Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 , My daughter has been on sulphasalizine and oruvail for over a year. Her rhuemy has been careful about what meds he puts her on because she's only 14. We've had no problems with either of these drugs, her sed rate has gone from 83 to 27. She is active again, has very few sore days and nothing as bad as she had before these meds. I hope this helps. Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 I am rather new to this diagnosis, but my first NSAID was Celebrex. I have had very good results and haven't noticed any side effects unless my increase in GERD symptoms is linked. My problem is that I have a variety of problems and don't know which ones are linked. in KS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 Thats what I've been taking for @ 5 months now. Not really any side effects or downside. Unfortunately I'm not getting any better either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2001 Report Share Posted February 22, 2001 rebecca, i have hotmail too, and often i would have troubles with them and egroups, either messgages not getting sent or something, just with egroups though, havent tried it through , have had enough trouble with them allready,lol, so i just use our LAN address hubby doesnt really like getting extra mail in our family one but understands. shawna. (unknown) > Hi all, > > It's me my other e-mail was > Brink_00@.... If you send stuff to be from > the beginning of the month I couldn't see it. > Something's wrong with my hotmail account so I > probablly won't use it. > > From, > > > ===== > Friends Till The End > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2001 Report Share Posted February 22, 2001 I'm glad I'm not the only one that has problems with hotamil accounts. I've had that hotmail account like for 3 years and it hasn't been a problem, but it is- so I'll probablly use this one and the other account that I have. I suppose I could send these e-mails to my parnet's e-mail account, but I don't think they want to read extra mail, and plus they don't know that much about autism and or ds. From, ===== Friends Till The End __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Thank you, thank you Janet, I taped this broadcast when it originally aired but the last half of it got taped over before I could watch it. I've been trying since to catch a rerun. My VCR is poised and ready . . . You are speaking of our own Jackie's son , who appears in this broadcast. As far as my evening, I went to the grocery store in the rain. Not too much vicarious fun to go on there I'm afraid. :-) Kathy R in Indiana ----- Original Message ----- From: " Janet J " <pdx_janet@...> > Just wanted to let anyone who might be interested know > that there is a program about OCD on cable tonight. It > is a rerun of the 48hrs program with Howie Mandell and > also the first apperance of Mark (?), the young man > who strayed in the bathroom for months. It is a couple > years old I think but I am still gonna watch it, even > though I have seen it before. It is on TLC - The > learning Channel - at 10:00pm PST (West Coast Time). > Check your cable guide for other time zones. > > Those of you who are reading this post on Sunday > because you had something better to do on Saturday > night than stay at home reading email and watching TV, > please write and tell me all about your fun evening. I > just love to live vicariously!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Kathy, I can see a big difference in the way you look. Maybe its different for you because you are used to seeing yourself. I noticed a big difference in your back area and you look so much more healthier. Keep up the great work!! ~Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Wow, Kathy-I can tell a major difference, so don't minimize such a great achievement. You must be so motivated to continue with the challenge! Just think, if you can do this in 47 days, the results will be great at the end of the next six weeks. :-) Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 on2gold@... writes: http://photos./on2gold Hi Kathy, WooHooooo!! Keep on going! Yes, you can see the difference. You are looking great. Congratulations on your success to date and good luck with the rest of your Challenge. Leaner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Kathy, you have made progress. Keep up the good work. Cheryl C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 Kathy, You are an inspiration to me who is just starting her second week! Great going! Pamela _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 In a message dated 2/25/01 7:23:56 PM Eastern Standard Time, on2gold@... writes: << Hi ya'll, I have added my before photos, taken on January 18, 2001 and my day 47 photos to my briefcase. Here's the link: >> HI Kathy. I can see a big difference. Way to go! DH and I just took our 4 week pics on Saturday and need to get them developed. I promised to post them to the site. HOpefully I wont chicken out when I see them. You've inspired me to share mine too! Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 Good Job! Keep at it and the fat will continue to melt away as you reach your goals. All the best! Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 Dear , I am very interested to know about the kind of Lab test have you done in order to know his thrombophilia problem, because my son have tested for Lp (a) and come out with very high score and this is also an indication that his blood is very thick and sticky. Please keep us informed of what should be done with your son condition. tks & rgds, ellen --- snunes@... wrote: > Hi all, > Dr. Bradstreet's office called me with the results > of my son's > thrombophylia test. It was positive. This > condition means that the > blood is too thick and does not carry enough oxygen > to the brain (as > well as everywhere else in the body). There are > many factors which > are tested. One of them indicates fibrous strings > in the blood, > another, too much clotting factor. Apparently, a > lot of spectrum > kids have this condition. He took a family history > from both sides > (mine and my husbands) on our first visit and felt, > based on this, it > was a possibility our son had it. I had never heard > of it and was > skeptical but gave the go ahead. And sure enough, > he has it! It can > lead to heart disease, stroke, etc., if not treated. > Of course, > brain function is effected, too. He put my son on > non-flush niacin > until our next visit when he will discuss what else > needs to be > done. Has anyone else's doctor tested for this > condition? > N > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 We have been tested for this condition (via Dr Bradstreet/Kartiznel) and my son and we are negative for thrombophylia. I have heard that they feel maybe 40% of ASD kids have this issue. What have you heard? A Jeffs mom Has anyone else's