Re: (unknown)

[Guest guest]

I guess it's a copy of EAS's body for life program, which I almost won a

few years ago. If you are eating like an O, then you are just fine.

My " after " picture:

http://www.digitalpose.com/mbr/1/22363/p/375864_5871041455390324773_vl.j

pg

(unknown)

Has anyone combined Physique Transformation.Com with BTD? This is a

great site for bodybuilding and/or weight loss. Has a great

tracking program for your proteins/carbs/fats intake.

[Guest guest]

beth,

Good for you! As a nurse who deals with a lot of orthopedists and pain

management docs, I think there is a prevailing fear in the docs these days

to put people on long term narcotics, esp with all the bad press(some

deserved) regarding drugs like Oxycontin. I also think that docs going

through school are just not educated enough regarding chronic pain and

associated syndromes. One school of thought seem to stem from that They are

taught to " fix it " , esp surgeons; and if it can't be " fixed " then they have

nothing to offer and don't want to bother with you anymore. The second, is

just a general understanding of how pain works and that there is not always

a black and white cause for the pain or why some people experience pain more

readily than others. There are new studies with hard data showing that

different people exposed to the same negative stimulus can have wildly

different responses-from slight discomfort to excruciating pain. There is

just so much that science and medicine does not understand about the brain

and how pain is processed and just because the doc doesn't understand it

doesn't make the patient crazy.

Just my 2 cents, hope that helps.

Banner, RN, CCM, RN-WCCM

Nurse Case Manager

First Rehabilitation Resources, Inc.

336-299-9995 (Phone)

336-299-3440 (Fax)

(unknown)

> Hi everyone...I NEED YOUR HELP AND INPUT...ASAP!!!

> I have been asked...and, crazy woman that I am, I AGREED...to be a

> speaker/representative at a national press conference that is being held

this

> coming Monday (Sept. 8)at the Washington Press Club in Washington, D.C.

....the

> topic of the press conference is Pain Management, or lack thereof, in the

> USA.!!! I have been involved with the American Pain Foundation, Perdue

> Pharmaceuticals, and the American Academy of Pain Management for several

years

> now regarding the poor to non-existent care/treatment for persons (like us

> Flatbackers) with chronic pain. The press conference is to announce new

> legislation and rules regarding the education of physicians and Health

Care

> workers I'm not completely clear on exactly what the legislation is...I

was

> too stunned when the woman p honed me this afternoon. She apologized for

the

> late request; but apparently people ahead of my name on the list of

possible

> speakers were either not available or were too afraid to speak at a

nationally

> televised press conference. Fortunately, I've done a lot of public

speaking

> before so that part doesn't scare me...it's the panel of people who will

also

> be there that has me spook-ed!! eg. The Secretary of Health, The Surgeon

> General, several senators, etc. are just a few of the names I heard before

I

> went temporarily numb!!

> But I am so passionate about the subject of Pain Management and so

> determined to do whatever is necessary to make treatment available to

chronic

> pain patients that I agreed to be a lay-speaker. And that's where I need

> EVERYONE'S HELP!!! Please e-mail me any " bullet-points " on Pain Management

> info, complaints, run-ins with rude Docs who refused to treat you thinking

> you're a " drug-seeker " and so on...anything that you think would be

helpful

> regarding education on Pain Management for chronic pain. I am only being

given

> 5 mins. to speak, but then I have to be ready to answer questions from the

> press and I want to get our point across to them. I am meeting with a rep

from

> the American Academy of Pain Management and some senator tomorrow for

lunch

> (9/3) to be briefed on what to expect; then there's a rehearsal on Sunday

at

> the Press Club; the press conference is on Monday at 10 AM.

> I know this is short notice but I plan on spending a lot of time on the

> computer over the next few days so I will read EVERY e-mail you send me on

> this subject. NO NAMES or IDENTITIES will be used at any time. I just want

to

> get your input so that I do some good for our cause, so to speak!! PLEASE

HELP

> ME FOLKS!!! THIS COULD BENEFIT ALL OF US IN THE FUTURE!!! SEND YOUR

E-MAILS TO

> THE FEISTYSCOLIOFLATBACKERS web site and I'll acknowledge

your

> replies as soon as I can.

