Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 I set a rule in my email client to automatically delete any posts with that subject line- works for me. zoe Saturday, February 17, 2007, 7:21:11 AM, you wrote: i joined this group about a week ago, and this is my first post, mainly because i joined right around the beginning of the homosexuality discussion...and am anxiously awaiting the END of it. i've seen a couple people post that perhaps it's time to drop it and move on, but that has fallen on deaf...fingers? at any rate, i look forward to learning and sharing...once i can just stop automatically deleting all emails because this one topic just won't die. sincerely b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 I will try and answer this one. The growling and gurgling is part of having the band. You can try and learn a swallowing technique that helps lesson the sounds. Here is what I do: Before I swallow, I blow all the air out of my nose slowly, put my tongue to the roof of my mouth, and swallow. It takes some practice but what you are doing is stopping yourself from swallowing air when you swallow. This will help prevent the gurgling noises or at least make them not so noticeable. The other thing you need to do is slow way down. Take tiny bites and chew chew chew before swallowing. The hiccups means you overate your band. You should try and get to know your bands “soft stop” or the sign that let’s you know when to stop eating. I have heard them called soft stops and hard stops. A soft stop is maybe a sigh, a burp, or a small hiccup to let you know you are done. A hard stop is the stuck feeling, sliming, excessive hiccups, or a PB or a pain in the left shoulder or side. Try and get to know your bands soft stop. J M DOB 3/1/05 280/160/160 5ft 6in, Size 8 http://www.tracyslapband.com From: [mailto: ] On Behalf Of Alli Dye Sent: Tuesday, February 13, 2007 8:55 PM Subject: (unknown) Hi all, Well I have 2.4 cc and no restriction yet. What I do have though is a lot of gurgling/ growling sounds coming up my throat when I eat. It sounds like aliens have invaded my body and are coming up for air or something!!! And if that isn't enough of a side show while having lunch, I topped that off with a mean case of the hiccups that lasted 4/ever!!! LOL Any advice on what is causing this and how to avoid it??? Happy Valentine's Eve to you all! Ally Don't be flakey. Get Mail for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 no subject BAN ME, MOMMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Nobody is going to ban anyone. I just think if you are going to start a thread or post something, you ought to give it a subject so members can follow the thread. It's just proper protocol. If proper protocol bothers you, I understand Willie and Waylon Jennings have started a board... ;+) > > > > no subject > BAN ME, MOMMY > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 the point is, how uptight can one man be? Re: (unknown) Nobody is going to ban anyone. I just think if you are going to start a thread or post something, you ought to give it a subject so members can follow the thread. It's just proper protocol. If proper protocol bothers you, I understand Willie and Waylon Jennings have started a board... ;+) > > > > no subject > BAN ME, MOMMY > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 OK. My apologies. I will cease pointing it out when you post something with no subject. I have seldom seen anyone talk about a supplement this way: " yes, i am on a goji berry kick. jury still out. but 153 stuides listed on pubmed. pretty impressive stuff. critical attacks welcomed. breast bared. fangs too. he, he " If you are that passionate about your favorite supplement, you are welcome to take me up on my offer. Till then I stick with my opinion about goji juice. It's a juice like a great many other juices, and no juice is worth 30 dollars for 26 ounces. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Re: (unknown) OK. My apologies. COME ON, MAN, I'M JUST FUNNING WITH YOU. I FEAR YOU GET SO OVER SERIOUS SOMETIMES, SUPPRESSING STUFF, THAT I TRY AND TEASE YOU OUT A BIT. YOU NEVE HAVE TO APOLOGIZE TO ME FOR ANYTHING. BECAUSE IN MY RELIGION, THE GREATEST SIN, IS NOT TO GIVE OFFENSE, BUT TO TAKE IT. I GAVE UP HAVING MY FEELINGS HURT A LONG TIME AGO. AND WORK HARD TO KEEP ALL THE CELLS PASTED OVER WITH A SMILEY FACE. I will cease pointing it out when you post PLEASE DON'T DO THAT. YOU ARE ENTIRLEY RIGHT. IT IS A COURTESY TO OTHERS. I THANK YOU FOR POINTING IT OUT TO ME, AND REQUEST YOU DO SO IF I FORGET AGAIN. ALSO, I CONSIDER YOUR PRESENCE ON THIS BOARD INVALUABLE, BUT ONLY CAUTION YOU TO BEWARE MY PROVOCATIONS. SMILES. something with no subject. I have seldom seen anyone talk about a supplement this way: " yes, i am on a goji berry kick. jury still out. but 153 stuides listed on pubmed. pretty impressive stuff. critical attacks