protocol which in my

opinion should always be used first. Anyone wanting to know how

most people fare on standard rheumy drugs should go to the roadback

site. Or any of the other sites talking about rheumatic diseases.

If you want to try and control your pain but not actually alter or

stop your disease process, then go to a rheumatologist. I, for one,

have been very disappointed in them and I have been to at least

two. The only kind I would go to now are the ones who use

antibiotic therapy--it doesn't destroy your immune system and it

makes sense. It is based on the observation of Dr. Brown that apes

sick with arthritis were found to have mycoplasma in their joint

fluid. When treated with antibiotics, their arthritis eventually

resolved. He developed the antibiotic protocol to treat his

arthritic patients with good success. It has evolved into treating

all kinds of immune disease and they say their success rate is

somewhere between 67-85% of the people who use it. Suppressing the

immune system doesn't deal with what is causing the problem in the

first place and can have serious consequences down the road. Just

my opinion from talking to many people who used standard rheumy

treatment before trying something more aimed at stopping the cause

of

immune malfunction.

Hugs,Kathy

> > > >hi- i am new to the group, i appreciate all that i have been

> > able to

> > > >read. 8 months after getting my implants i started

> experiencing

> > sleep

> > > >disturbances, and pain in my knees, over time the pain went

to

> > just

> > > >about every joint and muscle i had. this pain was

> debilitating.

> > many

> > > >other strange symptoms came about, but pain and fatique were

my

> > number

> > > >one complaint. after a long journey of soul searching and

> > research i

> > > >decided to have the implants removed. i sent them to Dr.

Blais

> in

> > > >Canada for testing. he found a defective valve, significant

> > saline

> > > >contamination which was feeding a large hematoma due to poor

> > surgery.

> > > >i am now 5 months post surgery and am still not seeing any

> change

> > in

> > > >pain level. in fact it has gotten worse around month 5. I

am

> on

> > > >Plaquenil which has been sooooo helpful up to this point. Dr.

> > > >Shanklin has said that sometimes you will have an immune

flair

> up

> > once

> > > >you go in and stir things up, up to 6 months down the road. i

> > > >understand Dr. Vasey is the best Dr. to see to try and regain

> your

> > > >health. he is booked 6 months out? any recommendations?

>

February 9, 2006

Hi Sara --

Wouldn't it be nice if they actually followed their committee's

recomendation on this? Or is that too much to hope for?

On 2/9/06, SaraShaughnessy@... <SaraShaughnessy@...> wrote:

>

> Committee Recommends ADHD Drug Warnings

> By ANDREW BRIDGES, Associated Press Writer

> 38 minutes ago

> WASHINGTON - A federal advisory committee voted Thursday to recommend that

> stimulants prescribed for attention deficit hyperactivity disorder be

> required to bear the most serious type of warning on their labels.

> The 8-7 vote, with one abstention, by the Food and Drug Administration

> committee was to recommend the agency add so-called " black box " warnings to

> Ritalin and other ADHD drugs. Doctors prescribe the increasingly popular

> drugs to about 2 million children and 1 million adults a month.

> The FDA isn't required to follow the recommendations of its advisory

> committees but typically does.

> The vote on warning labels followed an earlier 15-0 vote to recommend that

> the FDA require that the drugs include a medication guide for patients and

> parents.

>

> --

> Sara

> Proud Mama to

> Colin 12/07/99

> Jack 8/07/02

Health & blessings,

Project MAHMA -- Moms At Home Making A difference...

and a lot of money!

http://www.ExcitingHealth.CreateMyFuture.com

http://www.ThisIsYourShot.biz

http://www.Shaklee.net/ExcitingHealth

1-866-312-8064

February 20, 2006

Welcome " kickey72 " .......this is an awesome site.

" kickey72@... " <kickey72@...> wrote: Hello everyone. I am a

paramedic currently working in Iraq as a paramedic. I enjoy the clinical aspect

of remote medicine and as I am sure every medic does, I love the shear nature of

the unexpectancy that is present. I am trying to branch out, meet other medics

and locate further advanced training within the paramedical science relm.

---------------------------------

Brings words and photos together (easily) with

PhotoMail - it's free and works with .

February 21, 2006

,

My son has a green and a blue eye also and his green does also change between green and hazel...depening the light he is in and his clothes.

(unknown)

it seems most people with 2 different colored eyes have one blue and one brown..is it unusual to have one blue and one green?? because thats what I have....but the green eye has a tint of brown around the pupil and changes depending on my mood and what I wear.

February 24, 2006

Hello,

I can totally understand the major depression with back problems. I am having a

stimulator implanted on Monday. I am only 39 years old. I have had two

previous back surgeries. I have failed back syndrome with nerve damaged caused

by the first one and this was my last resort to having any amount of relief. I

did the trial it did improve enough for me to have it implanted.

