Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Hi Suzie, I don't think CAT scans or MRIs show very much. I've never had to have those done. But, I did have a biopsy. That's the best test to show how much damage you have to your liver. I think the other tests might show Cirrhosis, but I don't think they would show milder damage, like inflammation or fibrosis. Those other tests are expensive, too. I've heard that you shouldn't start treatment unless you have a biopsy. Good luck. Marie At 05:29 PM 11/8/2003, you wrote: >Marie thank you so much for your rapid response . I used to know this kind >of thing but my brain is fogged lately. I'm waiting to go on tx but my doc >keeps sending me for tests - CAT scan . MRI , Ultrasound etc. Weird how >the docs push & push for tx & when you finally agree to it & your stomach >is in knots awaiting tx , they make you wait & wait !! >Suzie > >Marie Kuhn <mariemk@...> wrote: >Hi Suzie, >The CBC tells you about your level of blood platelets, along with a bunch >of other things. Platelets are what cause your blood to clot. Mine was >a little low last time, but I only have 4 more weeks of treatment, thank >goodness. > >Good luck with your tests. > >Marie in NW Florida > > >At 05:09 PM 11/8/2003, you wrote: > >Hi Guys, I've got a question - my doctor gave me a blood requisition so I > >can get my bloodwork done before I see him next month . My question is - > >which is it that tests for the thing that causes the blood to clot . He > >has ordered AST , ALT , GGT , CBC & INR . Is any of these the clotting > >thingy ? I can add to the req if it's something else . > >Thanks , Suzie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Hello again Marie , I had a biopsy back in '96 that showed cirrhosis & my LFTs have been elevated since I was diagnosed . My gastro , who had had me on tx twice , died three years ago & since he was the only one left in town (except for a semi-retired 70 yr old) I have been seeing an infectious diseases doc . I've been asking him for a repeat biopsy since I started seeing him but he said only if I went on tx so I finally said O K .Then he started all these other tests. He's pretty much the only game in town & I can't afford to go elsewhere . There are thousands of people in this town who have no doctor at all - they have to use the Emergency Room when they need to see a doctor ! SuzieMarie Kuhn <mariemk@...> wrote: Hi Suzie,I don't think CAT scans or MRIs show very much. I've never had to have those done. But, I did have a biopsy. That's the best test to show how much damage you have to your liver. I think the other tests might show Cirrhosis, but I don't think they would show milder damage, like inflammation or fibrosis. Those other tests are expensive, too.I've heard that you shouldn't start treatment unless you have a biopsy. Good luck.MarieAt 05:29 PM 11/8/2003, you wrote:>Marie thank you so much for your rapid response . I used to know this kind >of thing but my brain is fogged lately. I'm waiting to go on tx but my doc >keeps sending me for tests - CAT scan . MRI , Ultrasound etc. Weird how >the docs push & push for tx & when you finally agree to it & your stomach >is in knots awaiting tx , they make you wait & wait !!>Suzie>>Marie Kuhn <mariemk@...> wrote:>Hi Suzie,>The CBC tells you about your level of blood platelets, along with a bunch>of other things. Platelets are what cause your blood to clot. Mine was>a little low last time, but I only have 4 more weeks of treatment, thank>goodness.>>Good luck with your tests.>>Marie in NW Florida>>>At 05:09 PM 11/8/2003, you wrote:> >Hi Guys, I've got a question - my doctor gave me a blood requisition so I> >can get my bloodwork done before I see him next month . My question is -> >which is it that tests for the thing that causes the blood to clot . He> >has ordered AST , ALT , GGT , CBC & INR . Is any of these the clotting> >thingy ? I can add to the req if it's something else .> >Thanks , Suzie> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 Bob; There are good reasons for doing things and bad ones. Almost every treatment a doctor offers for-I would say- almost everything, has the potential to do harm to some people. I am sure it is commonplace to consider risks and cost/benefits ratios before taking a course of action. I wont't deny that it could be done better, but that is the way it is done. Unless one KNOWS that the motives are bad,; greed, ambition, callousness, no way to blame a doctor for taking normal risks. Adrienne (unknown) For those who do not know Englebienne, he is an associate of Dr Kenny DeMeirleir and the Free University of Belgium. He is also a PhD and has been studying CFS alongside KDM for many years. This article is about RNase L and what it has to do with CFS. It also includes toward the end some treatment suggestions. He not only talks about elastase inhibitors but also calcium antagonists as treatments. Here is another quote from Dr Englebienne, " therefore has a direct negative impact on intra-cellular elastase (a serine protease) regulation. Isn't Dr Englebienne saying here that elastase is on the inside of the cell? Several people have touted Ampligen as being the answer. Yes Ampligen has helped some people. In fact Dr Englebienne, an associate of Dr DeMeirleir who has used Ampligen many times in treating CFS, said this about Ampligen in this same article, " To the best of my knowledge, the only drug so far developed and capable of regulating the 2-5OAS activity is the mismatched ds-RNA Ampligen (47), which unfortunately also upregualates PKR (48), which is highly undesirable in CFS. If Dr Englebienne knew Ampligen could be dangerous in treating CFS, surely Dr DeMeirleir also knew this and yet he used Ampligen