> THANKS ALL!!! YOUR INPUT WILL BE GREATLY APPRECIATED!!

>

> Best to all,

> Beth

>

>

>

> Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

>

>

[Guest guest]

,

Thank you SO MUCH for your input! I am meeting with the coordinator of this

press conference today to be briefed on what to ecpect and I am taking your e-

mail with me! WISH ME LUCK!!

All the best,

Beth

[Guest guest]

You're welcome. Wish I could be there. Great Luck!

Banner, RN, CCM, RN-WCCM

Nurse Case Manager

First Rehabilitation Resources, Inc.

336-299-9995 (Phone)

336-299-3440 (Fax)

Re: (unknown)

> ,

> Thank you SO MUCH for your input! I am meeting with the coordinator of

this

> press conference today to be briefed on what to ecpect and I am taking

your e-

> mail with me! WISH ME LUCK!!

>

> All the best,

> Beth

>

>

>

>

> Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

>

>

[Guest guest]

Here are my thoughts on pain mgmnt. I can't remember now who you said

your audience is, but I find that the stumbling point in communicating

with a doc often is his/her staff - who should be easing the communication!

1) In my experience, there is a bit of a stereotype about women who

complain about pain - even if it is subconscious. I have had much more

luck getting a sympathetic ear from female physicians, in general.

Also, pain is difficult to describe or quanitfy in concrete terms, and

some people are just not assertive with docs.

2) I think docs tend to discount the patient's intuition sometimes.

Jerome Groopman has written a book called " Second Opinions " that I

highly recommend. He is in Boston (infectious diseases?) and

occasionally writes for the New Yorker. The book gives short patient

stories of situations in which doctors disagree on the proper course of

treatment, and when patients have a deep understanding of their bodies

that no physician could tell from a routine exam. I made my book club

read it because the overriding lesson is that no one cares and knows

more about your health than you do. But i digress.

3) It is embarrasing to ask for pain medication for 2 reasons, and docs

(and their staff!!) should be aware of this. a) You feel paranoid like

you are a drug seeker and it is an admission that you need help to

function during the day. Physicians should be aware that many people

wait beyond the last possible minute to seek help for pain, because they

don't want to take the time or admit the need.

Hope this helps.

bunce1117@... wrote:

> ,

> Thank you SO MUCH for your input! I am meeting with the coordinator

> of this

> press conference today to be briefed on what to ecpect and I am taking

> your e-

> mail with me! WISH ME LUCK!!

>

> All the best,

> Beth

>

>

>

>

[Guest guest]

,

I second your idea that many patients wait beyond the last possible

minute until seeking help with pain. I've had the experience of

doing this, only to be told to wait a few days and see if it gets

better. - my point being I've ALREADY waited as long as I want to

wait!

Also, after years of suffering symptoms of flatback syndrome without

realizing what it was, I finally saw a surgeon who confirmed the

diagnoisis. When when I asked him if there was any different pain

medicine I could take, he said no, the only thing that will help you

is surgery. That would have been fine advice had we scheduled

surgery for say, THE VERY NEXT DAY! I feel he could have provided

more help in suggesting different ways to help with the pain and keep

functional until I was in a position to schedule the surgery.

Good luck to Beth for speaking at the pain managment press

conference. Your viewpoints will surely make a great contribution to

it!

loriann

> Here are my thoughts on pain mgmnt. I can't remember now who you

said

> your audience is, but I find that the stumbling point in

communicating

> with a doc often is his/her staff - who should be easing the

communication!

>

>

> 1) In my experience, there is a bit of a stereotype about women who

> complain about pain - even if it is subconscious. I have had much

more

> luck getting a sympathetic ear from female physicians, in general.

> Also, pain is difficult to describe or quanitfy in concrete terms,

and

> some people are just not assertive with docs.

>

> 2) I think docs tend to discount the patient's intuition sometimes.

> Jerome Groopman has written a book called " Second Opinions " that I

> highly recommend. He is in Boston (infectious diseases?) and

> occasionally writes for the New Yorker. The book gives short

patient

> stories of situations in which doctors disagree on the proper

course of

> treatment, and when patients have a deep understanding of their

bodies

> that no physician could tell from a routine exam. I made my book

club

> read it because the overriding lesson is that no one cares and

knows

> more about your health than you do. But i digress.

