Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 Hello Jan, I'm here and getting all posts from everyone. All the lists I am on have gone to . No problems so far. Shop online without a credit card http://www.rocketcash.com RocketCash, a NetZero subsidiary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 Oh that's you Cheryl ID, I though we had another Cheryl in the group. My bad, Genny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 Welcome to our group... YOU WILL find plently of support and some new friends here.... I am the mom of an 18 yr old son who has AIH..PSC another liver disease,Crohns and Rhuematoid Arthritis....He just got out of the hosp after being sick since before Christmas.. You will learn alot about the lab tests and their results that sometimes can be very confusing...about some of the tests and what meds(pain) to ask for to make the whole thing a little easier.. I hope to hear from you in the group again... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Leah, thank you for sending on that nice story. It reminds me of the stuggles to keep my son, Gene, included. I see how much he has to offer his school...but so many other see his disability as a problem....like a $10 painting. I could go on and on, but suffice it to say, because our country so values physical beauty, high achievement and competition, finding those who value my son's individuality and differences are often hard to find. Lauri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 lauri, i agree...i cried like there was no tomorrow when i read that..... it has so much meaning but also brings peace amongst you when your done...almost like a soul cleansing...which i really need these days..my life is good on the most, but my friends are faltering. i have one friend with a 10 yr old with ds who has decided to put her up for adoption. mom also has 4 yr old with asd... i have to question this decision and i have no right too....two disabled children, yet give one up... and another friend with 15 yr old autism wants to put her son away and another mom says her son is absurd and belongs in ahome too...not that i have ANY ROOM to talk or judge, lord knows i am no perfect mom and i am sure ashton could have been given a better mom than me, but i do exhaust all efforts in making her life the best it can be and assisting her to utilize all her potential..... if that means sleepless nights and endless stress, i will do it...but when i see parents who dont it just bugs and eats away at my heart...how can someone not give their all and mighty for the child that is truly part of them. i see ashton as a reflection of me...she is my artwork........ okay i will stop bitching....sorry just slightly unnerved.....dont mean to take my nastiness out on yall have a great day.leah >From: timothytlstein@... >Reply- > >Subject: Re: (unknown) >Date: Wed, 7 Feb 2001 09:07:03 EST > >Leah, > >thank you for sending on that nice story. It reminds me of the stuggles to >keep my son, Gene, included. I see how much he has to offer his >school...but >so many other see his disability as a problem....like a $10 painting. I >could >go on and on, but suffice it to say, because our country so values physical >beauty, high achievement and competition, finding those who value my son's >individuality and differences are often hard to find. > >Lauri _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Leah, I know how you feel. I have been raising for almost 9 years and the fact that his biological mother has nothing to do with him makes me so angry and disgusted that I can barely stand it. I actually don't want her to because she is not a good person for him to be around but then it bothers me all the same that she treats him like he has no value whatsoever. I think it is because he is the most valuable thing in my life and I have given up so much and worked so hard for him to have a decent life. And to have her " acting " like she cares or whatever she thinks she's doing makes me sick. Do you know why she has only seen him about 6 days out of the last 6 years? Because she will only see if WE drive him the 400 miles to her house. She says she's not going to come down to where we live and visit in a hotel room. So if she doesn't get it her way she just won't see him. This about sends me over the EDGE! But you know what? She's the one who is missing out. is the most satisfying thing in my life. Probably because I put so much into his life and to see him progressing is extremely satisfying. So she's the loser. This is a little different from what you were talking about but if you can vent, so can I. Just keep on keeping on Leah. You are a good mommy. Your daughter is lucky to have you. Mom to 11 --- leah leah <okieleah@...