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In a message dated 6/8/2007 9:21:05 A.M. Pacific Daylight Time, ib_domesticdiva@... writes:

I guess I am doing better than I thought...NO FOOD is off-limits per se. I just control how much I eat....AND the more I do it the easier it is.

Glad you are doing well . Is dh home now? I can't remember if you posted about that.

See what's free at AOL.com.

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which service are u talkin bt' mam

On Wed, 27 Jun 2007 suman sangwan wrote :

>Dear,

>Could i have this services free from your side,if it is possible then please send me on my mail address.

>reagrds

>suman

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Hi ! Welcome to the group:)

im always up for a nice talk. My name is Adam,Im 22 n live in sweden,i also

have SMA2

My e-mail is adistheone2002@...

as if <xx_laura_s_xx@...> wrote:

Hey just thought I would send a message I just joined and not sure how

this works so I’ll just tell u a bit about me I’m laura I’m 17 and have sma type

2 I joined hoping I could get in touch with some people with the same condition

if your interested in talking to me please e-mail me at

lauramechelle@...

Yours

---------------------------------

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Hi Charlie, Welcome to the family, its great to have you with us. By all means you need to see a doctor about the hep c.. I am on treatment going into my 15th week this Wed. also Wed. I will find out if my viral load is going down. I am genotype 1-b, I am 61 years old and was TERRIFIED of tx. My family here got me through that horribly indecisive time, do not listen to the horror stories out there. I am on interferon and ribavirin [Pegassist and copegus], I take one shot a week and 5 pills aday and will be on tx for 48 weeks. If my viral load isn't going down they will take me off the tx as it is harsh on the system. Everyone reacts different to tx, for me although not a walk in the park it has not been that bad. I have side effects but at this point nothing that can't be handled. There are many of us on tx right now, some just starting out and we will share our experiences with you. How old are you

sweetie and do you know what type hep c you have? Really need to get in to see hepatologist or gastro enterologist doctors to see what type you have and sub-type, viral load in the body and to see how your liver is doing. Most have liver biposy, I never did I have just had ultra-sound and of course alot of blood work. Any questions ask away as someone will know the answer or find out the answer for you. You can find alot of information in the archives or old messages but someone here can tell you how to find it. Again welcome and a big hug to you. WW aka Pat/pandassheryl Barriston wrote: Dear Moderator, I found out I had Hep C when a large tumor was found on my liver, which wasn't malignant thank goodness. I used intravenous drugs for a short time when at University, I assume I contracted it then, which was about 25years ago. I don't know what to expect, whether I should be seeing a doctor about it, what treatment I should be having. I know about interferon but I don't like the sound of the side effects I would appreciate some information about what my options are. Regards Charlie Yahoo!7 Mail has just got even bigger and better with unlimited storage on all webmail accounts. Find out more.

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Hi Charlie, Welcome to the family, its great to have you with us. By all means you need to see a doctor about the hep c.. I am on treatment going into my 15th week this Wed. also Wed. I will find out if my viral load is going down. I am genotype 1-b, I am 61 years old and was TERRIFIED of tx. My family here got me through that horribly indecisive time, do not listen to the horror stories out there. I am on interferon and ribavirin [Pegassist and copegus], I take one shot a week and 5 pills aday and will be on tx for 48 weeks. If my viral load isn't going down they will take me off the tx as it is harsh on the system. Everyone reacts different to tx, for me although not a walk in the park it has not been that bad. I have side effects but at this point nothing that can't be handled. There are many of us on tx right now, some just starting out and we will share our experiences with you. How old are you

sweetie and do you know what type hep c you have? Really need to get in to see hepatologist or gastro enterologist doctors to see what type you have and sub-type, viral load in the body and to see how your liver is doing. Most have liver biposy, I never did I have just had ultra-sound and of course alot of blood work. Any questions ask away as someone will know the answer or find out the answer for you. You can find alot of information in the archives or old messages but someone here can tell you how to find it. Again welcome and a big hug to you. WW aka Pat/pandassheryl Barriston wrote: Dear Moderator, I found out I had Hep C when a large tumor was found on my liver, which wasn't malignant thank goodness. I used intravenous drugs for a short time when at University, I assume I contracted it then, which was about 25years ago. I don't know what to expect, whether I should be seeing a doctor about it, what treatment I should be having. I know about interferon but I don't like the sound of the side effects I would appreciate some information about what my options are. Regards Charlie Yahoo!7 Mail has just got even bigger and better with unlimited storage on all webmail accounts. Find out more.

