Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi! I am soooo sorry you are going through a tough time.I too was just hit with this stuff about 3 months ago.I have not been able to see a RA doctor yet so I am only on pain pills and muscle relaxers whitch are no help when I am in my " flare " .That's what it sounds like you are having.A great Big Nasty Yucky Flare!!!Mine lasted for about 8 weeks.The last 4 being the worst(Couldn't get out of bed)I have been out of it for about 2 weeks and am feeling the pain decrease quite a bit and my energy has increased some.I still have alot of daily pain but the inflamation is way down and that helps the pain.Please hang in there !!!!!you will feel better!! I know this must me much harder for a man to go through.My son is being tested in Nov.He is just 24 but has always had joint pain and fatuige.I think the most important thing is learning to pace yourself and pain management.Hot baths and rest helps me the most.I am able to now work pretty hard from about 10 to 3 each day.I have my own business so that helps.Maybe that is something you could do for work(internet business or some other kind that you could work your'e own hours).This is a wonderfull place to get ideas and encouragement,as I'm sure you have already found that out.Take care and I hope you get relief soon.My thoughts and prayers are with you.-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi! I am soooo sorry you are going through a tough time.I too was just hit with this stuff about 3 months ago.I have not been able to see a RA doctor yet so I am only on pain pills and muscle relaxers whitch are no help when I am in my " flare " .That's what it sounds like you are having.A great Big Nasty Yucky Flare!!!Mine lasted for about 8 weeks.The last 4 being the worst(Couldn't get out of bed)I have been out of it for about 2 weeks and am feeling the pain decrease quite a bit and my energy has increased some.I still have alot of daily pain but the inflamation is way down and that helps the pain.Please hang in there !!!!!you will feel better!! I know this must me much harder for a man to go through.My son is being tested in Nov.He is just 24 but has always had joint pain and fatuige.I think the most important thing is learning to pace yourself and pain management.Hot baths and rest helps me the most.I am able to now work pretty hard from about 10 to 3 each day.I have my own business so that helps.Maybe that is something you could do for work(internet business or some other kind that you could work your'e own hours).This is a wonderfull place to get ideas and encouragement,as I'm sure you have already found that out.Take care and I hope you get relief soon.My thoughts and prayers are with you.-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi Again! I forgot to say that I take Effexor XR too. That helps alot with depression.It makes your'e stoumach upset for awile(about a week) but I was in so much other pain I hardly noticed it.My husband takes it also to help with his depression from seeing me going through such pain and missing work.It took an act on congress to get him to satrt it but now he is glad he did.He said it makes him feel more normal and more able to handle the daily stress of working (and putting up with me!).Good Luck!-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi Again! I forgot to say that I take Effexor XR too. That helps alot with depression.It makes your'e stoumach upset for awile(about a week) but I was in so much other pain I hardly noticed it.My husband takes it also to help with his depression from seeing me going through such pain and missing work.It took an act on congress to get him to satrt it but now he is glad he did.He said it makes him feel more normal and more able to handle the daily stress of working (and putting up with me!).Good Luck!-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi, I am a 36 year old female with RA . I was diagnosed when I was 14 years old could you imagine that. Here I'm about to enter what is supposed to be the best years of my life. Instead I let this disease rob me of those years. I end up droping out of school half way through my freshman year of high school, end up pregnant at 16, married and 2 kids by the time I was 20. Now here I am a breast reduction to ease the pain wrong!, a hip replacement and an ankle fussed okay I guess. Still here I am letting this damn disease have the best of me. My kids are grown and and on there own in school that is, I guess I did somthing right. Anyways I guess what I'm trying to say is that life goes on, it might suck alittle ok alot but it goes on so you can sit back and let this damn disease ruin your golden years or get up and fight back. I'm sure that you worked very hard your whole life so that you can enjoy these years . So be a man, be stong and kick these damn disease in the ASS and show it who's BOSS! I'll try if you try. groggygimp <groggygimp@...