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Good Morning,

I wanted to let you know that I have been on Enbrel with the

Methetrexate for quite sometime now. The 2 together have been

working well for me. My bloodtest have been fine also. Hang in there

hopefully they will figure out something that works well for you.

> > >

> > > ,

> > > I have been on Enbrel for 4 months and it has changed my life

> > completely. Before Enbrel I was unable to walk and even feed

> myself. I

> > have had NO side effects at all and along with my methotrexate I

am

> > almost able to function at 100%. I have gone from not walking at

> all to

> > walking almost six miles a day. I still need to take my pain

> medication

> > in order to help me through the day, but other than that I am

> OK!! I

> > still have days where I am tired and sleep most of the day away,

> but at

> > least I am able to function and go outside. I know if I were to

> stop

> > moving and just sit at home all day I would still be in a lot of

> pain.

> > > Good Luck

> > > ortizd73

> > >

> > >

> > >

> > >

> > >

> > >

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, I can't take methotrexate because it lowers my white blood

cell count too low. Therefore, I take Enbrel alone, except for

arthritis-strength Tylenol. The Enbrel by itself works wonderfully well

for me. Remicade has to be taken with mtx, but not Enbrel and Humira.

Maybe he will let you try the Enbrel without the mtx. Good luck!

Sue

On Wednesday, July 23, 2008, at 06:30 AM, michellefollet wrote:

> At last I may get some progress. My problem was that methotrexiate

> was one of the medications that was affecting my liver. But he

> explained that enbrel works in with methotrexiate!!! Is everyone on

> enbrel also taking methotrexiate? I would be very interested to

> hear. I am getting so desperate to have some sort of quality life.

> I am 47years old but feel I have the body of a ninety year old !!!

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>

> > At last I may get some progress. My problem was that

methotrexiate

> > was one of the medications that was affecting my liver. But he

> > explained that enbrel works in with methotrexiate!!! Is

everyone on

> > enbrel also taking methotrexiate? I would be very interested to

> > hear. I am getting so desperate to have some sort of quality

life.

> > I am 47years old but feel I have the body of a ninety year

old !!!

>

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, I hope he lets you try it, and I hope it works as well for

you as it does for me. Keep us posted.

Sue

On Thursday, July 24, 2008, at 10:09 AM, michellefollet wrote:

> Thanks so much for your imput, as I am reluntant to start up on

> methotrexiate again, this may be the answer.

>

> It is so great to get everyones advice from thier own experiences

> and I really do appreciate it.

>

> So my next visit I am going to suggest this to the Rheumatologist !!

>

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Yay! I hope it's very effective for you, I could feel it working within the

first week with maximum benefits in the first month.

I **LOVE** Enbrel and don't know where I'd be without it. Well, yes, I do know,

curled up somewhere in terrible pain!

[ ] Enbrel

just started Enbrel on Thursday and am VERY excited!!! any advice or comments

would be

appreciated.

wendy from birmingham, al

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Hi :

I just passed my one year anniv. on Enbrel. I can remember

clearly...three days (they tell me that is pretty rare) on the drug

and my life was changed. I remember actually crying, it was all so

miraculous! As time has gone on, its less effective but still

works...I know this for sure because I recently had to go off for two

weeks....inflamed lymph nodes....some unknown infection...had to stop

until antibiotics finished. I was in sheer agony during my time

off...could hardly walk or turn my head. My RA is mostly in my neck,

tiny joints in toes (that attach to feet), making walking difficult

and more recently L hip and eventually knee.

I swim everyday which is the only time I feel really good.

I still love Enbrel but am considering talking to doc about switching

to another in the same class....recent studies show that switching

from one to another, even in the same class, can help (when

effectiveness with first is waning....not sure I am really there

yet...)

Anyway, couple of things to share...I find that shots in the belly

are least uncomfortable. Also, I get REALLY itchy welts for a couple

of days after taking my shot....Triamcinalone cream works best for me

to beat the itch. OTC cortisone did noting. You may still have good

days and bad days (more pain, fatigue)....not sure why this is.

Anyway, I take 600 ibuprofen with pretty good results. Last thing is

to make sure you don't let the shots get warm....I left one out too

long before taking once and there was a definite decrease in

effectiveness. Actually, I would love it if I could take every 5

days....I really think thats about how long the peak effects last.