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Hi Charl

You would be given dual therapy.The needle and pills.So far the only hope has been treatment.What genotype are you. I am genotype 1 and fortunately cleared the virus with treatment in 98-99 with interferon and riboveron.It was three needles a wk then and now it is one needle a wk.You have to see a specialist and he will find out what genotype you are and do a biopsy to determine how much liver damage you have,then what should be done as far as treatment goes.If you are genotype 1 you will have to do treatment for 48wks and if you are genotype 2 or 3 then treatment is 24wks.

Gail

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of sheryl BarristonSent: July 7, 2007 11:12 PMTo: HepatitisCSupportGroupForDummies Subject: (unknown)

Dear Moderator,

I found out I had Hep C when a large tumor was found on my liver, which wasn't malignant thank goodness. I used intravenous drugs for a short time when at University, I assume I contracted it then, which was about 25years ago.

I don't know what to expect, whether I should be seeing a doctor about it, what treatment I should be having. I know about interferon but I don't like the sound of the side effects I would appreciate some information about what my options are.

Regards Charlie

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Hi Charl

You would be given dual therapy.The needle and pills.So far the only hope has been treatment.What genotype are you. I am genotype 1 and fortunately cleared the virus with treatment in 98-99 with interferon and riboveron.It was three needles a wk then and now it is one needle a wk.You have to see a specialist and he will find out what genotype you are and do a biopsy to determine how much liver damage you have,then what should be done as far as treatment goes.If you are genotype 1 you will have to do treatment for 48wks and if you are genotype 2 or 3 then treatment is 24wks.

Gail

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of sheryl BarristonSent: July 7, 2007 11:12 PMTo: HepatitisCSupportGroupForDummies Subject: (unknown)

Dear Moderator,

I found out I had Hep C when a large tumor was found on my liver, which wasn't malignant thank goodness. I used intravenous drugs for a short time when at University, I assume I contracted it then, which was about 25years ago.

I don't know what to expect, whether I should be seeing a doctor about it, what treatment I should be having. I know about interferon but I don't like the sound of the side effects I would appreciate some information about what my options are.

Regards Charlie

Yahoo!7 Mail has just got even bigger and better with unlimited storage on all webmail accounts. Find out more.

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Hi Charl

You would be given dual therapy.The needle and pills.So far the only hope has been treatment.What genotype are you. I am genotype 1 and fortunately cleared the virus with treatment in 98-99 with interferon and riboveron.It was three needles a wk then and now it is one needle a wk.You have to see a specialist and he will find out what genotype you are and do a biopsy to determine how much liver damage you have,then what should be done as far as treatment goes.If you are genotype 1 you will have to do treatment for 48wks and if you are genotype 2 or 3 then treatment is 24wks.

Gail

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of sheryl BarristonSent: July 7, 2007 11:12 PMTo: HepatitisCSupportGroupForDummies Subject: (unknown)

Dear Moderator,

I found out I had Hep C when a large tumor was found on my liver, which wasn't malignant thank goodness. I used intravenous drugs for a short time when at University, I assume I contracted it then, which was about 25years ago.

I don't know what to expect, whether I should be seeing a doctor about it, what treatment I should be having. I know about interferon but I don't like the sound of the side effects I would appreciate some information about what my options are.

Regards Charlie

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Hi Charlie,

I'm glad your tumor wasn't malignant. Even though treatment isn't so

great, I'd do it if I were in your shoes. I can tell you from the

perspective of seeing someone survive 2 liver transplants that it

really is best to put the virus in remission. Transplant, while not

horrible, is certainly the less desirable of the options. You may

not feel terribly sick now, but end stage liver disease is no fun.