anyway. Bob Co-Cure/message/5277 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 Phyllis, Yes, I think depression is a perfectly normal reaction to this disease. I too remember clearly how it felt not having it and I have spent my share of time on the " pity pot " . Now I only allow myself to do it occasionally though because it can become habit. And, as I'm sure you know, we don't have to look too far to find somebody with worse problems. I heard today that a 34 year old sister of a coworker had a double mastectomy this morning. She has 3 children, the youngest 1 month old. Took me right out of the doldrums today. I have a lot of trouble in the morning too and am lucky enough that I can go slow until things loosen up a bit. As much as it hurts I am glad that I work because I have to use my computer all day and that loosens up my fingers and I think keeps them moving. If I didn't have to go to work each morning I am afraid I would baby myself until I stiffened up permanently. There is a lot of help out there for us so I hope you can kick the depression in the teeth the majority of the time and the rest of the time try to remember that you are not alone. Cheri :-) [ ] (unknown) Hi, My name is Phyllis. I've had psoriatic arthritis for almost 30 years. I was in remission for 17-18 years and beginning 2-3 years ago have experienced more and more problems. I have new joints that are involved now and a lot of pain. Dressing myself in the AM has suddenly become a challenge. The fatigue is intense also. I'm on my way back to a rheumatologist's care but am having a significant amount of depression. It is so hard to be so sick again after feeling reasonably good for so long. I know that I'm on the " pity pot " but I'm feeling so cheated right now. Anyone out there who has been through this too? Thanks, Phyllis [Editor's Note: Hi Phyllis; sorry we are meeting under these circumstances, but at least you will know you're not alone. You would think that after 17-18 years, you would have been " safe " . From what you relate above, it sure sounds like the return of PA. Are you taking any medication for the PA? Any medication at all (OTC or prescription)? Depression is an all-too-common concomitant to serious, chronic illness, and perhaps particularly to PA, with all of PA's unknowns and uncertainties. The docs frequently prescribe an SSRI (a serotinin re-uptake inhibitor, e.g., Zoloft, Prozac)), a major tranquilizer such as one of the phenothiazine group--Mellaril, Thorazine, Stelazine), or some other mood elevator (Elavil, Nardil, etc.) for PA patients. The concept here is that depression intensifies the experience/sensations of pain. I hope you receive good news Wednesday, at your doc's. D.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 no way to blame a doctor for taking normal risks. > Adrienne Adienne, I assume you are talking about Dr Meirleir using Amplgen on PWC's knowing that it is highly undesirable becuase it can upregualte the PKR? I agree that every doctor has to weigh the risk in giving Ampligen. A lot of people was upset at the NCF because they were against Ampligen soon after it started being used. There was a member of Gail's then Massuchusetts CFIDS support group, who flew to Belgium and got treated with Ampligen. This person has been in a wheel-chair ever since. I guess if a close friend of mine was hurt like this by a drug, I would probably be against it also. Only normal. I guess the question is the doctor taking " normal " risks? Now, I am old and been ill for 28 years. I am more than willing to take the risks and try things out, but I hate to see younger people try them out and it puts them in a wheel-chair, they have longer to spend in it than I would. Good Health to You, Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 Two different doctors devastated my life; one with a common antidepressant, and the other with a flu shot. The second one, when I called six weeks after the shot to say I was still sick, said, " Oh, I guess you really do have chronic fatigue syndrome. " Irony: he believed in the disease, but not that I had it. He saw I was obese and all he ever did was try to get me to lose weight. All kinds of " stuff " happens all the time. I am too sick to waste any energy being " against. " My own anger has cost me much, as well as what others have done to me. Peace, Adrienne Re: (unknown) no way to blame a doctor for taking normal risks. > Adrienne Adienne, I assume you are talking about Dr Meirleir using Amplgen on PWC's knowing that it is highly undesirable becuase it can upregualte the PKR? I agree that every doctor has to weigh the risk in giving Ampligen. A lot of people was upset at the NCF because they were against Ampligen soon after it started being used. There was a member of Gail's then Massuchusetts CFIDS support group, who flew to Belgium and got treated with Ampligen. This person has been in a wheel-chair ever since. I guess if a close friend of mine was hurt like this by a drug, I would probably be against it also. Only normal. I guess the question is the doctor taking " normal " risks? Now, I am old and been ill for 28 years. I am more than willing to take the risks and try things out, but I hate to see younger people try them out and it puts them in a wheel-chair, they have longer to spend in it than I would. Good Health to You, Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Hi Marjorie... Non-fusion is a relatively common complication of spine fusion surgery. If you have any legal standing at all, it would be because your rods were removed and not replaced. You may find it difficult to find a qualified doctor willing to treat you, if you make them think that your priority is a lawsuit. Good luck! Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Axel, I'm sure you don't need another voice to explain anything to you. I just want to say that I have respect for your knowledge in some areas. I hope good things for you. The spam on the board is easy to delete and thereby give the spammers no additional play. There are lots of BTD topics to expound on :-) This is a cool board and I'm glad to be a part of it. I;ve had to delete a lot of your e-mails lately and that's been no fun. Tom , 39 Type O, Non-Secretor Arlington, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 I would do trauma for a start; injury via sport programs(sarcode and spinal ), and of course in the beginning via energetic (varhope) Noel. (unknown) hello,I have a client with a gun shot to the head it severednerves that leaves her left side unable to percievedistance she falls easily and walks unsteadily. Inspite of that she works as an auditor and has a quickmind.Does anyone have any thoughts on how to work with her.I did not put the harness on her head just the belly.She has not had seizures since the accident 2 yearsago.I worked with nerves, tri-vector, DNA, scalarI don't want to be too cautious and I don't want toharm this amazing woman. Any ideas?INDIANA JANN=====Namaste.Measure your success by the degree of Peace You FEEL.JannaLeLa812-305-2417www.aahsanctuary.comJannaLeLa@............................................... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 Looks like I'll miss your transit through Yellowknife. Out of town for a bit. If you or yours need a medical evacuation flight, Adlair in Cambridge has the only jet up there (gravel certified) and Medflight (bases in Cambridge Bay and Yellowknife) flies multiple King- Air 200's. Nothing against the nurses in Inuvik, but they staff thier Medevacs from Emergency while we are fully dedicated at a Critical Care level with many dually certified RN/Medics's. Plus we love flying bush trips (in the Twin Otters's) although unless you are in the area between Kugluktuk/the diamond mines westward to Deline/Tulita it is likely we'll be the second crew you see as the local primary/community health nurse will do the scene response and we'll pick you up at the nursing station by King-Air. By the way, who are you working for? The client directly or a medical support outfit? Fly Safe. Ken L-W CCEMT-P/RN etc (Medflight since '95) --- " banfffff " <banfffff@...> wrote: I am off in a few days for two weeks to watch bears. Hopefully no work for me. try to keep maulings to a minimum. lol I fly into yellowknife, drive up to Inuvik. Ski doo to Tutoyaktuk. Then the hard part!! Then we sled for a day to a northern camp. I sure hope these guys received there flu shots, last time I went with these scientists I ran out of cough suppressents!! Jo Member Information: List owner: Ian Sharpe Owner@... Editor: Ross Boardman Editor@... ALL list admin messages (subscriptions & unsubscriptions) should be sent to the list owner. Post message: egroups Please visit our website http://www.remotemedics.co.uk Regards The Remote Medics Team Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2003 Report Share Posted November 16, 2003 Welcome back ine. I know what you mean about missing the group so much. I hope you're here to stay for as long as you want to. a > Hi and a > > Well im back on line once again. Its been like being without my right arm. Im > here until it goes again. Please put me back on the mailing list. Many > thanks > > ine from UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2003 Report Share Posted November 16, 2003 She sounds amazing. Stop worrying about hurting her, you won't and can't the machine won't let you. You may not be able to "Fix" her problem, but don't forget how resilient a body is. Maybe you need to head more to helping the other side of her brain take on more of the responsibilities, doing 'stimulating intell' or neurological repair in Timed Therapies, Music and Superlearning. By all means also do the superlearning too. Keep us posted. Yours in Health, Kathy JANN THOMAS <JannaLeLa@...> wrote: hello,I have a client with a gun shot to the head it severednerves that leaves her left side unable to percievedistance she falls easily and walks unsteadily. Inspite of that she works as an auditor and has a quickmind.Does anyone have any thoughts on how to work with her.I did not put the harness on her head just the belly.She has not had seizures since the accident 2 yearsago.I worked with nerves, tri-vector, DNA, scalarI don't want to be too cautious and I don't want toharm this amazing woman. Any ideas?INDIANA JANN=====Namaste.Measure your success by the degree of Peace You FEEL.JannaLeLa812-305-2417www.aahsanctuary.comJannaLeLa@............................................... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2003 Report Share Posted November 16, 2003 Cassidy, Your story of your son touched my heart. I have two children, aged 18 and 19. This is NOT good time to " fight " with him as they are now " grown up " and want things THEIR way. Trust me, if you ask ANY parents of " new adults " , they will tell you repeatedly that they are " nutty " age. My younger daughter BLAMES me for everything that didn't make sense. I am sure your son is doing this also. If it was me,, leave the implant alone but unfortunately, him being 18, by law he is adult and can make own decision without your permission. The surgeon is smart, by refusing to remove the implant. Pray that other will follow through if Josh tries to find another surgeon. Trust me, hopefully in time Josh will change his mind and use his processor again, but for now during his " wild age " , I would leave him be. Meanwhile, see about getting him to see a counselor. I believe St. Louis have an excellent mental health program for the deaf. