Jump to content
RemedySpot.com
Sign in to follow this  
Guest guest

post treatment blues

Rate this topic

Recommended Posts

Guest guest

Willem

Are you just joking about erratic behaviour? Or do you actually do erratic

things? Just curious. You don't have to answer this if it makes you

uncomfortable....I know it's a rather personal question....but I'm a nosey bitch

LOL. My friend from Holland phoned me yesterday and we yakked for an

hour....thanks for answering her email, that's real sweet of you. ;-)

Carol

Re: post treatment blues

In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!,

alleypat@...

writes:

> www.hepatitisneighborhood.com

I searched for cryo and couldn't find anything. I guess you need the

whole

word to locate the meaning. Just tell me in your own words what it is.

Thank you, Meghan

Share this post


Link to post
Share on other sites
Guest guest

HI.No I.am not erratic.I.am just trying to describe my feelings after TX and

waiting for the nxt PCR which is crucial.No,the problem is,if it.s a

problem,that I hve too much energy and don.t know how to channel it in a proper

way.After almost seven years of being constantly on treatment and trials for the

first time I.am " clean " ,apart from MSM.My personality has changed and I blame it

on the TX.By erratic I ment(I had to look it up in a dictionary and now I know

that it has a bad connotation).that I want to do many things at the same time,I

thought that.s what they call erratic.It.s also difficult for me to express

myself in English.I.am a pratical person who likes to hve things done and

usually I.am good at gettings things done,don.t like to give up.I never accepted

my illness,drove my Doc. crazy and threatened the national insurance which a

court-case when they made trouble paying for the third time TX which the

argument that it was a waste of money since I was a non-responder.My illness

became a way of life so to speak.I.am like a non now who misses Jesus.There.s a

danger in this and I see this also in the group this pre-occupation.No I don.t

need a shrink because they can.t play the post treatment blues.To think of

it, " post treatment blues " " what a great song it would make.Sorry for the long

posting but there.s always the delete button.Willem.

Re: post treatment blues

In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!,

alleypat@...

writes:

> www.hepatitisneighborhood.com

I searched for cryo and couldn't find anything. I guess you need the

whole

word to locate the meaning. Just tell me in your own words what it is.

Thank you, Meghan

Share this post


Link to post
Share on other sites
Guest guest

HI.Call a plumber,PUT YOURSELF TOGETHER.Willem.

Re: post treatment blues

In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!,

alleypat@...

writes:

> www.hepatitisneighborhood.com

I searched for cryo and couldn't find anything. I guess you need the

whole

word to locate the meaning. Just tell me in your own words what it is.

Thank you, Meghan

Share this post


Link to post
Share on other sites
Guest guest

Ohhhhhh I understand now Willem. And I know what you mean....when I tried the

standard combo after a few shots of it I was so erratic that I felt like I shot

up speed. Severe anxiety....fidgety, couldn't sit still, couldn't think,

couldn't play a game on the computer....I didn't know what to do....all I knew

is that I would die to get rid of the speedy feeling. When I found myself in

the bathroom holding a razor blade...let's just say I stopped treatment right

then and there. I'm usually a very calm tranquil person. My heart rate was so

fast I couldn't count it...and to this day my heart beats too fast. I'm hoping

the peg treatment won't have such severe side effects and I will have to get on

some serious sedatives for the next go around.

Now with you having to wait for the results I sure do understand how anxious you

are....and you can't do anything about it but wait. I will be praying for good

results, I know you have to have beat it this time around....after so many years

on interferon, my gawd....I'd be crazy...errrr, crazier. Hang in for the good

news buddy, for I'm sure it will be good news.

Hugggs

Carol

Re: post treatment blues

In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!,

alleypat@...

writes:

> www.hepatitisneighborhood.com

I searched for cryo and couldn't find anything. I guess you need the

whole

word to locate the meaning. Just tell me in your own words what it

is.

