Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Yeah, i had just started a new job and went from having really great insurance to having to wait 90 days....then it hit and now even if i could go back to work full time now i have a " pre-existing condition. It really sucks the way things turn out some times. I don't what i'm going to do if i can't get on this county program. I guess force myself to go back to work full time and pay for everything myself. then i won't qualify for ANY patient assistance program! I feel like i'm caught in some sort of vicious cycle here. damned if i do and damned if i don't. How long have you known you were hcv+? If you don't mind me asking. I just hope i don't have any cirrhosis already. But the docs seems to think i've been diagnosed really early. (crossing my fingers) anyway, i don't know what my viral load is, though they told me at the hospital that they were going to check it...and monday i'll find out if i can get some medical assistance. Nice talking to you...it helps to talk to someone who's going through this already. Keianne <sparkydabomb@...> wrote: you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Yeah, i had just started a new job and went from having really great insurance to having to wait 90 days....then it hit and now even if i could go back to work full time now i have a " pre-existing condition. It really sucks the way things turn out some times. I don't what i'm going to do if i can't get on this county program. I guess force myself to go back to work full time and pay for everything myself. then i won't qualify for ANY patient assistance program! I feel like i'm caught in some sort of vicious cycle here. damned if i do and damned if i don't. How long have you known you were hcv+? If you don't mind me asking. I just hope i don't have any cirrhosis already. But the docs seems to think i've been diagnosed really early. (crossing my fingers) anyway, i don't know what my viral load is, though they told me at the hospital that they were going to check it...and monday i'll find out if i can get some medical assistance. Nice talking to you...it helps to talk to someone who's going through this already. Keianne <sparkydabomb@...> wrote: you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Yeah, i had just started a new job and went from having really great insurance to having to wait 90 days....then it hit and now even if i could go back to work full time now i have a " pre-existing condition. It really sucks the way things turn out some times. I don't what i'm going to do if i can't get on this county program. I guess force myself to go back to work full time and pay for everything myself. then i won't qualify for ANY patient assistance program! I feel like i'm caught in some sort of vicious cycle here. damned if i do and damned if i don't. How long have you known you were hcv+? If you don't mind me asking. I just hope i don't have any cirrhosis already. But the docs seems to think i've been diagnosed really early. (crossing my fingers) anyway, i don't know what my viral load is, though they told me at the hospital that they were going to check it...and monday i'll find out if i can get some medical assistance. Nice talking to you...it helps to talk to someone who's going through this already. Keianne <sparkydabomb@...> wrote: you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Yeah, i had just started a new job and went from having really great insurance to having to wait 90 days....then it hit and now even if i could go back to work full time now i have a " pre-existing condition. It really sucks the way things turn out some times. I don't what i'm going to do if i can't get on this county program. I guess force myself to go back to work full time and pay for everything myself. then i won't qualify for ANY patient assistance program! I feel like i'm caught in some sort of vicious cycle here. damned if i do and damned if i don't. How long have you known you were hcv+? If you don't mind me asking. I just hope i don't have any cirrhosis already. But the docs seems to think i've been diagnosed really early. (crossing my fingers) anyway, i don't know what my viral load is, though they told me at the hospital that they were going to check it...and monday i'll find out if i can get some medical assistance. Nice talking to you...it helps to talk to someone who's going through this already. Keianne <sparkydabomb@...