Re: (unknown)

March 13, 2010

Is this what you are looking for?

http://www.naturalthyroidchoices.com/IodinePractitioners.html

> >

> > Can you post the doctor to this group? We have family and friends who might

be interested also. And there is the listing somewhere that is for doctors who

meet certain criteria with using iodine, and it would be helpful to have another

doctor posted to that!

> > Donna in IL

> >

> > From: iodine [mailto:iodine ] On Behalf Of

sandrabeing

> > Sent: Friday, March 12, 2010 10:26 AM

> > iodine

> > Subject: (unknown)

> >

> > Hello,

> > I love this forum and read it daily. I live 30 minutes from Mishawaka IN

and would also love to know who this doctor is. Thank you...

> >

> > ________________________________

> >

>

March 13, 2010

Yes, thank you. No one in FLA though Mine put me back on iodine but I put

myself on it first, months before I met her, so maybe she felt okay putting me

on it because I was already pretty knowledgeable about it. She also hasn't

diagnosed more than 25mg but I'll probably exceed that myself

> > >

> > > Can you post the doctor to this group? We have family and friends who

might be interested also. And there is the listing somewhere that is for doctors

who meet certain criteria with using iodine, and it would be helpful to have

another doctor posted to that!

> > > Donna in IL

> > >

> > > From: iodine [mailto:iodine ] On Behalf Of

sandrabeing

> > > Sent: Friday, March 12, 2010 10:26 AM

> > > iodine

> > > Subject: (unknown)

> > >

> > > Hello,

> > > I love this forum and read it daily. I live 30 minutes from Mishawaka IN

and would also love to know who this doctor is. Thank you...

> > >

> > > ________________________________

> > >

> >

>

March 13, 2010

This list appears to be more comprehensive --

http://www.breastcancerchoices.org/ipractitioners.html

On Sat, Mar 13, 2010 at 11:06 AM, spacejunkie2001us <scastor@...> wrote:

Yes, thank you. No one in FLA though Mine put me back on iodine but I put myself on it first, months before I met her, so maybe she felt okay putting me on it because I was already pretty knowledgeable about it. She also hasn't diagnosed more than 25mg but I'll probably exceed that myself > > >

> > > Can you post the doctor to this group? We have family and friends who might be interested also. And there is the listing somewhere that is for doctors who meet certain criteria with using iodine, and it would be helpful to have another doctor posted to that!

> > > Donna in IL> > > > > > From: iodine [mailto:iodine ] On Behalf Of sandrabeing

> > > Sent: Friday, March 12, 2010 10:26 AM> > > iodine > > > Subject: (unknown)> > >

> > > > > > Hello,> > > I love this forum and read it daily. I live 30 minutes from Mishawaka IN and would also love to know who this doctor is. Thank you... > > >

> > > > > > > > > > > > ________________________________> > >> >>

March 13, 2010

>

> Thank you for sharing your experience. This kind of ankle and foot swelling is

different than what happens just from sitting too long. My feet and ankles look

they are pigs feet because even the toes are swollen.

<snip>

I would have been to the ER.

Abbey

March 14, 2010

Roni

Didn't you go on T3 because of an RT3 issue? If so, switching back to T4

could cause major problems. If that is what is going on, your tests will

appear relatively " normal " even though you have the symptoms.

Chuck

You wrote:

>

> The more I read, the more upset I get. I've lost more than half my hair.

> This

> is new endo had me reduce the 50 mcg of=A0 T3 I was taking to 25 mcg and now

> added T4. I'm supposed to start with 1/2 of 75 mcg for a few days then in-

> crease to 75. He said this process to " fix " my thyroid would take at

> least 7

> to 8 months.

>

> When I asked him about the hair, he said that I might lose a bit but it

> would come back. Now I just read on the thread about swollen hands

> and feet that it's low T3, which he just lowered again. After he lowered

> dmy T3 I was tested Monday and my FT3 was 2.5,

> FT4 0.2. I've had a headache for about a month (same time frame that I was

> lowering the T3), and my heartburn and stomach has become much worse.I

> live in Kirkland, WA. Does ANYONE know a doctor in my areas who is willing

> to dose according to how a patient feels and not just blood tests?