Thank you, Meghan

Share this post


Link to post
Share on other sites
Guest guest

HI Meghan, got my results today...basically still fine..150. Slightly up

from the last one which was 90, but that's pretty unbelieveable considering I

was over 5 million when I went on treatment. Guess this virus is a

slooooooooooow grower!( Thank God!) As far as the pain thing goes, I had

alot of pain b/4 too..but picked up afew more joints with treatment. I have

been living with chronic pain for so long now that I think I don't pay too

much attention to it anymore unless something new comes up or something

worsens. I thank God I'm not living with the nausea and debilitating

fatigue of treatment. That, I couldn't stand. I guess you have to think of

it this way; treatment helped your liver and by doing that, it gave us a new

lease. Hang in there. Don't despair. luv , gee

Share this post


Link to post
Share on other sites
Guest guest

HI Meghan, got my results today...basically still fine..150. Slightly up

from the last one which was 90, but that's pretty unbelieveable considering I

was over 5 million when I went on treatment. Guess this virus is a

slooooooooooow grower!( Thank God!) As far as the pain thing goes, I had

alot of pain b/4 too..but picked up afew more joints with treatment. I have

been living with chronic pain for so long now that I think I don't pay too

much attention to it anymore unless something new comes up or something

worsens. I thank God I'm not living with the nausea and debilitating

fatigue of treatment. That, I couldn't stand. I guess you have to think of

it this way; treatment helped your liver and by doing that, it gave us a new

lease. Hang in there. Don't despair. luv , gee

Share this post


Link to post
Share on other sites
Guest guest

HI Meghan, got my results today...basically still fine..150. Slightly up

from the last one which was 90, but that's pretty unbelieveable considering I

was over 5 million when I went on treatment. Guess this virus is a

slooooooooooow grower!( Thank God!) As far as the pain thing goes, I had

alot of pain b/4 too..but picked up afew more joints with treatment. I have

been living with chronic pain for so long now that I think I don't pay too

much attention to it anymore unless something new comes up or something

worsens. I thank God I'm not living with the nausea and debilitating

fatigue of treatment. That, I couldn't stand. I guess you have to think of

it this way; treatment helped your liver and by doing that, it gave us a new

lease. Hang in there. Don't despair. luv , gee

Share this post


Link to post
Share on other sites
Guest guest

HI Meghan, got my results today...basically still fine..150. Slightly up

from the last one which was 90, but that's pretty unbelieveable considering I

was over 5 million when I went on treatment. Guess this virus is a

slooooooooooow grower!( Thank God!) As far as the pain thing goes, I had

alot of pain b/4 too..but picked up afew more joints with treatment. I have

been living with chronic pain for so long now that I think I don't pay too

much attention to it anymore unless something new comes up or something

worsens. I thank God I'm not living with the nausea and debilitating

fatigue of treatment. That, I couldn't stand. I guess you have to think of

it this way; treatment helped your liver and by doing that, it gave us a new

lease. Hang in there. Don't despair. luv , gee

Share this post


Link to post
Share on other sites
Guest guest

Dear Meghan, guess we have alot more in common. We also lost our oldest son

in August 1995. My husband has just had his book published (Oct.) detailing

's too brief life, illness and death. HE was 19 yrs. old. I was

diagnosed the following June. I don't think I have to put down any words

here...because there are none to describe watching your child die. My heart

is with you. I also am praying a med change will help your headaches. Much

love, gee

Share this post


Link to post
Share on other sites
Guest guest

Dear Meghan, guess we have alot more in common. We also lost our oldest son

in August 1995. My husband has just had his book published (Oct.) detailing

's too brief life, illness and death. HE was 19 yrs. old. I was