> wrote:hi i was diagnosed with ra about 3 mos. ago. symptoms came on rather suddenly, when over night i was nearly crippled with pain and went to the hospital. i was angry and surprised at the diagnosis, since i had n;o previous symptoms, and my ignorance of the disease led me to believe i was psychosomatic, since i thought arthritis was no big deal. i couldn't work for nearly 6 weeks, pain has improved only with multiple meds, including methotrexate, prednisone, hydroxychloroquin, naproxin, and humeris(inj. every other wk.). it seems that none of these rx's are either cures or good for you. the symptoms are only minimally eased, i'm now using a cane, and suffer from muscular cramping in hands, feet and legs. sleep is hard to come by, and the toll is great on me finacially. i'm slipping into arrears in rent and bills. i'm 59, a man, and i find this all emasculating. i've come to wits' end and see no future, but a lack of quality of life and loss of work. with this disease, and my age future work is not likely. i'm contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi, I am a 36 year old female with RA . I was diagnosed when I was 14 years old could you imagine that. Here I'm about to enter what is supposed to be the best years of my life. Instead I let this disease rob me of those years. I end up droping out of school half way through my freshman year of high school, end up pregnant at 16, married and 2 kids by the time I was 20. Now here I am a breast reduction to ease the pain wrong!, a hip replacement and an ankle fussed okay I guess. Still here I am letting this damn disease have the best of me. My kids are grown and and on there own in school that is, I guess I did somthing right. Anyways I guess what I'm trying to say is that life goes on, it might suck alittle ok alot but it goes on so you can sit back and let this damn disease ruin your golden years or get up and fight back. I'm sure that you worked very hard your whole life so that you can enjoy these years . So be a man, be stong and kick these damn disease in the ASS and show it who's BOSS! I'll try if you try. groggygimp <groggygimp@...> wrote:hi i was diagnosed with ra about 3 mos. ago. symptoms came on rather suddenly, when over night i was nearly crippled with pain and went to the hospital. i was angry and surprised at the diagnosis, since i had n;o previous symptoms, and my ignorance of the disease led me to believe i was psychosomatic, since i thought arthritis was no big deal. i couldn't work for nearly 6 weeks, pain has improved only with multiple meds, including methotrexate, prednisone, hydroxychloroquin, naproxin, and humeris(inj. every other wk.). it seems that none of these rx's are either cures or good for you. the symptoms are only minimally eased, i'm now using a cane, and suffer from muscular cramping in hands, feet and legs. sleep is hard to come by, and the toll is great on me finacially. i'm slipping into arrears in rent and bills. i'm 59, a man, and i find this all emasculating. i've come to wits' end and see no future, but a lack of quality of life and loss of work. with this disease, and my age future work is not likely. i'm contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 I am so sorry that you are suffering. Are there any churches or groups in your area that could give you financial assistance? I know how hard it is to ask for help when you have been independent all your life; I raised four kids on my own. What line of work are you in- perhaps there arestate agencies that would help you train for a more arthritis-friendly career. My sis is 58 and has just been dx'ed with RA- I was in my 30's. Please know that there are better days ahead, when they get the right meds going and your body gets used to them,. it will help a lot. Are they giving you any pain meds, or something to help you sleep? My depression gets much worse when I can't sleep... most of us here are on multiple meds, we can relate to what you are going through. Hang in there, I will be praying for you. God bless and keep you. Jane --- In , " groggygimp " <groggygimp@y...> wrote: > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 I am so sorry that you are suffering. Are there any churches or groups in your area that could give you financial assistance? I know how hard it is to ask for help when you have been independent all your life; I raised four kids on my own. What line of work are you in- perhaps there arestate agencies that would help you train for a more arthritis-friendly career. My sis is 58 and has just been dx'ed with RA- I was in my 30's. Please know that there are better days ahead, when they get the right meds going and your body gets used to them,. it will help a lot. Are they giving you any pain meds, or something to help you sleep? My depression gets much worse when I can't sleep... most of us here are on multiple meds, we can relate to what you are going through. Hang in there, I will be praying for you. God bless and keep you. Jane > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 I just wanted add that I'm sorry that you're going to such a hard time. And yes the financial issues can be completely overwhelming. To echo others have said....please consider if