Plaquenil

[Guest guest]

I take Plaquenil and see my ophthalmologist about every six months. He told

me that he's never seen a case where Plaquenil did any damage except once -

and that was with a man who was on very, very high does of Plaquenil to

treat malaria.

[Guest guest]

In a message dated 6/3/06 11:40:44 AM, motown_4@... writes:

> I went to my opthamologist this week and as soon as I

> sat in her chair, I was asked if I was taking

> Plaquenil.

>

I don't think this " hysteria " is warrented, according to my rheumy's

latest national conference of rheumatologists. They took a poll and found

virtually no one with this side effect, but they have to have you see any eye

doctor

every six months, just in case.

Need some statistics...

Pris

[Guest guest]

Mo, I'm sorry to hear this. What was going on with your eyes previous to

Plaquenil?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Plaquenil

>I went to my opthamologist this week and as soon as I

> sat in her chair, I was asked if I was taking

> Plaquenil. There was real concern in her voice. They

> are seeing such high evidence of eye related problems

> that they even have a diagnosis code on their

> paperwork.

>

> I refused the Plaquenil when my rhuemy asked me to

> take it and boy, did I get yelled at.

>

> I have eyes that are already hurt and I wasn't willing

> to put them on the line, because of my RA.

>

> As far as rheumys go, if they take you off all meds

> (in my opinion) it's time to go back to your family

> doctor and tell him/her you hurt.

>

> It's a known fact that there are groups of people that

> hurt and if the doctor (your GP) can't control the

> disease(hense the rheumy) your GP can control the

> symptoms.

>

> I am so lucky to have a GP that has records on me that

> go back 7 years before I got RA.

> If I am in pain, he helps. Whereas my rhuemy says...if

> you would just take prednisone, you would feel better.

> Since I am one of the group that can't do steroids ie:

> birth control, prednisone, etc

> My rhuemy says I am on my own with the pain issue.

>

> I am so glaD she is wrong. I am not alone , I have a

> GP :-)

>

> Just something to think about.

> Mo

[Guest guest]

I have had no eye problems with Plaquenil, in fact the only side effects are

" gas " if I take it on an empty stomach. I do go every 6 months for a visual

field test, and they need to know if you are taking plaquenil so they give

you the proper tests. My results have actually gotten better over the

years! My mom takes it also for Lupus and hasn’t had problems. My Rheumy

felt that Plaquenil was the best option for me because I want to have

children in the next few years and he felt that Methotrexate was too Risky.

(I should point out that I have a mild case of RA). But that doesn't mean

its right for everyone of course.

Re: rheumy visit ((()))

Thanks , I need somebody to help me understand all this, T

> If I didn't think it could get any worse, it did! I went to the

> rheumy today, and we talked about meds. The Plaquenil hasn't been

> working, so he took me off it. Took me completely off RA meds for

> three months. He wants to monitor my inflammation, does that make

> sense? He also lowered my Lortab saying its habit forming. So, not

> sure what to do. The only way for me to keep going is the meds, so

I

> am not sure how my life will go for the next three months. Tawny

>

>

>

>

>

>

>

[Guest guest]

I've taken Plaquenil for 6 years now an it really helps.

I have Rheumatoid Arthristis.

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