welcomed. breast bared. fangs too. he, he " SO NOW, ITS NOT SO SELDOM. I THANK YOU FOR YOUR HONEST OPINION ON THE SUBJECT. I JUST FEEL SORRY FOR YOU, BEING SO WRONG ALL THE TIME. If you are that passionate about your favorite supplement, you are welcome to take me up on my offer. I HAVE AN OFFER FOR YOU. ITS ONE YOU CAN'T REFUSE. Till then I stick with my opinion about goji juice. It's a juice like a great many other juices, and no juice is worth 30 dollars for 26 ounces. EVEN IF IT CAUSES APOPTOSIS, AS THE PUB MED STUDY INDICATED? I AM WILLING TO ADMIT I MAY NOT ALWAYS BE RIGHT, BUT I AM NEVER WRONG. I SURE AS HELL HOPE YOU CAN HEAR ME BUSTING A GUT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Thanks , I'll give that a try. The first few days after my last fill, I felt nothing. Now, nothing seems to want to stay down so I guess I am getting some restriction. I still don't get a full feeling -ever but have to stop eating because of the hung food issue. I no longer can eat all the foods I've read you guys can't eat. I tried grilled chicken, brocolli and corn for dinner and it was not pretty. My throat is actually soar - so I guess I need to go on mushies or liquids tomorrow. Maybe my band is kicking in after all!!!! Thanks for your suggestions,Ally [Dr-Aceves-bandster s] (unknown) Hi all, Well I have 2.4 cc and no restriction yet. What I do have though is a lot of gurgling/ growling sounds coming up my throat when I eat. It sounds like aliens have invaded my body and are coming up for air or something!!! And if that isn't enough of a side show while having lunch, I topped that off with a mean case of the hiccups that lasted 4/ever!!! LOL Any advice on what is causing this and how to avoid it??? Happy Valentine's Eve to you all! Ally Don't be flakey. Get for Mobile and always stay connected to friends. Don't pick lemons. See all the new 2007 cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 --- Beth, jun1488@... wrote: > Looking forward to moving on!!! Beth Beth, What topic in particular would you like to discuss? You can use the search box at the top of the list web page to search for key words and often find useful discussions. There's also the multiple-health list search engine: http://onibasu.com/ But if you're lazy like most of us, just post your question here Feel free to interject some humor. We all need it. Especially since we haven't heard from B in a while. She's probably having way too much fun in France or somewhere. Of course, we are also missing our wise list lord, who hopefully is off having fun somewhere. I'm also hoping our wise moderator, Wanita, will stick around and put up with our foolishness! Otherwise the newest members will be unable to post. <the list digressive deviant moron (pardon me)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 > > Looking forward to moving on!!! Beth > > Beth, > > What topic in particular would you like to discuss? > > You can use the search box at the top of the list web page to > search for key words and often find useful discussions. > > There's also the multiple-health list search engine: > http://onibasu.com/ Thanks for that link! I've been a member of this group for years, and I was never aware of the DiscussingNT group discussingnt/ Their policy states, " Discussion and debate of topics of a political or religious nature are discouraged on this list. " And, a quick search of the archives says they mean it. In fact, a search on the word 'homosexual' returned no hits at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 and B, I thought this discussion interesting hoping to see if there was any connections between hormones, mainly estrogen, testosterone and the effects on people. As I mentioned in an earlier post, I was wondering if women, especially the younger ones are getting more aggressive and dominent, due to the possibility of all the estrogenic compounds we are getting today, in food (soy), plastics give off estrogen as well as pesticides that are in our food sources. Someone did say yes that too much estrogen would make a female more aggressive. And what I was wondering on the homosexual discourse is how estrogen would affect male brains. I know in horses that it is used to calm a gelded male horse down if he is to agressive. I was wondering if that is why young women are tending more to not get into relationships with males, since possibly our hormones have been disrupted somehow changing the way we think. Of course we also have to look at society's changes in attitudes, things that are taught in school, which weren't taught or emphasized before. But anything that can negatively affect our well being, I would like to know either how to avoid it, or how to counteract it. I personally have went through hormonal treatments that were disasterous. I was told that a blood test showed I had low progesterone. After a short while on progesterone, I was ready