Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Dear Matt, I always tell my students ( I am known for saying this) that there is alsys more than one way to skin a cat, BUT I do not know why anyone would want to skin a cat! (I also love cats! so not hate mail please!) So thank you for sharing how you got this answer a 'different' way. Jeanetta Mastron CPhT BS Founder/Owner > > > > > > > please solve this problem. It is very difficult. The answer is $14.20. I > > just want to know how > > to solve it. > > > > A compounded prescription requires using 12 capsules costing $30 per 50 > > capsules and 120gm of an > > ointment base costing $7.50 per pound. If a $5 dispensing fee is including, > > how much should the patient be > > charged? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 contact Micheal Payne LivingWellToday and run Zyto ,we spent 5 years guessing even with the numerous tests we had run,it was our crystal ball,we finally have answers In relation to feeling hungry,look into Nutriiveda, pursuit of research, health drink totally 100% food and will stop the food cravings,least way it did for us,our so was constanly looking for food Good luck On Wed, Mar 24, 2010 at 4:46 PM, Sable Mitt <sablepawz@...> wrote: > > > Hello, thank you everyone who has replied. I'm trying to keep up ^^ Alright > so I'm hearing that a SPECT might not have to be done. If insurance won't > cover it I can't do it anyway considering my current financial situation. > I will give more information that might be useful. > I have had the rast allergy test done and all was clear. The only things I > notice a difference with him is sugar, he has massive highs and lows. > Splenda, he wets himself. CoQ10 and Serotonin make him fly through the roof. > 15 mgs of CoQ10 had us up for 2 days o.o I hear some of the allergies won't > show up, that makes sense to me. I have him on FloraMore probiotics. I can > open the cap and mix in water. Maybe someone has info on this...He's > overweight, very active but doesn't understand the concept of full. I also > know that when he hurts whether it be his tummy or head or back he says they > are empty and wants food. When I start to get anemic it's uncanny how I > crave meat. I think he is craving something he needs. Perhaps if my first > steps would be diet and anti fungal.. > > There is a Trader Joe's not too far from us! I have heard about the Aids > and the virus and what not. I believe it. I got a flu shot a few years ago > and have been in excruciating pain ever since. Diagnosed Fibro. Which I > think is a blanket term yet again oh sorry we don't know good luck with > that. Reading up on CVS now that sounds more like it for me. I've lost my > train of though so I'll just post. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 Dear Jeff, I hope you will get a thorough check up by both a neurosurgeon and an orthopedist who can be found on or through the medical advisory board on Little People of America¹s website. Just google for it. This neck condition may or may not be serious. Doctors without experience in achondroplasia don¹t have the information that you need. I am considerably older than you and have neck issues that have been checked out. I have a variety of pillows (at least 5) that I use according to need at that time. Jacki Clipsham On 4/29/10 3:42 PM, " Jeff " <jefferybrooks1@...> wrote: > > > > > > I am a 50 year old Acon with some discomfort (not acute pain) in my neck > around the base of my skull. If anyone has had similar issues, or knows of > someone with this experience, please reply with any info you may have or have > access to. > > I would also like to know what options might be available. (Surgery; Physical > Therapy; Chioropractic) > > I am approximately 25-30 pounds overweight, and it is my understanding this > could be a contributing factor. > > Thank you for taking the time to read this, and I deeply appreciate any > feedback you may have. > > Jeff > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 RandyI was very fortunate that for some reason I could tolerate treatment and did so very well. So, it was shocking that end of the 48 weeks back in 2005, my tests came back as a Non-Responder. However, my specialist assured me and so did the HepC nurses, that the treatment had probably at least given my liver a rest. When I began in 2004, I was already Stage 3 and bridging fibrosis. I just felt that there was no where to turn, since there was nothing else even coming down the pipe then. Of course, eventually we started to hear about the combo.By early 2009, when I was asked to participate in the Clinical Trial for that combo, I actually had to think about it. I figured that the combo would be marketed within two years and that perhaps I should work that much longer before treatment again. Well, I'm here to tell you, gratefully I was encouraged to accept. So another liver biopsy and guess what??? Had already slipped over to Stage 4 and early cirrhosis!! The