Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 anand, you have not been unsubscribed. Questions about list administration should be addressed to longevity-owneregroups. (unknown) I received an email that I had somehow been unsubscribed to the longevity group. Please check and make sure that this is not true. I want to remain on your mailing list. Thanks. anand yogendra ayogendra@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 anand, you have not been unsubscribed. Questions about list administration should be addressed to longevity-owneregroups. (unknown) I received an email that I had somehow been unsubscribed to the longevity group. Please check and make sure that this is not true. I want to remain on your mailing list. Thanks. anand yogendra ayogendra@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Dear Gordon, There has been a great deal of discussion on intravenous injection of hgh lately. Is there an advantage to this? Does it increase the effectiveness of hgh? Should one lower the dosage? Where are the available answers? Thank you in advance for your usual fine assistance. Rampatrol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Dear Gordon, There has been a great deal of discussion on intravenous injection of hgh lately. Is there an advantage to this? Does it increase the effectiveness of hgh? Should one lower the dosage? Where are the available answers? Thank you in advance for your usual fine assistance. Rampatrol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Dear Gordon, I second that question. I thought that I read that IV did nothing useful...!!! @ Re: (unknown) > Dear Gordon, > > There has been a great deal of discussion on intravenous injection of hgh > lately. Is there an advantage to this? Does it increase the effectiveness of > hgh? Should one lower the dosage? Where are the available answers? > > Thank you in advance for your usual fine assistance. > > Rampatrol > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2000 Report Share Posted December 30, 2000 Christal: My name is , and I have congenital hearing loss/deafness. Lt ear deaf, Rt ear, going deaf. Mondini's dysplasia in both ears. I live in Northern Cali. I'm replying to you, so you know that you are not alone here. (unknown) My name is Christal Terry. I am 23 years old and Live in los angeles. I lost my hearing 10 years ago as a result of complications from Sickle cell Anemia. However, I am currently using a cochlear implant and having pretty decent success as far as that goes. I wanted to join this group because I want to give my testimony on a matter that is so close to my heart. I started taking nutritional supplements about a year ago and I haven't been to the hospital not once in the entire year...which is for me...nothing short of a miracle. Before I was using them I was in the hospital 4-8 times a year. I still have crises sometimes but they only come like every 4-6 months, and they are much milder and shorter. And, I am just so happy and Would like to help anybody else out there discover this stuff. I can't guarantee it will work for you...I can only tell you my own story and hope you give it a shot. I am on disability and I know a few of you out there may also have very tight financial circumstances...but it is very reasonably priced. And imagine, if you you might be able to hold down a regular job, and if that's the case this stuff is well worth the price. Anybody that is interested...Please, please email me. WE HAVE GOT TO GET THE WORD OUT!! The Being Sick Community Visual problems with colors? Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. Members Lounge:- Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:- messages/ Chat:- Scheduled Daily Chats at # on IRC DALnet. /chat.htm Sharing our resources:- Add a website URL you have found useful. Personal Complaints or problems:- Please contact a moderator either via email <-owneregroups> or visit:- /Moderators.htm Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit mygroups To subscribe or unsubscribe subscribe/ ~~~~~~~~~~~~~~~ “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 DORIEEEEEEEEE!!!!!!!!!!!!! *hugs lots* How are ya babe?? HAPPY NEW YEAR TO YA!!! Let us know how you are when you get a momento!! Love isha in her new slippers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 Try nursing on one side only each time. Are you nursing during the night? This will help too. (unknown) > I have a couple questions that I know are way of topic. Feel free to e-mail > me in private. > > My breastfed 5 month old baby is not eating alot lately. She might stay on > one breast for about 5 minutes, sometimes ten and I am afriad that she is > not getting the hind milk. She is really underweight. I have started her > on solids. I am trying breast compression (squeezeing the breast while the > baby is eating to make milk come out quicker). Does anyone have any > suggestions to encourage her to eat better? I have read that the solids can > effect that. I will be going to shool 1/2 a day, 3 days a week and me > schedule does not allow for pumping. So, I am going to let the day care > provider feed her the solids while I