>

> 3) It is embarrasing to ask for pain medication for 2 reasons, and

docs

> (and their staff!!) should be aware of this. a) You feel paranoid

like

> you are a drug seeker and it is an admission that you need help

to

> function during the day. Physicians should be aware that many

people

> wait beyond the last possible minute to seek help for pain, because

they

> don't want to take the time or admit the need.

>

> Hope this helps.

>

[Guest guest]

Ahh, making out at Squaw Peak. It's been a while.

Could the magnet from one CI user jump to another's head? It braces are used

by one party, could the magnet jump to them?

Hal

[Guest guest]

Jarom,

That's so awesome about your experiences. I am so pleased with

your CI progress. You're very brave to do it with hearing girls,

even I've never experienced dating to the hearing guys in my whole

life, but I'd defienlty love to try for it because I am ready.

You're tooo young for me. Tee Heee. Ha. Do you know what do ya

I mean? Keep it up with your dating that eventually improve your

conversation to carry.

Are you talking about the Sqweak Peak in AZ? We don't have one

in Utah. Aren't you planning to go to Phoenix? HUH!?

Sounds like you're doing wonderful in college. Me, too.

Smile, Dana Brower

[Guest guest]

At 10/7/2003, you wrote:

I was told I would lose the awareness (proprioception) of my

leg and foot. I was told I would not be able to do Tai Chi after

the

surgery since I won't be aware of where my foot is without seeing it.

I was wondering if this has happened to anyone and if it has, how

does it affect you. Is there anyone currently doing Tai Chi after

having a TKR?

I am 8 weeks post op on a right knee replacement. The only loss of

feeling I have is 2-3 inches to the right of the incision.

Everything else works as it should except of occasional shooting pains in

my ankle. I was told that is because the leg is straight after 30

some years and every thing has to settle into their new

relationships.

Mine was also the result of a motorcycle accident in 1970 that left both

legs bent below the knee. This resulted in severe wear on the right

knee and the knee replacement.

Up until a couple of years ago I was going on canoe trips,

biking and cross country skiing competitively. I would like to know

how far I could expect to able to bike ride or ski without really

over using the new knee. Also, on the canoe trips could one carry

35lbs over short portages? Ken

The Doctor recommended that I get on the bike as he feels it is the

second best exercise after swimming. I have been doing short rides

as I build strength and it is really telling on the muscle. As for

weight, he said there are no restrictions and that I should be able to

back pack next summer. To his recommendation I have the seat set a

little low to increase the flex, both knees are almost equal now.

Awl Knotted Up - Custom woodworking

Don

Bowen

donb@...

Valley Center, CA

http://www.braingarage.com

[Guest guest]

At 10/7/2003, you wrote:

>I had a total knee replacement 6 weeks ago. I would like to know how long

>will it be before my knee will be pain free? Therapy is going good. I'm

>just getting frustrated not being able to do everything,I know it takes

>time. I would really like to hear from someone who has been through the

>same thing. Thanks.

I am at 9 weeks and still not totally pain free. I have not taken any pain

meds for the last couple of weeks but sometimes I want to. The Dr said

that I should expect varying amounts of pain until around 4 months. Today

is one of the worst but I have been sitting at the computer most of the

time. This afternoon I worked in the Museum and walking about seems to

have helped.

Awl Knotted Up - Custom woodworking

Don Bowen donb@...

Valley Center, CA

http://www.braingarage.com

[Guest guest]

Kathy... Just hang in there. It sounds like you are on the right tract. Too

bad you could not ask the Doctor from the RA group how many patients he has

that ACTUALLY go into a remission on his preferred meds. Bet it would have

been a rare instance. Then we could ask the AP docs how many of their patients

get into remission...and its a whole lot more. Even those who can't seem to

make full remission generally slowly get better.

The key here is ....SLOWLY. Most people get well very slowly and it

takes months and even years. At the time I decided to go on Minocin, an email

pal also talked her doctor into letting her try. After four months he

said... " see it doesn't work " and put her on another expensive med. The last I

heard

she was in a wheelchair and could barely hold a glass to her lips to drink.

