Re: new to group and need advice

[Guest guest]

Thanks Miche, Those are my main concerns and my reasons for

questioning the diagnosis. I am convinced we need a second opinion.

Leila

> >But, in the grand scheme of things, even if you don't necessarily

agree

> >with an ASD diagnosis, I've been told by numerious people that it

is

> >better to accept that diagnosis and move forward with it. I don't

know

> >where you live, but here, kids who get the ASD diagnosis have 2-3

times

> >the access to services as kids with other diagnosises.

> >

> >So from my perspective, if they want to label my son as " martian "

if that

> >get him more services, I'm okay with it. So even though an

austism

> >diagnosis is extremely devastating to hear it can be an important

tool in

> >helping your son. Don't reject it outright. And remember that

even with an

> >ASD diagnosis, he's the same kid today he was a week ago and

you'll love

> >him just the same. But now he has access to services to help him

be the

> >kid that he has the potential to be.

> >

> >:-)Tera

>

> I agree and disagree. An autism diagnosis can open the doors to

therapies,

> but these therapies are not always the most appropriate and can

even be

> harmful if the diagnosis is not correct. This was our story. My

son made

> NO progress from age 23 mo to 3.11yrs. At that point

we " Gradulated " from

> EI services, I went private for speech. He got the appropriate

diagnosis

> of apraxia and we threw out the autism misdiagnosis and wow! He

started

> making progress! He went from 5 hours of therapies a week to just

two and

> went from NO, and I really mean NO measurable speech and language

progress

> in two years to 6 months improvement in the first 5 months. So if

you do

> embrace the autism diagnosis make sure progress is happening. If

it's not

> keep searching and fighting for something more appropriate. I

feel my son

> lost two years and the autism therapies increased his frustrations

which he

> exibited by getting withdrawn and depressed.

>

> Miche

>

[Guest guest]

Thanks Miche, Those are my main concerns and my reasons for

questioning the diagnosis. I am convinced we need a second opinion.

Leila

> >But, in the grand scheme of things, even if you don't necessarily

agree

> >with an ASD diagnosis, I've been told by numerious people that it

is

> >better to accept that diagnosis and move forward with it. I don't

know

> >where you live, but here, kids who get the ASD diagnosis have 2-3

times

> >the access to services as kids with other diagnosises.

> >

> >So from my perspective, if they want to label my son as " martian "

if that

> >get him more services, I'm okay with it. So even though an

austism

> >diagnosis is extremely devastating to hear it can be an important

tool in

> >helping your son. Don't reject it outright. And remember that

even with an

> >ASD diagnosis, he's the same kid today he was a week ago and

you'll love

> >him just the same. But now he has access to services to help him

be the

> >kid that he has the potential to be.

> >

> >:-)Tera

>

> I agree and disagree. An autism diagnosis can open the doors to

therapies,

> but these therapies are not always the most appropriate and can

even be

> harmful if the diagnosis is not correct. This was our story. My

son made

> NO progress from age 23 mo to 3.11yrs. At that point

we " Gradulated " from

> EI services, I went private for speech. He got the appropriate

diagnosis

> of apraxia and we threw out the autism misdiagnosis and wow! He

started

> making progress! He went from 5 hours of therapies a week to just

two and

> went from NO, and I really mean NO measurable speech and language

progress

> in two years to 6 months improvement in the first 5 months. So if

you do

> embrace the autism diagnosis make sure progress is happening. If

it's not

> keep searching and fighting for something more appropriate. I

feel my son

> lost two years and the autism therapies increased his frustrations

which he

> exibited by getting withdrawn and depressed.

>

> Miche

>

[Guest guest]

A child who does not understand social norms (e.g. personal space) and

who is not able to develop age appropriate relationships with peers

does meet the criteria. Lack of eye contact is not a requirement for

an autism diagnosis. Nor is a lack of interest in social relationships.

