Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Mable, You are a Dear! Also I'm very happy about your house. The kids sound as if they are doing wonderful! I;m glad your nieces are there to help. Have a nice day. Kelli....Mom to: , age 22, Greg, age 18, Twins: Set one- April & Ash age 15, Set two- (ds) & Tyler, age 4. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 doris...welcome u are in the rite spot....i am have suffered from lyme for 11 years and have been tottaly disabled since 96 with this disease......cranky ...yes we do and can get very cranky....i also have an 8 yo duaghter who was siagnosed with lyme 2 years ago...she recived early tratment ( which i did not get) and has been symptom free up until about a month ago.....she now suffers from some fatigue and achyness...all lyme related......please do not let ur doctor tell u that after 28 days of treatment ur son is cured.....studies now disprove that theory although many docs still prescribe it....welcome to the wonderfull world of lyme where nothing is what it really seems and u need to educate urself and be a pts advocate...among other things.....shout out ur ???? " s most of us here can answer tehm ...many of them in our sleep.....llol Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 yes this is a symptom...when ya don't feel good ..ya get cranky and irritable...this is lyme disease...one of the many variables.... In a message dated 6/15/00 4:51:19 PM, Pinkee-29@... writes: <<I have noticed since we found the rash and everything,is that he seems to be so irritable and very cranky lately.Is this a symptom of the Lyme Disease?>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Hi!!!!Well I have an appointment for my son on Wednesday....But it is with a regular pediatric doctor...I have to find a doctor that specializes in the Lyme Disease...But this is hard to do with no insurance at all..But I figure this is good right now that way he can get more meds.I will let everyone know what the doctor says on Wednesday...If anyone knows a good doctor that handles Lyme in the hudson valley region....around Poughkeepsie,Goshen, and surrounding areas please let me know so I can get that going and see how much it will cost.Thanks,Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2000 Report Share Posted June 24, 2000 In a message dated 6/24/00 12:29:07 PM Pacific Daylight Time, admin@... writes: << fyi this was in the Toiletries Library Recipes for Bath Salts section... ( I love their online recipes) Tina's Majestic Mountain Sage Fizzing Bath Salts 1 lb. baking soda 8 oz. wt. citric acid 8 oz. wt. cornstarch fragrance as desired Whisk baking soda in a bowl to break up any lumps and set it aside. Combine citric acid and cornstarch in another bowl. Add fragrance to citric acid-cornstarch mixture and blend well. Combine fragrance mixture with baking soda and blend well. Store in an air-tight container. Use 1/4-1/2 cup per bath. Contributed by Christi Modesti Tamara Zyganiuk www.spellboundbotanicals.com Premiere Issue- July 1- " The Spellbinder " Online Coming soon: " Spellbound Botanicals " E-store >> I keep seeing Citric Acid. Can you get that at a grocers too? I'm playing and experimenting to see what lines I would like to work with! And by the way, having a real ball! Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2000 Report Share Posted June 26, 2000 hello donna, i was diagnosed with systemic jra when i was 5. i know how your son feels. by the time i was 17 i could hardly do anything on my own. i could not sit down unless i backed up to the couch and just fell backwards on my butt. sound like your son? then, i couldn't have gotten up if the house caught on fire! don't even ask me about stairs, that was impossible. basically if you wanted me to go somewhere, you'd have to pick me up and put me there. my joints were so badly damaged the docs didnt know how i moved at all, and because of the damage to my legs and the pain, it took over my whole body. it took me forever to feed myself cuz my arms hurt so bad to move, especially to lift them to my face. i couldnt brush my hair or put on my deodorant anymore. the only steps i took were horrible and hardly ever alone since i needed help to get up anyway. i walked only from the bed to the toilet, hardly ever walked down the hall to the living room anymore. it was just too hard, hurt to bad. if i was an animal, someone would've shot me to put me out of my misery. but, then my life changed. at 18, i had my right hip replaced. six months later, i had both knees replaced. if your son needs knee replacements, i do not recommend doing both at one time. six months after that, i did my left hip. now, several years later, my left shoulder. but don't worry. now i can walk til the cows come home. i have no trouble feeding myself except for the new shoulder cuz it is still clumsy. i can dress myself except for socks. i can brush my hair, shave, deodorize, bathe myself. i use things like a shower brush to wash my hair. i use a stick with a razor taped to the end to shave my legs(my own invention). i also use a dressing stick to help put on shirts that have to go over the head, plus it has a hook on the end to help pull up jeans. i hope you will know that he can make it, if you