am gone and I will breast feed her when > she gets home. > > Question number two. I am thinking of trying the IUD. I have done some > research. If anyone knows anything about it please feel free to e-mail me > privately. > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 In a message dated 1/2/01 6:25:49 PM Pacific Standard Time, ietinc@... writes: << Is it possible that you can pump a couple of bottles in the evenings (before bed, watching TV, soaking in the bath, etc) so that you don't have to supplement her with formula or milk or whatever when the day care provider is there? I don't think it will be healthy for your 5 month old to eat solids only during the time that you will be away. >> I agree! Anything other than breastmilk is a *loss* for the infant.My dd bfed on one breast for 5 to 10min every 3-4 hours from the beginning.It was difficult to accept at first,but I had to let her lead.Sorry to hear you have to go back to school so soon.Try for info at lactivist.com. And for IUD info at healthy.net. Personally I would not insert that into my body,but I have no negative info on it(yet Take care! Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 In a message dated 1/2/01 21:22:04 Uhr, lashannasmall@... writes: << She is really underweight. I have started her on solids. >> How do you know she's underweight? Most breastfed babies weight gain slows after 3 or 4 months. At five months she's awfully young for solids and solids may slow/stop her weight gain. Your milk is much higher in fat/nutruent dense/superior to any solid food. Are you nursing on demand? Are you using a pacifier? This can also slow weight gain/decrease milk supply. Are you sleeping with her? This also helps to increase weight gain. Good luck! Oh, if you're planning on more kids I wouldn't use an IUD as they can cause scarring and infertility. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 Is it possible that you can pump a couple of bottles in the evenings (before bed, watching TV, soaking in the bath, etc) so that you don't have to supplement her with formula or milk or whatever when the day care provider is there? I don't think it will be healthy for your 5 month old to eat solids only during the time that you will be away. You can start pumping now, and freeze it also. It will stockpile quickly. Especially if she is underweight...that is serious in children (in particular so small) because the body and brain are depending on nutrients to grow properly. I have no idea why she is nursing for such short periods...maybe contact LaLecheLeague for some help on that. Compressing your breast to try to squirt the milk in faster may only be putting her off, if it is coming out too fast for her to handle. Also, if she is actually eating solids at her age, she may be eating enough to be filling her so that she is not so hungry to nurse...although then she would not be underweight. I wish you and your little one luck...Sharon (unknown) > I have a couple questions that I know are way of topic. Feel free to e-mail > me in private. > > My breastfed 5 month old baby is not eating alot lately. She might stay on > one breast for about 5 minutes, sometimes ten and I am afriad that she is > not getting the hind milk. She is really underweight. I have started her > on solids. I am trying breast compression (squeezeing the breast while the > baby is eating to make milk come out quicker). Does anyone have any > suggestions to encourage her to eat better? I have read that the solids can > effect that. I will be going to shool 1/2 a day, 3 days a week and me > schedule does not allow for pumping. So, I am going to let the day care > provider feed her the solids while I am gone and I will breast feed her when > she gets home. > > Question number two. I am thinking of trying the IUD. I have done some > research. If anyone knows anything about it please feel free to e-mail me > privately. > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 This MESSAGE contains a VIRUS. DO NOT OPEN IT (unknown) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 First I will tackle the bfing question.... are you feeding on demand? that means no pacifier, no bottles of water, etc. Are you nursing through the night? Many people don't realize that babies have receptors in their brain that tell them when they are full. They are not like adults, they don't have the ability to eat themselves sick, lol, wish I had that ability sometimes! If she is only nursing for 10 minutes then that may be all she needs. Don't be a clock watcher, that is a medical community thing that they pass on to new moms. The whole start feeding 5 minutes on one side and then switch is a crock. My next question is, are you having supply troubles? have you pumped to see how much you are making? if your supply is low then get that baby to the breast more often. My best remedy, and it's hard for some moms, is to take one full day, don't do ANYTHING. Arrange for your significant other to help you. Go to bed with your baby. That means you stay in bed, only get up to go potty and change diapers, lay in bed and nurse, nurse, nurse. Usually a full day of this gets most moms back on