Spending the rest of your life on immunosupressive drugs is no picnic

either.

Carol

>

> Hi Charl

> You would be given dual therapy.The needle and pills.So far the

only hope

> has been treatment.What genotype are you. I am genotype 1 and

fortunately

> cleared the virus with treatment in 98-99 with interferon and

riboveron.It

> was three needles a wk then and now it is one needle a wk.You have

to see a

> specialist and he will find out what genotype you are and do a

biopsy to

> determine how much liver damage you have,then what should be done

as far as

> treatment goes.If you are genotype 1 you will have to do treatment

for 48wks

> and if you are genotype 2 or 3 then treatment is 24wks.

> Gail

> (unknown)

>

>

> Dear Moderator,

>

> I found out I had Hep C when a large tumor was found on my liver,

which

> wasn't malignant thank goodness. I used intravenous drugs for a

short time

> when at University, I assume I contracted it then, which was about

25years

> ago.

> I don't know what to expect, whether I should be seeing a doctor

about it,

> what treatment I should be having. I know about interferon but I

don't like

> the sound of the side effects I would appreciate some information

about what

> my options are.

> Regards Charlie

>

>

> --------------------------------------------------------------------

--------

> --

> Yahoo!7 Mail has just got even bigger and better with unlimited

storage on

> all webmail accounts. Find out more.

>

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Hi !

My name is and I have SMA Type I. I am 28 years old, I'm married, and I

gave birth to a beautiful baby girl 13 weeks ago. We like in Amelia, Ohio and I

work full-time for Hewlett-Packard.

Welcome to the group!

Milinovich, SMA Type I

Wife to , Mommy to - 13 Weeks Old!

(unknown)

Hey just thought I would send a message I just joined and not sure how this

works so IÃÍl just tell u a bit about me IÃÎ laura IÃÎ 17 and

have sma type 2 I joined hoping I could get in touch with some people with the

same condition if your interested in talking to me please e-mail me at

lauramechelle@ hotmail.co. uk

Yours

------------ --------- --------- ---

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the Championships. Plus: play games and win prizes.

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Hola o:

Me encuentro bien, un poco cansado pero bien. El frio me ha estado dando pelea

pero he podido seguir con mis asuntos normalmente. Espero que te encuentres bien

y que el frio no te haya afectado.

Saludos

Claudio s

o ni escribió:

Hola Claudio: Como estas? Simplemente como hace varios dias que no nos hablamos

queria saber como seguias.- Nada mas por el momento Claudio, espero noticias

tuyas para mantenernos unidos y en contacto.-

Un abrazo.- Espero que estes bien

o ni

---------------------------------

Preguntá. Respondé. Descubrí.

Todo lo que querías saber, y lo que ni imaginabas,

está en Yahoo! Respuestas (Beta).

Probalo ya!

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Hola o:

Me encuentro bien, un poco cansado pero bien. El frio me ha estado dando pelea

pero he podido seguir con mis asuntos normalmente. Espero que te encuentres bien

y que el frio no te haya afectado.

Saludos

Claudio s

o ni escribió:

Hola Claudio: Como estas? Simplemente como hace varios dias que no nos hablamos

queria saber como seguias.- Nada mas por el momento Claudio, espero noticias

tuyas para mantenernos unidos y en contacto.-

Un abrazo.- Espero que estes bien

o ni

---------------------------------

Preguntá. Respondé. Descubrí.

Todo lo que querías saber, y lo que ni imaginabas,

está en Yahoo! Respuestas (Beta).

Probalo ya!

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Hola o:

Me encuentro bien, un poco cansado pero bien. El frio me ha estado dando pelea

pero he podido seguir con mis asuntos normalmente. Espero que te encuentres bien

y que el frio no te haya afectado.

Saludos

Claudio s

o ni escribió:

Hola Claudio: Como estas? Simplemente como hace varios dias que no nos hablamos

queria saber como seguias.- Nada mas por el momento Claudio, espero noticias

tuyas para mantenernos unidos y en contacto.-

Un abrazo.- Espero que estes bien

o ni

---------------------------------

Preguntá. Respondé. Descubrí.

