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Re: FMS

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They also sell them on immunesupport.com

In @y..., eRene@a... wrote:

> I tore out an advertisement in the newspaper yesterday

> about a company in MN who makes bedding for FMS

> sufferers. Check out their website. They are

> expensive, but if it helps decrease the pain, then maybe

> it's worth it. Plus they have a 90 day money back

> guarantee. The website is www.cuddleewe.com

>

> e

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,

Does cuddleewe sell these underquilts on

immunesupport.com? Or is it their own brand? I've

never seen them advertised. How expensive are they for

a queen bed?

e

>

> They also sell them on immunesupport.com

>

>

>

> In @y..., eRene@a... wrote:

> > I tore out an advertisement in the newspaper yesterday

> > about a company in MN who makes bedding for FMS

> > sufferers. Check out their website. They are

> > expensive, but if it helps decrease the pain, then maybe

> > it's worth it. Plus they have a 90 day money back

> > guarantee. The website is www.cuddleewe.com

> >

> > e

>

>

>

>

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Ya know I am not sure who it is who sells them I have just seen them

on my free catalog that I get everymonth, when I have more time I

will look for you

In @y..., eRene@a... wrote:

> ,

>

> Does cuddleewe sell these underquilts on

> immunesupport.com? Or is it their own brand? I've

> never seen them advertised. How expensive are they for

> a queen bed?

>

> e

> >

> > They also sell them on immunesupport.com

> >

> >

> >

> > In @y..., eRene@a... wrote:

> > > I tore out an advertisement in the newspaper yesterday

> > > about a company in MN who makes bedding for FMS

> > > sufferers. Check out their website. They are

> > > expensive, but if it helps decrease the pain, then maybe

> > > it's worth it. Plus they have a 90 day money back

> > > guarantee. The website is www.cuddleewe.com

> > >

> > > e

> >

> >

> >

> >

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  • 3 years later...
Guest guest

Maybe this will help. FMS is to the musles and ligaments what arthritis is to the bones.

It's the soft tissues that are mainly involved.

Here is a good site to get info http://www.fmnetnews.com/

mSV <shavig@...> wrote:

Okay, I'm reading all these posts and still can't figure out what FMS is.

Thanks, Shari

For the Lord God helps Me; therefore have I not been ashamed or confounded. Therefore have I set My face like a flint, and I know that I shall not be put to shame. Isa 50:7__________________________________________________

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Fibromyalgia Syndrome

FMS is not a catchall, " wastebasket " diagnosis. FMS is a state of

central sensitization. This means that your central nervous system

may be unusually sensitive to pain (hyperalgesia) and you also may

find certain sounds, vibrations, light, and other sensations (even

smells) to be translated by your body into discomfort or pain.

Certain types of sound, such as staccato music or talk, or certain

pitches, may be unendurable and promote increased sensitivity to other

stimuli. The same may be true of the pattern of shadow and light by

trees passing along in a car, or even being stuck in an elevator or

car with a woman with heavy perfume. Diffuse, body-wide pain is part

of FMS, but not all of it by any means.

Fibromyalgia is not yet considered a disease. Diseases have known

causes and well-understood mechanisms for producing symptoms. FMS is

a syndrome, which means it is a specific set of signs and symptoms

that occur together. Syndromes are no less serious or potentially

disabling than diseases. Rheumatoid arthritis and lupus are also

classified as syndromes. Lab tests for FMS do not exist right now.

Lab tests are valid only to check for co-existing conditions. You can

have other conditions and also have FMS.

You have probably heard about the official FMS definition requiring 11

of 18 tender points to be present. This was part of the criteria

originally to be used to define patients to be admitted into clinical

studies of FMS, and the tender points had to be present in all four

quadrants — that is, the upper right and left and lower right and left

parts of your body. You must have had widespread, more-or-less

continuous pain for at least three months. This was not originally

intended to be diagnostic. Since most clinical studies fail to

separate symptoms of FMS from co-existing CMP, the conclusions of many

studies may be faulty.

Tender points occur in pairs on various parts of the body. In

traumatic FMS, tender points may be clustered around an injury instead

of, or in addition to, the 18 " official " points. These clusters can

also occur around a repetitive strain or a degenerative and/or

inflammatory problem, such as arthritis. Localized pain usually

indicates a co-existing condition, such as chronic myofascial pain

(CMP), but even with CMP this can be misleading, as you will read later.

Neither FMS nor CMP are inflammatory conditions. FMS can occur at any

age. Most patients, when questioned carefully, reveal that their

symptoms began at an early age. About 25 percent of the FMS patients

I have come in contact with are men. This ratio differs from most

sources in the literature. I think that FMS is under-diagnosed in males.

