Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 : A water park is a great place to take for days off, Water Slides, Wave Pools, scantily clad women, its like a Harry Potter movie only real! In Canada we have a huge water park, one at West Edmonton Mall, (a shameless plug I add.) I have been told there is more Submarines (in The Waterpark) than the entire Fleet, in our Royal Canadian Navy?) Ok, Submarines that actually work again thanks for those Loaners you Brits pawned off on we silly Canucks. Now please continue the story about St , and his horse Trigger? cheers Wilf of inner earth. Re: (unknown) Hello , I understand the UAE is a very nice place to be, but what is the Waterpark Industry? P Nash <tehsmom@...> wrote: Hi all, A newbie here, am an Ndip from SA, working in the United Arab Emirates. Am in the Waterpark industry ( as the manager of a primary care clinic), which is a bit degrading. Hope to meet up with other people out there who are also doing the expat thing in odd countries. K well , hi to all!! Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I was diagnosed in August 2005 with CML and was told that I needed to get off birth control pills as soon as I could. I stayed on them for about 4 months after I was dianosed until my husband got " fixed " Mayo Clinic told me not to go off of them until we were sure that he tested negative but once he did to get off of them. I didn't feel any different when I was on them to when I wasn't. Hope this helps! Sheila formiga95127 <andrea@...> wrote: Hi My name is and I am new to the group, I am 24 years old and was DX in November of 2003 with CML and on 400mg of Gleevec. I will be getting married in July and my doctor wants to put me on Birth Control as a second birth control so that I dont get pregant. Is anyone taking birth control and Gleevec? Are there any side affects? Any advice would be great. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Hi , I am 30 and was dx in October. Prior to dx my husband and I were using condoms and not realy concerned about having an 'oops'. After I was dx I asked about the pill and I was told by my oncologist that the BCP was a no-no. However, after continuing with condoms and living the roller-coaster for a few months I told my oncologist that I was going on the pill. They were not happy about my decision but I explained that my state of mind in not wondering about an 'oops' was worth more than any problems the BCP may cause (I don't believe in abortion for myself and didn't like the odds of conception on gleevec). I take my BCP in the morning and my Gleevec at night so that they are as far apart in my system as possible. My understanding is that the concern with the pill is that it can enter the liver and compromise the livers ability to handle both meds. I looked into other options (IUD was the most tempting but I wasn't ready for the complications it carried being surgury). I still hope that some day with the miracle of modern medicine I will be able to have another child (I have a 2 year old son) so I am not ready to have my husband or I steralized. Anyway, I haven't noticed any major side-efects related to the pill and Gleevec...gleevec came with it's own side-effects but none seem to be changed by going on the pill. Good luck, formiga95127 <andrea@...> wrote: Hi My name is and I am new to the group, I am 24 years old and was DX in November of 2003 with CML and on 400mg of Gleevec. I will be getting married in July and my doctor wants to put me on Birth Control as a second birth control so that I dont get pregant. Is anyone taking birth control and Gleevec? Are there any side affects? Any advice would be great. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Dear Vonnie, I'm wishing you the very best outcome, good med's. and know I'm here in Colorado pulling for you!!!!! [ ] (unknown) > Group,it's 9:00pm the night before the big day and boy am I a nervous > wreck.Oh well hopefully by this time tom. night I will be in recovery. > Thanks for everything, all the advice and friendship,you have all help > make me through this time in my life.I appreciate it trully.Be talking > to you in a couple of weeks.. Thanks again Vonnie > > > > > > scoliosis veterans * flatback sufferers * revision candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 What do you mean when you grow up?? You are close to my age now.. 14 yrs ok.. Kathy -- (unknown) Kathy thank you so much!! I just opened your card today and it brought tears to my eyes for REAL!! You are an angel. When I grow up I wanna be just like you. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 Hi Pam, I'm Judy and I live in Louisville, just across the bridge. We're neighbors! I have auto immune hepatitis. It seems to be altogether different from the other heps. I also have psoriatic arthritis which is another autoimmune disease. I've been having a rough time accepting all these changes in my body and getting used to the immune suppressant medications I have to take. If you want to communicate an possibly meet for coffee sometime I would like that. With the gas prices the way they are, maybe we can meet half way. If that is something that you might want to do, let me know. Thanks for the tip on the Tylenol. . My liver is very compromised right now with quite a bit of damage. I knew not to take it but wondered what to do to replace it. My doctor told me not to take anti inflammatories because the prednisone would be doing that. I also am taking Imuran. I have been told to be careful because my body will not fight colds, flu, viruses, ect. with my immune system being lowered.. Judy, in Louisville KY Judy I must admit that I personally measure success in terms of the contributions an individual makes to her or his fellow human beings. Margaret Mead Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Pam I guess it just depends on the doctor. Mine tells me to avoid aspirin like poison but it is probably because treatment has lowered my platelets. It seems all doctors are consistent they in having varying opinions ha! Dale CHARLES GLOSSON <pwac-ed1952@...> wrote: I have had Hep C for at least the past 15yrs. I did the old interferon A and Ribitin back in the early 90's and was a none responder. My doctor has always told me that tylenol was the worse on your liver because it has a hard time processing it. If I have to take anything I take just plain old bayer asprin pamglosson pam in Jeffersonville IN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 I hope that the news is good. I believe I got the result of my biopsy before I went home the day I got it. I suppose it depends on where you get it. Keep us posted -dz- At 03:17 PM 5/1/2006, you wrote: hello all i just got my biopsy done today so hoefully it will be good news, i'm glad to have it out of the way, looks like i'll be starting treatments very soon provided there is no scarring,has anyone heard of this homepathic treatment in india?i've been reading up on this Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 HI THERE I HAVE NOT HEARD OF THE TREATMENT,I AM STILL WAITING TO SEE THE GI DR.AT INDIANAPOLIS MY DR. HERE AT VINNCENNES WONT TREAT ME BECAUSE OF MY CHRONES IT WAS IN REMISSION AND NOW IT IS BACK BUT HE SAID HE WOULD NOT TREAT ME BEFORE HE EVEN NEW THE CHRONES WAS ACTIVE AGAIN,ALSO SAID HE DOUBTED IF THE DR.AT INDIANAPOLIS WOULD.REALLY ENCOURAGING IS NT HE. heartside76 <JOSHUA_PELTON@...> wrote: hello all i just got my biopsy done today so hoefully it will be good news, i'm glad to have it out of the way, looks like i'll be starting treatments very soon provided there is no scarring,has anyone heard of this homepathic treatment in india?i've been reading up on this Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 --- linda hudson <alliebb98@...> wrote: > HI THERE I HAVE NOT HEARD OF THE TREATMENT,I > AM STILL WAITING TO SEE THE GI DR.AT INDIANAPOLIS MY > DR. HERE AT VINNCENNES WONT TREAT ME BECAUSE OF MY > CHRONES IT WAS IN REMISSION AND NOW IT IS BACK BUT > HE SAID HE WOULD NOT TREAT ME BEFORE HE EVEN NEW THE > CHRONES WAS ACTIVE AGAIN,ALSO SAID HE DOUBTED IF THE > DR.AT INDIANAPOLIS WOULD.REALLY ENCOURAGING IS NT > HE. > > > heartside76 <JOSHUA_PELTON@...> wrote: > hello all i just got my biopsy done today so > hoefully it will be good > news, i'm glad to have it out of the way, looks like > i'll be starting > treatments very soon provided there is no > scarring,has anyone heard of > this homepathic treatment in india?i've been reading > up on this > > Josh, i really hope your biopsy is good. I had some scarring and i still decided to do the treatments. Good luck and keep in touch!! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hello Ann: What's going on? There are a lot of friendly folks coming and going in the group that have a lot of great information. Just ask your questions and you'll get some pretty good answers. Dale Ann <twoharley38@...> wrote: anyone there? i really do not no much about this a friend told me because i need someone to talk to about this --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hello, my hepC was found to be active just a couple of months ago. No way of knowing just how long the disease has actually been distroying my liver. My doctor just told me yesterday that it must have been busy for years,because my live is nearly at failure.I am really scared,but my doctors have not much chance for my survival. I guess that I should be making my farewells to all that I know and love. Kat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Kat: New doctor time it sounds like. I have heard that the liver is one of the toughest organs and can function when 85% shoot. I've had this Hep C for at least 28 years and for the most part it has been just sitting there and not doing to much damage. Don't let the negatives of the doctor keep you from finding the right help with your condition. It's out there. Dale Kathleen Dunham <redkat420@...