If you have any specific questions, I would be happy to discuss.

Diane

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, I've been on Enbrel for over five years, and it works very well

for me. I haven't had any adverse side effects, either. In fact, it's

time for my injection now.

Good luck! I hope it works as well for you as it does for me.

Sue

On Saturday, August 2, 2008, at 10:44 AM, Peek wrote:

> just started Enbrel on Thursday and am VERY excited!!! any advice or

> comments would be appreciated.

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I find that the 25mg twice weekly lasts better for me than the 50mg

once weekly.

Sue

On Saturday, August 2, 2008, at 12:53 PM, muddypotter1 wrote:

> Actually, I would love it if I could take every 5

> days....I really think thats about how long the peak effects last.

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I just started last week. Did my 2nd injection today. The only thing

I've noticed is I get a little sleepy after the injection (I just

woke up from a 3 hour nap), and I get a little tummy ache the first

day or so. It has already started working, I can feel it. Last week I

had incredible results. I worked out for 2 hours, for the first time

in 5 years. I do notice that the effects seemed to run out around day

5. I had abosolutly NO pain, swelling or stiffness, until a couple

days ago. Went practically the whole week with no pain meds, not even

a tylenol....even after my workout! I think it is a miracle drug!

After my nap, I am feeling WAY better than before the injection... no

pain going up and down the stairs!! Whoo Hoo!

I hope it works for you as well as it does for me, and that it kicks

in quick like it did for me!

Yay!

-

--- In , " Peek " <wendyhollander@...>

wrote:

>

> just started Enbrel on Thursday and am VERY excited!!! any advice

or comments would be

> appreciated.

> wendy from birmingham, al

>

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I SO appreciate everyone's responses! I am ready for dose #2 today (I'm doing

the 25mg,

twice per week). I could tell a difference for sure, but woke this morning with

pain in my

hands and wrists. I have had an upset tummy, but I think it's from the a

Deen lasagna

with about 100 kinds of cheese in it! An any case, I'm so hopeful as I have two

babies to

raise (ages 7 weeks and 17 months) and a full time job to keep. I am on 15mg

Prednisone/day and cannot wait to reduce. Is that what's making me sweat like

a pig? I

cannot imagine it's still the postpartum hormones. I stopped breastfeeding

several weeks

ago so it can't be that. Baby crying, gotta run...... will check

later........thanks again to

everyone who replied!!!

wendy from birmingham, AL

--- In , " laurenrosepeters " <laurenrosepeters@...>

wrote:

>

> I just started last week. Did my 2nd injection today. The only thing

> I've noticed is I get a little sleepy after the injection (I just

> woke up from a 3 hour nap), and I get a little tummy ache the first

> day or so. It has already started working, I can feel it. Last week I

> had incredible results. I worked out for 2 hours, for the first time

> in 5 years. I do notice that the effects seemed to run out around day

> 5. I had abosolutly NO pain, swelling or stiffness, until a couple

> days ago. Went practically the whole week with no pain meds, not even

> a tylenol....even after my workout! I think it is a miracle drug!

> After my nap, I am feeling WAY better than before the injection... no

> pain going up and down the stairs!! Whoo Hoo!

> I hope it works for you as well as it does for me, and that it kicks

> in quick like it did for me!

> Yay!

> -

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, Group

I appreciate all the responses too. Lots of luck on your meds. Yes,

your right sometimes its that big meal that gets us so sick. So, I

hope thats what it was and not the meds. I still get up with pains

now and than thats for sure. I am taking 10 mg of prednisone a day.

Wow 15 mg of prednisone.

I can't even imagine raising kids with RA. Mine are in their mid

30s. I been sweating a lot. But it could be this heat. And my

husband was sweating too. We got the air cranked up. I havent had

the hot flashes much now since its been 10 years since I had the

hystrectomy.

Those that have kids and work. OMG, I pray for everyone in our

Group. I don't go over each name. Sometimes I will remember the ones

having a real hard time and ask God to Please send them some quick

relief. I just ask God to help my support group. You know the ones I

read everyday.

My son lives in Birmingham Alambama, him and his wife are in the air

force. Gosh now I see how to spell that city. Gosh was I way off.

gentle hugs everyone

Clora

PS

THis is the last post in my email, I am going to play some games on

pogo. I will be getting some more mail later. Play my games than

time to challenge a hot shower.