diagnosed the following June. I don't think I have to put down any words

here...because there are none to describe watching your child die. My heart

is with you. I also am praying a med change will help your headaches. Much

love, gee

Share this post


Link to post
Share on other sites
Guest guest

Hey Gail, wow!!! 6 grams???? Think I'd be crawling on the floor!!! Your

paper sounds great. Will be interested to read it. Yes, I'm a memeber of

Hep-Central...funny how u get to kow folks from sites. Ya know, I totally

agree with you regarding our pursuit of apin-free life. I never worry too

much anymore about anything...except, of course, my kids...but that goes

without saying. I look at some of my exteneded family members who have

defiitely 'made it' financially and I see alot of sadness and drama. They

have dedicated their lives to the dollar and forsaken all happiness. There

is so much more..and all the $$$$$$ in the world can't give you peace. ..and

for me that's a most important thing. luv, gee

Share this post


Link to post
Share on other sites
Guest guest

Hey Gail, wow!!! 6 grams???? Think I'd be crawling on the floor!!! Your

paper sounds great. Will be interested to read it. Yes, I'm a memeber of

Hep-Central...funny how u get to kow folks from sites. Ya know, I totally

agree with you regarding our pursuit of apin-free life. I never worry too

much anymore about anything...except, of course, my kids...but that goes

without saying. I look at some of my exteneded family members who have

defiitely 'made it' financially and I see alot of sadness and drama. They

have dedicated their lives to the dollar and forsaken all happiness. There

is so much more..and all the $$$$$$ in the world can't give you peace. ..and

for me that's a most important thing. luv, gee

Share this post


Link to post
Share on other sites
Guest guest

Meghan, the sides of neurontin were similar to what you're experiencing..also

dizziness and nausea. I also was taking 1200 mgs. I had to increase slowly

and never quite got over the sides. They did diminish with time, though.

Hopefully, it will help. gee

Share this post


Link to post
Share on other sites
Guest guest

Meghan, the sides of neurontin were similar to what you're experiencing..also

dizziness and nausea. I also was taking 1200 mgs. I had to increase slowly

and never quite got over the sides. They did diminish with time, though.

Hopefully, it will help. gee

Share this post


Link to post
Share on other sites
Guest guest

Dear Gee,

My son died on November 20, 1995. It was suicide. Iwas diagnosed

three years later and my husband went through a battle with rectal cancer the

following year. He is fine now. Thank God. I would like very much to read

your husband's book. Tell me the name, and I will buy it. I took the

neurontin last night and again today at noon. It seems to be helping, aside

from a brain foggy feeling, but it is better than severe pain. It is more of

a feeling of pressure instead of pain. Meghan

Share this post


Link to post
Share on other sites
Guest guest

Dear Gee,

My son died on November 20, 1995. It was suicide. Iwas diagnosed

three years later and my husband went through a battle with rectal cancer the

following year. He is fine now. Thank God. I would like very much to read

your husband's book. Tell me the name, and I will buy it. I took the

neurontin last night and again today at noon. It seems to be helping, aside

from a brain foggy feeling, but it is better than severe pain. It is more of

a feeling of pressure instead of pain. Meghan

Share this post


Link to post
Share on other sites
Guest guest

Oh Meghan, I am just so so sorry. Our son, , (my stepson) died after 2

failed liver transplants and 11 other surgeries. His liver disease stemmed

from sclerosing cholangitis. The name of the book is, " The Book of , A

Story of Youth, Illness, and Medicine " by Rowe. You can find it on

Amazon.com and read some reviews etc. Also if you type in 's name

( Harlan-Rowe) on an internet search, it will bring up some papers

has written about . The book is also on & Noble's

website. If you'd ever like to chat on eon one about your son, you can email

me at Mzgee1@.... Well, it is time for me to go upstairs and get to bed.