> wrote: > lauri, > i agree...i cried like there was no tomorrow when i > read that..... it has so > much meaning but also brings peace amongst you when > your done...almost like > a soul cleansing...which i really need these > days..my life is good on the > most, but my friends are faltering. i have one > friend with a 10 yr old with > ds who has decided to put her up for adoption. mom > also has 4 yr old with > asd... i have to question this decision and i have > no right too....two > disabled children, yet give one up... and another > friend with 15 yr old > autism wants to put her son away and another mom > says her son is absurd and > belongs in ahome too...not that i have ANY ROOM to > talk or judge, lord knows > i am no perfect mom and i am sure ashton could have > been given a better mom > than me, but i do exhaust all efforts in making her > life the best it can be > and assisting her to utilize all her potential..... > if that means sleepless > nights and endless stress, i will do it...but when i > see parents who dont it > just bugs and eats away at my heart...how can > someone not give their all and > mighty for the child that is truly part of them. i > see ashton as a > reflection of me...she is my artwork........ okay i > will stop > bitching....sorry just slightly unnerved.....dont > mean to take my nastiness > out on yall have a great day.leah > > > >From: timothytlstein@... > >Reply- > > > >Subject: Re: (unknown) > >Date: Wed, 7 Feb 2001 09:07:03 EST > > > >Leah, > > > >thank you for sending on that nice story. It > reminds me of the stuggles to > >keep my son, Gene, included. I see how much he has > to offer his > >school...but > >so many other see his disability as a > problem....like a $10 painting. I > >could > >go on and on, but suffice it to say, because our > country so values physical > >beauty, high achievement and competition, finding > those who value my son's > >individuality and differences are often hard to > find. > > > >Lauri > > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 -- Leah, Thank you so much for posting the art writing.That was truly beautiful and really made me stop and think.I also wanted to comment on a friend s son who is severly autistic. He was having a meltdown at schooland the teacher and aide and he were all on the floor when the fight just went out of him,they were glad but surprised.What they did not know was that had seen his mom outside and ready to come in the room. She also is very strictand said he looked like he was thinking " oh **** there goes my tv!!!!The teacher said it took weeks before he stopped checking the doorway!!One thing is for sure our kids are good for some laughs. Carole - lea h leah <okieleah@...> wrote: > hey dear friends, > i thought you might like this!!! i found it very > inspiring and just calming > to read......leah > > REAL ART > > A wealthy man and his son loved to collect rare > works of art. They had > everything in their collection, from Picasso to > Raphael. > > They would often sit together and admire the great > works of art. > > When the Viet Nam conflict broke out, the son went > to war. He was very > courageous and died in battle while rescuing another > soldier. > > The father was notified and grieved deeply for his > only son. > > About a month later, just before Christmas, there > was a knock at the door. > A > young man stood at the door with a large package in > his hands. > > He said, " Sir, you don't know me, but I am the > soldier for whom your son > gave > his life. He saved many lives that day, and he was > carrying me to safety > when > a bullet struck him in the heart and he died > instantly. He often talked > about > you, and your love for art. > > The young man held out his package. " I know this > isn't much. I'm not really > a > great artist, but I think your son would have wanted > you to have this. " > > The father opened the package. It was a portrait of > his son, painted by the > young man. He stared in awe at the way the soldier > had captured the > personality of his son in the painting. The father > was so drawn to the eyes > that his own eyes welled up with tears. > > He thanked the young man and offered to pay him for > the picture. " Oh, no > sir, > I could never repay what your son did for me. It's a > gift. " > > The father hung the portrait over his mantle. Every > time visitors came to > his home he took them to see the portrait of his > son before he showed them > any of the other great works he had collected. > > The man died a few months later. There was to be a > great auction of his > paintings. Many influential people gathered, excited > over seeing the great > paintings and having an opportunity to purchase one > for their collection. On > the platform sat the painting of the son. The > auctioneer pounded his gavel. > " We will start the bidding with this picture of the > son. Who will bid for > this picture? " > > There was silence. Then a voice in the back of the > room shouted, " We want to > see the famous paintings. Skip this one. " > > But the auctioneer persisted, " Will someone bid for > this painting? Who will > start the bidding? $100, $200? " > > Another voice shouted angrily, " We didn't come to > see this painting. We came > to see the Van Goghs, the Rembrandts. Get on with > the real bids! " But > still > the auctioneer continued, " The son! The son! Who'll > take the son? " Finally, > a > voice came from the very back of the room. It was > the longtime gardener of > the man and his son. " I'll give $10 for the > painting. " > > Being a poor man, it was all he could afford. " We > have $10, who will bid > $20? " " Give it to him for $10. Let's see the > masters. " " $10 is the bid, > won't someone bid $20? " The crowd was becoming > angry. They didn't want the > picture of the son. They wanted the more worthy > investments for their > collections. The auctioneer pounded the gavel. > " Going once, twice, SOLD for > $10! " > > A man sitting on the second row shouted, " Now let's > get on with the > collection! " The auctioneer laid down his gavel, > " I'm sorry, the auction is > over. " " What about the paintings? " " I am sorry. When > I was called to conduct > this auction, I was told of a secret stipulation in > the will. I was not > allowed to reveal that stipulation until this time. > Only the painting of the > son would be auctioned. Whoever bought that painting > would inherit the > entire > estate, including the paintings. The man who took > the son gets everything! " > > God gave his Son 2,000 years ago to die on a cruel > cross. Much like the > auctioneer, His message today is, " The Son, the Son > , who'll take the Son? " > Because you see, whoever takes the Son gets > everything. > --author unknown > > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > ===== Carole, wife of Rich, mom to and , m-i-l to and , grandmom to ,8 ,with d.s.and a.s.d. and 6 with adhd and possible a.s.d.and Logan 2 year old chatterbox and Seth,8 month old getting over surgery but still crawling and pulling up to stand. Psalm16Preserve me ,O GOD;for in thee do i put my trust. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 Leah, I really liked this e-mail that you sent (below). It reminded me of when my 5th grade art teacher died of cancer. She did so much art work- and she was a good teacher. She was the first teacher in my life that have died. >From: " leah leah " <okieleah@...> >Reply- > >Subject: (unknown) >Date: Wed, 07 Feb 2001 08:45:02 -0500 > >hey dear friends, >i thought you might like this!!! i found it very inspiring and just calming >to read......leah > >REAL ART > >A wealthy man and his son loved to collect rare works of art. They had >everything in their collection, from Picasso to Raphael. > >They would often sit together and admire the great works of art. > >When the Viet Nam conflict broke out, the son went to war. He was very >courageous and died in battle while rescuing another soldier. > >The father was notified and grieved deeply for his only son. > >About a month later, just before Christmas, there was a knock at the door. >A >young man stood at the door with a large package in his hands. > >He said, " Sir, you don't know me, but I am the soldier for whom your son >gave >his life. He saved many lives that day, and he was carrying me to safety >when >a bullet struck him in the heart and he died instantly. He often talked >about >you, and your love for art. > >The young man held out his package. " I know this isn't much. I'm not really >a >great artist, but I think your son would have wanted you to have this. " > >The father opened the package. It was a portrait of his son, painted by the >young man. He stared in awe at the way the soldier had captured the >personality of his son in the painting. The father was so drawn to the eyes >that his own eyes welled up with tears. > >He thanked the young man and offered to pay him for the picture. " Oh, no >sir, >I could never repay what your son did for me. It's a gift. " > >The father hung the portrait over his mantle. Every time visitors came to >his home he took them to see the portrait of his son before he showed >them >any of the other great works he had collected. > >The man died a few months later. There was to be a great auction of his >paintings. Many influential people gathered, excited over seeing the great >paintings and having an opportunity to purchase one for their collection. >On >the platform sat the painting of the son. The auctioneer pounded his gavel. > " We will start the bidding with this picture of the son. Who will bid for >this picture? " > >There was silence. Then a voice in the back of the room shouted, " We want >to >see the famous paintings. Skip this one. " > >But the auctioneer persisted, " Will someone bid for this painting? Who will >start the bidding? $100, $200? " > >Another voice shouted angrily, " We didn't come to see this painting. We >came >to see the Van Goghs, the Rembrandts. Get on with the real bids! " But >still >the auctioneer continued, " The son! The son! Who'll take the son? " Finally, >a >voice came from the very back of the room. It was the longtime gardener of >the man and his son. " I'll give $10 for the painting. " > >Being a poor man, it was all he could afford. " We have $10, who will bid >$20? " " Give it to him for $10. Let's see the masters. " " $10 is the bid, >won't someone bid $20? " The crowd was becoming angry. They didn't want the >picture of the son. They wanted the more worthy investments for their >collections. The auctioneer pounded the gavel. " Going once, twice, SOLD for >$10! " > >A man sitting on the second row shouted, " Now let's get on with the >collection! " The auctioneer laid down his gavel, " I'm sorry, the auction is >over. " " What about the paintings? " " I am sorry. When I was called to >conduct >this auction, I was told of a secret stipulation in the will. I