particular trial that I was on, was for people who had showed promise the first go round; but, hadn't quite made it. Well, it appears today and has since at least last Oct. that I am SVR!! You are right about the joy of attaining that level... Of course, haven't really had time to celebrate because of the liver cancer surgery already; but, one of these days soon - I will be able go to the beach and yell out across the water, how truly grateful I am today!!!By the way, no where along my path, have I ever been told that the cirrhosis could hinder doing the treatment. We have hope for as long as cirrhosis does not eat up too much of the liver, leaving it too difficult for the rest to do it's job. However, how will we ever know when the cirrhosis is too much???Gloria To All,To add to that last rambling dialogue I posted. Even after the horrors I had in treatment I would do it again. And if I knew before hand that it would not give me a Sustained Virologic Response (SVR) I would do it again. Here's why. In 2001 I first tried treatment (TX) and could not finish. The in 2004 I tried again and got to nine months and had to be pulled off again. This time because I was getting extremely anemic and I had started using pain pills to get by. When the doctors found out (I told them) they took me off. Needless to say I was hopping mad. My viral load was at 1500 and falling at the time, so close. My first biopsy in 2000 showed Stage 2 fibrosis and with no bridging necrosis, in other words MILD fibrosis. After my TX in 2004 I asked the doc for another biopsy and he obliged. The result was NO fibrosis at all, stage 0. Now, it is possible that the specimen they retrieved in 2000 just happened to have more damage, and the one in 2004 just happened to have less or none. I guess that IS possible. However I believe that treatment allowed my liver to repair itself while the Combo TX was holding the virus at bay. This is one of the reasons they sometimes use TX on cirrhotic patients to extend their lives. TX does help the liver get a break from the onslaught of the virus.I would just like to let everyone know that treatment is an iffy, some stats say 60/40 bet at best. Is this enough to persuade one to try or not try TX? Of course. But having an SVR is not the only reason to try TX. It does have other good "side." I know I'm rambling again. But some of the early research on Interferon TX was to try it as means of "teaching" the body to fight the virus itself. The theory was that if you showed the immune system how to use interferon more eficiently it would retain that knowledge after TX was stopped. I will try to find that info, unless someone else post's it first. God bless you all and keep up the fight,Randy O Website-- SuncoastHepCFriends .OrgForum -- Suncoast HepC Friends Forum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 And Randy, don't forget that if you manage to be in that 40% that attains SVR, its a wonderful thing. Don't let the odds fool you. They told me I had less than a 30% chance of beating this thing and even less of a chance of finishing the treatment because of my history with anemia. Guess what? I got really anemic, 3 times, nothing that a blood transfusion didn't handle, and the fact that they told me I'd quit on my own made me hold out til the end. Yes, I was popping Vicodin like skittles and the doctors knew it and kept writing the scripts, but I got thru treatment and am still SVR. My chances were horrible but when it works... it's all good brother.TeriFrom: Randy <randyowe@...>HepCingles2 ; Sent: Tue, May 4, 2010 10:26:45 PMSubject: [ ] (unknown) To All,To add to that last rambling dialogue I posted. Even after the horrors I had in treatment I would do it again. And if I knew before hand that it would not give me a Sustained Virologic Response (SVR) I would do it again. Here's why. In 2001 I first tried treatment (TX) and could not finish. The in 2004 I tried again and got to nine months and had to be pulled off again. This time because I was getting extremely anemic and I had started using pain pills to get by. When the doctors found out (I told them) they took me off. Needless to say I was hopping mad. My viral load was at 1500 and falling at the time, so close. My first biopsy in 2000 showed Stage 2 fibrosis and with no bridging necrosis, in other words MILD fibrosis. After my TX in 2004 I asked the doc for another biopsy and he obliged. The result was NO fibrosis at all, stage 0. Now, it is possible that the specimen they retrieved in 2000 just happened to have more damage, and the one in 2004 just happened to have less or none. I guess that IS possible. However I believe that treatment allowed my liver to repair itself while the Combo TX was holding the virus at bay. This is one of the reasons they sometimes use TX on cirrhotic patients to extend their lives. TX does help the liver get a break from the onslaught of the virus.I would just like to let everyone know that treatment is an