doctor tested for this condition? N Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 , At this time I believe it to be a bunch of hype, I maybe wrong maybe some of those on the OBCE can correct this. However as I brought up last month HIPAA is coming and apparently as I predicted or stated when the final version goes into effect in Feb. 2003 it will cover all forms of patient information not just electronic. At that time you will have to have a written office policy (compliance plan) covering patient confidentially including how patient information will be used for the purposes of billing to insure that only that info that is required by the ins. company is what you send out nothing more. And I believe this will have to posted so that the public (patients) can read it. This is a federal program and as such will probably carry some pretty hefty fines forcing compliance. Again I maybe wrong on the need for one at this time but I haven't heard of it if we do. Take care steve kinne (unknown) > >I had a sales call from a Medical Billing company representative. The >rep said she would be willing to write a " Compliance Plan " for my office. > I was told the compliance plan, which states how my office does billings >etc., is now mandatory and I could face fines if I did not have a >compliance plan. > >Was this just sales hype? Are we required to have a compliance plan? > > DeSiena, D.C. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Pat, Thanks so much for your encouraging story-I'm so excited to hear about your success, which I know is soon to come. You're dedication and focus is so inspiring. It sounds like your wife's story is just as interesting, and I look forward to seeing her name on the Grand Champion List... " -) Keep the encouraging progress coming, and good luck over the next few weeks! you can do it! from SC/FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Pat, Thanks so much for your encouraging story-I'm so excited to hear about your success, which I know is soon to come. You're dedication and focus is so inspiring. It sounds like your wife's story is just as interesting, and I look forward to seeing her name on the Grand Champion List... " -) Keep the encouraging progress coming, and good luck over the next few weeks! you can do it! from SC/FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Steve, You are right about HIPAA compliance, confidentiality of records, offoce policies and so on. However, buying a " compliance plan " at this point is probably not a good idea. For one thing, the HIPAA rules have just been placed in an uncertain status by HHS. As part of the executive review by Pres Bush there may be some delay in officially issuing rules, thereby delaying the date of implementation and the need for compliance. It is a big deal, and some form of federal regulation of health information is inevitable. So stay tuned, shore up your office policies and procedures about confidentiality and don't buy into anyone's canned-planned compliance program. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Welcome aboard, Pat! You've come a long way, congratulations! >This is my first time posting...my name is Pat and I am a BFLer... HAHAHAHAHAHAH. Sorry, just struck me as really funny. Almost sounds like you're copping to being an addict of some sort. " Hi, my name is Tina and I'm a BFLer. " " HELLO TINA " the crowd shouts. LOL Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Thanks Pat for that inspirational post......Todd who's hoping to get to 15% bodyfat this round...... > (unknown) > > Hello All, > > There is a lot of wisdom in this group...thank you and remain > steadfast in your efforts. > > This is my first time posting...my name is Pat and I am a BFLer... > > > > This email message and any attachment(s) are for the sole use of the intended recipient(s) and may contain proprietary and/or confidential information which may be privileged or otherwise protected from disclosure. Any unauthorized review, use, disclosure or distribution is prohibited. If you are not the intended recipient(s), please contact the sender by reply email and destroy the original message and any copies of the message as well as any attachment(s) to the original message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Hello Pat!!! What a wonderful introduction! I believe you will reach your goals, and Im encouraged by your determination, its very positive Keep looking forward and strive for your best ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 And youre going to get it Todd!! You've come far already, I just know youre going to hit this goal too ~~ Thanks Pat for that inspirational post......Todd who's hoping to get to 15%bodyfat this round...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Welcome Pat! It is inspirational to read your story and " hear " the excitement about your wife. Thanks for sharing! Let us know how each of you are doing as your year progresses! Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 Raynaud's is triggered by cold, caffeine, stress, smoking, alcohol and some drugs (that restrict or shrink blood vessels, such as sinus cold remedies and allergy meds). Also, don't forget, the sensors for cold that trigger this reaction to stop the flow of blood to the extremities, is in the chest. If your back and chest are cold you can't stop the reaction. No matter how big the mitts are. Put on a heavy vest or layers of clothes to warm the chest. The hands will follow suit. I also find a hat will warm you up too if you are in extreme Raynaud's. Also, if your hands or feet are purple or black (which is better than white since there is a least some blood sitting in the vessels, apply external heat to dilate the vessels and draw blood into them. A heating pad or hot wax bath would do the trick. If I am really bad I get into the tub. Exercise will also heat the body and cause the circulation to put out into the extremities. Be careful or you will run into problems with ulcers and and tissue damage. Do not underestimate the damage Raynaud's can do. If you see your hands changing....what is going on inside the body?? Donna Ottawa, Canada Scleroderma, Jan.95, AP Oct.97 (Ottawa Support) http://www3.sympatico.ca/mousepotatoes/rbf.html rheumatic (unknown) >Hello everyone.... > >I need some more help! I've been on the minocin since >November and just started the Biaxin this week for >Tuesday and Thursdays. It seems since I've been on the >AP that my circulation in my hands is worse. When I was >first diagnosed with CREST Scleroderma the Raynaud's was >terrible to the point that my finger tips were almost >black. They got better with the juicing and >supplements. Now I find my hands are light purple and >very cold again. Has this happened to anyone else? Any >suggestions? Thanks everyone! >Roni > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
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