to kill. My poor husband didn't know which way to turn as I was getting extremely short tempered. Yet if you read some literature, I took this from : http://www.johnleemd.com/store/premenstrual_syndrome.html Effects of Progesterone & Estrogen Excerpted From: WHAT YOUR DOCTOR MAY NOT TELL YOU ABOUT BREAST CANCER: Balance Your Hormones and Your Life from Thirty to Fifty PHYSIOLOGICAL EFFECTS OF ESTROGEN AND PROGESTERONE Estrogen Effects Creates proliferative endometrium Breast cell stimulation (fibrocystic breasts*) Increased body fat and weight gain* Salt and fluid retention Depression, anxiety, and headaches* Cyclical migraines* Poor sleep patterns* Interferes with thyroid hormone function* Impairs blood sugar control* Increased risk of blood clots* Little or no libido effect* Loss of zinc and retention of copper* Reduced oxygen levels in all cells* Causes endometrial cancer* Increased risk of breast cancer* Increased risk of prostate cancer* Restrains bone loss Reduces vascular tone (dilates blood vessels) Triggers autoimmune diseases* Creates progesterone receptors Relieves hot flashes*** Prevents vaginal dryness & mucosal atrophy*** Increases risk of gall bladder disease* Improves memory*** Improves sleep disorders*** Improves health of urinary tract*** Relieves night sweats*** Progesterone Effects Maintains secretory endometrium Protects against breast fibrocysts Helps use fat for energy Natural diuretic Natural anti-depressant & calms anxiety Prevents cyclical migraines Promotes normal sleep patterns Facilitates thyroid hormone function Helps normalize blood sugar levels Normalizes blood clotting Helps restores normal libido Normalizes zinc and copper levels Restores proper cell oxygen levels Prevents endometrial cancer Helps prevent breast cancer1 Decreased risk of prostate cancer Stimulates new bone formation Improves vascular tone Prevents autoimmune diseases Increases sensitivity of estrogen receptors Necessary for survival of embryo Precursor of corticosteroid biosynthesis Prevents coronary artery spasm and atherosclerotic plaque. Sleepiness, depression** Digestive problems** * Indicates that these effects are caused by estrogen dominance, or an imbalance of estrogen caused by too little progesterone. ** Indicates that these effects are caused by an excess of progesterone. *** Indicates that these effects are caused by a deficiency of estrogen. It would seem that the progesterone treatment shouldn't have caused the anger and frustration as it says here that progesterone seems to help these conditions. Also my blood pressure and heart rate shouldn't have climbed. When I switched from synthetic to the progesterone that was made using peanuts I think, I would have to take that right before bed, as I would almost pass out. It does say an excess will cause sleepiness. But during the peanut type of progesterone I would have horrible nightmares every night, usually I would have some sort of conflict in my dreams. I finally got off progesterone, I couldn't handle it anymore. So another doctor put me on estrogen. And at first that felt great. Then almost like a drug I needed more and more, and was using a patch of unapposed estrogen. Which since I am an intact female wasn't smart. I went to the highest dose and after a while that didn't make me feel better. Plus I experienced heavy flooding. After I got off of all hormones I was still experiencing problems. I had chronic fatigue which I found out later was due to having Epstien Barr. But my heart rate and blood pressure was still going up. I had white coat syndrome big time. And I started waking up just about every night between 11-3am with my heart racing 140 bpm that would last anywhere from 20 minutes to hours. I had a 24 hour halter monitor and it showed the racing but the rythm was normal. No doctor could tell me what was going on, even with blood tests. I went the emergency room a couple of times thinking I was having a heart attack. After this I went in for a PCOS study. They found me insulin resistant, high testosterone and told me I'd have diabetes in a few years. My blood pressure had gotten up to 200/100, my cholesterol was 275 and I was over 100 pounds overweight. I was told I was going to have a stroke, and needed to take blood pressure meds, cholesterol drugs and metformin for the insulin resistance. I started the blood pressure pills, (I don't do well with meds and had the doc give me a childs dose to start with), and I was up all night with my heart racing at over 140 bpm. Which in the morning a pharmacist told me I was on too high of a dose. So I didn't take any medications and figured I'd just die. It was after this that I picked up Atkin's book and after reading it found out that a lot of what he was describing was what I was experiencing. So I went low carb and on induction and felt great immediately. From starting induction at lunchtime I had the first night