have any questions about my experience, i'd be glad to help. thanks, brandy ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2000 Report Share Posted June 26, 2000 Hi Donna, My daughter Kelsey, age 3, was diagnosed in April with polyarticular jra. She started having problems with her right knee in April of 98, so it really took us a year to get a diagnosis. She is also on Naprosyn and has been going to physical therapy twice a week since diagnosed, now starting occupational therapy for her hands and wrists. I can imagine how hard it must have been to go through so many years of not knowing what was wrong with your son. I know how hard it was for us to watch Kelsey go around with swollen knees and limping, unexplained fevers, and just not feeling well and acting as a toddler should sometimes was very upsetting. We went from having an active baby who started walking at 7 months to a lethargic toddler. Very scary, too. I have found this group to be very helpful and supportive, and I'm sure you will as well. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Darn typos... Kelsey started having problems in April of 99, not 98! LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Hi Donna, It must have been a relief to at least finally get a diagnosis, after not knowing for so many years. I can't believe it took so long before he was able to be treated. Is it because his symptoms were unlike what is normally seen in JRA pateints? I don't think there's currently any medication that can reverse the joint damage that has already taken place. Physical therapy and surgery may be the only way to help that. Without a good NSAID to control inflammation, and a DMARD, even more destruction to the joints might occur down the line. That's probably why they've been prescribed. After a ten month trial on Enbrel, it's surprising that the doctors are still not sure if it's working. From what I understand, the response is usually a lot quicker. If someone is going to be a responder, they usually do so within the first 3 months. Some after just the first or second injection! Then again, each person is different. And we don't have any personal experience with Enbrel. I'm just basing that on what I've read and heard about it. Thanks for sharing your son's story. It's good to hear that he has a positive outlook, despite all the struggles he's been through. Are there any joint replacement surgeries planned for the near future? Take Care, Georgina donnaab@... wrote: > > Hi anybody, > I am new to this group. I have a 15 year old son who was diagnosed 2 > 1/2 years ago with polyarticular JRA. After ten years of seeing many > pediatricians and rhematologists, we finally found our answers at > Shriner's Hospital for Crippled Children. Since his diagnosis he > started taking naprosyn which game him all the side effects that they > tell you about. We replaced it with Celebrex which his body seems to > tolerate better. He also takes Methotrexate. Metho has definitely > taken a lot of his pain away but has not stopped the prgression of > the > disease. His diagnosis was so late that he already had joint damage > to his hips, knees, wrists and neck. Fortunately, at this time we > have excellent insurance and he has been taking Enbrel since > September. We still don't know if it's working yet, but he is having > many more good days. I worried about the side effects of all of > these > meds but not being aggressive with this disease is more harmfull than > the side effects. Because he was diagnosed so late (We think he has > had this since age 1) He has so much joint damage that he cannot do > very simple things, like put on his pants, socks and shoes. He > cannot > pick up something from the floor, he cannot sit on the floor and > could > not get up from the floor if he did. He cannot turn his neck in any > direction. He cannot bend his wrists. He cannot open a coke bottle. > > Sitting and getting up from the couch is very difficult. And through > all this he has a wonderful positive attitude. I don't think I could > do it. He is very brave. > > Donna > Bossier City, LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2000 Report Share Posted July 1, 2000 Dear Kandy, Don't breast-feed too long, but you probably know this. About 4-7 months is sufficient. If longer, allergens can be passed down through the milk -- something we candidiasis sufferers do not need. There is so much to say. See Guy Smiley's e-mail on candidiasis egroups about the juice regimen he was on for a while. Also see the book, THE CURE FOR ALL DISEASES, by Dr. Hulda . Also, see website, health.microworld.com/html/zapper.html To kill all the parasites with diet and zapping is to also kill candida, since it is a parasite. Then a liver cleanse, or two, as outlined in her book, is the thing. Be talking with you soon. Glad to help, and will talk later. -Sincerely, D'Amico Kandy wrote: Hi, I am new to the list and sure could use some help with a yeast problem I have been passing back and forth with my nursling. I feel like I have tried EVERYTHING and we still have it. I feel that I have had it for years so it is deeply into my system. Can it be gotten out? I have had it since WAY before the baby so helping him get it gone doesn't do us much good when I