Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hey Natasha, I'm sorry this has happened for you. First, stay with this group but join a couple of others, VenlafaxineHealing is specifically for those who have been on Effexor, some are totally free, others are tapering off. Another group is ProzacAwareness - this group is like SSRI Crusaders and addresses all the drugs with SSRIs in them. Read through the files and old posts, learn about the drugs and the withdrawal problems. A cold turkey stop from 300 mgs is true hell and very dangerous. You do want to taper off the drug gradually and never stop it abruptly. You need to get back on and stabilize, then start making gradual reductions in your dose until you are free. The general rule is to reduce the dose by a small amount, you will get some harsh withdrawal reactions but the smaller the reduction amount, the less the severity of reactions. You stablize at that dose, then make another small reduction in your daily dose, and wait again until you stablize from the withdrawal effects before making another reduction. There is not a set rule as to the amount of taper or amount of time to take - it can vary by person but again, the general rule is the slower, the better and most successful. Four days is not long enough. When I got my son off, we cut at 10%, then had to reduce that to 5% when we were around half of the initial dose. As we neared the end, we had to reduce that to 2 1/2% (of initial dose). He had been on them several years, we spent almost 6 months tapering. He was on time release capsules, I bought empty capsules from the pharmacist and actually counted the small granules out. There are some different ways others have tapered. I didn't bother trying to get help from our doctor until we were completely off, and then had him run tests to check out thyroid and hormonal functioning. He is off for a year now and doing great. We went to a low carb diet (atkins) and all the problems we had before getting on the pills are gone. I have a few suggestions. One is that you can go this morning to your pharmacist who has been filling the perscription. Tell him your situation with your doctor being out of town and your withdrawal reactions. They will most likely sell you enough pills to get to Monday. Insurance probably will not pay for these though and you will have to pay full price - at my Walgreen's, they use to cost around $9 a pill. Pharmacists are much better educated in drugs than doctors are - your pharmacist most likely will acknowledge what you are experiencing is withdrawal from the drug if you ask him about it. Then on Monday, call your doctor's office and tell them what is going on. Someone should be covering his patients in his absence. If he has a nurse, they can phone in a perscription depending on what is written in your file, or get the doctor who is covering his patients while he is on vacation to approve a new perscription for you. Or you can go as you are thinking to the emergency clinic in your area. The doctor who runs the local walk-in/emergency clinic in my neighborhood actually is very informed on these drugs and helps people taper off of them. Doctors who are informed about them are out there but few and far between. Those who are not informed however, are usually quick to write a prescription thinking that your withdrawal problems reflect your need to be on the drug. And my last suggestion would be not to worry about your doctor not wanting you as a patient anymore. You don't really want him as a doctor either if all he knows how to do is write perscriptions for these drugs. Effexor withdrawal, HELL AND BACK! > Hello all, I've been on 300 mg of Effexor XR for the past 6 months > for major depression and anxiety. I didn't have much side effects > going on it but I've missed two days because I ran out of pills and > my doctor is on vacation. And it has been HELL AND BACK for me! The > weirdest things are happening, when I move my head my eyes become > unfocused and a weird " woosh " sound can be heard. It feels as if my > brain is bouncing around in my skull or something. Not to mention > extreme dizziness, feelings of unreality and sensitivity to light > and sound. I don't see an end in sight to this because I feel like a > damned drug addict! > > I talked to my doctor 2 weeks ago about going off Effexor and he > said that if I did that I couldn't be his patient anymore because he > finally found a drug that could " help " me and I'm refusing > treatment. I feel so angry at him and at all medical professionals > in general, no one told me that I'd be going through this! And I > called the hospital and they told me it was all psychosomatic! So > now don't I just feel stupid? > > I don't know what I should do, should I just wait this out, go back > on the pills at regular dose, cut back...I'm really clueless! If I > were to