Flu-like achiness is frequently the most prominent symptom of FMS, but

there are many others. For example, your eyes may be too dry, but at

other times they will water. Your thermal regulatory system may be

out of whack. You may notice this when you get out of bed (which may

be often, due to bladder irritability) during the night. You may have

to wait for your temperature to cool down after getting back in bed

before you can pull the bedcover up. You may experience confusional

states, memory dysfunction, and an inability to do more than one thing

at once. You may be able to focus on a specific skill and function at

a high level in you field, yet be unable to balance your checkbook or

remember appointments. You may experience skin mottling. Your finger

and toe nails may have vertical ridges — a typical sign of endocrine

imbalance. Fingernails may break off, often in crescent-shaped

pieces. If nails do grow, some may start to curve under (beaking).

People with FMS can be sensitive to changes in barometric pressure and

temperature. Rain beating on the windowpane may feel as if it were

beating on the walls of your cells. The noise emitted by fluorescent

lights can drive you crazy, and you may have to avoid overcrowded

areas such as malls or cities. FMS sensitizes nerve endings as well

as the rest of the autonomic nervous system. The actual ends of the

nerve receptors may have changed shape, turning touch and other

receptors into pain receptors. Pain signals then bombard your brain.

Your brain knows pain is a danger signal — an indication that

something is wrong and needs attention — so it mobilizes its defenses.

Then, when those defenses aren't used, it becomes anxious.

Overstimulation is a major perpetuating factor of FMS.

Restorative sleep plays a crucial role in FMS. Perhaps you aren't

getting enough sleep, or the right kind of sleep. You may have

insomnia or a host of other sleep-related problems. You may have

sleep apnea, or your heightened sensitivity does not allow you to

sleep deeply. Our body heals and many neurotransmitters are balanced

during deep sleep, and without it we soon suffer from the effects of

sleep deprivation. It isn't enough that you spend eight hours in bed.

When you wake, you must feel refreshed and restored. Lack of

restorative sleep is a major perpetuating factor of FMS, and you may

need to work with your doctor to find medications that can help. You

may also need to adjust your diet and life style to avoid stimulants

such as sugar and caffeine. You may need help learning how to handle

stress. You may also need to adjust your bedroom environment

including the bed and pillows.

http://www.sover.net/~devstar/define.htm

Kit

> Okay, I'm reading all these posts and still can't figure out what

FMS is.

>

> Thanks, Shari

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Dear,dear ,

Who told you this? They are nothing alike except that both involve

pain. Joints can be involved in FMS, too.

Even your link says all this:

......many people may still have FMS with less than 11 of the required

tender points as long as they have widespread pain and many of the

common symptoms associated with FMS. Commonly associated symptoms include:

* fatigue

* irritable bowel (e.g., diarrhea, constipation, etc.)

* sleep disorder (or sleep that is unrefreshing)

* chronic headaches (tension-type or migraines)

* jaw pain (including TMJ dysfunction)

* cognitive or memory impairment

* post-exertional malaise and muscle pain

* morning stiffness (waking up stiff and achy)

* menstrual cramping

* numbness and tingling sensations

* dizziness or lightheadedness

* skin and chemical sensitivities

Chronic Fatigue (the flip side of FMS - Kit)

Severe, unexplained fatigue that is not relieved by rest, which can

cause disability and which has an identifiable onset (i.e., not

lifelong fatigue). It must be persistent or relapsing fatigue that

lasts for at least six or more consecutive months.

B. Four or more of the following symptoms:

* impaired memory or concentration problems

* tender cervical or axillary lymph nodes in neck region (note

that they do not have to be swollen but just tender; this can be a

problem for people with FMS who have tenderness in these areas as well)

* sore throat (but may not show signs of infection)

* muscle pain

* multi-joint pain (but not arthritis)

* new onset headaches (tension-type or migraine)

* unrefreshing sleep (wake up in the morning feeling unrested)

* post-exertional malaise (fatigue, pain and flu-like symptoms

after exercise)

NOTE: Five of the above eight criteria relate to pain and are often

present in FMS as well. For both the fibromyalgia and chronic fatigue

syndrome criteria, patients should be evaluated for other problems

that could cause pain and fatigue, such as low thyroid function, low

iron stores, arthritis and many other medical conditions. If any of

these problems are found and corrected, but the individual still meets

the FMS criteria, these other disorders (FMS and CFS) are viewed as

co-existing and deserving of special medical attention. Unfortunately,

the CDC criteria excludes people with other medical problems such as

hypothyroidism and lupus, but it is okay to have the tender points of

FMS or a mild case of depression/anxiety.