>

> I SO appreciate everyone's responses! I am ready for dose #2

today (I'm doing the 25mg,

> twice per week). I could tell a difference for sure, but woke

this morning with pain in my

> hands and wrists. I have had an upset tummy, but I think it's

from the a Deen lasagna

> with about 100 kinds of cheese in it! An any case, I'm so hopeful

as I have two babies to

> raise (ages 7 weeks and 17 months) and a full time job to keep. I

am on 15mg

> Prednisone/day and cannot wait to reduce. Is that what's making

me sweat like a pig? I

> cannot imagine it's still the postpartum hormones. I stopped

breastfeeding several weeks

> ago so it can't be that. Baby crying, gotta run...... will check

later........thanks again to

> everyone who replied!!!

> wendy from birmingham, AL

>

>

> >

> > I just started last week. Did my 2nd injection today. The only

thing

> > I've noticed is I get a little sleepy after the injection (I

just

> > woke up from a 3 hour nap), and I get a little tummy ache the

first

> > day or so. It has already started working, I can feel it. Last

week I

> > had incredible results. I worked out for 2 hours, for the first

time

> > in 5 years. I do notice that the effects seemed to run out

around day

> > 5. I had abosolutly NO pain, swelling or stiffness, until a

couple

> > days ago. Went practically the whole week with no pain meds, not

even

> > a tylenol....even after my workout! I think it is a miracle drug!

> > After my nap, I am feeling WAY better than before the

injection... no

> > pain going up and down the stairs!! Whoo Hoo!

> > I hope it works for you as well as it does for me, and that it

kicks

> > in quick like it did for me!

> > Yay!

> > -

>

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i just gave myself my very first dose at home (2nd dose in all - 25 mg @ twice

per week).

it went fine. the heat in b'ham is 106 heat index and that is with all the

humidity the

South offers! VERY hot. but i'm sweating more than is normal, even for that.

i just know

it's the prednisone. i was on 20mg/day for several days last week and am just

now

tapering from 15 down to 10 and then lower to go off completely. as for raising

babies

right now, my husband has been doing WAY more than his 50% and is very

understanding

about the RA. he had a bought of a strange " Reactive Arthritis " (rare) last

summer so he

knows how a flare feels now. he tells people that it hurt when the sheet even

touched his

knee in the bed. i say, " yep, that's about right " . anyway, i'm so hopeful and

excited about

the Enbrel, but almost equally so over the decrease and elimination of steroids.

i have a

lot of weight to lose and need the patience of Job for two babies and a

full-time job in

child welfare. would love to hear more from those of you who have prednisone

sweating

and/or Enbrel stories to share! or motherhood with RA.....

wendy

> > >

> > > I just started last week. Did my 2nd injection today. The only

> thing

> > > I've noticed is I get a little sleepy after the injection (I

> just

> > > woke up from a 3 hour nap), and I get a little tummy ache the

> first

> > > day or so. It has already started working, I can feel it. Last

> week I

> > > had incredible results. I worked out for 2 hours, for the first

> time

> > > in 5 years. I do notice that the effects seemed to run out

> around day

> > > 5. I had abosolutly NO pain, swelling or stiffness, until a

> couple

> > > days ago. Went practically the whole week with no pain meds, not

> even

> > > a tylenol....even after my workout! I think it is a miracle drug!

> > > After my nap, I am feeling WAY better than before the

> injection... no

> > > pain going up and down the stairs!! Whoo Hoo!

> > > I hope it works for you as well as it does for me, and that it

> kicks

> > > in quick like it did for me!

> > > Yay!

> > > -

> >

>

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, when did you have the baby? I had Tommy 5 weeks ago and I'm still

getting night sweats that are significant enough to wet the pillow from all the

post partum hormones. Blecho!