All you can do is do your research and be there to support him. Go on the

following websites and they can help provide great information.

www.medronics.com

www.tamethepain.com

Best wishes!

/Mass.

Make It a Great Day!

(unknown)

my husband who is on so many meds and never knows whats going on has

been told about this. just wanted some input on what it has done to

make ure life more bearable, my husband has had major depression

problems and i feel this may be his only hope, but then i dont know

the pain he is in, please give a response. my husband is only 36 yrs

old and after 17 yrs of marriage i dont know what more to do to help

him

February 24, 2006

- You will hear lots of horror stories, and most of them are true,

however their are also allot of good stories out there. Some people go

through treatment without one side affect or only feel crappy for the first

day of the shot. Allot of people are still able to work all the way through

treatment with no problems.

I on the other hand don't have a good story to tell as to my side affects -

but I will tell you that I beat the hep, and even though my sides were pure

hell - it was so worth it to have rid the nasty hep from my body and to feel

normal again.

While I was on treatment I would have told you that I would never do the

treatment again, as I was so bad. But after I was through and a few months

had gone by being clear - I had actually forgotten what it felt like to feel

normal and how amazing it was, and how I could do all the things that I had

missed out on because of the hep.

Yes - I would do it again if needed. And I think you will find more like me

than not.

I feel we owe it to ourselves to give our body a fighting chance, to feel

human again, and rid the nasty dragon.

Do you know what geno type you are and have you had a liver biopsy yet. You

may only have to stay on the treatment 6 months if you are a certain geno

type.

Keep your chin up girl, and this is very much a personal decision, and of

course the Doctor can help you with that also.

Keep in touch - there are allot of wonderful people out here in these

support groups to help and answer any questions and they are very

knowledgeable.

If you want to join more than one group, I know another one that is amazing

also...

May God Bless you and keep

Love, hugs, and prayers to you and yours

Marie

-- (unknown)

i have left a message before but got no response i figured i would try again

..i am new to the group-and i am confused as to treatment for hep-c and just

wanted some feed back i live in the las vegas area and i am going to get a

refferal for a hep dr. i am just afraid to take the medication for hep

c--heard so many horror stories about the side effects-then i read about

herbal medications,,was wondering if anyone has actually tried this and if

it works or is it all hype????

any feed back anyone could give me would help..thanks and peace

peacehappiness and harmony

---------------------------------

Bring photos to life! New PhotoMail makes sharing a breeze.

February 24, 2006

lisa thank you for the feedback-i had a liver biopsy two years ago- i was then a

stage one-i was going to a clinic and i felt like a guinea pig-i think i was

genotype one-but i remember the dr saying my liver was ok at that time-i think

the geno type i am is the one that takes longer on medication-then i made the

decision to stop going to clinic because i was scared of the side effects of the

medication-lately i feel very tired.and sometimes i feel like i have a fever-and

now i am scared-back then i had no side effects i went to be tested because so

many of the people i use to hang with had it --so i new i had to have it to---i

have a dr.s appointment on the 7th of march then i will ask for the refferal to

a dr here in las vegas--my mother is also worried because i have three sons, and

she had a friend pass away in the 90's from it-he didnot know he had it until it

was too late--any ways thank you for your words-i guess the herbal meds out

there aren't worth it---i will let you know

how everything goes thanks again

peace

Davies <davies@...> wrote:

- You will hear lots of horror stories, and most of them are true,

however their are also allot of good stories out there. Some people go

through treatment without one side affect or only feel crappy for the first

day of the shot. Allot of people are still able to work all the way through

treatment with no problems.

I on the other hand don't have a good story to tell as to my side affects -

but I will tell you that I beat the hep, and even though my sides were pure

hell - it was so worth it to have rid the nasty hep from my body and to feel

normal again.

While I was on treatment I would have told you that I would never do the

treatment again, as I was so bad. But after I was through and a few months

had gone by being clear - I had actually forgotten what it felt like to feel

normal and how amazing it was, and how I could do all the things that I had

missed out on because of the hep.

Yes - I would do it again if needed. And I think you will find more like me

than not.

I feel we owe it to ourselves to give our body a fighting chance, to feel

human again, and rid the nasty dragon.

Do you know what geno type you are and have you had a liver biopsy yet. You

may only have to stay on the treatment 6 months if you are a certain geno

type.

Keep your chin up girl, and this is very much a personal decision, and of

course the Doctor can help you with that also.

Keep in touch - there are allot of wonderful people out here in these

support groups to help and answer any questions and they are very

knowledgeable.

If you want to join more than one group, I know another one that is amazing

also...