Kit

> Okay, I'm reading all these posts and still can't figure out what

FMS is.

>

> Thanks, Shari

>

>

>

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Guest guest

Fibromyalgia Syndrome

> Okay, I'm reading all these posts and still can't figure out

what FMS is.

>

> Thanks, Shari

>

>

>

> For the Lord God helps Me; therefore have I not been ashamed or

confounded. Therefore have I set My face like a flint, and I know that

I shall not be put to shame. Isa 50:7

> __________________________________________________

>

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Guest guest

I never knew that - it was a way of explaining the difference. Joints are usually associated with arthritis. If they are involved with FMS, this is news to me. I stand corrected.

marykitcurtin <kitcurtin@...> wrote:

Dear,dear , Who told you this? They are nothing alike except that both involvepain. Joints can be involved in FMS, too. Even your link says all this: .....many people may still have FMS with less than 11 of the requiredtender points as long as they have widespread pain and many of thecommon symptoms associated with FMS. Commonly associated symptoms include: * fatigue * irritable bowel (e.g., diarrhea, constipation, etc.) * sleep disorder (or sleep that is unrefreshing) * chronic headaches (tension-type or migraines) * jaw pain (including TMJ dysfunction) * cognitive or memory impairment * post-exertional malaise and muscle pain * morning

stiffness (waking up stiff and achy) * menstrual cramping * numbness and tingling sensations * dizziness or lightheadedness * skin and chemical sensitivitiesChronic Fatigue (the flip side of FMS - Kit)Severe, unexplained fatigue that is not relieved by rest, which cancause disability and which has an identifiable onset (i.e., notlifelong fatigue). It must be persistent or relapsing fatigue thatlasts for at least six or more consecutive months.B. Four or more of the following symptoms: * impaired memory or concentration problems * tender cervical or axillary lymph nodes in neck region (notethat they do not have to be swollen but just tender; this can be aproblem for people with FMS who have tenderness in these areas as well) * sore throat (but may not show signs of

infection) * muscle pain * multi-joint pain (but not arthritis) * new onset headaches (tension-type or migraine) * unrefreshing sleep (wake up in the morning feeling unrested) * post-exertional malaise (fatigue, pain and flu-like symptomsafter exercise)NOTE: Five of the above eight criteria relate to pain and are oftenpresent in FMS as well. For both the fibromyalgia and chronic fatiguesyndrome criteria, patients should be evaluated for other problemsthat could cause pain and fatigue, such as low thyroid function, lowiron stores, arthritis and many other medical conditions. If any ofthese problems are found and corrected, but the individual still meetsthe FMS criteria, these other disorders (FMS and CFS) are viewed asco-existing and deserving of special medical attention. Unfortunately,the CDC criteria excludes people with other

medical problems such ashypothyroidism and lupus, but it is okay to have the tender points ofFMS or a mild case of depression/anxiety. Kit > Okay, I'm reading all these posts and still can't figure out whatFMS is.> > Thanks, Shari> > >

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Yes...it can involve your whole body...I attest. It is because it is

the neurotransmitters that are hypersensitive...that's why the five

senses are affected as well.

It's a bite, eh?

Kit

>

> Dear,dear ,

>

> Who told you this? They are nothing alike except that both involve

> pain. Joints can be involved in FMS, too.

>

> Even your link says all this:

>

> .....many people may still have FMS with less than 11 of the required

> tender points as long as they have widespread pain and many of the

> common symptoms associated with FMS. Commonly associated symptoms

include:

>

> * fatigue

> * irritable bowel (e.g., diarrhea, constipation, etc.)

> * sleep disorder (or sleep that is unrefreshing)

> * chronic headaches (tension-type or migraines)

> * jaw pain (including TMJ dysfunction)

> * cognitive or memory impairment

> * post-exertional malaise and muscle pain

> * morning stiffness (waking up stiff and achy)

> * menstrual cramping

> * numbness and tingling sensations

> * dizziness or lightheadedness

> * skin and chemical sensitivities

>

> Chronic Fatigue (the flip side of FMS - Kit)

>

> Severe, unexplained fatigue that is not relieved by rest, which can

> cause disability and which has an identifiable onset (i.e., not

> lifelong fatigue). It must be persistent or relapsing fatigue that

> lasts for at least six or more consecutive months.

