Re: (unknown)

[Guest guest]

Basically my fourth period is a mentorship with a special education class at

a local elementary school. i became extremely interested ub one of the

students who is autistic. I have to complete a research paper as well as a

project that will help an authentic audienec. I noticed a gap in knowledge

within the school on the part of teachers as well as the people in charge of

things such as lunch. Basically my project is to give them the knowledge

that they need to work best with the students....

>From: Ray Palmer <palmerr@...>

>Reply-

>

>Subject: RE: (unknown)

>Date: Thu, 08 Jan 2004 15:16:45 -0600

>

>Can you be more specific?

>

> (unknown)

>

>

>I am doing a year long research on autism at the elementary level. If

>you have any information that could be helpful for writing a research

>paper and a presentation to school staff I would greatly appreciate

>it....Thanks

>

>

>

>

>Responsibility for the content of this message lies strictly with

>the original author(s), and is not necessarily endorsed by or the

>opinion of the Research Institute.

>

>

>

>

[Guest guest]

Caroline,

Oh that sounds familiar, I did last until

I was 29 however but before was this side of killing myself with aspirin from

the pain. I thank God everyday that I was blessed with a Dr that was willing to

help me. I didn’t break a femur but I did have dual false sockets that

consitly dislocated and slapped around. Before did you get any resistance in regards

to your age on getting a THR?

Tiffinee

From: Caroline

[mailto:carolinejohn@...]

Sent: Thursday, January 08, 2004

4:05 PM

Joint Replacement

Subject: RE:

(unknown)

Hi Ellis,

I am 27, My displacia at birth got messed

up, the head of my femur was

broken off, and all I had was a stub, no

neck no socket. I got to the stage

where I couldn;t sleep, had a stomach ulcer after

too many meds, and was

usually so messed up over so many painkillers, my

career was going down the

pan.. I was always told, that unless I had

it done.. that I would be in a

wheel chair for my last trimester if I got

pregnant..

I had my first THR last march. For the first time

ever I can sit cross

legged, can scuba dive with no problems and have

no pain.. Not yet

pregnant... but.. watch this space.. Life is very,

very different.. without

pain..

GO FOR IT!!!!!!!!!!!!!!!!

If you want any other words of confidence.. or

anything else.. please give

me a shout.

Caroline.

>From: " ellis_junk "

<ellis_junk@...>

>Reply-Joint Replacement

>Joint Replacement

>Subject: (unknown)

>Date: Thu, 08 Jan 2004 03:01:35 -0000

>

>Wow,

>didn't know this existed. I hope someone

can shed some light on what

>to expect after surgery. I am 38 and

scheduled for THA in Feb, i

>have so many questions and i am a little

nervous about life after

>surgery. I have OA in my left hip,

restricted activity but i

>participate in Yoga, pilates, and deep water

aerobics; believe it or

>not, i also ski. Is there anyone out

there who is like me and had

>concerns about life after hip replacement

before their surgery? I

>have two kids and like another person i saw

who posted a message,

>will i be able to......?

>I feel like i have lost 10 years of my life to

this pain and i am

>tired of it. It has robbed my kids of

their Mom and i can't wait for

>the outcome. I would appreciate any

information, resources, ideas,

>anything. I want to go to my pre-op appt

armed with all the

>information so my doctor can help me make the

best decision. thanks

>in advance!

>ellis

>

>

>

>

>

>

>

[Guest guest]

thank you, andy! ----blessings, Satya

[ ] (unknown)