School starts back tomorrow. Still have a daughter in highschool and a son

in his 1st yr of college. He doesn't go back til the 22nd. The weather

folks are saying icy rain for tonite..so the kids might catch a delay in the

morning. Not looking forward to the 6:30 am routine! God bless, gee

Share this post


Link to post
Share on other sites
Guest guest

Oh Meghan, I am just so so sorry. Our son, , (my stepson) died after 2

failed liver transplants and 11 other surgeries. His liver disease stemmed

from sclerosing cholangitis. The name of the book is, " The Book of , A

Story of Youth, Illness, and Medicine " by Rowe. You can find it on

Amazon.com and read some reviews etc. Also if you type in 's name

( Harlan-Rowe) on an internet search, it will bring up some papers

has written about . The book is also on & Noble's

website. If you'd ever like to chat on eon one about your son, you can email

me at Mzgee1@.... Well, it is time for me to go upstairs and get to bed.

School starts back tomorrow. Still have a daughter in highschool and a son

in his 1st yr of college. He doesn't go back til the 22nd. The weather

folks are saying icy rain for tonite..so the kids might catch a delay in the

morning. Not looking forward to the 6:30 am routine! God bless, gee

Share this post


Link to post
Share on other sites
Guest guest

HI.Try,half an hour before you go to sleep a luke warm solid glass of Portugeese

Port-wine and a good old fashion joint.You.ll sleep like a log.Willem.

Re: post treatment blues

From: Sita@...

Gail,

What side effects did you have from neurontin? I took the first one

last night and slept like I was unconsious. When I woke up I was really

foggy, a drugged feeling I don't like. It is getting a little better but

still far from normal, and I only took 300 mg. My vision is a little blurry

at times. I am supposed to take twice that much each day.

-

Yes, Neurontin does knock you out! There is a 100mg dose-that is what my

doctor started me off on-100mg two times, then three times daily, then I

graduated to 300mg doses. The early side effects were dizziness, blurry

vision (as if I don't already have that!), sleepiness, and felt like I had

to pee all the time?!?! Those I got over after a couple of weeks. The

sides that made me stop (plus the fact that I was taking 800mg three times

daily and starting to have breakthrough pain-which was a sign that I needed

to up the dose again) were terrible dry eye/mouth, weight gain, hair loss,

and then the more 'rare' ones of inability to reach orgasim?!?!, and

bladder/bowel problems-not incontinence-the opposite-it seems the electrical

impulse to the muscles to evacuate were being blocked by the neurontin?!?!

But, some people feel that Neurontin is a blessing-you can only stick it out

for a while and see how you yourself will react to it. As for the cryo-it

was not caused by treatment-it actually was the symptom that caused me to

see a doc to find out what was wrong with me and that is how I found out I

have HCV. I did two rounds of treatment, but am a relapser. The only

permanent problem from treatment is the dry eye-I have gotten it to a

tolerable level. But treatment does rev up the immune system-so if a person

has any latent immune problems or low level ones lurking in the background,

they will most definitely be aggravated by treatment-maybe die down again

after treatment, maybe not. Many docs don't know that yet-they only know

what they are told by the drug company reps that visits/harrasses them

during the day. Keep your head up-you will improve.

gail

Share this post


Link to post
Share on other sites
Guest guest

HI.Try,half an hour before you go to sleep a luke warm solid glass of Portugeese

Port-wine and a good old fashion joint.You.ll sleep like a log.Willem.

Re: post treatment blues

From: Sita@...

Gail,

What side effects did you have from neurontin? I took the first one

last night and slept like I was unconsious. When I woke up I was really

foggy, a drugged feeling I don't like. It is getting a little better but

still far from normal, and I only took 300 mg. My vision is a little blurry

at times. I am supposed to take twice that much each day.

-

Yes, Neurontin does knock you out! There is a 100mg dose-that is what my

doctor started me off on-100mg two times, then three times daily, then I

graduated to 300mg doses. The early side effects were dizziness, blurry

vision (as if I don't already have that!), sleepiness, and felt like I had

to pee all the time?!?! Those I got over after a couple of weeks. The

sides that made me stop (plus the fact that I was taking 800mg three times

daily and starting to have breakthrough pain-which was a sign that I needed

to up the dose again) were terrible dry eye/mouth, weight gain, hair loss,

and then the more 'rare' ones of inability to reach orgasim?!?!, and

bladder/bowel problems-not incontinence-the opposite-it seems the electrical

impulse to the muscles to evacuate were being blocked by the neurontin?!?!