> wrote: you are welcome.........no prob at all..........yeah the blood work is costly too......I feel.....my personal opinion is....no matter what the viral load and the geno type........do the treatment......and kill the dragon.....I am hope by lab time in one month that I have cleard..........3.6 million to 63 tousand in 5 shots I think I am responding rather good.........so, no matter how low your viral load....get after it quick...once your Dr. prescribes it for you.......then you can get it from ROCHE free if your income meets...........my 06 takes showed i had about 1200.00 comming back but they still approved that plus the fact i am on state medical insurance (welfare style) which pays for my labs.........I would not being doing TX.....so good luck keep in touch if ya want...... the stuff interferon is pretty pricey PLUS the pills..........depending on what your doctor has ordered for you (peg-intron) Schering-Plough has a patient Assistance program and (pegasys) Roche has one as well if you need the web address or phone number let me know or search for them in the links section to your left of the main page of the group........I have had both and found pegasys to be better for me........I get my pills and shots free for one year from ROCHE.........and it is working great.....i started TX about 4 1/2 years ago with peg-intron and went from 13.5 million to 900,000 and quit responding so I waited a bit and switched doctors am taking treatment again.....(2nd time) with pegasys and have gone from 3.6 million down to 63,480 genotype 1A........and all is well and going good.....good luck and apply for free help thru the MFG of the interferon..... > > Respects, > > SparkyDaBomb > www.angelfire.com/ks/dabombshouse (my personal webpage) > www.myspace.com (my myspace page) > www.wti.edu (school I go to) > > __________________________________________________________ > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > http://mobile./mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 In a message dated 5/22/2007 3:18:48 AM GMT Daylight Time, jaime_schunkewitz@... writes: My ears won't stop ringing, and it's getting worse. There are 4-5 wireless networks in the vicinity. It'll drive me nuts before long. No doubt EMR causes the tinnitus, along with loud noise. UK - Perhaps microwaves are greeted by the ears as if they were a loud noise ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 Hello, I was banded on the 23 awsome experience. Yes your makeup needs to be in ziplock bag. I took those thera packs that they advertise, i didn't need it, but another person i gave it too said it did help. i put them in my checked bag, you could always ask a travel agent. I like you had food as my constant compainion. It was my activity our socialization always revolved around where to go eat. I am, right now going to kind of stay in the wings on the socialization until i know i will behave. The staff of dr a. ARE AWESOME... perfectly attentive and will go out of the way to do whatever they can to meet your needs not only your health needs. I was worried what i was going to "eat" on the way home to KS, and San Diego airport had a sub and soup place soup was wonderful, found similar in Dallas and carried my crystal light to put in my water and drank some apple juice to balance things out. Meds needs to be in ziplock also remember only 3oz of liquid travel sizes. Take PJS, / robe, i didn't so i changed quickly to pj/sweats DH was there to help and so was friend from PHX. take slippers or other type of slip on shoes to walk in you will WANT to walk for the gas pains. It does really help. Good luck, i was up the same day of course but 2nd day felt great, shower and change of clothes and i got to go talk to the next 3 coming in and help answer their questions and show them that for me there was no intense pain, and that it works out and to help calm their nerves. I was lucky I had my friend Bipley there to help me... She is the Greatest!! Hope that helps. and i do know that there are going to be those days of oh my gosh can i make this but I know that My God allowed this to happen and put all the pieces together from time off for myself/hubby, the $$$, and Bipley's posts that led me to the decision to make my life better/healthier. So Above all things i wanted to Praise God my Lord and Savior for my journey and the people that he has blessed me to put in my path. luv_a_wallflower1 <tjuel@...> wrote: First off, thank you all for your words of wisdom and advice, I keep wavering about going, but I honestly think it's because I'm afraid not to be able to have food as my "friend", much the same way that cigarettes were before I quit smoking. Has anyone found that they've replaced their food addiction with some other addiction? I don't want to start smoking again!I think I am all ready to go, but have a few questions: Is it a problem bringing a heating pad on the plane in your carry on? I have a ziplock bag for my toiletries--does my makeup and meds need to go in there also? Can you have more than 1 ziplock bag? I didn't really see any clarification on the airline website.Lastly, how are the recently banded folks doing? I've seen one posting from Myra, but haven't seen a posting from Holden. How is everyone doing, including any other newbies?! Thanks again everyone! Looking for a deal? Find great prices on flights and hotels with FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Vonda, Happy