>

> B. Four or more of the following symptoms:

>

> * impaired memory or concentration problems

> * tender cervical or axillary lymph nodes in neck region (note

> that they do not have to be swollen but just tender; this can be a

> problem for people with FMS who have tenderness in these areas as well)

> * sore throat (but may not show signs of infection)

> * muscle pain

> * multi-joint pain (but not arthritis)

> * new onset headaches (tension-type or migraine)

> * unrefreshing sleep (wake up in the morning feeling unrested)

> * post-exertional malaise (fatigue, pain and flu-like symptoms

> after exercise)

>

> NOTE: Five of the above eight criteria relate to pain and are often

> present in FMS as well. For both the fibromyalgia and chronic fatigue

> syndrome criteria, patients should be evaluated for other problems

> that could cause pain and fatigue, such as low thyroid function, low

> iron stores, arthritis and many other medical conditions. If any of

> these problems are found and corrected, but the individual still meets

> the FMS criteria, these other disorders (FMS and CFS) are viewed as

> co-existing and deserving of special medical attention. Unfortunately,

> the CDC criteria excludes people with other medical problems such as

> hypothyroidism and lupus, but it is okay to have the tender points of

> FMS or a mild case of depression/anxiety.

>

> Kit

>

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Guest guest

Yes I did but I feel bad that I had to resort to taking the xanax...but at

least it is done and overwith and I didn't have to have surgery to do it

like my dentist was afraid of.

Thank you everyone for the support.

Kathy L.

Angeldestiny's Dream Nursery

Romanticsilk Crafts

Please cast your vote for my site on the Top 100

www.romanticsilk.com

----- Original Message -----

From: " kitcurtin " <kitcurtin@...>

<health >

Sent: Friday, August 05, 2005 6:43 PM

Subject: Re: FMS

>

> So ...you made it out of the house OK....glad to see it.

>

> Feel better soon!! Kit

>

>

>

>

> > > >

> > > > Dear,dear ,

> > > >

> > > > Who told you this? They are nothing alike except that both involve

> > > > pain. Joints can be involved in FMS, too.

> > > >

> > > > Even your link says all this:

> > > >

> > > > .....many people may still have FMS with less than 11 of the

> required

> > > > tender points as long as they have widespread pain and many of the

> > > > common symptoms associated with FMS. Commonly associated symptoms

> > > include:

> > > >

> > > > * fatigue

> > > > * irritable bowel (e.g., diarrhea, constipation, etc.)

> > > > * sleep disorder (or sleep that is unrefreshing)

> > > > * chronic headaches (tension-type or migraines)

> > > > * jaw pain (including TMJ dysfunction)

> > > > * cognitive or memory impairment

> > > > * post-exertional malaise and muscle pain

> > > > * morning stiffness (waking up stiff and achy)

> > > > * menstrual cramping

> > > > * numbness and tingling sensations

> > > > * dizziness or lightheadedness

> > > > * skin and chemical sensitivities

> > > >

> > > > Chronic Fatigue (the flip side of FMS - Kit)

> > > >

> > > > Severe, unexplained fatigue that is not relieved by rest, which can

> > > > cause disability and which has an identifiable onset (i.e., not

> > > > lifelong fatigue). It must be persistent or relapsing fatigue that

> > > > lasts for at least six or more consecutive months.

> > > >

> > > > B. Four or more of the following symptoms:

> > > >

> > > > * impaired memory or concentration problems

> > > > * tender cervical or axillary lymph nodes in neck region (note

> > > > that they do not have to be swollen but just tender; this can be a

> > > > problem for people with FMS who have tenderness in these areas

> as well)

> > > > * sore throat (but may not show signs of infection)

> > > > * muscle pain

> > > > * multi-joint pain (but not arthritis)

> > > > * new onset headaches (tension-type or migraine)

> > > > * unrefreshing sleep (wake up in the morning feeling unrested)

> > > > * post-exertional malaise (fatigue, pain and flu-like symptoms

> > > > after exercise)

> > > >

> > > > NOTE: Five of the above eight criteria relate to pain and are often

> > > > present in FMS as well. For both the fibromyalgia and chronic

> fatigue

> > > > syndrome criteria, patients should be evaluated for other problems

> > > > that could cause pain and fatigue, such as low thyroid function, low

> > > > iron stores, arthritis and many other medical conditions. If any of

> > > > these problems are found and corrected, but the individual still

> meets

> > > > the FMS criteria, these other disorders (FMS and CFS) are viewed as

> > > > co-existing and deserving of special medical attention.

> Unfortunately,

> > > > the CDC criteria excludes people with other medical problems such as

> > > > hypothyroidism and lupus, but it is okay to have the tender

> points of

> > > > FMS or a mild case of depression/anxiety.

> > > >

> > > > Kit

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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