>

March 14, 2010

Dear Satabdi

There is no doubt that the availability of medication utilization and outcome information databases are useful intervention for overall health care system. In addition, the linkages of these databases is further useful which initiates the development of policies and procedures regarding research access to linked data. These linked data present a valuable resource for health services research and planning, but the problem in developing nations is that there is no maintenance of any complete private or public survey databases.

If you have any experience in studying database linkage, then could you please share some more information on how to retrieve useful information from medication utilization databases?

Syed Ziaur Rahman

Aligarh, India

On Sun, Mar 14, 2010 at 6:36 PM, satabdi chatterjee <satabdichatterjee26@...> wrote:

Hello all, As a part of our research projects, I have carried out medication utilization studies by analyzing the publicly available survey databases, which are conducted annually by National Center for Health Statistics (NCHS) and which provides the most comprehensive information about the provision and use of care across various settings in the US.

Medication utilization studies provide valuable information on the nationwide use of drugs, whether their use follow the recommended guidelines, and the trend in use of such medications can also be studied by combining data from a number of years.

In developing countries, such surveys are needed at various levels (hospital /community) to understand the rational/ irrational use of medications and accordingly inform policy-makers.

Thanks,

Satabdi.

The INTERNET now has a personality. YOURS! See your Homepage.

March 14, 2010

Yes, I did have an RT3 problem. This endo doesn't believe in RT3, and so far has

refused testing for it. When I got so sick from the new Armour, my blood tests

were not normal, they all were low. It was my rheumatologist who started me on

T3 alone. However, after a certain point he was leery to keep giving me the T3

himself since he didn't feel he was an expert.

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

>

> The more I read, the more upset I get. I've lost more than half my hair.

> This

> is new endo had me reduce the 50 mcg of=A0 T3 I was taking to 25 mcg and now

> added T4. I'm supposed to start with 1/2 of 75 mcg for a few days then in-

> crease to 75. He said this process to " fix " my thyroid would take at

> least 7

> to 8 months.

>

> When I asked him about the hair, he said that I might lose a bit but it

> would come back. Now I just read on the thread about swollen hands

> and feet that it's low T3, which he just lowered again. After he lowered

> dmy T3 I was tested Monday and my FT3 was 2.5,

> FT4 0.2. I've had a headache for about a month (same time frame that I was

> lowering the T3), and my heartburn and stomach has become much worse.I

> live in Kirkland, WA. Does ANYONE know a doctor in my areas who is willing

> to dose according to how a patient feels and not just blood tests?

>

------------------------------------

March 14, 2010

Prescription costs depend on whether or not you have insurance and how good that

insurance is. There's no way to tell you what you would pay for any particular

rx, but you could also check online and then check with a drugstore to compare

the difference.

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

From: jmorrisuk@... <jmorrisuk@...>

Subject: RE: (unknown)

" hypothyroidism " <hypothyroidism >

Date: Friday, March 12, 2010, 12:35 AM

Omg sounds like your having a crappy time, hope you get it sorted.

Sorry i cant help with your questions, i was wondering if you could answer a few

of mine?

My huspand are in the process of applying for our au visa, but last week i was

diagnosed with hypotyriodism, how does it work with your healthcare system? I

live in the uk and prescriptions are free. How much does it cost you?

Sorry for having lots of questions and no answers for your question.

Hope you feel better soon

(unknown)

The more I read, the more upset I get. I've lost more than half my hair. This

is new endo had me reduce the 50 mcg of=A0 T3 I was taking to 25 mcg and now

added T4. I'm supposed to start with 1/2 of 75 mcg for a few days then in-

crease to 75. He said this process to " fix " my thyroid would take at least 7

to 8 months.

When I asked him about the hair, he said that I might lose a bit but it would

come back. Now I just read on the thread about swollen hands

and feet that it's low T3, which he just lowered again. After he lowered

dmy T3 I was tested Monday and my FT3 was 2.5,

FT4 0.2. I've had a headache for about a month (same time frame that I was

lowering the T3), and my heartburn and stomach has become much worse.I live in

Kirkland, WA. Does ANYONE know a doctor in my areas who is willing

to dose according to how a patient feels and not just blood tests?

This doctor I'm currently seeing is Murray who supposedly is very

good. He seems nice enough but is very rushed and I get about 5 to 10 minutes

with him. He says RT3 is not relevant.

