Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 In a message dated 1/26/01 7:46:12 AM Eastern Standard Time, okieleah@... writes: << http://www.news-4-you.com >> Leah, Any idea how much this costs? Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 In a message dated 1/28/01 7:05:52 PM Eastern Standard Time, cdautah1@... writes: << http://eas.com/q-a/answers.asp?QuestionID=9144 >> THANKS for the information. I have almost finished my 1st challenge and will be doing a 2nd challenge. I have been wondering what I should be doing after I get to my final weight and size. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 jaime, this Q & A might help you feel more comfortable about whether or not BFL will help you reach your goals. http://eas.com/q-a/answers.asp?QuestionID=9144 Cheryl C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 Bob- Sounds interesting. I'd never heard of antiobiotic therapy until it was brought up (by you?) a few weeks ago. I'm interested in reading more about it. Will check out the site you recommended. I'm sure everybody would appreciate any additional information you discover about it. I'm not sure I understand the mechanism by which it is supposed to work. Also, don't people build up tolerances to antibiotics so that they become less effective? Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 Hi Bob Sorry you're not getting much response. I don't know much about it myself, but will check out the things you mentioned. Our daughter is 6, with systemic (Still's) also. I would be glad of anything that might help reduce her need for prednisone and all the other stuff. Thanks for the info. I just didn't know anything to say. My awareness of this type of therapy is extremely minimal, I'll try to remedy that! Lynn (unknown) Hey guys, I've posted a couple of times re:antibiotic therapy and haven't gotten one response. I don't know if it is because nobody knows about it, or if you consider it an ineffective therapy. I visit other RA sites and people rave about the results they get, how they dropped or eliminated dmards and steroids from their regimen. I've heard about significant improvement and remission while decreasing exposure to steroidal side effects. The body doesn't build up resistance to the antibiotic unlike pred etc. There are virtually no side effects and can be rx'd inconjunction with traditional meds....As the antibiotic takes hold, the levels of traditional meds drop and may very well not be needed at all. If this sounds interesting to you,,,why not check out www.roadback.org and you may also want to pick up the book " the new arthritis breakthrough " by Henry Scammell. I'm not promoting this therapy, though i am having a consultation for my daughter (8yrs. old/stills). Check out the site, read the book. Lets talk about it! Traditional meds have saved my daughters joints and prevented damage to organs and very likely saved her life, but we are on a progression to stronger and stronger medicine, just to maintain her current status. Where will it stop? Will it stop? and at what expense to her overall health? I would like to hear what you guys think of this therapy! Hope to hear from you! Bob For links to websites with JRA info please visit: http://www.geocities.com/Heartland/Village/8414/Links.html To manage your subscription settings, visit: subscribe/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 Bob, I had replied to your original post, but I guess it didn't show up. I know an elderly lady (in her early 80's) that had antibiotic therapy for Rheumatoid Arthritis years ago (when it was really radical), and she swears by it. Also, interestingly enough, our 4 year old has only been fever free once in her life when she was on IV antibiotics for 2 weeks solid followed by 2 months of oral antibiotics. It put her fever free for 4 months. Then they came back with a vengence. ????? Oh well. Let us know what you find out. I know it has been tried and I also know it has been very controversial. The elderly lady that I know has been in remission for years. Angie (unknown) >Hey guys, I've posted a couple of times re:antibiotic therapy and >haven't gotten one response. I don't know if it is because nobody >knows about it, or if you consider it an ineffective therapy. I >visit other RA sites and people rave about the results they get, how >they dropped or eliminated dmards and steroids from their regimen. > >I've heard about significant improvement and remission while >decreasing exposure to steroidal side effects. The body doesn't >build up resistance to the antibiotic unlike pred etc. There are >virtually no side effects and can be rx'd inconjunction with >traditional meds....As the antibiotic takes hold, the levels of >traditional meds drop and may very well not be needed at all. > >If this sounds interesting to you,,,why not check out >www.roadback.org and you may also want to pick up the book " the new >arthritis breakthrough " by Henry Scammell. I'm not promoting this >therapy, though i am having a consultation for my daughter (8yrs. >old/stills). Check out the site, read the book. Lets talk about it! > >Traditional meds have saved my daughters joints and prevented damage >to organs and very likely saved her life, but we are on a progression >to stronger and stronger medicine, just to maintain her current >status. Where will it stop? Will it stop? and at what expense to her >overall health? I would like to hear what you guys think of this >therapy! > >Hope to hear from you! > >Bob > > > >For links to websites with JRA