iffy, some stats say 60/40 bet at best. Is this enough to persuade one to try or not try TX? Of course. But having an SVR is not the only reason to try TX. It does have other good "side." I know I'm rambling again. But some of the early research on Interferon TX was to try it as means of "teaching" the body to fight the virus itself. The theory was that if you showed the immune system how to use interferon more eficiently it would retain that knowledge after TX was stopped. I will try to find that info, unless someone else post's it first. God bless you all and keep up the fight,Randy O Website-- SuncoastHepCFriends .OrgForum -- Suncoast HepC Friends Forum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 Ya gotta love that one for advice - right??? Well the doctors would not write me scripts for pain or even sleep. To this day I believe I would have finished treatment if they had. They suggested I go on methadone. Randy O Website-- SuncoastHepCFriends .OrgForum -- Suncoast HepC Friends ForumFrom: Teri Gottlieb <theresagottlieb> Sent: Wed, May 5, 2010 4:13:40 AMSubject: Re: [ ] (unknown) And Randy, don't forget that if you manage to be in that 40% that attains SVR, its a wonderful thing. Don't let the odds fool you. They told me I had less than a 30% chance of beating this thing and even less of a chance of finishing the treatment because of my history with anemia. Guess what? I got really anemic, 3 times, nothing that a blood transfusion didn't handle, and the fact that they told me I'd quit on my own made me hold out til the end. Yes, I was popping Vicodin like skittles and the doctors knew it and kept writing the scripts, but I got thru treatment and am still SVR. My chances were horrible but when it works... it's all good brother.TeriFrom: Randy <randyowe (DOT) com>HepCingles2; Sent: Tue, May 4, 2010 10:26:45 PMSubject: [ ] (unknown) To All,To add to that last rambling dialogue I posted. Even after the horrors I had in treatment I would do it again. And if I knew before hand that it would not give me a Sustained Virologic Response (SVR) I would do it again. Here's why. In 2001 I first tried treatment (TX) and could not finish. The in 2004 I tried again and got to nine months and had to be pulled off again. This time because I was getting extremely anemic and I had started using pain pills to get by. When the doctors found out (I told them) they took me off. Needless to say I was hopping mad. My viral load was at 1500 and falling at the time, so close. My first biopsy in 2000 showed Stage 2 fibrosis and with no bridging necrosis, in other words MILD fibrosis. After my TX in 2004 I asked the doc for another biopsy and he obliged. The result was NO fibrosis at all, stage 0. Now, it is possible that the specimen they retrieved in 2000 just happened to have more damage, and the one in 2004 just happened to have less or none. I guess that IS possible. However I believe that treatment allowed my liver to repair itself while the Combo TX was holding the virus at bay. This is one of the reasons they sometimes use TX on cirrhotic patients to extend their lives. TX does help the liver get a break from the onslaught of the virus.I would just like to let everyone know that treatment is an iffy, some stats say 60/40 bet at best. Is this enough to persuade one to try or not try TX? Of course. But having an SVR is not the only reason to try TX. It does have other good "side." I know I'm rambling again. But some of the early research on Interferon TX was to try it as means of "teaching" the body to fight the virus itself. The theory was that if you showed the immune system how to use interferon more eficiently it would retain that knowledge after TX was stopped. I will try to find that info, unless someone else post's it first. God bless you all and keep up the fight,Randy O Website-- SuncoastHepCFriends .OrgForum -- Suncoast HepC Friends Forum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Many times reflux is because of a hiatal hernia and Dr. A fixes those while he does your sleeve.On Sat, May 8, 2010 at 7:45 AM, Debbie Howerton <brdwtchr57@...> wrote: Has anyone with GERD(acid reflux) had a gastic sleeve. I am trying to decide if I should have the surgery. Thanks, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Many of us have Acid Reflux.....why would you worry about that? You should be more concerned about how do we like our sleeve? Is it working for us? So I have acid reflux, I take medication for it and I love being 105 pounds less of me! If that is all I have to live with and I am healthy and only take 10% of the medication that I used to take it is fabulous. I eat healthy, I exercise now and people don't recognize me something. This is the only weight loss that I would EVER consider and Dr. Aceves is the BEST and he is the only one that I would ever consider doing this surgery. So that is what I would consider. I speak from experience and I am thrilled with my new live. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Yep me and Dr. Aceves fixed mine with out any extra charge. I still have a little acid reflux, but nothing like before. Now tell me where in the US would a doctor who is going to do weight loss surgery fix your hernia? Not a chance, he would tell you that you will have to go to another surgeon for the hernia repair and only do the WLS. I say go for it! Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 I just had an upper endoscopy and i do not have a hiatal hernia. I was just wondering if anyone has the same problem I did and still have the gastric sleeve. Thanks, Deb From: Bipley <Bipley@...> Sent: Sat, May 8, 2010 10:09:09 AMSubject: Re: (unknown) Many times reflux is because of a hiatal hernia and Dr. A fixes those while he does your sleeve. On Sat, May 8, 2010 at 7:45 AM, Debbie Howerton <brdwtchr57 (DOT) com> wrote: Has anyone with GERD(acid reflux) had a gastic sleeve. I am trying to decide if I should have the surgery. Thanks, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 I do, i have mega severe reflux but it's not from the sleeve, it's from damage from the band.On Sat, May 8, 2010 at 4:49 PM, Debbie Howerton <brdwtchr57@...> wrote: I just had an upper endoscopy and i do not have a hiatal hernia. I was just wondering if anyone has the same problem I did and still have the gastric sleeve. Thanks, Deb\ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Hi June I was 39 when I had my only Cholesteatoma (to date!) removed by radical modified mastoidectomy. I also had a tympanoplasty and ossiculoplasty at the same time – the complete repair job. Since then, I’ve had no recurrence of Cholesteatoma diagnosed, but have had almost 10 years of problems – wet ear, infections, discharge, pain and deafness. I have regular microsuction carried out in the surgeon’s office in order to remove debris from perforations and any new growth. I am a BAHA user as I can’t wear my normal air-conducting aids as they encourage (if they don’t cause) more infection. Kazzy xx From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of June Sent: 10 May 2010 13:29 cholesteatoma Subject: (unknown) Hi , I have been diagnosed with a cholesteatoma on my right ear for a few years now and is doin to book my first operation in at the end of june, previous to that i have already had a tumour removed on the left side of my head, i am very worried because of the previous problems i have suffered because of this,when i have read some of the emails mails of cholesteatoma it doent seem to be a 1 of operation but a continuious problems relating in more operations, has anyone only had 1 operation with it being successful and wondered also about after flying or swimming. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 marchbh@... From: schibin <kuriachan4u@...> Sent: Mon, May 10, 2010 12:59:26 PMSubject: (unknown) does anybody know dr marc bohaiders email id Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Hi June, I was diagnosed with a cholesteatoma 20 years ago (I was 16 at the time). I had to have a new eardrum made and a new stapes bone made because of the damage. I did lose some hearing as well but never used an aid. Up until recently I didn't have any issues. I have been having some drainage lately with a foul odor and a lot of pain (even hurts to open my mouth at times). I saw an ENT and had a catscan done which showed no presence of a cholesteatoma...I wondered if this was going to be something that I was going to have to live with for the rest of my life because I am on my 3rd round of antibiotics and my ear is still very sore but has dried up it seems. It is a medical mystery to me. My surgeon told me it is important to remove the entire cholesteatoma or it can come back so he made sure he removed it completely. I have not had to have another surgery for my cholesteatoma. Thankfully. Best of luck to you. Jenni > > Hi June > > > > I was 39 when I had my only Cholesteatoma (to date!) removed by radical modified > mastoidectomy. I also had a tympanoplasty and ossiculoplasty at the same time - > the complete repair job. > > > > Since then, I've had no recurrence of Cholesteatoma diagnosed, but have had > almost 10 years of problems - wet ear, infections, discharge, pain and deafness. > I have regular microsuction carried out in the surgeon's office in order to > remove debris from perforations and any new growth. I am a BAHA user as I can't > wear my normal air-conducting aids as they encourage (if they don't cause) more > infection. > > > > Kazzy > > xx > > > > > > > > > > From: cholesteatoma [mailto:cholesteatoma ] On > Behalf Of June > Sent: 10 May 2010 13:29 > cholesteatoma > Subject: (unknown) > > > > > > Hi , > > I have been diagnosed with a cholesteatoma on my right ear for a few years now > and is doin to book my first operation in at the end of june, previous to that i > have already had a tumour removed on the left side of my head, i am very worried > because of the previous problems i have suffered because of this,when i have > read some of the emails mails of cholesteatoma it doent seem to be a 1 of > operation but a continuious problems relating in more operations, has anyone > only had 1 operation with it being successful and wondered also about after > flying or swimming. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 As a novice to all this and a scaredy cat....what's a BAHA? From: Kazzy <kazzy@...>Subject: RE: (unknown)cholesteatoma Date: Monday, May 10, 2010, 1:50 PM Hi June I was 39 when I had my only Cholesteatoma (to date!) removed by radical modified mastoidectomy. I also had a tympanoplasty and ossiculoplasty at the same time – the complete repair job. Since then, I’ve had no recurrence of Cholesteatoma diagnosed, but have had almost 10 years of problems – wet ear, infections, discharge, pain and deafness. I have regular microsuction carried out in the surgeon’s office in order to remove debris from perforations and any new growth. I am a BAHA user as I can’t wear my normal air-conducting aids as they encourage (if they don’t cause) more infection. Kazzy xx From: cholesteatoma [mailto:cholesteato magroups (DOT) com] On Behalf Of June Sent: 10 May 2010 13:29cholesteatomaSubject: (unknown) Hi , I have been diagnosed with a cholesteatoma on my right ear for a few years now and is doin to book my first operation in at the end of june, previous to that i have already had a tumour removed on the left side of my head, i am very worried because of the previous problems i have suffered because of this,when i have read some of the emails mails of cholesteatoma it doent seem to be a 1 of operation but a continuious problems relating in more operations, has anyone only had 1 operation with it being successful and wondered also about after flying or swimming. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Hi A BAHA is a Bone-Anchored Hearing Aid. It’s implanted into the skull as the patient is unable to wear the normal sort of hearing aids because they exacerbate the wetness and infections within the ears. In my opinion, they’re the best thing since sliced bread ;-) Kazzy From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of Jolliff Sent: 11 May 2010 01:29 cholesteatoma Subject: RE: (unknown) As a novice to all this and a scaredy cat....what's a BAHA? From: Kazzy <kazzy@...> Subject: RE: (unknown) cholesteatoma Date: Monday, May 10, 2010, 1:50 PM Hi June I was 39 when I had my only Cholesteatoma (to date!) removed by radical modified mastoidectomy. I also had a tympanoplasty and ossiculoplasty at the same time – the complete repair job. Since then, I’ve had no recurrence of Cholesteatoma diagnosed, but have had almost 10 years of problems – wet ear, infections, discharge, pain and deafness. I have regular microsuction carried out in the surgeon’s office in order to remove debris from perforations and any new growth. I am a BAHA user as I can’t wear my normal air-conducting aids as they encourage (if they don’t cause) more infection. Kazzy xx From: cholesteatoma [mailto:cholesteato magroups (DOT) com] On Behalf Of June Sent: 10 May 2010 13:29 cholesteatoma Subject: (unknown) Hi , I have been diagnosed with a cholesteatoma on my right ear for a few years now and is doin to book my first operation in at the end of june, previous to that i have already had a tumour removed on the left side of my head, i am very worried because of the previous problems i have suffered because of this,when i have read some of the emails mails of cholesteatoma it doent seem to be a 1 of operation but a continuious problems relating in more operations, has anyone only had 1 operation with it being successful and wondered also about after flying or swimming. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 Yes, LDN is used to modulate beta endorphins and achieve pregnancy. It's helped many infertile couples get pregnant, but I believe it is ill-advised for use during the pregnancy itself.JackieFrom: Bill Sigler <wesigler@...>Subject: [low dose naltrexone] (unknown)low dose naltrexone Date: Tuesday, May 18, 2010, 12:27 PM Dr. Hilgers in Omaha, Nebraska also has had success with LDN and infertility. He is at the Pope VI Institute: www.popepaulvi.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 you BELIEVE but who agrees? I'd love to see more and more brave mothers to be have awesome pregnancies and healthy babies without people's Beliefs saying whatever they want. where's your Curriculum Vitae ? [low dose naltrexone] (unknown)low dose naltrexone Date: Tuesday, May 18, 2010, 12:27 PM Dr. Hilgers in Omaha, Nebraska also has had success with LDN and infertility. He is at the Pope VI Institute: www.popepaulvi.