just give it back to him. I don't want to stop breastfeeding either. I believe the benefits to him are much greater than the problem with the yeast. I suppose I should try a naturopath as I heard something about on an earlier post. Well, nice to meet you all and hope we come up with some solutions together! Kandy If I could show you how to make $500-$800/mo at home part-time, with no selling, inventory, or MLM type pitfalls, would you like to hear about it? kny@... Kandy - Aspiring Midwife - Wife to a great man, Mother of six, - Home-schooler/Home-birther Love is the answer - Give in to God ----------------------------------------------- FREE! The World's Best Email Address @email.com Reserve your name now at http://www.email.com Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2000 Report Share Posted July 1, 2000 I am glad to hear the good news. I can also relate to computer withdrawl, I keep my web tv as a spare, like a spare tire and can activate it, if my real computer goes out. I had an old computer, that was sooo bad that I put it out for bulk collection and felt good when it was picked up. I spent more time fixing it than I did reading my mail. Sue Ellen Bowman (unknown) > Hi everyone, > > Haven't written for awhile because our computer got hit by lightening, so > had to get a new one, ordered it in the mail and guess what , troubles! > Anyway my husband hooked up this really old one we had lying around and at > least i can read my posts and reply now. almost going through withdrawals > not being able to see any e- mail not really but sure had a lot to catch up > on > > Anyway I am now in my 4th month, where did the time go?? Got my results > back from my 3 month pcr and it was undectable so feel really great about > that. Am hoping to clear this thing even though i have 1b. if not at least > my liver is getting a much needed rest. > > Think of you often and say prayers for everyone with this dreaded disease > > Suzy > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > ------------------------------------------------------------------------ > Life's too short to send boring email. Let SuperSig come to the rescue. > 1/6137/1/_/619765/_/962502273/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2000 Report Share Posted July 1, 2000 good luck Suzy!! I'm 1b too. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2000 Report Share Posted July 1, 2000 Congratulations Suzy! And good luck on remaining undetectable. I'm a 1b too, and anytime I hear the good results from another 1b it gives me some hope too. Hope you get you computer problems solved. I don't know what I'd do without mine any more! I've always been an information 'junkie', so this new world of computers and the internet has been heaven for me. I KNOW I'd go through withdrawal! Take care, ===== Claudine claudinecrews@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2000 Report Share Posted July 9, 2000 Have a great Birthday Afsi!!!! Tewri and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Elbe wrote: > ><Is that true? You just squirt some breastmilk in the ear and it clears up > the ear infections?> > > It really did work for me. I was skeptical at first. The La Leche > League Leaders of the group I attend said to give it a try . . . what > harm could it do? Well, I had just gone in to dr. and he had > another ear infection and we had already been on several antibiotics > so I decided to give it a try. I had the antibiotic filled, but > never gave it to him but squirted some milk in his ears while he was > asleep at night and during his nap. In a few days, he seemed to be > doing better. Went back to the doctor for the follow up and he said > to me " Well, looks like the antibiotic finally cleared the infection > up . . . " and I never even gave him any of it. Did you tell the doc that? I'd be curious about his reaction. > I have heard some of > the other moms in this group say they have done this with great > results. Some of the homebirth MD's my friends go to strongly > support doing this as well. > > Hey, like they told me, it cant hurt . . . there is something in the > milk that kills bacteria and viruses on contact is what I think I was > told. Makes sense when you see how lots of kids who are not > breastfed get sick and the breastfed ones stay healthy due to > antibodies. So I guess a topical application can work too! > > ne in IL > > ------------------------------------------------------------------------ > Get great brand name shoes with just the click of a mouse. Check out > the huge selection at Zappos.com, the Web's Most Popular Store! > 1/6994/10/_/489317/_/964316063/ > ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 At 01:45 PM 07/27/2000 GMT, you wrote: >Is not mumps the illness that is more mild in females and also has the >potential to cause reproductive damage in males? Perhaps there could be a >link to that portion of the MMR, making males slightly more at risk. >???????? >Katrina > > That's the way everyone should be thinking! Who knows. Mumps is really the same in both sexes but after puberty a male can get inflammation of testicles with it and therefore become sterile, but this too is rare and EXTREMELY rare in BOTH testicles. Usually just one involved and doesn't become