Birthday! I'm sorry you're not enjoying it more. I have dermatomyositis too, and started AP in May 2005. I'm finally starting to reap the benefits and feel a lot better, but I did get a lot worse for a long time. Stay with it! Do you see Dr. Nebbeling? I think I remember giving you his name a while back. He told me to have my jawbone checked for infection. I did that, and had it removed, and after that the AP started kicking in and I did better and better. Before that I was miserable on the antibiotics. He also has that hyperbaric oxygen he's doing now. I did a few sessions and it took away the " sick " feeling for a couple weeks, but didn't do much for strength. You have a pretty long standing disease; it could take a while longer to get to the turnaround. Dr. Mercola has an impressive story on his website _www.mercola.com_ (http://www.mercola.com) about someone who recovered from dermatomyositis using antibiotics and EFT. I haven't tried EFT yet, but I'm going to soon. Hang in there, hopefully your next birthday will give you a lot to celebrate! I can't believe how much better I'm doing than just one year ago. Emma ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Thanks , I'm glad God put you in my path, you've been very helpful. You are appreciated! Theresa > First off, thank you all for your words of wisdom and advice, I keep > wavering about going, but I honestly think it's because I'm afraid not > to be able to have food as my " friend " , much the same way that > cigarettes were before I quit smoking. Has anyone found that they've > replaced their food addiction with some other addiction? I don't want > to start smoking again! > > I think I am all ready to go, but have a few questions: Is it a > problem bringing a heating pad on the plane in your carry on? I have > a ziplock bag for my toiletries--does my makeup and meds need to go in > there also? Can you have more than 1 ziplock bag? I didn't really see > any clarification on the airline website. > > Lastly, how are the recently banded folks doing? I've seen one > posting from Myra, but haven't seen a posting from Holden. How is > everyone doing, including any other newbies?! > > Thanks again everyone! > > > > > > > > > --------------------------------- > Looking for a deal? Find great prices on flights and hotels with FareChase. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 You are welcome- there was a post that was the May 24 gang, that has WONDERFUL pics of hospital ect, and of course of our threesome... keep in touch, love to chat! you will do wonderful.. sonialuv_a_wallflower1 <tjuel@...> wrote: Thanks , I'm glad God put you in my path, you've been very helpful. You are appreciated! Theresa> First off, thank you all for your words of wisdom and advice, I keep > wavering about going, but I honestly think it's because I'm afraid not > to be able to have food as my "friend", much the same way that > cigarettes were before I quit smoking. Has anyone found that they've > replaced their food addiction with some other addiction? I don't want > to start smoking again!> > I think I am all ready to go, but have a few questions: Is it a > problem bringing a heating pad on the plane in your carry on? I have > a ziplock bag for my toiletries--does my makeup and meds need to go in > there also? Can you have more than 1 ziplock bag? I didn't really see > any clarification on the airline website.> > Lastly, how are the recently banded folks doing? I've seen one > posting from Myra, but haven't seen a posting from Holden. How is > everyone doing, including any other newbies?! > > Thanks again everyone!> > > > > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.> We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list. No need to miss a message. Get email on-the-go with for Mobile. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 Great news . We are at the same weight. I have kicked up my exercise program last week and am mixing it up a little to help move those numbers down a bit. I haven't seen onderland in probably 9-10 years. I'm ready for it. Let's keep each other posted. C Tampa From: Michel <mchlanna@...>Reply- To: Aceves < >Subject: (unknown)Date: Tue, 29 May 2007 10:49:09 -0700 (PDT) Hi Everyone, I want to share with everyone that I am six lbs away from onderland. I was banded on July 1, 2006 weighing in at 299 today I am weighing 206. I feel so awesome, for the first time in years I was able to wear a bathing suit and not look funny. I received many compliments from family members that have not seen me in a while. My brother even told me I was starting to look like his old sister again. That made me feel good. I was able to get on and off a jet ski without any problems. Life is great with the band and I'm so happy that I had the procedure done with Dr. Aceves and his team. They are great, and I love Dr. Campos too, he wasn't part of the team when I had surgery but, he has giving me my fills. 