was not >allowed to reveal that stipulation until this time. Only the painting of >the >son would be auctioned. Whoever bought that painting would inherit the >entire >estate, including the paintings. The man who took the son gets everything! " > >God gave his Son 2,000 years ago to die on a cruel cross. Much like the >auctioneer, His message today is, " The Son, the Son , who'll take the Son? " >Because you see, whoever takes the Son gets everything. >--author unknown > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Dear rlwatson -- if you will give us a name to call you by, responses will be easier. I hope life gets a little more comfortable for you soon. Remember, if you don't take care of yourself now, and insist that others help you take care of yourself now, you won't be able to take care of your family and your job properly later. Naturally, your family wants to think that you're invincible; perhaps you have to help them see reality, uncomfortable though it may be at first. Best wishes. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 This is my first post also. Hope it shows up OK. I was diagnosed in August, 2000 with AIH. Initial LFTs were around AST(1500) and ALT(1700), or the other way around. I knew something was wrong (tired, heartburn, etc), but after previous experience with doctors (getting my fibromyalgia and my mother's lupus diagnosed), I didn't even bother to go. I knew that they would say: you are 40, have two kids, work, etc. - just get more rest and relieve stress. The funny thing was, things were going better than they had in a long time, and not really under a lot of stress. Anyway, after my son told me that my eyes were yellow, went to the doctor. All tests initially came back negative for hepatitis, ANA, 's, etc. After three weeks started on prednisone and went to another specialist. At that point ANA was 1:640. Currently taking 12.5 mg prednisone and 100 imuran. Biopsy in December still showed inflammation, but no cirrhosis. LFTs are almost normal. However, still feeling the side effects of the medicine. High blood sugar, dizziness, stomach pains, fatigue. Same situation with me - I was always the " do everything for everybody " person. My children (16 and 11) have been helpful, and it seems that my husband is supportive. However, I find that no-one, including my husband wants to talk about it. When I was off work for two months, everyone was real concerned. Now that I am no longer yellow and flat on my back in bed, everyone acts like the other stuff is insignificant. They act like because the medicine seems to have it under control, I shouldn't worry about it. The problem is that due to lots of autoimmune illnesses in my family, I am pretty familiar with chronic situations and the side effects of the medicines. Sometimes I wish that I didn't know so much. Anyway, just venting. I seem to have just shut down around here. Not really depressed, just trying not to think about it. The few times I have been on a crying jag, got such a bad headache that I decided it wasn't worth it. I'll be checking back. > > > Hi: > > > > This is the first time I have ever belonged to a support group. I have read some of > > your letters and find them very helpful. I was diagnosed with AIH about 3 years ago > > I know I have had it much longer though. I find it very hard to talk to my family about > > it and especially how I feel and how scared I get at times. I am 43 and have 3 > > children 19, 12 and ll. They always worry about me especially if they find out I have > > been at the doctors. The problem is they are so used to me being able to do everything > > that they find it hard when I have to slow down. As for my husband I don't think he > > realizes the severity of this disease and is not understanding at all. I think if I had > > more support from him I could deal with this easier. I am hoping that by joining > > this support group that it will give me the support I lack. Thanks for everything. > > > > Configure this line on the > > Email Preferences screen > > ______________________________________________ > > > > Get your FREE SkyBiz.com email at www.skybizworld.com ! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Welcome! What is your name? I know what you mean about doctors not wanting to believe you are sick when you are. I spent many years not feeling well and being told it was in my head even though my ANA counts were always high. Most of the time though they never bothered with blood tests, just told me to reduce stress and seek counseling. Again, like you, I only go to the doctor when I can't take it anymore. My name is Debbie. My son was just diagnosed with AIH. He just turned 12. I also have a 13 year old daughter and a 10 year old. son. I am 37, married to a wonderful man (Jim) and currently live in NC. Debbie (Tommy's Mom) > [Original Message] > From: <rlwatson2@...