>

> > Based on my experience with my daughter (diagnosed with both ASD and

> > apraxia at age 2), the biomedical and therapy approaches that worked

> > to address her autism symptoms also cured her apraxia. Many kids with

> > ASD have digestive issues - there are now at least two well-known

pedi

> > gastroenterologists who work solely with children with autism because

> > of the high frequency of problems. Instead of focusing on whether or

> > not your child has autism, or " just " apraxia, I think it's more

> > valuable to focus on learning about what has worked for children with

> > ASD and seeing if it could help your kid. I don't know how many

of you

> > have done nutritional analysis (and organic acids) and immune

function

> > testing on your kids, but I would not be surprised to see a lot of

> > overlap in medical issues with autism and apraxia.

> >

> > I guess I'm starting to sound like a broken record, but lack of

> > affection and lack of eye contact are NOT diagnostic criteria for

> > autism or PDD. My son with ASD is one of the most affectionate,

loving

> > children I have ever known. He just has a very loving nature. He is

> > also very interested in playing with other children - he is not

> > withdrawn socially (though he doesn't always interact appropriately).

> > And he also has ASD.

> >

> >

>

[Guest guest]

Thanks Miche, Those are my main concerns and my reasons for

questioning the diagnosis. I am convinced we need a second opinion.

Leila

> >But, in the grand scheme of things, even if you don't necessarily

agree

> >with an ASD diagnosis, I've been told by numerious people that it

is

> >better to accept that diagnosis and move forward with it. I don't

know

> >where you live, but here, kids who get the ASD diagnosis have 2-3

times

> >the access to services as kids with other diagnosises.

> >

> >So from my perspective, if they want to label my son as " martian "

if that

> >get him more services, I'm okay with it. So even though an

austism

> >diagnosis is extremely devastating to hear it can be an important

tool in

> >helping your son. Don't reject it outright. And remember that

even with an

> >ASD diagnosis, he's the same kid today he was a week ago and

you'll love

> >him just the same. But now he has access to services to help him

be the

> >kid that he has the potential to be.

> >

> >:-)Tera

>

> I agree and disagree. An autism diagnosis can open the doors to

therapies,

> but these therapies are not always the most appropriate and can

even be

> harmful if the diagnosis is not correct. This was our story. My

son made

> NO progress from age 23 mo to 3.11yrs. At that point

we " Gradulated " from

> EI services, I went private for speech. He got the appropriate

diagnosis

> of apraxia and we threw out the autism misdiagnosis and wow! He

started

> making progress! He went from 5 hours of therapies a week to just

two and

> went from NO, and I really mean NO measurable speech and language

progress

> in two years to 6 months improvement in the first 5 months. So if

you do

> embrace the autism diagnosis make sure progress is happening. If

it's not

> keep searching and fighting for something more appropriate. I

feel my son

> lost two years and the autism therapies increased his frustrations

which he

> exibited by getting withdrawn and depressed.

>

> Miche

>

[Guest guest]

Thanks Miche, Those are my main concerns and my reasons for

questioning the diagnosis. I am convinced we need a second opinion.

Leila

> >But, in the grand scheme of things, even if you don't necessarily

agree

> >with an ASD diagnosis, I've been told by numerious people that it

is

> >better to accept that diagnosis and move forward with it. I don't

know

> >where you live, but here, kids who get the ASD diagnosis have 2-3

times

> >the access to services as kids with other diagnosises.

> >

> >So from my perspective, if they want to label my son as " martian "

if that

> >get him more services, I'm okay with it. So even though an

austism

> >diagnosis is extremely devastating to hear it can be an important

tool in

> >helping your son. Don't reject it outright. And remember that

even with an

> >ASD diagnosis, he's the same kid today he was a week ago and

you'll love

> >him just the same. But now he has access to services to help him

be the

> >kid that he has the potential to be.

> >

> >:-)Tera

>

> I agree and disagree. An autism diagnosis can open the doors to

therapies,

> but these therapies are not always the most appropriate and can

even be

> harmful if the diagnosis is not correct. This was our story. My

son made

> NO progress from age 23 mo to 3.11yrs. At that point

we " Gradulated " from

> EI services, I went private for speech. He got the appropriate

diagnosis

> of apraxia and we threw out the autism misdiagnosis and wow! He

started

> making progress! He went from 5 hours of therapies a week to just

two and

> went from NO, and I really mean NO measurable speech and language

progress

> in two years to 6 months improvement in the first 5 months. So if

you do

> embrace the autism diagnosis make sure progress is happening. If

it's not

> keep searching and fighting for something more appropriate. I

feel my son

> lost two years and the autism therapies increased his frustrations

which he

> exibited by getting withdrawn and depressed.