short-term disability is an option for you. (It can carry you over until you sort things out or pain/RA meds kick in). Does you company have FMLA (that can be other way to help you out)....I'm also not sure what state you're in but your office of vocational rehab may be of help (sometimes its through the Unemployment Office). Some states have extremely user friendly rules and vocational rehab can help advocate for folks like us that want to/need to work but need some time off of special accomdations to do so. They can help advocate for you with employers, bill collectors, landlords. The other thing that I've come to figure out is that you have to 'swallow your pride' and let everyone know how bad things are. Your utlitiy company (with a letter from your doctor verifying your diagnosis) can put you on their 'medical necessity list' and they won't turn off your power/gas if you have trouble making payments. Even your car company can give you a temporary hardship 'deferment'/payment reduction if you have a doctor's note. Many phone companies have provision for people with economic challenges, most landlords will work with you if you give them a plan, and again Vic rehab can help you navigate through all these different systems. Another good resource can be your local/statewide Arthritis foundation group. I used to let money stuff overwhelm me. I confess there are still times I feel so down because of how this disease has me back financially. I feel like/have felt like I'll never be able to make ends meet again. But when I remember the important stuff (family, friends, the good days, the hope that things will get better)....it helps me remember it's only money. (and I'm not going to let money stress be the death of me. It's not worth it. In the grand scheme of things it's all 'small stuff.') Finally, try not to do all by yourself. See who can help you. Perhaps your HR person at your job, someone from your church or a community group or from a social service agency. Maybe it's a good friend, a spouse, an ex, an adult child.....rally the troops. If someone knows what you need most do try to help. (even if they do it not exactly the way we want it...) Wishing you brighter days ahead. (things will get better)..... (IL) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 I just wanted add that I'm sorry that you're going to such a hard time. And yes the financial issues can be completely overwhelming. To echo others have said....please consider if short-term disability is an option for you. (It can carry you over until you sort things out or pain/RA meds kick in). Does you company have FMLA (that can be other way to help you out)....I'm also not sure what state you're in but your office of vocational rehab may be of help (sometimes its through the Unemployment Office). Some states have extremely user friendly rules and vocational rehab can help advocate for folks like us that want to/need to work but need some time off of special accomdations to do so. They can help advocate for you with employers, bill collectors, landlords. The other thing that I've come to figure out is that you have to 'swallow your pride' and let everyone know how bad things are. Your utlitiy company (with a letter from your doctor verifying your diagnosis) can put you on their 'medical necessity list' and they won't turn off your power/gas if you have trouble making payments. Even your car company can give you a temporary hardship 'deferment'/payment reduction if you have a doctor's note. Many phone companies have provision for people with economic challenges, most landlords will work with you if you give them a plan, and again Vic rehab can help you navigate through all these different systems. Another good resource can be your local/statewide Arthritis foundation group. I used to let money stuff overwhelm me. I confess there are still times I feel so down because of how this disease has me back financially. I feel like/have felt like I'll never be able to make ends meet again. But when I remember the important stuff (family, friends, the good days, the hope that things will get better)....it helps me remember it's only money. (and I'm not going to let money stress be the death of me. It's not worth it. In the grand scheme of things it's all 'small stuff.') Finally, try not to do all by yourself. See who can help you. Perhaps your HR person at your job, someone from your church or a community group or from a social service agency. Maybe it's a good friend, a spouse, an ex, an adult child.....rally the troops. If someone knows what you need most do try to help. (even if they do it not exactly the way we want it...) Wishing you brighter days ahead. (things will get better)..... (IL) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 hi karen thanks for your support and suggestions. ironically i'm employed as a care giver to an elderly couple, after 8 yrs. working with them i've become very attached, and comitted to see them to the end. they're both octagenarians, not sure which of us is most lame. being privately employed limits my ability to pursue gov't. means to supplement my income, since my career has been sporadic, mostly in theatre till my wife died and i was a single parent, now my kids are grown, and i'm paying for unwise employment decisions i made in desparation. thanks again. lee C Simms <kcrawfords@...