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

March 14, 2010

certain brands at walmart can be purchased for 4 a month (these are off

brand/generic and generally are just a synthetic t4)

>

> From: jmorrisuk@... <jmorrisuk@...>

> Subject: RE: (unknown)

> " hypothyroidism " <hypothyroidism >

> Date: Friday, March 12, 2010, 12:35 AM

>

> Omg sounds like your having a crappy time, hope you get it sorted.

>

> Sorry i cant help with your questions, i was wondering if you could answer a

few of mine?

>

> My huspand are in the process of applying for our au visa, but last week i was

diagnosed with hypotyriodism, how does it work with your healthcare system? I

live in the uk and prescriptions are free. How much does it cost you?

> Sorry for having lots of questions and no answers for your question.

>

> Hope you feel better soon

>

> (unknown)

>

> The more I read, the more upset I get. I've lost more than half my hair. This

> is new endo had me reduce the 50 mcg of=A0 T3 I was taking to 25 mcg and now

> added T4. I'm supposed to start with 1/2 of 75 mcg for a few days then in-

> crease to 75. He said this process to " fix " my thyroid would take at least 7

> to 8 months.

>

> When I asked him about the hair, he said that I might lose a bit but it would

come back. Now I just read on the thread about swollen hands

> and feet that it's low T3, which he just lowered again. After he lowered

> dmy T3 I was tested Monday and my FT3 was 2.5,

> FT4 0.2. I've had a headache for about a month (same time frame that I was

> lowering the T3), and my heartburn and stomach has become much worse.I live in

Kirkland, WA. Does ANYONE know a doctor in my areas who is willing

> to dose according to how a patient feels and not just blood tests?

>

> This doctor I'm currently seeing is Murray who supposedly is very

> good. He seems nice enough but is very rushed and I get about 5 to 10 minutes

> with him. He says RT3 is not relevant.

>

> <>Roni

> Immortality exists!

> It's called knowledge!

>

> Just because something isn't seen

> doesn't mean it's not there<>

>

March 14, 2010

Wow, sounds like he/she wants to pick and choose what could be the problem not

what actually is. Being that you have a reaction to the new Armour, what about

going to a compound pharm which can make the medication with out the additives?

I have to use a compound pharm and I pay out of pocket for all my medication

and it really is not that bad. Roughly 22 a month script

> >

> > The more I read, the more upset I get. I've lost more than half my hair.

> > This

> > is new endo had me reduce the 50 mcg of=A0 T3 I was taking to 25 mcg and now

> > added T4. I'm supposed to start with 1/2 of 75 mcg for a few days then in-

> > crease to 75. He said this process to " fix " my thyroid would take at

> > least 7

> > to 8 months.

> >

> > When I asked him about the hair, he said that I might lose a bit but it

> > would come back. Now I just read on the thread about swollen hands

> > and feet that it's low T3, which he just lowered again. After he lowered

> > dmy T3 I was tested Monday and my FT3 was 2.5,

> > FT4 0.2. I've had a headache for about a month (same time frame that I was

> > lowering the T3), and my heartburn and stomach has become much worse.I

> > live in Kirkland, WA. Does ANYONE know a doctor in my areas who is willing

> > to dose according to how a patient feels and not just blood tests?

> >

>

> ------------------------------------

>

March 14, 2010

I want to give this a chance to see if it will get better, tosee if the RT3 is

not going to be a problem this time.

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

From: hopebeyondhope123 <hopebeyondhope123@...>

Subject: Re: (unknown)

hypothyroidism

Date: Sunday, March 14, 2010, 8:53 AM

Wow, sounds like he/she wants to pick and choose what could be the problem not

what actually is. Being that you have a reaction to the new Armour, what about

going to a compound pharm which can make the medication with out the additives?

I have to use a compound pharm and I pay out of pocket for all my medication

and it really is not that bad. Roughly 22 a month script

> >

> > The more I read, the more upset I get. I've lost more than half my hair.

> > This

> > is new endo had me reduce the 50 mcg of=A0 T3 I was taking to 25 mcg and now

> > added T4. I'm supposed to start with 1/2 of 75 mcg for a few days then in-

> > crease to 75. He said this process to " fix " my thyroid would take at

> > least 7

> > to 8 months.