I was in a similiar physical condition when we started Minocin, but my

doc specialized in AP therapy.. I felt that my only chance of health lay with

the AP as I had given traditional meds 8 years and had come to a sorry

physical state. I was put on large doses and a cocktail of antibiotics. I was

in

remission in just over five months!!!

Moral of the story.....make your own decisions about your own body. My

friend trusted her doctor and she is almost bedridden. A miserable life for her

but very profitable to her doctor. I decided to try AP (against my old

rheumys advice)and it has worked miracles. No matter how nice or well meaning a

doctor is...YOU will be the one to suffer if he errs in judgement. Make your

own judgements based on whats best for you!!! Heres wishing you

health.....Martha

[Guest guest]

In a message dated 9/11/03 7:27:46 PM Eastern Daylight Time,

bill_59@... writes:

> HI IM BILL 44 WITH EVC FROM CHICAGO,

> THIS SUMMER HAS BEEN TERRIBLE FOR ME. I LOST MY DAD, UNCLE

> GIRLFRIEND AND HAD MY TOE OPERATED ON ALL IN LESS THAN A MONTH.

> I WAS IN THE HOSPITAL FOR A SUICIDE THREAT.

> I WANT TO KNOW IF OTHER PLS HAVE EVER HATED THERE BODIES AND HAVE

> GONE TO THERAPISTS WHO HANDLE SPECIFICALLY PLS.

> I HAVE HAD THERAPY BUT THEY DONT SEEM TO UNDERSTAND LIFE AS AN LP.

> IS IT ME OR AM I ALONE.

> WOULD ANYONE LIKE TO SHARE STORIES OF BEING MOCKED, ABUSED, THE PAIN

> OF SURGURIES, UNABILITY TO LET PEOPLE IN CLOSE?

>

Bill,

What is EVC?

I don't hate my body although I wasn't too happy with it a few months ago

because I had gotten pretty chubby. I have been trying to watch what I eat. I

avoid sodas, fast foods and like to walk. I feel more comfortable that I'm

less chubbier than what I was.

If anything I have learned and it's hard to do is not let a few ignorant few

ruin or run my life.

One thing I have also learned with being of short stature is with getting

recognized at times like a celebrity does I use that to my advantage. I'm like

my Dad was he enjoyed talking to people. He would talk to a rock if it talked.

When I'm out I just love talking to people. Although I do admit I have a

difficulty with talking to men I'm attracted to (but I'm working on that).

With myself and being of short stature and being a single woman I just go

with the fact on how my parents raised me. How they would be proud of me. How

they maybe ashamed of me (when I act wrong).

Helen

[Guest guest]

Barb,

It is amazing how many women are sick from implants and just don't realize it, isn't it? I am always saddened when I run into women that describe symptoms of illness and then reveal that they have implants after I tell my story--it is almost like they just never gave it a thought!

I hope you were able to share with your friend that she may have hope for recovery if she considers removing her implant...such a shame that the medical field completely ignores this, and takes women on nightmare medical journeys that they just don't have to be on. A huge travesty...

and this poor thing is so young...I pray her eyes are opened...

thanks for sharing.

Hugs,

Patty

----- Original Message -----

From: barbsul2002

Sent: Sunday, September 14, 2003 11:45 AM

Subject: (unknown)

Last night I was talking to a friend of a friend and she was telling me she has lyme disease which is very common where I live and she said she gets so sick and she is on doxycycline and has to take it for 3 yrs because she hadnt been diagnosed until a year after she had it. Then she said they also think she has MS it showed lesions on her MRI, poor thing at age 26. She had to quit work, has joint pain, etc. So then I started telling her that at 1st they thought I had lyme,then epstein barr,etc. then I told her I have breast implants and I believe they are the cause and I am having them removed. So then she told me that she has a breast implant to correct uneven breast on one side.Hmmm it is so sad what the medical industry is doing to us! How can they say its unrelated to these implants.

[Guest guest]

Darla, I remember when I was in training, I was told that the 1 minute

therapies were usually all that was needed for your clients that you saw

only an hour or so. Then the screen savers would not come on for them. Just

an idea.