Todo lo que querías saber, y lo que ni imaginabas,

está en Yahoo! Respuestas (Beta).

Probalo ya!

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Hola Claudio: Me alegro que estes desarrollando tus tareas normalmente.- A mi el

Frio no me ha tratado mal por el momento, a pesar de que en mi pueblo, Arequito,

Cayo despues de 34 Años Agua Nieve durante todo el día 9 de Julio.-

Bueno he estado leyendo hoy que hay gente del grupo que ha realizado

traamiento con Acupuntura y les esta dando resultados favorables a algunos, por

lo menos eso es lo que yo entendí a traves de gente que me traduce los textos.-

Vos sabes que yo estaba intentando ir a dos medicos que hacen acupuntura pero no

me animaba pero ahora veo que puede andar ese Tema.-Yo voy a ir a ver a medicos

que hacen acupuntura y si tomo la determinación de hacermela te voy a ir

comentando como sigue la historia, -

Bueno Claudio, nada mas por el momento, un abrazo y nos mantendremos en

contacto.-

o

claudio rosas escribió:

Hola o:

Me encuentro bien, un poco cansado pero bien. El frio me ha estado dando pelea

pero he podido seguir con mis asuntos normalmente. Espero que te encuentres bien

y que el frio no te haya afectado.

Saludos

Claudio s

o ni escribió: Hola Claudio: Como

estas? Simplemente como hace varios dias que no nos hablamos queria saber como

seguias.- Nada mas por el momento Claudio, espero noticias tuyas para

mantenernos unidos y en contacto.-

Un abrazo.- Espero que estes bien

o ni

---------------------------------

Preguntá. Respondé. Descubrí.

Todo lo que querías saber, y lo que ni imaginabas,

está en Yahoo! Respuestas (Beta).

Probalo ya!

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Hola Claudio: Me alegro que estes desarrollando tus tareas normalmente.- A mi el

Frio no me ha tratado mal por el momento, a pesar de que en mi pueblo, Arequito,

Cayo despues de 34 Años Agua Nieve durante todo el día 9 de Julio.-

Bueno he estado leyendo hoy que hay gente del grupo que ha realizado

traamiento con Acupuntura y les esta dando resultados favorables a algunos, por

lo menos eso es lo que yo entendí a traves de gente que me traduce los textos.-

Vos sabes que yo estaba intentando ir a dos medicos que hacen acupuntura pero no

me animaba pero ahora veo que puede andar ese Tema.-Yo voy a ir a ver a medicos

que hacen acupuntura y si tomo la determinación de hacermela te voy a ir

comentando como sigue la historia, -

Bueno Claudio, nada mas por el momento, un abrazo y nos mantendremos en

contacto.-

o

claudio rosas escribió:

Hola o:

Me encuentro bien, un poco cansado pero bien. El frio me ha estado dando pelea

pero he podido seguir con mis asuntos normalmente. Espero que te encuentres bien

y que el frio no te haya afectado.

Saludos

Claudio s

o ni escribió: Hola Claudio: Como

estas? Simplemente como hace varios dias que no nos hablamos queria saber como

seguias.- Nada mas por el momento Claudio, espero noticias tuyas para

mantenernos unidos y en contacto.-

Un abrazo.- Espero que estes bien

o ni

---------------------------------

Preguntá. Respondé. Descubrí.

Todo lo que querías saber, y lo que ni imaginabas,

está en Yahoo! Respuestas (Beta).

Probalo ya!

