Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 Hi Zach. Yea, It is really hard to find. I used to have to get it from Germany. Now a company called Atrium is making it in the US. but very few people know about it, including chiros and naturopaths. Anyway I carry it and I don't know who else does. You might call some Chiros in your area and see if they carry Atrium. Make sure no one trys to fool you and tell you that asporotate is the same thing. It isn't. If you don't have success finding it. Send me a note privately and I will get some to you. Donna ruthful@... (unknown) Hey Donna- Read your postings--re:magnesium oratate-- because of the cancer eating up the bones in my left arm i went to health food store looking for calcium and magnesium supplement. I couldn't find supplement with magesium orate and they haven't heard of it. Can you tell me where I can find it and also the best form to have my calcium in??? Zack<zarch99x@... > If you want the most absorptive magnesium on the market, I would suggest Magnesium orotate. Not only is it supposed to be 100% absorbable it also goes farther into the cell than other magnesiums. Well, actually some don't even go into the cell. They just go to the cell wall. But orotates go into the cell. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 I was told that carrots have lots of bioavailable calcium. Dr. Lorraine Day swears that jucing carrots cured her cancer. (unknown) Hey Donna- Read your postings--re:magnesium oratate-- because of the cancer eating up the bones in my left arm i went to health food store looking for calcium and magnesium supplement. I couldn't find supplement with magesium orate and they haven't heard of it. Can you tell me where I can find it and also the best form to have my calcium in??? Zack<zarch99x@... > If you want the most absorptive magnesium on the market, I would suggest Magnesium orotate. Not only is it supposed to be 100% absorbable it also goes farther into the cell than other magnesiums. Well, actually some don't even go into the cell. They just go to the cell wall. But orotates go into the cell. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 i have RA and lyme disease and co infections with the LYme disease. My RA titer was very high. when I take abx its like my veins become sticky...especially from just above my wrists leading into my hands. My hands are also very cold in the day mostly. I think flax seed oil helps with the circulation...garlic supplements should in theory help to. kathy ----Original Message----- From: rb09322@... <rb09322@...> rheumatic <rheumatic > Date: Friday, March 02, 2001 5:45 PM Subject: rheumatic (unknown) >Hello everyone.... > >I need some more help! I've been on the minocin since >November and just started the Biaxin this week for >Tuesday and Thursdays. It seems since I've been on the >AP that my circulation in my hands is worse. When I was >first diagnosed with CREST Scleroderma the Raynaud's was >terrible to the point that my finger tips were almost >black. They got better with the juicing and >supplements. Now I find my hands are light purple and >very cold again. Has this happened to anyone else? Any >suggestions? Thanks everyone! >Roni > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 In a message dated 3/5/01 3:08:09 PM Pacific Standard Time, pattybacon@... writes: << BTW, anyone know why I've lost so much hair this year? Is it caused by the drugs, stress, P, PA or what? >> Are you on the MTX? cause it can cause hair loss..Stress can make your hair fall out too. I am glad to see you are having a few good days, that is wonderful! I must say that I am very envious of the lovely weather you are having, I am in Minnesota and it is still cold and snowy... Take care, D in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 What is Touch for Health? In a message dated 3/7/2001 10:54:20 AM Eastern Standard Time, mnlarue@... writes: << My son sounded just like yours 2 years ago. What got him to sleep at night was a combination " Touch for Health " and cranial sacral therapy. The first time he received it was the first time ever that he slept through the night, and he's been sleeping well ever since. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 My son sounded just like yours 2 years ago. What got him to sleep at night was a combination " Touch for Health " and cranial sacral therapy. The first time he received it was the first time ever that he slept through the night, and he's been sleeping well ever since. snickol@... wrote: > Does anyone have a good recommendation for a drug or supplement to help > keep their child asleep at night? Not Melatonin, as my son doesn't do w > ell on this. Is anyone chelating while using Clonidine? My son is up > (last night since 1:00am and he went straight to school this am!) He's up > at 2:00 or 3:00 usually about 3 nights out of the week during chelation > and off days. He's been DFGF for 4 months now with the exception of corn > which I'm going to remove from his diet to see if this is the problem. > Does everyone think that this is just their brains haywiring or is it > attributable to " something " they ate? I'm curious what others think about > the sleep disorder part to this puzzle. > > Thanks for any input. > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 Here's the web site. You can click on " instructor or practitioner " to find someone in your area. It is now being taught at most massage schools, as well as cranial sacral, so you should be able to find someone that does both. Lake260@... wrote: > What is Touch for Health? > > In a message dated 3/7/2001 10:54:20 AM Eastern Standard Time, > mnlarue@... writes: > > << My son sounded just like yours 2 years ago. What got him to sleep at night > was a combination " Touch for Health " and cranial sacral therapy. The first > time he received it was the first time ever that he slept through the night, > and he's been sleeping well ever since. >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 I''m curious was your child doing this prior to the GFCF diet or chelation. Also what benefits have your seen since starting the diet. If you started both at the same tiime how can you know which one is benefiting him? Just wondering how you are keeping score. The sleep situation is a problem have you tried Kava kava. I tried it with no success, made my son more hyper. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 , What is " Touch For Health " ? Thanks. ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2001 Report Share Posted March 8, 2001 It's hard to explain, even now that I've had some training in it, it's still hard to put into words. Have you heard of Kinesiology? It's based on that, but simplified. It uses muscle testing to find out what's going on, and to balance the body. I took the class because my Sensei in St. Louis worked on me with it. He's been doing it for 25+ years. When ever I wasn't feeling well, or having a hard time emotionally (he worked with me through Tristan's diagnosis )he would work on me, and it really helped me cope!! Unfortunately it's hard to do the muscle testing with Tristan because he won't stay still long enough to get through all the muscles. I just do the basic ones (14), but even with that I've found that the muscles linked with the large intestine are always out when he has a yeast overgrowth. Odd thing while I was taking the class, I worked on a lady that had reoccurring pain in her arm. We were learning the meridians, and to get rid of pain like that you " walk " the meridian by applying pressure from the start of it to the end and keep the pressure on it till the pain is gone. The meridian that goes through the sore spot on her was the large intestine meridian. The next morning our teacher asked if any one felt different after the last class. a said that an hour later she was stuck in the bathroom for quite a while. Of coarse this made me go Hmmmmmm, so I asked her if she has a history of yeast infections. She said yes, and that she thought she was getting one yesterday, but no sign of it now. Needless to say I'm rubbing that meridian on Tristan as often as he'll let me. (usually every other day) The lady that worked on Tristan while we lived in St. Louis, also worked at Giant Steps...a school for kids with Autism. The kids that couldn't stand to be touched still loved to have her work on them. Tristan loves to be touched....on HIS terms. He LOVED to have her work on him!!! When I would pull up in the car and open the door for him, he would run to her door, ring the door bell, and when she opened the door he would smile at her, then run down stairs and into the room where she worked on him, and climb up on the massage table. Also, when she would rub his " central " and " governing " meridians he would settle down and hold his chin up and out (they end one on the upper lip, one on the bottom lip). She also used cranial sacral on him, so I don't know if it was the cranial sacral or the Touch for Health that helped him. I do know that I'll be taking the cranial sacral class this june at the school where I took Touch for Health!! Touch for Health Association.. http://63.238.164.100/ There's a link to a list of practitioners snickol@... wrote: > , > What is " Touch For Health " ? Thanks. > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2001 Report Share Posted March 8, 2001 We started chelation end of Oct.2000 and the chelation at around the same time. I've done CFGF before and didn't think I saw any huge difference. (I do know kids who it's helped tremendously, one in particular it was the " magic bullet " ) so, I believe it does help some kids but I'm not sure it helps mine. The only difference I've really noticed is it decreased the stimming. I've kept detailed notes since chelation began and I am seeing gains. I've heard negative things about giving a (sensitive) child Kava Kava so I'm leary of doing so. He's always had sleep problems but they seem to be getting worse. Question for everyone: Has anyone noticed big gains after some rounds but not others? We noticed improvement after round 8 and none so far after round 9. He's been a little less focused and more stimmy. Maybe the " stuff " is still coming out? We finished last Sunday. ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2001 Report Share Posted March 8, 2001 i spoke to my doctor about this phenomena and she recommended I add some herbs like wild yam, cayenne, ginger and garlic to bring up the blood pressure and increase circulation. I'm going to try it along with the abx since it seems reasonable rheumatic (unknown) >Hello everyone.... > >I need some more help! I've been on the minocin since >November and just started the Biaxin this week for >Tuesday and Thursdays. It seems since I've been on the >AP that my circulation in my hands is worse. When I was >first diagnosed with CREST Scleroderma the Raynaud's was >terrible to the point that my finger tips were almost >black. They got better with the juicing and >supplements. Now I find my hands are light purple and >very cold again. Has this happened to anyone else? Any >suggestions? Thanks everyone! >Roni > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 Hi Suzy, Read with the * ----- Original Message ----- From: " Suzy Balone " > Dr. Misra: > > Thank You for all your help with those of us who have this disease you are > a truly wonderful human being I have a question about my biopsy It > showed moderate chronic portal inflammation, piece meal necrosis, mild > portl fibrosis My viral count was 1323 X1000 ml. Showed lymphoid aggregates > and rare scattered councilman bodies ( which I have no idea what that > means) * Councilman bodies indicate that active hepatic necrosis has been going on.These are the dead liver cells being extruded from the liver. These I understand are reason enough to staart tx I do not know my > genotype but plan on asking the doc again to get that test I was dx.'ed > last May and those are the only results I have had, what is your opinion > Am really struggling with decision > Hugs > Suzy * Yes, treatment should be definitely begun, esp if it is for the first time.We must also know your AST/ALT levels and genotype. regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 Hi Suzy, Read with the * ----- Original Message ----- From: " Suzy Balone " > Dr. Misra: > > Thank You for all your help with those of us who have this disease you are > a truly wonderful human being I have a question about my biopsy It > showed moderate chronic portal inflammation, piece meal necrosis, mild > portl fibrosis My viral count was 1323 X1000 ml. Showed lymphoid aggregates > and rare scattered councilman bodies ( which I have no idea what that > means) * Councilman bodies indicate that active hepatic necrosis has been going on.These are the dead liver cells being extruded from the liver. These I understand are reason enough to staart tx I do not know my > genotype but plan on asking the doc again to get that test I was dx.'ed > last May and those are the only results I have had, what is your opinion > Am really struggling with decision > Hugs > Suzy * Yes, treatment should be definitely begun, esp if it is for the first time.We must also know your AST/ALT levels and genotype. regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 I recently listed to the book-on-tape, working on a miracle... doc was diagnosed as no longer hiv when no tests could find anti-virus and cell counts had become and remained normal. Virus load was zero. So, 3 test to pass, hiv, virus load, blood cell count. Good luck. Mark Woodruff Oceanside@... (unknown) Hello all, Is there anyone on this planet who has got rid of HIV/AIDS successfully. If anyone of you know about he/she. Can you please share ur views by letting us know the protocol to be followed. What are the signs for complete recovery from AIDS/HIV. How can one categorize that a person has overcomed HIV/AIDS. Please share ur valuable views with us. your suggestion is greatly appreciated. JOHN. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Mark, You're not cured until you stop taking the tests. Doctors have known since the early 90s (and should have known from the start if they applied any logic to what they were doing) that t-cells are not a valid surrogate marker for health or disease progression. The early AIDS victims had low t-cell counts not because a virus was destroying their t-cells, but because many years of drug abuse and unhealthy living had destroyed their thymus glands. The viral load test, according to the Nobel Prize winning scientist who developed the technology, " is a load of crap. " The HIV testing was shown to be invalid almost a decade ago. , There are plenty of people who have fully recovered from HIV/AIDS. Some have even gone back for testing and tested negative, but most don't go back for testing. They know better