I recieved your check today. Let me know when you get the package. I think i

mailed in on Tues.

I talked with Bettye today. She is tough but having some hard times

emotionally. I know it means a lot to her for calls or cards. Maybe you and

Patsy could send a card now and then. I try to call occasionally.

Carolyne

>From: Darla J Hart <djhart52@...>

>Reply-qxci-english

>qxci-english

>Subject: (unknown)

>Date: Thu, 11 Sep 2003 19:32:01 -0400

>

>Does anyone know if it is possible to change the screen saver on the

>QXCI? I am opposed to some of the ones that come up with long time

>therapy.

>

>Darla

>djhart52@...

>

>________________________________________________________________

>The best thing to hit the internet in years - Juno SpeedBand!

>Surf the web up to FIVE TIMES FASTER!

>Only $14.95/ month - visit www.juno.com to sign up today!

>

_________________________________________________________________

Use custom emotions -- try MSN Messenger 6.0!

http://www.msnmessenger-download.com/tracking/reach_emoticon

[Guest guest]

If you are familiar with computer yes...or get a friend to do it, all you have to do is go into the qx picture file and substitute a picture you want for the one Bill put in. But when you delete the picture you must have a replacement or you will have problems.

Yours in Health

Kathy Darla J Hart <djhart52@...> wrote:

Does anyone know if it is possible to change the screen saver on theQXCI? I am opposed to some of the ones that come up with long timetherapy.Darladjhart52@...________________________________________________________________The best thing to hit the internet in years - Juno SpeedBand!Surf the web up to FIVE TIMES FASTER!Only $14.95/ month - visit www.juno.com to sign up today!............................................

[Guest guest]

One of our neighborhood natural foods stores offers a senior discount

one day of the week. I'm not sure what day, since it's not one of the

days I usually shop there. However a while back I happened to shop

there on that day. I noticed that the cashier was taking a percentage

off my purchase but it wasn't until I got home and looked at the

receipt that I saw that he'd given me the senior discount. I was only

53 at the time but have been told that my gray beard makes me look

older than I am. I didn't know if I should feel insulted about

getting the discount but decided that I should just be happy to have

saved a few cents on the purchase. LOL!

Lou

>

> What do you mean in 5 years? We are eligible for AARP right now at

50! I've been looking forward to this for years, not! J -dz-

>

> Re: [ ] (unknown)

>

> I looked at it this way, I was just one day older then the day

before my birthday. I way to look at is just another 5 years we get

all those disscounts. Terry

[Guest guest]

Hi

If the ctoma is very small it can be done through the ear canal, though most surgeries do require a mastoidectomy which involves an incision behind the ear. Very much depends on the extent of the disease and possible damage that has been done. This is delicate microsurgery and the operation can be lengthy - anything from two to seven hours is within normal range. Many people do stay in hospital overnight following the surgery - general anaesthetic can leave people nauseous and groggy. Children are usually very fast at recovering as I'm sure all the parents here will tell you. There will be some kind of packing in the ear following the surgery - this will either self-dissolving or perhaps some kind of gauze that is taken after a couple of weeks. You may expect a bit of a sore head to begin with and pain-killers may be needed. Also some dizziness is to be expected as well as discharge and bleeding from the ear. In most cases the discomfort during recovery isn't long-lasting or too severe. Do you know exactly what kind of surgery will take place and if it will involve any kind of reconstruction surgery in the future?

Phil

[Guest guest]

Hey Pat,

My gastro tried me on 6-MP and within 6 weeks of taking it I had Pancreatitis.

I was able to stay out of the hospital for treatment but it was really hard to

stay on the diet necessary to allow the pancreas to calm down. This all

happened the beginning of July and now I am still having difficulty eating (the

end of Sept). During the time I took the 6-MP I was having the weekly labs done

to check all the levels but the levels that show pancreatitis are checked. So

you might want to ask about being tested for that or question the possibility of

having it b/c 6-MP is known to have the side effect of pancreatitis....so please

ask your doc about it. Good luck!!!

Hugs,

Jeannie

[Guest guest]

Hey Pat,

I am still struggling with the eating, but have been slowly introducing foods to

see what is tolerable and what isn't. I have been able to begin to have a

somewhat of a " normal " eating style again, to a certain extent....LOL. Thanks

for asking. Good luck!!!