1 fill, 1 unfill and 1 re-fill. I currently have .7CC's and have a great restriction. Life is great!!!!! Michel 299,206,175 Michel Don't pick lemons.See all the new 2007 cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 ,What a wonderful successs you have had!! Congrats! Cyrena www.mylapbandjourney.com(240) 230/188/150DOB: 1/19/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Thank You.Cyrena Weeks <cyrenaweeks@...> wrote: ,What a wonderful successs you have had!! Congrats! Cyrena www.mylapbandjourney.com(240) 230/188/150DOB: 1/19/07 Michel Looking for a deal? Find great prices on flights and hotels with FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Sounds good, I haven't been onderland since I was 28 and I'm 40 now, so when I hit onderland I'm going to be having a party. <ldccox@...> wrote: Great news . We are at the same weight. I have kicked up my exercise program last week and am mixing it up a little to help move those numbers down a bit. I haven't seen onderland in probably 9-10 years. I'm ready for it. Let's keep each other posted. C Tampa From: Michel <mchlanna >Reply- To: Aceves < >Subject: (unknown)Date: Tue, 29 May 2007 10:49:09 -0700 (PDT) Hi Everyone, I want to share with everyone that I am six lbs away from onderland. I was banded on July 1, 2006 weighing in at 299 today I am weighing 206. I feel so awesome, for the first time in years I was able to wear a bathing suit and not look funny. I received many compliments from family members that have not seen me in a while. My brother even told me I was starting to look like his old sister again. That made me feel good. I was able to get on and off a jet ski without any problems. Life is great with the band and I'm so happy that I had the procedure done with Dr. Aceves and his team. They are great, and I love Dr. Campos too, he wasn't part of the team when I had surgery but, he has giving me my fills. 1 fill, 1 unfill and 1 re-fill. I currently have .7CC's and have a great restriction. Life is great!!!!! Michel 299,206,175 Michel Don't pick lemons.See all the new 2007 cars at Autos. Michel Need Mail bonding?Go to the Q&A for great tips from Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Hi Trudy I am so sorry to hear about your little girls, the fevers that have been going on all her life as well as the kidney problem. It must be hard to deal with. I will tell you a little about our daughter, perhaps it will help. Emma (22 months, fevering since 11 months), has no symptoms besides the fevers during the episodes. She is clearly in a lot of pain, maybe joint pain, but she can't verbalise it yet. She also has her fingers in her mouth constantly but I have never seen any ulcers. The fevers came 3-4 weekly until November 2006. We then had a 7-week break followed by the worst-ever episode (7 days and fevers of over 106) and then another 14-week break. We are suspecting but since one cannot do a test to diagnose this disease, this is only a suspicion at this stage. We still have many blood- and possible genetic testing ahead of us to exclude all those other, mostly genetic diseases (TRAPS, HIDS, FMF, cyclic neutropenia etc). We have been lucky compared to most families in this group in that we have had these long breaks relatively early in Emma's time of periodic fevers. We tried Predinisone for the first time during the last episode and her fever went away within 1.5 hours (paracetamol etc doesn't usually touch the fevers and we have her in a tepid bath several time a day and night to help reduce the temperature). We are worried the next episode will now come more quickly as this is one of the usual side-effects of using the cortico-steroid. The last episode was almost 6 weeks ago and Emma is still fever-free. So fingers crossed! Take care and good luck Inga (unknown) I have a 3 1/2 year old little girl. She has had unexplained fevers since birth. She has been hospitalized several times for the fevers and dehydration. We met with a new Internal Disease Doctor yesterday and he feels that she may have . The only thing that is keeping him form actualy labeling her with this is the fact that she has also battled kidney reflux. The kidney doctor has said that he belives all of her reoccurring episodes are not all related to her kidneys. He feels that there has been an underlining problem the whole time, but the I D doctor wants to speak with him. I had never even heard of until yesterday. When she has been in the hospital doctors have noted swollen lymph nodes. Also, we have noticed sores in her mouth at different times. I am to keep a daily journal over the next 3 months. Her I D doctor told me about these sites and told me the best way to look for other signs of her having is to ask other parents what to look for. So anyone that can be of help, I would love to hear from you. All of you that have a loved one that is dealing with this disease, you are in my prayers. Thanks ------------ --------- --------- --- Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos & more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Hi DJ, Its hard to say because everyone is different and reacts to the LDN different like any other meds. Try not to get all worked up so fast because if something doesn't happen within the time you want to or expect then you'll just get discouraged so just take it one day at a time.....Don't Rush The Process!!! It can take up to a year for some people to see any improvement so feel lucky that your already seeing improvements... Love & Blessings, Crystal LDN_Users Group Owner Crystal's MS,TM & LDN Website Crystal's LDN Support Group MS & TM Spouse & Caregiver Support Group Crystal's MySpace [low dose naltrexone] (unknown) Hi all just wanted to report to all of you that the LDN is working was dx with MS OCT 06 started taking 4.5 MGS OFthe LDN April o7.I see improvement already.How long on the average can one expect too see improvement walking.what is everyones expeirence with that.Im feeling better so far.I Am getting very anxcious for more results.REGARDS DJ Looking for a deal? Find great prices on flights and hotels with FareChase. Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Hi DJ, Would you be so kind to report in a short story format your story so far (with more details regarding what things you took, what your doctor suggested, how you found LDN and what your experiences have been. It would be greatly appreciated. It would also be great to put them on one of the sites listed below, so that others might learn from your experiences. http://www.casehealth.com.au/case/about.html http://www.revolutionhealth.com/forums/brain-nerves/multiple-sclerosis/1249 http://www.patientslikeme.com/patients I am very happy to hear you are doing well. My best (as always) Aletha [low dose naltrexone] (unknown) Hi all just wanted to report to all of you that the LDN is working was dx with MS OCT 06 started taking 4.5 MGS OFthe LDN April o7.I see improvement already.How long on the average can one expect too see improvement walking.what is everyones expeirence with that.Im feeling better so far.I Am getting very anxcious for more results.REGARDS DJ Looking for a deal? Find great prices on flights and hotels with FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Inga, It was so nice to hear from you. We have never tracked 's fevers since we always thought it was her Kidney's. They seem to come about once a month and always if there is any change in her routine. I always thought that was in pain when she was little like Emma. Just recently she tells us that her legs, hip, and back hurt. I hope that Emma stays fever free. Trudy Inga Bothner <ingabothner@...> wrote: Hi Trudy I am so sorry to hear about your little girls, the fevers that have been going on all her life as well as the kidney problem. It must be hard to deal with. I will tell you a little about our daughter, perhaps it will help. Emma (22 months, fevering since 11 months), has no symptoms besides the fevers during the episodes. She is clearly in a lot of pain, maybe joint pain, but she can't verbalise it yet. She also has her fingers in her mouth constantly but I have never seen any ulcers. The fevers came 3-4 weekly until November 2006. We then had a 7-week break followed by the worst-ever episode (7 days and fevers of over 106) and then another 14-week break. We are suspecting but since one cannot do a test to diagnose this disease, this is only a suspicion at this stage. We still have many blood- and possible genetic testing ahead of us to exclude all those other, mostly genetic diseases (TRAPS, HIDS, FMF, cyclic neutropenia etc). We have been lucky compared to most families in this group in that we have had these long breaks relatively early in Emma's time of periodic fevers. We tried Predinisone for the first time during the last episode and her fever went away within 1.5 hours (paracetamol etc doesn't usually touch the fevers and we have her in a tepid bath several time a day and night to help reduce the temperature). We are worried the next episode will now come more quickly as this is one of the usual side-effects of using the cortico-steroid. The last episode was almost 6 weeks ago and Emma is still fever-free. So fingers crossed! Take care and good luck Inga (unknown) I have a 3 1/2 year old little girl. She has had unexplained fevers since birth. She has been hospitalized several times for the fevers and dehydration. We met with a new Internal Disease Doctor yesterday and he feels that she may have . The only thing that is keeping him form actualy labeling her with this is the fact that she has also battled kidney reflux. The kidney doctor has said that he belives all of her reoccurring episodes are not all related to her kidneys. He feels that there has been an underlining problem the whole time, but the I D doctor wants to speak with him. I had never even heard of