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Hola Claudio: Me alegro que estes desarrollando tus tareas normalmente.- A mi el

Frio no me ha tratado mal por el momento, a pesar de que en mi pueblo, Arequito,

Cayo despues de 34 Años Agua Nieve durante todo el día 9 de Julio.-

Bueno he estado leyendo hoy que hay gente del grupo que ha realizado

traamiento con Acupuntura y les esta dando resultados favorables a algunos, por

lo menos eso es lo que yo entendí a traves de gente que me traduce los textos.-

Vos sabes que yo estaba intentando ir a dos medicos que hacen acupuntura pero no

me animaba pero ahora veo que puede andar ese Tema.-Yo voy a ir a ver a medicos

que hacen acupuntura y si tomo la determinación de hacermela te voy a ir

comentando como sigue la historia, -

Bueno Claudio, nada mas por el momento, un abrazo y nos mantendremos en

contacto.-

o

claudio rosas escribió:

Hola o:

Me encuentro bien, un poco cansado pero bien. El frio me ha estado dando pelea

pero he podido seguir con mis asuntos normalmente. Espero que te encuentres bien

y que el frio no te haya afectado.

Saludos

Claudio s

o ni escribió: Hola Claudio: Como

estas? Simplemente como hace varios dias que no nos hablamos queria saber como

seguias.- Nada mas por el momento Claudio, espero noticias tuyas para

mantenernos unidos y en contacto.-

Un abrazo.- Espero que estes bien

o ni

---------------------------------

Preguntá. Respondé. Descubrí.

Todo lo que querías saber, y lo que ni imaginabas,

está en Yahoo! Respuestas (Beta).

Probalo ya!

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Hi Silvia and welcome to the group. I don't post too much but usually try to

read most posts. I have been chair of a large fm group for 10yrs and believe me

in that time I have heard many stories of doctors. Please try to put this doc

behind you ('I don't believe in fm') I really don't know why these docs persist,

do they not believe inthe world health organization or in the uk the NHS Direct

website, or the Arthritis Care charity. Try to find another doc who takes you

seriously. Its good that you've kept off the meds, but you shouldn't be going

through the pain alone.

I hope your pain is not too bad today.

Hugs

Sue

[ ] (unknown)

Hello all:

I am new to the group, my name is Silvia. The reason I wanted to join your

group is that I just really felt that I need to find a way to socialize with

others who deal with pain...I have had fibromyalgia for 16years. Minus my

thyroid meds I have been med free for 8 months (wish I could say I have pain

free but...... ) I have been dealing with a rotator cuff tear/frozen shoulder

for several month now and will be seeing a new rhematologist soon.

my heart goes out to your mother and you - it is sad that in the

medical profession that there are still doctor's and nurse who have no business

being in a caregiving profession. I have recently had several different

experience with bad doctor (one told me he did not believe in fibromyalgia) -

many time I have left a doctor office crying-it is really sad- because you do

not always know what they will be like until you visit them. I wish you the best

of luck in finding a doctor for your mother.

---------------------------------

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Hi Silvia.

Welcome to the group. You will find that all of us here can understand the

pain you are feeling anf what can be a really difficult thing to expain when

you look like you are ok but inside you are hurting like ****.I Have Fibro

as well so if ya have questions feel free to ask. Thats what the group is

here for.

Heidi M

On 7/18/07, Sue <sujon@...> wrote:

>

> Hi Silvia and welcome to the group. I don't post too much but usually

> try to read most posts. I have been chair of a large fm group for 10yrs and

> believe me in that time I have heard many stories of doctors. Please try to

> put this doc behind you ('I don't believe in fm') I really don't know why

> these docs persist, do they not believe inthe world health organization or

> in the uk the NHS Direct website, or the Arthritis Care charity. Try to find

> another doc who takes you seriously. Its good that you've kept off the meds,

> but you shouldn't be going through the pain alone.

> I hope your pain is not too bad today.

> Hugs

> Sue

> [ ] (unknown)

>

> Hello all:

>

> I am new to the group, my name is Silvia. The reason I wanted to join your

> group is that I just really felt that I need to find a way to socialize with

> others who deal with pain...I have had fibromyalgia for 16years. Minus my

> thyroid meds I have been med free for 8 months (wish I could say I have pain

> free but...... ) I have been dealing with a rotator cuff tear/frozen

> shoulder for several month now and will be seeing a new rhematologist soon.