Hugs,

Jeannie

[Guest guest]

Hi Jeannie,

I certainly will. Are you doing better?

Thanks ,

Pat

[Guest guest]

This email below is a hoax, do not do what it tells you to do. read about it http://jeffcoweb.jeffco.k12.co.us/services/teddybearvirus.html

(unknown)

FOUND THIS TEDDY BEAR ICON PER DIRECTIONS SO I AM FORWARDING TO ALL IN ADDRESS BOOK. SORRY FOR THIS. MIKE ANDERSONCherie KitchellI have just received a virus that automatically is> > > passed through email address books. Since you are in> > > my address book, you will probably find it in your> > > computer too. The virus (called jdbg.exe) is not> > > detected by Norton or McAfee Anti-virus systems. The> > > virus sits quietly for 14 days before damaging the> > > system. It is sent automatically by 'messenger' and by> > > address book, whether or not you sent e-mail to your> > > contacts.> > > Here is how to check for the virus and how to get rid> > > of it.> > > PLEASE DO THIS ASAP (it will only take a minute)> > > 1. Go to Start, then click your 'Find' or 'Search'> > > option> > > 2. In the folder option, type the name... jdbgm> > > 3. Be sure to search your C Drive and all the sub> > > folders and any other drives you may have> > > 4. Click 'Find Now'> > > 5. The virus has a teddy bear icon with the name> > > jdbgmgr.exe> > > Do not open it!> > >> > > 6. Go to Edit (on the menu bar) and choose "Select> > > All" to highlight the file without opening it.> > >> > > 7. Now go to File (on the menu bar) and select> > > delete. It will then go to the recycle bin. If you find the virus, you> > > must contact all the people in your Address Book so that they may> > > eradicate the virus from their own address books. To do this:> > >> > > 1. Open a new e-mail message> > >> > > 2. click the icon Address Book next to 'TO'> > >> > > 3. Highlight every name and add to "BCC"> > >> > > 4. Copy this message and pasteI received this email from the Forestville PTA President as I am in her address book. Upon checking my computer, I did indeed have this virus, so please check your computer as you all are in my address book.So Sorry!Debbie Conklin_________________________________________________________________Instant message in style with MSN Messenger 6.0. Download it now FREE! http://msnmessenger-download.com

[Guest guest]

Please ignore the message below from Ron Dotson, who with this message is

now a confirmed s**t disturber.

At 10:28 PM 9/26/2003 +0000, infidelpagan wrote:

>The National Psoriasis Foundation (NPF) has issued a statement that

>they welcome discussions of alternative treatments like antibiotic-

>therapy, so why don't a bunch of you go over there and hammer them

>about AP?

[Guest guest]

That is what my ps was going to do, but he was able to remove them without draining them because my incisions were so long to begin with. They just extract the saline, so it doesn't go into your body. I had the same concern with my surgery when I thought he would remove them that way. I'm sure it's fine.

Colleen

From: " barbsul2002 " <BARBY4271@...>

Reply-

Date: Fri, 26 Sep 2003 00:04:34 -0000

Subject: (unknown)

I found out today that my implants were deflated inside i guess he

couldnt remove them as is ,which he was suppose to do but he said he

ggot all the capsules out. Did anyone have them removed like this ?,

i asked if any solution went inside and he said no he punctured it

and drained it out.do u think this will be ok?

barbara

[Guest guest]

New here, but I thought I'd jump in and show you what I found in a search

Could this be it?

http://www.nasabb.com/nasabbnew/blacksoap2.htm

Cheers!

Amy K

www.torchbynight.com

My question is, has anyone ever heard of this JELLY JELLY soap from

Africa? If so, can you please tell me more about it?

To me, it looks like BLACK SOAP from Africa w/ the brownish

NATURAL/ORIGINAL color.

[Guest guest]

http://www.risg.org/contributions.htm

Thanks , we can use it. :-)

Rick Hahn

rick@...

http://www.risg.org

----- Original Message -----

From: " Hamilton " <hamilloch@...>

> Incidentally I haven't yet made a contribution to the web-site. Now how

does

> one do that I wonder....