> wrote: I just wanted add that I'm sorry that you're going to such a hard time. And yes the financial issues can be completely overwhelming. To echo others have said....please consider if short-term disability is an option for you. (It can carry you over until you sort things out or pain/RA meds kick in). Does you company have FMLA (that can be other way to help you out)....I'm also not sure what state you're in but your office of vocational rehab may be of help (sometimes its through the Unemployment Office). Some states have extremely user friendly rules and vocational rehab can help advocate for folks like us that want to/need to work but need some time off of special accomdations to do so. They can help advocate for you with employers, bill collectors, landlords. The other thing that I've come to figure out is that you have to 'swallow your pride' and let everyone know how bad things are. Your utlitiy company (with a letter from your doctor verifying your diagnosis) can put you on their 'medical necessity list' and they won't turn off your power/gas if you have trouble making payments. Even your car company can give you a temporary hardship 'deferment'/payment reduction if you have a doctor's note. Many phone companies have provision for people with economic challenges, most landlords will work with you if you give them a plan, and again Vic rehab can help you navigate through all these different systems. Another good resource can be your local/statewide Arthritis foundation group. I used to let money stuff overwhelm me. I confess there are still times I feel so down because of how this disease has me back financially. I feel like/have felt like I'll never be able to make ends meet again. But when I remember the important stuff (family, friends, the good days, the hope that things will get better)....it helps me remember it's only money. (and I'm not going to let money stress be the death of me. It's not worth it. In the grand scheme of things it's all 'small stuff.') Finally, try not to do all by yourself. See who can help you. Perhaps your HR person at your job, someone from your church or a community group or from a social service agency. Maybe it's a good friend, a spouse, an ex, an adult child.....rally the troops. If someone knows what you need most do try to help. (even if they do it not exactly the way we want it...) Wishing you brighter days ahead. (things will get better)..... (IL) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 hi karen thanks for your support and suggestions. ironically i'm employed as a care giver to an elderly couple, after 8 yrs. working with them i've become very attached, and comitted to see them to the end. they're both octagenarians, not sure which of us is most lame. being privately employed limits my ability to pursue gov't. means to supplement my income, since my career has been sporadic, mostly in theatre till my wife died and i was a single parent, now my kids are grown, and i'm paying for unwise employment decisions i made in desparation. thanks again. lee C Simms <kcrawfords@...> wrote: I just wanted add that I'm sorry that you're going to such a hard time. And yes the financial issues can be completely overwhelming. To echo others have said....please consider if short-term disability is an option for you. (It can carry you over until you sort things out or pain/RA meds kick in). Does you company have FMLA (that can be other way to help you out)....I'm also not sure what state you're in but your office of vocational rehab may be of help (sometimes its through the Unemployment Office). Some states have extremely user friendly rules and vocational rehab can help advocate for folks like us that want to/need to work but need some time off of special accomdations to do so. They can help advocate for you with employers, bill collectors, landlords. The other thing that I've come to figure out is that you have to 'swallow your pride' and let everyone know how bad things are. Your utlitiy company (with a letter from your doctor verifying your diagnosis) can put you on their 'medical necessity list' and they won't turn off your power/gas if you have trouble making payments. Even your car company can give you a temporary hardship 'deferment'/payment reduction if you have a doctor's note. Many phone companies have provision for people with economic challenges, most landlords will work with you if you give them a plan, and again Vic rehab can help you navigate through all these different systems. Another good resource can be your local/statewide Arthritis foundation group. I used to let money stuff overwhelm me. I confess there are still times I feel so down because of how this disease has me back financially. I feel like/have felt like I'll never be able to make ends meet again. But when I remember the