track. Also, how is your diet? are you getting enough protein? if not, try a protein shake or supplement with some high protein foods. I know many on this list are vegans or vegetarians and if you are one then ignore this next statement, but get some good protein dinners in you, via meat, milk, what have you. If you are a vegan then there are some other options for you. Most women don't realize that they should have about 60 grams + of protein while they are nursing. It WON'T make you fat, it will keep your boobs working! Also, get plenty of fluids, are you drinking your 8 glasses of water per day? or 8 glasses of non carbonated liquid in general? My next question... by who's standards is she underweight??? Tell us, how much did she weigh at birth and how much is she now? Remember that breastfed babies do not follow the formula fed baby charts that most peds go by. It is rare to see a fat breastfed baby (rare, but it happens!), most are slim and tend to look *skinny* to the general population because they are used to seeing formula fed babes. Now while you are going to school, I agree with the other poster, pump your little heart out now, then give that instead of solids. She is 5 months, but I wouldn't push the solids. Her nursing sessions will get less frequent once you introduce them and you don't want to do that at this point. Trust me... bananas, rice cereal and peas don't have near the brain building qualities that your breastmilk does! If you have any questions about the above, feel free to email me privately, I would be glad to help ) Now about that IUD.... personally I would do a diaphragm instead. I have had both. I had the IUD for 4 months, in those 4 months I had 4 infections! My family has a history of early hysterectomies because of uterine troubles, etc. I decided after the 4th infection that I didn't want to put myself at that risk so I had it removed. I want more babies and I didn't want anything to stand in the way of that. While IUDs are safer now than they have ever been, they can still cause uterine perforations, read the insert. In fact a good OB or CNM will give you the insert to take home and read BEFORE they ask you to make a choice about it. Just my thoughts. Sorry to clog the list, I just thought that maybe this information may be useful to you all. Melisa ~*~*~*~*~*~*~*~* Did you hear? Breast is Best! Certified Lactation Counselor IBCLC Exam Candidate Homeopathic Counselor in training www.nurturingmama.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Thanks for the link. I found a lot of interesting stuff!! >From: nnu29@... >Reply-Vaccinationsegroups >Vaccinationsegroups >Subject: Re: (unknown) >Date: Tue, 2 Jan 2001 21:31:48 EST > >In a message dated 1/2/01 6:25:49 PM Pacific Standard Time, >ietinc@... >writes: > ><< > Is it possible that you can pump a couple of bottles in the evenings >(before > bed, watching TV, soaking in the bath, etc) so that you don't have to > supplement her with formula or milk or whatever when the day care >provider > is there? I don't think it will be healthy for your 5 month old to eat > solids only during the time that you will be away. >> > > I agree! Anything other than breastmilk is a *loss* for the infant.My dd >bfed on one breast for 5 to 10min every 3-4 hours from the beginning.It was >difficult to accept at first,but I had to let her lead.Sorry to hear you >have >to go back to school so soon.Try for info at lactivist.com. >And for IUD info at healthy.net. >Personally I would not insert that into my body,but I have no negative info >on it(yet >Take care! >Sara _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 The diaphragm is kind of a sexual drag isn’t it? >From: " LC Mama " <lcmama@...> >Reply-Vaccinationsegroups ><Vaccinationsegroups> >Subject: Re: (unknown) >Date: Wed, 3 Jan 2001 09:31:06 -0700 > >First I will tackle the bfing question.... are you feeding on demand? that >means no pacifier, no bottles of water, etc. Are you nursing through the >night? Many people don't realize that babies have receptors in their brain >that tell them when they are full. They are not like adults, they don't >have the ability to eat themselves sick, lol, wish I had that ability >sometimes! If she is only nursing for 10 minutes then that may be all she >needs. Don't be a clock watcher, that is a medical community thing that >they pass on to new moms. The whole start feeding 5 minutes on one side >and >then switch is a crock. My next question is, are you having supply >troubles? have you pumped to see how much you are making? if your supply >is low then get that baby to the breast more often. My best remedy, and >it's hard for some moms, is to take one full day, don't do ANYTHING. >Arrange for your significant other to help you. Go to bed with your baby. >That means you stay in bed, only get up to go potty and change diapers, lay >in bed and nurse, nurse, nurse. Usually a full day of this gets most moms >back on track. Also, how is your diet? are you getting enough protein? >if >not, try a protein shake or supplement with some high protein foods. I >know >many on this list are vegans or vegetarians and if you are one then ignore >this next