But, some people feel that Neurontin is a blessing-you can only stick it out

for a while and see how you yourself will react to it. As for the cryo-it

was not caused by treatment-it actually was the symptom that caused me to

see a doc to find out what was wrong with me and that is how I found out I

have HCV. I did two rounds of treatment, but am a relapser. The only

permanent problem from treatment is the dry eye-I have gotten it to a

tolerable level. But treatment does rev up the immune system-so if a person

has any latent immune problems or low level ones lurking in the background,

they will most definitely be aggravated by treatment-maybe die down again

after treatment, maybe not. Many docs don't know that yet-they only know

what they are told by the drug company reps that visits/harrasses them

during the day. Keep your head up-you will improve.

gail

Share this post


Link to post
Share on other sites
Guest guest

Ahhhh-Holland, land of legal marijuana! It's still illegal here in

victorian US. Perhaps another generation of politicians before it is

legalized in this country.

gail

From: " willem landstra " <rmland@...>

Reply-Hepatitis C

Date: Thu, 2 Jan 2003 19:44:13 +0100

<Hepatitis C >

Subject: Re: post treatment blues

HI.Try,half an hour before you go to sleep a luke warm solid glass of

Portugeese Port-wine and a good old fashion joint.You.ll sleep like a

log.Willem.

Re: post treatment blues

From: Sita@...

Gail,

What side effects did you have from neurontin? I took the first one

last night and slept like I was unconsious. When I woke up I was really

foggy, a drugged feeling I don't like. It is getting a little better but

still far from normal, and I only took 300 mg. My vision is a little blurry

at times. I am supposed to take twice that much each day.

-

Yes, Neurontin does knock you out! There is a 100mg dose-that is what my

doctor started me off on-100mg two times, then three times daily, then I

graduated to 300mg doses. The early side effects were dizziness, blurry

vision (as if I don't already have that!), sleepiness, and felt like I had

to pee all the time?!?! Those I got over after a couple of weeks. The

sides that made me stop (plus the fact that I was taking 800mg three times

daily and starting to have breakthrough pain-which was a sign that I needed

to up the dose again) were terrible dry eye/mouth, weight gain, hair loss,

and then the more 'rare' ones of inability to reach orgasim?!?!, and

bladder/bowel problems-not incontinence-the opposite-it seems the

electrical

impulse to the muscles to evacuate were being blocked by the neurontin?!?!

But, some people feel that Neurontin is a blessing-you can only stick it

out

for a while and see how you yourself will react to it. As for the cryo-it

was not caused by treatment-it actually was the symptom that caused me to

see a doc to find out what was wrong with me and that is how I found out I

have HCV. I did two rounds of treatment, but am a relapser. The only

permanent problem from treatment is the dry eye-I have gotten it to a

tolerable level. But treatment does rev up the immune system-so if a

person

has any latent immune problems or low level ones lurking in the background,

they will most definitely be aggravated by treatment-maybe die down again

after treatment, maybe not. Many docs don't know that yet-they only know

what they are told by the drug company reps that visits/harrasses them

during the day. Keep your head up-you will improve.

gail

Share this post


Link to post
Share on other sites
Guest guest

Ahhhh-Holland, land of legal marijuana! It's still illegal here in

victorian US. Perhaps another generation of politicians before it is

legalized in this country.

gail

From: " willem landstra " <rmland@...>

Reply-Hepatitis C

Date: Thu, 2 Jan 2003 19:44:13 +0100

<Hepatitis C >

Subject: Re: post treatment blues

HI.Try,half an hour before you go to sleep a luke warm solid glass of

Portugeese Port-wine and a good old fashion joint.You.ll sleep like a

log.Willem.

Re: post treatment blues

From: Sita@...