until yesterday. When she has been in the hospital doctors have noted swollen lymph nodes. Also, we have noticed sores in her mouth at different times. I am to keep a daily journal over the next 3 months. Her I D doctor told me about these sites and told me the best way to look for other signs of her having is to ask other parents what to look for. So anyone that can be of help, I would love to hear from you. All of you that have a loved one that is dealing with this disease, you are in my prayers. Thanks ------------ --------- --------- --- Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos & more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Hannah, Thank you for your response. I have started keeping a journal. hannahls73 <hannahlsmith@...> wrote: I don't know anything about the kidney thing - but for you might want to watch for swollen lymph nodes, red throat with white patches, canker sores in the mouth and joint pain. When Aidan first started the fevers he wouldn't even walk down the stairs it hurt so bad - and of course - for the fever. Keep a journal of all symptoms (I use a calendar - but I am more of a visual person) and maybe you will start noticing some pattern. Or maybe you won't. That's the hard thing - some kids are like clockwork - but others aren't. Aidan has been on a 14 day then 23 day then 14 day then 23 day cycle a few times - then something will happen that will throw him off. Good luck and start keeping records. Prayers for all, Hannah Aidan - 4 fevering 25 months Sid - 6 Fort Worth, TX --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. --------------------------------- Finding fabulous fares is fun. Let FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 If your daughter already has clinical depression then she needs to be on an antidepressant . And she has a very good chance of achieving a sustained virological response ( viral amount undetectable ) especially since she just became infected , although a grastro doc may want to take the wait and see if she clears on her own attitude . If she doesn't clear spontaneously then if she treats quickly then I think her side effects and chances of clearing go up . A hepatologist is the best for her to see , since they specialized in diseases of the liver . (unknown) HELLO, MY DAUGHTER STARTS HER TREATMENT A THE END OF THE MONTH, SHE WAS TOLD SHE HAS A VERY GOOD CHANCE OF BEING CURED, AS ANYONE ACTUALLY BEEN CURED FROM HEP C? SHE FOUND OUT SHE HAD IT JUST A FEW MONTHS AFTER BEING EFFECTED . SHE WAS TOLD SHE HAS A VERY MILD CASE . SHE WONT SEEK A COUSLING LIKE DR WANTED HER TO , SHE ALREADY SUFFERS FROM DEPRESION AND IF I GET HER ON MED SHE STOPS TAKING THEM , ANY HELP? LINDA S Ready for the edge of your seat? Check out tonight's top picks on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 Hi Welcome to the group and I hope you will find lots of support and help here! Well Im not sure how the doc can say she has a 'mild case' but perhaps he is meaning that her viral load is low because she was recently infected? Why does the doc feel that she needs to seek 'counseling'? Does she have depression? There is no cure honey, just remission,, at least at this point.. Some docs are calling remission a cure but I dont think a cure is a real cure if it keeps you from being able to obtain medical and life insurance after you have cleared it, which none of us can do at this point. Does she know what genotype she is? Is she sure about when she was infected? Why is the doc NOT doing a biopsy or has he done one already? Just a few questions.. but the good thing is that IF she puts this virus into remission early ,, before it has a chance to damage her liver, she can live a long and very full life and that is what we would all want! Let us know how we can help you! You're a good mom for seeking information! jaxlinda schatz <conn_ie40@...> wrote: HELLO, MY DAUGHTER STARTS HER TREATMENT A THE END OF THE MONTH, SHE WAS TOLD SHE HAS A VERY GOOD CHANCE OF BEING CURED, AS ANYONE ACTUALLY BEEN CURED FROM HEP C? SHE FOUND OUT SHE HAD IT JUST A FEW MONTHS AFTER BEING EFFECTED . SHE WAS TOLD SHE HAS A VERY MILD CASE . SHE WONT SEEK A COUSLING LIKE DR WANTED HER TO , SHE ALREADY SUFFERS FROM DEPRESION AND IF I GET HER ON MED SHE STOPS TAKING THEM , ANY HELP? LINDA S Ready for the edge of your seat? Check out tonight's top picks on TV. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 Hi, Middlesex cty. nj here. Fogg <slfogg2000@...> wrote: I live in the northwest suburbs of Phila., PA - > I was just wondering where everyone was from? Maybe> we could meet if we > live close. Help support each other in person. I live in Northern VA in a town in Loudoun County.-Melinda Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Ready for the edge of your seat? Check out tonight's top picks on TV. Quote Link to comment Share on other sites More sharing options...
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