statement, but get some good protein dinners in you, via meat, >milk, what have you. If you are a vegan then there are some other options >for you. Most women don't realize that they should have about 60 grams + >of >protein while they are nursing. It WON'T make you fat, it will keep your >boobs working! Also, get plenty of fluids, are you drinking your 8 glasses >of water per day? or 8 glasses of non carbonated liquid in general? > >My next question... by who's standards is she underweight??? Tell us, how >much did she weigh at birth and how much is she now? Remember that >breastfed babies do not follow the formula fed baby charts that most peds >go >by. It is rare to see a fat breastfed baby (rare, but it happens!), most >are slim and tend to look *skinny* to the general population because they >are used to seeing formula fed babes. > >Now while you are going to school, I agree with the other poster, pump your >little heart out now, then give that instead of solids. She is 5 months, >but I wouldn't push the solids. Her nursing sessions will get less >frequent >once you introduce them and you don't want to do that at this point. Trust >me... bananas, rice cereal and peas don't have near the brain building >qualities that your breastmilk does! > >If you have any questions about the above, feel free to email me privately, >I would be glad to help ) > >Now about that IUD.... personally I would do a diaphragm instead. I have >had both. I had the IUD for 4 months, in those 4 months I had 4 >infections! >My family has a history of early hysterectomies because of uterine >troubles, >etc. I decided after the 4th infection that I didn't want to put myself at >that risk so I had it removed. I want more babies and I didn't want >anything to stand in the way of that. While IUDs are safer now than they >have ever been, they can still cause uterine perforations, read the insert. >In fact a good OB or CNM will give you the insert to take home and read >BEFORE they ask you to make a choice about it. > >Just my thoughts. Sorry to clog the list, I just thought that maybe this >information may be useful to you all. > >Melisa >~*~*~*~*~*~*~*~* >Did you hear? Breast is Best! >Certified Lactation Counselor >IBCLC Exam Candidate >Homeopathic Counselor in training >www.nurturingmama.com > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 >The diaphragm is kind of a sexual drag isn’t it? I sure don't think so! I pretty much know the days that I am in the *mood* so I just put the diaphragm in then I can leave it in for up to 12 hours afterward. It's easy for me to remember, easier than a condom. And even if I don't put it in until right before, it's still no hassle. I can then roll over, go to sleep and not think about it until morning! I love it. And I am definitely one of those people who doesn't want to have to think about birth control. My husband is really good at helping me remember, afterall it's his responsibility too! Once I put it to him that way then he agreed to help in the endeavor. The IUD is ok, but you really have to think to yourself... even though they are safer, they aren't as safe as other methods, and for me I wouldn't even consider it again until I knew I was done having kids, because afterall, one of the terrors of the IUD is uterine perforation, and that would stop me from having more kids right there. Just be well informed before you make a choice. Melisa ~*~*~*~*~*~*~*~* Did you hear? Breast is Best! Certified Lactation Counselor IBCLC Exam Candidate Homeopathic Counselor in training www.nurturingmama.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Do you know of any links about the diaphragm? >From: " LC Mama " <lcmama@...> >Reply-Vaccinationsegroups ><Vaccinationsegroups> >Subject: Re: (unknown) >Date: Wed, 3 Jan 2001 19:49:26 -0700 > > >The diaphragm is kind of a sexual drag isn’t it? > >I sure don't think so! I pretty much know the days that I am in the *mood* >so I just put the diaphragm in then I can leave it in for up to 12 hours >afterward. It's easy for me to remember, easier than a condom. And even >if >I don't put it in until right before, it's still no hassle. I can then >roll >over, go to sleep and not think about it until morning! I love it. And I >am definitely one of those people who doesn't want to have to think about >birth control. My husband is really good at helping me remember, afterall >it's his responsibility too! Once I put it to him that way then he agreed >to help in the endeavor. The IUD is ok, but you really have to think to >yourself... even though they are safer, they aren't as safe as other >methods, and for me I wouldn't even consider it again until I knew I was >done having kids, because afterall, one of the terrors of the IUD is >uterine >perforation, and that would stop me from having more kids right there. >Just >be well informed before you make a choice. > >Melisa >~*~*~*~*~*~*~*~* >Did you hear? Breast is Best! >Certified Lactation Counselor >IBCLC Exam Candidate >Homeopathic Counselor in training >www.nurturingmama.com > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 >Do you know of any links about the diaphragm? I don't off hand, but you could go to webmd and look around. Or ask a CNM, that's who did mine. They have great information. Melisa ~*~*~*~*~*~*~*~* Did you hear? Breast is Best! Certified Lactation Counselor IBCLC Exam Candidate Homeopathic Counselor in training www.nurturingmama.