[ ] Re: Enbrel

i just gave myself my very first dose at home (2nd dose in all - 25 mg @ twice

per week).

it went fine. the heat in b'ham is 106 heat index and that is with all the

humidity the

South offers! VERY hot. but i'm sweating more than is normal, even for that.

i just know

it's the prednisone. i was on 20mg/day for several days last week and am just

now

tapering from 15 down to 10 and then lower to go off completely. as for raising

babies

right now, my husband has been doing WAY more than his 50% and is very

understanding

about the RA. he had a bought of a strange " Reactive Arthritis " (rare) last

summer so he

knows how a flare feels now. he tells people that it hurt when the sheet even

touched his

knee in the bed. i say, " yep, that's about right " . anyway, i'm so hopeful and

excited about

the Enbrel, but almost equally so over the decrease and elimination of steroids.

i have a

lot of weight to lose and need the patience of Job for two babies and a

full-time job in

child welfare. would love to hear more from those of you who have prednisone

sweating

and/or Enbrel stories to share! or motherhood with RA.....

wendy

> > >

> > > I just started last week. Did my 2nd injection today. The only

> thing

> > > I've noticed is I get a little sleepy after the injection (I

> just

> > > woke up from a 3 hour nap), and I get a little tummy ache the

> first

> > > day or so. It has already started working, I can feel it. Last

> week I

> > > had incredible results. I worked out for 2 hours, for the first

> time

> > > in 5 years. I do notice that the effects seemed to run out

> around day

> > > 5. I had abosolutly NO pain, swelling or stiffness, until a

> couple

> > > days ago. Went practically the whole week with no pain meds, not

> even

> > > a tylenol....even after my workout! I think it is a miracle drug!

> > > After my nap, I am feeling WAY better than before the

> injection... no

> > > pain going up and down the stairs!! Whoo Hoo!

> > > I hope it works for you as well as it does for me, and that it

> kicks

> > > in quick like it did for me!

> > > Yay!

> > > -

> >

>

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,

I've been on Humira since January, a similar drug to Enbrel. I feel you like

you do: it has absolutely given me back " my life. " I was having unresolved

pain issues and Ultram or Celebrex was not addressing it. Along with fatigue

and joint pain in my hands, wrists, shoulders, neck, I was a mess. My

rheumatologist said " You always come in here complaining. "

Right. I'm really not there because I feel well, you know. He told me the only

thing left for me was the biologicals, or long-term Prednisone and he didn't

want to do that. I am truly amazed, after shot 2, how much better I've felt.

I've had RA 15 years and had honestly forgotten how it is to feel " normal. "

For anyone considering one of these drugs, my recommendation is to go for it.

If you can tolerate them, they are a godsend. Humira's main side effect is

apparently rashes. But so far I've been very lucky.....none. It is also

painful to inject (in your leg) but I take my time and inject very, very slowly.

Yes, it stings, but it's n-o-t-h-i-n-g compared to RA's awful joint pain.

Joy

PS Incidentally, he cut my MTX from 25 mg/week to 17 mg/wk, which is still

working for me.

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Joy, and Group

OMG, NO WAY. Your rheumy said all you do is complain. What are you

there for?? To discuss the weather. Sorry hon, how dare her/him say

that.

I am so glad to here the Humira is doing good for you. I start it in

a few weeks. I get rashes so easy. I have to take bendryle a lot. I

pray it don't give me a bad rash. I had to stop so much medicine

because of whelps.

I been in so much pain for so long. I am on prednisone till I start

the humira. The prednisone makes me feel so good. I forgot what it

was like, not to lie in bed in miserable pain. I took the prednisone

and counted the hours for it to work. AT first nothing. THan, oh my

gosh, I felt so good. lol it is great. I still hurt a little. but i

am not in agony as before. RA is aweful. Its strange they even call

it arthritis, with so many side affects. An illness with side

affects.

gentle hugs

Clora

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i had frances 7 weeks ago. the doc said the prednisone is probably playing a

big role in

the sweating.

> > > >

> > > > I just started last week. Did my 2nd injection today. The only

> > thing

> > > > I've noticed is I get a little sleepy after the injection (I

> > just

> > > > woke up from a 3 hour nap), and I get a little tummy ache the

> > first

> > > > day or so. It has already started working, I can feel it. Last

> > week I

> > > > had incredible results. I worked out for 2 hours, for the first

> > time

> > > > in 5 years. I do notice that the effects seemed to run out

> > around day

> > > > 5. I had abosolutly NO pain, swelling or stiffness, until a

> > couple

> > > > days ago. Went practically the whole week with no pain meds, not

> > even

> > > > a tylenol....even after my workout! I think it is a miracle drug!