I fell asleep quickly and slept through the night. I started losing a lot of weight, and within 3 months my cholesterol had dropped to 240 and my blood pressure was 117/78. The following year I had lost 80 pounds and the endocrinologist told me he's never seen that much change in cholesterol, the good coming up and the bad going down, without statin drugs. He was very pleased and amazed. Especially on a diet that consisted of fat, meats and some vegetables. I started to eat the low carb goodies. The candy and ice cream. Pretty soon I started to put on the pounds again. For some reason those made me start craving starchy foods like before I started Atkins. Within about 6 months I put on 30 pounds. And started to get the heart racing again some nights. I started hearing about Splenda not being good for us. All Atkins goodies have Splenda, and I personally cannot eat aspartame. So I started using Stevia as much as I could. Then I was talking to a woman via e-mail who told me about the Weston Price foundation. I read his research and was amazed. She said Atkins took a lot of his information from him. I got Sally Fallon's book and started using real butter again, (I was using Smart Balance), and also using coconut oil to cook and making soups using bones. After I had lost the 80 pounds on Atkins I always felt cold. I had my thyroid checked more times than you can shake a stick. I had the dry skin, the dry hair. But after a couple of weeks of eating Atkins style, with no chemical sweetners and the addition of coconut oil and butter, I started to not be so cold. My hair which was getting dry (which I thought was due to getting old), is getting oily again. I don't have to load it with conditioner to keep it from frizzing out. I'm not losing the weight I did the first time, so I'm going to have to get more strict with the calories, but overall I am feeling better again. So I am here too, to try and figure some of this stuff out to help me feel better, which will help my mental mood also. I wrote a lot of this down in case others have had similar problems and thought they were alone and also if someone has found something else that worked better. My high testosterone went down after I was on Atkins for a few months, so that is another reason why the homosexual thread was interesting. Though I think there are connections with hormones, and maybe hormone therapy might be of great help, the human being is much more complex, but we do need a place to start. I think had I started this diet before the first progesterone pill, I would be so much more healthier now. Lorie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 I agree gogi juice contains nutrients and antioxidants. It's not a cancer cure; apoptosis in a test tube is irrelevant. It's expensive by my calculation for a fruit juice. Duncan On 18 Feb 2007 at 1:14, cures for cancer wrote: > > Posted by: " breathedeepnow " aug20@... breathedeepnow > Date: Sat Feb 17, 2007 4:23 pm ((PST)) > Till then I stick with my opinion about goji juice. It's a juice like > a great many other juices, and no juice is worth 30 dollars for 26 > ounces. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Well said Duncan. I love goji berry juice. But it is just that, a fruit juice. I put all my faith in Zavita to prevent the return of my colo-rectal cancer. I still drink my goji berry " fruit " juice and enjoy many benefits from it. But I don't trust it to keep my cancer from coming back. I do all my own research on the nutrition I use instead of relying on someone else's opinions. I have to. My life depends on it. I do still want to grow a couple a goji bushes in my garden too. Brihgtest Blessings, Duncan Crow <duncancrow@...> wrote: I agree gogi juice contains nutrients and antioxidants. It's not a cancer cure; apoptosis in a test tube is irrelevant. It's expensive by my calculation for a fruit juice. Duncan On 18 Feb 2007 at 1:14, cures for cancer wrote: > > Posted by: " breathedeepnow " aug20@... breathedeepnow > Date: Sat Feb 17, 2007 4:23 pm ((PST)) > Till then I stick with my opinion about goji juice. It's a juice like > a great many other juices, and no juice is worth 30 dollars for 26 > ounces. --------------------------------- Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Hi, Duncan. I got the same schpiel from the " Xango " (Mangosteen) people. I spoke to one of their MM dealers who, when I told him the price was outrageous, said to me, " IT'S YOUR LIFE, MAN!! " as if saving my life/surviving and living with cancer ABSOLUTELY DEPENDED ON my buying and drinking " Xango. " Ridiculous. BALANCE is key. Every day I drink about 40 ounces of carrot, beet, celery, apple, collard, spinach, parsley, cilantro, green pepper, broccoli, garlic, ginger, jalapeno juice. I expect that, too, would kill cancer cells in vitro. And I don't expect I need some " exotic, " over-priced juice on top of that. On the