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 That doctor was injecting hGH directly into arthritic joints, resulting in confirmed regrowth of degenerated cartilage and relief from pain. Don't recall which issue that was in, but I brought the article to my doctor, who was very, very interested. If you call an adviser at LEF or search their site www.lef.org , you might find the article. Loren Sherman (unknown) Jan/03/2001 16:16 ET -----Original Message----- Dear Gordon and others, Does anyone have first hand information as to whether or not growth hormone will help regenerate a bad disc that resulted from an injury? Steve Boracchia There was an article (from LEF I think?) about a physician in south Florida who has injected directly DHEA into the disk, with good results. Does this ring a bell with anyone? Lee Groth eGroups Sponsor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 That doctor was injecting hGH directly into arthritic joints, resulting in confirmed regrowth of degenerated cartilage and relief from pain. Don't recall which issue that was in, but I brought the article to my doctor, who was very, very interested. If you call an adviser at LEF or search their site www.lef.org , you might find the article. Loren Sherman (unknown) Jan/03/2001 16:16 ET -----Original Message----- Dear Gordon and others, Does anyone have first hand information as to whether or not growth hormone will help regenerate a bad disc that resulted from an injury? Steve Boracchia There was an article (from LEF I think?) about a physician in south Florida who has injected directly DHEA into the disk, with good results. Does this ring a bell with anyone? Lee Groth eGroups Sponsor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Regarding: Defense Secretary S. Cohen and the Joint Chiefs of Staff will honor President Clinton and Sen. Hillary Rodham Clinton today at the Pentagon. Spokesman Bacon said the couple will be applauded " for their support of the military over the last eight years. " I saw this on CSPAN and it was surreal. I had to check the channel to make sure it wasn't a spoof or something. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 That's so much for someone so young to go through. I have a nephew who was born with a cleft lip and pallate and an incomplete esophogus ... and like Hayden, a lot of other problems too. I know how hard it is. I also know what you mean about the smile. My nephew is still one of the happiest children I know. He's 20 now. Sissi Kids' Page http://home.isoa.net/~nitetrax/dillon.htm Life is just one damned thing after another. ~ Elbert Hubbard (unknown) > Hi, > > I am new to the group. My son, Hayden is 10 months old has a 35% curvature > at T10. He has had a custom soft TLSO since October and that seems to be > helping straighten things out a little. We are hoping to keep the curve > under control till Hayden is allot older. Though I have been made > understand that this is quite a sever curve for someone so young and that > there is a better chance of it getting worse than for it to get better. > > So far, the scoliosis has been an easy thing for us. Just put the brace on > and go to check ups. Our bigger concerns have been his eyes, ears, and > other facial abnormalities that have made it necessary for the trach and > Gtube. > > Anyway, I just wanted to introduce myself and Hayden. Glad to have found > this group. ) > > > > Taydoo > Mom to Hayden. Born 02/00 Goldenhar Syndrome. Complete unilateral cleft > lip and pallet (repaired), Severe Bilateral Microphthalmia, Mandibular > Hypoplasia, Microtia, Combined Profound Deafness, Hemifacial Microsomia, > Tethered Tongue, Scoliosis, Trach & Gtube, and the biggest smile any baby > could have. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 ok.... ladies... go to www.urbanlegends.com this is a hoax and NOT at all true! It has however given Mc's enough bad press that they have moved most of their ball pits inside AND most of the newer ones don't even have a ball pit. Melisa ~*~*~*~*~*~*~*~* Did you hear? Breast is Best! Certified Lactation Counselor IBCLC Exam Candidate Homeopathic Counselor in training www.nurturingmama.