info please visit: >http://www.geocities.com/Heartland/Village/8414/Links.html > >To manage your subscription settings, visit: >subscribe/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 hi bob, i have nevr tried this therapy. i am allergic to one class of antibiotic (bactrum, biaxin, etc). also, and please dont be offended, but every time and i mean EVERY time i take any kind of antibiotic for any reason, a yeast infection follows requiring more antibiotics. women know that some of them cause yeast infections anyway, but in my case, its every time. i dont if its because of immune system functions or what, but i know there are several other young ladies on this list that would worry about the same thing. sorry to be disgusting, but it happens to me and could very well happen to these toher young ladies. my apologies, brandy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 > hi bob, i have nevr tried this therapy. i am allergic to one class of > antibiotic (bactrum, biaxin, etc). also, and please dont be offended, but > every time and i mean EVERY time i take any kind of antibiotic for any > reason, a yeast infection follows requiring more antibiotics. women know > that some of them cause yeast infections anyway, but in my case, its every > time. i dont if its because of immune system functions or what, but i know > there are several other young ladies on this list that would worry about the > same thing. sorry to be disgusting, but it happens to me and could very > well happen to these toher young ladies. It is not just women, men can also have the same overgrowth of yeast. The issues with anitbiotis are that most of them are broad spectrum in that they " kill " the good and the bad. They do not differentiate. So, they kill the bacteria that would otherwise keep the yeast under control. Some people are more suseptible, like you. The issues with long term antibiotic use is that any person should also have a probiotic regimen added to their daily diet. I think that you have the same negative issues regarding long term pred use or long term anitbiotic use or long term nsaid's. Out of all of them MO (at least for my dd) would be to skip the ABX. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 In a message dated 1/30/01 2:47:06 PM Pacific Standard Time, Chan_lace_@... writes: my 21 yo has me babysitting everyday which is very tiring. Debra, remember that your big job is to take care of yourself. You can't help your family if you become incapacitated from becoming too tired. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 In a message dated 1/30/01 3:34:52 PM Pacific Standard Time, ccmcphe@... writes: The second best thing I did was have her go to some doctor appointments with me, so that she had the opportunity to ask questions to the doctor, this really helped her understand the disease, and what to expect from it. So basically, I guess I'm saying is get your husband and kids involved, and this way hopefully they will understand what you are going through. -Clyde I haven't seen my liverdoc since I was diagnosed in May (AIH). At that appointment, I said that my husband was in the waiting room and got a scowl in response. I thought perhaps (remember, I was quite ill and not thinking clearly) that it was bad form to have a second person in the examining room and didn't pursue my wish to have him with me. I've much regretted my wimping out. For one thing, I had a hard time remembering everything the doctor said. I have another appointment Monday, and my husband will definitely be with me, even though it meant his changing plane reservations. Our health circumstances greatly affect all our families, and we need whatever they can offer, just as we hope to offer them support in other ways and at other times. (Nice news is that I saw my gp this week. She said that back in May she wasn't optimistic about my chances -- said "I thought you were a goner" -- but that she thinks I'm clearly doing well now.) Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 , Have you tried eating yogurt while taking antibiotics? I usually eat yogurt when on it. I take acidophlis (no sure if I spelled it right) to help with keeping the yeast away. These two works for me and Zhondrese too. Just about all antibiotics causes yeast infections. There are some other things that can be use while on antibiotics, but you just gotta find out what works for you. I'll be the first to say I hate antibiotics too for that same reason, but when I need them I buy all the yogurt I can to help me out. I never thought I would eat yogurt, because I'm a very picky eater. Yes it's yucky, but it works. Ywellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 On Tue, 30 Jan 2001 13:52:07 -0500, wrote: > Hi: > > This is the first time I have ever belonged to a support group. I have read some of > your letters and find them very helpful. > > Hi. I was dx with AIH last March and overlap PBC in December. I am 43 also with 4 kids 24,21,13,11,and a 1 month old grandson. I am not married but my family does atleast try to understand. I have the same problem with the youngest ones worring but my 21 yo has me babysitting everyday which is very tiring. We are all here to help in anyway we can. Stay well. Debra your gentle friend God Bless _______________________________________________________ Send a cool gift with your E-Card http://www.bluemountain.com/giftcenter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Hi: I know this is from a man's point of view, but I have had my wife involved throughout my