May God Bless you and keep

Love, hugs, and prayers to you and yours

Marie

-- (unknown)

i have left a message before but got no response i figured i would try again

..i am new to the group-and i am confused as to treatment for hep-c and just

wanted some feed back i live in the las vegas area and i am going to get a

refferal for a hep dr. i am just afraid to take the medication for hep

c--heard so many horror stories about the side effects-then i read about

herbal medications,,was wondering if anyone has actually tried this and if

it works or is it all hype????

any feed back anyone could give me would help..thanks and peace

peacehappiness and harmony

---------------------------------

Bring photos to life! New PhotoMail makes sharing a breeze.

February 25, 2006

- you are most welcome for any support that I can give or anything I

can do to help. That is what these groups are for.

Going through treatment is a major decision, and is by no means an easy one

for some to make. If you felt fine 2 years ago, and you were only in stage

1, unless you are a sever drug addict or severe alcoholic - it usually takes

years for the disease to progress into the later stages.

I really don't know why we get the symptoms when we do, and all of us

heppers are so individual, I don't know if even the Doctors have the correct

answer for this question for sure. I had only had my hep-c for about a year

and half, when I started having symptoms, and like you I was in stage 1. So

I don't think just because we are having those symptoms means that we are in

a worse stage.

I know that the Doctors themselves have so much more to learn about this

disease, before 1991, it was still known as non-A and non-B hepatitis.

I think if you are really concerned about the sides and if your liver damage

has changed - if you have good insurance, I would just ask the Doctor to do

a liver biopsy. And if you do decide to do treatment, you will have a

biopsy anyway.

I wished there was some miracle advice I could give as to the treatment, you

know they say that in the next couple of years we should have a new and

better form of treatment with allot less sides - maybe if you liver is still

stage 1, you might think about holding out until the new drugs come out.

The Doctor, and I assume he is either a gastro or hepatoligist - he would be

the best to advise on waiting, and give you the most accurate pros and cons.

However, I always have felt and I think that I speak for allot of us heppers

- the best thing you can do for yourself is to be your own advocate and make

yourself as knowledgeable as possible.

Ya know , another way to look at the treatment is - you could always

try it for a few weeks and if the sides are bad for you or unbearable - you

can always QUIT. You could have little to know sides and breeze right

through it, either way you have nothing to loose by just simply trying it??

Keep talking to people in the groups, like I said they are so knowledgeable

and some have been dealing with this disease for 30 years or more.

Okay - Well Girl, keep your chin up and keep us posted. And remember we are

all here for you.

Love, hugs and prayers

Marie

May God bless and keep you and yours

-- (unknown)

i have left a message before but got no response i figured i would try again

...i am new to the group-and i am confused as to treatment for hep-c and just

wanted some feed back i live in the las vegas area and i am going to get a

refferal for a hep dr. i am just afraid to take the medication for hep

c--heard so many horror stories about the side effects-then i read about

herbal medications,,was wondering if anyone has actually tried this and if

it works or is it all hype????

any feed back anyone could give me would help..thanks and peace

peacehappiness and harmony

---------------------------------

Bring photos to life! New PhotoMail makes sharing a breeze.

February 25, 2006

Welcome Laurie,

Implants cause a host of problems . . . It sounds like

your problems are just getting started.

Please read through the archives . . . And, if you can

get your hubby to do so too, that's great.

A lot of husbands have problems with explanting . . .

IMHO, it's because it's something they can't control .

... and the idea of the expense without being sure of

the outcome adds to the burden.

You need to take care of yourself, even if your hubby

doesn't cooperate . . . So often, by the time women

get really sick, their husbands take off anyway.

It's possible your insurance will cover it. . .

If you're from Durango, CO, you're lucky to have a

doctor in your state . .. Dr. Huang in Denver. . .

Please let us know if you have any questions . . .

we're here to help.

Hugs and prayers,

Rogene

February 25, 2006

Yes, hair loss is just the beginning, and it could be much worse, as

many have more serious problems to begin.

Check Dr. Huang: www.lindahuangmd.com

In Colorado, she is the only person we refer women to, as she removes

implants properly, is reasonable (I would never let the doctor who

put them in take them out), and she will leave you looking good after

removal. Be very careful in choosing a doctor for removing implants

as most do not do it properly.

Lynda

At 10:24 PM 2/25/2006, you wrote:

>Welcome Laurie,

>

>Implants cause a host of problems . . . It sounds like

>your problems are just getting started.

>

>Please read through the archives . . . And, if you can

>get your hubby to do so too, that's great.

>

>A lot of husbands have problems with explanting . . .

>IMHO, it's because it's something they can't control .

>.. and the idea of the expense without being sure of

>the outcome adds to the burden.

>

>You need to take care of yourself, even if your hubby

>doesn't cooperate . . . So often, by the time women

>get really sick, their husbands take off anyway.