What is Viral Load? by: Albrecht ErnstYour viral load is the amount of specific viruses that you have, in a given volume of your blood (usually 1 milliliter = 1 cubic centimeter). More precisely, it means that the amount of Hep C genetic material found in your blood corresponds to as many Hep C viruses as the given number says. Therefore the given number denotes "viral equivalents".There appears to be no significant correlation between HCV RNA levels and ALT values or histological activity in patients untreated by anti-viral therapies (Interferon). Viral load varies between infected individuals but is not a useful prognostic indicator nor does it measure the severity of virus-induced liver disease.WHAT DOES NEGATIVE OR "NOT DETECTED" MEAN?The viral load can range from "not detected" to hundreds of millions. The meaning of "not detected" or "negative" differs, depending on the test used. In one lab, the detection limit for the *quantitative* HCV RNA test by *PCR* is 200 virus equivalents/ml (and with the *qualitative* test they can detect down to 10 virus equivalents/ml). The less expensive quantitative *bDNA* test has a detection limit of about 200,000 virus equivalents/ml. So it is less sensitive, but above its detection limit it is more accurate than the PCR test.So, when you are "negative", maybe you have no hepatitis C virus in your blood. But maybe also, you do have hepatitis C virus in your blood, but the number of viruses is lower than the detection limit. {Example: If the less expensive quantitative *bDNA* has been used, and the detection limit is 200,000 virus equivalents/ml, any number less than this would register as "negative" or "not detected", when in fact, the viral load could be present, but less than this detection limit.} Your lab can tell you which testing measure is used, and your doctor can explain what it means in your case.WHAT DOES "POSITIVE" MEAN?When you get back the result of your HCV RNA quantitative test, and when the lab was able to determine the amount of virus in your blood, then it is important to write down not only the number, but also in what units this number is given.I) VolumeThe volume of blood, that the number refers to, is usually one milliliter.But some labs give the number for 20 microliters = 1/50 milliliter. So in these cases you have to multiply the result of the viral load by 50 to get the number for 1 milliliter.II) Amount of VirusUnfortunately, there are several ways to express the viral load. So, in order to be able to compare different results, you have to know how to convert these numbers to some standard format, which let's say is just the plain number of viruses per milliliter, like 1.5 Million/ml, or 1,500,000/ml. (both of these numbers are the same).a) Measure by weightSometimes, the lab reports the amount of genetic material found by its weight. 1 pg (pico-gram) of genetic material corresponds to about 1 million virus equivalents, so, if your lab result is given in picograms, just multiply the lab result by 1,000,000, and you have the number of viruses. Measure by virus counti) Plain numbersOften the virus count is expressed as a plain number, like 1.73 million, or 1,730,000 or 1730000. Millions sometime are abbreviated by the prefix "M" (Mega). So when you see 1.73 Meq/ml, it means 1.73 Mega-equivalents/ml or again 1730000 equivalents/ml..ii) Exponential formatLarge numbers are often expressed in exponential form, that means a number, multiplied by 10 with an exponent. To convert this to normal numbers, append as many zeroes to a "1" as the exponent says, and multiply this with the number. In some lab report, the viral load was "Hep C RNA Quant 17.3 x 10(exp) 5 equivalents/ml". So, with 5 as exponent, you have to append 5 zeroes to a "1", that gives 100000, and multiply this with the number 17.3, that gives 1730000 as the viral load. Normally this would be written 1.73x10(exp)6, or 1.73x106 , (which are again the same number).17.3x105 = 1.73x106 = 1,730,000iii) Logarthmic formatNow, recently some people express these numbers also in logarithmic form (logarithmic transformed number).log(1730000)=6.246.24 is the logarithmic transformed number of the viral load of our above example. A result of 3.5 for a viral load, that someone reported, seems to be such a number (unless he forgot to write down a "10" and an exponent). You need a calculator to convert this. You have to use the function 10x , where you have to replace x with the logarithmic number, in the above case 3.5. The result would be: 103.5 = 3162 virus equivalents per milliliter.When you take the logarithmic number from the first example, 6.24, you have to calculate 106.24 = 1730000 , and here we have the original number of virus equivalents again. If you don't have a calculator, you can estimate the order of magnitude of a viral load expressed as a logarithmic number. From the logarithmic number, you take the first digit (left of the point) and add 1 to this number. This gives you the number of digits that your viral load has (expressed as a plain number).Example: Logarithmic number 6.24Left of the point is "6". 6+1 = 7The number that gives the viral load is 7 digits long, that means it is between 1,000,000 and 9,999,999 (digit # 1 234 567)The next digit (right of the point of the logarithmic number) shows whether you are high or low in the range.In case you have a logarithmic number *and* a blood volume other than 1 ml, you have to convert the logarithmic number to a plain number *first*, and then correct it to correspond to 1 ml !Therefore it is important to have a close look at your lab report and see in what units the result is given!--------------------------------------------------------------------------------There is still no general agreement on what Viral Load is considered low and what is high in Hepatitis C. This interpretation makes sense for people not currently being treated - for someone who is 6 months into an INF + RIBA trial, even 200,000 could be considered a high titer. (Numbers are Virus Equivalents per Milliliter)below 200,000 very low (undetectable by *bDNA* test)200,000 to 1,000,000 low1,000,000 to 5,000,000 medium5,000,000 to 25,000,000 highabove 25,000,000 very highOnce again, please note that this information is not written by an MD or medical expert. Nothing can (or should) take the place of appropriate medical care.Viral Load Chart:http://www.hepatitis-central.com/hcv/hepatitis/loadchart.html

[Guest guest]

- the lower the CD38 the better the prognosis - did you read 's posting about B2M? I did not know what it meant - She said it is a protein which is useful in determining the level of cancer cells in your body, has nothing to do with bone marrow - She is one of the smarter people on this group - My thought is that a bone marrow test is partly of the staging process for newly diagnosed people - I was, and so was everyone I know - Your counts do not sound scary at all - You might be one of these folks who can wait a while - Newly diagnosed patients these days do a lot of prognostic testing, to determine how likely their disease is to get nastier - Prognostic testing at the beginning is useful, as it has an impact on the intensity of treatment - In my opinion, and many disagree, prognostic testing losing much value after you have been treated, unless it can again be used to determine further treatment approaches - Just to know, and no more, is something I advise against - After my remission, I never found out whether or not I was PCR positive or negative (determines the extent of your remission) - Why know?

Keep in touch, and hood luck.

Balan

[Guest guest]

Hello Sukumar from India...how are you ? and nice to meet you.

Where in India are you ?

What would you like to know about making soap ? I, personally, would be very

happy to help you.

my e.mail is: ledliana@... if you would like to write to me

privately.........Hugs and best wishes, .

----- Original Message -----

From: sukumar puhan <sukku01@...>

> Heloo Dear,

> Here sukumar from india. I am starting a plant for biodiesel and the

by-product (glycerine) i want to make soap. plz help me in this regard.

> bye

> thanks for ur mail.