get pills from an emergency family clinic tomorrow what > would be the proper way to taper off 300 mg? Go down 75 mg every 4 > days? > > I'm sorry I know this is long but I feel so helpless. I'm actually > surprised that I can type this all because I just feel > so...unfocused. I feel as if I'm going to die and I just cannot > stand it anymore. Please, if anyone has any advice on how to win > against this EVIL pill please share it, everything is appreciated. > > Thanks a lot > Natasha > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hey Natasha, I'm sorry this has happened for you. First, stay with this group but join a couple of others, VenlafaxineHealing is specifically for those who have been on Effexor, some are totally free, others are tapering off. Another group is ProzacAwareness - this group is like SSRI Crusaders and addresses all the drugs with SSRIs in them. Read through the files and old posts, learn about the drugs and the withdrawal problems. A cold turkey stop from 300 mgs is true hell and very dangerous. You do want to taper off the drug gradually and never stop it abruptly. You need to get back on and stabilize, then start making gradual reductions in your dose until you are free. The general rule is to reduce the dose by a small amount, you will get some harsh withdrawal reactions but the smaller the reduction amount, the less the severity of reactions. You stablize at that dose, then make another small reduction in your daily dose, and wait again until you stablize from the withdrawal effects before making another reduction. There is not a set rule as to the amount of taper or amount of time to take - it can vary by person but again, the general rule is the slower, the better and most successful. Four days is not long enough. When I got my son off, we cut at 10%, then had to reduce that to 5% when we were around half of the initial dose. As we neared the end, we had to reduce that to 2 1/2% (of initial dose). He had been on them several years, we spent almost 6 months tapering. He was on time release capsules, I bought empty capsules from the pharmacist and actually counted the small granules out. There are some different ways others have tapered. I didn't bother trying to get help from our doctor until we were completely off, and then had him run tests to check out thyroid and hormonal functioning. He is off for a year now and doing great. We went to a low carb diet (atkins) and all the problems we had before getting on the pills are gone. I have a few suggestions. One is that you can go this morning to your pharmacist who has been filling the perscription. Tell him your situation with your doctor being out of town and your withdrawal reactions. They will most likely sell you enough pills to get to Monday. Insurance probably will not pay for these though and you will have to pay full price - at my Walgreen's, they use to cost around $9 a pill. Pharmacists are much better educated in drugs than doctors are - your pharmacist most likely will acknowledge what you are experiencing is withdrawal from the drug if you ask him about it. Then on Monday, call your doctor's office and tell them what is going on. Someone should be covering his patients in his absence. If he has a nurse, they can phone in a perscription depending on what is written in your file, or get the doctor who is covering his patients while he is on vacation to approve a new perscription for you. Or you can go as you are thinking to the emergency clinic in your area. The doctor who runs the local walk-in/emergency clinic in my neighborhood actually is very informed on these drugs and helps people taper off of them. Doctors who are informed about them are out there but few and far between. Those who are not informed however, are usually quick to write a prescription thinking that your withdrawal problems reflect your need to be on the drug. And my last suggestion would be not to worry about your doctor not wanting you as a patient anymore. You don't really want him as a doctor either if all he knows how to do is write perscriptions for these drugs. Effexor withdrawal, HELL AND BACK! > Hello all, I've been on 300 mg of Effexor XR for the past 6 months > for major depression and anxiety. I didn't have much side effects > going on it but I've missed two days because I ran out of pills and > my doctor is on vacation. And it has been HELL AND BACK for me! The > weirdest things are happening, when I move my head my eyes become > unfocused and a weird " woosh " sound can be heard. It feels as if my > brain is bouncing around in my skull or something. Not to mention > extreme dizziness, feelings of unreality and sensitivity to light > and sound. I don't see an end in sight to this because I feel like a > damned drug addict! > > I talked to my doctor 2 weeks ago about going off Effexor and he > said that if I did that I couldn't