other hand, someone else might prefer the " exotic " juice to juicing all those vegetables every day. I don't know which one is better than the other, or if they are comparable. Chacun a son gout. I certainly think that anyone coming here to promote a product, whether they are selling it themselves or not, ought not to go berzerk if a member or members have a lesser opinion of it, or even if they say they think it is worthless. We can't safely express our opinions here if we are going to be attacked when we do so. I also happen to prefer my fresh vegetable juice over bottled Xango or Goji juice because anything sold in a bottle has to be pasteurized, and pasteurization destroys some of the " good stuff. " > > > > > Posted by: " breathedeepnow " aug20@... breathedeepnow > > Date: Sat Feb 17, 2007 4:23 pm ((PST)) > > > Till then I stick with my opinion about goji juice. It's a juice like > > a great many other juices, and no juice is worth 30 dollars for 26 > > ounces. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 > I agree...I keep deleting posts...because I am so tired of this > topic....maybe those who want to keep this discussion going could do it off list? > Looking forward to moving on!!! Beth Then stop reading the posts. YOU move on by deleting / not reading the ones you don't like. Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Well then don't read the posts. Read the other posts - it's really simple, and it's one of the beauties of email groups. Tim > > > > i joined this group about a week ago, and this is my first post, mainly > > because i joined right around the beginning of the homosexuality > > discussion...and am anxiously awaiting the END of it. i've seen a > > couple people post that perhaps it's time to drop it and move on, but > > that has fallen on deaf...fingers? > > at any rate, i look forward to learning and sharing...once i can just > > stop automatically deleting all emails because this > > one topic just won't die. > > > > sincerely > > b > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Hi Lynn, Thats neat that everyone been such good help to you and I'm glad your knee is doing so good for you :-) Well you have a nice day :-) Susie Lynn Holbrook <lynntmj2000@...> wrote: I just had to tell everyone, today is my one year anniversary with my new knee!!! Sure has been good to me. Where did the year go? You all have been so much help and given me so much knowledge. Thank you! Lynn It's here! Your new message!Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Welcome Janine... Love and peace always, Shaun & Barb... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 In a message dated 3/11/2007 11:12:02 A.M. Central Standard Time, Hallgrim@... writes: Some weeks ago there were links to alkalzink bath and drinks i have lost it do sombody have this links. Hallgrimur _http://www.askmoreless.com/key_protocol_ (http://www.askmoreless.com/key_protocol) Edith <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 ~ I am so happy to hear that you have a fiancee that is so sweet, and is there for you. I am glad he will be able to come and be there with you. Tomorrow, you will get everything in line and be ready to go ! This will be positive change for you. Rest well, and God Bless you~ DedeAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Hello there! How much I understand your feelings and your struggle!!! I have just had my second open Heller, after having my first one done 11 years ago. It took me 5 years to decide to go through another surgery. It is hard enough having to cope with achalasia, so I can imagine what it is to have to struggle with problems at work too. What a terrible boss you have!!! I got my job 11 years ago, right after my first surgery. Luckily I have the best job, boss and collegues one can wish for. My myotomy is now 10 weeks ago, I am still at home and my boss does not want to see me around now for anything else but a cup of coffee. He wants me to get better first and to get some answers as to why my swallowing problems are already coming back. He also wants me to get some rest in my head first, as I am scared to death to having to undergo another surgery (so that part of your feelings I also truly understand). I am so gratefull for my job. Please hang in there and don't give up. Have your myotomy done by the best doctor you can find and don't bother about what others think of you. You know best what you are feeling and you are not alone. Like me, there are plenty of others here on the forum, who know what a terrible time this must be for you. But...after this rotten time, things will change for the better for you (and me). I am absolutely sure of that, so please don't give up hope!!! Isabellatig26904 <tig26904@...