> > > > After my nap, I am feeling WAY better than before the

> > injection... no

> > > > pain going up and down the stairs!! Whoo Hoo!

> > > > I hope it works for you as well as it does for me, and that it

> > kicks

> > > > in quick like it did for me!

> > > > Yay!

> > > > -

> > >

> >

>

>

>

>

>

>

>

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i hate to hear stories about docs acting that way. what a jerk! i'm glad you

have been

helped and am thinking that i have forgotten what it feels like to be normal as

well.

>

> ,

> I've been on Humira since January, a similar drug to Enbrel. I feel you

like you do: it

has absolutely given me back " my life. " I was having unresolved pain issues and

Ultram or

Celebrex was not addressing it. Along with fatigue and joint pain in my hands,

wrists,

shoulders, neck, I was a mess. My rheumatologist said " You always come in here

complaining. "

>

> Right. I'm really not there because I feel well, you know. He told me the

only thing left

for me was the biologicals, or long-term Prednisone and he didn't want to do

that. I am

truly amazed, after shot 2, how much better I've felt. I've had RA 15 years and

had

honestly forgotten how it is to feel " normal. "

>

> For anyone considering one of these drugs, my recommendation is to go for it.

If you

can tolerate them, they are a godsend. Humira's main side effect is apparently

rashes. But

so far I've been very lucky.....none. It is also painful to inject (in your

leg) but I take my

time and inject very, very slowly. Yes, it stings, but it's n-o-t-h-i-n-g

compared to RA's

awful joint pain.

>

> Joy

>

> PS Incidentally, he cut my MTX from 25 mg/week to 17 mg/wk, which is still

working for

me.

>

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FRANCES! Beautiful!!! Congratulations. That was my grandmother's name. She

was a terrific lady. I think it's a regal choice! Congrats!

[ ] Re: Enbrel

i had frances 7 weeks ago. the doc said the prednisone is probably playing a

big role in

the sweating.

> > > >

> > > > I just started last week. Did my 2nd injection today. The only

> > thing

> > > > I've noticed is I get a little sleepy after the injection (I

> > just

> > > > woke up from a 3 hour nap), and I get a little tummy ache the

> > first

> > > > day or so. It has already started working, I can feel it. Last

> > week I

> > > > had incredible results. I worked out for 2 hours, for the first

> > time

> > > > in 5 years. I do notice that the effects seemed to run out

> > around day

> > > > 5. I had abosolutly NO pain, swelling or stiffness, until a

> > couple

> > > > days ago. Went practically the whole week with no pain meds, not

> > even

> > > > a tylenol....even after my workout! I think it is a miracle drug!

> > > > After my nap, I am feeling WAY better than before the

> > injection... no

> > > > pain going up and down the stairs!! Whoo Hoo!

> > > > I hope it works for you as well as it does for me, and that it

> > kicks

> > > > in quick like it did for me!

> > > > Yay!

> > > > -

> > >

> >

>

>

>

>

>

>

>

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Hi a,

i also try humira (first) and i think it made my symptons worse instead

of better. I was skeptical but hopefully with enbrel and it has

surpassed my expectations. thanks for the support.

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Me too. For the first year I was fine- but now.. ugh. I can't shake it.

Abby

In a message dated 10/18/2008 2:00:28 P.M. Pacific Daylight Time,

rascalsniche@... writes:

Marie...

I can totally relate to the never ending post nasal drip. Geesh..... I'm

in enbrel also.

Hugs..a

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out

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I found the site reactions became more mild with time.  I think it also helped

me to do the following -

the night before shot day take a benadryl

morning of shot day take tagamet

night of shot day take another benadryl

take tagament next morning

 

that seems to keep the histamines at a low enough level that I didn't get those

meanie hives that are hot to the touch.  Now I just get a red patch for a few

days.  I hardly notice it now.

[ ] Enbrel

Hi ....

I've taken enbrel for years now. Wonderful results. I really could feel the

difference within days...others take months. Also, sometimes enbrel with

combination therapy works better for others. i take mine with arava and

prednisone.