>

> Miche

>

[Guest guest]

A child who does not understand social norms (e.g. personal space) and

who is not able to develop age appropriate relationships with peers

does meet the criteria. Lack of eye contact is not a requirement for

an autism diagnosis. Nor is a lack of interest in social relationships.

>

> > Based on my experience with my daughter (diagnosed with both ASD and

> > apraxia at age 2), the biomedical and therapy approaches that worked

> > to address her autism symptoms also cured her apraxia. Many kids with

> > ASD have digestive issues - there are now at least two well-known

pedi

> > gastroenterologists who work solely with children with autism because

> > of the high frequency of problems. Instead of focusing on whether or

> > not your child has autism, or " just " apraxia, I think it's more

> > valuable to focus on learning about what has worked for children with

> > ASD and seeing if it could help your kid. I don't know how many

of you

> > have done nutritional analysis (and organic acids) and immune

function

> > testing on your kids, but I would not be surprised to see a lot of

> > overlap in medical issues with autism and apraxia.

> >

> > I guess I'm starting to sound like a broken record, but lack of

> > affection and lack of eye contact are NOT diagnostic criteria for

> > autism or PDD. My son with ASD is one of the most affectionate,

loving

> > children I have ever known. He just has a very loving nature. He is

> > also very interested in playing with other children - he is not

> > withdrawn socially (though he doesn't always interact appropriately).

> > And he also has ASD.

> >

> >

>

[Guest guest]

what about prednisone? that would help your

bronchitis too however if you have an infection

(bacterial) the prednisone might not be a good idea

(i.e. at high doses pred lowers your immune system and

can make if harder to fight infection).

30yrs old (diagnosed 15 yrs ago)

--- ladydudet <tish40@...> wrote:

> Hi! My name is Tish. I've had RA since98 diagnosed

> last year. Also

> have

>

psoriasis,sjorgrens,raynauds,hashimotos,fibromyalgia,.

> I have the

> RA everywhere but severe in my feet,spine and

> shoulders. I can't

> tolerate MTX. And Humira worked great until I got

> mono and strep the

> first time. waited 6mo restarted and got pneumonia

> and strep. I have a

> 7 and 9 y/o. And a husband who works in a hospital

> with criminally

> mentally ill.So lots of germs come in my home. We

> have tried

> everything to prevent it. Stripping at the

> door,clothes directly in

> washer, then hands washed and shoes kept out in

> garage. I hurt so bad.

> right now all i take is Darvocet. We haven't been

> able to find a NSAID

> that doesn't upset my stomach after 2 days.With the

> season changing

> here in NW PA my pain is going to get worse. I have

> bronchitis right

> now and I know my rheumy won't let me start the

> humira again he said

> the epstein barr virus(mono) is still very high.This

> has been over a

> year!Does vicodan work or just make you loopy?I

> tried the Lyrica and

> it kept me in the bathroom for 2 days. I'm sorry if

> if i sound like

> I'm wining but i'm 40 years old and I feel 100 and

> there should be

> something that should make the pain bearable. any

> ideas? Thanks,Tish

>

>

________________________________________________________________________________\

____

Catch up on fall's hot new shows on TV. Watch previews, get listings, and

more!

http://tv./collections/3658

[Guest guest]

Sorry to hear that you're hurting, Tish. MTX works for

me in low doses (10mg weekly). At first I had mouth

sores and bruising...then they lowered the dose and it

started to work..Did it make you sick?

I hope they find something for you quickly,

Tish...Maureen

--- ladydudet <tish40@...> wrote:

> Hi! My name is Tish. I've had RA since98 diagnosed

> last year. Also

> have

>

psoriasis,sjorgrens,raynauds,hashimotos,fibromyalgia,.