diagnosis, and she continuities to be involved throughout my treatment. The best thing that happened to me was basically this group and her reading the posts from the other people that belong to this group that have the same disease. Reading about all the bad times (and good times) that others are going through, (the tests, the biopsy's, the doctor's visits, the hospital visits, the hurting, the laughing) and relating them to me. The second best thing I did was have her go to some doctor appointments with me, so that she had the opportunity to ask questions to the doctor, this really helped her understand the disease, and what to expect from it. So basically, I guess I'm saying is get your husband and kids involved, and this way hopefully they will understand what you are going through. -Clyde -- =========================================================+ Help save a life, become an organ and tissue donor today.| =========================================================+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Hi ...It might help to remember the reasons you origionally chose not to vaccinate in the first place. School vaccinations can be avoided (with or without some hassle), and it would seem a shame (in my opinion) to subject your daughter to the toxins and ill health that could follow the vax's when you have come so far already in trying to assure her continued health... Sharon, Quakertown PA (unknown) Hi Everyone, I just want to introduce myself. My name is and I have four children 17, 14, almost 5 and ready for school in the fall and 3. My first two were fully vaccinated but I have chosen not to vaccinate my youngest two. With my almost five yr old ready to start school in the fall I have found myself waivering back and forth in my decision whether or not to vaccinate. I hope by joining this list I will get the info and support I need to stand firm in the decision I have made not to vaccinate. Work At Home on-line! Duplicatable system! http://teamideals.com/show.cgi?id=lisasheldon & page=main3.ht Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 dan lemay wrote: > Hi: > > This is the first time I have ever belonged to a support group. I have read some of > your letters and find them very helpful. I was diagnosed with AIH about 3 years ago > I know I have had it much longer though. I find it very hard to talk to my family about > it and especially how I feel and how scared I get at times. I am 43 and have 3 > children 19, 12 and ll. They always worry about me especially if they find out I have > been at the doctors. The problem is they are so used to me being able to do everything > that they find it hard when I have to slow down. As for my husband I don't think he > realizes the severity of this disease and is not understanding at all. I think if I had > more support from him I could deal with this easier. I am hoping that by joining > this support group that it will give me the support I lack. Thanks for everything. > > Configure this line on the > Email Preferences screen > ______________________________________________ > > Get your FREE SkyBiz.com email at www.skybizworld.com ! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 At 05:17 PM 01/30/2001 -0800, you wrote: > Hi Everyone, > the info and support I need to stand firm in the decision I have made >not to vaccinate. > > Welcome ! Where do you live? You'll find lots of support here! Sheri co-moderator -------------------------------------------------------- Sheri Nakken, R.N., MA Vaccination Information & Choice Network, Nevada City CA & UK 530-478-1242 Voicemail http://www.nccn.net/~wwithin/vaccine.htm " All that is necessary for the triumph of evil is that good men ( & women) do nothing " ...Edmund Burke ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Harper: I was wondering something. I have to see my heptologist once a month, plus once a month blood work, is this abnormal, or good? -Clyde -- =========================================================+ Help save a life, become an organ and tissue donor today.| =========================================================+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 CLYDE, I just read your post and i have my labs done weekly so feel lucky my veins are really starting to get sclorosed.. They do that tp keep an eye on liver functions and to watch for what the reaction is as he lowers my pred. Hope that helps. heidi --- C C McPherson <ccmcphe@...> wrote: > Harper: > I was wondering something. I have to see my > heptologist once a month, > plus once a month blood work, is this abnormal, > or good? > > -Clyde > -- > =========================================================+ > Help save a life, become an organ and tissue > donor today.| > =========================================================+ > __________________________________________________ Get personalized email addresses from - only $35 a year! http://personal.mail./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Heidi...what do you mean by " my veins are really starting to get sclorosed " ? Jerry CLYDE, I just read your post and i have my labs done weekly so feel lucky my veins are really starting to get sclorosed.. They do that tp keep an eye on liver functions and to watch for what the reaction is as he lowers my pred. Hope that helps. heidi --- C C McPherson <ccmcphe@...> wrote: > Harper: > I was wondering something. I have to see my > heptologist once a month, > plus once a month blood work, is this abnormal, > or good? > > -Clyde > -- > =========================================================+ > Help save a life, become an organ and tissue > donor today.