than waste their time, their blood and their money on a useless test that should be banned, and, despite the fact that hundreds of thousands of Americans were branded and condemned to iatrogenic death based on the results, has never been approved for diagnostic purposes. Someone is " cured " when they have seen enough evidence to be convinced that the viral theory of AIDS is either the greatest medical blunder in all of history, or the cruelest hoax ever, and fires his doctor and learns to take responsibility for his own health. By the way, there is an Appendix full of people who have recovered, telling their own experience in their own words, at the end of the 4th edition of " What if Everything You Thought You Knew About AIDS Was Wrong? " The books is available at discount prices on line through <A HREF= " http://sobehealthy.com " >sobehealthy.com</A> As for what they do? The common link is firing their doctors. The scores of people I've advised do rebound exercise and some have made diet and lifestyle changes. In over 15 years the success rate of this approach appears to be 100%. Ed (from Southbeach) In a message dated 3/13/20s1 11:24:43 PM Eastern Standard Time, oceanide@... writes: > I recently listed to the book-on-tape, working on a miracle... doc was > diagnosed as no longer hiv when no tests could find anti-virus and cell > counts had become and remained normal. Virus load was zero. So, 3 test to > pass, hiv, virus load, blood cell count. > > Good luck. > > Mark Woodruff > Oceanside@... > > > > (unknown) > > > Hello all, > Is there anyone on this planet who has got rid of HIV/AIDS > successfully. If anyone of you know about he/she. Can you please share ur > views by letting us know the protocol to be followed. > > What are the signs for complete recovery from AIDS/HIV. How > can one categorize that a person has overcomed HIV/AIDS. > > Please share ur valuable views with us. > > your suggestion is greatly appreciated. > > JOHN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Dear , We have a technique that controls the progress of HIV by boosting CD8 cells. See my home page and if you are interested contact me personally. Regards, Noel. Prof. Noel P O Box 137 Parkville VIC 3052 Australia Phone 61 03 9639 6090 Fax 61 03 9639 6392 Email noelc@... Web http://www.smile.org.au (unknown) Hello all, Is there anyone on this planet who has got rid of HIV/AIDS successfully. If anyone of you know about he/she. Can you please share ur views by letting us know the protocol to be followed. What are the signs for complete recovery from AIDS/HIV. How can one categorize that a person has overcomed HIV/AIDS. Please share ur valuable views with us. your suggestion is greatly appreciated. JOHN. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi . we found out in october my 6 year old has polyarticular JRA. and it has been very hectic. seeing all the pain she has gone threw they put my daughter on naprosyn and she seems to be doing better. she goes back to the rummy on friday and i hope i hope she feels it has helped her alot plus my daughter goes to physical therapy 3 times a week. i am very busy with her but i keep looking at the bright side. my daughter could have somthing else that was life threating. just remember jennifer we are all here for you.. we all know what you are going threw.. kellie >From: " " <jlacey26@...> >Reply- > >Subject: (unknown) >Date: Thu, 15 Mar 2001 01:15:02 -0000 > >Hello out there my name is . we were just told about a month >ago that my duaghter p[robably had jra(setm. I am not at all informed >on this and I have tried to read up on it but it just seems to loose >me even more. Kay-lynn is only 4yrs. She started sleeping alot and >having high fevers about 6mths ago. And now here we are. if anyone >can give me any info it would be great. >Thanks for your help. > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Dear Kellie, Just wanted to let you know that I have a 6 yr. old daughter also with polyarticular jra. Was dx. at 3. We too started out with almost daily therapy and I know that the first year can be extremely hectic. Also was started out on Naprosyn. Meds have " come and gone " as she seems to have very aggressive case, but she still goes to kindergarten, plays pee-wee basketball and softball. Some days we take things a little slower than others but you learn to take it one day at a time. I know how scared I was when they first dx. her as they thought she had leaukemia! Just " hang " in there and let me know how it's going. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Hi ... Allergic reaction to the hardware isn't very common, but I've known two people who had that problem. In both cases, the hardware was loose in at least one spot, allowing metal to rub against metal and shed tiny particles of the metal into the soft tissue. Best of luck! Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Maybe this is why my hardware is causing so much pain on one side. One more thing to ask Dr. Hu about I guess... in the East Bay At 09:12 AM 03/15/2001 -0800, you wrote: >Hi ... > >Allergic reaction to the hardware isn't very common, but I've known two >people who had that problem. In both cases, the hardware was loose in >at least one spot, allowing metal to rub against metal and shed tiny >particles of the metal into the soft tissue. > >Best of luck! > >Regards, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 , I have not read anything so offensive and uninformed in years. Stating that everyone with HIV got it "because many years of drug abuse and unhealthy living had destroyed their thymus glands". , before you make such claims you ought to study human biology, the single thymus gland humans are born with naturally stops working in ALL humans as we age, regardless of health. Before you go spilling off more nonsense, what exactly is your education level? Tom (unknown)> > > Hello all,> Is there anyone on this planet who has got rid of HIV/AIDS> successfully. If anyone of you know about he/she. Can you please share ur> views by letting us know the protocol to be followed.> > What are the signs for complete recovery from AIDS/HIV. How> can one categorize that a person has overcomed HIV/AIDS.> > Please share ur valuable views with us.> > your suggestion is greatly appreciated.> > JOHN._ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hello , I too am new to JRA as my daughter, , was diagnosed poly-JRA in February. We got to a point when I had to give " piggy-back " rides through the house to get things done (like taking meds, brushing teeth, etc). We started out on naproxen (250mg 2x/day) and tylenol #3 for the pain. Two weeks ago we started prednisone (10mg 1x/day) as we saw no releif with naproxen. OK, I do agree, prednisone is a miracle drug, could write again on her own, walk with less of a limp and got back involved in Tae Kwon Do (which she is a brown belt/red strip - two promotions from a black belt). Today we saw our Peds Rhuem and started methotrexate (5mg for two weeks and 10mg/week thereafter) and will decrease the prednisone on Monday to 5 mg. All I can say is the happiness and playfulness in 's personnality is so wonderful to see back. I hope we figure out the med routine without too much difficulty. I truely believe in a positive attitude ~ which I did not have about a week and a half ago. This is a nice list of people who are sharing in all the same experiences you are and is a wonderful support ~ best of luck! Dee Dee ~ 's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 i took Feldene for years but quit finally as it was to hard on my stomach. Lexi From: " Emma " <emmareedd@...> I just had my first appointment with Dr. Rand of the Boston Spine Group, and he was wonderful. Thank you to those on the list who recommended him. I would highly recommend him to anyone in the Northeast. I went to see him after my old surgeon retired and needed to see someone about post op pain problems. He was very helpful. He wrote a perscription for Feldene. Does anyone know what this is, or what the long term side effects are? Is it safe to take indefinitely? Also, I have been having a problem with a nickel allergy and rejection of the stainless steel hardware in me as a result. Dr. Rand ordered a CAT scan to look at how much fluid is around the harware, indicating infection (which apparently would indicate the extent of the allergic reaction). Anyone heard of this before? Dr. Rand said that he has indeed heard of spine patients having a problem with being allergic to the hardware, which I was told by other doctors was unheard of. Thanks, _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 , thank you for writing me back. my daughter went to the rummy today and they said she is looking good. she still has inflamation and they started her on plaquinel in addition to her naprosyn. i hope this helps. she is also anemic and we have been giving her vitamins with iron to help out her appitite isn't the greatest. what all types of meds have your daughter been on? well thank you again and please keep in touch.. kellie >From: nLilly@... >Reply- > >Subject: Re: (unknown) >Date: Thu, 15 Mar 2001 08:33:59 -0500 (EST) > >Dear Kellie, >Just wanted to let you know that I have a 6 yr. old daughter also with >polyarticular jra. Was dx. at 3. We too started out with almost daily >therapy and I know that the first year can be extremely hectic. Also >was started out on Naprosyn. Meds have " come and gone " as she seems to >have very aggressive case, but she still goes to kindergarten, plays >pee-wee basketball and softball. Some days we take things a little >slower than others but you learn to take it one day at a time. I know >how scared I was when they first dx. her as they thought she had >leaukemia! Just " hang " in there and let me know how it's going. > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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