> I have the

> RA everywhere but severe in my feet,spine and

> shoulders. I can't

> tolerate MTX. And Humira worked great until I got

> mono and strep the

> first time. waited 6mo restarted and got pneumonia

> and strep. I have a

> 7 and 9 y/o. And a husband who works in a hospital

> with criminally

> mentally ill.So lots of germs come in my home. We

> have tried

> everything to prevent it. Stripping at the

> door,clothes directly in

> washer, then hands washed and shoes kept out in

> garage. I hurt so bad.

> right now all i take is Darvocet. We haven't been

> able to find a NSAID

> that doesn't upset my stomach after 2 days.With the

> season changing

> here in NW PA my pain is going to get worse. I have

> bronchitis right

> now and I know my rheumy won't let me start the

> humira again he said

> the epstein barr virus(mono) is still very high.This

> has been over a

> year!Does vicodan work or just make you loopy?I

> tried the Lyrica and

> it kept me in the bathroom for 2 days. I'm sorry if

> if i sound like

> I'm wining but i'm 40 years old and I feel 100 and

> there should be

> something that should make the pain bearable. any

> ideas? Thanks,Tish

>

>

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

[Guest guest]

Dear Tish- Your immune system is effected by the Biologics and DMARDS. Many people are. I think that using hand sanitizer with ethyl alcohol helps alot. I bathe in the stuff. I even put a little under my nose as strange as that seems. Having a hubby who works in that setting and a 7+9 year old means they bring everything home. If its spread by the air you can try a portable (around your neck) air purifier with ozone. People swear by them when traveling on planes, asthma, etc. Wear a mask. The kind they wear for surgery. Have a purifying spray like lysol and spray your hubby/kids clothes when they come in and have them use hand sanitizer right as they come in the house. Just a pump and it dries straight away. I use it for everything now. I wipe down the kitchen and bathroom surfaces and light switches etc. I have been taking Remicade since 01 along with MTX. What about steriod. A very low dose? Ask about abatacept which may be more helpful. I dont believe in giving myself injections but would rather have an IV given once every 8 weeks or so in a medical sanitary setting. I also swear by zicam and zinc lozenges for colds or upper respiratory. You must be suffering terribly. I feel for you. You should treat yourself as if everyone has the bird flu but you. I take a super multi vitamin, and drink huge 32 oz mugs of Hot Water/Honey with equal and OJ. Its a sort of Anti Cold Mimosa and does boost your immune system naturally without causing a worsening of your symptoms. For atleast a little relief ask your doctor for a low dose prednisone. In conjunction with Ibuprofen and Darvocet it should help a little. Talk to your doctor about abatacept as I mentioned or Remicade. Ethyl Alcohol, not Isopropyl Alchohol kills every germ there is. Have additional questions........just email. Yours, Deborah in Maine

On 9/30/07, ladydudet <tish40@...> wrote:

Hi! My name is Tish. I've had RA since98 diagnosed last year. Alsohave psoriasis,sjorgrens,raynauds,hashimotos,fibromyalgia,. I have theRA everywhere but severe in my feet,spine and shoulders. I can't

tolerate MTX. And Humira worked great until I got mono and strep thefirst time. waited 6mo restarted and got pneumonia and strep. I have a7 and 9 y/o. And a husband who works in a hospital with criminallymentally ill.So lots of germs come in my home. We have triedeverything to prevent it. Stripping at the door,clothes directly inwasher, then hands washed and shoes kept out in garage. I hurt so bad.right now all i take is Darvocet. We haven't been able to find a NSAID

that doesn't upset my stomach after 2 days.With the season changinghere in NW PA my pain is going to get worse. I have bronchitis rightnow and I know my rheumy won't let me start the humira again he said

the epstein barr virus(mono) is still very high.This has been over ayear!Does vicodan work or just make you loopy?I tried the Lyrica andit kept me in the bathroom for 2 days. I'm sorry if if i sound like

I'm wining but i'm 40 years old and I feel 100 and there should besomething that should make the pain bearable. any ideas? Thanks,Tish

[Guest guest]

This is warning to those with small children and using hand sanitizer. The hand sanitizer can result in alcohol poisoning. Considering is smells so good and feels so good on the hands there have been a few isolated deaths as well as a few more small children that resulted in ER trips due to hand sanitizer.