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2003 Report Share Posted November 17, 2003 Cassidy I wish I could encourage you about your son's actions. My suspicion is that he has become deeply involved with the deaf culture in your area. Perhaps, he has even met a lovely deaf girl and just won't tell you. I sense a lot of frustration and unhappiness in his behavior. Over the years there has been a pocket of resistance within the deaf community to the CI. Mostly it has been " old timers " who grew up in the environment and felt uncomfortahle being thrust into the hearing community, For a long time I could not understand this attitude. I had until just a few months ago always had some residual hearing, got along in the hearing comunity (still do) with the use of hearing aids and later an implant, I guess I never really understood the heart of the totally deaf folks. A year ago my first implant failed and a second one done in the other ear last march has also proven ineffective. I am now totally deaf. I too have become involved throught my church in the deaf community. I find myself far more understanding and tollerant of their feelings and in some cases what we used to think of as rude behavior, What we think is rude and crude behavior is often just severe frustration and the inability to express it. Do not be too hard on your son at this point in time. I would suggest that you make an effort to learn some sign language, and give him the respect he is searching for as a deaf individual. Make every effort possible to understand how he feels and to allow him to feel that way. I believe that as he matures he will learn to integrate to some degree into the hearing world, but I also think that for him the implant is not the best choice. To be successful with the implant one must truly want to work at learning to use it. This may have been more than your son was willing to do, or felt he could do. His outbursts may even have been more to do with his own frustration and lack of confidence than with anything you, or any other family members, the audiologist and surgeon did or said. Hang in there. Try being totally accepting and understanding of his feelings and actions. Learn to communicate with him -his way- Why not ask him to teach you some sign language? We will keep you both in our prayers God bless http://christiankidshows.org http://professorhoo-dini.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Have had excellent results with chelated minerals from Doctors Pride in N.Y. Ph 1-800-645-9909. Product #6790D. 2 BEFORE 2 meals s day Have seen excellent results in 30 days. As the placquing is dissolved, the blood levels will increase , so he should also take NoFlush niacin #9490D 2 BEFORE 2 meals a day. Let me know how he does DrBob W. Pfeiffer,D.C.;D,A.B.C.O. P. O. Box 606 Pendleton, Or. 97801 541. 276.2550 (unknown) Hello listmates, My 81 yr. old father on the East coast has had recent palpitations and recent elevated blood pressure(140/90). He is in good health otherwise, fit, and has a relatively good diet. Cardiac stress test and SPECT imaging indicate no MI scar but perfusion defect was noted in the left ventricle. No prior significant Hx save cholesterol of ~220. Rx'd Lipitor is the only drug I am aware of that he takes. He has been taking this for about a year and has had no other Rx changes recently. He has been scheduled for cardiac catheterization next month with the game plan being possibility of angioplasty or bypass, dependent on findings. My father is aware of his mortality and accepts gracefully whatever outcome. I have been asked to provide a second opinion, details on risk factors and general input on quality of life issues. I am aware of the rates of recurrence of plaquing post-angioplasty and/or stent use, as well as the CASS studies on outcomes in non-operative single artery occlusion vs. bypass. Supplementation recommendations I gave were 1g Mg Malate bid, NOW B12/Folate/B6/Trimethylglycine, 60mg Co-Q10 bid and 6g vitamin C/6g Lysine (ing therapy). I would appreciate feedback regarding your experiences with the surgical procedures listed as well as impressions on the supplementation recs. As always, thank you for your help and consideration. W. Snell, D.C. 127-G NE 102nd Avenue Portland, OR 97220 Ph. 503-253-0827 Fax 503-253-4760 _________________________________________________________________ Page a contacts mobile phone with MSN Messenger. Get it FREE! http://www.msnmessenger-download.com OregonDCs rules: 1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated. 2. Always sign your e-mails with your first and last name. 3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 How about grapefriut ? Lipitor reacts with grapfruit to produce heart burn, headaches, stomach aches....possibly more. It is a long shot. (unknown) Hello listmates, My 81 yr. old father on the East coast has had recent palpitations and recent elevated blood pressure(140/90). He is in good health otherwise, fit, and has a relatively good diet. Cardiac stress test and SPECT imaging indicate no MI scar but perfusion defect was noted in the left ventricle. No prior significant Hx save cholesterol of ~220. Rx'd Lipitor is the only drug I am aware of that he takes. He has been taking this for about a year and has had no other Rx changes recently. He has been scheduled for cardiac catheterization next month with the game plan being possibility of angioplasty or bypass, dependent on findings. My father is aware of his mortality and accepts gracefully whatever outcome. I have been asked to provide a second opinion, details on risk factors and general input on quality of life issues. I am aware of the