> wrote: Hello, my hepC was found to be active just a couple of months ago. No way of knowing just how long the disease has actually been distroying my liver. My doctor just told me yesterday that it must have been busy for years,because my live is nearly at failure.I am really scared,but my doctors have not much chance for my survival. I guess that I should be making my farewells to all that I know and love. Kat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Kat, I think you need to get a second opinion right away. What tests did they do to determine that you're in this condition?? I would be optimistic and instead of saying your farewells, become offensive and fight - this doesn't have to be a death sentence. Dorothy Re: (unknown) Hello, my hepC was found to be active just a couple of months ago. No way of knowing just how long the disease has actually been distroying my liver. My doctor just told me yesterday that it must have been busy for years,because my live is nearly at failure.I am really scared,but my doctors have not much chance for my survival. I guess that I should be making my farewells to all that I know and love. Kat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 you need to get anither dr right away Dorothy <dorv@...> wrote: Kat, I think you need to get a second opinion right away. What tests did they do to determine that you're in this condition?? I would be optimistic and instead of saying your farewells, become offensive and fight - this doesn't have to be a death sentence. Dorothy Re: (unknown) Hello, my hepC was found to be active just a couple of months ago. No way of knowing just how long the disease has actually been distroying my liver. My doctor just told me yesterday that it must have been busy for years,because my live is nearly at failure.I am really scared,but my doctors have not much chance for my survival. I guess that I should be making my farewells to all that I know and love. Kat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hello Kat, 'DESPAIR' is a 'SIN'. First of all please understand that No war can be won, what ever stocks of ammunition you have in your arsenel, if you have lost the hope of win. You are diagonosed about two months ago. there are people who is having this since decades. I was diagonosed about six months ago and the doctor thinks that i am having since last 5 years. Liver is such an organ that if there is one healthy tissue of liver in you that can regenerate the complete liver. Please note that the doctors sometimes over react to the disease, because as per their theory, it is not cureable, although it is not so. millions of the people have been cured. even so many people had been cured through herbs, to which medical doctor don't believe. they thin k that there is only one treatment, i.e. interferon or liver transplant. It is not so. I am improving through hebs. There is no need to desparate. i know a person who had two liver transplant and now living normal life. It is up to you. If you would surrender, no force can help you to overcome. So please be determined. You are a very powerful human being, how can you be defeated at the hands of such a tiny virus? Noway. Just lift yourself, Keep the morale high. Cheer up . Nothing will happen, You will be all right. Just get the treatment seriously. Please understand the theory, every human being has to die one day. The day is not known to any body. some go in child hood, some in young age and mostly in oldage. why to be frightened from a eternal reality. Death protects you more than any thing. If its time has not come, no disease can harm you. Doctors do not treat death, they treat diseases to make the quality of life better. Think your time has not come, so you will be treated. Don't talk of desparation. Be bold and fight. the success is yours. i wish and pray for your early recovery. saleem. Kathleen Dunham <redkat420@...> wrote: Hello, my hepC was found to be active just a couple of months ago. No way of knowing just how long the disease has actually been distroying my liver. My doctor just told me yesterday that it must have been busy for years,because my live is nearly at failure.I am really scared,but my doctors have not much chance for my survival. I guess that I should be making my farewells to all that I know and love. Kat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 good luck. my thoughts are with you Sharon --- heartside76 <JOSHUA_PELTON@...