The same goes for lysol. I don't think it was meant to be sprayed on a person. Please read the warning labels and cautions on these products when using on skin.

To the poster you immune system is just totally beat down. I would stop any drugs that can further suppress you immune system. All the suggestions are good...I would ask your doc if you can try airborne or other holistic methods to boost your immune system. Most of us with auto-immune disease do not need that....

I know I personally never...hardly never get sick as long as I can stay off certain DMARDs which suppress my immune system too far. See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

i 46 as of oct 3rd i want to say what works for me to controll pain,,its THE ONLY thibn g and its free and availible to me anytime thank GOD!

its called SLEEP and I do sleep ALOT and take 20 mg of prednisone every morning, plus 10 mg of OXY in am and in PM and darvon in between,,iim hooked b ut its BETTER THEN the paIN ~

I am convinced there is no ryme or reason to this disease,,the ONLY thing i can pin down for sure is SLEEP-

thanks debi maddox

http://ihatera.blogspot.com

-----Original Message-----From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ]On Behalf Of ladydudetSent: Sunday, September 30, 2007 12:02 PMRheumatoid Arthritis Subject: new to group and need advice

Hi! My name is Tish. I've had RA since98 diagnosed last year. Alsohave psoriasis,sjorgrens,raynauds,hashimotos,fibromyalgia,. I have theRA everywhere but severe in my feet,spine and shoulders. I can'ttolerate MTX. And Humira worked great until I got mono and strep thefirst time. waited 6mo restarted and got pneumonia and strep. I have a7 and 9 y/o. And a husband who works in a hospital with criminallymentally ill.So lots of germs come in my home. We have triedeverything to prevent it. Stripping at the door,clothes directly inwasher, then hands washed and shoes kept out in garage. I hurt so bad.right now all i take is Darvocet. We haven't been able to find a NSAIDthat doesn't upset my stomach after 2 days.With the season changinghere in NW PA my pain is going to get worse. I have bronchitis rightnow and I know my rheumy won't let me start the humira again he saidthe epstein barr virus(mono) is still very high.This has been over ayear!Does vicodan work or just make you loopy?I tried the Lyrica andit kept me in the bathroom for 2 days. I'm sorry if if i sound likeI'm wining but i'm 40 years old and I feel 100 and there should besomething that should make the pain bearable. any ideas? Thanks,Tish

[Guest guest]

It is a great idea for everyone to wash their hands and if they are feeling ill to not get in close contact with others, but many times we may go to a place that isnt of any value in the fight against germs and disease. Wiping surfaces off periodically that everyone touches and uses is a good thing, There was a lady I used to know that made her family enter the house thru the garage where the washer and dryer were located and they had to strip off their clothes and leave their shoes out there before they could come home. Maybe just a little too extreme? Anyways, my hubby works with sick people all day, uses good habits all day long of washing between patients and keeping his hands out of his own face. I have been on MTX .9cc injections and biological injections for several years, and yes I do them at home..... actually I feel home is better than the doctors office as most of the time illness is spread in confined well populated quarters.

Plus I feel we can all be clean as the doctors offices if we try,now remember the office is clean, not sterile. Justsome thoughts.love and prayers, Deborah Bargad <dbargad@...> wrote: Dear Tish- Your immune system is effected by the Biologics and DMARDS. Many people are. I think that using hand sanitizer with ethyl alcohol helps alot. I bathe in the stuff. I even put a little under my nose as strange as that seems. Having a hubby who works in that setting and a 7+9 year old