rates of recurrence of plaquing post-angioplasty and/or stent use, as well as the CASS studies on outcomes in non-operative single artery occlusion vs. bypass. Supplementation recommendations I gave were 1g Mg Malate bid, NOW B12/Folate/B6/Trimethylglycine, 60mg Co-Q10 bid and 6g vitamin C/6g Lysine (ing therapy). I would appreciate feedback regarding your experiences with the surgical procedures listed as well as impressions on the supplementation recs. As always, thank you for your help and consideration. W. Snell, D.C. 127-G NE 102nd Avenue Portland, OR 97220 Ph. 503-253-0827 Fax 503-253-4760 _________________________________________________________________ Page a contact’s mobile phone with MSN Messenger. Get it FREE! http://www.msnmessenger-download.com OregonDCs rules: 1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated. 2. Always sign your e-mails with your first and last name. 3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi , The biggest hole in your nutritional recommendations that I see is a lack of hydrocholoric acid ... if he needs B12, the HCL will aid the metabolic and blood production picture well. Have someone check on the possibility of a hiatal hernia and have that adjusted before he subjects himself to a catherization. Risky procedure...you know all the risk percentages. Liquid minerals could be another area of depletion resulting in cardiac symptomatology. Sunny ;'-) (unknown) > Hello listmates, > > My 81 yr. old father on the East coast has had recent palpitations and > recent elevated blood pressure(140/90). He is in good health otherwise, > fit, and has a relatively good diet. Cardiac stress test and SPECT > imaging > indicate no MI scar but perfusion defect was noted in the left ventricle. > No prior significant Hx save cholesterol of ~220. Rx'd Lipitor is the > only > drug I am aware of that he takes. He has been taking this for about a > year > and has had no other Rx changes recently. He has been scheduled for > cardiac > catheterization next month with the game plan being possibility of > angioplasty or bypass, dependent on findings. My father is aware of his > mortality and accepts gracefully whatever outcome. I have been asked to > provide a second opinion, details on risk factors and general input on > quality of life issues. I am aware of the rates of recurrence of plaquing > post-angioplasty and/or stent use, as well as the CASS studies on outcomes > in non-operative single artery occlusion vs. bypass. Supplementation > recommendations I gave were 1g Mg Malate bid, NOW > B12/Folate/B6/Trimethylglycine, 60mg Co-Q10 bid and 6g vitamin C/6g Lysine > (ing therapy). I would appreciate feedback regarding your experiences > with the surgical procedures listed as well as impressions on the > supplementation recs. As always, thank you for your help and > consideration. > > W. Snell, D.C. > 127-G NE 102nd Avenue > Portland, OR 97220 > Ph. 503-253-0827 > Fax 503-253-4760 > > _________________________________________________________________ > Page a contact's mobile phone with MSN Messenger. Get it FREE! > http://www.msnmessenger-download.com > > > > OregonDCs rules: > 1. Keep correspondence professional; the purpose of the listserve is to > foster communication and collegiality. No personal attacks on listserve > members will be tolerated. > 2. Always sign your e-mails with your first and last name. > 3. The listserve is not secure; your e-mail could end up anywhere. > However, it is against the rules of the listserve to copy, print, forward, > or otherwise distribute correspondence written by another member without > his or her consent, unless all personal identifiers have been removed. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 , ing also recommended proline along with the C and lysine. I remember the dose to be less than that of the lysine and C, I believe around .5 - 1.0 gm/day. Is your father under any stress that he might manage better? It is never too late to use exercise to help with cardiac function and stress. Is he happy? Terry Petty, D.C. (unknown) Hello listmates, My 81 yr. old father on the East coast has had recent palpitations and recent elevated blood pressure(140/90). He is in good health otherwise, fit, and has a relatively good diet. Cardiac stress test and SPECT imaging indicate no MI scar but perfusion defect was noted in the left ventricle. No prior significant Hx save cholesterol of ~220. Rx'd Lipitor is the only drug I am aware of that he takes. He has been taking this for about a year and has had no other Rx changes recently. He has been scheduled for cardiac catheterization next month with the game plan being possibility of angioplasty or bypass, dependent on findings. My father is aware of his mortality and accepts gracefully whatever outcome. I have been asked to provide a second opinion, details on risk factors and general input on quality of life issues. I am aware of the rates of recurrence of plaquing post-angioplasty and/or stent use, as well as the CASS studies on outcomes in non-operative single artery occlusion vs. bypass. Supplementation recommendations I gave were 1g Mg Malate bid, NOW B12/Folate/B6/Trimethylglycine, 60mg Co-Q10 bid and 6g vitamin C/6g Lysine (ing therapy). I would appreciate feedback regarding your experiences with the surgical procedures listed as well as impressions on the supplementation recs. As always, thank you for your help and consideration. W. Snell, D.C. 127-G NE 102nd Avenue Portland, OR 97220 Ph. 503-253-0827 Fax 503-253-4760 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Dear and listmates, My wife is a long time surgical nurse and has much experience with this stuff. I don't usually do this, but I'm going to have her reply... " I would