[Guest guest]

BRAVO!!! Thanks for the re-affirmation!!! I need all I can get.

Christy in Indiana

1. You can't semi-BFL your meals. All the extras add up.

2. Waiting for summer has only made me feel worse presently.

3. Why should I try another workout just because it is shorter, when

I KNOW BFL works? I have a gift (knowledge of the program)and darn

it I should be using it.

and most importantly............

4. It is okay to take the time to workout. It is okay if my house

gets messy, supper is late, or if I didn't get a parent called. I

deserve one hour to do something for myself.

Thanks for letting me spill it all out.

On Monday, I am strictly BFL.

-Tiffiny

[Guest guest]

Double BRAVO!!!

We all put so much energy into making sure everything and everyone

else is taken care of, and we neglect the most important----

OURSELVES. It does take a while to get past the guilt trips of

putting ourselves first. I've learned that the kids will NOT die if

they don't get supper straight up at 6:00, the dishes won't run away

if I don't get them done, the house will still be there when I get to

it, the laundry will no magically disappear if I don't get to it

right away. Taking care of ourselves is vitally important to

everything we do as well.

Crystal(who's house is Dirty enough to be happy....and clean enough

to be healthy)

> BRAVO!!! Thanks for the re-affirmation!!! I need all I can get.

>

>

>

> Christy in Indiana

>

>

>

>

> 1. You can't semi-BFL your meals. All the extras add up.

> 2. Waiting for summer has only made me feel worse presently.

> 3. Why should I try another workout just because it is shorter,

when

> I KNOW BFL works? I have a gift (knowledge of the program)and darn

> it I should be using it.

>

> and most importantly............

> 4. It is okay to take the time to workout. It is okay if my house

> gets messy, supper is late, or if I didn't get a parent called. I

> deserve one hour to do something for myself.

>

> Thanks for letting me spill it all out.

>

> On Monday, I am strictly BFL.

>

> -Tiffiny

>

>

>

>

>

>

>

[Guest guest]

Ah. As I am cleaning up the house, doing laundry, re-organizing my

undies drawer and cleaning out the fish tank, I am going to print #4

out and paste it over everything. That way, even if it is dirty,

you won't see it cuz there will be little pieces of paper with this

message on top of everything! LOL!

>>

> and most importantly............

> 4. It is okay to take the time to workout. It is okay if my house

> gets messy, supper is late, or if I didn't get a parent called. I

> deserve one hour to do something for myself.

>

> Thanks for letting me spill it all out.

>

> On Monday, I am strictly BFL.

>

> -Tiffiny

>

>

>

>

>

>

>

[Guest guest]

MARK,

As a UK trained EMT i have recently looked into woking in the

US for a while, and maybe qualifying as a paramedic there. I looked into the

recognition of such training, as, with all my family in the uk i would

probably return. I was told to contact the health professions council at

www.hpc-uk.org. Apparently there is an equivalency process out there!. Its

not much mate but i hope it helps.

DARREN

(unknown)

> My background is in the British Military, having emigrated to Oz 12 years

> ago, ive trained and qualified in Oz as an industrial/remote Paramedic for

> the last two years and have been a part time ambulance officer for the

last

> four,and a gold mine medic for 3 years...please can anybody tell me what

the

> certification/ pre -requisite for working as a medic/paramedic in the U.K.

> is? and who is the governing body, as i have heard " i stress heard " that

> youre paramedic positions off shore (UK) are all only paramedics with an

U.K

> ticket and this is the only recoqnised ticket to deem them as being

> competent or qualified and insurable to do the job in the U.K...i write

this

> in anticipation of it not being the case after a disagreement with a

Aussie

> work mate who stated the " POMS " have a U.K.certificated closed shop policy

> for work in the U.K.yet when they come across here they can gain

employment

> with theyre U.K. ticket.(he cites elitism).I do know that the Australian

> remote Paramedic ticket is exactly the same as the American ambulance

> Paramedic ticket in structure and course examinations and i am reminded

that

> the Australians set the precedent for the Paramedic standard as they were

> the first country to introduce the concept in the early 50s..So in short

are

> the standards different and if so why? and how?...is the bottom line

having

> to resit another countries examination in order to qualify to a similar

> standard? or is it purely based on revenue and/or a belief that another

> countries tuition/skills/methodology/examinations are sub standard to ones

> own? Or do the Brits have the best trained Paramedics?

>

>

>

>

> BEST REGARDS - MARK.

>

> _________________________________________________________________

> Protect your inbox from harmful viruses with new ninemsn Premium. Click

here

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>

>

> Member Information:

>

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> The Remote Medics Team

>

>

[Guest guest]

Tiffinee,

I had my first osteomtomy at 14 in South Africa.. and then had my

replacement in the UK last year.. The one thing my first surgeon said to me,

was, when you can't sleep anymore, then it's time to call it a day on your

'hip'.

I was very, very lucky with both surgeons that i found.. The guy who did my

THR, was experienced enough to know when his patients can't take it anymore,

and when to weigh up the consequences of a multiple replacement, to quality

of life. He had told me that ceramic was an option, but would have to be

flexible. When he 'got in there', noticed that he could save everthing to

the neck and used the stub that I had as a head on my femur, as cement to

keep the stem in place, without using anything unnatural. I am however, now

setting off many metal detectors, but he's given me another 10 to 15 years

on my current prothesis.