means they bring everything home. If its spread by the air you can try a portable (around your neck) air purifier with ozone. People swear by them when traveling on planes, asthma, etc. Wear a mask. The kind they wear for surgery. Have a purifying spray like lysol and spray your hubby/kids clothes when they come in and have them use hand sanitizer right as they come in the house. Just a pump and it dries straight away. I use it for everything now. I wipe down the kitchen and bathroom surfaces and light switches etc. I have been taking Remicade since 01 along with MTX. What about steriod. A very low dose? Ask about abatacept which may be more helpful. I dont believe in giving myself injections but would rather have an IV given once every 8 weeks or so in a medical sanitary setting. I also swear by zicam and zinc lozenges for colds or upper respiratory. You must be suffering

terribly. I feel for you. You should treat yourself as if everyone has the bird flu but you. I take a super multi vitamin, and drink huge 32 oz mugs of Hot Water/Honey with equal and OJ. Its a sort of Anti Cold Mimosa and does boost your immune system naturally without causing a worsening of your symptoms. For atleast a little relief ask your doctor for a low dose prednisone. In conjunction with Ibuprofen and Darvocet it should help a little. Talk to your doctor about abatacept as I mentioned or Remicade. Ethyl Alcohol, not Isopropyl Alchohol kills every germ there is. Have additional questions........just email. Yours, Deborah in Maine On 9/30/07, ladydudet <tish40zoominternet (DOT) net> wrote: Hi! My name is Tish. I've had RA since98 diagnosed last year. Alsohave psoriasis,sjorgrens,raynauds,hashimotos,fibromyalgia,. I have theRA everywhere but severe in my feet,spine and shoulders. I can'ttolerate MTX. And Humira worked great until I got mono and strep thefirst time. waited 6mo restarted and got pneumonia and strep. I have a7 and 9 y/o. And a husband who works in a hospital with criminallymentally ill.So lots of germs come in my home. We have triedeverything to prevent it. Stripping at the door,clothes directly inwasher, then hands washed and shoes kept out in garage. I hurt so bad.right now all i take is Darvocet. We haven't been able to find a NSAID that doesn't upset my stomach after 2 days.With the season changinghere in NW PA my pain is going to get worse. I have bronchitis rightnow and I know my rheumy won't let me start

the humira again he said the epstein barr virus(mono) is still very high.This has been over ayear!Does vicodan work or just make you loopy?I tried the Lyrica andit kept me in the bathroom for 2 days. I'm sorry if if i sound likeI'm wining but i'm 40 years old and I feel 100 and there should besomething that should make the pain bearable. any ideas? Thanks,Tish

Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out.

[Guest guest]

These suggestions are to be used in moderation of course. Ethyl alcohol is used in restaurants to sanitize dishes and glasses and I dont think a 7 or 9 year old should eat the product. Its to be used with supervision. As for spraying, just the clothes, not the person. It can be used to sanitizer surfaces, even the phone. It works for me. I hope my suggestions will be of some use. Yours, Deborah

On 10/2/07, aclavern33@... <aclavern33@...> wrote:

This is warning to those with small children and using hand sanitizer. The hand sanitizer can result in alcohol poisoning. Considering is smells so good and feels so good on the hands there have been a few isolated deaths as well as a few more small children that resulted in ER trips due to hand sanitizer.

The same goes for lysol. I don't think it was meant to be sprayed on a person. Please read the warning labels and cautions on these products when using on skin.

To the poster you immune system is just totally beat down. I would stop any drugs that can further suppress you immune system. All the suggestions are good...I would ask your doc if you can try airborne or other holistic methods to boost your immune system. Most of us with auto-immune disease do not need that....

I know I personally never...hardly never get sick as long as I can stay off certain DMARDs which suppress my immune system too far.

See what's new at AOL.com and

Make AOL Your Homepage.

[Guest guest]