important stuff (family, friends, the good days, the hope that things will get better)....it helps me remember it's only money. (and I'm not going to let money stress be the death of me. It's not worth it. In the grand scheme of things it's all 'small stuff.') Finally, try not to do all by yourself. See who can help you. Perhaps your HR person at your job, someone from your church or a community group or from a social service agency. Maybe it's a good friend, a spouse, an ex, an adult child.....rally the troops. If someone knows what you need most do try to help. (even if they do it not exactly the way we want it...) Wishing you brighter days ahead. (things will get better)..... (IL) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks for your suggestions. meds include mtx, prednisone, hydrochloroquine, naproxin, folic acid, a stomach protector and humira. worst affects are sleep deprivation, muscle cramps in toes, legs and hands. although i can walk, i use a cane now, and i don't understand what people mean by flare-ups? unless i go back to being unable to walk again, i'm in constant flare, and pain, i guess that i can work at all is great, it just takes me a very long time to accomplish what took only minutes. i'm getting accustomed to the pain, and learning to compensate. the money probs seem to be here to stay, and the future still looks bleak. lee JANE <janeatregis@...> wrote: I am so sorry that you are suffering. Are there any churches or groups in your area that could give you financial assistance? I know how hard it is to ask for help when you have been independent all your life; I raised four kids on my own. What line of work are you in- perhaps there arestate agencies that would help you train for a more arthritis-friendly career. My sis is 58 and has just been dx'ed with RA- I was in my 30's. Please know that there are better days ahead, when they get the right meds going and your body gets used to them,. it will help a lot. Are they giving you any pain meds, or something to help you sleep? My depression gets much worse when I can't sleep... most of us here are on multiple meds, we can relate to what you are going through. Hang in there, I will be praying for you. God bless and keep you. Jane --- In , " groggygimp " <groggygimp@y...> wrote: > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks for your suggestions. meds include mtx, prednisone, hydrochloroquine, naproxin, folic acid, a stomach protector and humira. worst affects are sleep deprivation, muscle cramps in toes, legs and hands. although i can walk, i use a cane now, and i don't understand what people mean by flare-ups? unless i go back to being unable to walk again, i'm in constant flare, and pain, i guess that i can work at all is great, it just takes me a very long time to accomplish what took only minutes. i'm getting accustomed to the pain, and learning to compensate. the money probs seem to be here to stay, and the future still looks bleak. lee JANE <janeatregis@...> wrote: I am so sorry that you are suffering. Are there any churches or groups in your area that could give you financial assistance? I know how hard it is to ask for help when you have been independent all your life; I raised four kids on my own. What line of work are you in- perhaps there arestate agencies that would help you train for a more arthritis-friendly career. My sis is 58 and has just been dx'ed with RA- I was in my 30's. Please know that there are better days ahead, when they get the right meds going and your body gets used to them,. it will help a lot. Are they giving you any pain meds, or something to help you sleep? My depression gets much worse when I can't sleep... most of us here are on multiple meds, we can relate to what you are going through. Hang in there, I will be praying for you. God bless and keep you. Jane > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks, i'll look into it. clarabell4ever2000 <clarabell4ever2000@...> wrote:Hi Again! I forgot to say that I take Effexor XR too. That helps alot with depression.It makes your'e stoumach upset for awile(about a week) but I was in so much other pain I hardly noticed it.My husband takes it also to help with his depression from seeing me going through such pain and missing work.It took an act on congress to get him to satrt it but now he is glad he did.He said it makes him feel more normal and more able to handle the daily stress of working (and putting up with me!).Good Luck!-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks, i'll look into it. clarabell4ever2000 <clarabell4ever2000@...> wrote:Hi Again! I forgot to say that I take Effexor XR too. That helps alot with depression.It makes your'e stoumach upset for awile(about a week) but I was in so much other pain I hardly noticed it.My husband takes it also to help with his depression from seeing me going through such pain and missing work.It took an act on congress to get him to satrt it but now he is glad he did.He said it makes him feel more normal and more able to handle the daily stress of working (and putting up with me!).Good Luck!