> wrote: Seven years later I'm now facing a second surgery.......I haven't been in this group for most of those seven years.....and I'm not reading alot of different information then I did then....I have to tell you I'm now scared to death of this second surgery, I wonder really what good it will do. After the first I still, like many of you, still have had problems and WHY???? Lack of information (which I know probably has been said time and time again) regarding our "condition".There have been times when I have had my, what I call for a lack of a better word, bouts...dry heaving, nausia, sweats for hours........where I've thought to myself, if someone came in here now to rob me and threatened to shoot me I'd tell them "Please do it". And believe me, I know there are people worse off than me......but once the bouts come on...and the longer they seem to last.......the more I feel that I want to give up this fight......and no one except people that have it, understands. I can't count the number of times I have had it at work....and everyone acts like it is nothing...my boss said the other day, "well, sometimes you just have to buck up and come to work sick". I would never want to wish this on anyone...but....give him 15 minutes of the pain, and I wonder how he would "buck-up"?Sorry, but I have to vent as I'm sure everyone here does.... Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Tig, welcome back to the board. I must have joined about the time you left. You said you didn't find many changes from seven years ago. Did you mean from messages on the board or from info about achalasia in general? I find that there is a lot more information on the net and that this group is getting more and more knowledgeable about our disease every day. I have not had the surgery, but I have read every message posted on this board since I became a member in 2000. One of the things I keep hearing over and over is "get a surgeon that has done many myotomy's." I don't know where you live nor who your doctor is. He could be the best in the world, but there have been some doctors mentioned on the board over and over that seem to perform the most successful surgeries. If you are so scared, I would suggest you tell us where you live, who your doctor is and if he is not one of the ones recommended here, I am sure someone here could tell you of one closest to you that has the best reputation here. Fell free to vent here any time you want to....and print off some of the letters here where others are describing their symptoms and the pains...take it to him and let him read for himself. I'd like to send him a boot by mail. Good luck, Maggie AlabamaAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Oh don't cry Lynn, you are getting my shirt wet. hehe. Believe me, I am fighting now for what I need. You are right, he should not be a doctor. What can I say, I don't hand out those liscences. I don't want to cross him though, unless I have to. So far, I have kept my mouth shut about my feelings towards him and his practices. Terry (unknown) Terry, your post just about made me cry. Has your doctor been under a rock? I would go to the ends of the earth to find someone else! I am so fortunate to have a wonderful doctor who cares, etc. Yes, this board has helped me out many times. I didn't know what a CPM machine was. Also, a poster said to build up your leg before surgery which helped a lot during PT. These people are priceless!! Lynn Holbrook, Michigan 8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut. AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 Tig, if you are talking about NCCP also known as spasm pains maybe Debbi's famous post about that will be helpful to you. I am copying it below. It is well worth reading. Hope it helps. Maggie Alabama Chest pains, heartburn, acid reflux, spasm pains, NCCPs.... what the heck is all of this stuff anyway???? (aka: Debbi's Dissertation on Dysfunctional Dysphagia Diagnoses) Here's some info I've put together on differences between "heartburn" and the "chest pains/spasm pains" that are related to achalasia. The official medical term that I've found for the "spasm pain" is "NCCP" or Non Cardiac Chest Pain. There are multiple terms used for "heartburn" including: acid indigestion, acid reflux, GERD/GORD, etc. In my pre-achalasia days, I would have "indigestion/heartburn" once in a while (after a particularly large, fatty, acidic meal, etc.), maybe once or twice a year. I would have that nasty acid taste in my mouth when I burped, and a hot/burning sensation in the area of my breastbone. While not particularly comfortable, it wasn't an excruciating, debilitating pain, and taking some Tums or other antacid would neutralize it and both the taste and the discomfort would go away. When I had my first NCCP, I had been having problems swallowing for a few years but hadn't yet been diagnosed with anything, and I had no clue that the pain was related to my swallowing problems. I thought the pain was some gawd-awful gas pains -- felt like something was stabbing me from the inside