Re: (unknown)

December 1, 2005

For shopping how about one of those baby backpacks? they are great!

gail

(unknown)

Thanks for all the adivce. He had a mri when he was in the NICU and they said that everything looked normal. I am very excited for our appt. in a week! Now i have tons of questions to ask. Also does anyone's child have problems sitting? Adison is unable to sit up at all and this is posing a very tough problem since he is in a big boy car seat. So when i go to the grocery store i have no where to put him and it is hard to shop with a baby in your arms!I know that some stores have the built in seats but they are hard to come by and i usually have to do all my shopping alone. So if anyone has anything that they found that works i would be very grateful!

December 1, 2005

Hi,

<<Also does anyone's child have problems sitting?>>

Has any doc given you a reason why Adison has problems

sitting up on his own? It all could very well be a

developmental thing (he's just taking his own time) or

it could be other things like low muscle tone, spinal

cord issues, etc.

You mentioned they did an MRI in the NICU, do you know

if a PEDIATRIC neurosurgeon read the actual scan? If

not, I would suggest asking the ortho about having

another MRI done just to make sure there are still no

spinal cord abnormalities. In newborns, it can be

very difficult to see subtle issues.

This is just my very humble opinion - not medical

advice :-)

Carmell

mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL,

GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic

insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96),

missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion,

clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single

umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc.

http://carmellb-ivil.tripod.com/myfamily/

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

December 2, 2005

If everything is normal, then it sounds like he is idiopathic to me. If that is the case, then he may very well be a candidate for casting (and a good chance that he could avoid surgery). My son was 43 degrees out of the cast and is 7 degrees in the cast!

Ian never had problems sitting up, but when he walked he did walk tilted over to one side due to his curve. Not sure if your son's inability to sit upright is due to his curve or not, but it is definitely something to ask about when you go to Shriners. Do you know the degree of his curve by chance?

Noelle (12-2-01)Ian (8-15-04)

(unknown)

Thanks for all the adivce. He had a mri when he was in the NICU and they said that everything looked normal. I am very excited for our appt. in a week! Now i have tons of questions to ask. Also does anyone's child have problems sitting? Adison is unable to sit up at all and this is posing a very tough problem since he is in a big boy car seat. So when i go to the grocery store i have no where to put him and it is hard to shop with a baby in your arms!I know that some stores have the built in seats but they are hard to come by and i usually have to do all my shopping alone. So if anyone has anything that they found that works i would be very grateful!

December 2, 2005

I agree with Carmell. We had a radiologist read Ian's MRI and it was misread. We were told his spinal cord was tethered when it was not the case. The pediatric neurologist read it and even showed it to us and explained how it was definitely not tethered.

Noelle (12-2-01)Ian (8-15-04)

Re: (unknown)

Hi,<<Also does anyone's child have problems sitting?>>Has any doc given you a reason why Adison has problemssitting up on his own? It all could very well be adevelopmental thing (he's just taking his own time) orit could be other things like low muscle tone, spinalcord issues, etc.You mentioned they did an MRI in the NICU, do you knowif a PEDIATRIC neurosurgeon read the actual scan? Ifnot, I would suggest asking the ortho about havinganother MRI done just to make sure there are still nospinal cord abnormalities. In newborns, it can bevery difficult to see subtle issues.This is just my very humble opinion - not medicaladvice :-)Carmellmom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl.

December 5, 2005

who is this

December 5, 2005

In a message dated 06/12/2005 07:31:24 GMT Standard Time, CarolineTraa@... writes:

who is this

>>>I am hoping this lady is here to learn and particpate rather than using us for an advertising platform.

If its the latter, there are better places to do it than here I think

Mandi

December 5, 2005

I would recommend getting the book entitled Evidence of Harm by david

kirby..This writer has uncovered a bunch of facts,one of which is that the

FDA had uncovered that fact that vaccines might in fact be dangerous,but

choose not tell this to the public,but instead kept underwraps until a press

release was done on a day the government knew people weren't going to really

notice.There's other things in this book that would make your jaw drop.One

other thing you should research is called SV40.The theroy behind SV40 is

that it was a virusin the polio vaccine that was given to people for polio

in the 50's and 60's,and after the virus was discovered during normal

vaccine safety checks,the government ordered that those doses created that

were contanimated be destroyed,but they were not,and some people that were

given this vaccine have come with cancers,and it was belived that some

batches of this were still being created and over the yrs,kids have come

down with cancers too.

----- Original Messerage -----

From: " " <se9247m@...>

Sent: Monday, December 05, 2005 9:32 PM

Subject: (unknown)

> Hello everyone. I am new to this group. I am a care provider, in the field

for 10 years. I work with children with all kinds of disabilities, but

autism has become a huge interest of mine. i am also going to Stark State

College to be an OTA. I am currently doing a research paper on immunizations

and how it is related to autism. If any of you could help me with your

personal experience, it would be greatly appreciated.

>

> ---------------------------------

> Personals

> Skip the bars and set-ups and start using Personals for free

>

December 5, 2005

Are you a parent of an autistic child? And speaking of literature, did you read

the article in Rolling Stone ( summer)

melissa royce <ke4wbq@...> wrote: I would recommend getting the book

entitled Evidence of Harm by david