| > =========================================================+ > __________________________________________________ Get personalized email addresses from - only $35 a year! http://personal.mail./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 JERRY, When they put the needle in my veins are getting hard from scars. i have switched to my hand veins for awhile to give my arms a break Heidi --- gefox@... wrote: > Heidi...what do you mean by " my veins are > really starting to get > sclorosed " ? > Jerry > > > ATTACHMENT part 2 message/rfc822 > > From: HEIDI SCOTT <koolme16602@...> > Date: Wed, 31 Jan 2001 13:04:59 -0800 (PST) > Reply-to: > Subject: Re: [ ] (unknown) > > CLYDE, > I just read your post and i have my labs done > weekly so feel lucky my veins are really > starting > to get sclorosed.. They do that tp keep an eye > on > liver functions and to watch for what the > reaction is as he lowers my pred. Hope that > helps. > heidi > --- C C McPherson <ccmcphe@...> wrote: > > Harper: > > I was wondering something. I have to see my > > heptologist once a month, > > plus once a month blood work, is this > abnormal, > > or good? > > > > -Clyde > > -- > > > =========================================================+ > > Help save a life, become an organ and tissue > > donor today.| > > > =========================================================+ > > > > > __________________________________________________ > Get personalized email addresses from > Mail - only $35 > a year! http://personal.mail./ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Heidi...... Oh... Might you mean sclErosing? ..... I had that trouble myself , too much scar tissue to get a needle in some of my veins. They do a procedure called sclerotherapy for esophageal varices where they inject a chemical agent during endoscopy that hardens the ends of the veins to stop thier bleeding...sometimes they " sclerose " around the veins to keep pressure on them. I had maybe a dozen or so done. It is also a treatment for varicose veins. Jerry. JERRY, When they put the needle in my veins are getting hard from scars. i have switched to my hand veins for awhile to give my arms a break Heidi --- gefox@... wrote: > Heidi...what do you mean by " my veins are > really starting to get > sclorosed " ? > Jerry > > > ATTACHMENT part 2 message/rfc822 > > From: HEIDI SCOTT <koolme16602@...> > Date: Wed, 31 Jan 2001 13:04:59 -0800 (PST) > Reply-to: > Subject: Re: [ ] (unknown) > > CLYDE, > I just read your post and i have my labs done > weekly so feel lucky my veins are really > starting > to get sclorosed.. They do that tp keep an eye > on > liver functions and to watch for what the > reaction is as he lowers my pred. Hope that > helps. > heidi > --- C C McPherson <ccmcphe@...> wrote: > > Harper: > > I was wondering something. I have to see my > > heptologist once a month, > > plus once a month blood work, is this > abnormal, > > or good? > > > > -Clyde > > -- > > > =========================================================+ > > Help save a life, become an organ and tissue > > donor today.| > > > =========================================================+ > > > > > __________________________________________________ > Get personalized email addresses from > Mail - only $35 > a year! http://personal.mail./ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 JERRY, Hedi was one of those blood suckers before she got ill, as im sure she wrotte back in another post. and now the viens are scared. i have it too from ivs christi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2001 Report Share Posted February 3, 2001 dan lemay wrote: > Hi: > > This is the first time I have ever belonged to a support group. I have read some of > your letters and find them very helpful. I was diagnosed with AIH about 3 years ago > I know I have had it much longer though. I find it very hard to talk to my family about > it and especially how I feel and how scared I get at times. I am 43 and have 3 > children 19, 12 and ll. They always worry about me especially if they find out I have > been at the doctors. The problem is they are so used to me being able to do everything > that they find it hard when I have to slow down. As for my husband I don't think he > realizes the severity of this disease and is not understanding at all. I think if I had > more support from him I could deal with this easier. I am hoping that by joining > this support group that it will give me the support I lack. Thanks for everything. > > Configure this line on the > Email Preferences screen > ______________________________________________ > > Get your FREE SkyBiz.com email at www.skybizworld.com ! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 Jan, I have not received anything from that group either and am having nothing but problems with all the others. Messages do not get to me and my posts don't get posted. A lot of others complained about the same thing. Some of us wrote to and vented. I doubt that it will help but give it a try. Christel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 Hello? Is anyone there? (This is from Jan Bolen) I haven't received much from the Dr. group lately, and when finely, I received a post, this is all it said... --- ATypist4God@... wrote: > > > __________________________________________________ Get personalized email addresses from - only $35 a year! http://personal.mail./ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.