be his patient anymore because he > finally found a drug that could " help " me and I'm refusing > treatment. I feel so angry at him and at all medical professionals > in general, no one told me that I'd be going through this! And I > called the hospital and they told me it was all psychosomatic! So > now don't I just feel stupid? > > I don't know what I should do, should I just wait this out, go back > on the pills at regular dose, cut back...I'm really clueless! If I > were to get pills from an emergency family clinic tomorrow what > would be the proper way to taper off 300 mg? Go down 75 mg every 4 > days? > > I'm sorry I know this is long but I feel so helpless. I'm actually > surprised that I can type this all because I just feel > so...unfocused. I feel as if I'm going to die and I just cannot > stand it anymore. Please, if anyone has any advice on how to win > against this EVIL pill please share it, everything is appreciated. > > Thanks a lot > Natasha > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Natasha writes " And I called the hospital and they told me it was all psychosomatic! So now don't I just feel stupid? " This is the wording from the Effexor prescribing information/insert/lable. I suggest you print it out, take it to that hospital, shove it up the ass of the person you talked to and then tell them the pain is psychosomatic. But then I'm really pissed off for you and all the other people who get told that. Maybe that's not the best way of dealing with them....... PRECAUTIONS General Discontinuation of Treatment with Effexor Discontinuation symptoms have been systematically evaluated in patients taking venlafaxine, to include prospective analyses of clinical trials in Generalized Anxiety Disorder and retrospective surveys of trials in major depressive disorder. Abrupt discontinuation or dose reduction of venlafaxine at various doses has been found to be associated with the appearance of new symptoms, the frequency of which increased with increased dose level and with longer duration of treatment. Reported symptoms include agitation, anorexia, anxiety, confusion, coordination impaired, diarrhea, dizziness, dry mouth, dysphoric mood, fasciculation, fatigue, headaches, hypomania, insomnia, nausea, nervousness, nightmares, sensory disturbances (including shock-like electrical sensations), somnolence, sweating, tremor, vertigo, and vomiting. During marketing of Effexor, other SNRIs (Serotonin and Norepinephrine Reuptake Inhibitors), and SSRIs (Selective Serotonin Reuptake Inhibitors), there have been spontaneous reports of adverse events occurring upon discontinuation of these drugs, particularly when abrupt, including the following: dysphoric mood, irritability, agitation, dizziness, sensory disturbances (e.g. paresthesias such as electric shock sensations), anxiety, confusion, headache, lethargy, emotional lability, insomnia, hypomania, tinnitus, and seizures. While these events are generally self-limiting, there have been reports of serious discontinuation symptoms. Patients should be monitored for these symptoms when discontinuing treatment with Effexor. A gradual reduction in the dose rather than abrupt cessation is recommended whenever possible. If intolerable symptoms occur following a decrease in the dose or upon discontinuation of treatment, then resuming the previously prescribed dose may be considered. Subsequently, the physician may continue decreasing the dose but at a more gradual rate (see DOSAGE AND ADMINISTRATION). _________ I copied that from http://www.rxlist.com/cgi/generic/venlafax_wcp.htm#P which is a faithful reposting of the FDA approved pi/insert/label. Just about any drug's pi/insert/label can be found by googling the name of the drug and " Prescribing information " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Natasha writes " And I called the hospital and they told me it was all psychosomatic! So now don't I just feel stupid? " This is the wording from the Effexor prescribing information/insert/lable. I suggest you print it out, take it to that hospital, shove it up the ass of the person you talked to and then tell them the pain is psychosomatic. But then I'm really pissed off for you and all the other people who get told that. Maybe that's not the best way of dealing with them....... PRECAUTIONS General Discontinuation of Treatment with Effexor Discontinuation symptoms have been systematically evaluated in patients taking venlafaxine, to include prospective analyses of clinical trials in Generalized Anxiety Disorder and retrospective surveys of trials in major depressive disorder. Abrupt discontinuation or dose reduction of venlafaxine at various doses has been found to be associated with the appearance of new symptoms, the frequency of which increased with increased dose level and with longer duration of treatment. Reported symptoms include