say that if his quality of life is currently good, meaning he is active and cognitive, which it sounds like he is.....and his problems are able to be resolved by angioplasty and/or stent placement, I would go for it. However, at the age of 81, bypass surgery will take a lot out of your father. Open heart surgery takes a long time to recover from and sometimes with the geriatric population, they go along just fine until some illness or injury hits them and they never quite recover. Suddenly their age is very apparent and you have to ask yourself about the quality of life and how much fight he has left. Also, the truth is, that at 81, he could endure a big operation only to find he has some other health issue. He would be more susceptible to stroke, pneumonia, embolus, etc., and I believe that when your system is stressed with a major health event, it weakens the immune system to allow other opportunistic things to occur, such as viruses, neoplasms, etc. Ultimately, it's his choice how aggressively he would want to pursue this in consideration of his own mortality and the feelings of his family, friends, etc. I wish you and your father the best. " Good luck we are pulling for you and your father !!!! Matt Terreri, DC (unknown) > Hello listmates, > > My 81 yr. old father on the East coast has had recent palpitations and > recent elevated blood pressure(140/90). He is in good health otherwise, > fit, and has a relatively good diet. Cardiac stress test and SPECT imaging > indicate no MI scar but perfusion defect was noted in the left ventricle. > No prior significant Hx save cholesterol of ~220. Rx'd Lipitor is the only > drug I am aware of that he takes. He has been taking this for about a year > and has had no other Rx changes recently. He has been scheduled for cardiac > catheterization next month with the game plan being possibility of > angioplasty or bypass, dependent on findings. My father is aware of his > mortality and accepts gracefully whatever outcome. I have been asked to > provide a second opinion, details on risk factors and general input on > quality of life issues. I am aware of the rates of recurrence of plaquing > post-angioplasty and/or stent use, as well as the CASS studies on outcomes > in non-operative single artery occlusion vs. bypass. Supplementation > recommendations I gave were 1g Mg Malate bid, NOW > B12/Folate/B6/Trimethylglycine, 60mg Co-Q10 bid and 6g vitamin C/6g Lysine > (ing therapy). I would appreciate feedback regarding your experiences > with the surgical procedures listed as well as impressions on the > supplementation recs. As always, thank you for your help and consideration. > > W. Snell, D.C. > 127-G NE 102nd Avenue > Portland, OR 97220 > Ph. 503-253-0827 > Fax 503-253-4760 > > _________________________________________________________________ > Page a contact's mobile phone with MSN Messenger. Get it FREE! > http://www.msnmessenger-download.com > > > > OregonDCs rules: > 1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated. > 2. Always sign your e-mails with your first and last name. > 3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 A reminder about surgery of this magnitude, especially at 's father's age: the anesthesia is more dangerous than the surgery..and the surgery is NOT a walk in the park. Sunny Sunny Kierstyn, RN DC Fibromyalgia Care Center of Oregon 711 Country Club Rd., #1A Eugene, Oregon 541-345-9436 (unknown) > > > > Hello listmates, > > > > My 81 yr. old father on the East coast has had recent palpitations and > > recent elevated blood pressure(140/90). He is in good health otherwise, > > fit, and has a relatively good diet. Cardiac stress test and SPECT > imaging > > indicate no MI scar but perfusion defect was noted in the left ventricle. > > No prior significant Hx save cholesterol of ~220. Rx'd Lipitor is the > only > > drug I am aware of that he takes. He has been taking this for about a > year > > and has had no other Rx changes recently. He has been scheduled for > cardiac > > catheterization next month with the game plan being possibility of > > angioplasty or bypass, dependent on findings. My father is aware of his > > mortality and accepts gracefully whatever outcome. I have been asked to > > provide a second opinion, details on risk factors and general input on > > quality of life issues. I am aware of the rates of recurrence of plaquing > > post-angioplasty and/or stent use, as well as the CASS studies on outcomes > > in non-operative single artery occlusion vs. bypass. Supplementation > > recommendations I gave were 1g Mg Malate bid, NOW > > B12/Folate/B6/Trimethylglycine, 60mg Co-Q10 bid and 6g vitamin C/6g Lysine > > (ing therapy). I would appreciate feedback regarding your experiences > > with the surgical procedures listed as well as impressions on the > > supplementation recs. As always, thank you for your help and > consideration. > > > > W. Snell, D.C. > > 127-G NE 102nd Avenue > > Portland, OR 97220 > > Ph. 503-253-0827 > > Fax 503-253-4760 > > > > _________________________________________________________________ > > Page a contact's mobile phone with MSN Messenger. Get it FREE! > > http://www.msnmessenger-download.com > > > > > > > > OregonDCs rules: > > 1. Keep correspondence professional; the purpose of the listserve is to > foster communication and collegiality. No personal attacks on listserve > members will be tolerated. > > 2. Always sign your e-mails with your first and last name. > > 3. The listserve is not secure; your e-mail could end up anywhere. > However, it is against the rules of the listserve to copy, print, forward, > or otherwise distribute correspondence written by another member without his > or her consent, unless all personal identifiers have been removed. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 Sounds great, Joanne. Would be great if the hotel could also extend that rate for Sunday night. There are some of us who will make a whole weekend of it, and that means leaving Monday. In fact, I'll be flying in at 6am Saturday again. dan Tuesday, November 25, 2003, 1:03:26 PM, you wrote: s> The weekend of January 17th, 2004 wins the vote for the Seattle s> Winter Bash and Splash. s> The hotel will be the same as last year which is the Marriott s> Courtyard at Southcenter. The conference will be held nearby in a s> Casino conference center which can accommodate 200 conference s> attendees. The conference is scheduled to start at 9:30AM and will s> include lunch at the casino and dinner at the hotel. s> The web site will go live soon. s> Rates for the hotel will be $79 night whether it's 1, 2, 3, or 4 s> people in a room. This hotel rate is good for Friday or Saturday s> nites.Please do not make a reservation yet. You will be able to make s> hotel reservations in a couple of days. The reason for this is you s> will need a conference number to go with your hotel reservation.This s> will be the only way you will get the reduced conference registration s> fee. Dan Lester, Boise, ID honu@... www.gailndan.com/lapband Dr. Ortiz, Tijuana, 4/28/03 323/233/199 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 Is the Marriot Courtyard near the airport and/or how much do you think a taxi would be go get from one to the other. I am not brave enough to drive over the mountains in January, but have no problem flying! If there are other bandsters coming from eastside of state, I would consider car pooling to share expenses. I would really like to come this year. Kim H (grand coulee) 277/210/150 Dr Kuri 8-02 (unknown) The weekend of January 17th, 2004 wins the vote for the Seattle Winter Bash and Splash. The hotel will be the same as last year which is the Marriott Courtyard at Southcenter. The conference will be held nearby in a Casino conference center which can accommodate 200 conference attendees. The conference is scheduled to start at 9:30AM and will include lunch at the casino and dinner at the hotel. The web site will go live soon. Rates for the hotel will be $79 night whether it's 1, 2, 3, or 4 people in a room. This hotel rate is good for Friday or Saturday nites.Please do not make a reservation yet. You will be able to make hotel reservations in a couple of days. The reason for this is you will need a conference number to go with your hotel reservation.This will be the only way you will get the reduced conference registration fee. Since I was away they were unable to get me to sign the contract. I'll try to meet with them tommorow to do this. Band conference registration fees will be $69 if staying at the hotel or $82 if attending for just the day. This fee will include an all day conference on Saturday, including physicians and professional talks and panel, group sessions, lunch, dinner, fashion show, special entertainment and prizes. For those staying at the hotel there are activities such as ?yoga, swimming aerobics, aerobics class and the traditional late night swim and hot tub gathering. If someone has special dietary needs please don't let this hold you back from attending. We will make every effort to accommodate. There is currently several surgeons, nurse specialists and therapists speaking. The Agenda will be posted soon when I get their written commitments. Thanks for all the email suggestions. Joanne in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 The Marriot Courtyard should have a shuttle van that runs from the airport for free. Check with them when you make your reservation. > Is the Marriot Courtyard near the airport and/or how much do you think a taxi would be go get from one to the other. I am not brave enough to drive over the mountains in January, but have no problem flying! > If there are other bandsters coming from eastside of state, I would consider car pooling to share expenses. I would really like to come this year. > Kim H (grand coulee) > 277/210/150 > Dr Kuri 8-02 > (unknown) > > > The weekend of January 17th, 2004 wins the vote for the Seattle > Winter Bash and Splash. > > The hotel will be the same as last year which is the Marriott > Courtyard at Southcenter. The conference will be held nearby in a > Casino conference center which can accommodate 200 conference > attendees. The conference is scheduled to start at 9:30AM and will > include lunch at the casino and dinner at the hotel. > > The web site will go live soon. > > Rates for the hotel will be $79 night whether it's 1, 2, 3, or 4 > people in a room. This hotel rate is good for Friday or Saturday > nites.Please do not make a reservation yet. You will be able to make > hotel reservations in a couple of days. The reason for this is you > will need a conference number to go with your hotel reservation.This > will be the only way you will get the reduced conference registration > fee. Since I was away they were unable to get me to sign the > contract. I'll try to meet with them tommorow to do this. Band > conference registration fees will be $69 if staying at the hotel > or $82 if attending for just the day. This fee will include an all > day conference on Saturday, including physicians and professional > talks and panel, group sessions, lunch, dinner, fashion show, special > entertainment and prizes. For those staying at the hotel there are > activities such as ?yoga, swimming aerobics, aerobics class and > the traditional late night swim and hot tub gathering. > > If someone has special dietary needs please don't let this hold you > back from attending. We will make every effort to accommodate. > > There is