>

> my heart goes out to your mother and you - it is sad that in the

> medical profession that there are still doctor's and nurse who have no

> business being in a caregiving profession. I have recently had several

> different experience with bad doctor (one told me he did not believe in

> fibromyalgia) - many time I have left a doctor office crying-it is really

> sad- because you do not always know what they will be like until you visit

> them. I wish you the best of luck in finding a doctor for your mother.

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on

> TV.

>

>

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  • 2 weeks later...
Guest guest

Larry, you're a damn lucky man! Kirk.

>

> Hey all,

>

> This patty Larry's wife from NC. i want you to know that you are in

> our thoughts a prayers and if you have any questions for me i will be more

> then glad to answer them.

>

> , I truly understamd what you are going through, this is very

> difficult. Larry has been sick for 2 and a half years. And yes every time i

> turn around something new is going on. When he first got sick I was running

> around like a chicken with my head cut off. It took a little over a month

> for the docs to tell me what was wrong with him. He had to quit working. I

> had to start working another job that took me from home and our two youngest

> daughters 18 and 15 at the time took over the house and taking care of

> Larry. My youngest did not finish school she stayed 24/7 with him. She is

> now 18, and trying to go back to school. Larry had to have fluid drawn off

> his lungs before we had a name to fight. Within the first year and a half he

> had to have two hip replacements. and had to be out of work again. He has

> been unable to drive himself to docs, and i have to get off of work to take

> him. Now just the last couple of months he has had to go on total disability

> from work and there is a real chance he will not ever go back. He was dx.

> with fibromyliga or how ever you spell that. He is so tired all the time we

> never get to go out and i cant even think of a vacation to go some where. I

> know this sounds grim, but through it all Larry and i have beccome best of

> friends. We talk about everything. He has become closer to the kids and able

> to learn to play, thanks to our one year old grand daughter. Times are hard,

> we still have the everyday problems as we did before stills, but now we tend

> to deal with that better then we did before stills. So i really do know what

> you are going through and if you need some one to vent with let me know. My

> email address is airforcemom1984@... <airforcemom1984%40yahoo.com>And

yes it is okay to get angry. It is okay to say i am not going to deal

> with this today. Even though you will deal with it. And yes you will feel at

> times that you just might quit. But before you do , sit down and talk.

> Always let him know

> how you feel. Even if it might hurt him. Walking away will hurt worse.

> Take care and please if i can help i will be more then glad to. No i am not

> a Saint. I get angry and i feel like walking sometimes. I am just human. But

> through it all i still love my husband and want the best i can get for him.

>

> God Bless and keep looking for the blessings,

> Patty

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with Yahoo!

> FareChase.

>

>

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Larry, you're a damn lucky man! Kirk.

>

> Hey all,

>

> This patty Larry's wife from NC. i want you to know that you are in

> our thoughts a prayers and if you have any questions for me i will be more

> then glad to answer them.

>

> , I truly understamd what you are going through, this is very

> difficult. Larry has been sick for 2 and a half years. And yes every time i

> turn around something new is going on. When he first got sick I was running

> around like a chicken with my head cut off. It took a little over a month

> for the docs to tell me what was wrong with him. He had to quit working. I

> had to start working another job that took me from home and our two youngest

> daughters 18 and 15 at the time took over the house and taking care of

> Larry. My youngest did not finish school she stayed 24/7 with him. She is

> now 18, and trying to go back to school. Larry had to have fluid drawn off

> his lungs before we had a name to fight. Within the first year and a half he

> had to have two hip replacements. and had to be out of work again. He has

> been unable to drive himself to docs, and i have to get off of work to take

> him. Now just the last couple of months he has had to go on total disability

> from work and there is a real chance he will not ever go back. He was dx.

> with fibromyliga or how ever you spell that. He is so tired all the time we

> never get to go out and i cant even think of a vacation to go some where. I

> know this sounds grim, but through it all Larry and i have beccome best of

> friends. We talk about everything. He has become closer to the kids and able

> to learn to play, thanks to our one year old grand daughter. Times are hard,

> we still have the everyday problems as we did before stills, but now we tend

> to deal with that better then we did before stills. So i really do know what

> you are going through and if you need some one to vent with let me know. My

> email address is airforcemom1984@... <airforcemom1984%40yahoo.com>And

yes it is okay to get angry. It is okay to say i am not going to deal

> with this today. Even though you will deal with it. And yes you will feel at

> times that you just might quit. But before you do , sit down and talk.