out! The pain seemed to start in the ribs and almost squeeze my chest with searing pain that seemed to shoot up into my neck, too. (note: everyone can experience NCCPs in varying degrees and in various parts of the body, including stomach, chest, shoulders, neck, back, jaw, tongue, teeth, and roof of the mouth.) I lived alone at the time, and I drove to a convenience store and bought three rolls of Rolaids and ate two whole rolls. That didn't have any effect at all, and it took a couple hours for the pain to go away. Another time, I have a distinct memory of standing in the kitchen holding onto the countertop and just WAILING at the top of my lungs because it hurt so bad, and my knees buckling from the pain. My wailing turned into one big repetitious prayer: "Please, Lord, Please, Lord, Make It Stop, Lord, I Can't Take It Anymore, Lord, Please, Lord, I Need You To Please Help Me!" over and over and over again while sobbing. This was almost a decade ago and I don't know how long it went on, but I'm thinking that it was well over an hour of that constant wailing. Boy, those were the days, huh? ;o) For people whose doctors believe that NCCPs are an "atypical" (not normal) symptom for achalasia patients, point them in the direction of this informal poll here on our group: achalasia/surveys?id=1037310 The poll is now closed, so who knows how many more would be added to it if it were still accepting votes. If you scroll down to the end, 38 people reported that they have these "spasms", and 5 people reported that they don't have spasms. So out of 43 people who answered the poll, 88% have spasms and 12% don't have spasms. Doesn't sound like a "rare" or "atypical" symptom, does it? In another poll ( achalasia/surveys?id=1011383 ) of people who went to the Emergency Room due to extreme chest pains, 2 were given intravenous Valium, 3 were given Demorol or other narcotic injection, and 7 were given no treatment whatsoever.... isn't that sad? 58% of the people who were in such severe pain that they went to the E.R. were given NO TREATMENT at all!!! That is SO unnecessary!!!! Here's some info that I copied from an old post of mine -- if your doctor will bother to do some simple web searches, he'll see that calcium channel blockers, nitroglycerine, and anti-depressants are all documented ways to treat NCCP in people with esophageal disorders! Maybe if you print it out and show it to him, he'll be willing to offer you some help in dealing with this. ============================================= Here's some basic info that I've posted in the past -- different things work for different people, so it's basically just an experiment to find what works for your own particular situation. Here are some different coping methods to try: -- Swallowing something warm or something cold (in my case, I chug warm --not hot-- water as fast as I can). -- CCB medication (calcium channel blockers) -- when I'm having NCCPs, I prick the shell of a nifedipine capsule and squirt it under my tongue. It absorbs into the bloodstream under the tongue (this is called a "sub-lingual" medication, meaning under-tongue) and relaxes smooth muscle tissue (which is what the esophagus is made up of). You can also just swallow the capsule, but since we have trouble swallowing in the first place, I've found the under-the-tongue method works best (then you just swallow when you've held it there as long as you can and your saliva requires a swallow). Unfortunately, it can also lower your blood pressure (usually only a problem if you already have low BP to begin with) and cause a headache afterwards -- some people experience this, some don't. CCB's can also be tried in the "slow release" formula as a preventative to having NCCPs start in the first place. -- Nitroglycerin medication -- works in much the same way as the CCB mentioned above, and can also be taken sublingually for fast relief. -- Certain anti-depressant and anti-convulsant medications -- some people don't have NCCPs when on these types of medications, believed to be a function of the medicine's effect on serotonin in the brain (antidepressants such as Nortryptaline, Amitryptaline, Imipramine and Trazodone have been studied; Neurontin is being studied in a similar way for "phantom limb pain" in amputees, etc.) People in the group have had luck with Paxil, Ativan, Nortryptaline, etc. The dosage needed in this case is generally lower than the dosage that is normally used to treat depression. -- L'Argnine supplements -- some people have found these relieve NCCP symptoms. -- If symptoms are debilitating and none of the methods above help, you may need a narcotic pain reliever, but definitely try all the options above first, b/c if you're on narcotics you can't drive, work, etc., and the vast majority of people can find relief in a way that doesn't involve narcotics. ============================================= In the last few