> >

> > When I asked him about the hair, he said that I might lose a bit but it

> > would come back. Now I just read on the thread about swollen hands

> > and feet that it's low T3, which he just lowered again. After he lowered

> > dmy T3 I was tested Monday and my FT3 was 2.5,

> > FT4 0.2. I've had a headache for about a month (same time frame that I was

> > lowering the T3), and my heartburn and stomach has become much worse.I

> > live in Kirkland, WA. Does ANYONE know a doctor in my areas who is willing

> > to dose according to how a patient feels and not just blood tests?

> >

>

> ------------------------------------

>

March 15, 2010

The synthetic T4 is bioidentical to that produced by your thyroid gland

[all of them]. However, the binders/fillers/coloring agents and so on

may vary.

..

>

> Posted by: " hopebeyondhope123 " hopebeyondhope123@...

> <mailto:hopebeyondhope123@...?Subject=%20Re%3A%20%28unknown%29>

> hopebeyondhope123 <hopebeyondhope123>

>

> Sun Mar 14, 2010 8:54 am (PDT)

>

> certain brands at walmart can be purchased for 4 a month (these are

> off brand/generic and generally are just a synthetic t4)

March 15, 2010

Roni Molin wrote:

>

> Yes, I did have an RT3 problem. This endo doesn't believe in RT3, and so

> far has refused testing for it....

Sorry you are going through this. You might have better luck persuading

the rheumatologist to try again, since you gave the endo a chance, and

he just made you sicker. Did he ever actually test for RT3?

Chuck

March 15, 2010

No, he refused.

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

>

> Yes, I did have an RT3 problem. This endo doesn't believe in RT3, and so

> far has refused testing for it....

Sorry you are going through this. You might have better luck persuading

the rheumatologist to try again, since you gave the endo a chance, and

he just made you sicker. Did he ever actually test for RT3?

Chuck

------------------------------------

March 20, 2010

Hi Guy,

Welcome to the club that nobody really wants to be a member of.

Is Novartis providing you Gleevec under the PAP program? If so, what has

changed. The financial criteria was that if your income was less than

$43,000 annually, you would receive the drug free.

Write and tell us about your CML. I'm always on the lookoutfor new Zero Club

members. All you need to do is reach CCR (2 log reduction) to get a number.

Zavie

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

Tel in FL: 561-429-5507

_____

From: [mailto: ] On Behalf Of

geneguy2001

Sent: March-19-10 7:56 PM

Subject: [ ] (unknown)

Hello Fellow CML Sufferers,

Let me introduce myself - Guy, an old guy. I have been treated with gleevec

since 2005 when I was first diagnosed. Lots of problems at first but my body

seemed to get used to the side effects. I would like to say to all those

with rashes and itching that cortisone did no good at all for me. At one

time it was feared I was allergic to gleevec. A friend advised me to ask my

onc. if I could take atarax (an anti-histamine) and zantac (acid reducer -

using it for itching is evidently well-known even though it is not the

primary purpose.) This combination worked wonders for me and you can even

buy zantac over-the-counter. A friend told me that atarax is even used on

children. Please don't take this without asking your doc, I'm just telling

you how I got rid of my rash and itching.

One thing I don't see addressed much by the group is how you get help with

the price of gleevec. I take 90 tablets a month and up to now Novartis has

provided them. They have given me notice that they have a change of policy

and they are going to discontinue providing them to me. I have applied to

PSI and am anxiously waiting. I do have supplementary medicare ins. but I

will have to pay 33% of the retail price. I just wondered if you have any

suggestions.

This is a great worry to my wife and to me.

I have been reading your mail and am struck by the great kindness you show

to each other. I don't know about any rules you have to join your group.

Please let me know. I love Lottie's cheer-me-ups. Her joke about the

" hearing " has gone to England and France and the little Chinese drummer boy

will bring joy far and wide.

Guy

March 23, 2010

We use a huge whiteboard for writing and

drawing, I bought loads of coloured pens to help make this feasible. Once I have something worth recording, I

grab the camera and then I have something to use as “evidence” of a

completed project.

a

-----Original

Message-----

From:

[mailto: ] On Behalf Of Robb

Sent: 23 March 2010 03:36

To:

Subject: ( )

(unknown)

Just

a thought, but would typing instead of writing be an option? I work with

a lot of kids with AS who love the computer, and they love to type out their

answers, but hate writing them.