currently several surgeons, nurse specialists and therapists > speaking. The Agenda will be posted soon when I get their written > commitments. > > Thanks for all the email suggestions. Joanne in Seattle > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Hi, I had hypo-thyroid before mgb, but I will tell you what I have learned. The range to measure thyroid is such a large range that you could have had a low thyroid all along. The " normal range " is 1-6, but women need to be at a 1 or 2 to get and maintain pregnancy. Some doctors are really re-thinking this range. I feel better at the " 1 " range. You might ask your family members what they feel better at and then see what your range is. Take care. Sherry in NM (unknown) Hey Folks! I am looking for some input from any of you post-ops who may have developed hypothyroidism after you had the surgery. (I am in no way suggesting that the surgery brings on this condition.) My blood test panels were always within normal ranges for my thyroid on my physicals previously, but when I had my one year check up my PCP found a goiter on my neck. I had the ultrasound done today and the radiologist confirmed that I had a large goiter on my thyroid. He indicated that it could be treated (and shrunk) by means of medication. My mother and sisters both have this condition and I knew that I had a genetic predisposition for it, but today confirmed my fears. My PCP said that it is possible that this condition contributed to my slow weight loss. In the past week I have actually gained about four pounds-something that had not happened previously. My question is, have any of you gone on the thyroid hormone post-op and, if so, did it make a difference in your energy level or your weight loss? I would appreciate any input here. The report on today's ultrasound won't be in my PCP's office until next week. I'm not sure what she will do to address the issue. Happy Thanksgiving everyone! Thanks for your feedback. Jan Teel Dr. R, 10/21/02 (-65 lb.) Charlotte, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Mimi, My heart goes out to you dear. Please do not lose hope.I was there. Bewildered, alone, crying for days...Feeling lied to, hopeless.... I had a bells plasy attck, a diagnosis based on blood work and symptoms that I had both Rheumatoid Arthritis and HAshimtos Thyroid disease all at the age of 26. Once healthy with no problems ever, now 8 years afer implanted I was falling apart. I got them out last year, and alot of symptoms slowly would fall to the wayside, and then new ones would surface. I had alot of neurological symts come about- like twtiching, and numbness in feet and hands. This to has went away. It has been about a year and three months, and slowly I am returning to my self. Sometimes quickly, somethings longer.My thyroid is getting better, and for the 1st time in two years, is functioning on its own again, I had to get off all my meds, and restart at a 1/3 of a dosage. The RA is gone. The same docs that tells you that you have this mixed connective are the same that diagnosed me with RA, that would never go away- but I refused medication, and now am in remission .They are the same docs baffled (even at the University of Chicago) at the miracoulous actions of my thyroid disease reversing itself, esp with the terrible case I had, that would again, never go away! . They simply do not know that "implant adjuvnet disease" causes masked, simular symptoms that mimic an array of many diseases combined.... Like MS, like Lupas, like RA.. How would they know? There are no long term studies to help them , to look at. My Nuerologist even said, (who firmly believes me) how does she know what to look for? What does salicone saline implants casue? Do they trick her into wasting tons and tons of testings for a diagnosis of ms, when in reality is a common symptom of this disease.And does she treat it the same way as MS? She was confused, and irate that something is on the market without any info, studies or textbooks to go by.She said she feels totally helpless. I know her frustration. I used to feel that way.......... What would I do if I were you? 1st: Dont believe their studies, becasue you are not the normal "typical" patient.They do not know how to treat you. 2)Start taking charge. Start detoxing, taking supplemmts, enemas, lemon fastings, test hormonal levels, start getting the trooper inside of you, prepared.Perhaps find a wellness center with natural doctors around you (make sure they are licesed MD's) Prepared to turn this around, to do good by yourself, to clean up. Prepare yourself to hear all sorts of terrible things from doctors . Prepare yourself not to listen. .Mimi, I promise you will get better. Pray, and ask God that will lead you to his promises.It is with his words, that I knew I would be healed. And I Am. I believe I am. I love you girl, hang in there - >From: "mimi_merchant" >Reply- > >Subject: (unknown) >Date: Wed, 26 Nov 2003 20:26:02 -0000 > >Dear Friends, >I am back again, was terible sick last month and is not well till >today, extreme pain, allover and very bad blood work, my rummy says >I have multiple connective tissue disease which means mixture of >many auto immune diseases, she has given me heavy pain killers and >again did lot of blood work yesterday. did any one have this >condition and any luck in coming out of it. I feel terrible and have >totally broken down. By the way I was explanted on 10oct this year >by Dr Feng at ohio and had saline implants for 15 months before >implants I was hale and hearty no pain or absolutely. Please pray >for me, I have lost any wish to live. > > > Quote Link to comment Share on other sites More sharing options...
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