-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks for your reply, my " flare " never ended as far as i know, accept i am now able to walk, whereas when hopitalized it was nearly impossible. i find that unlike others, my a.m.'s seem much better than mid-later day, when my hips start to give out, smaller joints seem bad all day. shoulder, knees, hips worse as day progresses. hoping that the hum;ira helps out. hope you continue to feel better. lee clarabell4ever2000 <clarabell4ever2000@...> wrote: Hi! I am soooo sorry you are going through a tough time.I too was just hit with this stuff about 3 months ago.I have not been able to see a RA doctor yet so I am only on pain pills and muscle relaxers whitch are no help when I am in my " flare " .That's what it sounds like you are having.A great Big Nasty Yucky Flare!!!Mine lasted for about 8 weeks.The last 4 being the worst(Couldn't get out of bed)I have been out of it for about 2 weeks and am feeling the pain decrease quite a bit and my energy has increased some.I still have alot of daily pain but the inflamation is way down and that helps the pain.Please hang in there !!!!!you will feel better!! I know this must me much harder for a man to go through.My son is being tested in Nov.He is just 24 but has always had joint pain and fatuige.I think the most important thing is learning to pace yourself and pain management.Hot baths and rest helps me the most.I am able to now work pretty hard from about 10 to 3 each day.I have my own business so that helps.Maybe that is something you could do for work(internet business or some other kind that you could work your'e own hours).This is a wonderfull place to get ideas and encouragement,as I'm sure you have already found that out.Take care and I hope you get relief soon.My thoughts and prayers are with you.-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks for your reply, my " flare " never ended as far as i know, accept i am now able to walk, whereas when hopitalized it was nearly impossible. i find that unlike others, my a.m.'s seem much better than mid-later day, when my hips start to give out, smaller joints seem bad all day. shoulder, knees, hips worse as day progresses. hoping that the hum;ira helps out. hope you continue to feel better. lee clarabell4ever2000 <clarabell4ever2000@...> wrote: Hi! I am soooo sorry you are going through a tough time.I too was just hit with this stuff about 3 months ago.I have not been able to see a RA doctor yet so I am only on pain pills and muscle relaxers whitch are no help when I am in my " flare " .That's what it sounds like you are having.A great Big Nasty Yucky Flare!!!Mine lasted for about 8 weeks.The last 4 being the worst(Couldn't get out of bed)I have been out of it for about 2 weeks and am feeling the pain decrease quite a bit and my energy has increased some.I still have alot of daily pain but the inflamation is way down and that helps the pain.Please hang in there !!!!!you will feel better!! I know this must me much harder for a man to go through.My son is being tested in Nov.He is just 24 but has always had joint pain and fatuige.I think the most important thing is learning to pace yourself and pain management.Hot baths and rest helps me the most.I am able to now work pretty hard from about 10 to 3 each day.I have my own business so that helps.Maybe that is something you could do for work(internet business or some other kind that you could work your'e own hours).This is a wonderfull place to get ideas and encouragement,as I'm sure you have already found that out.Take care and I hope you get relief soon.My thoughts and prayers are with you.-Tammy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks, i'm trying to acclimate myself to this disease, and figure what my future has in store, i'm sure once i get a few days of less pain, i'll become more with it. snowdrift52003 <snowdrift52003@...> wrote:Give it more time before you come to conclusions about the future. Three months is not long to have been on meds. As you know, some are slow to take effect, and adjustments in dosage may need to be made. As hard as it might be, do explore all of your options for assistance. You are no less a man for making use of resources that will ease some of the stress. It's good common sense. Sierra --- In , " groggygimp " <groggygimp@y...> wrote: > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks, i'm trying to acclimate myself to this disease, and figure what my future has in store, i'm sure once i get a few days of less pain, i'll become more with it. snowdrift52003 <snowdrift52003@...> wrote:Give it more time before you come to conclusions about the future. Three months is not long to have been on meds. As you know, some are slow to take effect, and adjustments in dosage may need to be made. As hard as it might be, do explore all of your options for assistance. You are no less a man for making use of resources that will ease some of the stress. It's good common sense. Sierra > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks for your suggestion, i'll bring it up to my rheum.. nostorystory <nostorystory@...