agitation, anorexia, anxiety, confusion, coordination impaired, diarrhea, dizziness, dry mouth, dysphoric mood, fasciculation, fatigue, headaches, hypomania, insomnia, nausea, nervousness, nightmares, sensory disturbances (including shock-like electrical sensations), somnolence, sweating, tremor, vertigo, and vomiting. During marketing of Effexor, other SNRIs (Serotonin and Norepinephrine Reuptake Inhibitors), and SSRIs (Selective Serotonin Reuptake Inhibitors), there have been spontaneous reports of adverse events occurring upon discontinuation of these drugs, particularly when abrupt, including the following: dysphoric mood, irritability, agitation, dizziness, sensory disturbances (e.g. paresthesias such as electric shock sensations), anxiety, confusion, headache, lethargy, emotional lability, insomnia, hypomania, tinnitus, and seizures. While these events are generally self-limiting, there have been reports of serious discontinuation symptoms. Patients should be monitored for these symptoms when discontinuing treatment with Effexor. A gradual reduction in the dose rather than abrupt cessation is recommended whenever possible. If intolerable symptoms occur following a decrease in the dose or upon discontinuation of treatment, then resuming the previously prescribed dose may be considered. Subsequently, the physician may continue decreasing the dose but at a more gradual rate (see DOSAGE AND ADMINISTRATION). _________ I copied that from http://www.rxlist.com/cgi/generic/venlafax_wcp.htm#P which is a faithful reposting of the FDA approved pi/insert/label. Just about any drug's pi/insert/label can be found by googling the name of the drug and " Prescribing information " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Natasha, Effexsor is extremly difficult to come off of. You should NEVER stop this drug cold turkey. Coming off could cause Psychosis and you could end up on all kinds of drugs to stop it. Do you have family that you can educate a little, so that if any thing happens they will understand what is going on. That it is the drug and your NOT going crazy. That these quacks are not there to help you and could cause more problems if your situation is not handled correctly. What i'm trying to say is that your family needs to be just as educated as you are and the doc's are. I have a friend whos daughter lost 5 years of her life because of this trash they call medicine, but the mom was smart enough to educate herself and new it was the drugs that was causing all the problems. It took 5 years to get her straightned out, but she is an honor student now atending college. I don't want to see you drugged into obivion if something happens. Just calm down and decrease slow. That is what I would do. I'm really sorry about all your going through. Join that group our friend here gave you. There is good help there. Please keep in touch with us here as we want to know how your doing. Connie in Dallas, TExas --- natasha1981_2003@... wrote: > Hello all, I've been on 300 mg of Effexor XR for the > past 6 months > for major depression and anxiety. I didn't have much > side effects > going on it but I've missed two days because I ran > out of pills and > my doctor is on vacation. And it has been HELL AND > BACK for me! The > weirdest things are happening, when I move my head > my eyes become > unfocused and a weird " woosh " sound can be heard. It > feels as if my > brain is bouncing around in my skull or something. > Not to mention > extreme dizziness, feelings of unreality and > sensitivity to light > and sound. I don't see an end in sight to this > because I feel like a > damned drug addict! > > I talked to my doctor 2 weeks ago about going off > Effexor and he > said that if I did that I couldn't be his patient > anymore because he > finally found a drug that could " help " me and I'm > refusing > treatment. I feel so angry at him and at all medical > professionals > in general, no one told me that I'd be going through > this! And I > called the hospital and they told me it was all > psychosomatic! So > now don't I just feel stupid? > > I don't know what I should do, should I just wait > this out, go back > on the pills at regular dose, cut back...I'm really > clueless! If I > were to get pills from an emergency family clinic > tomorrow what > would be the proper way to taper off 300 mg? Go down > 75 mg every 4 > days? > > I'm sorry I know this is long but I feel so > helpless. I'm actually > surprised that I can type this all because I just > feel > so...unfocused. I feel as if I'm going to die and I > just cannot > stand it anymore. Please, if anyone has any advice > on how to win > against this EVIL pill please share it, everything > is appreciated. > > Thanks a lot > Natasha > > > > > Quote Link to comment Share on other sites More sharing options...
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