years I've taken three different drugs that affect serotonin (one of which isn't considered to be an anti-depressant medication, but which does have a serotonin effect nonetheless); any time I was on one of those drugs, my NCCPs have either disappeared entirely, or been nearly eliminated. And each time I discontinued a serotonin-effect drug, the NCCPs started up again within a month's time. One member here who was in the E.R. repeatedly for debilitating NCCPs finally had a doctor prescribe a low-dose daily antidepressant; her NCCPs have been eliminated.... no more pain, no more narcotics, no more trips to the hospital. There are soooooooooooo many things that can be done to reduce NCCPs, but doctors don't even bother to TRY to find a solution for us. I say let THEM curl up in a fetal position making plea-bargain deals with their Maker at 3:00 in the morning just ONCE, and you can bet your booty that they'll find a solution REAL fast!!! :oP AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 - Thank you for the words of encouragement! I am going to see my surgeon on the 3rd of April. I'm not sure that he is the best...but...his name is Dr. at Strong Memorial Hospital in Rochester NY. I have not read all of the posts, so I don't know if he has been mentioned or not. When I had my first surgery I didn't have alot of time to check out anyone. This second time around I would like to be a little more cautious though. So any information anysone can provide would be helpful. And in my first post I meant not that there isn't alot of good information offered here, just that we are all still dealing with the pain at some level and I'm beginning to think that it is wishful thinking to think it will ever go away completely. -- In achalasia , Isabella Arnold <arnoldisabella@...> wrote: > > Hello there! > > How much I understand your feelings and your struggle!!! I have just had my second open Heller, after having my first one done 11 years ago. It took me 5 years to decide to go through another surgery. > > It is hard enough having to cope with achalasia, so I can imagine what it is to have to struggle with problems at work too. What a terrible boss you have!!! I got my job 11 years ago, right after my first surgery. Luckily I have the best job, boss and collegues one can wish for. My myotomy is now 10 weeks ago, I am still at home and my boss does not want to see me around now for anything else but a cup of coffee. He wants me to get better first and to get some answers as to why my swallowing problems are already coming back. He also wants me to get some rest in my head first, as I am scared to death to having to undergo another surgery (so that part of your feelings I also truly understand). I am so gratefull for my job. > > Please hang in there and don't give up. Have your myotomy done by the best doctor you can find and don't bother about what others think of you. You know best what you are feeling and you are not alone. Like me, there are plenty of others here on the forum, who know what a terrible time this must be for you. But...after this rotten time, things will change for the better for you (and me). I am absolutely sure of that, so please don't give up hope!!! > > Isabella > > tig26904 <tig26904@...> wrote: > Seven years later I'm now facing a second surgery.......I haven't > been in this group for most of those seven years.....and I'm not > reading alot of different information then I did then....I have to > tell you I'm now scared to death of this second surgery, I wonder > really what good it will do. After the first I still, like many of > you, still have had problems and WHY???? Lack of information (which I > know probably has been said time and time again) regarding > our " condition " . > > There have been times when I have had my, what I call for a lack of a > better word, bouts...dry heaving, nausia, sweats for > hours........where I've thought to myself, if someone came in here > now to rob me and threatened to shoot me I'd tell them " Please do > it " . And believe me, I know there are people worse off than > me......but once the bouts come on...and the longer they seem to > last.......the more I feel that I want to give up this fight......and > no one except people that have it, understands. I can't count the > number of times I have had it at work....and everyone acts like it is > nothing...my boss said the other day, " well, sometimes you just have > to buck up and come to work sick " . I would never want to wish this on > anyone...but....give him 15 minutes of the pain, and I wonder how he > would " buck-up " ? > > Sorry, but I have to vent as I'm sure everyone here does.... > > > > > > > --------------------------------- > Sucker-punch spam with award-winning protection. > Try the free Beta. > Quote Link to comment Share on other sites More sharing options...
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