I think my biggest word of advice when getting a younger replacement, is

SHOP AROUND, and get REFERENCES.. You wouldn't get your roof replaced by the

first guy you went to, so don't let the first guy who you see cut off your

joints.. One surgeon, when I was 14, suggested making up the length

difference in my legs, by chopping off 2 inches in my good leg..

If anyone needs some advice on this, please do not hesitate to contact me..

Good luck everyone..

Caroline

>From: " Tiffinee Epton " <Fu0ry@...>

>Reply-Joint Replacement

><Joint Replacement >

>Subject: RE: (unknown)

>Date: Fri, 9 Jan 2004 19:09:19 -0800

>

>Caroline,

>

>

>

>Oh that sounds familiar, I did last until I was 29 however but before was

>this side of killing myself with aspirin from the pain. I thank God

>everyday

>that I was blessed with a Dr that was willing to help me. I didn't break a

>femur but I did have dual false sockets that consitly dislocated and

>slapped

>around. Before did you get any resistance in regards to your age on getting

>a THR?

>

>

>

>Tiffinee

>

>

>

> _____

>

>From: Caroline [mailto:carolinejohn@...]

>Sent: Thursday, January 08, 2004 4:05 PM

>Joint Replacement

>Subject: RE: (unknown)

>

>

>

>Hi Ellis,

>

>I am 27, My displacia at birth got messed up, the head of my femur was

>broken off, and all I had was a stub, no neck no socket. I got to the

>stage

>

>where I couldn;t sleep, had a stomach ulcer after too many meds, and was

>usually so messed up over so many painkillers, my career was going down the

>pan.. I was always told, that unless I had it done.. that I would be in a

>wheel chair for my last trimester if I got pregnant..

>

>I had my first THR last march. For the first time ever I can sit cross

>legged, can scuba dive with no problems and have no pain.. Not yet

>pregnant... but.. watch this space.. Life is very, very different.. without

>pain..

>

>GO FOR IT!!!!!!!!!!!!!!!!

>

>If you want any other words of confidence.. or anything else.. please give

>me a shout.

>

>Caroline.

>

> >From: " ellis_junk " <ellis_junk@...>

> >Reply-Joint Replacement

> >Joint Replacement

> >Subject: (unknown)

> >Date: Thu, 08 Jan 2004 03:01:35 -0000

> >

> >Wow,

> >didn't know this existed. I hope someone can shed some light on what

> >to expect after surgery. I am 38 and scheduled for THA in Feb, i

> >have so many questions and i am a little nervous about life after

> >surgery. I have OA in my left hip, restricted activity but i

> >participate in Yoga, pilates, and deep water aerobics; believe it or

> >not, i also ski. Is there anyone out there who is like me and had

> >concerns about life after hip replacement before their surgery? I

> >have two kids and like another person i saw who posted a message,

> >will i be able to......?

> >I feel like i have lost 10 years of my life to this pain and i am

> >tired of it. It has robbed my kids of their Mom and i can't wait for

> >the outcome. I would appreciate any information, resources, ideas,

> >anything. I want to go to my pre-op appt armed with all the

> >information so my doctor can help me make the best decision. thanks

> >in advance!

> >ellis

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Drew,

I'm wondering if you've been doing the grinding for the pills yourself.

My allergist had mentioned that this method was recieving some anecdotal

support, and I'd like to give 'er a go.

ifynifty wrote:

>My polyps are suddenly doing much better so I thought I would tell

>my recent history.

>My asthma has been non- existent since I desensitized to aspirin and

>started taking Sinculair but my polyps have been terrible with me

>having to take a course of Prednisone every six weeks. I had my

>third surgery on October 13 and desensitized myself the following

>week. I was taking aspirin, Singulair, Nasonex, and Allegra but my

>ENT could see polyps forming at my three-week check. My smell was

>gone by the first of December and I was getting very little water up

>my sinuses when I irrigated.

>I started taking Jarrows Omega Balance and ground up 8 Singulair

>into 11/2 oz of saline spray. I take two capsules of the Omega

>Balance and use the Singulair spray twice a day and then invert my

>head.

>My smell started returning about the third week in December and has

>been getting progressively better. I now have 40 to 60% in the

>morning and it usually fades some during the day. I am now getting a

>lot of water up my sinuses and have not had a sinus infection or a

>need for Prednisone.

>I don't really know why I am getting better: Omega? Singulair spray?

>or something else.

>Whatever, I will let everyone know if my progress continues.

>Drew

>

>

>

>

>

>

[Guest guest]

Brandee -

There is a Neutropenia Group that may be helpful to you. Look up

Neutropenia on , and join that one, there is a very helpful group of

people over there. There is at least one PIDD that has neutropenia associated

with it - I think it's SDS.

Hang in there.