>

>It's possible your insurance will cover it. . .

>

>If you're from Durango, CO, you're lucky to have a

>doctor in your state . .. Dr. Huang in Denver. . .

>

>Please let us know if you have any questions . . .

>we're here to help.

>

>Hugs and prayers,

>

>Rogene

>

>Opinions expressed are NOT meant to take the place of advice given

>by licensed health care professionals. Consult your physician or

>licensed health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians

>mislead you. Find out what the facts are, and make your own

>decisions about how to live a happy life and how to work for a

>better world. " - Linus ing, two-time Nobel Prize Winner (1954,

>Chemistry; 1963, Peace)

>

>See our photos website! Enter " implants " for access at this link:

><http://.shutterfly.com/action/>http://.shutterfly.co\

m/action/

>

February 25, 2006

I am in land. My husband does think I am over reacting! I asked him about 1/2 hour ago. That hurts!Lynda <coss@...> wrote: Yes, hair loss is just the beginning, and it could be much worse, as many have more serious problems to begin.Check Dr. Huang: www.lindahuangmd.comIn Colorado, she is the only person we refer women to, as she removes implants properly, is reasonable (I would never let the doctor who put them in take them out), and she will leave you looking good after removal. Be very careful in choosing a doctor for removing implants as most do not do it properly.LyndaAt 10:24 PM 2/25/2006, you wrote:>Welcome Laurie,>>Implants cause a host of problems . . . It sounds like>your problems are just getting started.>>Please

read through the archives . . . And, if you can>get your hubby to do so too, that's great.>>A lot of husbands have problems with explanting . . .>IMHO, it's because it's something they can't control .>.. and the idea of the expense without being sure of>the outcome adds to the burden.>>You need to take care of yourself, even if your hubby>doesn't cooperate . . . So often, by the time women>get really sick, their husbands take off anyway.>>It's possible your insurance will cover it. . .>>If you're from Durango, CO, you're lucky to have a>doctor in your state . .. Dr. Huang in Denver. . .>>Please let us know if you have any questions . . .>we're here to help.>>Hugs and prayers,>>Rogene>>>>>Opinions expressed are NOT meant to take the place of advice given >by licensed health care

professionals. Consult your physician or >licensed health care professional before commencing any medical treatment.>>"Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world." - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace)>>See our photos website! Enter "implants" for access at this link:><http://.shutterfly.com/action/>http://.shutterfly.com/action/>>

February 26, 2006

Hello Marie,

In 1987 I had a complete physical and my liver functions were normal. In

1988 I had some medical tests when I attempted to purchase a large insurance

policy. I was declined insurance due to abnormal liver functions. About

three months later I began having medical problems that led to my being

terminated from my employment. I started seeing Dr. Gish in S.F in 1989 and

was tested for nonAB. However, three tests determined that I did not have

nonAB. In 1991 a test for HCV came out, I was tested, and found to have

HCV.

Eventually most of my medical problems that started in 1988 were traced back

to the HCV. Before my first treatment I had a biopsy and there was no

damage to my liver. Now I am in stage 4/3 and there is talk of a

transplant. I have been through four clinical trials, the first in 1993,

and one treatment program that was not a clinical trial. My insurance will

not pay treatment because I have been treated with everything that has been

approved. However, my doctor wants to put me on a maintenance program, and

written prescriptions three times that the insurance has denied.

What I have observed through the years is that for the most part those that

catch HCV early and depending on the genotype are the most likely to have

success with treatment. Those that are in denial for a long period of time,

do not take care of themselves health wise, or wait by trying other options

do not have as much success with traditional treatment. Although I have not

seen any medical articles that would support my observations. This is more

antidotal than anything but when I have discussed it with my doctor he seems

to have the same opinion.

The thing that really burns me is that there are no federal or other funding

sources for HCV research. Most of what is being discovered is a by product

of HIV research and that disease has the political clout. However, more

people are likely to die from HCV than ever will die in this country from

HIV. The drug companies are really in the business to make money not to

find a cure, and there is still no cure. The insurance companies are also

in business for money and would rather see patients die than pay for costly

treatment. Those are my opinions of course, and others are welcome to

theirs, either way it is frustrating.

During the past year I have posted at this site several times with no

answers or comments. It is good to see that the site is back to talking

about HCV and not the continuous efforts to make the site a swingers place.

I have seen a number of sites come and go over the past few years with some

going by the way due to disagreements about what is posted. I have been

able to glean a few tidbits from this site from time to time but most of

what I find out about HCV is by researching the medical journals. Please

let me know if I can answer any questions about my experiences with HCV.

Thanks,

Ken

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of Davies

Sent: Saturday, February 25, 2006 2:14 AM

Hepatitis C

Subject: Re: (unknown)