Gail,

What side effects did you have from neurontin? I took the first one

last night and slept like I was unconsious. When I woke up I was really

foggy, a drugged feeling I don't like. It is getting a little better but

still far from normal, and I only took 300 mg. My vision is a little blurry

at times. I am supposed to take twice that much each day.

-

Yes, Neurontin does knock you out! There is a 100mg dose-that is what my

doctor started me off on-100mg two times, then three times daily, then I

graduated to 300mg doses. The early side effects were dizziness, blurry

vision (as if I don't already have that!), sleepiness, and felt like I had

to pee all the time?!?! Those I got over after a couple of weeks. The

sides that made me stop (plus the fact that I was taking 800mg three times

daily and starting to have breakthrough pain-which was a sign that I needed

to up the dose again) were terrible dry eye/mouth, weight gain, hair loss,

and then the more 'rare' ones of inability to reach orgasim?!?!, and

bladder/bowel problems-not incontinence-the opposite-it seems the

electrical

impulse to the muscles to evacuate were being blocked by the neurontin?!?!

But, some people feel that Neurontin is a blessing-you can only stick it

out

for a while and see how you yourself will react to it. As for the cryo-it

was not caused by treatment-it actually was the symptom that caused me to

see a doc to find out what was wrong with me and that is how I found out I

have HCV. I did two rounds of treatment, but am a relapser. The only

permanent problem from treatment is the dry eye-I have gotten it to a

tolerable level. But treatment does rev up the immune system-so if a

person

has any latent immune problems or low level ones lurking in the background,

they will most definitely be aggravated by treatment-maybe die down again

after treatment, maybe not. Many docs don't know that yet-they only know

what they are told by the drug company reps that visits/harrasses them

during the day. Keep your head up-you will improve.

gail

Share this post


Link to post
Share on other sites
Guest guest

HI.It.s also illegal in Holland.But instead of forcing the law the government a

long time ago decided to regulate it,allowing people to smoke it.You.re allowed

to hve 5 grams of personal use.In the coffeeshop,government licensed, you can

buy a max. of 5 gram. In Holland at least it.s resulting that hard-drugs

addiction is going down fast( most people here got their Hep C from dirthy or

sharing needless,some decade.s ago).From your Doc. you also can get a

prescription to buy pot,medicinal,in the pharmacy.People with MS and cancer use

it to relieve their pain.I.am not advocating the use of pot but when I read the

mailings when people use all kinds of chemicals to relieve their pain,depression

and sleeplesness I think that.s no good either,dependency etc.Mabye it.s a

cultural difference between the US and Europe but we use far less drugs then in

the US.If you want anti-depressants your Doc. will first try to find out the

underlying course and will send you to a councilor.Also very reluctant to

prescribe anti-biotics.All the people I know who hve HepC. are having a hard

time to get anti-depressants from their Doc.A friend of mine had to throw his

computer through the window before they put him on Prozac,he bought a dog and

called him Heppy.Willem.

Re: post treatment blues

From: Sita@...

Gail,

What side effects did you have from neurontin? I took the first one

last night and slept like I was unconsious. When I woke up I was really

foggy, a drugged feeling I don't like. It is getting a little better but

still far from normal, and I only took 300 mg. My vision is a little blurry

at times. I am supposed to take twice that much each day.

-

Yes, Neurontin does knock you out! There is a 100mg dose-that is what my

doctor started me off on-100mg two times, then three times daily, then I

graduated to 300mg doses. The early side effects were dizziness, blurry

vision (as if I don't already have that!), sleepiness, and felt like I had

to pee all the time?!?! Those I got over after a couple of weeks. The

sides that made me stop (plus the fact that I was taking 800mg three times

daily and starting to have breakthrough pain-which was a sign that I needed

to up the dose again) were terrible dry eye/mouth, weight gain, hair loss,

and then the more 'rare' ones of inability to reach orgasim?!?!, and

bladder/bowel problems-not incontinence-the opposite-it seems the

electrical

impulse to the muscles to evacuate were being blocked by the neurontin?!?!