Dayna

(unknown)

hi everyone,

I have sent out an update on my son, and i got no response, we have been having

so many problems with docs here lately it is rediculous, they recently changed

his diagnosis to cyclic neutropenia, they have called it that because of his

blood and how his white count is, sometimes it is good sometimes it is bad, we

are now in the process of going to have blood work drawn every week for eight

weeks, that is way to much fun, with my new job i am having to have the

babysitter take him and he doesnt like that too much, he wants mom to take him.

they say this way then they can see the waves in his blood and then they will be

able to better diagnose the problem, and refer us to the doctor that would do

more testing, which what she said would include a bone marrow sample to see what

was going on with is blood, which i was confused about that one. then after that

he would have to have these shots every 3 weeks, for i dont know how long. could

someone please enlighten me on the blood situation.

i am so confused. if you want i can email out the results of the blood work so

you can know what i am talking about by numbers, i do know that his white blood

cell count has been 2.9, and 2.0.

thanks,

brandee, mom to caden (4) almost 5, not to sure what he is anymore the docs are

stabbing around, mikaele (8) asthma, and allergies, and both TOTALLY HEALED , IN

JESUS NAME>

[Guest guest]

1.

Can i eat potatoes and pasta (or any carbohydrate for that matter)?

NO

2.

Can i eat fruit?

NO.

Although this will very depending on who you talk to and the type of

diet they follow. If you are very

strict; no fruit is best for a couple of months, then slowly add low sugar

fruits back in ie. berries, granny smith apples…

Also people

have said to eat lots of yoghurt, but all yoghurt contains sugar to keep the

'good' bacteria alive! so wouldn't that promote the baddies also?

Duncan had some good info on this. Maybe he can help here.

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[Guest guest]

>

> i have had chronic ear infections and lots of popping and ringing going

> on there. 3 months into the diet and treatment, and much of it has gone

> away, as long as i'm diligent. but i also have the same nose problems.

> my right nostril bleeds everyday. its really annoying. aliqaesong

Acidophilus powder or wet, put into each ear, will subdue candida and

other fungus in the ears. Some will even penetrate the ear drum and

work in the middle ear. This will reduce the fungal blockage in there

and the tinnitus too. Takes awhile, about a couple of weeks. Apply more

than once.

Duncan Crow

[Guest guest]

Brandee - sorry for the lack of response. Cyclic neutropenia is something

we've also dealt with. Macey ran it for about 6-8 months several years ago.

I've talked to many PID families (of various diagnosis) who have had boughts of

it or have it continually (or as continually as cyclic can be

the key is to know what his baseline ANC is, what the immunologist is willing to

accept as a neutropenic level and what precautions to take when he drops below

that.

Technically neutropenia is an ANC (WBC x Neutrophil count) below 1500. But

depending on the doc they may lower that level somewhat due to the underlying

primary immune deficiency. Our experience as a family has been that the ANC

would need to be below 750 for it to be neutropenia. Some doctors don't worry

till it's below 500. Just depends on the patients T-cell history and his

clinical status (symptomatic or not).

Ursula - Macey's mom (8,CVID)

[Guest guest]

hi there

it was me who posted about the sinus probs - only I let them drill the holes and

then break the bones, etc. I will try your suggestion as nothing else seems to

work. I appreciate the info

I am so sorry to hear about your personal life - how horrible of him!! Men can

be so selfish - to be honest I was really getting worried about my own marriage

as I know I am not " much fun " anymore either but he is hanging in there - I only

hope and pray that we will make it throught this mess.

love shari

[Guest guest]

I grind the Singulair in a pestal and mortar but you can grind them

using two spoons. I add the singulair to a generic saline spray and

it disolves completely into the solution after sitting a while.

Drew

>

> >My polyps are suddenly doing much better so I thought I would

tell

> >my recent history.

> >My asthma has been non- existent since I desensitized to aspirin

and

> >started taking Sinculair but my polyps have been terrible with me

> >having to take a course of Prednisone every six weeks. I had my

> >third surgery on October 13 and desensitized myself the following

> >week. I was taking aspirin, Singulair, Nasonex, and Allegra but

my

> >ENT could see polyps forming at my three-week check. My smell was

> >gone by the first of December and I was getting very little water

up

> >my sinuses when I irrigated.

> >I started taking Jarrows Omega Balance and ground up 8 Singulair

> >into 11/2 oz of saline spray. I take two capsules of the Omega

> >Balance and use the Singulair spray twice a day and then invert

my

> >head.

> >My smell started returning about the third week in December and

has

> >been getting progressively better. I now have 40 to 60% in the

> >morning and it usually fades some during the day. I am now

getting a

> >lot of water up my sinuses and have not had a sinus infection or

a

> >need for Prednisone.

> >I don't really know why I am getting better: Omega? Singulair

spray?

> >or something else.

> >Whatever, I will let everyone know if my progress continues.

> >Drew

> >

> >

> >

> >

> >

> >

[Guest guest]

Awesome info on the sinus infection Cricket! Dairy products are very allergenic, and the mucus is why. I hope it works for you Shari! I cut out alot of diary products from my diet also, and I know it made a difference. I can tell you that I've noticed a very obvious swelling of my sinuses when I eat dairy in restaurants. Even my mom made a comment about it because I suddenly sounded so nasal after a meal with cheese in it. I've never had an infection, but now that we're discussing this, I can see what was happening. I very, very rarely eat dairy anymore, and when I do, it is fermented dairy, like kefir or yogurt.

It sounds like you are doing pretty good since explant, and I am really glad to hear that! Let us know about your TSH levels and if anything comes up about it. It sounds like it is within normal ranges, but changed in a way after explant that leans toward a less fully functioning thyroid. Not surprising at all! It happened to me, and I know I feel best when my TSH is as low as I can go on the scale.