Anyway....about the injection site. I do sometimes get an injection site

reaction. There have been times when its itchy and pink. Or sometimes I get a

bruise at the site. Nothing to worry about. I've never tried any

lotion...just waited it out. But most of the time, my reaction is slight

pinkness and a

small itch. it doesn't last long. But like someone else said...you would have

to pry the enbrel out of my mitts to get me to stop using it. I am able to

do a lot more things than I ever did before. I hope it never quits working for

me.

There are so many better treatments now than when i was diagnosed in 1983.

My hands and feet look like you know what but I feel lots better. I love it.

Give it time too.

Hugs..a

************ **

New MapQuest Local shows what's happening at your

destination. Dining, Movies, Events, News & amp; more. Try it out

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they have a program it's called enbrel quick assit they pay for it for the

first yr then there is copay 75.00 for a 3month supply.I take my shot weekly.

[ ] Enbrel

My hubby has pulmonary fibrosis caused by RA. This came on all of a

sudden in July of this year. He had never been diagnosed with RA or had

any joint pain until July. His rheumy thinks that he has a rare case of

RA where the RA attacks the lungs before the joints. He also goes to a

pulmonologist. He is on prednisone and Imuran. His lung doc is

considering Enbrel for him but his rheumy has reservations because he

has seen studies that it can damage the lungs. The lung doc has seen

the studies and does not agree with the studies.

I went online and checked and our ins. covers Enbrel with auth but it

looks like it is only covered 50%. Does anyone know the cost and how

often you usually take it? I understand that it is an injection.

Lynn J., in Louisiana

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Hi Lynn,

I don't know what your pharmacy charges, but when I was on it and picked it

up, it would show that the insurance paid 1400.00 I had to pay 70.00

Heidibug

On Sat, Dec 6, 2008 at 9:32 AM, crj129 <crj129@...> wrote:

> My hubby has pulmonary fibrosis caused by RA. This came on all of a

> sudden in July of this year. He had never been diagnosed with RA or had

> any joint pain until July. His rheumy thinks that he has a rare case of

> RA where the RA attacks the lungs before the joints. He also goes to a

> pulmonologist. He is on prednisone and Imuran. His lung doc is

> considering Enbrel for him but his rheumy has reservations because he

> has seen studies that it can damage the lungs. The lung doc has seen

> the studies and does not agree with the studies.

>

> I went online and checked and our ins. covers Enbrel with auth but it

> looks like it is only covered 50%. Does anyone know the cost and how

> often you usually take it? I understand that it is an injection.

>

> Lynn J., in Louisiana

>

>

>

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Guest guest

Hi Lynn,

I don't pick mine up i have it deleivered with my insurances mail program just

to make sure someone is there to pick it up and put it in refrigerator

Re: [ ] Enbrel

Hi Lynn,

I don't know what your pharmacy charges, but when I was on it and picked it

up, it would show that the insurance paid 1400.00 I had to pay 70.00

Heidibug

On Sat, Dec 6, 2008 at 9:32 AM, crj129 <crj129@...> wrote:

> My hubby has pulmonary fibrosis caused by RA. This came on all of a

> sudden in July of this year. He had never been diagnosed with RA or had

> any joint pain until July. His rheumy thinks that he has a rare case of

> RA where the RA attacks the lungs before the joints. He also goes to a

> pulmonologist. He is on prednisone and Imuran. His lung doc is

> considering Enbrel for him but his rheumy has reservations because he

> has seen studies that it can damage the lungs. The lung doc has seen

> the studies and does not agree with the studies.

>

> I went online and checked and our ins. covers Enbrel with auth but it

> looks like it is only covered 50%. Does anyone know the cost and how

> often you usually take it? I understand that it is an injection.

>

> Lynn J., in Louisiana

>

>

>

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Guest guest

Hi Im new here, I live in the UK, my name is ine, Im 56yrs old, I

have had RA since 1995 and the only med that give me any sort of relife

is Steroids.. I have had Methatrexate injections, my last treatment was

Arava, which has stoped working.. Im in so much pain, and crying all

the time,is this normal?... I have it in all joints.

On Friday I have my first injection of Enbrl, really hoping it will

give me some sort of relief...I know it could take a while before it

kicks in.. Can any one tell me if you can have a steriod injection

while your on Enbrel ..I know your not Doctors ,but has anyone else had

steriods while on Erbrel..Thank you for reading this..Regards ine UK

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