Hi Tish, I am new here but had some of the same problems. I can't take any of the "new "drugs because I get infection so easy. My Rheumy has put me on Low dose Pred, Zantac (for all the other meds tummy side effects) and Bactrim (antibiotic) that I take 3 times a week to help fight off bugs. I also take MTX and a few other. Whenever I do start to get bronchitis I just stop my MTX for a week until it starts to clear up. I spent 3-4 days every 3 weeks in the hosp with pneum and/or bronchitis one cold/flu season so he tries to prevent as much as possible. A little about me - I have had RA diagnosed since 2001, I am 39 mom to 1 child, just recently found out I am getting divorced, live in NE OH, have tried Remicade (allergic reaction) and Enbrel (damaged my lungs) have been off work since 2001 on long term disability, I have an almost 11 y/o with her own severe health issues and just had carpal tunnel surgery on

my right hand, left one will be done on 22nd. But, I treat everyday as a blessing because it doesn't change anything if I feel sorry for myself. I am still able to get around, I take Viacodin to dull some pain in my movements when they weather starts to change but other than that I am holding my ground. Dianeladydudet <tish40@...> wrote: Hi! My name is Tish. I've had RA since98 diagnosed last year. Alsohave psoriasis,sjorgrens,raynauds,hashimotos,fibromyalgia,. I

have theRA everywhere but severe in my feet,spine and shoulders. I can'ttolerate MTX. And Humira worked great until I got mono and strep thefirst time. waited 6mo restarted and got pneumonia and strep. I have a7 and 9 y/o. And a husband who works in a hospital with criminallymentally ill.So lots of germs come in my home. We have triedeverything to prevent it. Stripping at the door,clothes directly inwasher, then hands washed and shoes kept out in garage. I hurt so bad.right now all i take is Darvocet. We haven't been able to find a NSAIDthat doesn't upset my stomach after 2 days.With the season changinghere in NW PA my pain is going to get worse. I have bronchitis rightnow and I know my rheumy won't let me start the humira again he saidthe epstein barr virus(mono) is still very high.This has been over ayear!Does vicodan work or just make you loopy?I tried the Lyrica andit kept me in the bathroom for 2 days. I'm sorry

if if i sound likeI'm wining but i'm 40 years old and I feel 100 and there should besomething that should make the pain bearable. any ideas? Thanks,Tish

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Search.

[Guest guest]

I agree with the sleep part. I am so tired most of the time. I take naps when I can.

Vicki

----- Original Message ----From: debra maddox <debramaddox@...>Rheumatoid Arthritis Sent: Tuesday, October 2, 2007 8:00:34 AMSubject: RE: new to group and need advice

i 46 as of oct 3rd i want to say what works for me to controll pain,,its THE ONLY thibn g and its free and availible to me anytime thank GOD!

its called SLEEP and I do sleep ALOT and take 20 mg of prednisone every morning, plus 10 mg of OXY in am and in PM and darvon in between,,iim hooked b ut its BETTER THEN the paIN ~

I am convinced there is no ryme or reason to this disease,,the ONLY thing i can pin down for sure is SLEEP-

thanks debi maddox

http://ihatera. blogspot. com

-----Original Message-----From: rheumatoid_arthriti sgroups (DOT) com [mailto:rheumatoid_ arthritis]On Behalf Of ladydudetSent: Sunday, September 30, 2007 12:02 PMrheumatoid_arthriti sgroups (DOT) comSubject: [rheumatoid_ arthritis] new to group and need advice

Hi! My name is Tish. I've had RA since98 diagnosed last year. Alsohave psoriasis,sjorgrens ,raynauds, hashimotos, fibromyalgia, . I have theRA everywhere but severe in my feet,spine and shoulders. I can'ttolerate MTX. And Humira worked great until I got mono and strep thefirst time. waited 6mo restarted and got pneumonia and strep. I have a7 and 9 y/o. And a husband who works in a hospital with criminallymentally ill.So lots of germs come in my home. We have triedeverything to prevent it. Stripping at the door,clothes directly inwasher, then hands washed and shoes kept out in garage. I hurt so bad.right now all i take is Darvocet. We haven't been able to find a NSAIDthat doesn't upset my stomach after 2 days.With the season changinghere in NW PA my pain is going to get worse. I have bronchitis rightnow and I know my rheumy won't let me start the humira again he saidthe epstein barr virus(mono) is

still very high.This has been over ayear!Does vicodan work or just make you loopy?I tried the Lyrica andit kept me in the bathroom for 2 days. I'm sorry if if i sound likeI'm wining but i'm 40 years old and I feel 100 and there should besomething that should make the pain bearable. any ideas? Thanks,Tish

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