sterile. Sheri > >Diane Emerick wrote: > >>Someone asked me this question and I have no answer. Could you help me out? >>and also, give me a couple reasons why the compensation act is a joke. >>Thanks. >> >>One question I have is if autism is linked to a certain vaccine, why is it >>so much more prevalent in male children than female? I've never found the >>answer to that one. >> >>Diane >> > >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > > -------------------------------------------------------- Sheri Nakken, R.N., MA Vaccination Information & Choice Network, Nevada City CA http://www.nccn.net/~wwithin/vaccine.htm ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Your question is too open-ended. I don't do business with people because of their size, that's ridiculous. That's not something I take into account when shopping for things I need. I choose because of location, price, cleanliness, etc. Judi At 08:40 PM 7/31/00 CDT, Mitzi wrote: >I would like to know from anyone that is using this listserve, who would use >rather use business and personal dealings with- a little person or >average-size person? Why? This question has nothing to do with >discrimination but I just want to know who are you more comfortable with >when it comes to handling something for you. > >Mitzi >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 In a message dated 7/31/00 9:42:00 PM Eastern Daylight Time, mitzi_evans@... writes: << I would like to know from anyone that is using this listserve, who would use rather use business and personal dealings with- a little person or average-size person? >> It doesn't matter who I deal with as far as business and personal dealings as long as they are reputable and good hearted people. It doesn't matter to me if they are short statured or average sized. There are good and bad in both. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 I would rather do business with the person that knew what they were doing. Size does NOT matter. a (unknown) I would like to know from anyone that is using this listserve, who would use rather use business and personal dealings with- a little person or average-size person? Why? This question has nothing to do with discrimination but I just want to know who are you more comfortable with when it comes to handling something for you. Mitzi ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ------------------------------------------------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 This seems to me a question about discrimination!! When I shop or do business, it has nothing to do with a person's size, or appearance. I look for a clean place, that's affordable, and convenient, it has nothing to do with a person's looks. Liz( e's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 lmao sherry, see i am not the only one who thinks joan looks like shes seventeen fresh outta high school......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 You may have heard of two types of cancer aids which I will mention. One, MGN 3, manufactured by Lane Laboratories, and Drl Johanna Budwig's flax seed oil/protein diet. They may help. Captain Geo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 I have just got the consultation document to comment on for the Chief executive - I have to read the thing yet. It is rather odd that HVs are not named as part of the constitution especially if they have a register. Does that also mean that if there were cases of misconduct going to the council - how would that work - or is that a daft question? Does it also mean that they would be not be required to seek health visiting advice? It probably spells that out in the document so I must read it. In message <l0313031eb5b4a86b8589@[137.73.105.149]>, Cowley <sarah.cowley@...> writes >The consultation document about replacement regulatory arrangements when >the UKCC is disbanded can be downloaded from: > >http://www.doh.gov.uk/pdfs/nmcconsult.pdf > >Responses are required within 3 months. The health visiting register is to >stay and there are to be 12 professional representatives: four nurses, >four midwives and four health visitors (one of each from each country) as >well as 11 appointed lay representatives. There is the possibility of >expanding the Council to 30; how that should work is one of the >consultation questions. > >Health visiting is not named in the constitution of the Council, committees >or glossary of what constitutes 'the professions'. > >Best wishes > > > > Cowley >Professor of Community Practice Development >Florence Nightingale School of Nursing and Midwifery >King's College, London >3.29b Clerk Maxwell Building >57 Waterloo Road >London SE1 8WA > >tel: 020 7848 3030 >fax: 020 7848 3506 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 TLS wrote: > please if there is anyone online.....well i am going > to scream. > if anyone is, please let me know. > > love, > leigh > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 I feel its vital HV are mentioned in the consultation. We may need to ask why we have been omitted. We are valued workforce and I am sure Mrs Blair if given the opportunity would agree Quote Link to comment Share on other sites More sharing options...
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