> > < > > Date: 2/11/01 9:32:42 PM > Subject: [ ] Re: (unknown) > > This is my first post also. Hope it shows up OK. > I was diagnosed in August, 2000 with AIH. Initial LFTs were around > AST(1500) and ALT(1700), or the other way around. I knew something > was wrong (tired, heartburn, etc), but after previous experience > with > doctors (getting my fibromyalgia and my mother's lupus diagnosed), I > > didn't even bother to go. I knew that they would say: you are 40, > have two kids, work, etc. - just get more rest and relieve stress. > The funny thing was, things were going better than they had in a > long > time, and not really under a lot of stress. Anyway, after my son > told me that my eyes were yellow, went to the doctor. All tests > initially came back negative for hepatitis, ANA, 's, etc. > After three weeks started on prednisone and went to another > specialist. At that point ANA was 1:640. > Currently taking 12.5 mg prednisone and 100 imuran. Biopsy in > December still showed inflammation, but no cirrhosis. LFTs are > almost normal. However, still feeling the side effects of the > medicine. High blood sugar, dizziness, stomach pains, fatigue. > Same situation with me - I was always the " do everything for > everybody " person. My children (16 and 11) have been helpful, and > it > seems that my husband is supportive. However, I find that no-one, > including my husband wants to talk about it. When I was off work > for > two months, everyone was real concerned. Now that I am no longer > yellow and flat on my back in bed, everyone acts like the other > stuff > is insignificant. They act like because the medicine seems to have > it under control, I shouldn't worry about it. The problem is that > due to lots of autoimmune illnesses in my family, I am pretty > familiar with chronic situations and the side effects of the > medicines. Sometimes I wish that I didn't know so much. > Anyway, just venting. I seem to have just shut down around here. > Not really depressed, just trying not to think about it. The few > times I have been on a crying jag, got such a bad headache that I > decided it wasn't worth it. > I'll be checking back. > > > > > > > Hi: > > > > > > This is the first time I have ever belonged to a support group. > > I have read some of > > > your letters and find them very helpful. I was diagnosed with > AIH about 3 years ago > > > I know I have had it much longer though. I find it very hard to > > talk to my family about > > > it and especially how I feel and how scared I get at times. I > am > 43 and have 3 > > > children 19, 12 and ll. They always worry about me especially > if > they find out I have > > > been at the doctors. The problem is they are so used to me > being > able to do everything > > > that they find it hard when I have to slow down. As for my > husband I don't think he > > > realizes the severity of this disease and is not understanding > at > all. I think if I had > > > more support from him I could deal with this easier. I am > hoping > that by joining > > > this support group that it will give me the support I lack. > Thanks for everything. > > > > > > Configure this line on the > > > Email Preferences screen > > > ______________________________________________ > > > > > > Get your FREE SkyBiz.com email at www.skybizworld.com ! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 I'm new at posting to these things. My name is W. I live in Alabama and am going to the Liver Center at the Kirlin Clinic in Birmingham. Thanks for answering. > Dear rlwatson -- if you will give us a name to call you by, responses will be > easier. I hope life gets a little more comfortable for you soon. Remember, > if you don't take care of yourself now, and insist that others help you take > care of yourself now, you won't be able to take care of your family and your > job properly later. Naturally, your family wants to think that you're > invincible; perhaps you have to help them see reality, uncomfortable though > it may be at first. Best wishes. > Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Thanks for replying, Debbie. I am new to posting to message boards. My name is W. - I live in Huntsville, Alabama, but am going to the Liver Center at the Kirlin Clinic in Birmingham. I actually really like my doctor there. He takes the time to answer questions and seems very knowledgeable. According to him, I probably had this for a while, and then something kicked it into the acute phase. I have not been able to find a lot of information about this illness. Most of the sites I search seem to say the same thing. I am hoping that I can get some further information from this board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 On Mon, 12 Feb 2001 04:12:38 -0000, wrote: > I'm new at posting to these things. My name is W. I live in > Alabama and am going to the Liver Center at the Kirlin Clinic in > Birmingham. Thanks for answering. > > > > , My name is Debra and I also live in Alabama, Tuscaloosa and see Dr. Vanleuween at the Kirkland clinic. I am 43 have 4 kids son 24 with ITP, a daughter 21 with graves disease, and daughters 13 and 11. I also have a 6week old grandson that I keep every day. I was diagnoised with AIH in 3-00 and overlap PBC in 11-00. Keep posting things do get better. You have found a great group of people to share with. Debra your gentle friend God Bless _______________________________________________________ Send a cool gift with your E-Card http://www.bluemountain.com/giftcenter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 Hi , Harper