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 My belief that LDN ill-advised in the event of pregnancy is based in the scientific evidence of the OGF/OGFr Axis. Not any research has been done into the effects of LDN on the developing fetus. And though there is anecdotal evidence provided by Dr. Boyle, I do not know, nor does he, what long term effects there may be and if they would be negative at some future time. He believes these babies are healthy, and they may look to be, but he cannot know if their cellular processes have been altered by mothers' LDN use or not. That would not be immediately obvious.This is not philosophical or religious belief of mine, but rather a fact of prudence in light of an aspect of knowledge. That's all.It's a sad but true fact that the powers that be could shut down our ability to get LDN.At present it is legal to possess in the US without prescription, but the law could be changed. There is a push to shut down compounding pharmacies, and Pharma itselfwould like to shut down our access to drugs from Canada and other source outside the US.Scientific evidence of the benefits of LDN would then be our only option. Even if it doesn't come to that, surely we would like to see scientific evidence of what we know is our experience on LDN. I know I would. One benefit of the science would be that millions upon millions of people would then benefit from LDN.Jackie From: Bill Sigler <wesigler@...>Subject: [low dose naltrexone] (unknown)low dose naltrexone Date: Tuesday, May 18, 2010, 12:27 PM Dr. Hilgers in Omaha, Nebraska also has had success with LDN and infertility. He is at the Pope VI Institute: www.popepaulvi.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 I have to weigh in on this slightly since I am using LDN and trying to become pregnant. The problem with stopping LDN while pregnant for most who use LDN is the fact that we use it to control our chronic illnesses, which for me is UC. If I get pregnant and go off LDN, then I run the huge risk of my UC flaring up, which happens a lot for UC people while pregnant. Then I am stuck with my body being in a very ill state, one that is even less conducive for pregnancy than if I were to be on LDN controlling my UC. That is a far more unhealthy state to be in and runs the huge risk of damage to the fetus along with a higher than normal chance of miscarriage and losing the baby altogether. Since there is no actual evidence of the claims you are making in regards to long term effect on a human body there is no way of knowing if anything at all would hurt in future or not, and since it is well documented that not everything crosses the placebo, or that the fetus and placebo have the ability to fight back all on its own, alla HIV mothers giving birth to perfectly healthy non-HIV babies, you cannot be sure using LDN in pregnancy is a bad thing. For IBD patients we are usually stuck having to use some sort of medicine to control our diseases. I know for fact that using some of the heavy IBD drugs like 6-MP, Asacol, Lialda, Humira and Remicade can in fact not only damage the fetus but are not allowed for nursing moms, or that moms who take the drugs being unable to nurse. I personally would rather stick to using LDN, nursing the child, which is such a hugely important thing to do for mother and child, and taking a chance that maybe or maybe not using LDN while pregnant will hurt in future. The most important thing to do when pregnant is for the mother to remain healthy so that the mother can get pregnant, carry the pregnancy, nourish the child and then give birth, all without incident. Running the risk of being ill with serious illness like IBD, and other illnesses LDN controls, to me, is a far scarier and damaging situation while pregnant. Using LDN would be a far better and safer overall option even based on your knowledge, because one cannot control nature and how it works, meaning that sometimes the human body, nature, fixes things or rights things all on their own, when healthy. But when mothers are unhealthy in the first place, using something like LDN, which is a far better option for people like me with IBD who don’t want to be on those heavy pharma drugs, it becomes almost the only option. On top of that you must remember that mother and child are two separate issues here. It is the fetus that is growing and whose cells are replicating, not the mother’s. It is the child growing that is doing all this, therefore I do not think you can claim that LDN would slow the rate of cell growth when it is a separate being inside the mother that is growing, replicating and forming. Yes, LDN may slow cells in the user, but the user is not the fetus. Not how I view it. You are correct that it is a serious issue, since there is not enough scientific evidence on either end, that is a concern and that is a choice. However sometimes there is no choice, and if the option is no pregnancy because of no LDN, because of being infertile, which itself is an abnormality, or running the risk of IBD damaging or miscarrying, then sometimes the options are the only solution. Besides, hate to say this, but no one can see into the future. Sometimes children die from being hit by buses in freak accidents, or like