> Always let him know

> how you feel. Even if it might hurt him. Walking away will hurt worse.

> Take care and please if i can help i will be more then glad to. No i am not

> a Saint. I get angry and i feel like walking sometimes. I am just human. But

> through it all i still love my husband and want the best i can get for him.

>

> God Bless and keep looking for the blessings,

> Patty

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with Yahoo!

> FareChase.

>

>

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Guest guest

Larry, you're a damn lucky man! Kirk.

>

> Hey all,

>

> This patty Larry's wife from NC. i want you to know that you are in

> our thoughts a prayers and if you have any questions for me i will be more

> then glad to answer them.

>

> , I truly understamd what you are going through, this is very

> difficult. Larry has been sick for 2 and a half years. And yes every time i

> turn around something new is going on. When he first got sick I was running

> around like a chicken with my head cut off. It took a little over a month

> for the docs to tell me what was wrong with him. He had to quit working. I

> had to start working another job that took me from home and our two youngest

> daughters 18 and 15 at the time took over the house and taking care of

> Larry. My youngest did not finish school she stayed 24/7 with him. She is

> now 18, and trying to go back to school. Larry had to have fluid drawn off

> his lungs before we had a name to fight. Within the first year and a half he

> had to have two hip replacements. and had to be out of work again. He has

> been unable to drive himself to docs, and i have to get off of work to take

> him. Now just the last couple of months he has had to go on total disability

> from work and there is a real chance he will not ever go back. He was dx.

> with fibromyliga or how ever you spell that. He is so tired all the time we

> never get to go out and i cant even think of a vacation to go some where. I

> know this sounds grim, but through it all Larry and i have beccome best of

> friends. We talk about everything. He has become closer to the kids and able

> to learn to play, thanks to our one year old grand daughter. Times are hard,

> we still have the everyday problems as we did before stills, but now we tend

> to deal with that better then we did before stills. So i really do know what

> you are going through and if you need some one to vent with let me know. My

> email address is airforcemom1984@... <airforcemom1984%40yahoo.com>And

yes it is okay to get angry. It is okay to say i am not going to deal

> with this today. Even though you will deal with it. And yes you will feel at

> times that you just might quit. But before you do , sit down and talk.

> Always let him know

> how you feel. Even if it might hurt him. Walking away will hurt worse.

> Take care and please if i can help i will be more then glad to. No i am not

> a Saint. I get angry and i feel like walking sometimes. I am just human. But

> through it all i still love my husband and want the best i can get for him.

>

> God Bless and keep looking for the blessings,

> Patty

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with Yahoo!

> FareChase.

>

>

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  • 4 weeks later...

I do not know the answer, but I know that my daughter is 4/12 and still

being casted. Also I think Bridget was casted until age 6.

Hope that helps!

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of

llucy007@...

Sent: Sunday, August 19, 2007 9:37 PM

To: infantile_scoliosis

Subject: (unknown)

I was woundering what is the oldest a child can get casted?

Sent via BlackBerry from T-Mobile

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I do not know the answer, but I know that my daughter is 4/12 and still

being casted. Also I think Bridget was casted until age 6.

Hope that helps!

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of

llucy007@...

Sent: Sunday, August 19, 2007 9:37 PM

To: infantile_scoliosis

Subject: (unknown)

I was woundering what is the oldest a child can get casted?

Sent via BlackBerry from T-Mobile

Link to comment
Share on other sites

I do not know the answer, but I know that my daughter is 4/12 and still

being casted. Also I think Bridget was casted until age 6.

Hope that helps!

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of

llucy007@...

Sent: Sunday, August 19, 2007 9:37 PM

To: infantile_scoliosis

Subject: (unknown)

I was woundering what is the oldest a child can get casted?

Sent via BlackBerry from T-Mobile

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