gave me the names of some useful books. I just ordered them from Amazon myself. Maybe they can help you too. " Here are the books I spoke of. Others in the group also have recommended the first book, by Palmer. Both are under $20, available through Amazon.com if you can't find them locally. My child, now grown, has been ill for ten years, so I have some small idea of your pain. Palmer, M.D: " Guide to Hepatitis Liver Disease - What You Need to Know " ISBN 0-89529-922-4. Written with the needs of the non-medical user in mind, but loaded with information. J. Worman, M.D: " Liver Disorders Sourcebook " ISBN 0-7373-0090-6. This book has a more academic tone but is quite readable by non-professionals. " Hope you had a great weekend. Debbie > [Original Message] > From: <rlwatson2@...> > < > > Date: 2/11/01 11:18:27 PM > Subject: [ ] Re: (unknown) > > Thanks for replying, Debbie. I am new to posting to message > boards. > My name is W. - I live in Huntsville, Alabama, but am going > to > the Liver Center at the Kirlin Clinic in Birmingham. I actually > really like my doctor there. He takes the time to answer questions > and seems very knowledgeable. > > According to him, I probably had this for a while, and then > something > kicked it into the acute phase. > > I have not been able to find a lot of information about this > illness. Most of the sites I search seem to say the same thing. I > am hoping that I can get some further information from this board. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 *thowing snowball at Hope* sure lady... rub it in lol On your mold question...have that hubby of your build you a pusher for the soap. A round piece of wood slightly smaller than the inside of the PVC pipe and connect it to a piece of broom handle, then you can push the soap out. hehehehe my hubby is now the offical Thistle Meadow Soaps Soap Pusher-Outer! I have a heck of a time pushing that soap out...I have to stand on a chair to get enough leverage. Terri (unknown) Hey everybody !!! It's me Hope again, back from the dead !! Been reading all ya'll's e mails about the winds and ice and I have decided that ya'll REALLY need to come to my house for the soap weekend. It has been a sweet high 60 or low 70 here !!! I have had to turn on the AC once and been keeping the windows open ALL the time !! Yea yea yea, I know what you're all thinking, SHUT UP !!! It's nice right now, but pretty soon when it's 80 with a heat index of 95 and 100% humidity, ya'll can remind me of that too !!! Anyway, just wanted ya'll to know that I made an order the other day with a company called Holly Hobby ( www.hollyhobby.com ), and got my stuff with no problem . So, if any of you are interested, they seem to be legit. Also, I got some FO's. I am used to using EO's. I didn't realize that the FO's weren't as strong as the EO's, so how do I make sure that I get enough to have a strong enough scent ?? Also, I need somebody to give me the particulars on a PVC pipe mold. I know about putting a cap on the end, but how in the world am I gonna get that stuff out of there ? Lord have mercy, I can't imagine how to do it. And Terri, I need you to give me the scoop on how to do the loofah things. Can I stick it down in a PVC pipe ? Or how is it you wrap it ? Got to get some done, got some folks wanting them. Well, got to go, Hollar at you later !!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 rlwatson2@... wrote: > I'm new at posting to these things. My name is W. I live in > Alabama and am going to the Liver Center at the Kirlin Clinic in > Birmingham. Thanks for answering. > > > > > > Dear rlwatson -- if you will give us a name to call you by, > responses will be > > easier. I hope life gets a little more comfortable for you soon. > Remember, > > if you don't take care of yourself now, and insist that others help > you take > > care of yourself now, you won't be able to take care of your family > and your > > job properly later. Naturally, your family wants to think that > you're > > invincible; perhaps you have to help them see reality, > uncomfortable though > > it may be at first. Best wishes. > > Harper > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 I have coeliac disease (wheat intolerance) and have had for 26yrs. I alsp have PA , GP and Rhuemy know this but have never mentioned a connection Sheryn Australia kevin janega wrote: > hello everyone i am new here i was curious to know if anyone has ever heard > mention that P and PA could be the result of food allergies and/or diet > related in general. i went to a homeopath who suggested there might be a > corelation between diet and PA. my rheumatologist emphatically denies any > such possibility, but i swear my PA acts up if i eat ribs. the homeopath > suggested refraining from dairy and wheat for a month or two. any input > here? > kevin janega > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Hi , I strongly agree with you that food effects us. Whenever I have dairy, my fingers which have the PA swell up. I also have eliminated red meat and have added lots of fresh fruits and vegetables to my diet. I think you are definetly on the right track with finding outwhich foods affect you. If you read articles about arthritis it will tell you to stay away from red meat, dairy products and rich foods. I look at it this way, its worth a try, and if it helps, the better off we are. Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Sure thing. I try to do extra cardio myself as I have about 3 tons of fat to get rid of. heheheh. Just remember, its very important to do your HIIT cardio or weight training before you do the extra stuff so that the really vital exercises don't suffer. Tina *********** REPLY SEPARATOR *********** On 2/13/01 at 9:59 PM Heidi Calcaterra wrote: >Tina, >thank you so much for your advice!!!!! I look forward to doing the extra, >even if it's just moderate. Thanks again!!!!! >Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 it seems to be a recurring theme with the dairy. i have heard from three or four people out of the 7 who replied who have issues with dairy. it amazes me nobody is doing research in this regard. the rheumatologists refuse to see a connection. i can't remember how much detail i went into on my posted message but i attended a seminar by a homeopathic chiropractor who discussed the possibility that a long time allergy to dairy suppressed by years of forced consumption can cause a sort of internal bowel infection that causes your immune system to over react. i am simplifying this but it makes sense. other issues include ear infections and other things like susceptibility to colds and flu. it is interesting to see how other people react to this info who have PA. i appreciate your input this week is the first time i have used the internet to contact other people who are afflicted. it is nice to know i am not alone. kevin janega ottawa, canada >From: ediemosback@... >Reply- > >Subject: Re: [ ] (unknown) >Date: Tue, 13 Feb 2001 19:17:52 EST > >Hi , > >I strongly agree with you that food effects us. Whenever I have dairy, my >fingers which have the PA swell up. I also have eliminated red meat and >have >added lots of fresh fruits and vegetables to my diet. I think you are >definetly on the right track with finding outwhich foods affect you. If >you >read articles about arthritis it will tell you to stay away from red meat, >dairy products and rich foods. I look at it this way, its worth a try, and >if >it helps, the better off we are. Good luck > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 In a message dated 02/14/2001 2:19:47 PM Eastern Standard Time, kjanega@... writes: << a long time allergy to dairy suppressed by years of forced consumption can cause a sort of internal bowel infection that causes your immune system to over react >> Hi - I don't know if it is specifically related to dairy, but there has been quite a bit of discussion on here regarding linking irritable bowel disease to PA as well. Some seem to feel that IBS is also a type of autoimmune disorder. I always chalked my nasty colon up to the drugs, but who knows?? Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Hi Nicky, I am new to this too. My son 2.5 was just diagnosed with verbal dyspraxia. He also did no babbling until maybe 20 months. He also could say mom mom and da and would never call us by that name. Once he was in speech therapy he began to call us by those names when he was about 2 years. I have heard, Oh he's fine, they all talk at different ages etc......DO NOT listen to anyone. I have had him evaluated a ton of times. his receptive is always advanced and he expressive is severly delayed. Has your childs hearing been checked ???? That was my 1st step, he was fine. My advice is to get him evaluated by a speech pathologist who is familiar with this disorder. I have also been told to have him seen by a neurodevelopmental pediatrician for an evaluation too. I don't know if any of this is helpful, as I said I am new to this and i know what you are going through. These dr's associated with apraxia and dyspraxia are hard to find. I am finding a few in NY but i don't know where you are located. It is better to get an evaluation now cause if it is a disorder it can be helped and if it is not, atleast you know.Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Hi Nicky welcome to the group. I have only been here a week or so also and already I have learned so much and feel supported. I can't diagnose for you but your daughter has many of the signs. My tip for you to help cut down on the frustration is signing (sign language) We went to the library and got a dictionary right away that shows a picture of each word. We learned and taught the family some starter words like " more " , " come " , " cracker " , " all done " Amazing how simple words can go so far. It is wonderful you have her in so many activities. All that is a great help. Do you have an Early Intervention program there? (Birth through three years?) Check it out. They are wonderful at assessing and hooking your child up to the apprpriate needs. Good luck to you. Hugs and check back often Gloria WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2001 Report Share Posted February 16, 2001 thanks for your input. her hearing is fine. I am in Michigan. Nicky Quote Link to comment Share on other sites More sharing options...
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