as happened in my school twice when I was in middle school, two kids died in car crashes and one in a boating accident, so they didn’t even get to live until they were 18. But giving birth to a child really is a freak of nature, considering how perfectly balanced everything has to be in a human body in order to get pregnant, keep it, and then give birth to a child. I would have to say using LDN sure will for me not be a second thought. That is something to also weigh in on heavily to add to your concerns. Because sometimes using a far lesser damaging drug like LDN is far safer than, like for IBD people, highly damaging pharma drugs. IBD people many times have no choice on having to take drugs, just like other serious chronic illnesses, and if we must take, then LDN to me would be the best option. Just my thoughts as a long time UC patient who has used and finds LDN far less damaging and a better option than big pharma that has damaged me in the past. And if I become pregnant, I will post how it all goes, long term and all ….Cathleen From: Bill Sigler <wesigler (DOT) com>Subject: [low dose naltrexone] (unknown)low dose naltrexoneDate: Tuesday, May 18, 2010, 12:27 PM Dr. Hilgers in Omaha, Nebraska also has had success with LDN and infertility. He is at the Pope VI Institute: www.popepaulvi. com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Comosite, the white stuff. TJ ________________________________ From: drissia wright <ritzywright@...> Sent: Wed, May 19, 2010 12:29:06 PM Subject: [ ] (unknown) Â My son is 17 and has no fillings of any kind in his teeth. When he went to the dentist this week he said he had two tiny cavities that would need to be filled within the next few months; nothing pressing. What type of fillings do we get if not amalgams? What do I request? Thanks, D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 I completely agree - it is a very personal choice based in a multitude of considerations.Most of all I support each person's autonomy over his/her own body. And I support more knowledge over less, more awareness over less. All the better o make the best informed choices.JackieFrom: Bill Sigler <wesigler (DOT) com>Subject: [low dose naltrexone] (unknown)low dose naltrexoneDate: Tuesday, May 18, 2010, 12:27 PM Dr. Hilgers in Omaha, Nebraska also has had success with LDN and infertility. He is at the Pope VI Institute: www.popepaulvi. com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Thanks. I would like to avoid the amalgams if I can, just because of the mercury issue. From: Ammy K. <ammykogan@...> Subject: [ ] (unknown) Date: Thursday, May 20, 2010, 9:35 AM Â I've had my filling for over 25 years and I have never had an issue with them...knock on wood...however, I have come across many articles online where many cosmetic dentists advocate for the non silver fillings. The FDA has no research to back such claims but they have deemed silver fillings to be safe. I like to be on the safe side and when it comes to my son, who has never had a cavity...knock on wood...I would go for whatever lets me sleep at night. Whatever research I felt compelled me for the safest route, that's where I would head with my choice. At the end of the day it's a personal choice and with so many choices we are fortunate today to be able to choose. Best of luck with your decision. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 The membership list shows you as a member, and as your post came through, you're in On 20/05/2010 10:51 PM, Carswell wrote: Â I'd like to join Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Your welcome, I hope it helped a little. But the best thing is to do a little research on your end. Perhaps a second opinion? I had my son's dentist perform what they call a " seal in " - supposed to help with cavities. We just picked up some braces the other day and with the metal, I always worry. There is soooo much to worry about these days. Toxic America will be premiered on CNN sometime in June. Good stuff to watch. Best of luck. > > > From: Ammy K. <ammykogan@...> > Subject: [ ] (unknown) > > Date: Thursday, May 20, 2010, 9:35 AM > > > Â > > > > I've had my filling for over 25 years and I have never had an issue with them...knock on wood...however, I have come across many articles online where many cosmetic dentists advocate for the non silver fillings. > The FDA has no research to back such claims but they have deemed silver fillings to be safe. > I like to be on the safe side and when it comes to my son, who has never had a cavity...knock on wood...I would go for whatever lets me sleep at night. Whatever research I felt compelled me for the safest route, that's where I would head with my choice. > At the end of the day it's a personal choice and with so many choices we are fortunate today to be able to choose. > > Best of luck with your decision. > > Quote Link to comment Share on other sites More sharing options...
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