But, some people feel that Neurontin is a blessing-you can only stick it

out

for a while and see how you yourself will react to it. As for the cryo-it

was not caused by treatment-it actually was the symptom that caused me to

see a doc to find out what was wrong with me and that is how I found out I

have HCV. I did two rounds of treatment, but am a relapser. The only

permanent problem from treatment is the dry eye-I have gotten it to a

tolerable level. But treatment does rev up the immune system-so if a

person

has any latent immune problems or low level ones lurking in the background,

they will most definitely be aggravated by treatment-maybe die down again

after treatment, maybe not. Many docs don't know that yet-they only know

what they are told by the drug company reps that visits/harrasses them

during the day. Keep your head up-you will improve.

gail

Share this post


Link to post
Share on other sites
Guest guest

HI.It.s also illegal in Holland.But instead of forcing the law the government a

long time ago decided to regulate it,allowing people to smoke it.You.re allowed

to hve 5 grams of personal use.In the coffeeshop,government licensed, you can

buy a max. of 5 gram. In Holland at least it.s resulting that hard-drugs

addiction is going down fast( most people here got their Hep C from dirthy or

sharing needless,some decade.s ago).From your Doc. you also can get a

prescription to buy pot,medicinal,in the pharmacy.People with MS and cancer use

it to relieve their pain.I.am not advocating the use of pot but when I read the

mailings when people use all kinds of chemicals to relieve their pain,depression

and sleeplesness I think that.s no good either,dependency etc.Mabye it.s a

cultural difference between the US and Europe but we use far less drugs then in

the US.If you want anti-depressants your Doc. will first try to find out the

underlying course and will send you to a councilor.Also very reluctant to

prescribe anti-biotics.All the people I know who hve HepC. are having a hard

time to get anti-depressants from their Doc.A friend of mine had to throw his

computer through the window before they put him on Prozac,he bought a dog and

called him Heppy.Willem.

Re: post treatment blues

From: Sita@...

Gail,

What side effects did you have from neurontin? I took the first one

last night and slept like I was unconsious. When I woke up I was really

foggy, a drugged feeling I don't like. It is getting a little better but

still far from normal, and I only took 300 mg. My vision is a little blurry

at times. I am supposed to take twice that much each day.

-

Yes, Neurontin does knock you out! There is a 100mg dose-that is what my

doctor started me off on-100mg two times, then three times daily, then I

graduated to 300mg doses. The early side effects were dizziness, blurry

vision (as if I don't already have that!), sleepiness, and felt like I had

to pee all the time?!?! Those I got over after a couple of weeks. The

sides that made me stop (plus the fact that I was taking 800mg three times

daily and starting to have breakthrough pain-which was a sign that I needed

to up the dose again) were terrible dry eye/mouth, weight gain, hair loss,

and then the more 'rare' ones of inability to reach orgasim?!?!, and

bladder/bowel problems-not incontinence-the opposite-it seems the

electrical

impulse to the muscles to evacuate were being blocked by the neurontin?!?!

But, some people feel that Neurontin is a blessing-you can only stick it

out

for a while and see how you yourself will react to it. As for the cryo-it

was not caused by treatment-it actually was the symptom that caused me to

see a doc to find out what was wrong with me and that is how I found out I

have HCV. I did two rounds of treatment, but am a relapser. The only

permanent problem from treatment is the dry eye-I have gotten it to a

tolerable level. But treatment does rev up the immune system-so if a

person

has any latent immune problems or low level ones lurking in the background,

they will most definitely be aggravated by treatment-maybe die down again

after treatment, maybe not. Many docs don't know that yet-they only know

what they are told by the drug company reps that visits/harrasses them

during the day. Keep your head up-you will improve.

gail

Share this post


Link to post
Share on other sites
Guest guest

that is great for people who like pot. I don't so. I will stick to the

conventional drugs thank you!

Pot is very easily obtained in the USA as well.

Donna

Share this post


Link to post
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...