I've worked with others who love the white board and will write anything on a

whiteboard with a marker- not great for turning things in, but they might like

to do their work in a powerpoint type of format and email it to their teacher

if the teacher is willing to accept that.

I'm a teacher, and from my point of view, if it would get a student to do the

work (even if it was an abbreviated assignment) and I could see their learning

and thinking, I would be happy with that. But I'm also a parent of a

child who is different, so that definitely affects my thinking on this.

March 23, 2010

, Our son acts out to get attention as well. He understands it a bit more than I realize sometimes. He will get really upset if shes having a meltdown. Most of the time If shes melting down I will send her to her room till shes calm and take that time to sit with him while shes screaming to see how he's feeling. Obviously doesn't always work but thats what I try to do :-D I think it really depends on teh degree of the meltdown ;-D On Mar 22, 2010, at 7:58 PM, Robb wrote:

, I know what you mean about feeling like you need to connect with your son as much as you can. My son is just about to turn 5- his birthday is in a few days, and there are times I feel like all of my attention is taken up dealing with my daughter and husband and their issues. Luckily he and I still get some quality time together as he only has preschool 3 afternoons a week, but I worry about how I will balance it all once he starts school next year. He's also started acting out just to get my attention off his sister, and there isn't a great way to explain to him that I can't just abandon her in the middle of a meltdown, but that I'll be there as soon as I can. I guess I do kind of explain that to him, but I'm not sure how much he understands that

being that he is still such a peanut.

“Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.” - Steve Jobs

March 23, 2010

, There are days I dont think I will make it through the day LOL. But tomorrow is always a new day :-D On Mar 22, 2010, at 8:10 PM, Robb wrote:

You are all so brave to take on the homeschooling piece. I am a teacher (home the last 7 years with my kids), and I'm not sure I could handle homeschooling. Depending on how things go with the schools as my daughter gets older, it may come to that, but I hope not. I'm not sure I could survive without the break that school provides. I guess it is something to keep tucked away in the back of my mind in case it becomes necessary. The other thing I was thinking about is how hard it is to keep in mind that they really can't help some of these things. My husband, who we're pretty sure is an aspie too, even has a hard time understanding and I have to remind him that he is the exact same way some days. It's hardest when I've really been looking

forward to something and then can't go. Most of the time, I'm just excited if I get a little break, so it's much worse if I've planned something and then it can't happen. Again, glad to know I'm not alone in all this.

“Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.” - Steve Jobs

March 23, 2010

Going gluten-free has changed my life. I was able to quit a steroid that I had been taking for my asthma for almost 20 years after only one month of being gluten-free. We don't consume traditional dairy at all, but we do drink raw milk and eat raw milk products with no ill effects. It is so nice to be able to drink milk and eat cheese again!! My youngest son has never been able to tolerate gluten or traditional dairy. My oldest who is recently diagnosed Asperger's, lost all signs of eczema which had responded to nothing, when we went gluten free. When we went gluten free, I didn't pay attention much to Asperger symptoms since I didn't know he had it. I was mainly looking to improve our health. Oh, in addition to my asthma and my son's eczema, my allergies are virtually non-existent since going gluten free. I had been taking two shots weekly and was told by the allergist that I would NEVER be able to quit taking them my allergies were so bad. There is a great book that connects allergies, asthma, ADHD and autism called Healing the New Childhood Epidemics and the author is Dr. Bock. It is absolutely what convinced me to go gluten-free.

On Tue, Mar 23, 2010 at 9:25 PM, lisakrobb <lisakrobb@...> wrote:

Thanks for the clarification on GF and CF. I actually just got an email from a friend recommending that, but she also believes she has " cured " her daughter's autism, and I'm not sure that's actually possible, so I take everything she says with a grain of salt. That may be worth looking into.

That's tough about your son having to shoot a little lower. We always want the best for our kids, but sometimes what our " best " is (in our own heads) may not be what their " best " is. I need to keep that in mind. Very wise advice. Good luck with your son. I hope his accomodations help out this time at college. It's so much to think about sometimes. My daughter is only 6, but she'll be going to college sooner than I think. Thanks again.