> wrote: > i will be getting my biopsy results next tuesday,so > keep me in your > prayers please everyone,dave where did you get yours > done at? i got > mine at blodgett hospital in grand rapids > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hey Sharon it's been a while since we saw you..How are you doing? Do you have any graduating this year too?? I have 1 this year and 2 left togo..WHEW!! My nose is alot better but it still has a bump on the left side of it and it is kinda hard tobreathe onthat side but it is my ear that hurts so bad..It is at the very top of my ear and it is healed but hurts like hell..Can't sleep on it..Don't know why though..Hope all is well with everyone and Josh my prayers are with you and if ya need any of us we are here for you!! Let us know what they say ok??Sharon Zeis <szeis_1@...> wrote: good luck. my thoughts are with you Sharon--- heartside76 <JOSHUA_PELTON@...> wrote:> i will be getting my biopsy results next tuesday,so> keep me in your > prayers please everyone,dave where did you get yours> done at? i got > mine at blodgett hospital in grand rapids> > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Josh, my thoughts are with you as well!! --- Janet <jfw4359@...> wrote: > Hey Sharon it's been a while since we saw you..How > are you doing? Do you have any graduating this year > too?? I have 1 this year and 2 left togo..WHEW!! My > nose is alot better but it still has a bump on the > left side of it and it is kinda hard tobreathe > onthat side but it is my ear that hurts so bad..It > is at the very top of my ear and it is healed but > hurts like hell..Can't sleep on it..Don't know why > though..Hope all is well with everyone and Josh my > prayers are with you and if ya need any of us we are > here for you!! Let us know what they say ok?? > > Sharon Zeis <szeis_1@...> wrote: good luck. > my thoughts are with you > Sharon > > --- heartside76 <JOSHUA_PELTON@...> wrote: > > > i will be getting my biopsy results next > tuesday,so > > keep me in your > > prayers please everyone,dave where did you get > yours > > done at? i got > > mine at blodgett hospital in grand rapids > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi Jan. I've got 2 graduating and prom is this weekend. Greg finally got a job which is GREAT. It also means I don't have a house-husband anymore and I have to do most of that stuff. We are doing good though. Hopefully your ear willl stop hurting soon. SharonJanet <jfw4359@...> wrote: Hey Sharon it's been a while since we saw you..How are you doing? Do you have any graduating this year too?? I have 1 this year and 2 left togo..WHEW!! My nose is alot better but it still has a bump on the left side of it and it is kinda hard tobreathe onthat side but it is my ear that hurts so bad..It is at the very top of my ear and it is healed but hurts like hell..Can't sleep on it..Don't know why though..Hope all is well with everyone and Josh my prayers are with you and if ya need any of us we are here for you!! Let us know what they say ok??Sharon Zeis <szeis_1@...> wrote: good luck. my thoughts are with you Sharon--- heartside76 <JOSHUA_PELTON@...> wrote:> i will be getting my biopsy results next tuesday,so> keep me in your > prayers please everyone,dave where did you get yours> done at? i got > mine at blodgett hospital in grand rapids> > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 I had mine at St. 's hospital in Green Bay. My doctor then practiced there. There is a clinic attached to the hospital. I got the results before I went home that day. I have since had to switch doctors, because my company switched insurance. That sucks, but I found a good doctor. My wife used to see him before she had to switch to be covered under my insurance... Damn HMO's Keep us posted. -dz- At 02:16 PM 5/3/2006, you wrote: i will be getting my biopsy results next tuesday,so keep me in your prayers please everyone,dave where did you get yours done at? i got mine at blodgett hospital in grand rapids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hello Dorothy, My doctors were very thourough,I have been genotyped as Hepatitis C-1a. I had a liver biopsy done a month and a half ago. The results showed that my liver is at stage 4. Dr Gail Havorka was being as kind as she could be when she told me that my disease has been active for a very long time for it to be in the condition it is. Genotype 1a is rare and very hard to treat. She told me that there is little chance that the interferon and ribavirin will be able to kill off the virus that has been attacking me for so long.She didnt come out and say it ,so I did. " With or without the medications- I don't have long do I? " and she nodded yes. I got it from a blood transfusion in 1982.I first found out about the antibodies in 1994. So as you see, my condition is very poor.Hard to believe, I feel well most of the time, I look good-my coloring is still very pink-but I have been having the night sweats for years. My liver will not be able to repair itself. It is too far gone. That is why I am making my farewells to those I love. I may have just a few years left to me and I want to do a few things Kat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hey Sharon my heart goes out to you with 2 graduating..I know you are busy this time of year!! WHEW! Congrats on your hubby having a great job..That is alot of releif I bet..My damn ear hurts loike hell and I don't understand cause it is healed..At least on the outside it is..Sharon Zeis <szeis_1@...