I am really sorry to hear about your divorce, Cricket. I hope you are finding time for yourself and staying optimistic about the future...I am sure there is a better plan in place for you...I trust that God has it all in control.

Thanks so much for writing. Don't stay away so long next time!

Hugs,

Patty

----- Original Message -----

From: cricket5643000

Sent: Thursday, January 15, 2004 8:26 AM

Subject: (unknown)

Its been awhile since I've posted, but I have been trying to keep up reading everyone elses. I've been doing pretty good after explanting in April. The only things left that I am dealing with is a very small amount of joint pain sometimes (not all the time) in my elbows and maybe a day a month where I'm just not feeling very good. Brain fog is all gone. Not bad considering that be fore explant I thought I was going to die. Oh and my weight problem. I am still 30 pounds over what I used to be. Started working out again with a trainer and watching what I am eating, so we will see what happens. I did look at all my old blood work that I have saved since 1998. Very interesting! In 1998 before implanting my tsh level was 1.7. After implanting my tsh level was 5.8 and after explanting my tsh level has gone down to 4.3 as of July. All of these levels fall within the normal range. But for me it looks like I need to be in the l.7 range to keep my weight under control. I just had some blood work done this last tuesday and I can't wait to see if the tsh had gone down some more. I really hope that my thyroid is repairing itself and will get back to normal.I pray for all of you still suffering so much. It is hard not to cry when reading the posts from those of you still in so much pain. Thank God that we found each other here for support.I am sorry that I have not been of much help to the group. But I have been trying to get my life back together since my husband left.I'm doing ok. My divorce will be final June 1st.He ran into a friend of mine and told her that he had to leave because I wasn't fun anymore I never wanted to do anything. Can you believe. I was so sick and thought I was dieing and all he thought about was that he wasnt having fun anymore. Well enough about me.I can't remember who posted about having sinus infections, but I wanted to tell them about what worked for me.I had so many sinus infections, nothing seem to work. they just keep coming back. after doing a cat scan the doctor wanted to drill holes. I asked him want was causing the sinus trouble and he had no Idea, he just wanted to put holes in my head. So I started removing foods from my diet. Guess what it was dairy products.once I stoped eating dairy products my sinus stoped producing the mucus and I stoped having sinus infections. Its been abut 4 years now. I can now eat alittle bit of dairy but if I have to much I can feel my sinus's filling up. I have suggested this to others with this problem and it has worked for them to. So give it a try. With out the the mucus build up everyday the anibotis will be able to get rid of the infection.Thanks for being there.Cricket (Colleen)

[Guest guest]

Great update Cricket! I also had to rid of dairy products in order to get well, as well as most gluten products (although since explant my sensitivity to gluen has improved, that can happen as you heal, you arent so sensitive to food triggers and may outgrow food allergies ) Hopefully the dairy thing will work itself out in the years to come. Anyway, I am so happy for all your improvements, keep it up and have a wonderful new year!

>From: "Dave & Patty" >Reply- >>Subject: Re: (unknown) >Date: Fri, 16 Jan 2004 07:54:54 -0800 > >Awesome info on the sinus infection Cricket! Dairy products are very allergenic, and the mucus is why. I hope it works for you Shari! I cut out alot of diary products from my diet also, and I know it made a difference. I can tell you that I've noticed a very obvious swelling of my sinuses when I eat dairy in restaurants. Even my mom made a comment about it because I suddenly sounded so nasal after a meal with cheese in it. I've never had an infection, but now that we're discussing this, I can see what was happening. I very, very rarely eat dairy anymore, and when I do, it is fermented dairy, like kefir or yogurt. > >It sounds like you are doing pretty good since explant, and I am really glad to hear that! Let us know about your TSH levels and if anything comes up about it. It sounds like it is within normal ranges, but changed in a way after explant that leans toward a less fully functioning thyroid. Not surprising at all! It happened to me, and I know I feel best when my TSH is as low as I can go on the scale. > >I am really sorry to hear about your divorce, Cricket. I hope you are finding time for yourself and staying optimistic about the future...I am sure there is a better plan in place for you...I trust that God has it all in control. > >Thanks so much for writing. Don't stay away so long next time! >Hugs, >Patty > ----- Original Message ----- > From: cricket5643000 > > Sent: Thursday, January 15, 2004 8:26 AM > Subject: (unknown) > > > Its been awhile since I've posted, but I have been trying to keep up > reading everyone elses. > > I've been doing pretty good after explanting in April. > The only things left that I am dealing with is a very small amount > of joint pain sometimes (not all the time) in my elbows and maybe a > day a month where I'm just not feeling very good. Brain fog is all > gone. Not bad considering that be fore explant I thought I was going > to die. Oh and my weight problem. I am still 30 pounds over what I > used to be. Started working out again with a trainer and watching > what I am eating, so we will see what happens. I did look at all my > old blood work that I have saved since 1998. Very interesting! In > 1998 before implanting my tsh level was 1.7. After implanting my tsh > level was 5.8 and after explanting my tsh level has gone down to 4.3 > as of July. All of these levels fall within the normal range. But > for me it looks like I need to be in the l.7 range to keep my weight > under control. I just had some blood work done this last tuesday and > I can't wait to see if the tsh had gone down some more. I really > hope that my thyroid is repairing itself and will get back to normal. > > I pray for all of you still suffering so much. It is hard not to cry > when reading the posts from those of you still in so much pain. > Thank God that we found each other here for support. > > I am sorry that I have not been of much help to the group. But I > have been trying to get my life back together since my husband left. > I'm doing ok. My divorce will be final June 1st. > He ran into a friend of mine and told her that he had to leave > because I wasn't fun anymore I never wanted to do anything. > Can you believe. I was so sick and thought I was dieing and all he > thought about was that he wasnt having fun anymore. > Well enough about me. > > I can't remember who posted about having sinus infections, but I > wanted to tell them about what worked for me. > > I had so many sinus infections, nothing seem to work. they just keep > coming back. after doing a cat scan the doctor wanted to drill > holes. I asked him want was causing the sinus trouble and he had no > Idea, he just wanted to put holes in my head. So I started removing > foods from my diet. > Guess what it was dairy products. > once I stoped eating dairy products my sinus stoped producing the > mucus and I stoped having sinus infections. Its been abut 4 years > now. I can now eat alittle bit of dairy but if I have to much I can > feel my sinus's filling up. I have suggested this to others with > this problem and it has worked for them to. So give it a try. With > out the the mucus build up everyday the anibotis will be able to get > rid of the infection. > > Thanks for being there. > > Cricket (Colleen) There are now three new levels of MSN Hotmail Extra Storage! Learn more.