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 Hi , About the same thing happened to me. I was put in the hospital for 7 days, 60 mg of predinozone and 2 high doses of antibotics. I gained alot of weight too. I am now off the steroid and just on imuran 75 mg per day. I am slowly coming down and I mean slowly. I have been with aih for about 3 years. I prayed alot and now I am in remission for now. Hang in there. Bobbie [ ] (unknown) > Hi everyone. I heard about this group when reading Colleen's story on her > Autoimmune liver disease. My mom found it for me and suggested that I > should read it and then try out this group. Well, here goes!! I was > diagnosed back in March, 2000 with Autoimmune Hepatitis. I had no idea that > I had this. My family and friends started noticing that my eyes were a > little yellow. When going to my family doctor they tested me for every > Hepatitis disease and they all came back negative. They were baffled. They > then sent me to a liver specialist. After doing some testing and seeing the > results, he thought that it might be this Autoimmune Hepatitis, but sent me > down to the University of Pennsylvania to see the head of the department for > a second opinion. After doing tests he confirmed that it was Autoimmune > Hepatitis. Then he wanted to perform a liver biopsy to see how much damage > has been done. His first attempt failed because my liver was too small and > he didn't want to do any additional damage. He then arranged to have a > biopsy done where they go in through the neck and down. That was a painful > process. They gave me some sedation, but I was awake and felt everything. > I never want to go through another one of those again. After all was said > and done, he put me on prednisone and Immuran. He started me off on > 20mg/day of prednisone, and 100mg/day of Immuran. Within 3 months I gained > exactly 30 pounds. The weight has never gone higher than that, but I'm > still devastated with the weight. I was a petite, 125 pound girl who never > had a weight problem ever. And I never thought that I would. Then from all > the sudden weight gain, I got horrible, dark purple strectch marks on my > waist, hips, thighs and calfs. I was too embarassed all summer to get into > a bathing suit and short shorts. I hate being like this. My doctor has > been slowly decreasing my medicine (now 10mg/day of prednisone and still > 100mg/day of Immuran), but the weight just doesn't budge. I don't over-eat > either. It's driving me crazy!!! I'm even embarassed to see people that I > haven't seen since before the weight gain for fear they may say something > about my weight. People don't even recognize me. It's so embarssing. > Then, recently, I went into the hospital with kidney stones. I spent 7 days > in the hospital because one was so badly stuck that I ended up becoming > ceptic, and then I got pneumonia too. The urology doctors believe that the > stones were caused by the prednisone, but they won't know for sure until the > test results come back. I've asked my doctor countless times if he could > put me on another drug that is comparable to prednisone that doesn't have > the awful side affects (weight gain and stretch marks). He keeps telling me > that this is the best thing for me right now. Does anyone know of any other > drug? I hope that there is something out there. Also, if anyone else got > stretch marks from the weight gain, do you know of anything that actually > worked for making them go away? I tried Vitamin E stuff, but that hasn't > showed any results. I'm very depressed about the whole thing, especially > because I never felt sick in the first place. I just dream of the day when > I can fit into my size 6 jeans again. Oh, and to top everything off, my > doctor told me when I was last there that there is a possibility that > someday I may need a liver transplant anyway. So I got upset because I feel > like I'm going through all of this for nothing. I'd just rather have the > transplant then and be done with it. But then again, I heard that the > anti-rejection drugs you have to take after the transplant cause a > tremendous amount of weight gain. This is all so frustrating. Does > everyone else feel the way that I do? I'm at least thankful for my caring > family, friends and boyfriend who are sticking by me through everything. > Please, write back and share your stories and information with me. I am > really in need of some advice and suggestions. I hope to hear from you > soon. Thanks. > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2001 Report Share Posted January 11, 2001 I sympathize you on the social, emotional, and physical effects of the weight gain, but it beats the hell out of being dead. I try to think of the alternative, of having LOST that amount of weight. If you stick to the prednisone now, later you can lose the weight. If you don't, you can be a pretty corpse. Makes the choice a little clearer, doesn't it. In terms of transplant weight, I know one woman who was extremely heavy before her transplant. (She became ill at the same time I did, in May, but wasn't diagnosed until she was going into a coma in August, or so I've been told by her friends.) Her mother tells me that she's losing weight steadily after the successful transplant and feels well. Yes, the weight gain is hard, not only because of social disapproval but because it limits us physically. But, there are worse things, and my doctor says weight loss is possible later. My face, which ballooned, is getting much smaller. I haven't lost any of the 40 pounds I gained in six weeks, but I haven't gained any more, either, and it isn't as strangely placed as it was earlier. I have to get off line now to get a fax. Best wishes. It's a lousy situation for you, but it could be worse. Quote Link to comment Share on other sites More sharing options...
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