> wrote:Hi groggygimp, I'm so sorry to hear about your situation. I am on the fly at the moment, but wanted to say that anti-depressants are a really good option. I've had depression on and off in my life, and though I prefer to be off anti-depressant medication they can be fantastic at critical times, and this sounds like one. The one thing I have learned about depression is that it colors my outlook, and it's best not to make decisions while depressed. Also, anti-depressants help raise your pain threshhold. There's no shame in taking them. We all need all the help we can get at such trying times in life. Lots of love to you. Molly On Oct 1, 2005, at 1:20 PM, groggygimp wrote: > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big > deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks for your suggestion, i'll bring it up to my rheum.. nostorystory <nostorystory@...> wrote:Hi groggygimp, I'm so sorry to hear about your situation. I am on the fly at the moment, but wanted to say that anti-depressants are a really good option. I've had depression on and off in my life, and though I prefer to be off anti-depressant medication they can be fantastic at critical times, and this sounds like one. The one thing I have learned about depression is that it colors my outlook, and it's best not to make decisions while depressed. Also, anti-depressants help raise your pain threshhold. There's no shame in taking them. We all need all the help we can get at such trying times in life. Lots of love to you. Molly On Oct 1, 2005, at 1:20 PM, groggygimp wrote: > hi > > i was diagnosed with ra about 3 mos. ago. symptoms came on rather > suddenly, when over night i was nearly crippled with pain and went to > the hospital. i was angry and surprised at the diagnosis, since i had > n;o previous symptoms, and my ignorance of the disease led me to > believe i was psychosomatic, since i thought arthritis was no big > deal. > > i couldn't work for nearly 6 weeks, pain has improved only with > multiple meds, including methotrexate, prednisone, hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it seems that none of > these rx's are either cures or good for you. the symptoms are only > minimally eased, i'm now using a cane, and suffer from muscular > cramping in hands, feet and legs. sleep is hard to come by, and the > toll is great on me finacially. i'm slipping into arrears in rent and > bills. i'm 59, a man, and i find this all emasculating. i've come to > wits' end and see no future, but a lack of quality of life and loss of > work. with this disease, and my age future work is not likely. i'm > contemplating other ways out at this point. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks linda i'm feeling better emotionally now, but see no real way out of ;my situation. the pain makes it more difficult. your suggestions and feed-back is a real support. thanks. Boyd <lindagb52@...> wrote: Hi, I'm sorry that you are having such a rough time of it both physically and emotionally. Yes this is a terrible disease but there is hope. Even though there is no cure with the right therapy and time, things do improve for most of us. You have just started a journey that many of us have been on for varying lenghts of time and degrees of severity. Here at this sight you will find a lot of friends and information to ease the load. You are not alone and things will improve. We share medical information and what works for one person may not work for the next. There are many different treatment options available and it takes time to find the right combination that helps our individual situations. We learn how to cope with the successes and the disappointments. If you are not seeing a good rheumatologist please do so ASAP. Let him know how and what you are felling both physically and emotionally. If he doens't listen find another Dr who will. (My first rheumatologist visit was my last with that doc) I now have a great one. Also there are support groups in many areas in addition to this one. Educate yourself about the disease and treatments and do not be afraid to take control of your life and disease. Do not be afraid to make suggestions to your Dr. about your care. They do not always give us all the options available. This disease throws many of us for a loop when we first become ill. Pain, lack of sleep, job worries, how we will take care of ourselves and our families can be totally overwhelming. Many people (including families and work associaties) do not understand RA and how it effects us. Be patient with yourself. Ask for help when you need it-Dr.s, family , work associates, and church. Many times we never know how wonderful people are until we give them the opportunity. Praying for you and your situation. > hi > > i was diagnosed with ra about 3 mos. ago. symptoms > came on rather > suddenly, when over night i was nearly crippled with > pain and went to > the hospital. i was angry and surprised at the > diagnosis, since i had > n;o previous symptoms, and my ignorance of the > disease led me