[Guest guest]

Sharon, your welcome! I also noticed that when I was hypothyroid I stuttered alot, and lost words, and even spoke slowly. Had a real hard time talking and thinking. Have you had yours checked as well?

>From: "Dave & Patty" >Reply- >>Subject: Re: (unknown) >Date: Thu, 15 Jan 2004 23:22:00 -0800 > >Sharon, >The inability to find the right words was something that I also experienced, and I kinda lumped that one symptom in with the brain fog, short term memory problems, inability to concentrate. It's in my story though...I wrote how hard it was for me to even carry on conversations with my kids because it was too hard for me to find the right words for them. I remember telling one of my kids one time to put the milk in the garage. I meant to say refrigerator, and I was thinking "refrigerator" when it came out, but it came out "garage." That is just one instance of many like that. It was so stupid, so frustrating! It made me feel like an idiot, but I was really just very scared because I knew I was a smart woman, and that what was happening to me wasn't normal. > > I was just incredulous that the FDA would allow anything on the market that would make a woman's brain turn into jello like that! I mean, it really is a very frightening thing to have happen, and the brain isn't anything to mess with, is it? So it doesn't make any sense that they list some of these problems as possible side effects as if they are just kinda only worth mentioning, just a tiny little glitch in the whole scheme of things, ya know? I mean, for heavens sake! Get real! I still get upset about it. > >And then there is the National Institutes of Health report that showed a higher rate of brain cancer among breast implant recipients....hello????? You'd think somebody would be alarmed about this by now....by the way, Sharon, just so you know--we have not had anyone on our group diagnosed with brain cancer so far....I keep wondering about that.... > >And also, I am please to report that I no longer have that problem with words. My brain seems to work pretty good again! It only took a few years... > >Hang in there Sharon, you are going to be okay. >Hugs, >Patty > > ----- Original Message ----- > From: northwoods7380 > > Sent: Wednesday, January 14, 2004 8:49 PM > Subject: (unknown) > > > Thank you & for responding, re: my appt. Mon. I never > cease to be amazed at the wealth of information & advice on this > site, and all because it comes from personal experiences. I'm so > glad you have shared yours with me! I have learned that "implant > disease" as well as auto immune diseases in general, are all very > complex. I am so thankful we have the internet, so much easier to > play detective than paging through books. I was especially > disappointed in the narrow mindedness of the rhuem dr. I saw...how > can you maintain a successful practice in the medical field and not > stay abreast (no pun intended!) of new studies, backed by actual > cases?! I am glad my primary care doctor is open, she hasn't > confirmed my suspicions though, and that is wise...we still have to > rule out some things. Today I had my Brain MRI. The buzzing is my > most bothersome symptom now, and has gotten worse. There is a > possibility that I have mestatesized (sp?) breast cancer that is now > in the brain. Scary thought. Sure puts implant problems in > perspective! Also need to rule out MS. I have looked into both of > those symptom lists on the internet and there is definitely some > crossovers with what I am experiencing. I find it interesting, > though that implants can cause some of those as well, as I have read > about them in the stories here. Am curious though if anyone has > experience a speech ataxia (inability to find words or stuttering)? > This did not last long, but definitely was there. Well, I should > know tomorrow. Then we'll go from there. I am thankful for my > supportive husband, family, friends & you. > Blessings, > Sharon Find high-speed ‘net deals — comparison-shop your local providers here.

[Guest guest]

: What is an ROQ? Not that I have one, but I want to know what one

is. Ann Goldeen, Astoria

(unknown)

>

> Hey folks,

> Anyone have a printable Spanish version of the ROQ they'd be willing to

> share? Thanks in advance.

>

>

> W. Snell, D.C.