Oh by the way, I think that is fantastic that you get to go see Temple Grandin in person and have met her:)

> >

> > JoAnn,

> > I'm not sure what GF and CF are. Could you explain those to me?

> > My husband was just having the same worries about our daughter and I pointed out to him that somehow he got to the point where he has a job and a family and has made it. It was not easy for him. He did college twice, and the amazing thing is that he had zero family support with his issues. He still has no support from his family. Also, I was just watching the Temple Grandin movie on HBO. That is really worth watching. As a parent and as a teacher I could really connect with it. She had one teacher who made such a difference in her life.

>

-- McAllisterFB: www.facebook.com/healfrominsideoutTwitter: www.twitter.com/healinginside

Blog: http://healingfrominsideout.blogspot.comReiki II practitioner, #1 alternative treatment recommended by Dr. OzHerbal consultations

March 24, 2010

Jefferson,

We need more information. First, the emphasis should be on

cleaning, not disinfecting. Disinfectants are EPA regulated and

they all state use should be only after cleaning. Check

www.nadca.com and www.acca.org for more info.

Recent posts here, esp from Connie, have excellent details.

Carl Grimes

Healthy Habitats LLC

-----

Please advice if HVAC need to be disinfect? If yes, what will be the

frequency?

Thanks and Regards,

Jefferson

Connect instantly with more friends on your blog and personal website?

Create your latest Pingbox today! http://ph.messenger./

pingbox

March 24, 2010

Putting my daughter (5 now, diag Autism at 2) on GFCF made a huge difference for

her. She couldn't tolerate dairy formula or wheat as baby so those went first

but we still struggled with her eczema. It wasn't until her diagnosis at 2 (with

congenital Lyme and autism) that we put her on full gluten free casein free and

then the eczema disappeared and her behavior got SO much better.

I've 'tested' my daughter with a little gluten since then of course and sent her

off to preschool (one for special needs kids). They called me telling me they

thought my daughter might be sick but she had no temperature.. they had taken it

several times... She was just not herself at all. I thanked them and spilled the

beans. I think I convinced a few teachers and therapists that day that the diet

does help.

I have recently become totally intolerant of dairy so I'm going on the diet too

after we move in the next month or so. I've gotten used to the dairy

replacements but maybe I'll try the raw dairy (which I've definitely heard of)

after my gut heals from the gluten. I had bad eczema as a child and all I drank

was milk milk milk!

Jen

> > > >

> > > > JoAnn,

> > > > I'm not sure what GF and CF are. Could you explain those to me?

> > > > My husband was just having the same worries about our daughter and I

> > pointed out to him that somehow he got to the point where he has a job and a

> > family and has made it. It was not easy for him. He did college twice, and

> > the amazing thing is that he had zero family support with his issues. He

> > still has no support from his family. Also, I was just watching the Temple

> > Grandin movie on HBO. That is really worth watching. As a parent and as a

> > teacher I could really connect with it. She had one teacher who made such a

> > difference in her life.

> > >

> >

>

> --

> McAllister

> FB: www.facebook.com/healfrominsideout

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March 24, 2010

Jen, the raw dairy could actually help heal your gut. It's that good! Check out the Weston A. Price Foundation (just google it) and Sally Fallon's Nourishing Traditions.

On Wed, Mar 24, 2010 at 6:25 AM, Whitewave <jenuhferr@...> wrote:

Putting my daughter (5 now, diag Autism at 2) on GFCF made a huge difference for her. She couldn't tolerate dairy formula or wheat as baby so those went first but we still struggled with her eczema. It wasn't until her diagnosis at 2 (with congenital Lyme and autism) that we put her on full gluten free casein free and then the eczema disappeared and her behavior got SO much better.

I've 'tested' my daughter with a little gluten since then of course and sent her off to preschool (one for special needs kids). They called me telling me they thought my daughter might be sick but she had no temperature.. they had taken it several times... She was just not herself at all. I thanked them and spilled the beans. I think I convinced a few teachers and therapists that day that the diet does help.

I have recently become totally intolerant of dairy so I'm going on the diet too after we move in the next month or so. I've gotten used to the dairy replacements but maybe I'll try the raw dairy (which I've definitely heard of) after my gut heals from the gluten. I had bad eczema as a child and all I drank was milk milk milk!