> wrote: Hi Jan. I've got 2 graduating and prom is this weekend. Greg finally got a job which is GREAT. It also means I don't have a house-husband anymore and I have to do most of that stuff. We are doing good though. Hopefully your ear willl stop hurting soon. SharonJanet <jfw4359@...> wrote: Hey Sharon it's been a while since we saw you..How are you doing? Do you have any graduating this year too?? I have 1 this year and 2 left togo..WHEW!! My nose is alot better but it still has a bump on the left side of it and it is kinda hard tobreathe onthat side but it is my ear that hurts so bad..It is at the very top of my ear and it is healed but hurts like hell..Can't sleep on it..Don't know why though..Hope all is well with everyone and Josh my prayers are with you and if ya need any of us we are here for you!! Let us know what they say ok??Sharon Zeis <szeis_1@...> wrote: good luck. my thoughts are with you Sharon--- heartside76 <JOSHUA_PELTON@...> wrote:> i will be getting my biopsy results next tuesday,so> keep me in your > prayers please everyone,dave where did you get yours> done at? i got > mine at blodgett hospital in grand rapids> > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Dear Kat: I am 1A and it is the most common in the United States from what I have been told. It is also one of the most difficult to clear. I'm sure you have a very good doctor but my doctor always tells me healing has a lot to do with a positive attitude as much as it does medicine. Hang in there. Dale Kathleen Dunham <redkat420@...> wrote: Hello Dorothy, My doctors were very thourough,I have been genotyped as Hepatitis C-1a. I had a liver biopsy done a month and a half ago. The results showed that my liver is at stage 4. Dr Gail Havorka was being as kind as she could be when she told me that my disease has been active for a very long time for it to be in the condition it is. Genotype 1a is rare and very hard to treat. She told me that there is little chance that the interferon and ribavirin will be able to kill off the virus that has been attacking me for so long.She didnt come out and say it ,so I did. " With or without the medications- I don't have long do I? " and she nodded yes. I got it from a blood transfusion in 1982.I first found out about the antibodies in 1994. So as you see, my condition is very poor.Hard to believe, I feel well most of the time, I look good-my coloring is still very pink-but I have been having the night sweats for years. My liver will not be able to repair itself. It is too far gone. That is why I am making my farewells to those I love. I may have just a few years left to me and I want to do a few things Kat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi Sharon You sound like Susy, she was sure happy when I went back to work after all most five month's out of work. TerrySharon Zeis <szeis_1@...> wrote: Hi Jan. I've got 2 graduating and prom is this weekend. Greg finally got a job which is GREAT. It also means I don't have a house-husband anymore and I have to do most of that stuff. We are doing good though. Hopefully your ear willl stop hurting soon. SharonJanet <jfw4359@...> wrote: Hey Sharon it's been a while since we saw you..How are you doing? Do you have any graduating this year too?? I have 1 this year and 2 left togo..WHEW!! My nose is alot better but it still has a bump on the left side of it and it is kinda hard tobreathe onthat side but it is my ear that hurts so bad..It is at the very top of my ear and it is healed but hurts like hell..Can't sleep on it..Don't know why though..Hope all is well with everyone and Josh my prayers are with you and if ya need any of us we are here for you!! Let us know what they say ok??Sharon Zeis <szeis_1@...> wrote: good luck. my thoughts are with you Sharon--- heartside76 <JOSHUA_PELTON@...> wrote:> i will be getting my biopsy results next tuesday,so> keep me in your > prayers please everyone,dave where did you get yours> done at? i got > mine at blodgett hospital in grand rapids> > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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