New to group

[Guest guest]

Hi, my name is Angi. I had a baby in January this year and in June was

instantly crippled and diagnosed with RA. I have had to have full time

in-home care for my baby, he is big, 29 lbs at almost 11 mon. I have

also torn both my shoulders. Which is when the RA hit.

I was so devasted when I found out that I had RA and realized that my

life would be forever changed. That I wouldn't be able to care for my

miracle baby, play on the floor with him, do the simplest things.

The rheumatologist wanted to put me on methatrexate and

hydroquinoline, I asked how many people had been cured with this

treatment and he said none. I was shocked, if none were cured then why

didn't they use something else! Then he told me I would only be able

to tolerate for a time and have to switch to something else. When I

read the pamplets I was shocked that the side effects were worse than

the disease and wondered why anyone would take such poison, how it had

even been approved for use!

I found information on Dr. McPherson Brown, he was a

rheumatologist in Arlington, VA, (died in 1988) but many still carry

on his work. He proposed that RA is caused by micoplasmas and uses

antibiotic therapy to treat (as a dmard) and has cured 10's of

thousands. I have been on this therapy since August and am able to

care for myself and the baby. It has been nothing short of a miracle!

I am down to naproxin 1x a day (off other pain meds and naproxin cut

in half), there are days when I feel so good I forget the naproxin all

together. That is a far cry from where I started!

If anyone wants info on this, there is a book that explains the

therory, the world of Rheumatology and the treatment called The New

Arthritis Breakthrough, but the most up to date info on the treatment

is at www.roadback.org. I printed the protical and took to my D.O.

which started me immediatly, I felt a difference after 2 weeks!

Everyday I seem to get better, I can get down on the floor and open

jars again, among other things!

I pray daily, thank God daily and have hope! Hope is a powerful thing!

I hope this info is helpful to someone!

Angi

[Guest guest]

I do think antibiotic therapy has helped

many people but I question the word “cured” even for that. Also

from everything I have seen antibiotic therapy does not work for everyone.

Many rheumatologists do not believe in it (even though the American College

of Rheumatology recognizes it as an acceptable RA medication). We take the

strong medications not to be cured but to permit us to enjoy a better quality

of life and to avoid permanent crippling and being in a wheel chair. I am

doing well on other medications (Methotrexate and Remicade) and don’t

plan to change as long as they are working. If I were starting out again with

what I know now I would have started with Methotrexate and Minocycline and if

they didn’t work within a few months I would add Remicade. Then as

things got better I would cut back on some medications to try to avoid overmedication

but at the same time trying to avoid permanent crippling. Each of us has to

make our own decisions and balance side effects of treatments with likelihood

of crippling. I have chosen to pay more attention to avoiding crippling. I

hope you are happy with whatever choice you make. God bless.

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of maapitts

Sent: Sunday, December 03, 2006

7:54 PM

Rheumatoid Arthritis

Subject:

New to group

Hi, my name is Angi. I had a baby in January this year

and in June was

instantly crippled and diagnosed with RA. I have had to have full time

in-home care for my baby, he is big, 29 lbs at almost 11 mon. I have

also torn both my shoulders. Which is when the RA hit.

I was so devasted when I found out that I had RA and realized that my

life would be forever changed. That I wouldn't be able to care for my

miracle baby, play on the floor with him, do the simplest things.

The rheumatologist wanted to put me on methatrexate and

hydroquinoline, I asked how many people had been cured with this

treatment and he said none. I was shocked, if none were cured then why

didn't they use something else! Then he told me I would only be able

to tolerate for a time and have to switch to something else. When I

read the pamplets I was shocked that the side effects were worse than

the disease and wondered why anyone would take such poison, how it had

even been approved for use!

I found information on Dr. McPherson Brown, he was a

rheumatologist in Arlington,

VA, (died in 1988) but many still

carry

on his work. He proposed that RA is caused by micoplasmas and uses

antibiotic therapy to treat (as a dmard) and has cured 10's of

thousands. I have been on this therapy since August and am able to

care for myself and the baby. It has been nothing short of a miracle!

I am down to naproxin 1x a day (off other pain meds and naproxin cut

in half), there are days when I feel so good I forget the naproxin all

together. That is a far cry from where I started!

If anyone wants info on this, there is a book that explains the

therory, the world of Rheumatology and the treatment called The New

Arthritis Breakthrough, but the most up to date info on the treatment

is at www.roadback.org. I printed the protical and took to my D.O.

which started me immediatly, I felt a difference after 2 weeks!

Everyday I seem to get better, I can get down on the floor and open

jars again, among other things!

I pray daily, thank God daily and have hope! Hope is a powerful thing!

I hope this info is helpful to someone!

Angi

[Guest guest]

" maapitts " <maapitts@...> wrote:

***Hi, my name is Angi. I had a baby in January this year and in

June was instantly crippled and diagnosed with RA. I have had to

have full time in-home care for my baby, he is big, 29 lbs at almost

11 mon.***

My dd was about 6 months old when I started having serve RA

symptons. She was 8 months old when I was dx with RA. It was painful

and my dh used to have to make her bottles before work because I

couldn't screw on the tops. He only had to stay home once, though

there were a couple of times I was afraid I'd have to call him to

come home. It sounds like you had a much hard time than I did.

Sorry, for you pain at a time when you should have been enjoying

your new baby.

Angie wrote:

***The rheumatologist wanted to put me on methatrexate and

hydroquinoline, I asked how many people had been cured with this

treatment and he said none. I was shocked, if none were cured then

why didn't they use something else! Then he told me I would only be

able to tolerate for a time and have to switch to something else.

When I read the pamplets I was shocked that the side effects were

worse than the disease and wondered why anyone would take such

poison, how it had even been approved for use!***

I took those drugs and they were the miracle I needed. I was able to

take care of my baby and do most of the other things in my life I

needed to do. I do have pain and a swollen finger or ankle

occastionally. Overall, I'm doing better than I had ever hoped. I

don't have as much strength in my wrists and I can't do excercies

that involve jumping. But, I can ride my bike and walk. I'm not sure

what side effects you are referring to, but I haven't had any bad

side effects so far. It's been 3 years since I've been taking

Methotrexate. I used to take one tablet of Hydoxychloroquine twice a

day, but I've been weaning myself off of it since last January. I

now only take 1 tablet every other day. Hopefully, I won't be taking

any in a few months.

Angie wrote:

***I found information on Dr. McPherson Brown, he was a

rheumatologist in Arlington, VA, (died in 1988) but many still carry

on his work. He proposed that RA is caused by micoplasmas and uses

antibiotic therapy to treat (as a dmard) and has cured 10's of

thousands. I have been on this therapy since August and am able to

care for myself and the baby. It has been nothing short of a

miracle! I am down to naproxin 1x a day (off other pain meds and

naproxin cut in half), there are days when I feel so good I forget

the naproxin all together. That is a far cry from where I started!***

I'm glad to hear you've found something that works for you. IMO,

different things work for different people. We all need to find out

works for our own bodies.

Jean