to > believe i was psychosomatic, since i thought > arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has > improved only with > multiple meds, including methotrexate, prednisone, > hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it > seems that none of > these rx's are either cures or good for you. the > symptoms are only > minimally eased, i'm now using a cane, and suffer > from muscular > cramping in hands, feet and legs. sleep is hard to > come by, and the > toll is great on me finacially. i'm slipping into > arrears in rent and > bills. i'm 59, a man, and i find this all > emasculating. i've come to > wits' end and see no future, but a lack of quality > of life and loss of > work. with this disease, and my age future work is > not likely. i'm > contemplating other ways out at this point. > > > > > > > ______________________________________________________ for Good Donate to the Hurricane Katrina relief effort. http://store./redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks linda i'm feeling better emotionally now, but see no real way out of ;my situation. the pain makes it more difficult. your suggestions and feed-back is a real support. thanks. Boyd <lindagb52@...> wrote: Hi, I'm sorry that you are having such a rough time of it both physically and emotionally. Yes this is a terrible disease but there is hope. Even though there is no cure with the right therapy and time, things do improve for most of us. You have just started a journey that many of us have been on for varying lenghts of time and degrees of severity. Here at this sight you will find a lot of friends and information to ease the load. You are not alone and things will improve. We share medical information and what works for one person may not work for the next. There are many different treatment options available and it takes time to find the right combination that helps our individual situations. We learn how to cope with the successes and the disappointments. If you are not seeing a good rheumatologist please do so ASAP. Let him know how and what you are felling both physically and emotionally. If he doens't listen find another Dr who will. (My first rheumatologist visit was my last with that doc) I now have a great one. Also there are support groups in many areas in addition to this one. Educate yourself about the disease and treatments and do not be afraid to take control of your life and disease. Do not be afraid to make suggestions to your Dr. about your care. They do not always give us all the options available. This disease throws many of us for a loop when we first become ill. Pain, lack of sleep, job worries, how we will take care of ourselves and our families can be totally overwhelming. Many people (including families and work associaties) do not understand RA and how it effects us. Be patient with yourself. Ask for help when you need it-Dr.s, family , work associates, and church. Many times we never know how wonderful people are until we give them the opportunity. Praying for you and your situation. > hi > > i was diagnosed with ra about 3 mos. ago. symptoms > came on rather > suddenly, when over night i was nearly crippled with > pain and went to > the hospital. i was angry and surprised at the > diagnosis, since i had > n;o previous symptoms, and my ignorance of the > disease led me to > believe i was psychosomatic, since i thought > arthritis was no big deal. > > i couldn't work for nearly 6 weeks, pain has > improved only with > multiple meds, including methotrexate, prednisone, > hydroxychloroquin, > naproxin, and humeris(inj. every other wk.). it > seems that none of > these rx's are either cures or good for you. the > symptoms are only > minimally eased, i'm now using a cane, and suffer > from muscular > cramping in hands, feet and legs. sleep is hard to > come by, and the > toll is great on me finacially. i'm slipping into > arrears in rent and > bills. i'm 59, a man, and i find this all > emasculating. i've come to > wits' end and see no future, but a lack of quality > of life and loss of > work. with this disease, and my age future work is > not likely. i'm > contemplating other ways out at this point. > > > > > > > ______________________________________________________ for Good Donate to the Hurricane Katrina relief effort. http://store./redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 thanks grammy b. a beautiful reply, with a lot of hope. wishing you well. g.g. Grammi B <grammi_love@...> wrote: How I wish I could promise you that everything will soon get better. I can't promise that, as we just don't know. But, there is strength in this place...friends leaning upon each other...where neither gender nor age make any difference in the way that love and encouragement is shared. Please hold on, and walk this journey with us...it is not easy, but we can, perhaps, make it just a little easier, helping you to know that you are absolutely not alone. Lovingly... Tess in Oregon Quote Link to comment Share on other sites More sharing options...
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