> 127-G NE 102nd Avenue

> Portland, OR 97220

> Ph. 503-253-0827

> Fax 503-253-4760

>

> _________________________________________________________________

> Get a FREE online virus check for your PC here, from McAfee.

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

>

> OregonDCs rules:

> 1. Keep correspondence professional; the purpose of the listserve is to

foster communication and collegiality. No personal attacks on listserve

members will be tolerated.

> 2. Always sign your e-mails with your first and last name.

> 3. The listserve is not secure; your e-mail could end up anywhere.

However, it is against the rules of the listserve to copy, print, forward,

or otherwise distribute correspondence written by another member without his

or her consent, unless all personal identifiers have been removed.

>

>

[Guest guest]

In medicine it typically refers to Review of Qualifications.

D Freeman Mailing address: 1165 Union Street NE, Suite 300Salem, Oregon 97301ph 503 586-0127 fax 503 763-3581cell 503 871-0715 drmfreeman@...

Re: (unknown): What is an ROQ? Not that I have one, but I want to know what oneis. Ann Goldeen, Astoria (unknown)>> Hey folks,> Anyone have a printable Spanish version of the ROQ they'd be willing to> share? Thanks in advance.>>> W. Snell, D.C.> 127-G NE 102nd Avenue> Portland, OR 97220> Ph. 503-253-0827> Fax 503-253-4760>> _________________________________________________________________> Get a FREE online virus check for your PC here, from McAfee.> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963>>> OregonDCs rules:> 1. Keep correspondence professional; the purpose of the listserve is tofoster communication and collegiality. No personal attacks on listservemembers will be tolerated.> 2. Always sign your e-mails with your first and last name.> 3. The listserve is not secure; your e-mail could end up anywhere.However, it is against the rules of the listserve to copy, print, forward,or otherwise distribute correspondence written by another member without hisor her consent, unless all personal identifiers have been removed.>>

[Guest guest]

How about " Revised Oswestry Questionnaire " ?

C Simpson

[Guest guest]

What type of evaluations are they? I believe you could request/insist on being present at the evaluations. Also if you disagree with the results you have the right to request an impartial evaluation by another professional. Psychological/neurological

and educational evals usually just give you the level the child is at and a diagnosis of the condition. PT/OT/Speech should give specific recommendations as to the type/amount of therapy needed. I have been present at quite a few of my child's evals with no problem.

In a message dated 1/25/2004 8:54:19 AM Eastern Standard Time, ktaylorrat@... writes:

have a student about to go through an evaluation process with the school. There is a meeting to discuss which evaluations are needed and will probably include evaluations by school employees as well as outside professionals (ex. Education consultant). I’m concerned with:

- Whether outside professional is as objective as possible and not overly partial to the school. School usually chooses the professional.

- Being able to get parent input into the process, especially with outside professional. In past, we did not speak to the professional during the review nor give the professional any parent data. The school often says “we will give the professional the information.â€

- Reports by outside professional usually does not include any real recommendations, leaving it up to the meeting team to decide on placement, interventions and other things.

Do you have any thoughts on how we can do a better job with these? Or do we accept that these are part of the process and can’t do much about it? Are these problems better handled during IEE or privately paid for evaluation? Thank you for your feedback.

[Guest guest]

Bernice....Thats the million dollar question!....I was wondering that myself....Is there anyone who has had surgery and it been so good that they don't get stared at anymore! after all, you would think going through the surgeries you should get that outcome!

-- blepharophimosis (unknown)

Hi Stayce and all other new members welcome to the group! Thanks for wanting to share your experiences.Stayce why did you have so many operations?You also wrote just one thing which has kept me busy for some time now.I think that when my daughter was born with BPES (the first in the family) she looked beautiful but was of course worried for her eyesight.After her ptosis operation, which went really well, I had to get used to the scar or fold they put in her eyelid to imitate a fold. (or is it necessary for the op. to succeed?) The smooth eyes of Asian people look pretty as well without folds etc. I think that perhaps these artificial things, plus the extra scaring caused by the operations could have the opposite effect to trying to make the eyes look 'normal'. Anyway all these operations and the scars they leave behind do worry me, as I think that all the BPEi kids already look pretty without the operations. This does not mean that I think they have to enjure obscured eyesight, this should be operated on at any time.The big question which this is all about is: Is there anyone out there that has been operated on and does not encounter stares or questions any longer? Thanks. Bernice, Nina's mother> Hi! > Wow I'm still in ahh over how many other people are faced w/ the > same situations w/ blepharopimosis. I'm 20 yrs old and had over 25 > surgeries from having a muscle taken from my leg to skin behind my > ears attached to my eye lid. I've had artificial muscle to help hold > my eyelids up also. With that said, if anyone has any questions about > surgeries, I can give a honest opinion from a first had basis. Other > than that I can start off by saying how mean our society can be. I > can remember being in elementary school and being picked on and still > I get strange looks. In my opinion, dealing with others was much > harder on me than any surgery could of posssibly been. I still get > faced w/ it on a daily basis. When people describe who I am, they > refer to my eyes. It's a never ending label I feel like i'm faced > with. If I could do it all over w/ I don't know if all of the > surgeries were necessary. My scars will always be there no matter how > much make up i put on. Any questions about anything just post a > message> -stayce